2013-06-18T11:47:43-07:00 2012-12-31 STOKES VISCA AND CO LLP CPAS 29 GOODWAY DR ROCHESTER NY 146233029 990EZ 2012-01-01 431709945 SHWACHMAN-DIAMOND SYNDROME FOUNDATION I SHWA 8777374685 127 WESTERN AVENUE SHERBORN MA 01770 BLAIR VAN BRUNT 2013-06-18 true STEPHEN R STOKES CPA P01243868 5854270850 X 2012 2016-03-07 17:11:31Z X WWW.SHWACHMAN-DIAMOND.ORG X 101558 X 101512 46 0 0 0 0 101558 2600 1203 29747 33550 68008 81708 149716 X 85664 150205 85664 150205 3956 489 81708 149716 AWARENESS AND CURE OF RARE DISEASE PUBLISHED NEWSLETTERS AND PUBLIC SERVICE ANNOUNCEMENTS AND GAVE FAMILY SUPPORT TO KEEP PUBLIC AWARENESS OF THE DISEASE. 25622 SPONSORED AND CONDUCTED VARIOUS EDUCATIONAL CONFERENCES ABOUT SHWACHMAN-DIAMOND SYNDROME 2992 PROVIDED RESEARCH GRANTS FOR THE STUDY OF THE RARE DISEASE SHWACHMAN-DIAMOND SYNDROME 28614 CHRISTINE JAMES 5.00 0 BRYAN SAMPLE 2.00 0 SUE MATTHIESEN 5.00 0 ED BICKEL 2.00 0 BLAIR VAN BRUNT 5.00 0 DONNA GARFIELD 2.00 0 X false false false false false false false false 0 0 false false SUSAN MATTHIESEN 11 SAWIN ST SHERBORN MA 01770 5087356591 false false false false false false false false false false false false false NONE NONE true X 99419 66888 74270 51091 101512 393180 0 0 99419 66888 74270 51091 101512 393180 0 393180 2183 749 297 434 46 3709 0 0 396889 0.99070 0.98260 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part II, Line 26.1001 Total Liabilities.1001 Accounts Payable and Accrued Expenses - Beginning $3956 Accounts Payable and Accrued Expenses - Ending $489 Form 990-EZ, Part I, Line 16.14 Other Expenses.14 BANK CHARGES $19 Form 990-EZ, Part I, Line 16.13 Other Expenses.13 MISCELLANEOUS $28 Form 990-EZ, Part I, Line 16.12 Other Expenses.12 MEMBERSHIP DUES $50 Form 990-EZ, Part I, Line 16.11 Other Expenses.11 ADVERTISING $59 Form 990-EZ, Part I, Line 16.10 Other Expenses.10 WEB DESIGN $215 Form 990-EZ, Part I, Line 16.9 Other Expenses.9 GIFT $295 Form 990-EZ, Part I, Line 16.8 Other Expenses.8 FAMILY SUPPORT $334 Form 990-EZ, Part I, Line 16.7 Other Expenses.7 WEBSITE MAINT $510 Form 990-EZ, Part I, Line 16.6 Other Expenses.6 RESEARCH - REGISTRY $1041 Form 990-EZ, Part I, Line 16.4 Other Expenses.4 TELEPHONE $1228 Form 990-EZ, Part I, Line 16.3 Other Expenses.3 CONTRACT SERVICES $1743 Form 990-EZ, Part I, Line 16.2 Other Expenses.2 COGS-SUPPLIES $4240 Form 990-EZ, Part I, Line 16.1 Other Expenses.1 CAMP SUNSHINE $17699 Form 990-EZ, Part I, Line 16.1007 Other Expenses.1007 Conferences, Conventions, and Meetings $1950 Form 990-EZ, Part I, Line 16.1002 Other Expenses.1002 Office Expenses $336