CURE SANFILIPPO FOUNDATION: Form 990, tax year 2018
View the entire original 990 at ProPublica ↗
- Organization
- CURE SANFILIPPO FOUNDATION (EIN 46-4322131)
- Tax period
- 2018-01-01 to 2018-12-31
- Filed
- 2019-11-15
- IRS object ID
- 201923199349314287
- Schema version
- 2018v3.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2019-11-15T14:03:07-08:00 | ReturnTs |
| Tax Period End | 2018-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 570957419 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | The Hobbs Group PA | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1704 Laurel Street | AddressLine1Txt |
| City | Columbia | CityNm |
| State Abbreviation | SC | StateAbbreviationCd |
| ZIP | 29201 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2018-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 464322131 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Cure Sanfilippo Foundation | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CURE | BusinessNameControlTxt |
| Phone | 8034130525 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO Box 6901 | AddressLine1Txt |
| City | Columbia | CityNm |
| State Abbreviation | SC | StateAbbreviationCd |
| ZIP | 29260 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Glenn O'Neill | PersonNm |
| Person Title | President | PersonTitleTxt |
| Signature | 2019-11-15 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Will Stevens CPA | PreparerPersonNm |
| PTIN | P01208094 | PTIN |
| Phone | 8037990555 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2018 | TaxYr |
| Build TS | 2020-03-31 21:24:44Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Glenn O'Neill | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO Box 6901 | AddressLine1Txt |
| City | Columbia | CityNm |
| State Abbreviation | SC | StateAbbreviationCd |
| ZIP | 29260 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,144,141 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| All Affiliates Included | false | AllAffiliatesIncludedInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.curesff.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2013 | FormationYr |
| Legal Domicile State | SC | LegalDomicileStateCd |
| Activity Or Mission | To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome | ActivityOrMissionDesc |
| Voting Members Governing Body | 8 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 7 | VotingMembersIndependentCnt |
| Total Employee | 3 | TotalEmployeeCnt |
| Total Volunteers | 80 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $1,377,712 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,748,376 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $2,943,703 | PYInvestmentIncomeAmt |
| CY Investment Income | $31,628 | CYInvestmentIncomeAmt |
| PY Other Revenue | $112,131 | PYOtherRevenueAmt |
| CY Other Revenue | $278,975 | CYOtherRevenueAmt |
| PY Total Revenue | $4,433,546 | PYTotalRevenueAmt |
| CY Total Revenue | $2,058,979 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $312,878 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $636,976 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $167,925 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $286,619 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $26,115 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $140,270 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $92,202 | PYOtherExpensesAmt |
| CY Other Expenses | $229,815 | CYOtherExpensesAmt |
| PY Total Expenses | $599,120 | PYTotalExpensesAmt |
| CY Total Expenses | $1,153,410 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $3,834,426 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $905,569 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $11,442,880 | TotalAssetsBOYAmt |
| Total Assets EOY | $10,817,840 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $0 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $11,442,880 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $10,817,840 | NetAssetsOrFundBalancesEOYAmt |
| Mission | To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $947,671 | ExpenseAmt |
| Desc | To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome | Desc |
| Total Program Service Expenses | $947,671 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | false | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | false | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Invest Tax Exempt Bonds | false | InvestTaxExemptBondsInd |
| Escrow Account | false | EscrowAccountInd |
| On Behalf Of Issuer | false | OnBehalfOfIssuerInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | false | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | false | BackupWthldComplianceInd |
| Employee | 3 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | false | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Form8282 Filed | 0 | Form8282FiledCnt |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| DAF Excess Business Holdings | false | DAFExcessBusinessHoldingsInd |
| Taxable Distributions | false | TaxableDistributionsInd |
| Distribution To Donor | false | DistributionToDonorInd |
| Org Filed In Lieu Of Form1041 | false | OrgFiledInLieuOfForm1041Ind |
| Licensed More Than One State | false | LicensedMoreThanOneStateInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 8 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 7 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Glenn O'Neill | PersonNm |
| Phone | 8034130525 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO Box 6901 | AddressLine1Txt |
| City | Columbia | CityNm |
| State Abbreviation | SC | StateAbbreviationCd |
| ZIP | 29260 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (9 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd |
|---|---|---|---|---|---|---|---|
| Rachael Best | |||||||
| Director | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Faith McAngus | |||||||
| Director | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Valerie Byers | |||||||
| Director | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Katie Walton | |||||||
| Director | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Ben Von Wong | |||||||
| Director | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Glenn O'Neill | |||||||
| Executive Dir. | 50.00 | 0.00 | $122,000 | $0 | $8,000 | Yes (X) | |
| Cara O'Neill | |||||||
| Chief Science | 30.00 | 0.00 | $75,000 | $0 | $0 | Yes (X) | |
| Daniel Fraley | |||||||
| Board Chair | 5.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Shelby Leonardy | |||||||
| Secretary | 5.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $197,000 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $8,000 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $69,606 | FundraisingAmt |
| All Other Contributions | $1,678,770 | AllOtherContributionsAmt |
| Noncash Contributions | $65,867 | NoncashContributionsAmt |
| Total Contributions | $1,748,376 | TotalContributionsAmt |
| Total Program Service Revenue | $0 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $25,237 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $25,237 | RelatedOrExemptFuncIncomeAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $66,850 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $60,459 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $6,391 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,391 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $6,391 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $303,678 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $69,606 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $24,703 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $278,975 | TotalRevenueColumnAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $0 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,058,979 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $31,628 | RelatedOrExemptFuncIncomeAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $407,050 | TotalAmt |
| Program Services | $407,050 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $229,926 | TotalAmt |
| Program Services | $229,926 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $205,000 | TotalAmt |
| Program Services | $133,250 | ProgramServicesAmt |
| Management And General | $30,750 | ManagementAndGeneralAmt |
| Fundraising | $41,000 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $36,888 | TotalAmt |
| Program Services | $21,282 | ProgramServicesAmt |
| Management And General | $4,256 | ManagementAndGeneralAmt |
| Fundraising | $11,350 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,574 | TotalAmt |
| Program Services | $908 | ProgramServicesAmt |
| Management And General | $182 | ManagementAndGeneralAmt |
| Fundraising | $484 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $28,436 | TotalAmt |
| Program Services | $18,484 | ProgramServicesAmt |
| Management And General | $4,265 | ManagementAndGeneralAmt |
| Fundraising | $5,687 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,721 | TotalAmt |
| Program Services | $9,569 | ProgramServicesAmt |
| Management And General | $2,208 | ManagementAndGeneralAmt |
| Fundraising | $2,944 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,880 | TotalAmt |
| Program Services | $26,880 | ProgramServicesAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,300 | TotalAmt |
| Program Services | $3,300 | ProgramServicesAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $30,788 | TotalAmt |
| Program Services | $21,537 | ProgramServicesAmt |
| Fundraising | $9,251 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,649 | TotalAmt |
| Program Services | $15,649 | ProgramServicesAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $713 | TotalAmt |
| Program Services | $713 | ProgramServicesAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,898 | TotalAmt |
| Program Services | $2,898 | ProgramServicesAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $23,508 | TotalAmt |
| Program Services | $18,777 | ProgramServicesAmt |
| Management And General | $4,731 | ManagementAndGeneralAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,836 | TotalAmt |
| Program Services | $3,842 | ProgramServicesAmt |
| Management And General | $3,994 | ManagementAndGeneralAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,134 | TotalAmt |
| Management And General | $3,134 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | FundraisingFundraisingAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|---|
| Events | $69,554 | $69,554 | ||
| Program Expense | $21,624 | $21,624 | ||
| Printing and Publications | $7,788 | $7,788 | ||
| Taxes | $5,132 | $5,132 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,011 | TotalAmt |
| Program Services | $6,850 | ProgramServicesAmt |
| Management And General | $4,161 | ManagementAndGeneralAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,153,410 | TotalAmt |
| Program Services | $947,671 | ProgramServicesAmt |
| Management And General | $65,469 | ManagementAndGeneralAmt |
| Fundraising | $140,270 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,204,896 | BOYAmt |
| EOY | $1,221,712 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,212,361 | BOYAmt |
| EOY | $2,204,422 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,025,621 | BOYAmt |
| EOY | $7,391,706 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2 | BOYAmt |
| EOY | $0 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,442,880 | BOYAmt |
| EOY | $10,817,840 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,442,880 | BOYAmt |
| EOY | $10,817,840 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,442,880 | BOYAmt |
| EOY | $10,817,840 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,442,880 | BOYAmt |
| EOY | $10,817,840 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $905,569 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$1,525,455 | NetUnrlzdGainsLossesInvstAmt |
| Investment Expense | -$5,154 | InvestmentExpenseAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | Yes (true) | AccountantCompileOrReviewInd |
Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| FS Audited | false | FSAuditedInd |
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,379,488 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $582,508 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $636,440 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,515,412 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,052,054 | CurrentTaxYearAmt |
| Total | $7,165,902 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,379,488 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $582,508 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $636,440 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,515,412 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,052,054 | CurrentTaxYearAmt |
| Total | $7,165,902 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $0 | SubstantialContributorsTotAmt |
| Public Support Total170 | $7,165,902 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | -$33,660 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | -$120,540 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,521 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,943,703 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $31,628 | CurrentTaxYearAmt |
| Total | $2,822,652 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $80 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $791 | CurrentTaxYearMinus2YearsAmt |
| Total | $871 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $9,989,425 | TotalSupportAmt |
| Public Support CY170 | 0.71730 | PublicSupportCY170Pct |
| Public Support PY170 | 0.64870 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| East Asia and the Pacific | 0 | 0 | Grants | See Schedule O | $35,000 |
| Europe | 0 | 0 | Grants | See Schedule O | $112,500 |
| North America | 0 | 0 | Grants | See Schedule O | $35,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $182,500 | SubtotalSpentAmt |
| Total Spent | $182,500 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|
| Ontario, Canada | See Sch O | $82,426 | Check | FMV |
| Rome, Italy | See Sch O | $112,500 | Wire Trans | FMV |
| Victoria, Austr | See Sch O | $35,000 | Wire Trans | FMV |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Transfer To Foreign Corp | Yes (true) | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Agrmt Prof Fundraising Acty | Yes (true) | AgrmtProfFundraisingActyInd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Dinner/Auction 2 | Event1Nm |
| Gross Receipts Event1 | $186,724 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $15,750 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $170,974 | GrossRevenueEvent1Amt |
| Event2 | Golf / Auction Event | Event2Nm |
| Gross Receipts Event2 | $83,426 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $24,855 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $58,571 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $1,071 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $3,675 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $7,850 | FoodAndBeverageEvent2Amt |
| Other Events Total | 2 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $103,134 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $29,001 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $74,133 | GrossRevenueOtherEventsAmt |
| Rent Fclty Costs Other Events | $6,840 | RentFcltyCostsOtherEventsAmt |
| Oth Direct Expnss Other Events | $5,267 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $373,284 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $69,606 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $303,678 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $1,071 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $10,515 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $7,850 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $5,267 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $24,703 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $278,975 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (6 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| LA Biomed | |||||||
| 1124 West Carson Street | Torrance | CA | 90502 | 952138184 | $70,000 | $0 | Application of neural stem cells de |
| Nationwide Childrens Hospita | |||||||
| 700 Childrens Drive | Columbus | OH | 43205 | 311036370 | $93,065 | $0 | Research Preexisting AAV Antibodies |
| Perlara PBC | |||||||
| 6000 Shoreline Ct | San Francisco | CA | 94080 | $100,000 | $0 | Creation and high throughput drug s | |
| The Pennsylvania State Univer | |||||||
| 227 West Beaver Ave | State College | PA | 16801 | 246000376 | $30,000 | $0 | Role of Autophagy in Mucopolysaccha |
| The Regents of University of | |||||||
| 1995 University Avenue | Berkeley | CA | 94704 | 943067788 | $96,985 | $0 | Neural Stem Cells Engineered |
| University of Florida | |||||||
| 1600 SW Archer Rd | Gainesville | FL | 32610 | 596002052 | $17,000 | $0 | Stem Cell Therapy for Sanfilippo |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 0 | Total501c3OrgCnt |
| Total Other Org | 6 | TotalOtherOrgCnt |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 500 | ContributionCnt |
| Noncash Contributions Rpt F990 | $65,867 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | false | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | false | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (17 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et | Glenn ONeill and Cara ONeill MD FAAP are husband and wife and only get one vote together. |
| Form 990, Part VI, Line 11b: Form 990 Review Process | All Board Members have reviewed the Form 990. |
| Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts | Conflicts of interest are reviewed during Board Meetings |
| Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management | The Employment Committee was established to determine compensation for the Executive Director/President. The Employment Committee is responsible for all hiring decisions, including compensation, benefits, job performance, etc. In 2018, the Employment Committee included Dan Fraley, Shelby Leonardi, Valerie Byers, Faith McAngus, and Katie Walton. The Employment Committee reviewed multiple 990's and other comparable benchmarks, to establish reasonable compensation for Executive Director/President. The Executive Director/President reports to the Employment Committee. |
| Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees | The Employment Committee reviewed multiple 990's and other comparable benchmarks, to establish reasonable compensation for Chief Science Officer. |
| Form 990, Part VI, Line 19: Other Organization Documents Publicly Available | The organization's governing documents, policies, and financial statements are available upon request. The Form 990 is uploaded on the Guidestar website. |
| Application of neural stem cells derived from patient iPSCs into immun | TITLE: Application of neural stem cells derived from patient iPSCs into immunodeficient MPSIII mouse model for the treatment of Sanfilippo SyndromeAwardee: LA Biomed1124 West Carson Street, Torrance, CA 90502EIN: 95-2138184AMOUNT IN 2018: $70,000 check paymentDate: 10/15/2018 |
| Creating a MPSIII zebrafish model and brain specific in vivo lysosome | TITLE: Creating a MPSIII zebrafish model and brain specific in vivo lysosome reporter for drug screening and in vivo imaging of disease pathologyAWARDEE: Monash University710 Blackburn Road, Clayton, Victoria, 3168, AustraliaAMOUNT IN 2018: $35,000 wire transferDATE: 5/4/2018 |
| Creation and high throughput drug screening novel gene-edited model or | TITLE: Creation and high throughput drug screening novel gene-edited model organisms (fly and worm) for MPSIIIA and MPSIIIBAwardee: Perlara PBC6000 Shoreline Ct., Suite 204, South San Francisco, CAAMOUNT IN 2018: $100,000.00 wire transferDate: 9/6/2018 |
| Form 990, Part IV, Line 12a - Audited Financial Statements | As of the time of filing this 990, Cure Sanfilippo Foundation is undergoing an Audit for Calendar Year 2018. The Audit for Calendar Year 2017 has been completed. |
| Neural & Mesenchymal Stem Cell Mediated Gene Therapy | TITLE: Neural & Mesenchymal Stem Cell Mediated Gene TherapyAwardee: University Of Florida Board of TrusteesPO Box 113001, Gainesville, FL 32611Amount in 2018: $17,000 Check paymentDate: 6/6/2018EIN: 59-6002052 |
| Neural Stem Cells Engineered to Produce Sulfamidase for treatment of S | TITLE: Neural Stem Cells Engineered to Produce Sulfamidase for treatment of Sanfilippo SyndromeAWARDEE: The Regents of the University of California AMOUNT IN 2018: $96,985.00EIN: 94-6036494DATE: 7/19/2018 |
| New Therapy NDST1 Mucopolysaccharidosis | TITLE: New Therapy NDST1 MucopolysaccharidosisAwardee: Sick Kids Research Institute686 Bay Street, 3rd Floor, Research Operations, Toronto, Ontario, M5G 0A4AMOUNT IN 2018: $82,426.00 Check Payment Date: 11/8/2018 |
| Overcoming Pre-Existing AAV Antibodies for Treating Sanfilippo Syndrom | TITLE: Overcoming Pre-Existing AAV Antibodies for Treating Sanfilippo Syndrome Using rAAV9-Mediated Gene TherapyAwardee: The Research Institute at Nationwide Childrens HospitalPO Box 78000, Detroit, MI 48278AMOUNT IN 2018: $93,064.89EIN: 31-6056230Date: 5/4/2018 |
| Repositioning of FDA compounds using cell-based high content screening | TITLE: Repositioning of FDA compounds using cell-based high content screening in MPSIIIA cell modelsAWARDEE: Fondazione Telethon6315 Via Della Rosetta N 1 00186, Rome, Italla, ITAMOUNT IN 2018: $30,000 wire transferDATE: 7/3/2018 |
| Targeting amyloid aggregation as a new therapeutic approach to treat | TITLE: Targeting amyloid aggregation as a new therapeutic approach to treat the CNS in Sanfilippo SyndromeAWARDEE: Fondazione Telethon6315 Via Della Rosetta N 1 00186, Rome, Italla, ITAMOUNT IN 2018: $82,500 wire transferDATE: 1st payment (half) on 4/3/2018 and 2nd payment (half) on 11/30/2018 |
| The Role of Autophagy in Mucopolysaccharidoses and Its potential as a | TITLE: The Role of Autophagy in Mucopolysaccharidoses and Its potential as a Therapeutic TargetAwardee: The Pennsylvania State University227 West Beaver Ave., Suite 401, State College, PA 16801EIN: 24-6000376AMOUNT IN 2018: $30,000 check paymentDate: 8/23/2018 |
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