SHWACHMAN DIAMOND SYNDROME FOUNDATION INC

Cite this

Plain text SHWACHMAN DIAMOND SYNDROME FOUNDATION INC. furp.org, nonprofit organization profile, tax years 2010–2025. https://furp.org/org/shwachman-diamond-syndrome-foundation-inc-431709945. Retrieved 2026-11-01.

APA furp.org. (n.d.). SHWACHMAN DIAMOND SYNDROME FOUNDATION INC [Nonprofit organization profile; tax years 2010–2025]. Retrieved November 1, 2026, from https://furp.org/org/shwachman-diamond-syndrome-foundation-inc-431709945

MLA “SHWACHMAN DIAMOND SYNDROME FOUNDATION INC.” furp.org, tax years 2010–2025, https://furp.org/org/shwachman-diamond-syndrome-foundation-inc-431709945. Accessed 1 Nov. 2026.

Retrieved 2026-11-01; covers tax years 2010–2025. Data: furp.org, CC BY 4.0.

2025 · Form 990 · revenue $88K · expenses $102K · assets $194K

EIN
43-1709945
Address
PO BOX 124, VAN WYCK, SC 29744-0124
Website
WWW.SHWACHMAN-DIAMOND.ORG
NTEE code
P80
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
October 1995 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

RAISING AWARENESS OF AND SUPPORT FOR THE SHWACHMAN-DAIMOND SYNDROME DISEASE. THIS IS DONE THROUGH EDUCATIONAL CONFERENCES AND THE PUBLICAITON OF PERIODALCS SUCH AS NEWSLETTERS AND BROUCHURES. RESEARCH GRANTS ARE ALSO AWARDED FOR THE STUDY OF THE SYNDROME.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

None of the 25 people listed on these returns reported compensation from the organization. They are listed below.

Officers and directors, no compensation reported

25 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Joan Mowery FOUNDER2013-2025 5 $0 reported 1
Christian Del Re Vice President2018-2025 5 $0 reported 1
Mary Balint President2019-2025 5 $0 reported 1
John Wall Treasurer2024-2025 5 $0 reported 1
Deana Valiante Secretary2024-2025 5 $0 reported 1
Bryan Sample (former) Advisor2010-2024 5 $0 reported 1
Shari St Hilaire (former) OUTSIDE DIR2024 5 $0 reported 1
Tom Dahlman (former) OUTSIDE DIR2024 5 $0 reported 1
Pamela Miller (former) Executive Dir.2013-2024 5 $0 reported 1
Savannah Lillywhite (former) Director2019-2023 5 $0 reported 1
Stephanie Gregoretti (former) Director2014-2023 5 $0 reported 1
Jenni Wachter (former) Director2014-2023 5 $0 reported 1
Nicole Shen (former) Director2015-2023 5 $0 reported 1
Scott Miller (former) Director2019-2023 5 $0 reported 1
Carolina Cordova (former) Director2019-2023 5 $0 reported 1
Michelle Grenell (former) Director2019-2023 5 $0 reported 1
Ed Bickel (former) Director2010-2018 5 $0 reported 1
Christine James (former) PRESIDENT2012-2018 5 $0 reported 1
Christian Delre (former) COMM. CHAIR2014-2017 5 $0 reported 1
Jessica Johnson (former) BOARD ADVISOR2017 5 $0 reported 1
Paul Taylor (former) CHAIR2014 5 $0 reported 1
Blair Van Brunt (former) CHAIR2010-2013 5 $0 reported 1
Ed Turkaly (former) CHAIR2013 5 $0 reported 1
Sue Matthiesen (former) Vice President2012 5 $0 reported 1
Donna Garfield (former) Secretary2010-2012 2 $0 reported 1

People by year

2025 · 5 people listed · none paid · 0 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY FOUNDER5 $0$0$0 $01
CHRISTIAN DEL RE Vice President5 $0$0$0 $01
MARY BALINT President5 $0$0$0 $01
JOHN WALL Treasurer5 $0$0$0 $01
DEANA VALIANTE Secretary5 $0$0$0 $01
2024 · 9 people listed · none paid · 0 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY President5 $0$0$0 $01
CHRISTIAN DEL RE Vice President5 $0$0$0 $01
MARY BALINT Secretary5 $0$0$0 $01
JOHN WALL Treasurer5 $0$0$0 $01
BRYAN SAMPLE Advisor5 $0$0$0 $01
DEANA VALIANTE OUTSIDE DIR5 $0$0$0 $01
SHARI ST HILAIRE OUTSIDE DIR5 $0$0$0 $01
TOM DAHLMAN OUTSIDE DIR5 $0$0$0 $01
PAMELA MILLER Executive Dir.5 $0$0$0 $01
2023 · 11 people listed · none paid · 0 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY ACTING PRES.5 $0$0$0 $01
CHRISTIAN DEL RE Director5 $0$0$0 $01
MARY BALINT Secretary5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
SAVANNAH LILLYWHITE Director5 $0$0$0 $01
STEPHANIE GREGORETTI Director5 $0$0$0 $01
JENNI WACHTER Director5 $0$0$0 $01
NICOLE SHEN Director5 $0$0$0 $01
SCOTT MILLER Director5 $0$0$0 $01
CAROLINA CORDOVA Director5 $0$0$0 $01
MICHELLE GRENELL Director5 $0$0$0 $01
2022 · 11 people listed · none paid · 0 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY ACTING PRES.5 $0$0$0 $01
CHRISTIAN DEL RE Director5 $0$0$0 $01
MARY BALINT Secretary5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
SAVANNAH LILLYWHITE Director5 $0$0$0 $01
STEPHANIE GREGORETTI Director5 $0$0$0 $01
JENNI WACHTER Director5 $0$0$0 $01
NICOLE SHEN Director5 $0$0$0 $01
SCOTT MILLER Director5 $0$0$0 $01
CAROLINA CORDOVA Director5 $0$0$0 $01
MICHELLE GRENELL Director5 $0$0$0 $01
2021 · 11 people listed · none paid · 0 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY ACTING PRES.5 $0$0$0 $01
CHRISTIAN DEL RE Director5 $0$0$0 $01
MARY BALINT Secretary5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
SAVANNAH LILLYWHITE Director5 $0$0$0 $01
STEPHANIE GREGORETTI Director5 $0$0$0 $01
JENNI WACHTER Director5 $0$0$0 $01
NICOLE SHEN Director5 $0$0$0 $01
SCOTT MILLER Director5 $0$0$0 $01
CAROLINA CORDOVA Director5 $0$0$0 $01
MICHELLE GRENELL Director5 $0$0$0 $01
2020 · 12 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY ACTING PRES.5 $0-- $01
CHRISTIAN DEL RE Director5 $0-- $01
MARY BALINT Secretary5 $0-- $01
PAMELA MILLER Executive Dir.5 $0-- $01
BRYAN SAMPLE TREASURER5 $0-- $01
SAVANNAH LILLYWHITE Director5 $0-- $01
STEPHANIE GREGORETTI Director5 $0-- $01
JENNI WACHTER Director5 $0-- $01
NICOLE SHEN Director5 $0-- $01
SCOTT MILLER Director5 $0-- $01
CAROLINA CORDOVA Director5 $0-- $01
MICHELLE GRENELL Director5 $0-- $01
2019 · 12 people listed · none paid · 0 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY ACTING PRES.5 $0$0$0 $01
CHRISTIAN DEL RE Director5 $0$0$0 $01
MARY BALINT Secretary5 $0$0$0 $01
PAMELA MILLER Executive Dir.5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
SAVANNAH LILLYWHITE Director5 $0$0$0 $01
STEPHANIE GREGORETTI Director5 $0$0$0 $01
JENNI WACHTER Director5 $0$0$0 $01
NICOLE SHEN Director5 $0$0$0 $01
SCOTT MILLER Director5 $0$0$0 $01
CAROLINA CORDOVA Director5 $0$0$0 $01
MICHELLE GRENELL Director5 $0$0$0 $01
2018 · 9 people listed · none paid · 0 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY VICE PRESIDENT5 $0$0$0 $01
CHRISTIAN DEL RE Director5 $0$0$0 $01
ED BICKEL Director5 $0$0$0 $01
PAMELA MILLER SECRETARY5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
CHRISTINE JAMES PRESIDENT5 $0$0$0 $01
STEPHANIE GREGORETTI Director5 $0$0$0 $01
JENNI WACHTER Director5 $0$0$0 $01
NICOLE SHEN Director5 $0$0$0 $01
2017 · 10 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY VICE PRESIDENT5 $0$0$0 $01
CHRISTIAN DELRE COMM. CHAIR5 $0$0$0 $01
ED BICKEL MEDIA CHAIR5 $0$0$0 $01
PAMELA MILLER SECRETARY5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
CHRISTINE JAMES PRESIDENT5 $0$0$0 $01
STEPHANIE GREGORETTI FAMILY SUPPORT5 $0$0$0 $01
JENNI WACHTER CHAIR5 $0$0$0 $01
NICOLE SHEN CHAIR5 $0$0$0 $01
JESSICA JOHNSON BOARD ADVISOR5 $0$0$0 $01
2016 · 9 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY VICE PRESIDENT5 $0$0$0 $01
CHRISTIAN DELRE COMM. CHAIR5 $0$0$0 $01
ED BICKEL MEDIA CHAIR5 $0$0$0 $01
PAMELA MILLER SECRETARY5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
CHRISTINE JAMES PRESIDENT5 $0$0$0 $01
STEPHANIE GREGORETTI FAMILY SUPPORT5 $0$0$0 $01
JENNI WACHTER CHAIR5 $0$0$0 $01
NICOLE SHEN CHAIR5 $0$0$0 $01
2015 · 9 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY VICE PRESIDENT5 $0$0$0 $01
CHRISTIAN DELRE COMM. CHAIR5 $0$0$0 $01
ED BICKEL MEDIA CHAIR5 $0$0$0 $01
PAMELA MILLER SECRETARY5 $0$0$0 $01
BRYAN SAMPLE TREASURER5 $0$0$0 $01
CHRISTINE JAMES PRESIDENT5 $0$0$0 $01
STEPHANIE GREGORETTI FAMILY SUPPORT5 $0$0$0 $01
JENNI WACHTER CHAIR5 $0$0$0 $01
NICOLE SHEN CHAIR5 $0$0$0 $01
2014 · 9 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY VICE PRESIDENT5 $0-- $01
CHRISTIAN DELRE COMM. CHAIR5 $0-- $01
ED BICKEL MEDIA CHAIR5 $0-- $01
PAMELA MILLER SECRETARY5 $0-- $01
BRYAN SAMPLE TREASURER5 $0-- $01
CHRISTINE JAMES PRESIDENT5 $0-- $01
STEPHANIE GREGORETTI FAMILY SUPPORT5 $0-- $01
JENNI WACHTER CHAIR5 $0-- $01
PAUL TAYLOR CHAIR5 $0-- $01
2013 · 7 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOAN MOWERY VICE PRESIDENT5 $0-- $01
BLAIR VAN BRUNT CHAIR5 $0-- $01
ED BICKEL CHAIR5 $0-- $01
PAMELA MILLER SECRETARY5 $0-- $01
BRYAN SAMPLE TREASURER5 $0-- $01
CHRISTINE JAMES PRESIDENT5 $0-- $01
ED TURKALY CHAIR5 $0-- $01
2012 · 6 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
CHRISTINE JAMES FAMILY LIASON5 $0-- $01
BRYAN SAMPLE Treasurer2 $0-- $01
SUE MATTHIESEN Vice President5 $0-- $01
ED BICKEL SPECIAL PROGRAM2 $0-- $01
BLAIR VAN BRUNT ACTING PRESIDEN5 $0-- $01
DONNA GARFIELD Secretary2 $0-- $01
2011 · 4 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
BRYAN SAMPLE Treasurer2 $0-- $01
ED BICKEL SPECIAL PROGRAM2 $0-- $01
BLAIR VAN BRUNT President10 $0-- $01
DONNA GARFIELD Newsletter2 $0-- $01
2010 · 4 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
BRYAN SAMPLE Treasurer2 $0-- $01
ED BICKEL SPECIAL PROGRAM2 $0-- $01
BLAIR VAN BRUNT President10 $0-- $01
DONNA GARFIELD Newsletter2 $0-- $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2025 · Form 990 period ending 2025-12-31 · view filing · original 990 ↗
$87,649$102,358 $193,847$192,370 $87,605$0 $0025
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$83,670$138,602 $206,848$207,079 $78,872$0 $0025
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$65,182$46,769 $268,839$262,011 $65,165$0 $0025
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$65,663$145,719 $244,899$243,598 $65,637$0 $0025
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$192,083$35,612 $358,310$358,256 $192,083$0 $0025
2021 · Form 990 period ending 2021-12-31 · amended · superseded · view filing · original 990 ↗
$157,084$35,215 $323,708$323,654 $157,084$0 $0025
2020 · Form 990EZ period ending 2020-12-31 · view filing · original 990 ↗
$78,849$97,754 $201,803$201,785 $78,849- ---
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$65,678$108,668 $224,102$220,690 $65,678$0 $0025
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$154,356$79,821 $263,680$263,680 $154,356$0 $0025
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$79,812$58,813 $189,145$189,145 $79,812$0 $00-
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$121,560$102,213 $168,146$168,146 $121,551$0 $00-
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$124,204$145,011 $148,799$148,799 $124,181$0 $00-
2014 · Form 990EZ period ending 2014-12-31 · view filing · original 990 ↗
$64,480$81,503 $169,606$169,606 $64,423- ---
2013 · Form 990EZ period ending 2013-12-31 · view filing · original 990 ↗
$76,700$39,787 $186,629$186,629 $76,645- ---
2012 · Form 990EZ period ending 2012-12-31 · view filing · original 990 ↗
$101,558$33,550 $150,205$149,716 $101,512- ---
2011 · Form 990EZ period ending 2011-12-31 · view filing · original 990 ↗
$51,525$81,600 $85,664$81,708 $51,091- ---
2010 · Form 990EZ period ending 2010-12-31 · view filing · original 990 ↗
$74,567$108,356 $112,257$111,783 $74,270- ---

Funders of this organization

3 grantors reported grants to this organization, $91,816 in all, tax years 2018 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FORGOOD INC DAF sponsor Exact 2018, 2023-2024 3$64,436 2024$18,914
show
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2023-2024 2$21,000 2024$10,500
show
AMERICAN LEGION CHILD WELFARE FOUNDATION INC Public charity Exact 2020 1$6,380 2020$6,380
show

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Same category: NTEE code and revenue

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OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
CHARLESTON MENS CHORUS INCSCP80 $77,803$76,775 BOARD MEMBER$0 Same NTEE code P80, revenue within 2x, same state
SERVICE DOG INSTITUTE OF SOUTH CAROLINASCP80 $77,039$84,759 PRESIDENT$24,006 Same NTEE code P80, revenue within 2x, same state
WAYMAKER OFF-ROAD WHEELCHAIRS INCSCP80 $118,827$130,406 Executive Director$0 Same NTEE code P80, revenue within 2x, same state
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SFN INCSCP80 $95,923$93,429 CHAIRMAN$0 Same NTEE code P80, revenue within 2x, same state
C L C COMMUNITY LIVING INCSCP80 $74,990$116,379 DIRECTOR$0 Same NTEE code P80, revenue within 2x, same state
AYRES HOUSING INCSCP80 $122,619$201,017 CHAIRMAN$0 Same NTEE code P80, revenue within 2x, same state
PINEBROOK OF CHARLESTON INCSCP80 $84,690$87,805 Executive Director$0 Same NTEE code P80, revenue within 2x, same state
CAMP SPEARHEAD INCSCP80 $61,683$4,277 TREASURER$0 Same NTEE code P80, revenue within 2x, same state
SOUTH CAROLINA SPINAL CORD INJURY ASSOCIATIONSCP80 $97,339$139,902 Executive Director$0 Same NTEE code P80, revenue within 2x, same state
DREAM RIDERSSCP80 $94,086$88,912 INSTRUCTOR$27,150 Same NTEE code P80, revenue within 2x, same state
HOLLY HOMES INCSCP80 $99,738$129,381 BOARD MEMBER$0 Same NTEE code P80, revenue within 2x, same state
THE LORD CARESSCP80 $60,550$111,177 PRESIDENT$0 Same NTEE code P80, revenue within 2x, same state
WORKABILITYSCP80 $62,110$77,892 Chair$0 Same NTEE code P80, revenue within 2x, same state
ANX FOUNDATION INCCAP80 $98,408$49,842 CEO/CFO$0 Same NTEE code P80, revenue within 2x
SHEPHERDS PLACE FOUNDATION INCGAP80 $105,300$32,262 TREASURER$0 Same NTEE code P80, revenue within 2x
SIKAP FOUNDATION INCCAP80 $85,301$84,691 PRESIDENT AND CEO$0 Same NTEE code P80, revenue within 2x
DAVE KRACHE FOUNDATION INCGAP80 $93,176$81,808 Director, Board Member$0 Same NTEE code P80, revenue within 2x
AAGO FOUNDATION INCFLP80 $75,674$73,608 PRESIDENT$0 Same NTEE code P80, revenue within 2x
CHILLS DIAMOND RING EDUCATION FOUNDATION INCMAP80 $98,934$93,002 CHAIRPERSON$0 Same NTEE code P80, revenue within 2x
DON AUSMAN FOUNDATION INCFLP80 $60,826$70,556 DIRECTOR$0 Same NTEE code P80, revenue within 2x
PAUL SNYDER MEMORIAL FOUNDATION INCNYP80 $95,858$82,052 President$0 Same NTEE code P80, revenue within 2x
KICKS FOR KIDS FOUNDATION INCFLP80 $106,383$132,313 EXECUTIVE DIRECTOR$0 Same NTEE code P80, revenue within 2x
ST JOHN GIVE HOPE FOUNDATION INCNYP80 $66,691$100,556 SOBER COUNSELOR$4,000 Same NTEE code P80, revenue within 2x
PPS FOUNDATION FOR WOMEN IN NEED INCMOP80 $88,310$106,859 Treasurer$0 Same NTEE code P80, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$1,030,11055 192016–2024 NORTHSIDE NAPLES KIWANIS FOUNDATION INC; WELLINGTON CARES INC; AAGO FOUNDATION INC; NORTHEAST ACCESSIBLE GOLF ASSOCIATION INC and 15 more
DONOR ADVISED CHARITABLE GIVING DAF sponsor$675,91124 122017–2024 WELCOME HOME HEROES FOUNDATION; LAURA MAHONEY AUTISM AND EPILEPSY FOUNDATION; FOUNDATIONS INTERNATIONAL MINISTRIES; NORTHSIDE NAPLES KIWANIS FOUNDATION INC and 8 more
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$618,76819 62019–2025 WELLBEING AND EDUCATION FOUNDATION; ADDIEUN FOUNDATION; CAMP SPEARHEAD INC; FENIXIA FOUNDATION INC and 2 more
SHEILA DAVE AND SHERRY GOLD FOUNDATION Private foundation$550,0014 12012–2015 MYASTHENIA GRAVIS FOUNDATION OF CALIFORNIA
CALIFORNIA COMMUNITY FOUNDATION DAF sponsor$400,0002 12021–2022 PACIFIC BRIDGE ARTS FOUNDATION
CENTRAL CAROLINA COMMUNITY FOUNDATION DAF sponsor$259,94115 22013–2024 DREAM RIDERS; SOUTH CAROLINA SPINAL CORD INJURY ASSOCIATION
THE BESSEMER GIVING FUND DAF sponsor$252,5003 22019–2020 COURAGEOUS FACES FOUNDATION; WELLINGTON CARES INC
WHITMIRE FAMILY CHARITABLE FOUNDATION Private foundation$250,0001 12020–2020 TULSA WARBIRDS FOUNDATION INC
PI FOUNDATION INC DAF sponsor$243,6413 12013–2018 THE OPPORTUNITY FOUNDATION
FORGOOD INC funds this one DAF sponsor$205,95013 62012–2023 CAROLINA FOR THE KIDS FOUNDATION; HEART WALK FOUNDATION; FENIXIA FOUNDATION INC; SOUTH CAROLINA SPINAL CORD INJURY ASSOCIATION and 2 more
NEW WORLD FOUNDATION DAF sponsor$160,8571 12022–2022 ADDIEUN FOUNDATION
UNITED WAY OF BERGEN COUNTY DAF sponsor$159,0597 12018–2024 PAUL SNYDER MEMORIAL FOUNDATION INC
TELEIOS MINISTRY DAF sponsor$144,0033 12021–2024 REDISCOVERING OUTDOOR ACTIVITIES & RECREATION
ROCHESTER AREA COMMUNITY FOUNDATION DAF sponsor$137,9017 22018–2024 GENESEE SENIOR FOUNDATION INC; NORTHSIDE NAPLES KIWANIS FOUNDATION INC
NATIONAL PHILANTHROPIC TR DAF sponsor$130,5004 32021–2023 COMBAT WOUNDED VETERAN CHALLENGE INC; UNITED ANGELS FOUNDATION; KANVETS UNITED FOUNDATION

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Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2025 · Form 990 · $102,358 spent · pay $2,672 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH & DEVELOPMENT $75,150$75,150-- 73.4%
Travel $10,647$10,647-- 10.4%
Other (as described)PAYPAL FEE $3,116$1,558$1,558- 3.0%
Advertising and promotion $2,840$2,840-- 2.8%
Other salaries and wages $2,672$2,672-- 2.6%
Office expenses $2,345$1,173$1,172- 2.3%
Fees: accounting $2,000-$2,000- 2.0%
Other (as described)DUES $948$948-- 0.9%
All other expenses $861$633$228- 0.8%
Other (as described)CONSTANT CONTACT $800$800-- 0.8%
Fees: other services $582$291$291- 0.6%
Fees: professional fundraisers $397--$397 0.4%
Total$102,358100%

View the filing

2024 · Form 990 · $138,602 spent · pay $16,536 · grants $0 · events $300
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH & DEVELOPMENT $99,800$99,800-- 72.0%
Other salaries and wages $15,322$7,661$7,661- 11.1%
Other (as described)DUES $5,400-$5,400- 3.9%
Fees: accounting $5,000-$5,000- 3.6%
Advertising and promotion $4,669$4,669-- 3.4%
Office expenses $2,584$1,292$1,292- 1.9%
All other expenses $1,635$1,092$543- 1.2%
Other (as described)FAMILY SUPPORT $1,595$1,595-- 1.2%
Payroll taxes $1,214$607$607- 0.9%
Other (as described)PAYPAL FEE $864$432$432- 0.6%
Conferences, conventions and meetings $300$300-- 0.2%
Fees: other services $219$109$110- 0.2%
Total$138,602100%

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2023 · Form 990 · $46,769 spent · pay $16,661 · grants $0 · events $26,707
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $26,707$26,707-- 57.1%
Other salaries and wages $16,398$8,199$8,199- 35.1%
Other (as described)DUES $3,000-$3,000- 6.4%
Other (as described)FUNDRAISING CONSULTANT $2,250$1,125$1,125- 4.8%
Other (as described)Printing and Publications $1,768$884$884- 3.8%
Other (as described)PAYPAL FEE $1,309$654$655- 2.8%
Insurance $666$333$333- 1.4%
Office expenses $636$318$318- 1.4%
Fees: other services $520$260$260- 1.1%
Advertising and promotion $464$464-- 1.0%
Payroll taxes $263$131$132- 0.6%
All other expenses -$7,212-$8,375$1,163- -15.4%
Total$46,769100%

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2022 · Form 990 · $145,719 spent · pay $22,958 · grants $0 · events $14,810
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)WARREN DRUG $97,921$97,921-- 67.2%
Other salaries and wages $20,877$10,439$10,438- 14.3%
Conferences, conventions and meetings $14,810$14,810-- 10.2%
Other (as described)SOFTWARE $2,840$1,420$1,420- 1.9%
All other expenses $2,602$542$2,060- 1.8%
Payroll taxes $2,081$1,041$1,040- 1.4%
Other (as described)Printing and Publications $1,420$1,420-- 1.0%
Office expenses $1,235$618$617- 0.8%
Other (as described)FAMILY SUPPORT $1,147$1,147-- 0.8%
Insurance $740$370$370- 0.5%
Advertising and promotion $46$46-- 0.0%
Total$145,719100%

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2021 · Form 990 · $35,612 spent · pay $15,747 · grants $0 · events $6,517
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $15,747$7,873$7,874- 44.2%
Conferences, conventions and meetings $6,517$6,517-- 18.3%
Office expenses $3,981$1,990$1,991- 11.2%
Other (as described)MISCELLANEOUS $3,664-$3,664- 10.3%
Other (as described)FAMILY SUPPORT $3,451$3,451-- 9.7%
Other (as described)Postage and Shipping $939$469$470- 2.6%
Insurance $740$370$370- 2.1%
Advertising and promotion $497-$497- 1.4%
Other (as described)Printing and Publications $76$76-- 0.2%
Total$35,612100%

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2020 · Form 990EZ · $97,754 spent · pay $10,728 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $83,142 85.1%
Salaries, other pay and benefits $10,728 11.0%
Fees to independent contractors $2,668 2.7%
Printing, publications, postage $1,216 1.2%
Total$97,754100%

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2019 · Form 990 · $108,668 spent · pay $12,479 · grants $0 · events $16,439
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH $55,000$55,000-- 50.6%
Conferences, conventions and meetings $16,439$16,439-- 15.1%
Other salaries and wages $12,479$6,240$6,239- 11.5%
Other (as described)AWARENESS ITEMS $6,302$6,302-- 5.8%
Other (as described)Printing and Publications $3,571$3,571-- 3.3%
All other expenses $3,505$2,263$1,242- 3.2%
Other (as described)MISCELLANEOUS $3,356-$3,356- 3.1%
Fees: accounting $3,300-$3,300- 3.0%
Advertising and promotion $1,951-$1,951- 1.8%
Insurance $1,272$636$636- 1.2%
Office expenses $943$472$471- 0.9%
Fees: legal $275-$275- 0.3%
Information technology $275$275-- 0.3%
Total$108,668100%

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2018 · Form 990 · $79,821 spent · pay $868 · grants $0 · events $47,534
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $47,534$47,534-- 59.6%
Other (as described)CAMP SUNSHINE $20,000$20,000-- 25.1%
Fees: accounting $3,100-$3,100- 3.9%
Other (as described)Postage and Shipping $2,054$1,027$1,027- 2.6%
Other (as described)SUPPLIES $1,993$1,993-- 2.5%
All other expenses $1,445$1,445-- 1.8%
Other (as described)MISCELLANEOUS $1,217-$1,217- 1.5%
Other salaries and wages $868$434$434- 1.1%
Information technology $858$858-- 1.1%
Office expenses $578$289$289- 0.7%
Advertising and promotion $174-$174- 0.2%
Total$79,821100%

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2017 · Form 990 · $58,813 spent · pay $1,218 · grants $0 · events $7,992
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH $35,000$35,000-- 59.5%
Conferences, conventions and meetings $7,992$7,992-- 13.6%
Other (as described)GRANT EXPENSE $3,800$3,800-- 6.5%
Fees: accounting $3,000-$3,000- 5.1%
All other expenses $2,491$1,293$1,198- 4.2%
Other (as described)FAMILY SUPPORT $2,326$2,326-- 4.0%
Other salaries and wages $1,218$609$609- 2.1%
Advertising and promotion $1,218-$1,218- 2.1%
Other (as described)SUPPLIES $1,158$579$579- 2.0%
Information technology $610$610-- 1.0%
Total$58,813100%

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2016 · Form 990 · $102,213 spent · pay $910 · grants $0 · events $7,678
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH $70,000$70,000-- 68.5%
Conferences, conventions and meetings $7,678$7,678-- 7.5%
Other (as described)CAMP SUNSHINE $7,500$7,500-- 7.3%
Other (as described)FAMILY CAMP $5,500$5,500-- 5.4%
Other (as described)SUPPLIES $3,377$3,377-- 3.3%
Fees: accounting $2,985-$2,985- 2.9%
All other expenses $2,323$1,766$557- 2.3%
Advertising and promotion $1,310-$1,310- 1.3%
Other salaries and wages $910$455$455- 0.9%
Information technology $630$630-- 0.6%
Total$102,213100%

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2015 · Form 990 · $145,011 spent · pay $1,792 · grants $0 · events $25,567
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH $105,000$105,000-- 72.4%
Conferences, conventions and meetings $25,567$25,567-- 17.6%
Fees: accounting $2,985-$2,985- 2.1%
Information technology $2,540$2,540-- 1.8%
Other salaries and wages $1,792$896$896- 1.2%
All other expenses $1,675$1,200$475- 1.2%
Other (as described)FAMILY SUPPORT $1,260$1,260-- 0.9%
Advertising and promotion $1,215-$1,215- 0.8%
Office expenses $1,052$526$526- 0.7%
Other (as described)Postage and Shipping $970$485$485- 0.7%
Other (as described)MISCELLANEOUS $955-$955- 0.7%
Total$145,011100%

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2014 · Form 990EZ · $81,503 spent · pay $1,951 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $74,710 91.7%
Fees to independent contractors $3,985 4.9%
Salaries, other pay and benefits $1,951 2.4%
Printing, publications, postage $857 1.1%
Total$81,503100%

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2013 · Form 990EZ · $39,787 spent · pay $1,442 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $32,407 81.5%
Fees to independent contractors $4,551 11.4%
Salaries, other pay and benefits $1,442 3.6%
Printing, publications, postage $1,387 3.5%
Total$39,787100%

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2012 · Form 990EZ · $33,550 spent · pay $0 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $29,747 88.7%
Fees to independent contractors $2,600 7.7%
Printing, publications, postage $1,203 3.6%
Total$33,550100%

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2011 · Form 990EZ · $81,600 spent · pay $0 · grants $65,000 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $65,000 79.7%
Other expenses (detail on Schedule O) $12,739 15.6%
Fees to independent contractors $2,600 3.2%
Printing, publications, postage $1,261 1.5%
Total$81,600100%

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2010 · Form 990EZ · $108,356 spent · pay $0 · grants $65,000 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $65,000 60.0%
Other expenses (detail on Schedule O) $39,610 36.6%
Fees to independent contractors $2,500 2.3%
Printing, publications, postage $1,246 1.1%
Total$108,356100%

View the filing

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