2018-06-19T18:03:35-04:00 2017-12-31 Peterson Fieo & Co LLP 103 Chesley Drive Suite 102 Media PA 190631757 990 2017-01-01 222480896 Charcot-Marie-Tooth Association CHAR PO Box 105 Glenolden PA 19036 Amy Gray Chief Executive 6104999264 2018-06-01 false George Fieo CPA P00231326 6104571486 2018-06-19 X 2017 2022-09-23 18:48:47Z Amy Gray 3300962 false X www.cmtausa.org X 1983 PA To support the development of new drugs to treat Charcot-Marie-Tooth disease (CMT), to improve the quality of life for people with CMT and ultimately, to find a cure. 9 9 10 0 0 1642776 2088880 783564 494088 695 835 749994 555026 3177029 3138829 1392292 884528 0 900907 600482 6921 216448 1114998 1047756 3408197 2539687 -231168 599142 1191444 1835763 392442 73731 799002 1762032 To support the development of new drugs to treat Charcot-Marie-Tooth disease (CMT), to improve the quality of life for people with CMT and ultimately, to find a cure. false false 1858108 884528 2020783 The organization awards research fellowships and grants for research on Charcot-Marie-Tooth Disease. It also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy. It uses the services of a medical research consultant to oversee the selection of the recipients of the research funding and to write the grants and contracts with these researchers (see Part VII, Section B) 203733 59415 The organization organize and conducts support groups, conferences and educational webinars for patients, their families and medical practitioners to share knowledge and promote awareness of Charcot-Marie-Tooth Disease. 177950 502770 The organization publishes a bi-monthly newsletter and other educational publications and maintains a website for patients, their families and medical practitioners to assist in understanding and treating Charcot-Marie-Tooth Disease. 2239791 true true false true false false false false false false true false false false false false true false false false true true false false true false false true true true false false false false false false false false false false false false false false false false false true 21 0 true 10 true false false false false false false false false false false false false X 9 9 true false true false false false false true true false false true true true true true true true false false PA X Kimberly Magee 6104999264 PO Box 105 Glenolden PA 19036 Herbert Beron Secretary 0.00 0.00 X X 0 0 0 Giles Bouchard Chairman 0.00 0.00 X 0 0 0 Thomas Dubensky Director 0.00 0.00 X 0 0 0 Laura Fava Director 0.00 0.00 X 0 0 0 Gary Gasper Treasurer 0.00 0.00 X 0 0 0 Alan Korowitz Director 0.00 0.00 X 0 0 0 Steven ODonnell Director 0.00 0.00 X 0 0 0 Chris Ouellette Director 0.00 0.00 X 0 0 0 Phyllis Sanders Director 0.00 0.00 X 0 0 0 Kimberly Magee Director of Finance 40.00 0.00 X 75000 0 0 Amy Gray Chief Executive Officer 40.00 0.00 X 152692 0 0 227692 0 0 1 false true false HumanFirst Therapeutics LLC 9600 Dewitt Drive Suite 1 Silver Spring MD 20910 medical research 151997 1 59415 2029465 2088880 Support group revenue 624100 494088 494088 494088 835 835 708477 153017 555460 555460 8682 9116 -434 -434 3138829 494923 0 555026 874028 874028 10500 10500 546775 434342 22500 89933 12727 10072 531 2124 3993 3224 154 615 36987 29362 1524 6101 21326 21085 241 17290 17290 30520 30520 6921 6921 194247 181778 12469 22487 22487 33185 22723 7460 3002 79560 67626 11934 14695 12241 1602 852 77721 72734 3969 1018 63870 63870 12239 12239 9764 9764 bank charges & collection fe 34977 34977 direct expenses 259053 234223 24830 publications & supplies 62472 61580 892 recruiting expense 99150 79320 19830 15200 8076 6174 950 2539687 2239791 83448 216448 1002637 1685878 160544 125000 8789 7650 55718 38483 19474 17235 1191444 1835763 28554 73731 363888 392442 73731 X -47139 641278 846141 1120754 799002 1762032 1191444 1835763 599142 363888 0 X false true X true false X 1114359 2361672 2297705 1642776 2088880 9505392 958215 944580 1628420 1767404 494923 5793542 2072574 3306252 3926125 3410180 2583803 15298934 15298934 2072574 3306252 3926125 3410180 2583803 15298934 1.00000 0.00000 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true 30520 30520 2332560 2363080 268154 67039 true 269312 314955 293971 268154 1146392 1719588 26250 30300 31725 30520 118795 67328 78739 73493 67039 286599 429899 55718 38483 17235 17235 3138829 3138829 3138829 2539687 2539687 2539687 true Europe including Iceland and Greenland 1 Grant making grant making 75145 1 1 75145 75145 Europe including Iceland and Greenland High Dosage Oprozomib studies in rats 14949 wire transfer na Fair market value Europe including Iceland and Greenland Genetherapy approach to treat neuropathy 43449 wire transfer na Fair market value Europe including Iceland and Greenland Genetherapy approach to treat neuropathy 16747 wire transfer na Fair market value 3 false false false false false false Use of grant monitoring procedures (Part I, line 2) CMTA requires by contract period progress reports on the funded research. Its contracts also include a full research plan with budgets & deliverables. All Star 222376 222376 74108 NY Event 232509 232509 54522 2 253592 253592 24387 708477 708477 153017 153017 555460 true UB Foundation Services Inc PO Box 900 Buffalo NY 14226 160865182 91104 cash CMT Research University of Iowa-Carver College 200 Hawkins Drive 2007 RCP Iowa City IA 52242 426004813 56484 cash CMT Research University of Miami PO Box 405803 Atlanta GA 30384 590624458 56484 cash CMT Research University of Missouri Columbia 115 Business Loop 70W Mizzou N RM Columbia MO 65211 436003859 44620 cash CMT Research University of Pennsylvania PO Box 785541 Philadelphia PA 19178 231352685 93706 cash CMT Research University of Wisconsin Madison 21 N Park Street Suite 6401 Madison WI 53715 396006492 12500 cash CMT Research Cedars-Sinai Medical Center 8700 Beverly Blvd Los Angeles CA 90048 951644600 72021 cash CMT Research Columbia University 622 W 113th Street New York NY 10025 135598093 60964 cash CMT Research MDA 8400 E Grant Road 170 Tucson AZ 85715 131665552 28897 cash CMT Research not itemized 2355 cash na CMT Research fellowships 3 10500 cash value Monitoring procedures (Part I, line 2) CMTA requires by contract period progress reports on the funded research. Its contracts also include a full research plan with budgets & deliverables. X true true X false false false false false false false false false Amy Gray Chief Executive Officer 152692 152692 Officer directors etc family relationship Part VI line 2 Gilles Bouchard (board chairman) and Chris Ouellette (board member) are brothers-in-law. Organizational document changes Part VI line 4 The By-Laws were changed to officially incorporate the Conflict of Interest Policy. In addition, four physicians were added to the Board as voting members. However, they do not vote on research spending. Form 990 governing body review Part VI line 11 Form 990 will be reviewed by the Board of Directors. Conflict of interest policy compliance Part VI line 12c The organization had a workshop for all Board members on the Conflict of Interest Policy. The physicians on the Board disclose all pertinent research work, and do not vote on research spending. CEO executive director top management comp Part VI line 15a The organizations Board of Directors determines the CEOs compensation annually, considering whatever factors and information it deems appropriate. Governing documents etc available to public Part VI line 19 Upon request by mail, telephone, and/or email audited financial statements are available on the CMTAs website. Not undergone required audits or steps for audit part XII line 3b The CMTA has not changed its selection and oversight process during the tax year. The Board of Directors assumes oversight of the independent auditor and the annual audit.