CHARCOT-MARIE-TOOTH ASSOCIATION: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
CHARCOT-MARIE-TOOTH ASSOCIATION (EIN 22-2480896)
Tax period
2017-01-01 to 2017-12-31
Filed
2018-06-19
IRS object ID
201821709349301057
Schema version
2017v2.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-06-19T18:03:35-04:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Peterson Fieo & Co LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1103 Chesley Drive Suite 102AddressLine1Txt
CityMediaCityNm
State AbbreviationPAStateAbbreviationCd
ZIP190631757ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN222480896EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Charcot-Marie-Tooth AssociationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHARBusinessNameControlTxt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 105AddressLine1Txt
CityGlenoldenCityNm
State AbbreviationPAStateAbbreviationCd
ZIP19036ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonAmy GrayPersonNm
Person TitleChief ExecutivePersonTitleTxt
Phone6104999264PhoneNum
Signature2018-06-01SignatureDt
Discuss With Paid PreparerfalseDiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonGeorge Fieo CPAPreparerPersonNm
PTINP00231326PTIN
Phone6104571486PhoneNum
Preparation2018-06-19PreparationDt
Self EmployedYes (X)SelfEmployedInd
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerAmy GrayPrincipalOfficerNm
Gross Receipts$3,300,962GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.cmtausa.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1983FormationYr
Legal Domicile StatePALegalDomicileStateCd
Activity Or MissionTo support the development of new drugs to treat Charcot-Marie-Tooth disease (CMT), to improve the quality of life for people with CMT and ultimately, to find a cure.ActivityOrMissionDesc
Voting Members Governing Body9VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee10TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,642,776PYContributionsGrantsAmt
CY Contributions Grants$2,088,880CYContributionsGrantsAmt
PY Program Service Revenue$783,564PYProgramServiceRevenueAmt
CY Program Service Revenue$494,088CYProgramServiceRevenueAmt
PY Investment Income$695PYInvestmentIncomeAmt
CY Investment Income$835CYInvestmentIncomeAmt
PY Other Revenue$749,994PYOtherRevenueAmt
CY Other Revenue$555,026CYOtherRevenueAmt
PY Total Revenue$3,177,029PYTotalRevenueAmt
CY Total Revenue$3,138,829CYTotalRevenueAmt
PY Grants And Similar Paid$1,392,292PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$884,528CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$900,907PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$600,482CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$6,921CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$216,448CYTotalFundraisingExpenseAmt
PY Other Expenses$1,114,998PYOtherExpensesAmt
CY Other Expenses$1,047,756CYOtherExpensesAmt
PY Total Expenses$3,408,197PYTotalExpensesAmt
CY Total Expenses$2,539,687CYTotalExpensesAmt
PY Revenues Less Expenses-$231,168PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$599,142CYRevenuesLessExpensesAmt
Total Assets BOY$1,191,444TotalAssetsBOYAmt
Total Assets EOY$1,835,763TotalAssetsEOYAmt
Total Liabilities BOY$392,442TotalLiabilitiesBOYAmt
Total Liabilities EOY$73,731TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$799,002NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,762,032NetAssetsOrFundBalancesEOYAmt
MissionTo support the development of new drugs to treat Charcot-Marie-Tooth disease (CMT), to improve the quality of life for people with CMT and ultimately, to find a cure.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,858,108ExpenseAmt
Grant$884,528GrantAmt
Revenue$2,020,783RevenueAmt
DescThe organization awards research fellowships and grants for research on Charcot-Marie-Tooth Disease. It also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy. It uses the services of a medical research consultant to oversee the selection of the recipients of the research funding and to write the grants and contracts with these researchers (see Part VII, Section B)Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$203,733ExpenseAmt
Revenue$59,415RevenueAmt
DescThe organization organize and conducts support groups, conferences and educational webinars for patients, their families and medical practitioners to share knowledge and promote awareness of Charcot-Marie-Tooth Disease.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$177,950ExpenseAmt
Revenue$502,770RevenueAmt
DescThe organization publishes a bi-monthly newsletter and other educational publications and maintains a website for patients, their families and medical practitioners to assist in understanding and treating Charcot-Marie-Tooth Disease.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$2,239,791TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document21IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee10EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members9GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsYes (true)ChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonKimberly MageePersonNm
Phone6104999264PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 105AddressLine1Txt
CityGlenoldenCityNm
State AbbreviationPAStateAbbreviationCd
ZIP19036ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (11 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
Herbert Beron
Secretary0.000.00Yes (X)Yes (X)$0$0$0
Giles Bouchard
Chairman0.000.00Yes (X)$0$0$0
Thomas Dubensky
Director0.000.00Yes (X)$0$0$0
Laura Fava
Director0.000.00Yes (X)$0$0$0
Gary Gasper
Treasurer0.000.00Yes (X)$0$0$0
Alan Korowitz
Director0.000.00Yes (X)$0$0$0
Steven ODonnell
Director0.000.00Yes (X)$0$0$0
Chris Ouellette
Director0.000.00Yes (X)$0$0$0
Phyllis Sanders
Director0.000.00Yes (X)$0$0$0
Kimberly Magee
Director of Finance40.000.00Yes (X)$75,000$0$0
Amy Gray
Chief Executive Officer40.000.00Yes (X)$152,692$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$227,692TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

FieldValueIRS element (for citing)
PersonHumanFirst Therapeutics LLCPersonNm

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line19600 Dewitt Drive Suite 1AddressLine1Txt
CitySilver SpringCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20910ZIPCd
FieldValueIRS element (for citing)
Servicesmedical researchServicesDesc
Compensation$151,997CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
Membership Dues$59,415MembershipDuesAmt
All Other Contributions$2,029,465AllOtherContributionsAmt
Total Contributions$2,088,880TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescSupport group revenueDesc
Business624100BusinessCd
Total Revenue Column$494,088TotalRevenueColumnAmt
Related Or Exempt Func Income$494,088RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$494,088TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$835TotalRevenueColumnAmt
Related Or Exempt Func Income$835RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$708,477FundraisingGrossIncomeAmt
Fundraising Direct Expenses$153,017FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$555,460TotalRevenueColumnAmt
Exclusion$555,460ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$8,682GrossSalesOfInventoryAmt
Cost Of Goods Sold$9,116CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column-$434TotalRevenueColumnAmt
Exclusion-$434ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,138,829TotalRevenueColumnAmt
Related Or Exempt Func Income$494,923RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$555,026ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$874,028TotalAmt
Program Services$874,028ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$10,500TotalAmt
Program Services$10,500ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$546,775TotalAmt
Program Services$434,342ProgramServicesAmt
Management And General$22,500ManagementAndGeneralAmt
Fundraising$89,933FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$12,727TotalAmt
Program Services$10,072ProgramServicesAmt
Management And General$531ManagementAndGeneralAmt
Fundraising$2,124FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$3,993TotalAmt
Program Services$3,224ProgramServicesAmt
Management And General$154ManagementAndGeneralAmt
Fundraising$615FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$36,987TotalAmt
Program Services$29,362ProgramServicesAmt
Management And General$1,524ManagementAndGeneralAmt
Fundraising$6,101FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$21,326TotalAmt
Program Services$21,085ProgramServicesAmt
Management And General$241ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$17,290TotalAmt
Management And General$17,290ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$30,520TotalAmt
Program Services$30,520ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$6,921TotalAmt
Fundraising$6,921FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$194,247TotalAmt
Program Services$181,778ProgramServicesAmt
Fundraising$12,469FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$22,487TotalAmt
Program Services$22,487ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$33,185TotalAmt
Program Services$22,723ProgramServicesAmt
Management And General$7,460ManagementAndGeneralAmt
Fundraising$3,002FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$79,560TotalAmt
Program Services$67,626ProgramServicesAmt
Fundraising$11,934FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$14,695TotalAmt
Program Services$12,241ProgramServicesAmt
Management And General$1,602ManagementAndGeneralAmt
Fundraising$852FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$77,721TotalAmt
Program Services$72,734ProgramServicesAmt
Management And General$3,969ManagementAndGeneralAmt
Fundraising$1,018FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$63,870TotalAmt
Program Services$63,870ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$12,239TotalAmt
Management And General$12,239ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$9,764TotalAmt
Management And General$9,764ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtFundraisingFundraisingAmtProgram ServicesProgramServicesAmt
bank charges & collection fe$34,977$34,977
direct expenses$259,053$24,830$234,223
publications & supplies$62,472$892$61,580
recruiting expense$99,150$19,830$79,320

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$15,200TotalAmt
Program Services$8,076ProgramServicesAmt
Management And General$6,174ManagementAndGeneralAmt
Fundraising$950FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,539,687TotalAmt
Program Services$2,239,791ProgramServicesAmt
Management And General$83,448ManagementAndGeneralAmt
Fundraising$216,448FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,002,637BOYAmt
EOY$1,685,878EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$160,544BOYAmt
EOY$125,000EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$8,789BOYAmt
EOY$7,650EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$55,718LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$38,483LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$19,474BOYAmt
EOY$17,235EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$1,191,444BOYAmt
EOY$1,835,763EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$28,554BOYAmt
EOY$73,731EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$363,888BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$392,442BOYAmt
EOY$73,731EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY-$47,139BOYAmt
EOY$641,278EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$846,141BOYAmt
EOY$1,120,754EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$799,002BOYAmt
EOY$1,762,032EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,191,444BOYAmt
EOY$1,835,763EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$599,142ReconcilationRevenueExpnssAmt
Prior Period Adjustments$363,888PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,114,359CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,361,672CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,297,705CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,642,776CurrentTaxYearMinus1YearAmt
Current Tax Year$2,088,880CurrentTaxYearAmt
Total$9,505,392TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$958,215CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$944,580CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,628,420CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,767,404CurrentTaxYearMinus1YearAmt
Current Tax Year$494,923CurrentTaxYearAmt
Total$5,793,542TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,072,574CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,306,252CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,926,125CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,410,180CurrentTaxYearMinus1YearAmt
Current Tax Year$2,583,803CurrentTaxYearAmt
Total$15,298,934TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$15,298,934PublicSupportTotal509Amt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,072,574CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,306,252CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,926,125CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,410,180CurrentTaxYearMinus1YearAmt
Current Tax Year$2,583,803CurrentTaxYearAmt
Total$15,298,934TotalAmt
FieldValueIRS element (for citing)
Public Support CY5091.00000PublicSupportCY509Pct
Public Support PY5090.00000PublicSupportPY509Pct
Investment Income CY0.00000InvestmentIncomeCYPct
Investment Income PY0.00000InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
Form4720 Filed Section4955 TaxYes (true)Form4720FiledSection4955TaxInd

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$30,520FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$30,520FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$2,332,560FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$2,363,080FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$268,154FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$67,039FilingOrganizationsTotalAmt
FieldValueIRS element (for citing)
Form4720 FiledYes (true)Form4720FiledInd

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$269,312CurrentYearMinus3Amt
Current Year Minus2$314,955CurrentYearMinus2Amt
Current Year Minus1$293,971CurrentYearMinus1Amt
Current Year$268,154CurrentYearAmt
Total$1,146,392TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$1,719,588LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$26,250CurrentYearMinus3Amt
Current Year Minus2$30,300CurrentYearMinus2Amt
Current Year Minus1$31,725CurrentYearMinus1Amt
Current Year$30,520CurrentYearAmt
Total$118,795TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$67,328CurrentYearMinus3Amt
Current Year Minus2$78,739CurrentYearMinus2Amt
Current Year Minus1$73,493CurrentYearMinus1Amt
Current Year$67,039CurrentYearAmt
Total$286,599TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$429,899GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$55,718OtherCostOrOtherBasisAmt
Depreciation$38,483DepreciationAmt
Book Value$17,235BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$17,235TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$3,138,829TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$3,138,829RevenueSubtotalAmt
Total Revenue Per Form990$3,138,829TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,539,687TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,539,687ExpensesSubtotalAmt
Total Expenses Per Form990$2,539,687TotalExpensesPerForm990Amt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionEurope including Iceland and GreenlandRegionTxt
Employee1EmployeeCnt
Type Of Activities ConductedGrant makingTypeOfActivitiesConductedTxt
Specific Services Providedgrant makingSpecificServicesProvidedTxt
Region Total Expenditures$75,145RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Subtotal Employees1SubtotalEmployeesCnt
Total Employee1TotalEmployeeCnt
Subtotal Spent$75,145SubtotalSpentAmt
Total Spent$75,145TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtDescription Of Non Cash AsstDescriptionOfNonCashAsstTxtValuation Method UsedValuationMethodUsedDesc
Europe including Iceland and GreenlandHigh Dosage Oprozomib studies in rats$14,949wire transfernaFair market value
Europe including Iceland and GreenlandGenetherapy approach to treat neuropathy$43,449wire transfernaFair market value
Europe including Iceland and GreenlandGenetherapy approach to treat neuropathy$16,747wire transfernaFair market value
FieldValueIRS element (for citing)
Total501c3 Org3Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceUse of grant monitoring procedures (Part I, line 2)FormAndLineReferenceDesc
ExplanationCMTA requires by contract period progress reports on the funded research. Its contracts also include a full research plan with budgets & deliverables.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1All StarEvent1Nm
Gross Receipts Event1$222,376GrossReceiptsEvent1Amt
Gross Revenue Event1$222,376GrossRevenueEvent1Amt
Other Direct Expenses Event1$74,108OtherDirectExpensesEvent1Amt
Event2NY EventEvent2Nm
Gross Receipts Event2$232,509GrossReceiptsEvent2Amt
Gross Revenue Event2$232,509GrossRevenueEvent2Amt
Other Direct Expenses Event2$54,522OtherDirectExpensesEvent2Amt
Other Events Total2OtherEventsTotalCnt
Gross Receipts Other Events$253,592GrossReceiptsOtherEventsAmt
Gross Revenue Other Events$253,592GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$24,387OthDirectExpnssOtherEventsAmt
Gross Receipts Total$708,477GrossReceiptsTotalAmt
Gross Revenue Total Events$708,477GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$153,017OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$153,017DirectExpenseSummaryEventsAmt
Net Income Summary$555,460NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (10 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtValuation Method UsedValuationMethodUsedDescPurpose Of GrantPurposeOfGrantTxtNon Cash AssistanceNonCashAssistanceDesc
UB Foundation Services Inc
PO Box 900BuffaloNY14226160865182$91,104cashCMT Research
University of Iowa-Carver College
200 Hawkins Drive 2007 RCPIowa CityIA52242426004813$56,484cashCMT Research
University of Miami
PO Box 405803AtlantaGA30384590624458$56,484cashCMT Research
University of Missouri Columbia
115 Business Loop 70W Mizzou N RMColumbiaMO65211436003859$44,620cashCMT Research
University of Pennsylvania
PO Box 785541PhiladelphiaPA19178231352685$93,706cashCMT Research
University of Wisconsin Madison
21 N Park Street Suite 6401MadisonWI53715396006492$12,500cashCMT Research
Cedars-Sinai Medical Center
8700 Beverly BlvdLos AngelesCA90048951644600$72,021cashCMT Research
Columbia University
622 W 113th StreetNew YorkNY10025135598093$60,964cashCMT Research
MDA
8400 E Grant Road 170TucsonAZ85715131665552$28,897cashCMT Research
not itemized
$2,355cashCMT Researchna

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypefellowshipsGrantTypeTxt
Recipient3RecipientCnt
Cash Grant$10,500CashGrantAmt
Valuation Method Usedcash valueValuationMethodUsedDesc

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceMonitoring procedures (Part I, line 2)FormAndLineReferenceDesc
ExplanationCMTA requires by contract period progress reports on the funded research. Its contracts also include a full research plan with budgets & deliverables.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
First Class Or Charter TravelYes (X)FirstClassOrCharterTravelInd
Written Policy Ref T And E ExpnssYes (true)WrittenPolicyRefTAndEExpnssInd
Substantiation RequiredYes (true)SubstantiationRequiredInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonAmy GrayPersonNm
TitleChief Executive OfficerTitleTxt
Base Compensation Filing Org$152,692BaseCompensationFilingOrgAmt
Total Compensation Filing Org$152,692TotalCompensationFilingOrgAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Officer directors etc family relationship Part VI line 2Gilles Bouchard (board chairman) and Chris Ouellette (board member) are brothers-in-law.
Organizational document changes Part VI line 4The By-Laws were changed to officially incorporate the Conflict of Interest Policy. In addition, four physicians were added to the Board as voting members. However, they do not vote on research spending.
Form 990 governing body review Part VI line 11Form 990 will be reviewed by the Board of Directors.
Conflict of interest policy compliance Part VI line 12cThe organization had a workshop for all Board members on the Conflict of Interest Policy. The physicians on the Board disclose all pertinent research work, and do not vote on research spending.
CEO executive director top management comp Part VI line 15aThe organizations Board of Directors determines the CEOs compensation annually, considering whatever factors and information it deems appropriate.
Governing documents etc available to public Part VI line 19Upon request by mail, telephone, and/or email audited financial statements are available on the CMTAs website.
Not undergone required audits or steps for audit part XII line 3bThe CMTA has not changed its selection and oversight process during the tax year. The Board of Directors assumes oversight of the independent auditor and the annual audit.

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