THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION
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Cite this
Plain text THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION. furp.org, nonprofit organization profile, tax years 2012–2025. https://furp.org/org/the-familial-hypercholesterolemia-foundation-454597425. Retrieved 2026-11-04.
APA furp.org. (n.d.). THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION [Nonprofit organization profile; tax years 2012–2025]. Retrieved November 4, 2026, from https://furp.org/org/the-familial-hypercholesterolemia-foundation-454597425
MLA “THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION.” furp.org, tax years 2012–2025, https://furp.org/org/the-familial-hypercholesterolemia-foundation-454597425. Accessed 4 Nov. 2026.
Retrieved 2026-11-04; covers tax years 2012–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $10.7M · expenses $8.9M · assets $8.7M
- Also known as
- Family Heart Foundation
- EIN
- 45-4597425
- Address
- 5548 FIRST COAST HWY STE 204, FERN BCH, FL 32034-5089
- Website
- www.familyheart.org
- NTEE code
- G12
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- May 2012 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a) (Lp(a)). Through research, advocacy, and education we play a critical role in driving change and empower families to navigate their own health.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
17 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 2012-2025 | $492,331 | $4,004,162 | 1 |
| Hilliard Paige | Chief Innovation Officer | 2023-2025 | $405,930 | $1,170,863 | 1 |
| Diane MacDougall | VP of Science and Research | 2023-2025 | $206,423 | $601,244 | 1 |
| Allison Hawke | VP of Operations | 2024-2025 | $239,864 | $473,722 | 1 |
| Susan Seim | Creative Director | 2023-2025 | $172,089 | $439,560 | 1 |
| Shoshana Bardach | Director Quality/Research Operations | 2025 | $171,781 | $171,781 | 1 |
| Catherine Ahmed (former) | VP of Policy | 2017-2023 | $142,076 | $1,080,523 | 1 |
| M McGowan (former) | CMO | 2020-2023 | $231,176 | $610,446 | 1 |
| E Erikson (former) | Finance Manager (end Nov) | 2020-2022 | $108,170 | $363,846 | 1 |
| A Sheldon (former) | VP of Marketing | 2019-2020 | $179,343 | $355,452 | 1 |
| Amanda Sheldon (former) | VP, Marketing & Communications | 2018 | $172,606 | $172,606 | 1 |
| S Gidding MD (former) | CMedO (Term end Dec.) | 2019 | $153,414 | $153,414 | 1 |
| Barbara Gladders (former) | Sr. Healthcare Data Analyst | 2024 | $142,842 | $142,842 | 1 |
| Carole King (former) | Dir. of Development | 2016 | $125,000 | $125,000 | 1 |
| E Fennell (former) | Development Director | 2019 | $116,426 | $116,426 | 1 |
| Stacey Stanley (former) | Executive Assistant | 2017 | $112,847 | $112,847 | 1 |
| Kathryn Langeder (former) | Office Manager | 2012-2013 | $0 | $50,000 | 1 |
Officers and directors, no compensation reported
18 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Seth Baum | Chair | 2014-2025 | 1 | $0 reported | 2 |
| Allison Jamison | Vice President & Treasurer | 2018-2025 | 1 | $0 reported | 1 |
| Brian Mittman | Board Member | 2022-2025 | 1 | $0 reported | 1 |
| Courtney Riley | Board Member | 2022-2025 | 1 | $0 reported | 1 |
| Joshua Knowles (former) | Chair | 2014-2024 | 1 | $0 reported | 1 |
| Keith Ferdinand (former) | Board Member | 2023-2024 | 1 | $0 reported | 2 |
| Dan Rader (former) | Chair (end Dec.) | 2015-2023 | 1 | $0 reported | 1 |
| Stacey Lane (former) | Board Member (end Dec.) | 2014-2023 | 1 | $0 reported | 1 |
| Michael Shapiro (former) | Secretary | 2018-2022 | 1 | $0 reported | 3 |
| William Neal (former) | Chair Emeritus (deceased 1/21) | 2014-2021 | 1 | $0 reported | 1 |
| Barry Brooks (former) | Board Member | 2016-2021 | 1 | $0 reported | 1 |
| Maria Sophocles (former) | Board Member (term end March) | 2017-2020 | 1 | $0 reported | 1 |
| Mary McGowan (former) | Interim Treasurer (Term start May) | 2018-2019 | 1 | $0 reported | 1 |
| Christian Jacobs (former) | Board Member | 2014-2017 | 1 | $0 reported | 1 |
| Dave Pickhardt (former) | Treasurer/Chair | 2012-2014 | 5 | $0 reported | 1 |
| Ted Tussing (former) | Board Member | 2014 | 1 | $0 reported | 1 |
| Josh Knowles (former) | Chief Medical Officer | 2012-2013 | 15 | $0 reported | 1 |
| Joyce Ross (former) | Board Secretary | 2012 | 1 | $0 reported | 1 |
People by year
2025 · 10 people listed · 6 paid, $1.7M · 23 employees · 374 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $468,514 | $0 | $23,817 | $492,331 | 1 |
| Hilliard Paige | Chief Innovation Officer | 40 | $366,568 | $0 | $39,362 | $405,930 | 1 |
| Allison Hawke | VP of Operations | 40 | $213,767 | $0 | $26,097 | $239,864 | 1 |
| Diane MacDougall | VP of Science and Research | 40 | $193,049 | $0 | $13,374 | $206,423 | 1 |
| Susan Seim | Creative Director | 40 | $155,960 | $0 | $16,129 | $172,089 | 1 |
| Shoshana Bardach | Director Quality/Research Operations | 40 | $154,200 | $0 | $17,581 | $171,781 | 1 |
| Seth Baum | Chair | 1 | $0 | $0 | $0 | $0 | 2 |
| Allison Jamison | Vice President & Treasurer | 1 | $0 | $0 | $0 | $0 | 1 |
| Brian Mittman | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Courtney Riley | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2024 · 12 people listed · 6 paid, $1.6M · 22 employees · 374 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $387,365 | $0 | $16,071 | $403,436 | 1 |
| Hilliard Paige | Chief Innovation Officer | 40 | $363,165 | $0 | $38,442 | $401,607 | 1 |
| Allison Hawke | VP of Operations | 40 | $208,984 | $0 | $24,874 | $233,858 | 1 |
| Diane MacDougall | VP of Science and Research | 40 | $194,774 | $0 | $25,627 | $220,401 | 1 |
| Susan Seim | Creative Director | 40 | $135,463 | $0 | $14,292 | $149,755 | 1 |
| Barbara Gladders | Sr. Healthcare Data Analyst | 40 | $124,000 | $0 | $18,842 | $142,842 | 1 |
| Joshua Knowles | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Seth Baum | Vice Chair | 1 | $0 | $0 | $0 | $0 | 2 |
| Allison Jamison | Treasurer | 1 | $0 | $0 | $0 | $0 | 1 |
| Keith Ferdinand | Board Member | 1 | $0 | $0 | $0 | $0 | 2 |
| Brian Mittman | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Courtney Riley | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 14 people listed · 6 paid, $1.5M · 17 employees · 202 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $438,365 | $0 | $13,734 | $452,099 | 1 |
| Hilliard Paige | Chief Innovation Officer | 40 | $338,536 | $0 | $24,790 | $363,326 | 1 |
| M McGowan | CMO | 40 | $214,639 | $0 | $16,537 | $231,176 | 1 |
| Diane MacDougall | VP of Science and Research | 40 | $174,420 | $0 | $0 | $174,420 | 1 |
| Catherine Ahmed | VP of Policy | 40 | $141,418 | $0 | $658 | $142,076 | 1 |
| Susan Seim | Creative Director | 40 | $117,716 | $0 | $0 | $117,716 | 1 |
| Dan Rader | Chair (end Dec.) | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Seth Baum | Vice Chair (start Jan.) | 1 | $0 | $0 | $0 | $0 | 2 |
| Allison Jamison | Treasurer | 1 | $0 | $0 | $0 | $0 | 1 |
| Keith Ferdinand | Board Member (start Jan.) | 1 | $0 | $0 | $0 | $0 | 2 |
| Stacey Lane | Board Member (end Dec.) | 1 | $0 | $0 | $0 | $0 | 1 |
| Brian Mittman | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Courtney Riley | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2022 · 11 people listed · 4 paid, $860K · 12 employees · 124 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $408,300 | $0 | $0 | $408,300 | 1 |
| Catherine Ahmed | VP of Policy | 40 | $180,000 | $0 | $0 | $180,000 | 1 |
| M McGowan | CMO | 40 | $162,637 | $0 | $1,048 | $163,685 | 1 |
| E Erikson | Finance Manager (end Nov) | 40 | $101,815 | $0 | $6,355 | $108,170 | 1 |
| Dan Rader | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Vice Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Michael Shapiro | Secretary | 1 | $0 | $0 | $0 | $0 | 3 |
| Allison Jamison | Treasurer | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Brian Mittman | Board Member (term start Oct) | 1 | $0 | $0 | $0 | $0 | 1 |
| Courtney Riley | Board Member (term start Feb) | 1 | $0 | $0 | $0 | $0 | 1 |
2021 · 11 people listed · 4 paid, $767K · 11 employees · 7 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $340,251 | $0 | $0 | $340,251 | 1 |
| Catherine Ahmed | VP of Policy | 40 | $180,000 | $0 | $0 | $180,000 | 1 |
| E Erikson | Finance Manager | 40 | $115,385 | $0 | $15,900 | $131,285 | 1 |
| M McGowan | CMO | 20 | $115,385 | $0 | $0 | $115,385 | 1 |
| William Neal | Chair Emeritus (deceased 1/21) | 1 | $0 | $0 | $0 | $0 | 1 |
| Dan Rader | Vice Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Michael Shapiro | Secretary | 1 | $0 | $0 | $0 | $0 | 3 |
| Allison Jamison | Treasurer | 1 | $0 | $0 | $0 | $0 | 1 |
| Barry Brooks | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2020 · 13 people listed · 5 paid, $890K · 13 employees · 8 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $308,049 | $0 | $0 | $308,049 | 1 |
| A Sheldon | VP of Marketing | 40 | $171,911 | $0 | $7,432 | $179,343 | 1 |
| Catherine Ahmed | VP of Policy | 40 | $177,662 | $0 | $0 | $177,662 | 1 |
| E Erikson | Finance Manager | 40 | $108,546 | $0 | $15,845 | $124,391 | 1 |
| M McGowan | CMO | 20 | $100,200 | $0 | $0 | $100,200 | 1 |
| William Neal | Chair Emeritus | 1 | $0 | $0 | $0 | $0 | 1 |
| Dan Rader | Vice Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Michael Shapiro | Secretary | 1 | $0 | $0 | $0 | $0 | 3 |
| Allison Jamison | Treasurer | 1 | $0 | $0 | $0 | $0 | 1 |
| Barry Brooks | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Maria Sophocles | Board Member (term end March) | 1 | $0 | $0 | $0 | $0 | 1 |
2019 · 15 people listed · 5 paid, $941K · 16 employees · 9 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $328,029 | $0 | $10,336 | $338,365 | 1 |
| A Sheldon | VP of Marketing | 40 | $168,736 | $0 | $7,373 | $176,109 | 1 |
| Catherine Ahmed | VP of Policy | 40 | $156,478 | $0 | $0 | $156,478 | 1 |
| S Gidding MD | CMedO (Term end Dec.) | 40 | $143,716 | $0 | $9,698 | $153,414 | 1 |
| E Fennell | Development Director | 40 | $109,654 | $0 | $6,772 | $116,426 | 1 |
| William Neal | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Chair Elect | 1 | $0 | $0 | $0 | $0 | 1 |
| Michael Shapiro | Secretary | 1 | $0 | $0 | $0 | $0 | 3 |
| Seth Baum | Treasurer (Term end May) | 1 | $0 | $0 | $0 | $0 | 2 |
| Mary McGowan | Interim Treasurer (Term start May) | 1 | $0 | $0 | $0 | $0 | 1 |
| Barry Brooks | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Dan Rader | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Maria Sophocles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Allison Jamison | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2018 · 13 people listed · 3 paid, $634K · 21 employees · 10 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $308,654 | $0 | $12,018 | $320,672 | 1 |
| Amanda Sheldon | VP, Marketing & Communications | 40 | $163,685 | $0 | $8,921 | $172,606 | 1 |
| Catherine Ahmed | Director or Outreach | 40 | $133,846 | $0 | $6,692 | $140,538 | 1 |
| William Neal | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Chair Elect | 1 | $0 | $0 | $0 | $0 | 1 |
| Michael Shapiro | Secretary/Treasurer (start 4/18) | 1 | $0 | $0 | $0 | $0 | 3 |
| Seth Baum | Secretary/Treasurer | 1 | $0 | $0 | $0 | $0 | 2 |
| Barry Brooks | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Dan Rader | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Maria Sophocles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Allison Jamison | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Mary McGowan | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2017 · 11 people listed · 3 paid, $528K · 17 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member | 40 | $300,000 | $0 | $11,075 | $311,075 | 1 |
| Stacey Stanley | Executive Assistant | 40 | $104,587 | $0 | $8,260 | $112,847 | 1 |
| Catherine Ahmed | Director or Outreach | 40 | $103,769 | $0 | $0 | $103,769 | 1 |
| William Neal | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Vice Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Seth Baum | Secretary/Treasurer | 1 | $0 | $0 | $0 | $0 | 2 |
| Barry Brooks | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Dan Rader | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Christian Jacobs | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Maria Sophocles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2016 · 9 people listed · 2 paid, $391K · 11 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO | 40 | $266,026 | $0 | $0 | $266,026 | 1 |
| Carole King | Dir. of Development | 40 | $125,000 | $0 | $0 | $125,000 | 1 |
| William Neal | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Vice Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Seth Baum | Secretary/Treasurer | 1 | $0 | $0 | $0 | $0 | 2 |
| Barry Brooks | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Dan Rader | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Christian Jacobs | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2015 · 7 people listed · 1 paid, $200K · 11 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | CEO | 40 | $200,000 | $0 | $0 | $200,000 | 1 |
| William Neal | Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Vice Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Seth Baum | Secretary/Treasurer | 1 | $0 | $0 | $0 | $0 | 2 |
| Joshua Knowles | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Dan Rader | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Christian Jacobs | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2014 · 8 people listed · 1 paid, $143K · 3 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | President & CEO | 50 | $142,789 | $0 | $0 | $142,789 | 1 |
| Dave Pickhardt | Treasurer/Chair | 5 | $0 | $0 | $0 | $0 | 1 |
| Seth J Baum | Board Member | 3 | $0 | $0 | $0 | $0 | 2 |
| Christian Jacobs | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Joshua Knowles | Board Member | 5 | $0 | $0 | $0 | $0 | 1 |
| Stacey Lane | Secretary | 3 | $0 | $0 | $0 | $0 | 1 |
| William A Neal | Board Member | 3 | $0 | $0 | $0 | $0 | 1 |
| Ted Tussing | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
2013 · 4 people listed · 1 paid, $21K · 3 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Katherine Wilemon | President and CEO | 50 | $20,769 | $0 | $0 | $20,769 | 1 |
| Dave Pickhardt | Chairman of the Board | 25 | $0 | $0 | $0 | $0 | 1 |
| Josh Knowles | Chief Medical Officer | 15 | $0 | $0 | $0 | $0 | 1 |
| Kathryn Langeder | Office Manager | 45 | $0 | $0 | $0 | $0 | 1 |
2012 · 5 people listed · 1 paid, $50K · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Kathryn Langeder | Office Manager | 45 | $50,000 | $0 | $0 | $50,000 | 1 |
| Dave Pickhardt | Vice President and CFO | 25 | $0 | $0 | $0 | $0 | 1 |
| Josh Knowles | Chief Medical Officer | 15 | $0 | $0 | $0 | $0 | 1 |
| Joyce Ross | Board Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
| Katherine Wilemon | President and CEO | 50 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2025 · 5 contractors · $2.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| Endless Health | Lakeway, TX | Test kits & analysis lab | $898,887 |
| Pri-Med LLC | Boston, MA | Professional Society Event | $501,850 |
| Source Heathcare Analytics LLC | Raleigh, NC | Data | $385,341 |
| Emory Healthcare | Atlanta, GA | Consulting | $295,261 |
| BIA Clinical Group LLC | Ann Arbor, MI | Statistical & Programming Support | $239,238 |
2024 · 5 contractors · $1.7M
| Name | Location | Service | Paid |
|---|---|---|---|
| BIA Clinical Group LLC | Ann Arbor, MI | Statistical & Programming Support | $417,888 |
| Fairmont Hotel | Dallas, TX | Summit venue, A/V Production | $347,208 |
| Source Heathcare Analytics LLC | Raleigh, NC | Data | $333,897 |
| Solstice Health Communications | Far Hills, NJ | Communications & Marketing Consultants | $296,529 |
| Pri-Med LLC | Boston, MA | Professional Society Event | $274,500 |
2023 · 5 contractors · $1.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| Bass Berry & Sims PLC | Nashville, TN | Legal Services | $384,284 |
| Atomo Inc | Austin, TX | Consulting | $360,000 |
| Merryman Communications INC | Redondo Beach, CA | Media Outreach/Advertising | $305,008 |
| Source Heathcare Analytics LLC | Raleigh, NC | Lab Data sets | $238,393 |
| Lighthouse Consulting LLC | West Lebanon, NH | Contract labor | $172,427 |
2022 · 5 contractors · $2.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| Atomo Inc | Austin, TX | Consulting | $1,345,079 |
| Source Heathcare Analytics LLC | Raleigh, NC | Lab Data sets | $344,750 |
| Merryman Communications INC | Redondo Beach, CA | Media Outreach/Advertising | $300,747 |
| Ernst & Young LLP | Secaucus, NJ | Web SEO & Hosting | $159,090 |
| Lighthouse Consulting LLC | West Lebanon, NH | Contract labor | $117,363 |
2021 · 3 contractors · $970K
| Name | Location | Service | Paid |
|---|---|---|---|
| Atomo Inc | Austin, TX | Consulting | $677,324 |
| Ernst & Young LLP | Secaucus, NJ | Web SEO & Hosting | $178,567 |
| Google Inc Cloud | Mountain View, CA | Data Storage | $113,631 |
2020 · 4 contractors · $1.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| Atomo Inc | Austin, TX | Consulting | $567,303 |
| Source Health Care Analytics LLC | Raleigh, NC | Data Bank | $215,000 |
| Zilker Technology LLC | Austin, TX | Website and S.E.O. | $157,540 |
| Google Inc Cloud | Mountain View, CA | Data Storage | $100,565 |
2019 · 5 contractors · $1.7M
| Name | Location | Service | Paid |
|---|---|---|---|
| Atomo | Austin, TX | Consulting | $710,468 |
| DCRI | Charlotte, NC | Data Management | $581,950 |
| Zilker Technology LLC | Austin, TX | Website and S.E.O. | $145,200 |
| Emory Conference Center Hotel | Atlanta, GA | Summit 2019 Venue | $113,514 |
| McAllister and Quinn LLC | Washington, DC | Washington D.C. Advocates | $104,300 |
2018 · 5 contractors · $1.9M
| Name | Location | Service | Paid |
|---|---|---|---|
| DCRI | Charlotte, NC | Data Management | $801,988 |
| Atomo | Austin, TX | Consulting | $555,079 |
| David Zuzick | Pasadena, CA | Consulting | $210,776 |
| Zilker Technology LLC | Austin, TX | Website and S.E.O. | $157,300 |
| DiVito Consulting | Phoenix, AZ | Consulting | $150,350 |
2017 · 1 contractor · $338K
| Name | Location | Service | Paid |
|---|---|---|---|
| David Zuzick | Pasadena, CA | Consulting | $338,391 |
2016 · 4 contractors · $1.6M
| Name | Location | Service | Paid |
|---|---|---|---|
| DCRI | Durham, NC | Consulting | $617,113 |
| Atomo | Austin, TX | Consulting | $450,000 |
| IMS Health Inc | Philadelphia, PA | Consulting | $393,600 |
| DMD | Rosemont, IL | Consulting | $172,870 |
2015 · 4 contractors · $1.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| DCRI | Durham, NC | Consulting | $546,866 |
| IMS Health Inc | Philadelphia, PA | Consulting | $388,300 |
| Atomo | Austin, TX | Consulting | $383,734 |
| Zilker Technology | Austin, TX | Consulting | $149,291 |
2014 · 1 contractor · $311K
| Name | Location | Service | Paid |
|---|---|---|---|
| Duke Clinical Research Institute DCRI | Durham, NC | Registry Management | $310,562 |
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $10,718,916 | $8,882,596 | $8,670,808 | $7,180,711 | $10,528,777 | $10,000 | $492,331 | 23 | 374 |
| 2024 · Form 990 | ||||||||
| $8,891,212 | $7,841,100 | $7,350,370 | $5,270,490 | $8,536,472 | $240,000 | $403,436 | 22 | 374 |
| 2023 · Form 990 | ||||||||
| $6,535,608 | $6,362,500 | $5,313,676 | $4,180,152 | $6,160,613 | $318,396 | $452,099 | 17 | 202 |
| 2022 · Form 990 | ||||||||
| $2,813,780 | $4,729,443 | $4,488,377 | $3,933,763 | $1,824,933 | $952,732 | $408,300 | 12 | 124 |
| 2021 · Form 990 | ||||||||
| $4,759,952 | $2,857,007 | $6,401,928 | $6,017,069 | $3,613,537 | $1,114,100 | $340,251 | 11 | 7 |
| 2020 · Form 990 | ||||||||
| $3,755,847 | $3,120,676 | $4,371,270 | $4,063,293 | $2,147,210 | $1,570,126 | $308,049 | 13 | 8 |
| 2019 · Form 990 | ||||||||
| $3,459,476 | $5,012,467 | $3,585,638 | $3,366,224 | $1,848,898 | $1,569,593 | $338,365 | 16 | 9 |
| 2018 · Form 990 | ||||||||
| $3,098,812 | $5,685,786 | $5,284,854 | $4,821,501 | $1,820,693 | $1,245,585 | $320,672 | 21 | 10 |
| 2017 · Form 990 | ||||||||
| $4,940,012 | $5,037,196 | $6,892,582 | $6,711,747 | $3,499,484 | $1,420,300 | $311,075 | 17 | 50 |
| 2017 · Form 990 | ||||||||
| $5,690,012 | $5,037,196 | $7,642,582 | $7,461,747 | $4,249,484 | $1,420,300 | $311,075 | 17 | 50 |
| 2016 · Form 990 | ||||||||
| $6,162,693 | $4,090,472 | $6,970,129 | $6,790,864 | $3,993,797 | $2,166,100 | $266,026 | 11 | 50 |
| 2015 · Form 990 | ||||||||
| $4,349,570 | $3,181,915 | $4,836,419 | $4,718,643 | $2,948,133 | $1,400,000 | $200,000 | 11 | 0 |
| 2014 · Form 990 | ||||||||
| $3,099,878 | $1,448,127 | $3,582,214 | $3,550,988 | $2,008,384 | $1,088,000 | $142,789 | 3 | - |
| 2013 · Form 990 | ||||||||
| $762,377 | $845,303 | $366,923 | $361,577 | $765,018 | $0 | $20,769 | 3 | - |
| 2012 · Form 990 | ||||||||
| $582,841 | $138,338 | $444,503 | $444,503 | $581,875 | $0 | $50,000 | 0 | - |
Connected to
Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.
- AMERICAN SOCIETY FOR PREVENTIVE CARDIOLOGY Jacksonville, FL · 1 person in common (Seth Baum)
Funders of this organization
12 grantors reported grants to this organization, $1,748,129 in all, tax years 2015 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2017-2024 | 8 | $721,550 | 2024 | $51,700 | show |
| RILEY & SUSAN BECHTEL FOUNDATION | Private foundation | Fuzzy filed as “THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION” | 2024 | 1 | $500,000 | 2024 | $500,000 | show |
| NORTHWESTERN UNIVERSITY | DAF sponsor | Exact | 2023-2024 | 2 | $166,794 | 2024 | $139,669 | show |
| TRUSTEES OF COLUMBIA UNIVERSITY | DAF sponsor | Exact | 2019-2021, 2023 | 4 | $113,918 | 2023 | $14,304 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2021-2022 | 2 | $90,500 | 2022 | $37,800 | show |
| FORGOOD INC | DAF sponsor | Exact | 2016-2017 | 2 | $54,704 | 2017 | $44,304 | show |
| PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA | Public charity | Exact | 2016-2017, 2019 | 3 | $37,500 | 2019 | $17,500 | show |
| GOLDMAN SACHS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2021 | 1 | $25,000 | 2021 | $25,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2024-2025 | 2 | $17,563 | 2025 | $12,053 | show |
| RAYMOND JAMES CHARITABLE ENDOWMENT FUND | DAF sponsor | Exact | 2015, 2017 | 2 | $10,500 | 2017 | $5,500 | show |
| AMERICAN SOCIETY FOR PREVENTIVE CARDIOLOGY | Public charity | Exact | 2015 | 1 | $10,000 | 2015 | $10,000 | show |
| ARTHUR J GALLAGHER FOUNDATION | Private foundation | Fuzzy filed as “THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION” | 2024 | 1 | $100 | 2024 | $100 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| JACOB ZABARA FAMILY FOUNDATION | FL | G12 | $17,924,842 | $1,915,765 | TRUSTEE | $212,094 | Same NTEE code G12, revenue within 2x, same state |
| THE ABIM FOUNDATION | PA | G12 | $8,164,387 | $3,743,741 | PRESIDENT/CEO TO AUG 2024 | $1,566,325 | Same NTEE code G12, revenue within 2x |
| NEUROENDOCRINE TUMOR RESEARCH FOUNDATION | MA | G12 | $8,684,021 | $4,788,567 | CHIEF EXECUTIVE OFFICER | $212,863 | Same NTEE code G12, revenue within 2x |
| GO2 FOUNDATION FOR LUNG CANCER | DC | G12 | $11,982,150 | $12,835,738 | President & CEO | $381,113 | Same NTEE code G12, revenue within 2x |
| GLOBAL GENES | DC | G12 | $7,145,531 | $7,415,893 | CEO | $319,961 | Same NTEE code G12, revenue within 2x, similar mission |
| STAYING ALIVE FOUNDATION INC | NY | G12 | $5,762,909 | $3,897,825 | EXECUTIVE DIRECTOR | $200,000 | Same NTEE code G12, revenue within 2x |
| HOPE & HEROES CHILDRENS CANCER FUND | NY | G12 | $8,239,027 | $5,448,447 | EXECUTIVE DIRECTOR | $326,414 | Same NTEE code G12, revenue within 2x |
| AUGIES QUEST TO CURE ALS INC | CO | G12 | $10,200,011 | $6,469,454 | President | $244,640 | Same NTEE code G12, revenue within 2x |
| EAGLES AUTISM CHALLENGE INC | PA | G12 | $14,457,053 | $11,756,742 | EXECUTIVE DIRECTOR | $411,319 | Same NTEE code G12, revenue within 2x |
| CUREBOUND INC | CA | G12 | $10,968,237 | $14,851,654 | CHIEF EXECUTIVE OFFICER | $497,091 | Same NTEE code G12, revenue within 2x |
| TOWNEBANK FOUNDATION | VA | G12 | $11,973,465 | $9,065,216 | EXECUTIVE DI | $25,000 | Same NTEE code G12, revenue within 2x |
| HOPE FOR HAITIS CHILDREN MINISTRIES INC | OH | G12 | $5,709,423 | $4,789,150 | PRESIDENT | $172,616 | Same NTEE code G12, revenue within 2x |
| SHARSHERET INC | NJ | G12 | $10,522,062 | $7,473,160 | CHIEF EXECUTIVE OFFICER | $450,005 | Same NTEE code G12, revenue within 2x |
| INTEGRATE HEALTH INC | NC | G12 | $9,070,002 | $9,745,601 | CEO | $223,780 | Same NTEE code G12, revenue within 2x |
| NFX | MI | G12 | $6,883,911 | $15,111,434 | PRESIDENT | $0 | Same NTEE code G12, revenue within 2x |
| LIVE LIKE BELLA INC | FL | G12 | $4,208,511 | $2,345,201 | Chief Executive Officer | $216,760 | Same NTEE code G12, revenue within 5x, same state |
| THE DEGREGORIO FAMILY FOUNDATION INC | NY | G12 | $2,898,144 | $3,083,335 | PRESIDENT | $0 | Same NTEE code G12, revenue within 5x |
| JESSIE REES FOUNDATION | CA | G12 | $4,887,459 | $4,571,607 | Not reported | $310,824 | Same NTEE code G12, revenue within 5x |
| LUNG CANCER FOUNDATION OF AMERICA | CA | G12 | $2,800,681 | $2,145,537 | EXECUTIVE DIRECTOR | $214,770 | Same NTEE code G12, revenue within 5x |
| 24 FOUNDATION INC | NC | G12 | $2,523,606 | $3,212,013 | Executive Dir. | $120,500 | Same NTEE code G12, revenue within 5x |
| MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC | DC | G12 | $2,531,496 | $1,542,060 | EXECUTIVE DIRECTOR | $153,217 | Same NTEE code G12, revenue within 5x |
| KING HUSSEIN CANCER FOUNDATION USA INC | DC | G12 | $2,584,317 | $2,283,677 | PRESIDENT | $0 | Same NTEE code G12, revenue within 5x |
| THOMPSON FOUNDATION FOR AUTISM & NEURODEVELOPMENT | MO | G12 | $3,917,598 | $3,860,072 | EXECUTIVE DI | $180,000 | Same NTEE code G12, revenue within 5x |
| KELSEY RESEARCH FOUNDATION | TX | G12 | $3,591,902 | $3,723,915 | President and CEO | $264,617 | Same NTEE code G12, revenue within 5x |
| SHALLOW FORD FOUNDATION INC | NC | G12 | $3,477,386 | $2,047,943 | CEO | $127,417 | Same NTEE code G12, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $8,882,596 spent · pay $3,322,483 · grants $0 · events $1,331,971
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $2,333,429 | $1,801,122 | $481,177 | $51,130 | 26.3% | |
| Advertising and promotion | $2,025,041 | $2,021,901 | - | $3,140 | 22.8% | |
| Conferences, conventions and meetings | $1,331,971 | $1,329,579 | - | $2,392 | 15.0% | |
| Other (as described) | Data & Research | $774,058 | $774,058 | - | - | 8.7% |
| Fees: other services | $742,241 | $732,595 | - | $9,646 | 8.4% | |
| Pay: officers, directors, trustees, key employees | $492,331 | $363,352 | $118,713 | $10,266 | 5.5% | |
| Travel | $258,971 | $254,362 | - | $4,609 | 2.9% | |
| Other employee benefits | $206,835 | $14,901 | $191,934 | - | 2.3% | |
| Payroll taxes | $184,842 | $13,316 | $171,526 | - | 2.1% | |
| Fees: legal | $110,479 | $65,511 | $44,189 | $779 | 1.2% | |
| Pension plan contributions | $105,046 | $7,568 | $97,478 | - | 1.2% | |
| Office expenses | $81,334 | $29,078 | $34,394 | $17,862 | 0.9% | |
| Insurance | $79,547 | - | $79,547 | - | 0.9% | |
| Information technology | $64,172 | $1,193 | $62,979 | - | 0.7% | |
| Other (as described) | Membership/subscription | $27,924 | $26,130 | $1,794 | - | 0.3% |
| Fees: accounting | $24,967 | - | $24,967 | - | 0.3% | |
| Other (as described) | Bank charges | $18,319 | $1,487 | $13,925 | $2,907 | 0.2% |
| Depreciation and depletion | $12,310 | - | $12,310 | - | 0.1% | |
| Occupancy | $8,779 | - | $8,779 | - | 0.1% | |
| Total | $8,882,596 | 100% |
2024 · Form 990 · $7,841,100 spent · pay $3,119,803 · grants $0 · events $783,567
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $2,245,269 | $1,930,197 | $201,964 | $113,108 | 28.6% | |
| Advertising and promotion | $1,291,774 | $1,153,154 | $119,357 | $19,263 | 16.5% | |
| Fees: other services | $945,226 | $874,557 | $52,617 | $18,052 | 12.1% | |
| Other (as described) | Data & Research | $923,087 | $923,087 | - | - | 11.8% |
| Conferences, conventions and meetings | $783,567 | $669,351 | $98,783 | $15,433 | 10.0% | |
| Pay: officers, directors, trustees, key employees | $403,436 | $346,822 | $36,290 | $20,324 | 5.1% | |
| Travel | $288,697 | $279,076 | $7,656 | $1,965 | 3.7% | |
| Other employee benefits | $179,432 | $158,031 | $16,150 | $5,251 | 2.3% | |
| Payroll taxes | $163,666 | $143,862 | $14,730 | $5,074 | 2.1% | |
| Office expenses | $134,200 | $84,840 | $38,113 | $11,247 | 1.7% | |
| Pension plan contributions | $128,000 | $112,512 | $11,520 | $3,968 | 1.6% | |
| Fees: legal | $119,458 | $84,155 | $30,874 | $4,429 | 1.5% | |
| Insurance | $82,478 | $70,106 | $10,722 | $1,650 | 1.1% | |
| Information technology | $60,342 | $55,201 | $3,399 | $1,742 | 0.8% | |
| Other (as described) | Membership/subscription | $34,348 | $33,647 | $701 | - | 0.4% |
| Fees: accounting | $23,295 | - | $23,295 | - | 0.3% | |
| Other (as described) | Bank charges | $12,785 | - | $10,470 | $2,315 | 0.2% |
| Depreciation and depletion | $12,153 | - | $12,153 | - | 0.2% | |
| Occupancy | $9,447 | $8,030 | $1,228 | $189 | 0.1% | |
| Other (as described) | Registration fees & tax | $440 | - | $440 | - | 0.0% |
| Total | $7,841,100 | 100% |
2023 · Form 990 · $6,362,500 spent · pay $2,598,084 · grants $0 · events $533,364
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,778,121 | $1,430,894 | $318,716 | $28,511 | 27.9% | |
| Other (as described) | Data & Research | $936,857 | $936,857 | - | - | 14.7% |
| Advertising and promotion | $768,358 | $746,004 | $19,797 | $2,557 | 12.1% | |
| Conferences, conventions and meetings | $533,364 | $519,180 | $557 | $13,627 | 8.4% | |
| Pay: officers, directors, trustees, key employees | $452,099 | $370,721 | $49,731 | $31,647 | 7.1% | |
| Fees: other services | $429,246 | $412,176 | $6,438 | $10,632 | 6.7% | |
| Fees: legal | $377,880 | $254,835 | $123,045 | - | 5.9% | |
| Travel | $344,872 | $318,606 | $12,574 | $13,692 | 5.4% | |
| Other employee benefits | $213,289 | $168,504 | $39,734 | $5,051 | 3.4% | |
| Pension plan contributions | $105,916 | $83,869 | $19,242 | $2,805 | 1.7% | |
| Fees: accounting | $104,461 | - | $104,461 | - | 1.6% | |
| Insurance | $103,080 | $72,156 | $15,462 | $15,462 | 1.6% | |
| Office expenses | $99,240 | $47,871 | $44,351 | $7,018 | 1.6% | |
| Payroll taxes | $48,659 | $38,530 | $8,840 | $1,289 | 0.8% | |
| Information technology | $27,665 | $2,478 | $25,187 | - | 0.4% | |
| Occupancy | $11,834 | $6,864 | $3,550 | $1,420 | 0.2% | |
| Other (as described) | Membership/subscription | $10,109 | $9,518 | $390 | $201 | 0.2% |
| Other (as described) | Bank charges | $9,890 | - | $9,800 | $90 | 0.2% |
| Depreciation and depletion | $6,556 | $4,916 | $657 | $983 | 0.1% | |
| Other (as described) | Registration fees & tax | $1,004 | $220 | $784 | - | 0.0% |
| Total | $6,362,500 | 100% |
2022 · Form 990 · $4,729,443 spent · pay $1,552,030 · grants $0 · events $33,298
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | Data & Research | $1,861,118 | $1,861,118 | - | - | 39.4% |
| Other salaries and wages | $988,580 | $673,111 | $271,545 | $43,924 | 20.9% | |
| Advertising and promotion | $631,242 | $623,223 | $326 | $7,693 | 13.3% | |
| Pay: officers, directors, trustees, key employees | $408,300 | $387,885 | $20,415 | - | 8.6% | |
| Fees: other services | $264,748 | $247,085 | $7,929 | $9,734 | 5.6% | |
| Fees: legal | $101,912 | $52,777 | $48,974 | $161 | 2.2% | |
| Payroll taxes | $85,573 | $58,901 | $24,278 | $2,394 | 1.8% | |
| Travel | $73,177 | $69,378 | $142 | $3,657 | 1.5% | |
| Other employee benefits | $69,577 | $47,890 | $19,740 | $1,947 | 1.5% | |
| Insurance | $55,035 | $38,525 | $8,255 | $8,255 | 1.2% | |
| Fees: accounting | $51,990 | - | $51,990 | - | 1.1% | |
| Office expenses | $49,361 | $9,619 | $38,768 | $974 | 1.0% | |
| Conferences, conventions and meetings | $33,298 | $33,281 | - | $17 | 0.7% | |
| Information technology | $20,468 | $13,208 | $6,229 | $1,031 | 0.4% | |
| Other (as described) | Bank charges | $9,722 | - | $9,614 | $108 | 0.2% |
| Other (as described) | Membership/subscription | $9,387 | $9,059 | $328 | - | 0.2% |
| Occupancy | $8,781 | $5,093 | $2,634 | $1,054 | 0.2% | |
| Depreciation and depletion | $5,781 | $4,336 | $578 | $867 | 0.1% | |
| Other (as described) | Registration fees & tax | $1,393 | $515 | $878 | - | 0.0% |
| Total | $4,729,443 | 100% |
2021 · Form 990 · $2,857,007 spent · pay $1,264,378 · grants $0 · events $560
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $793,122 | $618,448 | $122,779 | $51,895 | 27.8% | |
| Other (as described) | Data & Research | $690,317 | $690,239 | $78 | - | 24.2% |
| Advertising and promotion | $441,539 | $433,799 | $1,164 | $6,576 | 15.5% | |
| Pay: officers, directors, trustees, key employees | $340,251 | $323,238 | $17,013 | - | 11.9% | |
| Other (as described) | Legal settlement | $160,000 | $160,000 | - | - | 5.6% |
| Fees: other services | $107,079 | $75,218 | $25,881 | $5,980 | 3.7% | |
| Payroll taxes | $72,021 | $55,278 | $14,514 | $2,229 | 2.5% | |
| Other employee benefits | $58,984 | $45,271 | $11,887 | $1,826 | 2.1% | |
| Fees: legal | $51,958 | $29,611 | $22,347 | - | 1.8% | |
| Office expenses | $36,730 | $7,651 | $26,549 | $2,530 | 1.3% | |
| Information technology | $19,819 | $13,199 | $5,742 | $878 | 0.7% | |
| Insurance | $16,880 | $11,892 | $2,610 | $2,378 | 0.6% | |
| Fees: accounting | $16,775 | $11,172 | $4,860 | $743 | 0.6% | |
| Occupancy | $15,197 | $8,862 | $4,563 | $1,772 | 0.5% | |
| Travel | $12,278 | $10,630 | $802 | $846 | 0.4% | |
| Other (as described) | Bank charges | $10,689 | - | $10,463 | $226 | 0.4% |
| Depreciation and depletion | $8,973 | $6,729 | $898 | $1,346 | 0.3% | |
| Other (as described) | Membership/subscription | $3,835 | $3,758 | $77 | - | 0.1% |
| Conferences, conventions and meetings | $560 | $19 | $541 | - | 0.0% | |
| Total | $2,857,007 | 100% |
2020 · Form 990 · $3,120,676 spent · pay $1,398,712 · grants $0 · events $78,191
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $950,958 | $747,145 | $148,133 | $55,680 | 30.5% | |
| Other (as described) | Data & Research | $884,472 | $884,472 | - | - | 28.3% |
| Pay: officers, directors, trustees, key employees | $308,049 | $292,647 | $15,402 | - | 9.9% | |
| Advertising and promotion | $272,917 | $265,359 | $1,570 | $5,988 | 8.7% | |
| Fees: other services | $216,328 | $147,817 | $25,357 | $43,154 | 6.9% | |
| Occupancy | $79,768 | $54,934 | $14,228 | $10,606 | 2.6% | |
| Payroll taxes | $78,113 | $53,756 | $21,139 | $3,218 | 2.5% | |
| Other (as described) Event | Events | $76,217 | $76,217 | - | - | 2.4% |
| Other employee benefits | $61,592 | $42,387 | $16,668 | $2,537 | 2.0% | |
| Office expenses | $57,870 | $9,642 | $43,786 | $4,442 | 1.9% | |
| Fees: legal | $44,332 | $25,269 | $4,877 | $14,186 | 1.4% | |
| Travel | $20,607 | $18,736 | $189 | $1,682 | 0.7% | |
| Fees: accounting | $19,733 | $11,248 | $2,171 | $6,314 | 0.6% | |
| Information technology | $17,969 | $10,242 | $1,977 | $5,750 | 0.6% | |
| Depreciation and depletion | $12,714 | $9,578 | $1,250 | $1,886 | 0.4% | |
| Insurance | $9,194 | $6,894 | $921 | $1,379 | 0.3% | |
| Other (as described) | Membership/subscription | $7,869 | $7,156 | $545 | $168 | 0.3% |
| Conferences, conventions and meetings | $1,974 | $1,474 | $181 | $319 | 0.1% | |
| Total | $3,120,676 | 100% |
2019 · Form 990 · $5,012,467 spent · pay $1,873,673 · grants $0 · events $253,908
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | Data & Research | $1,678,253 | $1,677,443 | $810 | - | 33.5% |
| Other salaries and wages | $1,345,549 | $1,130,241 | $90,722 | $124,586 | 26.8% | |
| Fees: other services | $365,771 | $100,438 | $96,599 | $168,734 | 7.3% | |
| Pay: officers, directors, trustees, key employees | $338,365 | $321,447 | $16,918 | - | 6.8% | |
| Advertising and promotion | $270,501 | $257,632 | $1,266 | $11,603 | 5.4% | |
| Travel | $257,519 | $162,259 | $86,997 | $8,263 | 5.1% | |
| Other (as described) Event | Events | $231,789 | $224,828 | $1,300 | $5,661 | 4.6% |
| Payroll taxes | $111,543 | $89,011 | $11,604 | $10,928 | 2.2% | |
| Office expenses | $102,107 | $58,211 | $29,323 | $14,573 | 2.0% | |
| Other employee benefits | $78,216 | $60,845 | $8,696 | $8,675 | 1.6% | |
| Occupancy | $72,426 | $57,168 | $8,871 | $6,387 | 1.4% | |
| Other (as described) | Membership/subscription | $47,521 | $45,620 | $1,173 | $728 | 0.9% |
| Fees: legal | $41,997 | $13,019 | $10,919 | $18,059 | 0.8% | |
| Conferences, conventions and meetings | $22,119 | $10,841 | $10,517 | $761 | 0.4% | |
| Fees: accounting | $18,362 | $5,692 | $4,774 | $7,896 | 0.4% | |
| Depreciation and depletion | $11,067 | $8,301 | $1,106 | $1,660 | 0.2% | |
| Information technology | $8,781 | $2,722 | $2,283 | $3,776 | 0.2% | |
| Insurance | $5,374 | $4,028 | $539 | $807 | 0.1% | |
| Other (as described) | Miscellaneous | $4,449 | - | $4,449 | - | 0.1% |
| All other expenses | $758 | $434 | $324 | - | 0.0% | |
| Total | $5,012,467 | 100% |
2018 · Form 990 · $5,685,786 spent · pay $1,781,345 · grants $0 · events $304,005
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | Data & Research | $1,629,498 | $1,627,977 | $1,521 | - | 28.7% |
| Other salaries and wages | $1,283,391 | $1,102,914 | $44,566 | $135,911 | 22.6% | |
| Fees: other services | $784,525 | $428,044 | $59,275 | $297,206 | 13.8% | |
| Advertising and promotion | $398,349 | $366,222 | $23,968 | $8,159 | 7.0% | |
| Travel | $394,207 | $367,129 | $21,585 | $5,493 | 6.9% | |
| Pay: officers, directors, trustees, key employees | $320,672 | $304,638 | $16,034 | - | 5.6% | |
| Other (as described) Event | Events | $276,348 | $273,948 | $2,253 | $147 | 4.9% |
| Office expenses | $148,076 | $68,795 | $70,476 | $8,805 | 2.6% | |
| Payroll taxes | $110,549 | $96,946 | $4,166 | $9,437 | 1.9% | |
| Fees: accounting | $73,343 | $55,069 | $14,261 | $4,013 | 1.3% | |
| Occupancy | $69,506 | $56,687 | $10,216 | $2,603 | 1.2% | |
| Other employee benefits | $66,733 | $56,757 | $3,711 | $6,265 | 1.2% | |
| Fees: legal | $58,470 | $37,271 | $21,149 | $50 | 1.0% | |
| Other (as described) | Membership/subscription | $29,368 | $28,345 | $1,023 | - | 0.5% |
| Conferences, conventions and meetings | $27,657 | $20,972 | $6,433 | $252 | 0.5% | |
| Depreciation and depletion | $6,559 | $5,444 | $1,115 | - | 0.1% | |
| Information technology | $4,328 | $465 | $263 | $3,600 | 0.1% | |
| Insurance | $3,822 | $3,440 | $382 | - | 0.1% | |
| Other (as described) | Registration fees & tax | $385 | - | $385 | - | 0.0% |
| Total | $5,685,786 | 100% |
2017 · Form 990 · $5,037,196 spent · pay $1,234,070 · grants $0 · events $336,877
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | Data & Research | $1,719,125 | $1,598,786 | $34,383 | $85,956 | 34.1% |
| Other salaries and wages | $726,355 | $678,213 | $27,588 | $20,554 | 14.4% | |
| Fees: other services | $604,038 | $563,851 | $20,076 | $20,111 | 12.0% | |
| Advertising and promotion | $372,885 | $341,393 | $24,503 | $6,989 | 7.4% | |
| Other (as described) Event | Events | $322,530 | $309,131 | $5,001 | $8,398 | 6.4% |
| Pay: officers, directors, trustees, key employees | $311,075 | $290,458 | $11,814 | $8,803 | 6.2% | |
| Travel | $194,242 | $160,990 | $29,218 | $4,034 | 3.9% | |
| Payroll taxes | $154,346 | $144,116 | $5,862 | $4,368 | 3.1% | |
| Office expenses | $135,304 | $63,749 | $69,330 | $2,225 | 2.7% | |
| Information technology | $130,572 | $121,432 | $2,611 | $6,529 | 2.6% | |
| Fees: legal | $88,366 | $82,181 | $1,767 | $4,418 | 1.8% | |
| Other (as described) | Human resource | $84,586 | $49,976 | $32 | $34,578 | 1.7% |
| Fees: accounting | $65,820 | $61,213 | $1,316 | $3,291 | 1.3% | |
| Occupancy | $60,611 | $51,080 | $8,686 | $845 | 1.2% | |
| Other employee benefits | $42,294 | $39,491 | $1,606 | $1,197 | 0.8% | |
| Conferences, conventions and meetings | $14,347 | $6,008 | $7,844 | $495 | 0.3% | |
| Depreciation and depletion | $5,148 | $4,215 | $933 | - | 0.1% | |
| Other (as described) | Memberships/subscriptio | $2,605 | $1,277 | $1,328 | - | 0.1% |
| Insurance | $2,562 | $1,888 | $674 | - | 0.1% | |
| All other expenses | $385 | - | $385 | - | 0.0% | |
| Total | $5,037,196 | 100% |
2016 · Form 990 · $4,090,472 spent · pay $939,141 · grants $0 · events $368,190
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $1,479,372 | $1,460,356 | $17,567 | $1,449 | 36.2% | |
| Other (as described) | Data & Research | $597,981 | $590,805 | $6,578 | $598 | 14.6% |
| Other salaries and wages | $589,656 | $404,146 | $61,042 | $124,468 | 14.4% | |
| Other (as described) Event | Events | $362,511 | $354,021 | $6,621 | $1,869 | 8.9% |
| Pay: officers, directors, trustees, key employees | $266,026 | $168,782 | $37,244 | $60,000 | 6.5% | |
| Travel | $241,664 | $225,960 | $11,692 | $4,012 | 5.9% | |
| Advertising and promotion | $118,074 | $105,824 | $9,897 | $2,353 | 2.9% | |
| Fees: legal | $96,822 | $95,660 | $1,065 | $97 | 2.4% | |
| Payroll taxes | $83,459 | $56,924 | $7,901 | $18,634 | 2.0% | |
| Office expenses | $69,680 | $48,167 | $16,883 | $4,630 | 1.7% | |
| Occupancy | $68,803 | $49,248 | $15,306 | $4,249 | 1.7% | |
| Fees: accounting | $52,620 | $51,988 | $579 | $53 | 1.3% | |
| Information technology | $19,644 | $13,528 | $4,770 | $1,346 | 0.5% | |
| Other (as described) | Human resource | $17,599 | $13,355 | $3,310 | $934 | 0.4% |
| Other (as described) | Registration fees & tax | $13,798 | $13,353 | $387 | $58 | 0.3% |
| Conferences, conventions and meetings | $5,679 | $1,826 | $3,005 | $848 | 0.1% | |
| Depreciation and depletion | $3,720 | $3,088 | $632 | - | 0.1% | |
| Insurance | $2,301 | $4,211 | -$1,999 | $89 | 0.1% | |
| All other expenses | $1,063 | $464 | $467 | $132 | 0.0% | |
| Total | $4,090,472 | 100% |
2015 · Form 990 · $3,181,915 spent · pay $587,888 · grants $0 · events $175,312
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | Data & research | $1,139,112 | $1,096,965 | $38,730 | $3,417 | 35.8% |
| Fees: other services | $530,580 | $510,905 | $18,040 | $1,635 | 16.7% | |
| Other salaries and wages | $339,625 | $292,462 | $4,448 | $42,715 | 10.7% | |
| Travel | $202,809 | $197,119 | $4,852 | $838 | 6.4% | |
| Pay: officers, directors, trustees, key employees | $200,000 | $172,400 | $27,600 | - | 6.3% | |
| Advertising and promotion | $176,894 | $162,335 | $12,718 | $1,841 | 5.6% | |
| Other (as described) Event | Events | $173,066 | $170,750 | $2,316 | - | 5.4% |
| Fees: legal | $103,654 | $99,819 | $3,524 | $311 | 3.3% | |
| Office expenses | $65,720 | $44,861 | $20,032 | $827 | 2.1% | |
| Occupancy | $55,508 | $42,096 | $10,938 | $2,474 | 1.7% | |
| Fees: accounting | $50,401 | $49,678 | $572 | $151 | 1.6% | |
| Information technology | $50,078 | $48,225 | $1,703 | $150 | 1.6% | |
| Payroll taxes | $42,885 | $30,277 | $9,392 | $3,216 | 1.3% | |
| Other (as described) | Temporary staffing | $18,292 | $17,615 | $621 | $56 | 0.6% |
| Other (as described) | Licenses & fees | $11,911 | $9,081 | $1,900 | $930 | 0.4% |
| Insurance | $10,247 | $8,719 | $1,131 | $397 | 0.3% | |
| Other employee benefits | $5,378 | $3,783 | $1,148 | $447 | 0.2% | |
| Conferences, conventions and meetings | $2,246 | $494 | $1,752 | - | 0.1% | |
| Depreciation and depletion | $2,210 | - | $2,210 | - | 0.1% | |
| All other expenses | $1,299 | - | $1,299 | - | 0.0% | |
| Total | $3,181,915 | 100% |
2014 · Form 990 · $1,448,127 spent · pay $256,324 · grants $0 · events $156,633
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $575,253 | $572,330 | $2,923 | - | 39.7% | |
| Other (as described) Event | Program events | $156,576 | $156,420 | $156 | - | 10.8% |
| Pay: officers, directors, trustees, key employees | $142,789 | $107,741 | - | $35,048 | 9.9% | |
| Travel | $131,594 | $97,756 | $16,108 | $17,730 | 9.1% | |
| Other (as described) | Raising Awareness | $126,994 | $125,605 | $1,389 | - | 8.8% |
| Other salaries and wages | $96,665 | $67,915 | $28,750 | - | 6.7% | |
| Other (as described) | Printing and Publications | $69,562 | $67,908 | $1,654 | - | 4.8% |
| Fees: legal | $38,556 | $38,556 | - | - | 2.7% | |
| Occupancy | $26,858 | $22,826 | $2,689 | $1,343 | 1.9% | |
| Other (as described) | Licenses & Fees | $18,940 | $6,980 | $2,944 | $9,016 | 1.3% |
| All other expenses | $17,613 | $5,283 | $11,974 | $356 | 1.2% | |
| Payroll taxes | $16,870 | - | $16,870 | - | 1.2% | |
| Fees: accounting | $12,241 | - | $12,241 | - | 0.8% | |
| Office expenses | $11,284 | $455 | $10,829 | - | 0.8% | |
| Insurance | $5,259 | - | $5,259 | - | 0.4% | |
| Depreciation and depletion | $1,016 | - | $1,016 | - | 0.1% | |
| Conferences, conventions and meetings | $57 | - | $57 | - | 0.0% | |
| Total | $1,448,127 | 100% |
2013 · Form 990 · $845,303 spent · pay $58,567 · grants $0 · events $71,325
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Information technology | $323,639 | $323,639 | - | - | 38.3% | |
| Fees: other services | $230,694 | $30,379 | $200,315 | - | 27.3% | |
| Travel | $88,339 | - | $11,484 | $76,855 | 10.5% | |
| Conferences, conventions and meetings | $71,325 | $67,682 | $3,643 | - | 8.4% | |
| Other salaries and wages | $37,798 | - | $37,798 | - | 4.5% | |
| Other (as described) | Postage and Printing | $24,550 | $24,550 | - | - | 2.9% |
| Pay: officers, directors, trustees, key employees | $20,769 | - | $20,769 | - | 2.5% | |
| Office expenses | $17,796 | - | $17,796 | - | 2.1% | |
| Advertising and promotion | $7,338 | $4,571 | - | $2,767 | 0.9% | |
| All other expenses | $6,735 | - | $6,735 | - | 0.8% | |
| Fees: legal | $4,728 | - | $4,728 | - | 0.6% | |
| Insurance | $3,251 | - | $3,251 | - | 0.4% | |
| Other (as described) | Business Registration Fees | $2,200 | - | $2,200 | - | 0.3% |
| Occupancy | $2,055 | - | $2,055 | - | 0.2% | |
| Other (as described) | Small Furniture and Equip | $1,989 | - | $1,989 | - | 0.2% |
| Other (as described) | Telecommunications | $1,202 | - | $1,202 | - | 0.1% |
| Fees: accounting | $865 | - | $865 | - | 0.1% | |
| Fees: management | $30 | $30 | - | - | 0.0% | |
| Total | $845,303 | 100% |
2012 · Form 990 · $138,338 spent · pay $0 · grants $0 · events $17,085
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Information technology | $43,385 | $41,009 | $2,376 | - | 31.4% | |
| Travel | $24,474 | - | $3,200 | $21,274 | 17.7% | |
| Fees: other services | $20,965 | $2,960 | $18,005 | - | 15.2% | |
| Advertising and promotion | $17,981 | $17,981 | - | - | 13.0% | |
| Conferences, conventions and meetings | $17,085 | $12,425 | $4,660 | - | 12.4% | |
| Fees: accounting | $6,113 | - | $6,113 | - | 4.4% | |
| Other (as described) | Postage and Printing | $3,797 | $3,797 | - | - | 2.7% |
| Office expenses | $2,463 | - | $2,463 | - | 1.8% | |
| Other (as described) | Business Registration Fees | $875 | - | $875 | - | 0.6% |
| Other (as described) | Small Furniture and Equip | $549 | - | $549 | - | 0.4% |
| All other expenses | $490 | - | $490 | - | 0.4% | |
| Other (as described) | Telecommunications | $161 | $161 | - | - | 0.1% |
| Total | $138,338 | 100% |
State business registration
- THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION DBA TX, CM, Active franchise taxpayer
- THE FAMILIAL HYPERCHOLESTROLEMIA FOUNDATION INCORPORATED FL, Foreign nonprofit corporation (FORNP), Active, formed 2024-02-02
The same business name in the same state, from the state’s official registry data.
Trademarks
16 US trademarks, 16 live.
- The Familial Hypercholesterolemia Foundation 16 marks, FL EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| TACKLE CHOLESTEROL | 99726180 | 2026-03-26 | Registered | TRTDXFAP, file of 2026-09-23 |
| TACKLE CHOLESTEROL FAMILY HEART FOUNDATION | 99726176 | 2026-03-26 | Pending application | TRTDXFAP, file of 2026-09-09 |
| LEAD FOR PEDIATRIC CHOLESTEROL SCREENING | 99726172 | 2026-03-26 | Pending application | TRTDXFAP, file of 2026-10-03 |
| CHOLESTEROL CONNECT | 98827859 | 2024-10-30 | Registered | TRTYRAP, file of 2026-04-03 |
| LDL SAFE ZONE | 98827851 | 2024-10-30 | Registered | TRTDXFAP, file of 2026-01-29 |
| CASCADE FH | 98288259 | 2023-11-28 | Registered | TRTYRAP, file of 2026-04-03 |
| FIND | 98130787 | 2023-08-14 | Registered | TRTYRAP, file of 2026-04-03 |
| FAMILY HEART DATABASE | 98126866 | 2023-08-10 | Registered | TRTYRAP, file of 2026-04-03 |
| MORE FAMILIES. MORE HEARTS. | 98126653 | 2023-08-10 | Registered | TRTYRAP, file of 2026-04-03 |
| MORE FAMILIES. MORE HEARTS. | 98126627 | 2023-08-10 | Registered | TRTYRAP, file of 2026-04-03 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Comments