SHWACHMAN DIAMOND SYNDROME FOUNDATION INC: Form 990EZ, tax year 2012
View the entire original 990 at ProPublica ↗
- Organization
- SHWACHMAN DIAMOND SYNDROME FOUNDATION INC (EIN 43-1709945)
- Tax period
- 2012-01-01 to 2012-12-31
- Filed
- 2013-06-18
- IRS object ID
- 201301699349200615
- Schema version
- 2012v2.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2013-06-18T11:47:43-07:00 | Timestamp |
| Tax Period End Date | 2012-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | STOKES VISCA AND CO LLP CPAS | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 29 GOODWAY DR | AddressLine1 |
| City | ROCHESTER | City |
| State | NY | State |
| ZIP Code | 146233029 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990EZ | ReturnType |
| Tax Period Begin Date | 2012-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 431709945 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SHWACHMAN-DIAMOND SYNDROME FOUNDATION I | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | SHWA | NameControl |
| Phone | 8777374685 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 127 WESTERN AVENUE | AddressLine1 |
| City | SHERBORN | City |
| State | MA | State |
| ZIP Code | 01770 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | BLAIR VAN BRUNT | Name |
| Title | President | Title |
| Date Signed | 2013-06-18 | DateSigned |
| Authorize Third Party | true | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | STEPHEN R STOKES CPA | Name |
| PTIN | P01243868 | PTIN |
| Phone | 5854270850 | Phone |
| Self Employed | X | SelfEmployed |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2012 | TaxYear |
| Build TS | 2016-03-07 17:11:31Z | BuildTS |
Form 990-EZ IRS990EZ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Web Site | WWW.SHWACHMAN-DIAMOND.ORG | WebSite |
| Organization501c3 | X | Organization501c3 |
| Gross Receipts | 101558 | GrossReceipts |
| Info In Schedule O Part I | X | InfoInScheduleOPartI |
| Contributions Gifts Grants Etc | 101512 | ContributionsGiftsGrantsEtc |
| Investment Income | 46 | InvestmentIncome |
| Cost Other Basis And Sales Expenses | 0 | CostOtherBasisAndSalesExpenses |
| Fundraising Gross Income | 0 | FundraisingGrossIncome |
| Special Events Direct Expenses | 0 | SpecialEventsDirectExpenses |
| Cost Of Goods Sold | 0 | CostOfGoodsSold |
| Total Revenue | 101558 | TotalRevenue |
| Fees And Oth Pymt To Ind Contractors | 2600 | FeesAndOthPymtToIndContractors |
| Printing Publications Postage | 1203 | PrintingPublicationsPostage |
| Other Expenses Total | 29747 | OtherExpensesTotal |
| Total Expenses | 33550 | TotalExpenses |
| Excess Or Deficit For Year | 68008 | ExcessOrDeficitForYear |
| Net Assets Or Fund Balances BOY | 81708 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 149716 | NetAssetsOrFundBalancesEOY |
| Info In Schedule O Part II | X | InfoInScheduleOPartII |
Cash Savings And Investments CashSavingsAndInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 85664 | BOY |
| EOY | 150205 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 85664 | BOY |
| EOY | 150205 | EOY |
Sum Of Total Liabilities SumOfTotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3956 | BOY |
| EOY | 489 | EOY |
Net Assets Or Fund Balances NetAssetsOrFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 81708 | BOY |
| EOY | 149716 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Primary Exempt Purpose | AWARENESS AND CURE OF RARE DISEASE | PrimaryExemptPurpose |
Program Service Accomplishment ProgramServiceAccomplishment (3 entries)
| Description Program Service AccomDescriptionProgramServiceAccom | Grants And AllocationsGrantsAndAllocations |
|---|---|
| PUBLISHED NEWSLETTERS AND PUBLIC SERVICE ANNOUNCEMENTS AND GAVE FAMILY SUPPORT TO KEEP PUBLIC AWARENESS OF THE DISEASE. | 25622 |
| SPONSORED AND CONDUCTED VARIOUS EDUCATIONAL CONFERENCES ABOUT SHWACHMAN-DIAMOND SYNDROME | 2992 |
| PROVIDED RESEARCH GRANTS FOR THE STUDY OF THE RARE DISEASE SHWACHMAN-DIAMOND SYNDROME |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | 28614 | TotalProgramServiceExpenses |
Officer Director Trustee Key Empl OfficerDirectorTrusteeKeyEmpl (6 entries)
| TitleTitle | Avg Hours Per Wk Devoted To PositionAvgHoursPerWkDevotedToPosition | CompensationCompensation |
|---|---|---|
| CHRISTINE JAMES | ||
| FAMILY LIASON | 5.00 | 0 |
| BRYAN SAMPLE | ||
| Treasurer | 2.00 | 0 |
| SUE MATTHIESEN | ||
| Vice President | 5.00 | 0 |
| ED BICKEL | ||
| SPECIAL PROGRAM | 2.00 | 0 |
| BLAIR VAN BRUNT | ||
| ACTING PRESIDEN | 5.00 | 0 |
| DONNA GARFIELD | ||
| Secretary | 2.00 | 0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part V | X | InfoInScheduleOPartV |
| Activities Not Previously Rpt | false | ActivitiesNotPreviouslyRpt |
| Made Changes To Orgnzng Etc Doc | false | MadeChangesToOrgnzngEtcDoc |
| Organization Had UBI | false | OrganizationHadUBI |
| Organization Filed990 T | false | OrganizationFiled990T |
| Subject To Proxy Tax | false | SubjectToProxyTax |
| Organization Dissolved Etc | false | OrganizationDissolvedEtc |
| Did Org File Form1120 POL This Year | false | DidOrgFileForm1120POLThisYear |
| Made Loans To From Officers | false | MadeLoansToFromOfficers |
| Initiation Fees And Capital Contri | 0 | InitiationFeesAndCapitalContri |
| Gross Receipts For Public Use | 0 | GrossReceiptsForPublicUse |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTrans |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTrans |
The Books Are In Care Of TheBooksAreInCareOf
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Person | SUSAN MATTHIESEN | NamePerson |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 11 SAWIN ST | AddressLine1 |
| City | SHERBORN | City |
| State | MA | State |
| ZIP Code | 01770 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Telephone Number | 5087356591 | TelephoneNumber |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Foreign Financial Account | false | ForeignFinancialAccount |
| Foreign Office | false | ForeignOffice |
| Maintain Any Donor Advised Funds | false | MaintainAnyDonorAdvisedFunds |
| Does Org Have Hospital | false | DoesOrgHaveHospital |
| Tanning Services Provided | false | TanningServicesProvided |
| Form720 Filed | false | Form720Filed |
| Related Org Controlled Entity | false | RelatedOrgControlledEntity |
| Transaction With Control Entity | false | TransactionWithControlEntity |
| Engage Political Cmpgn Activities | false | EngagePoliticalCmpgnActivities |
| Engage In Lobbying Activities | false | EngageInLobbyingActivities |
| Operating School | false | OperatingSchool |
| Trnsfrs Exempt Non Char Related Org | false | TrnsfrsExemptNonCharRelatedOrg |
| Related Org Section527 Org | false | RelatedOrgSection527Org |
| Part VI Of Comp Of Highest Paid Empl | NONE | PartVIOfCompOfHighestPaidEmpl |
| Part VIA Hghst Paid Cntrct Prof Ser | NONE | PartVIAHghstPaidCntrctProfSer |
| Filed Schedule A | true | FiledScheduleA |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 99419 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 66888 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 74270 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 51091 | CurrentTaxYearMinus1Year |
| Current Tax Year | 101512 | CurrentTaxYear |
| Total | 393180 | Total |
Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 99419 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 66888 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 74270 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 51091 | CurrentTaxYearMinus1Year |
| Current Tax Year | 101512 | CurrentTaxYear |
| Total | 393180 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 0 | AmountsSubstContributorsTotal |
| Public Support Total170 | 393180 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 2183 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 749 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 297 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 434 | CurrentTaxYearMinus1Year |
| Current Tax Year | 46 | CurrentTaxYear |
| Total | 3709 | Total |
Net UBI NetUBI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Other Income170 OtherIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 396889 | TotalSupport |
| Public Support Pertcentage170 | 0.99070 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.98260 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (16 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| Form 990-EZ, Part II, Line 26.1001 | Total Liabilities.1001 | Accounts Payable and Accrued Expenses - Beginning $3956 Accounts Payable and Accrued Expenses - Ending $489 |
| Form 990-EZ, Part I, Line 16.14 | Other Expenses.14 | BANK CHARGES $19 |
| Form 990-EZ, Part I, Line 16.13 | Other Expenses.13 | MISCELLANEOUS $28 |
| Form 990-EZ, Part I, Line 16.12 | Other Expenses.12 | MEMBERSHIP DUES $50 |
| Form 990-EZ, Part I, Line 16.11 | Other Expenses.11 | ADVERTISING $59 |
| Form 990-EZ, Part I, Line 16.10 | Other Expenses.10 | WEB DESIGN $215 |
| Form 990-EZ, Part I, Line 16.9 | Other Expenses.9 | GIFT $295 |
| Form 990-EZ, Part I, Line 16.8 | Other Expenses.8 | FAMILY SUPPORT $334 |
| Form 990-EZ, Part I, Line 16.7 | Other Expenses.7 | WEBSITE MAINT $510 |
| Form 990-EZ, Part I, Line 16.6 | Other Expenses.6 | RESEARCH - REGISTRY $1041 |
| Form 990-EZ, Part I, Line 16.4 | Other Expenses.4 | TELEPHONE $1228 |
| Form 990-EZ, Part I, Line 16.3 | Other Expenses.3 | CONTRACT SERVICES $1743 |
| Form 990-EZ, Part I, Line 16.2 | Other Expenses.2 | COGS-SUPPLIES $4240 |
| Form 990-EZ, Part I, Line 16.1 | Other Expenses.1 | CAMP SUNSHINE $17699 |
| Form 990-EZ, Part I, Line 16.1007 | Other Expenses.1007 | Conferences, Conventions, and Meetings $1950 |
| Form 990-EZ, Part I, Line 16.1002 | Other Expenses.1002 | Office Expenses $336 |
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