CURE SANFILIPPO FOUNDATION: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
CURE SANFILIPPO FOUNDATION (EIN 46-4322131)
Tax period
2017-01-01 to 2017-12-31
Filed
2018-11-15
IRS object ID
201803199349310410
Schema version
2017v2.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-11-15T11:39:57-08:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN570957419PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1The Hobbs Group PABusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11704 Laurel StreetAddressLine1Txt
CityColumbiaCityNm
State AbbreviationSCStateAbbreviationCd
ZIP29201ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN464322131EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Cure Sanfilippo FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCUREBusinessNameControlTxt
Phone8034130525PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 6901AddressLine1Txt
CityColumbiaCityNm
State AbbreviationSCStateAbbreviationCd
ZIP29260ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonGlenn O'NeillPersonNm
Person TitlePresidentPersonTitleTxt
Signature2018-11-15SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonWill Stevens CPAPreparerPersonNm
PTINP01208094PTIN
Phone8037990555PhoneNum
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerGlenn O'NeillPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 6901AddressLine1Txt
CityColumbiaCityNm
State AbbreviationSCStateAbbreviationCd
ZIP29260ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,809,115GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
All Affiliates IncludedfalseAllAffiliatesIncludedInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.curesff.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2013FormationYr
Legal Domicile StateSCLegalDomicileStateCd
Activity Or MissionTo advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo SyndromeActivityOrMissionDesc
Voting Members Governing Body7VotingMembersGoverningBodyCnt
Voting Members Independent7VotingMembersIndependentCnt
Total Employee1TotalEmployeeCnt
Total Volunteers75TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$538,854PYContributionsGrantsAmt
CY Contributions Grants$1,377,712CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$1,521PYInvestmentIncomeAmt
CY Investment Income$2,943,703CYInvestmentIncomeAmt
PY Other Revenue$61,385PYOtherRevenueAmt
CY Other Revenue$112,131CYOtherRevenueAmt
PY Total Revenue$601,760PYTotalRevenueAmt
CY Total Revenue$4,433,546CYTotalRevenueAmt
PY Grants And Similar Paid$152,638PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$312,878CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$49,854PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$167,925CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$8,183PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$26,115CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$87,280CYTotalFundraisingExpenseAmt
PY Other Expenses$84,487PYOtherExpensesAmt
CY Other Expenses$92,202CYOtherExpensesAmt
PY Total Expenses$295,162PYTotalExpensesAmt
CY Total Expenses$599,120CYTotalExpensesAmt
PY Revenues Less Expenses$306,598PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$3,834,426CYRevenuesLessExpensesAmt
Total Assets BOY$4,511,454TotalAssetsBOYAmt
Total Assets EOY$11,442,880TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$4,511,454NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$11,442,880NetAssetsOrFundBalancesEOYAmt
MissionTo advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo SyndromeMissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$472,488ExpenseAmt
DescTo advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo SyndromeDesc
Total Program Service Expenses$472,488TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingYes (true)ProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Invest Tax Exempt BondsfalseInvestTaxExemptBondsInd
Escrow AccountfalseEscrowAccountInd
On Behalf Of IssuerfalseOnBehalfOfIssuerInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld CompliancefalseBackupWthldComplianceInd
Employee1EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Org Filed In Lieu Of Form1041falseOrgFiledInLieuOfForm1041Ind
Licensed More Than One StatefalseLicensedMoreThanOneStateInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members7GoverningBodyVotingMembersCnt
Independent Voting Member7IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesfalseMinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonGlenn O'NeillPersonNm
Phone8034130525PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15 Calendar CourtAddressLine1Txt
CityColumbiaCityNm
State AbbreviationSCStateAbbreviationCd
ZIP29206ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (8 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerInd
Rachael Best
Director5.000.00Yes (X)$0$0$0
Faith McAngus
Director5.000.00Yes (X)$0$0$0
Valerie Byers
Director5.000.00Yes (X)$0$0$0
Katie Walton
Director5.000.00Yes (X)$0$0$0
Glenn O'Neill
Executive Dir.50.000.00$122,000$0$8,000Yes (X)
Cara O'Neill
Scientific Dir30.000.00$0$0$0Yes (X)
Daniel Fraley
Treasurer5.000.00$0$0$0Yes (X)
Shelby Leonardi
Secretary5.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$122,000TotalReportableCompFromOrgAmt
Total Other Compensation$8,000TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$30,710FundraisingAmt
All Other Contributions$1,347,002AllOtherContributionsAmt
Noncash Contributions$70,324NoncashContributionsAmt
Total Contributions$1,377,712TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$27,406TotalRevenueColumnAmt
Related Or Exempt Func Income$27,406RelatedOrExemptFuncIncomeAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$3,266,297SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$350,000SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$2,916,297SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,916,297TotalRevenueColumnAmt
Related Or Exempt Func Income$2,916,297RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$137,700FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$30,710ContriRptFundraisingEventAmt
Fundraising Direct Expenses$25,569FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$112,131TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,433,546TotalRevenueColumnAmt
Related Or Exempt Func Income$2,943,703RelatedOrExemptFuncIncomeAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$170,452TotalAmt
Program Services$170,452ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$142,426TotalAmt
Program Services$142,426ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$130,000TotalAmt
Program Services$75,000ProgramServicesAmt
Management And General$15,000ManagementAndGeneralAmt
Fundraising$40,000FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$2,684TotalAmt
Program Services$1,548ProgramServicesAmt
Management And General$310ManagementAndGeneralAmt
Fundraising$826FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$25,470TotalAmt
Program Services$14,694ProgramServicesAmt
Management And General$2,939ManagementAndGeneralAmt
Fundraising$7,837FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$9,771TotalAmt
Management And General$9,771ManagementAndGeneralAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$901TotalAmt
Management And General$901ManagementAndGeneralAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$12,669TotalAmt
Program Services$12,669ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$26,115TotalAmt
Fundraising$26,115FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$25,732TotalAmt
Program Services$18,000ProgramServicesAmt
Fundraising$7,732FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$5,847TotalAmt
Program Services$5,847ProgramServicesAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$18,780TotalAmt
Program Services$15,000ProgramServicesAmt
Management And General$3,780ManagementAndGeneralAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,224TotalAmt
Program Services$600ProgramServicesAmt
Management And General$624ManagementAndGeneralAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$3,005TotalAmt
Management And General$3,005ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmtManagement And GeneralManagementAndGeneralAmt
Printing and Publications$10,770$6,000$4,770
Web Service$9,558$9,558
Bank Fees$1,752$1,752
Membership Dues$694$694

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$1,270TotalAmt
Management And General$1,270ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$599,120TotalAmt
Program Services$472,488ProgramServicesAmt
Management And General$39,352ManagementAndGeneralAmt
Fundraising$87,280FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,804,363BOYAmt
EOY$1,204,896EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$3,212,361EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$2,707,091BOYAmt
EOY$7,025,621EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$2EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$4,511,454BOYAmt
EOY$11,442,880EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,511,454BOYAmt
EOY$11,442,880EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,511,454BOYAmt
EOY$11,442,880EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,511,454BOYAmt
EOY$11,442,880EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$3,834,426ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$3,097,000NetUnrlzdGainsLossesInvstAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewYes (true)AccountantCompileOrReviewInd

Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
FS AuditedfalseFSAuditedInd
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$42,449CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,379,488CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$582,508CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$636,440CurrentTaxYearMinus1YearAmt
Current Tax Year$1,515,412CurrentTaxYearAmt
Total$5,156,297TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$42,449CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,379,488CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$582,508CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$636,440CurrentTaxYearMinus1YearAmt
Current Tax Year$1,515,412CurrentTaxYearAmt
Total$5,156,297TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$5,156,297PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years-$33,660CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years-$120,540CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,521CurrentTaxYearMinus1YearAmt
Current Tax Year$2,943,703CurrentTaxYearAmt
Total$2,791,024TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$80CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$791CurrentTaxYearMinus1YearAmt
Total$871TotalAmt
FieldValueIRS element (for citing)
Total Support$7,948,192TotalSupportAmt
First5 Years170Yes (X)First5Years170Ind
Public Support CY1700.00000PublicSupportCY170Pct

Schedule B IRS990ScheduleB

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtValuation Method UsedValuationMethodUsedDesc
Ontario, CanadaSee Sch O$82,426CheckFMV
Rome, ItalySee Sch O$60,000Wire TransFMV
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Transfer To Foreign CorpYes (true)TransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd
Licensed StatesSCLicensedStatesCd
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Golf / Auction EventEvent1Nm
Gross Receipts Event1$57,505GrossReceiptsEvent1Amt
Charitable Contri Event1$10,760CharitableContriEvent1Amt
Gross Revenue Event1$46,745GrossRevenueEvent1Amt
Non Cash Prizes Event1$690NonCashPrizesEvent1Amt
Rent Facility Costs Event1$3,047RentFacilityCostsEvent1Amt
Food And Beverage Event1$5,336FoodAndBeverageEvent1Amt
Other Direct Expenses Event1$1,356OtherDirectExpensesEvent1Amt
Event2Dinner/Auction 2Event2Nm
Gross Receipts Event2$37,031GrossReceiptsEvent2Amt
Charitable Contri Event2$7,700CharitableContriEvent2Amt
Gross Revenue Event2$29,331GrossRevenueEvent2Amt
Rent Facility Costs Event2$9,031RentFacilityCostsEvent2Amt
Other Events Total2OtherEventsTotalCnt
Gross Receipts Other Events$73,874GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$12,250CharitableContriOtherEventsAmt
Gross Revenue Other Events$61,624GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events$1,435RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events$1,375FoodAndBeverageOtherEventsAmt
Oth Direct Expnss Other Events$3,299OthDirectExpnssOtherEventsAmt
Gross Receipts Total$168,410GrossReceiptsTotalAmt
Charitable Contributions Tot$30,710CharitableContributionsTotAmt
Gross Revenue Total Events$137,700GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events$690NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$13,513RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$6,711FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$4,655OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$25,569DirectExpenseSummaryEventsAmt
Net Income Summary$112,131NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Nationwide Childrens Hospita
700 Childrens DriveColumbusOH43205311036370$97,880$0Research Preexisting AAV Antibodies
Nationwide Childrens Hospita
700 Childrent DriveColumbusOH43205311036370$18,920$0Intravenuous AAV9 Gene Therapy
University of California San
9500 Gilman DriveLa JollaCA92039956006144$32,595$0Intranasal Delivery of Sulfamidase
University of Florida
1600 SW Archer RdGainesvilleFL32610596002052$17,000$0Stem Cell Therapy for Sanfilippo
FieldValueIRS element (for citing)
Total501c3 Org0Total501c3OrgCnt
Total Other Org4TotalOtherOrgCnt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution4ContributionCnt
Noncash Contributions Rpt F990$70,324NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (13 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, EtGlenn ONeill and Cara ONeill MD FAAP are husband and wife and only get one vote together.
Form 990, Part VI, Line 11b: Form 990 Review ProcessAll Board Members have reviewed the Form 990.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsConflicts of interest are reviewed during Board Meetings
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementThe Employment Committee was established to determine compensation for the Executive Director. The Committee reviewed multiple 990s to establish reasonable compensation for the Executive Director.The Executive Director, Glenn O'Neill, reports to the Board's Employment Committee. This Employment Committee includes Dan Fraley, Shelby Leonardi, Valerie Byers, Faith McAngus, Rachael Best, and Katie Walton. The Employment committee is responsible for all hiring decisions including compensation, benefits, job performance, etc.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableThe organization's governing documents, policies, and financial statements are available upon request. The Form 990 is uploaded on the Guidestar website.
Form 990, Part IV, Line 12a - Audited Financial StatementsAs of the time of filing this 990, Cure Sanfilippo Foundation is undergoing an Audit for Calendar Year 2017
INTRANASAL DELIVERY OF SULFAMIDASE (EXTENSION)The University of California, San Diego, Department of Cellular and Molecular Medicine, a nonprofit organization at 9500 Gilman Drive, La Jolla CA 92039-0687 received $32,595.00 in 2017 from Cure Sanfilippo Foundation, for an extension study on INTRANASAL DELIVERY OF SULFAMIDASE
Investments - Publicly Traded SecuritiesThe Foundation made an Investment in ABEONA Therapeutics LLC (ABEONA LLC) of $950,000 in 2014 to fund drug production & toxicology studies for a Gene Therapy Clinical Trial for Sanfilippo Syndrome, and in return received Class A Units. ABEONA LLC merged with a publicly traded company in May of 2015 and for those units, the Foundation received total ABEO stock shares of 542,915. These shares became unrestricted in October 2017. In November 2017, the Foundation sold 200,000 ABEO shares for $3,266,296.57.
NEURAL AND MESENCHYMAL STEM CELL MEDIATED GENE THERAPY FOR SANFILIPPOUniversity of Florida, a nonprofit organization at 1600 SW Archer Rd, Gainesville, Florida, 32610, received $17,000.00 in 2017 from Cure Sanfilippo Foundation, for NEURAL AND MESENCHYMAL STEM CELL MEDIATED GENE THERAPY FOR SANFILIPPO SYNDROME TYPE B
REPURPOSING OF FDA APPROVED DRUGS FOR THE TREATMENT OF MUCOPOLYSACCHARFondazione Telethon, a nonprofit organization at Via Varese 16/B, Rome, Italy 00185, received $60,000.00 in 2017 from Cure Sanfilippo Foundation, for REPURPOSING OF FDA APPROVED DRUGS FOR THE TREATMENT OF MUCOPOLYSACCHARIDOSES (MPSS)
RESEARCH STRATEGY FOR PRE-EXISTING AAV (ADENO-ASSOCIATED VIRUS) ANTIBOThe Research Institute at Nationwide Childrens Hospital, at 700 Childrens Drive, Columbus, OH 43205 received $97.879.50 in 2017 from Cure Sanfilippo Foundation, for RESEARCH STRATEGY FOR PRE-EXISTING AAV (ADENO-ASSOCIATED VIRUS) ANTIBODIES
SUBSTRATE REDUCTION THERAPY FOR SIX MUCOPOLYSACCHARIDOSESThe Hospital for Sick Children, a nonprofit at 555 University Avenue, Toronto, Ontario, M5G 1X8, Canada received $82,426.00 in 2017 from Cure Sanfilippo Foundation, for SUBSTRATE REDUCTION THERAPY FOR SIX MUCOPOLYSACCHARIDOSES
SUPPORT FOR INTRAVENUOUS AAV9 GENE THERAPY FOR MPSIIIA and MPSIIIBThe Research Institute at Nationwide Childrens Hospital, a nonprofit organization at 700 Childrens Drive, Columbus, OH 43205 received $18,919.75 in 2017 from Cure Sanfilippo Foundation, for SUPPORT FOR INTRAVENUOUS AAV9 GENE THERAPY FOR MPSIIIA and MPSIIIB

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