CHARCOT-MARIE-TOOTH ASSOCIATION: Form 990, tax year 2015
View the entire original 990 at ProPublica ↗
- Organization
- CHARCOT-MARIE-TOOTH ASSOCIATION (EIN 22-2480896)
- Tax period
- 2015-01-01 to 2015-12-31
- Filed
- 2016-05-31
- IRS object ID
- 201601529349300655
- Schema version
- 2015v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2016-05-31T14:30:15-05:00 | ReturnTs |
| Tax Period End | 2015-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 363858249 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Stern Cassello & Associates LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1 N LaSalle St Suite 1620 | AddressLine1Txt |
| City | Chicago | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60602 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2015-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 222480896 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Charcot-Marie-Tooth Association | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CHAR | BusinessNameControlTxt |
| Phone | 6104999264 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO Box 105 | AddressLine1Txt |
| City | Glenolden | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19036 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Mr Patrick Livney | PersonNm |
| Person Title | CEO | PersonTitleTxt |
| Phone | 6104999264 | PhoneNum |
| Signature | 2016-05-25 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | James R Stern | PreparerPersonNm |
| PTIN | P00831572 | PTIN |
| Phone | 3122639100 | PhoneNum |
| Preparation | 2016-05-25 | PreparationDt |
| Self Employed | Yes (X) | SelfEmployedInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2015 | TaxYr |
| Build TS | 2016-09-27 15:27:22Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Mr Patrick Livney | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 365 Elder Lane | AddressLine1Txt |
| City | Winnetka | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 600934250 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $3,927,316 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.cmtausa.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | PA | LegalDomicileStateCd |
| Activity Or Mission | To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 14 | TotalEmployeeCnt |
| Total Volunteers | 0 | TotalVolunteersCnt |
| Total Gross UBI | $1,191 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,361,672 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,297,705 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $336,617 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $618,370 | CYProgramServiceRevenueAmt |
| PY Investment Income | $2,615 | PYInvestmentIncomeAmt |
| CY Investment Income | $1,191 | CYInvestmentIncomeAmt |
| PY Other Revenue | $452,098 | PYOtherRevenueAmt |
| CY Other Revenue | $734,828 | CYOtherRevenueAmt |
| PY Total Revenue | $3,153,002 | PYTotalRevenueAmt |
| CY Total Revenue | $3,652,094 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,586,583 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,879,117 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $600,150 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $965,751 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $633,234 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $611,360 | PYOtherExpensesAmt |
| CY Other Expenses | $1,194,770 | CYOtherExpensesAmt |
| PY Total Expenses | $2,798,093 | PYTotalExpensesAmt |
| CY Total Expenses | $4,039,638 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $354,909 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$387,544 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $1,707,384 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,546,625 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $289,670 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $516,455 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,417,714 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,030,170 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $2,001,109 | ExpenseAmt |
| Grant | $1,879,117 | GrantAmt |
| Desc | The organization awards research fellowships and grants for research on Charcot-Marie-Tooth Disease. It also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy, as well as meetings and consortiums of others working in this field. It uses the services of a medical research consultant to oversee the selection of the recipients of the research funding and to write the grants and contracts with these researchers. (See Part VII, Section B). | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $156,391 | ExpenseAmt |
| Desc | The organization publishes a bi-monthly newsletter and other educational publications and maintains a website for patients, their families, and medical practitioners to assist in understanding and treating Charcot-Marie-Tooth Disease. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $178,340 | ExpenseAmt |
| Revenue | $618,370 | RevenueAmt |
| Desc | The organization organizes and conducts support groups, conferences and educational webinars for patients, their families, and medical practitioners, to share knowledge and promote awareness of CMT Disease. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $963,264 | ExpenseAmt |
| Desc | Allocated Program Services Expenses such as Salaries, Benefits, Occupancy Expenses, and Management Services. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $963,264 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $3,299,104 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 13 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 14 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | 0 | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Kimberly Magee | PersonNm |
| Phone | 6104999264 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | P O Box 105 | AddressLine1Txt |
| City | Glenolden | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19036 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| Herbert Beron | |||||||
| Chairman/President | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Stephen D Blevit | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Gary J Gasper | |||||||
| Treasurer | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Alan Korowitz | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Steven O'Donnell | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Elizabeth Ouellette | |||||||
| Vice Chair/Secretary | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Phyllis Sanders | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| William Vangelos | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Dr Peter I Warfield | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Stephen C Weiss | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Chris Ouellette | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Laura Fava | |||||||
| Director | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Patrick Livney | |||||||
| CEO | 40.00 | Yes (X) | $325,875 | $0 | $0 | ||
| Kimberly J Magee | |||||||
| Director of Finance | 40.00 | Yes (X) | $108,899 | $0 | $0 | ||
| Jeana Sweeney | |||||||
| Director of Community Service | 40.00 | $127,712 | $0 | $0 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $562,486 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HumanFirst LLC | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 9600 Dewitt Drive Suite 1 | AddressLine1Txt |
| City | Silver Spring | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20910 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | Medical Research Consultant | ServicesDesc |
| Compensation | $147,985 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Membership Dues | $87,150 | MembershipDuesAmt |
| All Other Contributions | $2,210,555 | AllOtherContributionsAmt |
| Total Contributions | $2,297,705 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Support Group Revenue | Desc |
| Business | 624100 | BusinessCd |
| Total Revenue Column | $618,370 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $618,370 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $618,370 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,191 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $1,191 | UnrelatedBusinessRevenueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $1,010,050 | FundraisingGrossIncomeAmt |
| Fundraising Direct Expenses | $275,222 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $734,828 | TotalRevenueColumnAmt |
| Exclusion | $734,828 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,652,094 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $618,370 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $1,191 | UnrelatedBusinessRevenueAmt |
| Exclusion | $734,828 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,879,117 | TotalAmt |
| Program Services | $1,879,117 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $455,820 | TotalAmt |
| Program Services | $227,508 | ProgramServicesAmt |
| Management And General | $35,767 | ManagementAndGeneralAmt |
| Fundraising | $192,545 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $437,106 | TotalAmt |
| Program Services | $321,929 | ProgramServicesAmt |
| Fundraising | $115,177 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,110 | TotalAmt |
| Program Services | $10,733 | ProgramServicesAmt |
| Fundraising | $2,377 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $59,715 | TotalAmt |
| Program Services | $37,023 | ProgramServicesAmt |
| Fundraising | $22,692 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $237,553 | TotalAmt |
| Program Services | $110,278 | ProgramServicesAmt |
| Fundraising | $127,275 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $254,090 | TotalAmt |
| Program Services | $105,557 | ProgramServicesAmt |
| Fundraising | $148,533 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $130,683 | TotalAmt |
| Program Services | $70,887 | ProgramServicesAmt |
| Management And General | $59,796 | ManagementAndGeneralAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,737 | TotalAmt |
| Management And General | $11,737 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Direct Program Expenses | Desc |
| Total | $560,707 | TotalAmt |
| Program Services | $536,072 | ProgramServicesAmt |
| Fundraising | $24,635 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,039,638 | TotalAmt |
| Program Services | $3,299,104 | ProgramServicesAmt |
| Management And General | $107,300 | ManagementAndGeneralAmt |
| Fundraising | $633,234 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,688,854 | BOYAmt |
| EOY | $1,365,878 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,750 | BOYAmt |
| EOY | $142,000 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,319 | BOYAmt |
| EOY | $7,415 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $45,718 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $14,386 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,461 | BOYAmt |
| EOY | $31,332 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,707,384 | BOYAmt |
| EOY | $1,546,625 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $23,342 | BOYAmt |
| EOY | $152,567 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $266,328 | BOYAmt |
| EOY | $363,888 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $289,670 | BOYAmt |
| EOY | $516,455 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,397,594 | BOYAmt |
| EOY | $112,103 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $20,120 | BOYAmt |
| EOY | $918,067 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,417,714 | BOYAmt |
| EOY | $1,030,170 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,707,384 | BOYAmt |
| EOY | $1,546,625 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$387,544 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,137,223 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $896,651 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,114,359 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,361,672 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,297,705 | CurrentTaxYearAmt |
| Total | $7,807,610 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $563,260 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $911,366 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $958,215 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $944,580 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,628,420 | CurrentTaxYearAmt |
| Total | $5,005,841 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,700,483 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,808,017 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,072,574 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,306,252 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,926,125 | CurrentTaxYearAmt |
| Total | $12,813,451 | TotalAmt |
Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $12,813,451 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,290 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,778 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,165 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,615 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,191 | CurrentTaxYearAmt |
| Total | $9,039 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,290 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,778 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,165 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,615 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,191 | CurrentTaxYearAmt |
| Total | $9,039 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,701,773 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,809,795 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,074,739 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,308,867 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,927,316 | CurrentTaxYearAmt |
| Total | $12,822,490 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.99930 | PublicSupportCY509Pct |
| Public Support PY509 | 0.99900 | PublicSupportPY509Pct |
| Investment Income CY | 0.00070 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00100 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $30,300 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $30,300 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $3,268,804 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $3,299,104 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $314,955 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $78,739 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $177,898 | CurrentYearMinus3Amt |
| Current Year Minus2 | $232,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $269,312 | CurrentYearMinus1Amt |
| Current Year | $314,955 | CurrentYearAmt |
| Total | $994,165 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $1,491,248 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus2 | $18,475 | CurrentYearMinus2Amt |
| Current Year Minus1 | $26,250 | CurrentYearMinus1Amt |
| Current Year | $30,300 | CurrentYearAmt |
| Total | $75,025 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $44,475 | CurrentYearMinus3Amt |
| Current Year Minus2 | $58,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $67,328 | CurrentYearMinus1Amt |
| Current Year | $78,739 | CurrentYearAmt |
| Total | $248,542 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $372,813 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $45,718 | OtherCostOrOtherBasisAmt |
| Depreciation | $14,386 | DepreciationAmt |
| Book Value | $31,332 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $31,332 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $3,652,094 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $3,652,094 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,652,094 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $4,039,638 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $4,039,638 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $4,039,638 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $0 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $0 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | Europe | RegionTxt |
| Purpose Of Grant | Targeting macrophagae activation in a model for CMT1X. | PurposeOfGrantTxt |
| Cash Grant | $36,990 | CashGrantAmt |
| Manner Of Cash Disbursement | Wire Transfer | MannerOfCashDisbursementTxt |
| Valuation Method Used | Cash Value | ValuationMethodUsedDesc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2: | FormAndLineReferenceDesc |
| Explanation | The Association requires, by contract, periodic progress reports on the funded research. The contract also includes a full Research Plan with Budget and Deliverables. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | CMTA Golf Outing - Livney | Event1Nm |
| Gross Receipts Event1 | $499,514 | GrossReceiptsEvent1Amt |
| Gross Revenue Event1 | $499,514 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $125,589 | OtherDirectExpensesEvent1Amt |
| Event2 | CMTA NY Event | Event2Nm |
| Gross Receipts Event2 | $185,246 | GrossReceiptsEvent2Amt |
| Gross Revenue Event2 | $185,246 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $39,492 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 9 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $325,290 | GrossReceiptsOtherEventsAmt |
| Gross Revenue Other Events | $325,290 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $110,141 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,010,050 | GrossReceiptsTotalAmt |
| Gross Revenue Total Events | $1,010,050 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $275,222 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $275,222 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $734,828 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (17 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|
| Columbia University | |||||||
| PO Box 29789 | New York | NY | 100879789 | 135598093 | $50,000 | To develop a generation of cell lines for CMT2E drug screening. | |
| National Center for Advancing Translational Science | |||||||
| 31 Center Drive Bldg 31 Room 3B11 | Bethseda | MD | 20892 | $90,000 | Assay Development of High Throughput Screen for CMTA Therapeutics | ||
| PsychoGenics Inc | |||||||
| 257 Park Avenue S 7th Floor | New York | NY | 100107304 | 942963168 | $545,534 | To produce HET animals to start profiling of the CMT rat setting a base line of what a CMT1A and CMT2A rat looks like. | |
| Sage Labs Inc | |||||||
| PO Box 122 | Boyertown | PA | 19512 | 431050617 | $44,178 | To develop transgenic rat models with dominant mutation in the MFN2 gene. | |
| University of Iowa Dept of Neurology Carver College of Medicine | |||||||
| 200 Hawkins Drive 2007 RCP | Iowa City | IA | 522421053 | 426004813 | $17,500 | To maintain a database of patients afflicted with CMT in North America, "North America CMT Network".To Generate XBP-1 SW6 Schwann Cells. | |
| University of Iowa (Shy) Dept of Neurology Carver College of Medicine | |||||||
| 200 Hawkins Drive 2007 RCP | Iowa City | IA | 522421053 | 426004813 | $182,160 | To generate XBP-1 S16 Schwann Cells then insert CMT1B mutations | |
| Genzyme Corporation | |||||||
| 5 The Mountain Road | Framingham | MA | 01701 | 061047163 | $250,000 | To screen compound libraries for compounds that down-regulate PMP22 gene expression. | |
| Johns Hopkins University | |||||||
| 12529 Collections Center Drive | Chicago | IL | 60693 | 520595110 | $60,185 | To characterize and validate approaches that lead to efficient differentiation of Schwann cells from human induced pluirpotent stem cells. | |
| NY Stem Cell Foundation Inc | |||||||
| 1995 Broadway Suite 600 | New York | NY | 10023 | 202905531 | $38,250 | Produce CMT iPs cell lines. | |
| UB Foundation Services Inc | |||||||
| PO Box 900 | Buffalo | NY | 14226 | 160865182 | $125,152 | Validation of Primary CMT1A Drug Screening Hits in Myelinating Co-Cultures.Creation of a Mouse Model of CMT1B-T124M. | |
| University of Wisconsin Madison | |||||||
| T201 Waisman Center 1500 Highland | Madison | WI | 53705 | 396006492 | $83,790 | Development of Assays for CMT1B. Test and validate candidate compounds stemming from CMT1A assays for lowering of PMP22. | Ave |
| University of Miami | |||||||
| PO Box 405803 | Atlanta | GA | 30384 | $54,648 | Development of Mouse Model for CMT2A. | ||
| Cedar Sinai Medical Center | |||||||
| 8700 Beverly Blvd AHSP A8403 | Los Angeles | CA | 90048 | $190,330 | Characterize and validate human IPSC-derived cellular modules of CMT2A. | ||
| Genesis Project Inc | |||||||
| 5244 North Bay Road | Miami Beach | FL | 33140 | 465604473 | $6,000 | Provides analytic tools and services to genetics researchers. | |
| Renovo Neural | |||||||
| 10000 Cedar Avenue | Cleveland | OH | 44106 | 800185146 | $19,650 | Contract Research organization - provides histology work on CMT animals. | |
| Charles River Lab | |||||||
| 251 Ballardvale Street | Wilmington | MA | 01887 | 510188208 | $52,736 | Contract Research Organization - provides breeding services and maintenance of colonies of CMT animals for various disease states. | |
| Jackson Laboratory | |||||||
| 610 Main Street | Bar Harbor | ME | 04609 | 010211513 | $6,290 | Contract Research Organization - provides breeding services and maintenance of colonies of CMT animals for various disease states | |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2: | FormAndLineReferenceDesc |
| Explanation | The Association requires, by contract, periodic progress reports on the funded research. The contract also includes a full Research Plan with Budget and Deliverables. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| First Class Or Charter Travel | Yes (X) | FirstClassOrCharterTravelInd |
| Written Policy Ref T And E Expnss | Yes (1) | WrittenPolicyRefTAndEExpnssInd |
| Substantiation Required | Yes (1) | SubstantiationRequiredInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Patrick Livney | PersonNm |
| Title | CEO | TitleTxt |
| Base Compensation Filing Org | $325,000 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $0 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $875 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $0 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $0 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $325,875 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section B, line 11 | From 990 will be reviewed by the Board of Directors. |
| Form 990, Part VI, Section B, line 15a | The organization's Board of Director's determines CEO's compensation annually, considering whatever factors and information it deems apporpriate. |
| Form 990, Part VI, Section C, line 19 | Upon request by mail, telephone, and/or email. Audited Financial Statements are avalable on the Organization's website. |
| Form 990, Part XII, Line 2c | The organization has not changed its selection and oversight process during the tax year. |
| Form 990, Part XII, Line 2c | The Board of Directors assumes oversight of the independent auditor and the annual audit. |
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