CHARCOT-MARIE-TOOTH ASSOCIATION
Cite this
Plain text CHARCOT-MARIE-TOOTH ASSOCIATION. furp.org, nonprofit organization profile, tax years 2015–2025. https://furp.org/org/charcot-marie-tooth-association-222480896. Retrieved 2026-11-02.
APA furp.org. (n.d.). CHARCOT-MARIE-TOOTH ASSOCIATION [Nonprofit organization profile; tax years 2015–2025]. Retrieved November 2, 2026, from https://furp.org/org/charcot-marie-tooth-association-222480896
MLA “CHARCOT-MARIE-TOOTH ASSOCIATION.” furp.org, tax years 2015–2025, https://furp.org/org/charcot-marie-tooth-association-222480896. Accessed 2 Nov. 2026.
Retrieved 2026-11-02; covers tax years 2015–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $6.9M · expenses $7.4M · assets $8.1M
- EIN
- 22-2480896
- Address
- PO BOX 105, GLENOLDEN, PA 19036-0105
- Website
- WWW.CMTAUSA.ORG
- NTEE code
- G8XZ
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- June 1986 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
7 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Jeana Sweeney | CHIEF ENGAGEMENT AND GIFT OFFICER | 2015-2025 | $150,179 | $998,087 | 1 |
| Suzanne Bruhn | CHIEF EXECUTIVE OFFICER | 2023-2025 | $310,996 | $671,068 | 1 |
| Katherine Forsey | CHIEF RESEARCH OFFICER | 2023-2025 | $142,012 | $394,762 | 1 |
| Laurel Richardson | DIRECTOR OF COMMUNITY OUTREACH | 2023-2025 | $111,901 | $323,294 | 1 |
| Amy Gray (former) | CHIEF EXECUTIVE OFFICER (TIL 03/2023) | 2017-2023 | $151,384 | $1,647,815 | 1 |
| Kimberly Magee (former) | DIRECOT OF FINANCE AND ADMIN | 2015-2024 | $102,076 | $913,679 | 1 |
| Patrick Livney (former) | CEO | 2015-2016 | $325,000 | $650,875 | 1 |
Officers and directors, no compensation reported
34 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Bernard Coulie | BOARD MEMBER | 2024-2025 | 1 | $0 reported | 1 |
| Craig Zeltsar | BOARD MEMBER | 2023-2025 | 1 | $0 reported | 1 |
| Dan Chamby | BOARD MEMBER | 2020-2025 | 1 | $0 reported | 1 |
| David Apple | BOARD MEMBER | 2023-2025 | 1 | $0 reported | 1 |
| David Coldiron | BOARD MEMBER | 2019-2025 | 1 | $0 reported | 1 |
| Dr Michael Shy | BOARD MEMBER | 2016-2025 | 1 | $0 reported | 1 |
| Dr Steven Scherer | BOARD MEMBER | 2016-2025 | 1 | $0 reported | 1 |
| Gary J Gasper | BOARD MEMBER | 2015-2025 | 1 | $0 reported | 1 |
| Gilles Bouchard | BOARD CHAIR | 2016-2025 | 1 | $0 reported | 1 |
| Herbert Beron | SECRETARY | 2015-2025 | 1 | $0 reported | 1 |
| John Svaren | BOARD MEMBER | 2016-2025 | 1 | $0 reported | 1 |
| Jon Pastor | BOARD MEMBER | 2024-2025 | 1 | $0 reported | 1 |
| Kevin Marks | BOARD MEMBER | 2024-2025 | 1 | $0 reported | 1 |
| Kevin Sami | TREASURER | 2019-2025 | 1 | $0 reported | 1 |
| Wendy Arnone | BOARD MEMBER | 2024-2025 | 1 | $0 reported | 1 |
| Catherine Illingworth | BOARD MEMBER | 2025 | 1 | $0 reported | 1 |
| David Stark | BOARD MEMBER | 2025 | 1 | $0 reported | 1 |
| Alan Korowitz (former) | BOARD MEMBER (THRU 2/24) | 2015-2024 | 0 | $0 reported | 1 |
| Dr Thomas Dubensky (former) | BOARD MEMBER | 2017-2024 | 1 | $0 reported | 1 |
| Partricia Verduin Ohd (former) | BOARD MEMBER (EFF 4/24) | 2024 | 1 | $0 reported | 1 |
| Phyllis Sanders (former) | BOARD MEMBER (THRU 2/24) | 2015-2024 | 1 | $0 reported | 1 |
| Steven O'Donnell (former) | BOARD MEMBER (THRU 12/24) | 2015-2024 | 1 | $0 reported | 1 |
| David Norcom (former) | BOARD MEMBER (THRU 9/24) | 2019-2024 | 1 | $0 reported | 1 |
| Pete Foley (former) | DIRECTOR (UNTIL DEC. 2023) | 2021-2023 | 0 | $0 reported | 1 |
| Chris Ouellette (former) | DIRECTOR (UNTIL AUG. 2023) | 2015-2023 | 0 | $0 reported | 1 |
| Jonathan Pastor (former) | DIRECTOR | 2022-2023 | 0 | $0 reported | 1 |
| Laura Fava (former) | DIRECTOR | 2015-2021 | 0 | $0 reported | 1 |
| Giles Bouchard (former) | Chairman | 2017 | 0 | $0 reported | 1 |
| Stephen D Blevit (former) | Director | 2015-2016 | 0 | $0 reported | 1 |
| Dr Peter I Warfield (former) | Director | 2015-2016 | 0 | $0 reported | 1 |
| Dr Lawrence Wrabitz (former) | Director | 2016 | 0 | $0 reported | 1 |
| Elizabeth Ouellette (former) | Vice Chair/Secretary | 2015 | 0 | $0 reported | 1 |
| William Vangelos (former) | Director | 2015 | 0 | $0 reported | 1 |
| Stephen C Weiss (former) | Director | 2015 | 0 | $0 reported | 1 |
People by year
2025 · 21 people listed · 4 paid, $715K · 14 employees · 125 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUZANNE BRUHN | CHIEF EXECUTIVE OFFICER | 40 | $300,000 | $0 | $10,996 | $310,996 | 1 |
| JEANA SWEENEY | CHIEF ENGAGEMENT AND GIFT OFFICER | 40 | $144,515 | $0 | $5,664 | $150,179 | 1 |
| KATHERINE FORSEY | CHIEF RESEARCH OFFICER | 40 | $135,441 | $0 | $6,571 | $142,012 | 1 |
| LAUREL RICHARDSON | DIRECTOR OF COMMUNITY OUTREACH | 40 | $108,061 | $0 | $3,840 | $111,901 | 1 |
| GILLES BOUCHARD | BOARD CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| KEVIN SAMI | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| WENDY ARNONE | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID APPLE | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAN CHAMBY | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID COLDIRON | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| BERNARD COULIE | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| GARY J GASPER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| CATHERINE ILLINGWORTH | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| KEVIN MARKS | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JON PASTOR | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DR STEVEN SCHERER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DR MICHAEL SHY | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID STARK | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN SVAREN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG ZELTSAR | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
2024 · 26 people listed · 5 paid, $796K · 13 employees · 125 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUZANNE BRUHN | CHIEF EXECUTIVE OFFICER | 40 | $300,000 | $0 | $11,016 | $311,016 | 1 |
| JEANA SWEENEY | CHIEF ENGAGEMENT AND GIFT OFFICER | 40 | $140,000 | $0 | $5,515 | $145,515 | 1 |
| KATHERINE FORSEY | CHIEF RESEARCH OFFICER | 40 | $125,404 | $0 | $6,552 | $131,956 | 1 |
| LAUREL RICHARDSON | DIRECTOR OF COMMUNITY OUTREACH | 40 | $101,520 | $0 | $3,724 | $105,244 | 1 |
| KIMBERLY MAGEE | DIRECOT OF FINANCE AND ADMIN | 40 | $98,400 | $0 | $3,676 | $102,076 | 1 |
| ALAN KOROWITZ | BOARD MEMBER (THRU 2/24) | 0 | $0 | $0 | $0 | $0 | 1 |
| BERNARD COULIE | BOARD MEMBER (EFF 2/24) | 0 | $0 | $0 | $0 | $0 | 1 |
| CRAIG ZELTSAR | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAN CHAMBY | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID APPLE | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID COLDIRON | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DR MICHAEL SHY | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DR STEVEN SCHERER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DR THOMAS DUBENSKY | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| GARY J GASPER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| GILLES BOUCHARD | CHAIRMAN | 1 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN SVAREN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JON PASTOR | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| KEVIN MARKS | BOARD MEMBER (EFF 2/24) | 1 | $0 | $0 | $0 | $0 | 1 |
| KEVIN SAMI | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| PARTRICIA VERDUIN OHD | BOARD MEMBER (EFF 4/24) | 1 | $0 | $0 | $0 | $0 | 1 |
| PHYLLIS SANDERS | BOARD MEMBER (THRU 2/24) | 1 | $0 | $0 | $0 | $0 | 1 |
| WENDY ARNONE | BOARD MEMBER (EFF 3/24) | 1 | $0 | $0 | $0 | $0 | 1 |
| STEVEN O'DONNELL | BOARD MEMBER (THRU 12/24) | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID NORCOM | BOARD MEMBER (THRU 9/24) | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 25 people listed · 6 paid, $750K · 11 employees · 150 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JEANA SWEENEY | CHIEF ENGAGEMENT AND GIFT OFFICER | 40 | $212,500 | $0 | $7,262 | $219,762 | 1 |
| AMY GRAY | CHIEF EXECUTIVE OFFICER (TIL 03/2023) | 40 | $149,038 | $0 | $2,346 | $151,384 | 1 |
| KATHERINE FORSEY | CHIEF RESEARCH OFFICER | 40 | $113,555 | $0 | $7,239 | $120,794 | 1 |
| LAUREL RICHARDSON | DIRECTOR OF COMMUNITY OUTREACH | 40 | $102,375 | $0 | $3,774 | $106,149 | 1 |
| KIMBERLY MAGEE | DIRECTOR OF FINANCE AND ADMIN | 40 | $99,375 | $0 | $3,659 | $103,034 | 1 |
| SUZANNE BRUHN | CHIEF EXECUTIVE OFFICER (FROM 11/2023) | 40 | $47,307 | $0 | $1,749 | $49,056 | 1 |
| GILLES BOUCHARD | CHAIRMAN | 0 | $0 | $0 | $0 | $0 | 1 |
| KEVIN SAMI | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID APPLE | DIRECTOR (FROM APR. 2023) | 0 | $0 | $0 | $0 | $0 | 1 |
| DAN CHAMBY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID COLDIRON | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR THOMAS DUBENSKY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PETE FOLEY | DIRECTOR (UNTIL DEC. 2023) | 0 | $0 | $0 | $0 | $0 | 1 |
| GARY GASPER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ALAN KOROWITZ | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID NORCOM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVEN O'DONNELL | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| CHRIS OUELLETTE | DIRECTOR (UNTIL AUG. 2023) | 0 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN PASTOR | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PHYLLIS SANDERS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR STEVEN SCHERER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR MICHAEL SHY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR JOHN SVAREN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| CRAIG ZELTSAR | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2022 · 17 people listed · 3 paid, $507K · 12 employees · 100 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| AMY GRAY | CHIEF EXECUTIVE OFFICER | 40 | $269,038 | $0 | $9,734 | $278,772 | 1 |
| JEANA SWEENEY | CHIEF ENGAGEMENT & GIFT OFFICER | 40 | $125,538 | $0 | $4,476 | $130,014 | 1 |
| KIMBERLY MAGEE | DIRECTOR OF FINANCE AND ADMINISTRATION | 40 | $94,769 | $0 | $3,389 | $98,158 | 1 |
| GILLES BOUCHARD | CHAIRMAN | 0 | $0 | $0 | $0 | $0 | 1 |
| GARY GASPER | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| DAN CHAMBY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID COLDIRON | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR THOMAS DUBENSKY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PETE FOLEY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ALAN KOROWITZ | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID NORCOM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVEN O'DONNELL | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| CHRIS OUELLETTE | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN PASTOR | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| KEVIN SAMI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PHYLLIS SANDERS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2021 · 17 people listed · 3 paid, $478K · 12 employees · 150 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| AMY GRAY | CHIEF EXECUTIVE OFFICER | 40 | $263,267 | $0 | $8,953 | $272,220 | 1 |
| JEANA SWEENEY | CHIEF ENGAGMENT & GIFT OFFICER | 40 | $111,681 | $0 | $4,128 | $115,809 | 1 |
| KIMBERLY MAGEE | DIRECTOR OF FINANCE | 40 | $86,272 | $0 | $3,284 | $89,556 | 1 |
| GILLES BOUCHARD | CHAIRMAN | 0 | $0 | $0 | $0 | $0 | 1 |
| GARY GASPER | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| DAN CHAMBY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID COLDIRON | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR THOMAS DUBENSKY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| LAURA FAVA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PETE FOLEY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ALAN KOROWITZ | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID NORCOM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVEN O'DONNELL | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| CHRIS OUELLETTE | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| KEVIN SAMI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PHYLLIS SANDERS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2020 · 16 people listed · 3 paid, $471K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| AMY GRAY | CHIEF EXECUTIVE OFFICER | 40 | $259,200 | $0 | $8,870 | $268,070 | 1 |
| JEANA SWEENEY | DIRECTOR OF DEVELOPMENT | 40 | $105,000 | $0 | $4,096 | $109,096 | 1 |
| KIMBERLY MAGEE | DIRECTOR OF FINANCE | 40 | $90,000 | $0 | $3,592 | $93,592 | 1 |
| GILLES BOUCHARD | CHAIRMAN | 0 | $0 | $0 | $0 | $0 | 1 |
| GARY GASPER | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| DAN CHAMBY | DIRECTOR (FROM MAY 2020) | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID COLDIRON | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR THOMAS DUBENSKY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| LAURA FAVA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ALAN KOROWITZ | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID NORCOM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVEN O'DONNELL | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| CHRIS OUELLETTE | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| KEVIN SAMI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PHYLLIS SANDERS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2019 · 14 people listed · 2 paid, $347K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| AMY GRAY | CHIEF EXECUTIVE OFFICER | 40 | $258,000 | $0 | $8,457 | $266,457 | 1 |
| KIMBERLY MAGEE | DIRECTOR OF FINANCE | 40 | $77,500 | $0 | $2,935 | $80,435 | 1 |
| GILLES BOUCHARD | CHAIRMAN | 0 | $0 | $0 | $0 | $0 | 1 |
| GARY GASPER | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID COLDIRON | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DR THOMAS DUBENSKY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| LAURA FAVA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ALAN KOROWITZ | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID NORCOM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVEN O'DONNELL | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| CHRIS OUELLETTE | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PHYLLIS SANDERS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| KEVIN SAMI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2018 · 11 people listed · 2 paid, $339K · 9 employees · 200 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| AMY GRAY | CHIEF EXECUTIVE OFFICER | 40 | $250,000 | $0 | $8,220 | $258,220 | 1 |
| KIMBERLY MAGEE | DIRECTOR OF FINANCE | 40 | $77,500 | $0 | $2,929 | $80,429 | 1 |
| GILLES BOUCHARD | CHAIRMAN | 0 | $0 | $0 | $0 | $0 | 1 |
| GARY GASPER | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| HERBERT BERON | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| DR THOMAS DUBENSKY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| LAURA FAVA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ALAN KOROWITZ | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVEN O'DONNELL | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| CHRIS OUELLETTE | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| PHYLLIS SANDERS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2017 · 11 people listed · 2 paid, $228K · 10 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Amy Gray | Chief Executive Officer | 40 | $152,692 | $0 | $0 | $152,692 | 1 |
| Kimberly Magee | Director of Finance | 40 | $75,000 | $0 | $0 | $75,000 | 1 |
| Herbert Beron | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| Giles Bouchard | Chairman | 0 | $0 | $0 | $0 | $0 | 1 |
| Thomas Dubensky | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Laura Fava | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Gary Gasper | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| Alan Korowitz | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Steven ODonnell | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Chris Ouellette | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Phyllis Sanders | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2016 · 16 people listed · 2 paid, $408K · 8 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Patrick Livney | CEO | 40 | $325,000 | $0 | $0 | $325,000 | 1 |
| Kimberly J Magee | Director of Finance | 40 | $82,500 | $0 | $0 | $82,500 | 1 |
| Herbert Beron | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| Stephen D Blevit | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Gilles Bouchard | Chairman | 0 | $0 | $0 | $0 | $0 | 1 |
| Laura Fava | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Gary J Gasper | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| Alan Korowitz | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Steven O'Donnell | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Chris Ouellette | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Phyllis Sanders | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Dr Steven Scherer | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Dr Michael Shy | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Dr John Svaren | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Dr Peter I Warfield | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Dr Lawrence Wrabitz | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2015 · 15 people listed · 3 paid, $562K · 14 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Patrick Livney | CEO | 40 | $325,875 | $0 | $0 | $325,875 | 1 |
| Jeana Sweeney | Director of Community Service | 40 | $127,712 | $0 | $0 | $127,712 | 1 |
| Kimberly J Magee | Director of Finance | 40 | $108,899 | $0 | $0 | $108,899 | 1 |
| Herbert Beron | Chairman/President | 0 | $0 | $0 | $0 | $0 | 1 |
| Stephen D Blevit | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Gary J Gasper | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| Alan Korowitz | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Steven O'Donnell | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Elizabeth Ouellette | Vice Chair/Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| Phyllis Sanders | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| William Vangelos | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Dr Peter I Warfield | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Stephen C Weiss | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Chris Ouellette | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Laura Fava | Director | 0 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2025 · 1 contractor · $180K
| Name | Location | Service | Paid |
|---|---|---|---|
| STEPHEN LIN | SAN CARLOS, CA | DIR OF RESEARCH ALLIANCES AND MANAGER OF | $180,000 |
2023 · 1 contractor · $416K
| Name | Location | Service | Paid |
|---|---|---|---|
| HUMANFIRST THERAPEUTICS | SILVER SPRING, MD | RESEARCH CONSULTANT | $415,648 |
2022 · 1 contractor · $311K
| Name | Location | Service | Paid |
|---|---|---|---|
| HUMANFIRST THERAPEUTICS | SILVER SPRING, MD | RESEARCH CONSULTANT | $311,207 |
2021 · 1 contractor · $263K
| Name | Location | Service | Paid |
|---|---|---|---|
| HUMANFIRST THERAPEUTICS | SILVER SPRING, MD | RESEARCH CONSULTANT | $262,994 |
2020 · 1 contractor · $193K
| Name | Location | Service | Paid |
|---|---|---|---|
| HUMANFIRST THERAPEUTICS | SILVER SPRING, MD | MEDICAL RESEARCH | $192,625 |
2019 · 1 contractor · $176K
| Name | Location | Service | Paid |
|---|---|---|---|
| HUMANFIRST THERAPEUTICS | SILVER SPRING, MD | MEDICAL RESEARCH | $176,012 |
2018 · 1 contractor · $156K
| Name | Location | Service | Paid |
|---|---|---|---|
| HUMANFIRST THERAPEUTICS | SILVER SPRING, MD | MEDICAL RESEARCH | $156,472 |
2017 · 1 contractor · $152K
| Name | Location | Service | Paid |
|---|---|---|---|
| HumanFirst Therapeutics LLC | Silver Spring, MD | medical research | $151,997 |
2016 · 1 contractor · $225K
| Name | Location | Service | Paid |
|---|---|---|---|
| HumanFirst Therapeutics LLC | Silver Spring, MD | Medical Research Consultant | $224,965 |
2015 · 1 contractor · $148K
| Name | Location | Service | Paid |
|---|---|---|---|
| HumanFirst LLC | Silver Spring, MD | Medical Research Consultant | $147,985 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 12 grants to organizations · $2.9M
Listed grants add up to $2,902,198; the return's “grants paid” expense line says $3,342,651. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 12 grants to organizations · $1.6M
Listed grants add up to $1,566,163; the return's “grants paid” expense line says $2,339,962. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 14 grants to organizations · $2.8M
Listed grants add up to $2,768,752; the return's “grants paid” expense line says $2,963,560. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 14 grants to organizations · $3.2M
Listed grants add up to $3,243,350; the return's “grants paid” expense line says $3,704,561. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 17 grants to organizations · $2.2M
Listed grants add up to $2,233,076; the return's “grants paid” expense line says $2,546,913. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 14 grants to organizations · $2.2M
Listed grants add up to $2,186,290; the return's “grants paid” expense line says $2,379,690. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 9 grants to organizations · $1.9M
Listed grants add up to $1,935,195; the return's “grants paid” expense line says $2,033,581. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 13 grants to organizations · $975K
Listed grants add up to $974,679; the return's “grants paid” expense line says $1,109,850. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 10 grants to organizations · $519K
Listed grants add up to $519,135; the return's “grants paid” expense line says $884,528. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 8 grants to organizations · $562K
Listed grants add up to $562,201; the return's “grants paid” expense line says $1,392,292. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 17 grants to organizations · $1.8M
Listed grants add up to $1,816,403; the return's “grants paid” expense line says $1,879,117. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $6,864,031 | $7,355,825 | $8,112,362 | $6,057,990 | $5,717,540 | $810,547 | $715,088 | 14 | 125 |
| 2024 · Form 990 | ||||||||
| $5,778,743 | $5,791,669 | $9,548,719 | $9,548,719 | $4,074,711 | $1,282,115 | $413,092 | 13 | 125 |
| 2024 · Form 990 | ||||||||
| $5,778,743 | $5,791,669 | $9,548,719 | $9,548,719 | $4,074,711 | $1,282,115 | $413,092 | 13 | 125 |
| 2023 · Form 990 | ||||||||
| $5,761,508 | $6,291,966 | $9,566,018 | $9,566,018 | $4,357,172 | $1,308,834 | $303,474 | 11 | 150 |
| 2022 · Form 990 | ||||||||
| $10,398,940 | $6,545,390 | $9,861,023 | $9,861,023 | $8,795,013 | $1,581,813 | $376,930 | 12 | 100 |
| 2021 · Form 990 | ||||||||
| $5,168,679 | $4,839,059 | $6,028,701 | $6,028,701 | $5,161,270 | $0 | $361,776 | 12 | 150 |
| 2020 · Form 990 | ||||||||
| $5,232,342 | $3,903,750 | $5,686,656 | $5,686,656 | $5,201,933 | $0 | $361,662 | 8 | 50 |
| 2019 · Form 990 | ||||||||
| $4,754,217 | $4,066,749 | $4,348,541 | $4,348,541 | $4,695,526 | $0 | $346,892 | 8 | 50 |
| 2018 · Form 990 | ||||||||
| $4,984,863 | $3,150,332 | $3,645,409 | $3,645,409 | $4,949,414 | $0 | $338,567 | 9 | 200 |
| 2017 · Form 990 | ||||||||
| $3,138,829 | $2,539,687 | $1,835,763 | $1,762,032 | $2,088,880 | $494,088 | $227,692 | 10 | - |
| 2016 · Form 990 | ||||||||
| $3,177,029 | $3,408,197 | $1,191,444 | $799,002 | $1,642,776 | $783,564 | $538,425 | 8 | 0 |
| 2016 · Form 990 | ||||||||
| $3,177,029 | $3,408,197 | $1,191,444 | $799,002 | $1,642,776 | $783,564 | $538,425 | 8 | 0 |
| 2015 · Form 990 | ||||||||
| $3,652,094 | $4,039,638 | $1,546,625 | $1,030,170 | $2,297,705 | $618,370 | $455,820 | 14 | 0 |
Funders of this organization
130 grantors reported grants to this organization, $10,001,567 in all, tax years 2010 to 2025; the 25 largest shown (all 130). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $2,604,133 | 2024 | $432,348 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2015, 2017-2024 | 9 | $648,414 | 2024 | $73,850 | show |
| GREATER WASHINGTON COMMUNITY FOUNDATION | DAF sponsor | Exact | 2010, 2014-2021, 2023-2024 | 12 | $588,000 | 2024 | $25,000 | show |
| SKYLIGHT CHARITABLE TR | Private foundation | Fuzzy filed as “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2022 | 1 | $500,000 | 2022 | $500,000 | show |
| MARK AND MAUREEN MILLER FAMILY FOUNDATION | Private foundation | Fuzzy filed as “CHARCOT- MARIE-TOOTH ASSOCIATION” | 2013-2014, 2016 | 3 | $500,000 | 2016 | $100,000 | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | DAF sponsor | Exact | 2013-2015, 2020, 2022-2024 | 7 | $462,500 | 2024 | $185,000 | show |
| FORGOOD INC | DAF sponsor | Exact | 2011-2013, 2016-2021 | 9 | $408,192 | 2021 | $69,022 | show |
| HAMPTON ROADS COMMUNITY FOUNDATION | DAF sponsor | Exact | 2012, 2017-2020, 2022-2025 | 9 | $395,000 | 2025 | $15,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $345,218 | 2025 | $77,103 | show |
| ROBBINS FAMILY FOUNDATION | Private foundation | Fuzzy filed as “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2017-2019 | 3 | $300,000 | 2019 | $100,000 | show |
| GRANDVIEW FOUNDATION | Private foundation | Fuzzy filed as “CHARCOT MARIE TOOTH ASSOCIATION”, “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2016, 2019 | 2 | $265,000 | 2019 | $250,000 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2024 | 5 | $253,557 | 2024 | $102,057 | show |
| GREATER CINCINNATI FOUNDATION | DAF sponsor | Exact | 2011, 2016-2024 | 10 | $230,500 | 2024 | $32,000 | show |
| CHIZEN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “Charcol-Marie-Tooth-Association”, “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2014, 2017, 2020 | 3 | $201,000 | 2020 | $100,000 | show |
| LIVNEY FOUNDATION | Private foundation | Fuzzy filed as “Charcot-Marie-Tooth Association” | 2015-2017 | 3 | $170,650 | 2017 | $2,650 | show |
| JOHN C HENCH FOUNDATION | Private foundation | Fuzzy filed as “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2014-2021 | 8 | $165,000 | 2021 | $25,000 | show |
| FIFTH THIRD CHARITABLE GIFT FUND | DAF sponsor | Exact | 2012-2014, 2016 | 4 | $150,000 | 2016 | $50,000 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2018-2020, 2022-2024 | 6 | $145,808 | 2024 | $9,000 | show |
| THE NORBELL FOUNDATION | Private foundation | Fuzzy filed as “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2012-2024 | 13 | $131,000 | 2024 | $5,000 | show |
| THERAPIES FOR INHERITED NEUROPATHIES INC | Public charity | Exact | 2019, 2021-2023, 2025 | 6 | $111,124 | 2025 | $13,624 | show |
| MUSCULAR DYSTROPHY ASSOCIATION | Public charity | Exact | 2024-2025 | 2 | $104,997 | 2025 | $29,999 | show |
| COMMUNITY FOUNDATION OF GREATER JOHNSTOWN | DAF sponsor | Exact | 2016, 2018, 2020, 2022-2024 | 6 | $100,155 | 2024 | $6,740 | show |
| HEAVIN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2019 | 1 | $100,000 | 2019 | $100,000 | show |
| ROBERT P & PATRICIA J BAUMAN FAMILY FOUNDATION INC | Private foundation | Fuzzy filed as “CHARCOT MARIE TOOTH ASSOCIATION”, “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2011-2024 | 14 | $85,000 | 2024 | $0 | show |
| TWELVE TWENTY-ONE FUND | Private foundation | Fuzzy filed as “CHARCOT-MARIE-TOOTH ASSOCIATION” | 2014-2015, 2017-2019 | 5 | $83,000 | 2019 | $11,500 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| AMERICAN HEADACHE SOCIETY | NJ | G8X | $5,859,269 | $5,183,010 | SECRETARY | $22,000 | Same NTEE code G8X, revenue within 2x |
| DETROIT & WAYNE COUNTY TUBERCULOSIS FOUNDATION | MI | G8X | $2,815,054 | $2,726,155 | PRESIDENT | $0 | Same NTEE code G8X, revenue within 5x |
| KENNEDY FELLOWS ASSOCIATION INC | MD | G8X | $23,809 | $27,410 | PRESIDENT | $0 | Same NTEE code G8X, revenue differs more than 10x |
| BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION | OH | G8X | $601,964 | $967,326 | PRESIDENT & | $100,000 | Same NTEE code G8X, revenue differs more than 10x |
| POST-POLIO HEALTH INTERNATIONAL INC | MO | G8X | $328,589 | $229,371 | Executive Director | $74,144 | Same NTEE code G8X, revenue differs more than 10x |
| THE ABIM FOUNDATION | PA | G12 | $8,164,387 | $3,743,741 | PRESIDENT/CEO TO AUG 2024 | $1,566,325 | Same NTEE group G, revenue within 2x, same state |
| FAYETTE ONCOLOGY ASSOCIATES | PA | G30 | $4,626,648 | $4,625,082 | DIRECTOR | $0 | Same NTEE group G, revenue within 2x, same state |
| GBS CIDP FOUNDATION INTERNATIONAL | PA | G99 | $7,799,708 | $7,412,920 | PRESIDENT &CEO | $418,236 | Same NTEE group G, revenue within 2x, same state |
| DEAF-HEARING COMMUNICATION CENTER INC | PA | G42 | $6,676,982 | $6,327,886 | CHAIR | $0 | Same NTEE group G, revenue within 2x, same state |
| UNITED MITOCHONDRIAL DISEASE FOUNDATION INC | PA | G80 | $4,062,127 | $4,404,370 | SCIENCE & ALLIANCE OFFICER | $233,249 | Same NTEE group G, revenue within 2x, same state |
| ALLIES FOR HEALTH & WELLBEING | PA | G81 | $10,035,018 | $8,156,883 | CHIEF EXECUTIVE OFFICER (LEFT JULY 2024) | $192,187 | Same NTEE group G, revenue within 2x, same state |
| HEPATITIS B FOUNDATION | PA | G47 | $3,466,580 | $3,250,824 | CHIEF EXECUTIVE OFFICER | $355,270 | Same NTEE group G, revenue within 2x, same state |
| SERVICE COORDINATION UNLIMITED INC | PA | G99 | $9,152,149 | $9,038,079 | CEO | $192,772 | Same NTEE group G, revenue within 2x, same state |
| DAVOS ALZHEIMERS COLLABORATIVE INC | PA | G83 | $12,470,622 | $16,083,398 | CHAIR & PRESIDENT | $0 | Same NTEE group G, revenue within 2x, same state |
| LANCASTER CLEFT PALATE CLINIC | PA | G20 | $3,563,451 | $3,723,761 | EXECUTIVE DI | $286,965 | Same NTEE group G, revenue within 2x, same state |
| AVENUES | PA | G23 | $6,982,102 | $6,834,531 | EXECUTIVE DIRECTOR | $94,825 | Same NTEE group G, revenue within 2x, same state |
| MALARIA CONSORTIUM US INC | PA | G80 | $10,418,949 | $9,557,028 | TRUSTEE | $0 | Same NTEE group G, revenue within 2x, same state |
| WYOMING VALLEY AIDS COUNCIL | PA | G81 | $6,188,985 | $5,149,392 | Member - Board of Directors | $0 | Same NTEE group G, revenue within 2x, same state |
| PRIMARY CARE SERVICES | PA | G19 | $6,173,852 | $8,887,015 | DIRECTOR | $755,715 | Same NTEE group G, revenue within 2x, same state |
| BUCKS COUNTY BIOTECHNOLOGY CENTER INC | PA | G02 | $5,788,770 | $5,806,909 | CEO/PRESIDENT | $355,270 | Same NTEE group G, revenue within 2x, same state |
| UNITE FOR HER | PA | G19 | $7,792,889 | $6,461,326 | CEO and Founder | $310,557 | Same NTEE group G, revenue within 2x, same state |
| LIONS EYE BANK OF DELAWARE VALLEY | PA | G41 | $6,942,152 | $5,937,055 | PRESIDENT/CEO | $407,361 | Same NTEE group G, revenue within 2x, same state |
| VISTA ADULT SERVICES ORGANIZATION | PA | G84 | $7,737,424 | $8,716,577 | EXECUTIVE DIRECTOR | $248,576 | Same NTEE group G, revenue within 2x, same state |
| UPMC-ST CLAIR HOSPITAL CANCER CENTER | PA | G30 | $3,847,898 | $4,212,736 | Director & Chairperson | $0 | Same NTEE group G, revenue within 2x, same state |
| BETTER OUTCOMES LIVING DIVERSELY INC | PA | G84 | $3,857,966 | $3,955,171 | PRESIDENT & CEO | $92,500 | Same NTEE group G, revenue within 2x, same state |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $7,355,825 spent · pay $1,566,784 · grants $3,342,651 · events $793,584
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,933,934 | $2,933,934 | - | - | 39.9% | |
| Pay: officers, directors, trustees, key employees | $715,088 | $560,376 | $66,656 | $88,056 | 9.7% | |
| Other salaries and wages | $668,628 | $523,968 | $62,326 | $82,334 | 9.1% | |
| Fees: other services | $533,948 | $430,550 | $80,481 | $22,917 | 7.3% | |
| Other (as described) Event | EVENT COSTS | $441,010 | $396,273 | - | $44,737 | 6.0% |
| Other (as described) | CAMP FEES | $426,959 | $426,959 | - | - | 5.8% |
| Grants outside the US | $380,160 | $380,160 | - | - | 5.2% | |
| Information technology | $335,568 | $262,966 | $31,279 | $41,323 | 4.6% | |
| Office expenses | $315,121 | $286,730 | $10,378 | $18,013 | 4.3% | |
| Conferences, conventions and meetings | $158,510 | $110,957 | $42,798 | $4,755 | 2.2% | |
| Fees: accounting | $126,050 | $98,222 | $18,607 | $9,221 | 1.7% | |
| Payroll taxes | $119,937 | $93,988 | $11,180 | $14,769 | 1.6% | |
| Advertising and promotion | $62,239 | $51,834 | $5,179 | $5,226 | 0.8% | |
| Fees: legal | $37,243 | $29,021 | $5,498 | $2,724 | 0.5% | |
| Pension plan contributions | $32,144 | $25,190 | $2,996 | $3,958 | 0.4% | |
| Other employee benefits | $30,987 | $24,283 | $2,888 | $3,816 | 0.4% | |
| Grants to US individuals | $28,557 | $28,557 | - | - | 0.4% | |
| Other (as described) | MISCELLANEOUS | $9,742 | $9,575 | $167 | - | 0.1% |
| Fundraising events Event | direct expenses; gross income $198,841 | $194,064 | reported apart | |||
| Total | $7,355,825 | 100% |
2024 · Form 990 · $5,791,669 spent · pay $1,351,608 · grants $2,339,962 · events $777,553
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,765,178 | $1,765,178 | - | - | 30.5% | |
| Other salaries and wages | $806,629 | $632,112 | $62,826 | $111,691 | 13.9% | |
| Grants outside the US | $574,784 | $574,784 | - | - | 9.9% | |
| Fees: other services | $570,166 | $458,851 | $85,836 | $25,479 | 9.8% | |
| Pay: officers, directors, trustees, key employees | $413,092 | $323,718 | $50,868 | $38,506 | 7.1% | |
| Other (as described) Event | EVENT COSTS | $345,263 | $300,099 | - | $45,164 | 6.0% |
| Other (as described) | CAMP FEES | $344,939 | $344,939 | - | - | 6.0% |
| Information technology | $265,231 | $207,847 | $24,723 | $32,661 | 4.6% | |
| Office expenses | $215,613 | $156,595 | $21,574 | $37,444 | 3.7% | |
| Conferences, conventions and meetings | $136,412 | $95,489 | $36,831 | $4,092 | 2.4% | |
| Payroll taxes | $103,211 | $80,881 | $9,621 | $12,709 | 1.8% | |
| Fees: accounting | $80,300 | $62,572 | $11,854 | $5,874 | 1.4% | |
| Advertising and promotion | $63,901 | $53,218 | $5,317 | $5,366 | 1.1% | |
| Fees: legal | $50,535 | $39,378 | $7,460 | $3,697 | 0.9% | |
| Pension plan contributions | $28,676 | $22,472 | $2,673 | $3,531 | 0.5% | |
| Other (as described) | MISCELLANEOUS | $27,739 | $27,265 | $474 | - | 0.5% |
| Fundraising events Event | direct expenses; gross income $295,878 | $295,878 | reported apart | |||
| Total | $5,791,669 | 100% |
2023 · Form 990 · $6,291,966 spent · pay $1,117,162 · grants $2,963,560 · events $516,355
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,776,496 | $2,776,496 | - | - | 44.1% | |
| Fees: other services | $936,158 | $724,624 | $137,122 | $74,412 | 14.9% | |
| Other salaries and wages | $697,289 | $617,217 | $14,351 | $65,721 | 11.1% | |
| Other (as described) | CAMP FEES | $303,956 | $303,956 | - | - | 4.8% |
| Pay: officers, directors, trustees, key employees | $303,474 | $160,916 | $81,863 | $60,695 | 4.8% | |
| Other (as described) Event | EVENT COSTS | $241,825 | $231,705 | - | $10,120 | 3.8% |
| Office expenses | $233,465 | $169,561 | $23,360 | $40,544 | 3.7% | |
| Conferences, conventions and meetings | $187,597 | $109,058 | $72,862 | $5,677 | 3.0% | |
| Grants outside the US | $144,564 | $144,564 | - | - | 2.3% | |
| Advertising and promotion | $120,444 | $100,308 | $10,022 | $10,114 | 1.9% | |
| Payroll taxes | $88,974 | $72,382 | $7,590 | $9,002 | 1.4% | |
| Information technology | $88,271 | $69,173 | $8,228 | $10,870 | 1.4% | |
| Fees: legal | $50,799 | $37,755 | $13,044 | - | 0.8% | |
| Grants to US individuals | $42,500 | $42,500 | - | - | 0.7% | |
| Fees: lobbying | $30,300 | $30,300 | - | - | 0.5% | |
| Other (as described) | MISCELLANEOUS | $18,429 | $18,114 | $315 | - | 0.3% |
| Pension plan contributions | $16,122 | $14,104 | $162 | $1,856 | 0.3% | |
| Other employee benefits | $11,303 | $10,841 | $169 | $293 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $86,933 | $86,933 | reported apart | |||
| Total | $6,291,966 | 100% |
2022 · Form 990 · $6,545,390 spent · pay $992,749 · grants $3,704,561 · events $509,830
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,248,350 | $3,248,350 | - | - | 49.6% | |
| Fees: other services | $577,191 | $460,971 | $46,596 | $69,624 | 8.8% | |
| Other salaries and wages | $528,146 | $477,048 | $11,329 | $39,769 | 8.1% | |
| Grants outside the US | $388,711 | $388,711 | - | - | 5.9% | |
| Pay: officers, directors, trustees, key employees | $376,930 | $214,773 | $86,771 | $75,386 | 5.8% | |
| Office expenses | $276,433 | $195,283 | $35,015 | $46,135 | 4.2% | |
| Other (as described) Event | EVENT COSTS | $227,799 | $210,208 | - | $17,591 | 3.5% |
| Other (as described) | CAMP FEES | $217,626 | $217,626 | - | - | 3.3% |
| Conferences, conventions and meetings | $165,978 | $113,895 | $52,083 | - | 2.5% | |
| Advertising and promotion | $147,693 | $122,589 | $12,186 | $12,918 | 2.3% | |
| Information technology | $140,775 | $119,659 | $14,078 | $7,038 | 2.2% | |
| Payroll taxes | $69,378 | $55,322 | $6,793 | $7,263 | 1.1% | |
| Grants to US individuals | $67,500 | $67,500 | - | - | 1.0% | |
| Fees: legal | $52,177 | $48,477 | $3,700 | - | 0.8% | |
| Fees: lobbying | $30,000 | $30,000 | - | - | 0.5% | |
| Other (as described) | MISCELLANEOUS | $12,408 | $6,063 | $1,551 | $4,794 | 0.2% |
| Other employee benefits | $9,583 | $8,777 | $333 | $473 | 0.1% | |
| Pension plan contributions | $8,712 | $7,529 | $88 | $1,095 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $116,053 | $116,053 | reported apart | |||
| Total | $6,545,390 | 100% |
2021 · Form 990 · $4,839,059 spent · pay $794,012 · grants $2,546,913 · events $181,379
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,238,499 | $2,238,499 | - | - | 46.3% | |
| Fees: other services | $800,849 | $459,723 | $324,950 | $16,176 | 16.5% | |
| Other salaries and wages | $364,325 | $325,287 | $3,393 | $35,645 | 7.5% | |
| Pay: officers, directors, trustees, key employees | $361,776 | $244,643 | $72,000 | $45,133 | 7.5% | |
| Grants outside the US | $295,414 | $295,414 | - | - | 6.1% | |
| Office expenses | $250,903 | $150,258 | $45,732 | $54,913 | 5.2% | |
| Information technology | $169,986 | $144,488 | $16,999 | $8,499 | 3.5% | |
| Advertising and promotion | $98,585 | $81,642 | $7,510 | $9,433 | 2.0% | |
| Other (as described) | CAMP FEES | $96,583 | $96,583 | - | - | 2.0% |
| Other (as described) Event | EVENT COSTS | $62,430 | $58,983 | - | $3,447 | 1.3% |
| Payroll taxes | $50,957 | $40,276 | $5,093 | $5,588 | 1.1% | |
| Fees: legal | $32,616 | $32,616 | - | - | 0.7% | |
| Fees: lobbying | $30,300 | $30,300 | - | - | 0.6% | |
| Other employee benefits | $13,716 | $11,430 | $970 | $1,316 | 0.3% | |
| Grants to US individuals | $13,000 | $13,000 | - | - | 0.3% | |
| Other (as described) | MISCELLANEOUS | $5,542 | $3,954 | - | $1,588 | 0.1% |
| Pension plan contributions | $3,238 | $2,267 | $32 | $939 | 0.1% | |
| Conferences, conventions and meetings | $2,689 | $1,728 | $961 | - | 0.1% | |
| Other (as described) | RETURN OF PRIOR YEAR GR | -$52,349 | -$52,349 | - | - | -1.1% |
| Fundraising events Event | direct expenses; gross income $116,260 | $116,260 | reported apart | |||
| Total | $4,839,059 | 100% |
2020 · Form 990 · $3,903,750 spent · pay $732,822 · grants $2,379,690 · events $149,575
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,189,054 | $2,189,054 | - | - | 56.1% | |
| Fees: other services | $362,760 | $323,225 | $25,770 | $13,765 | 9.3% | |
| Pay: officers, directors, trustees, key employees | $361,662 | $233,175 | $82,962 | $45,525 | 9.3% | |
| Other salaries and wages | $323,803 | $304,059 | $3,116 | $16,628 | 8.3% | |
| Office expenses | $172,610 | $96,837 | $22,395 | $53,378 | 4.4% | |
| Grants outside the US | $165,136 | $165,136 | - | - | 4.2% | |
| Information technology | $108,175 | $91,949 | $10,818 | $5,408 | 2.8% | |
| Advertising and promotion | $62,655 | $49,370 | $4,511 | $8,774 | 1.6% | |
| Other (as described) | CAMP FEES | $47,358 | $47,358 | - | - | 1.2% |
| Other (as described) Event | EVENT COSTS | $43,362 | $37,726 | - | $5,636 | 1.1% |
| Payroll taxes | $40,926 | $32,080 | $5,306 | $3,540 | 1.0% | |
| Other (as described) | MISCELLANEOUS | $36,688 | $8,280 | $25,816 | $2,592 | 0.9% |
| Fees: legal | $32,190 | $32,190 | - | - | 0.8% | |
| Fees: lobbying | $30,000 | $30,000 | - | - | 0.8% | |
| Conferences, conventions and meetings | $29,588 | $15,644 | $13,944 | - | 0.8% | |
| Grants to US individuals | $25,500 | $25,500 | - | - | 0.7% | |
| Other employee benefits | $3,281 | $3,097 | $32 | $152 | 0.1% | |
| Pension plan contributions | $3,150 | $2,646 | $31 | $473 | 0.1% | |
| Other (as described) | RETURN OF PRIOR YEAR GR | -$134,148 | -$134,148 | - | - | -3.4% |
| Fundraising events Event | direct expenses; gross income $76,625 | $76,625 | reported apart | |||
| Total | $3,903,750 | 100% |
2019 · Form 990 · $4,066,749 spent · pay $717,379 · grants $2,033,581 · events $557,179
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,951,673 | $1,951,673 | - | - | 48.0% | |
| Pay: officers, directors, trustees, key employees | $346,892 | $202,607 | $74,907 | $69,378 | 8.5% | |
| Other salaries and wages | $321,679 | $280,869 | $3,202 | $37,608 | 7.9% | |
| Fees: other services | $269,390 | $227,686 | $34,729 | $6,975 | 6.6% | |
| Office expenses | $202,572 | $82,724 | $61,768 | $58,080 | 5.0% | |
| Other (as described) Event | EVENT COSTS | $191,532 | $180,206 | - | $11,326 | 4.7% |
| Conferences, conventions and meetings | $190,108 | $163,884 | $25,676 | $548 | 4.7% | |
| Other (as described) | CAMP FEES | $154,823 | $154,823 | - | - | 3.8% |
| Information technology | $133,558 | $113,564 | $6,639 | $13,355 | 3.3% | |
| Advertising and promotion | $96,614 | $73,029 | $4,736 | $18,849 | 2.4% | |
| Grants outside the US | $59,393 | $59,393 | - | - | 1.5% | |
| Payroll taxes | $43,512 | $31,680 | $5,205 | $6,627 | 1.1% | |
| Fees: lobbying | $30,300 | $30,300 | - | - | 0.7% | |
| Other (as described) | MISCELLANEOUS | $26,347 | $21,911 | - | $4,436 | 0.6% |
| Grants to US individuals | $22,515 | $22,515 | - | - | 0.6% | |
| Fees: legal | $20,545 | $18,000 | $2,545 | - | 0.5% | |
| Pension plan contributions | $2,850 | $1,995 | $29 | $826 | 0.1% | |
| Other employee benefits | $2,446 | $2,161 | $24 | $261 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $175,539 | $175,539 | reported apart | |||
| Total | $4,066,749 | 100% |
2018 · Form 990 · $3,150,332 spent · pay $763,390 · grants $1,109,850 · events $455,343
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,009,560 | $1,009,560 | - | - | 32.0% | |
| Other salaries and wages | $368,891 | $288,707 | $43,111 | $37,073 | 11.7% | |
| Pay: officers, directors, trustees, key employees | $338,567 | $237,055 | $33,947 | $67,565 | 10.7% | |
| Fees: other services | $230,774 | $181,248 | $42,551 | $6,975 | 7.3% | |
| Conferences, conventions and meetings | $224,107 | $193,107 | $28,397 | $2,603 | 7.1% | |
| Information technology | $222,905 | $195,509 | $5,105 | $22,291 | 7.1% | |
| Office expenses | $180,367 | $74,355 | $55,680 | $50,332 | 5.7% | |
| Other (as described) | CAMP FEES | $147,425 | $147,425 | - | - | 4.7% |
| Other (as described) Event | EVENT COSTS | $121,195 | $118,858 | - | $2,337 | 3.8% |
| Grants outside the US | $89,790 | $89,790 | - | - | 2.9% | |
| Advertising and promotion | $63,470 | $46,286 | $3,637 | $13,547 | 2.0% | |
| Payroll taxes | $46,874 | $34,864 | $5,106 | $6,904 | 1.5% | |
| Fees: lobbying | $30,171 | $30,171 | - | - | 1.0% | |
| Other (as described) | MISCELLANEOUS | $29,717 | $22,471 | - | $7,246 | 0.9% |
| Fees: legal | $26,961 | $18,000 | $8,961 | - | 0.9% | |
| Grants to US individuals | $10,500 | $10,500 | - | - | 0.3% | |
| Other employee benefits | $6,022 | $4,537 | $668 | $817 | 0.2% | |
| Pension plan contributions | $3,036 | $2,627 | $327 | $82 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $110,041 | $110,041 | reported apart | |||
| Total | $3,150,332 | 100% |
2017 · Form 990 · $2,539,687 spent · pay $600,482 · grants $884,528 · events $216,887
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $874,028 | $874,028 | - | - | 34.4% | |
| Other salaries and wages | $546,775 | $434,342 | $22,500 | $89,933 | 21.5% | |
| Other (as described) | direct expenses | $259,053 | $234,223 | - | $24,830 | 10.2% |
| Fees: other services | $194,247 | $181,778 | - | $12,469 | 7.6% | |
| Other (as described) | recruiting expense | $99,150 | $79,320 | - | $19,830 | 3.9% |
| Information technology | $79,560 | $67,626 | - | $11,934 | 3.1% | |
| Travel | $77,721 | $72,734 | $3,969 | $1,018 | 3.1% | |
| Conferences, conventions and meetings | $63,870 | $63,870 | - | - | 2.5% | |
| Other (as described) | publications & supplies | $62,472 | $61,580 | - | $892 | 2.5% |
| Payroll taxes | $36,987 | $29,362 | $1,524 | $6,101 | 1.5% | |
| Other (as described) | bank charges & collection fe | $34,977 | - | - | $34,977 | 1.4% |
| Office expenses | $33,185 | $22,723 | $7,460 | $3,002 | 1.3% | |
| Fees: lobbying | $30,520 | $30,520 | - | - | 1.2% | |
| Advertising and promotion | $22,487 | $22,487 | - | - | 0.9% | |
| Fees: legal | $21,326 | $21,085 | $241 | - | 0.8% | |
| Fees: accounting | $17,290 | - | $17,290 | - | 0.7% | |
| All other expenses | $15,200 | $8,076 | $6,174 | $950 | 0.6% | |
| Occupancy | $14,695 | $12,241 | $1,602 | $852 | 0.6% | |
| Pension plan contributions | $12,727 | $10,072 | $531 | $2,124 | 0.5% | |
| Depreciation and depletion | $12,239 | - | $12,239 | - | 0.5% | |
| Grants to US individuals | $10,500 | $10,500 | - | - | 0.4% | |
| Insurance | $9,764 | - | $9,764 | - | 0.4% | |
| Fees: professional fundraisers | $6,921 | - | - | $6,921 | 0.3% | |
| Other employee benefits | $3,993 | $3,224 | $154 | $615 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $708,477 | $153,017 | reported apart | |||
| Total | $2,539,687 | 100% |
2016 · Form 990 · $3,408,197 spent · pay $900,907 · grants $1,392,292 · events $241,282
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,392,292 | $1,392,292 | - | - | 40.9% | |
| Other (as described) | Direct Program Expenses | $772,815 | $696,783 | - | $76,032 | 22.7% |
| Pay: officers, directors, trustees, key employees | $538,425 | $405,938 | $26,337 | $106,150 | 15.8% | |
| Other salaries and wages | $316,177 | $231,561 | - | $84,616 | 9.3% | |
| Occupancy | $223,262 | $28,992 | $194,270 | - | 6.6% | |
| Fees: management | $98,967 | $51,585 | - | $47,382 | 2.9% | |
| Payroll taxes | $46,305 | $40,551 | $1,356 | $4,398 | 1.4% | |
| Depreciation and depletion | $11,858 | - | $11,858 | - | 0.3% | |
| Conferences, conventions and meetings | $7,436 | - | $7,436 | - | 0.2% | |
| Advertising and promotion | $660 | - | - | $660 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $983,840 | $233,846 | reported apart | |||
| Total | $3,408,197 | 100% |
2015 · Form 990 · $4,039,638 spent · pay $965,751 · grants $1,879,117 · events $286,959
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,879,117 | $1,879,117 | - | - | 46.5% | |
| Other (as described) | Direct Program Expenses | $560,707 | $536,072 | - | $24,635 | 13.9% |
| Pay: officers, directors, trustees, key employees | $455,820 | $227,508 | $35,767 | $192,545 | 11.3% | |
| Other salaries and wages | $437,106 | $321,929 | - | $115,177 | 10.8% | |
| Advertising and promotion | $254,090 | $105,557 | - | $148,533 | 6.3% | |
| Fees: management | $237,553 | $110,278 | - | $127,275 | 5.9% | |
| Occupancy | $130,683 | $70,887 | $59,796 | - | 3.2% | |
| Payroll taxes | $59,715 | $37,023 | - | $22,692 | 1.5% | |
| Other employee benefits | $13,110 | $10,733 | - | $2,377 | 0.3% | |
| Conferences, conventions and meetings | $11,737 | - | $11,737 | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income $1,010,050 | $275,222 | reported apart | |||
| Total | $4,039,638 | 100% |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2011 | 8 | ||
| 2010 | $10,000 | 9 | |
| 2009 | 5 | ||
| 2008 | 4 | ||
| 2007 | $60,000 | 2 | |
| 2006 | $60,000 | 3 |
Issues: Budget/Appropriations, Health Issues, Economics/Economic Development
Firms hired: DUANE MORRIS GOVERNMENT AFFAIRS, GSP CONSULTING CORP
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2021 | $0 | $0 | 1 |
| 2020 | $0 | $0 | 1 |
Largest awards · 0 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|
State business registration
- CHARCOT-MARIE TOOTH ASSCIATION, INC. FL, Foreign nonprofit corporation (FORNP), Inactive, formed 2021-04-26
The same business name in the same state, from the state’s official registry data.
Patents
2 US patents filed in the last 20 years.
- Charcot-Marie-Tooth Association 2 patents, 2023-10-31 to 2026-09-01 EXACT high confidence: identical full name and state
| Patent | Title | Granted | Source |
|---|---|---|---|
| US 12721327 | Rat models for CMT2A that develop a progressive neuropathy | 2026-09-01 | PTBLXML, file of 2026-09-01 |
| US 11800859 | Rat models for CMT2A that develop a progressive neuropathy | 2023-10-31 | PVGPATDIS, file of 2026-04-10 |
The newest patents of the PatentsView assignees above, matched to this record by name (and state).
Trademarks
10 US trademarks, 6 live.
- Charcot-Marie-Tooth Association 10 marks, PA EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| STAR STRATEGY TO ACCELERATE RESEARCH | 97461649 | 2022-06-16 | Registered | TRCFECO2, file of 2024-03-27 |
| CMTA CHARCOT-MARIE-TOOTH ASSOCIATION | 97459497 | 2022-06-15 | Registered | TRCFECO2, file of 2024-03-27 |
| DANCE 4 CMT | 97459395 | 2022-06-15 | Registered | TRCFECO2, file of 2024-03-27 |
| WALK 4 CMT | 97459356 | 2022-06-15 | Registered | TRTYRAP, file of 2026-04-03 |
| CAMP FOOTPRINT | 97459331 | 2022-06-15 | Registered | TRCFECO2, file of 2024-03-27 |
| CMTA | 97459292 | 2022-06-15 | Registered | TRTYRAP, file of 2026-04-03 |
| CMTACTIVE | 90295882 | 2020-11-03 | Abandoned | TRCFECO2, file of 2024-03-27 |
| CMTA | 90230150 | 2020-10-01 | Abandoned | TRCFECO2, file of 2024-03-27 |
| CMTATHLETES | 86230105 | 2014-03-24 | Registration cancelled | TRCFECO2, file of 2024-03-27 |
| STRATEGY TO ACCELERATE RESEARCH (STAR) | 86229807 | 2014-03-24 | Registration cancelled | TRTDXFAP, file of 2026-01-28 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Comments