FAMILIES OF SMA
Cite this
Plain text FAMILIES OF SMA. furp.org, nonprofit organization profile, tax years 2011–2024. https://furp.org/org/families-of-sma-363320440. Retrieved 2026-11-03.
APA furp.org. (n.d.). FAMILIES OF SMA [Nonprofit organization profile; tax years 2011–2024]. Retrieved November 3, 2026, from https://furp.org/org/families-of-sma-363320440
MLA “FAMILIES OF SMA.” furp.org, tax years 2011–2024, https://furp.org/org/families-of-sma-363320440. Accessed 3 Nov. 2026.
Retrieved 2026-11-03; covers tax years 2011–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $15.2M · expenses $14.0M · assets $10.6M
- Also known as
- CURE SMA
- EIN
- 36-3320440
- Address
- 925 BUSSE RD, ELK GROVE VLG, IL 60007-2400
- Website
- WWW.CURESMA.ORG
- NTEE code
- G110
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- February 1985 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
OUR MISSION IS TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
22 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Kenneth Hobby | PRESIDENT | 2011-2024 | $348,806 | $3,441,423 | 1 |
| Mary Schroth | CHIEF MEDICAL OFFICER (THROUGH 3/31/25) | 2018-2024 | $228,544 | $1,835,615 | 1 |
| Marline Pagan | CHIEF OPERATING OFFICER | 2017-2024 | $239,457 | $1,521,228 | 1 |
| Colleen Mccarthy O'Toole | SR VICE PRESIDENT, COMMUNI | 2017-2024 | $202,496 | $1,357,873 | 1 |
| Maynard Friesz | VICE PRESIDENT, POLICY | 2020-2024 | $163,143 | $736,557 | 1 |
| Jamie Gibson | CHIEF DEVELOPMENT OFFICER | 2023-2024 | $294,579 | $444,224 | 1 |
| Jackie Glascock | VICE PRESIDENT OF RESEARCH | 2022-2024 | $153,657 | $432,764 | 1 |
| Mary Curry | VICE PRESIDENT, CLINICAL RESEARCH & CARE | 2024 | $158,715 | $158,715 | 1 |
| Jesse Aynes | VICE PRESIDENT OF DEVELOPMENT | 2024 | $145,118 | $145,118 | 1 |
| Jill Jarecki (former) | CHIEF SCIENTIFIC OFFICER | 2011-2021 | $178,613 | $1,836,476 | 1 |
| Rosangel Cruz (former) | SR. DIRECTOR CLINICAL TRIALS | 2017-2019 | $129,306 | $381,783 | 1 |
| Susan Kovach (former) | FINANCE & ADMIN. DIRECTOR | 2014-2016 | $115,624 | $353,754 | 1 |
| Erin Oganesian (former) | VP, DEVELOPMENT | 2020-2021 | $152,185 | $307,185 | 1 |
| Pamela Swenk (former) | CHIEF OF STAFF OFFICER | 2021-2022 | $126,007 | $293,573 | 1 |
| Erin Kelly (former) | VP, DEVELOPMENT | 2018-2019 | $136,021 | $270,310 | 1 |
| Amy Thomasson (former) | VICE PRESIDENT, MARKETING & COMMUNICATION (THROUGH | 2023 | $151,602 | $151,602 | 1 |
| Nancy Mcinroy (former) | DEVELOPMENT DIRECTOR | 2011 | $134,231 | $134,231 | 1 |
| Teresa Stewart (former) | DIRECTOR OF CLINICAL CARE OPS | 2019 | $131,696 | $131,696 | 1 |
| Michelle Castle (former) | VICE PRESIDENT OF COMPLIANCE DEVELOPMENT | 2022 | $127,470 | $127,470 | 1 |
| Theodore Wachholz (former) | OPERATIONS/FINANCE DIRECTO | 2013 | $122,586 | $122,586 | 1 |
| Leslie Humbel (former) | SR. DIRECTOR MARKETING & COMMUNICATION | 2020 | $115,127 | $115,127 | 1 |
| Amber Ewert Snyder (former) | SR. DIRECTOR DATABASE MGMT | 2021 | $111,944 | $111,944 | 1 |
Officers and directors, no compensation reported
56 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Robert Graham | DIRECTOR | 2018-2024 | 2 | $0 reported | 1 |
| Peter Statile | DIRECTOR | 2017-2024 | 2 | $0 reported | 1 |
| Mark Moore | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Marc Ginsky | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Karen Mcroy-Negrin | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Bakri Elsheikh | DIRECTOR | 2022-2024 | 2 | $0 reported | 1 |
| Joe Wiseman | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Rob Lockwood | DIRECTOR | 2017-2024 | 2 | $0 reported | 1 |
| Kelly Jankowski | DIRECTOR | 2018-2024 | 2 | $0 reported | 1 |
| Amy Medina | DIRECTOR | 2018-2024 | 2 | $0 reported | 1 |
| Gillian Mullins | DIRECTOR (THROUGH 12/31/24) | 2017-2024 | 2 | $0 reported | 1 |
| Edmund Lee | DIRECTOR (THROUGH 12/31/24) | 2017-2024 | 2 | $0 reported | 1 |
| Diana Castro | DIRECTOR | 2022-2024 | 2 | $0 reported | 1 |
| Brian Snyder | DIRECTOR | 2018-2024 | 2 | $0 reported | 1 |
| Brianna Gross | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Jaclyn Greenwood | DIRECTOR | 2017-2024 | 2 | $0 reported | 1 |
| Corey Braastad | DIRECTOR | 2013-2024 | 2 | $0 reported | 1 |
| Allyson Henkel | DIRECTOR | 2018-2024 | 2 | $0 reported | 1 |
| Collin Pollock | DIRECTOR (START 4/26/25) | 2024 | 2 | $0 reported | 1 |
| Rachel Brown | DIRECTOR (START 4/26/25) | 2024 | 2 | $0 reported | 1 |
| Tyler Dukes | DIRECTOR (START 4/26/25) | 2024 | 2 | $0 reported | 1 |
| Kaleen Robinson | DIRECTOR | 2022-2024 | 2 | $0 reported | 1 |
| Spencer Perlman | DIRECTOR | 2015-2024 | 2 | $0 reported | 1 |
| Nick Farrell | BOARD CHAIR | 2017-2024 | 5 | $0 reported | 1 |
| Bradley A Nunemaker | TREASURER & VICE CHAIR | 2024 | 5 | $0 reported | 1 |
| Shannon Zerzan | DIRECTOR | 2018-2024 | 5 | $0 reported | 1 |
| John Weber | DIRECTOR (START 10/1/2024) | 2024 | 2 | $0 reported | 1 |
| Brad Nunemaker (former) | TREASURER & VICE CHAIR | 2011-2023 | 5 | $0 reported | 1 |
| Tom Murray (former) | DIRECTOR (THROUGH 12/31/23) | 2020-2023 | 2 | $0 reported | 1 |
| Annie Kennedy (former) | DIRECTOR (THROUGH 12/31/22) | 2015-2022 | 2 | $0 reported | 1 |
| Kelly Cole (former) | DIRECTOR (THROUGH 3/7/23) | 2016-2022 | 2 | $0 reported | 1 |
| Shannon Shryne (former) | DIRECTOR (THROUGH 12/31/22) | 2016-2022 | 2 | $0 reported | 1 |
| Matt Evans (former) | DIRECTOR (THROUGH 3/15/22) | 2017-2021 | 4 | $0 reported | 1 |
| Brain Snyder (former) | DIRECTOR | 2020 | 2 | $0 reported | 1 |
| Douglas Kerr (former) | DIRECTOR (THROUGH 7/25/20) | 2016-2020 | 2 | $0 reported | 1 |
| Richard M Rubenstein (former) | BOARD CHAIR (THROUGH 7/25/20) | 2011-2020 | 15 | $0 reported | 1 |
| Thomas Murray (former) | DIRECTOR | 2016-2019 | 2 | $0 reported | 1 |
| Danyelle Sun (former) | DIRECTOR (THROUGH MAY 2019) | 2017-2018 | 2 | $0 reported | 1 |
| Melissa Milinovich (former) | DIRECTOR | 2011-2017 | 2 | $0 reported | 1 |
| Bryan Snyder (former) | DIRECTOR | 2017 | 2 | $0 reported | 1 |
| Greg Zerzan (former) | DIRECTOR | 2013-2017 | 2 | $0 reported | 1 |
| Douglas Ervin (former) | DIRECTOR (THROUGH JUNE 2017) | 2017 | 2 | $0 reported | 1 |
| Steve Ragland (former) | DIRECTOR (THROUGH JUNE 2017) | 2011-2017 | 2 | $0 reported | 1 |
| John Porter (former) | DIRECTOR (THROUGH JUNE 2017) | 2015-2017 | 2 | $0 reported | 1 |
| Douglas Erwin (former) | DIRECTOR | 2011-2016 | 2 | $0 reported | 1 |
| Robert Lockwood (former) | DIRECTOR | 2011-2016 | 2 | $0 reported | 1 |
| Rocco Arizzi (former) | DIRECTOR | 2011-2015 | 2 | $0 reported | 1 |
| Justin Kuester (former) | DIRECTOR | 2011-2015 | 2 | $0 reported | 1 |
| Adi Rappoport (former) | DIRECTOR | 2011-2015 | 2 | $0 reported | 1 |
| Barb Trainor (former) | DIRECTOR | 2011-2015 | 2 | $0 reported | 1 |
| Natalie Gibbs (former) | DIRECTOR | 2011-2013 | 2 | $0 reported | 1 |
| Mary Mchale (former) | DIRECTOR | 2011-2013 | 2 | $0 reported | 1 |
| Paula Barrett (former) | BOARD CHAIR | 2011-2012 | 12 | $0 reported | 1 |
| Jeff Andrade (former) | DIRECTOR | 2011 | 2 | $0 reported | 1 |
| Amy Marquez (former) | DIRECTOR | 2011 | 2 | $0 reported | 1 |
| James Gaudreau (former) | DIRECTOR | 2011 | 2 | $0 reported | 1 |
People by year
2024 · 36 people listed · 9 paid, $1.9M · 53 employees · 6,800 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $329,195 | $0 | $19,611 | $348,806 | 1 |
| JAMIE GIBSON | CHIEF DEVELOPMENT OFFICER | 60 | $266,038 | $0 | $28,541 | $294,579 | 1 |
| MARLINE PAGAN | CHIEF OPERATING OFFICER | 60 | $208,905 | $0 | $30,552 | $239,457 | 1 |
| MARY SCHROTH | CHIEF MEDICAL OFFICER (THROUGH 3/31/25) | 60 | $218,342 | $0 | $10,202 | $228,544 | 1 |
| COLLEEN MCCARTHY O'TOOLE | SR VICE PRESIDENT, COMMUNI | 60 | $175,435 | $0 | $27,061 | $202,496 | 1 |
| MAYNARD FRIESZ | VICE PRESIDENT, POLICY | 50 | $149,595 | $0 | $13,548 | $163,143 | 1 |
| MARY CURRY | VICE PRESIDENT, CLINICAL RESEARCH & CARE | 50 | $138,474 | $0 | $20,241 | $158,715 | 1 |
| JACKIE GLASCOCK | VICE PRESIDENT OF RESEARCH | 50 | $146,346 | $0 | $7,311 | $153,657 | 1 |
| JESSE AYNES | VICE PRESIDENT OF DEVELOPMENT | 50 | $135,299 | $0 | $9,819 | $145,118 | 1 |
| ROBERT GRAHAM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK MOORE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARC GINSKY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KAREN MCROY-NEGRIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BAKRI ELSHEIKH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE WISEMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY JANKOWSKI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MEDINA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | DIRECTOR (THROUGH 12/31/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR (THROUGH 12/31/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| DIANA CASTRO | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIANNA GROSS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ALLYSON HENKEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COLLIN POLLOCK | DIRECTOR (START 4/26/25) | 2 | $0 | $0 | $0 | $0 | 1 |
| RACHEL BROWN | DIRECTOR (START 4/26/25) | 2 | $0 | $0 | $0 | $0 | 1 |
| TYLER DUKES | DIRECTOR (START 4/26/25) | 2 | $0 | $0 | $0 | $0 | 1 |
| KALEEN ROBINSON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | BOARD CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| BRADLEY A NUNEMAKER | TREASURER & VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| SHANNON ZERZAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| JOHN WEBER | DIRECTOR (START 10/1/2024) | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 32 people listed · 8 paid, $1.7M · 56 employees · 6,800 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $338,969 | $0 | $19,102 | $358,071 | 1 |
| MARY SCHROTH | CHIEF MEDICAL OFFICER | 60 | $280,222 | $0 | $19,442 | $299,664 | 1 |
| MARLINE PAGAN | CHIEF OPERATING OFFICER | 60 | $223,535 | $0 | $28,697 | $252,232 | 1 |
| COLLEEN MCCARTHY O'TOOLE | SR VICE PRESIDENT, COMMUNI | 60 | $176,138 | $0 | $26,598 | $202,736 | 1 |
| MAYNARD FRIESZ | VICE PRESIDENT, POLICY | 50 | $145,434 | $0 | $17,927 | $163,361 | 1 |
| AMY THOMASSON | VICE PRESIDENT, MARKETING & COMMUNICATION (THROUGH | 50 | $147,429 | $0 | $4,173 | $151,602 | 1 |
| JACKIE GLASCOCK | VICE PRESIDENT OF RESEARCH | 40 | $143,876 | $0 | $6,919 | $150,795 | 1 |
| JAMIE GIBSON | CHIEF DEVELOPMENT OFFICER | 40 | $142,692 | $0 | $6,953 | $149,645 | 1 |
| ALLYSON HENKEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MEDINA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BAKRI ELSHEIKH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER & VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| BRIAN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIANNA GROSS | DIRECTOR (START 1/1/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DIANA CASTRO | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE WISEMAN | DIRECTOR (START 4/20/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| KALEEN ROBINSON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KAREN MCROY-NEGRIN | DIRECTOR (START 1/1/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY JANKOWSKI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARC GINSKY | DIRECTOR (START 4/20/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK MOORE | DIRECTOR (START 4/20/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | BOARD CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GRAHAM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM MURRAY | DIRECTOR (THROUGH 12/31/23) | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 30 people listed · 8 paid, $1.5M · 57 employees · 6,600 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $326,805 | $0 | $18,346 | $345,151 | 1 |
| MARY SCHROTH | CHIEF MEDICAL OFFICER | 60 | $258,991 | $0 | $18,238 | $277,229 | 1 |
| MARLINE PAGAN | CHIEF OPERATING OFFICER | 60 | $191,950 | $0 | $26,679 | $218,629 | 1 |
| COLLEEN MCCARTHY O'TOOLE | SR VICE PRESIDENT, COMMUNITY SUPPORT | 60 | $146,384 | $0 | $24,881 | $171,265 | 1 |
| MAYNARD FRIESZ | VICE PRESIDENT, POLICY & A | 50 | $128,810 | $0 | $17,650 | $146,460 | 1 |
| JACKIE GLASCOCK | VICE PRESIDENT OF RESEARCH | 40 | $122,504 | $0 | $5,808 | $128,312 | 1 |
| MICHELLE CASTLE | VICE PRESIDENT OF COMPLIANCE DEVELOPMENT | 40 | $120,327 | $0 | $7,143 | $127,470 | 1 |
| PAMELA SWENK | CHIEF OF STAFF OFFICER | 40 | $117,371 | $0 | $8,636 | $126,007 | 1 |
| ALLYSON HENKEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MEDINA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR (THROUGH 12/31/22) | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY COLE | DIRECTOR (THROUGH 3/7/23) | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY JANKOWSKI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GRAHAM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON SHRYNE | DIRECTOR (THROUGH 12/31/22) | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM MURRAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BAKRI ELSHEIKH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DIANA CASTRO | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KALEEN ROBINSON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 29 people listed · 9 paid, $1.7M · 61 employees · 6,400 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $312,639 | $0 | $17,387 | $330,026 | 1 |
| MARY SCHROTH | CHIEF MEDICAL OFFICER | 60 | $259,537 | $0 | $17,781 | $277,318 | 1 |
| MARLINE PAGAN | VICE PRESIDENT, FINANCE | 60 | $168,795 | $0 | $23,733 | $192,528 | 1 |
| JILL JARECKI | CHIEF SCIENTIFIC OFFICER | 60 | $169,943 | $0 | $8,670 | $178,613 | 1 |
| COLLEEN MCCARTHY O'TOOLE | VICE PRESIDENT, FAMILY SUPPORT | 60 | $149,198 | $0 | $23,654 | $172,852 | 1 |
| PAMELA SWENK | CHIEF OF STAFF OFFICER | 60 | $149,272 | $0 | $18,294 | $167,566 | 1 |
| ERIN OGANESIAN | VP, DEVELOPMENT | 50 | $135,108 | $0 | $17,077 | $152,185 | 1 |
| MAYNARD FRIESZ | VICE PRESIDENT, POLICY & A | 50 | $115,409 | $0 | $16,173 | $131,582 | 1 |
| AMBER EWERT SNYDER | SR. DIRECTOR DATABASE MGMT | 45 | $102,227 | $0 | $9,717 | $111,944 | 1 |
| ALLYSON HENKEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MEDINA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY COLE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY JANKOWSKI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT EVANS | DIRECTOR (THROUGH 3/15/22) | 4 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GRAHAM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON SHRYNE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM MURRAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2020 · 30 people listed · 8 paid, $1.6M · 47 employees · 6,400 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $327,678 | $0 | $16,980 | $344,658 | 1 |
| MARY SCHROTH | CHIEF MEDICAL OFFICER | 60 | $267,118 | $0 | $17,077 | $284,195 | 1 |
| JILL JARECKI | CHIEF SCIENTIFIC OFFICER | 60 | $237,250 | $0 | $10,655 | $247,905 | 1 |
| MARLINE PAGAN | VICE PRESIDENT, FINANCE | 60 | $156,705 | $0 | $22,733 | $179,438 | 1 |
| COLLEEN MCCARTHY O'TOOLE | VICE PRESIDENT, FAMILY SUPPORT | 60 | $153,136 | $0 | $22,439 | $175,575 | 1 |
| ERIN OGANESIAN | VP, DEVELOPMENT | 50 | $142,727 | $0 | $12,273 | $155,000 | 1 |
| MAYNARD FRIESZ | VICE PRESIDENT, POLICY & ADVOCACY | 50 | $116,870 | $0 | $15,141 | $132,011 | 1 |
| LESLIE HUMBEL | SR. DIRECTOR MARKETING & COMMUNICATION | 45 | $110,315 | $0 | $4,812 | $115,127 | 1 |
| ALLYSON HENKEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MEDINA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAIN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS KERR | DIRECTOR (THROUGH 7/25/20) | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY COLE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY JANKOWSKI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT EVANS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD M RUBENSTEIN | BOARD CHAIR (THROUGH 7/25/20) | 15 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GRAHAM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON SHRYNE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM MURRAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2019 · 30 people listed · 8 paid, $1.4M · 59 employees · 6,400 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $264,563 | $0 | $17,160 | $281,723 | 1 |
| MARY SCHROTH | CHIEF MEDICAL OFFICER | 60 | $229,801 | $0 | $15,213 | $245,014 | 1 |
| JILL JARECKI | CHIEF SCIENTIFIC OFFICER | 60 | $199,302 | $0 | $9,311 | $208,613 | 1 |
| MARLINE PAGAN | VICE PRESIDENT, FINANCE & | 60 | $141,012 | $0 | $22,394 | $163,406 | 1 |
| COLLEEN MCCARTHY O'TOOLE | VICE PRESIDENT, EVENTS & F | 60 | $132,186 | $0 | $21,900 | $154,086 | 1 |
| ERIN KELLY | VP, DEVELOPMENT | 45 | $129,216 | $0 | $6,805 | $136,021 | 1 |
| TERESA STEWART | DIRECTOR OF CLINICAL CARE OPS | 45 | $120,876 | $0 | $10,820 | $131,696 | 1 |
| ROSANGEL CRUZ | SR. DIRECTOR CLINICAL TRIALS | 45 | $118,524 | $0 | $10,782 | $129,306 | 1 |
| RICHARD M RUBENSTEIN | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | VICE CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY COLE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT EVANS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS KERR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| THOMAS MURRAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON SHRYNE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY JANKOWSKI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GRAHAM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ALLYSON HENKEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MEDINA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2018 · 30 people listed · 7 paid, $1.3M · 50 employees · 7,100 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $231,320 | $0 | $23,892 | $255,212 | 1 |
| MARY SCHROTH | CHIEF MEDICAL OFFICER | 45 | $209,709 | $0 | $13,942 | $223,651 | 1 |
| JILL JARECKI | CHIEF SCIENTIFIC OFFICER | 60 | $194,644 | $0 | $9,149 | $203,793 | 1 |
| MARLINE PAGAN | VICE PRESIDENT, FINANCE & OPPERATIONS | 60 | $138,866 | $0 | $21,575 | $160,441 | 1 |
| COLLEEN MCCARTHY O'TOOLE | VICE PRESIDENT, EVENTS & FAMILY SUPPORT | 60 | $122,528 | $0 | $22,012 | $144,540 | 1 |
| ERIN KELLY | VP, DEVELOPMENT | 45 | $128,054 | $0 | $6,235 | $134,289 | 1 |
| ROSANGEL CRUZ | DIRECTOR OF CLINICAL AFFAIRS | 45 | $117,918 | $0 | $10,840 | $128,758 | 1 |
| RICHARD M RUBENSTEIN | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | VICE CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY COLE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT EVANS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS KERR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| THOMAS MURRAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON SHRYNE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KELLY JANKOWSKI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GRAHAM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ALLYSON HENKEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MEDINA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DANYELLE SUN | DIRECTOR (THROUGH MAY 2019) | 2 | $0 | $0 | $0 | $0 | 1 |
2017 · 28 people listed · 5 paid, $783K · 42 employees · 6,950 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $184,965 | $0 | $32,044 | $217,009 | 1 |
| JILL JARECKI | CHIEF SCIENTIFIC OFFICER | 60 | $185,457 | $0 | $7,714 | $193,171 | 1 |
| COLLEEN MCCARTHY O'TOOLE | VICE PRESIDENT, EVENTS & FAMILY SUPPORT | 60 | $113,477 | $0 | $20,846 | $134,323 | 1 |
| ROSANGEL CRUZ | DIRECTOR OF CLINICAL AFFAIRS | 45 | $111,019 | $0 | $12,700 | $123,719 | 1 |
| MARLINE PAGAN | VICE PRESIDENT, FINANCE & OPERATIONS | 60 | $103,191 | $0 | $11,906 | $115,097 | 1 |
| RICHARD M RUBENSTEIN | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| KELLY COLE | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT EVANS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| NICK FARRELL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JACLYN GREENWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EDMUND LEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GILLIAN MULLINS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS KERR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MELISSA MILINOVICH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| THOMAS MURRAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON SHRYNE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRYAN SNYDER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DANYELLE SUN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PETER STATILE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GREG ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS ERVIN | DIRECTOR (THROUGH JUNE 2017) | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVE RAGLAND | DIRECTOR (THROUGH JUNE 2017) | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN PORTER | DIRECTOR (THROUGH JUNE 2017) | 2 | $0 | $0 | $0 | $0 | 1 |
2016 · 18 people listed · 3 paid, $485K · 32 employees · 6,600 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $182,099 | $0 | $14,664 | $196,763 | 1 |
| JILL JARECKI | RESEARCH DIRECTOR | 50 | $171,689 | $0 | $628 | $172,317 | 1 |
| SUSAN KOVACH | FINANCE & ADMIN. DIRECTOR | 60 | $114,996 | $0 | $628 | $115,624 | 1 |
| RICHARD RUBENSTEIN | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| KELLY COLE | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS KERR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS ERWIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| THOMAS MURRAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MELISSA MILINOVICH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVE RAGLAND | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHANNON SHRYNE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GREG ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN PORTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2015 · 18 people listed · 3 paid, $438K · 23 employees · 5,750 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $147,104 | $0 | $16,827 | $163,931 | 1 |
| JILL JARECKI | RESEARCH DIRECTOR | 50 | $137,056 | $0 | $3,733 | $140,789 | 1 |
| SUSAN KOVACH | FINANCE & ADMINISTRATION DIRECTOR | 60 | $130,000 | $0 | $3,733 | $133,733 | 1 |
| RICHARD RUBENSTEIN | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| ROBERT LOCKWOOD | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| ROCCO ARIZZI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS ERWIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN KUESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MELISSA MILINOVICH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVE RAGLAND | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ADI RAPPOPORT | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BARB TRAINOR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GREG ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNIE KENNEDY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SPENCER PERLMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN PORTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2014 · 15 people listed · 3 paid, $384K · 22 employees · 5,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $138,022 | $0 | $9,955 | $147,977 | 1 |
| JILL JARECKI | RESEARCH DIRECTOR | 50 | $131,421 | $0 | $84 | $131,505 | 1 |
| SUSAN KOVACH | FINANCE & ADMINISTRATION DIRECTOR | 60 | $104,327 | $0 | $70 | $104,397 | 1 |
| RICHARD RUBENSTEIN | BOARD CHAIR | 15 | $0 | $0 | $0 | $0 | 1 |
| ROBERT LOCKWOOD | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| ROCCO ARIZZI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS ERWIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN KUESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MELISSA MILINOVICH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVE RAGLAND | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ADI RAPPOPORT | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BARB TRAINOR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GREG ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2013 · 17 people listed · 3 paid, $402K · 18 employees · 5,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $145,167 | $0 | $8,229 | $153,396 | 1 |
| JILL JARECKI | RESEARCH DIRECTOR | 70 | $125,745 | $0 | $84 | $125,829 | 1 |
| THEODORE WACHHOLZ | OPERATIONS/FINANCE DIRECTO | 50 | $116,230 | $0 | $6,356 | $122,586 | 1 |
| RICHARD RUBENSTEIN | BOARD CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| STEVE RAGLAND | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| ADI RAPPOPORT | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| NATALIE GIBBS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROCCO ARIZZI | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| MARY MCHALE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS ERWIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MELISSA MILINOVICH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN KUESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BARB TRAINOR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COREY BRAASTAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GREG ZERZAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2012 · 15 people listed · 2 paid, $271K · 20 employees · 5,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $146,682 | $0 | $3,318 | $150,000 | 1 |
| JILL JARECKI | RESEARCH DIRECTOR | 30 | $120,960 | $0 | $0 | $120,960 | 1 |
| PAULA BARRETT | BOARD CHAIR | 12 | $0 | $0 | $0 | $0 | 1 |
| STEVE RAGLAND | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD RUBENSTEIN | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| ADI RAPPOPORT | DIRECTOR | 6 | $0 | $0 | $0 | $0 | 1 |
| NATALIE GIBBS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROCCO ARIZZI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARY MCHALE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS ERWIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MELISSA MILINOVICH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN KUESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BARB TRAINOR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2011 · 19 people listed · 3 paid, $396K · 18 employees · 4,800 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENNETH HOBBY | PRESIDENT | 70 | $148,700 | $0 | $0 | $148,700 | 1 |
| NANCY MCINROY | DEVELOPMENT DIRECTOR | 40 | $130,231 | $0 | $4,000 | $134,231 | 1 |
| JILL JARECKI | RESEARCH DIRECTOR | 30 | $112,981 | $0 | $0 | $112,981 | 1 |
| PAULA BARRETT | BOARD CHAIR | 12 | $0 | $0 | $0 | $0 | 1 |
| ADI RAPPOPORT | DIRECTOR | 6 | $0 | $0 | $0 | $0 | 1 |
| NATALIE GIBBS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFF ANDRADE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROCCO ARIZZI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| AMY MARQUEZ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARY MCHALE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS ERWIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT LOCKWOOD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVE RAGLAND | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| MELISSA MILINOVICH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD RUBENSTEIN | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN KUESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JAMES GAUDREAU | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BARB TRAINOR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRAD NUNEMAKER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2022 · 2 contractors · $262K
| Name | Location | Service | Paid |
|---|---|---|---|
| WESTERN INSTITUTIONAL REVIEW BOARD INC | HARTFORD, CT | RESEARCH | $136,271 |
| FAEGRE DRINKER BIDDLE AND REATH LLP | PHILADELPHIA, PA | LEGAL | $126,030 |
2021 · 1 contractor · $196K
| Name | Location | Service | Paid |
|---|---|---|---|
| DRINKER BIDDLE AND REATH LLP | PHILADELPHIA, PA | LEGAL | $196,119 |
2020 · 1 contractor · $209K
| Name | Location | Service | Paid |
|---|---|---|---|
| DRINKER BIDDLE AND REATH LLP | PHILADELPHIA, PA | LEGAL | $208,839 |
2019 · 1 contractor · $139K
| Name | Location | Service | Paid |
|---|---|---|---|
| DRINKER BIDDLE AND REATH LLP | PHILADELPHIA, PA | LEGAL | $139,280 |
2018 · 1 contractor · $170K
| Name | Location | Service | Paid |
|---|---|---|---|
| DRINKER BIDDLE AND REATH LLP | WASHINGTON, DC | LEGAL | $169,805 |
2016 · 2 contractors · $389K
| Name | Location | Service | Paid |
|---|---|---|---|
| MCDERMOTT WILL & EMERY LLP | MENLO PART, CA | LEGAL SERVCIES | $257,062 |
| DRINKER BIDDLE & REATH LLP | WASHINGTON, DC | LEGAL AND LOBBYING SERVICES | $131,881 |
2015 · 2 contractors · $263K
| Name | Location | Service | Paid |
|---|---|---|---|
| MCDERMOTT WILL & EMERY LLP | MENLO PART, CA | LEGAL SERVCIES | $131,507 |
| DRINKER BIDDLE & REATH LLP | WASHINGTON, DC | LEGAL AND LOBBYING SERVICES | $131,355 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 9 grants to organizations · $1.8M
Listed grants add up to $1,802,574; the return's “grants paid” expense line says $2,564,862. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 28 grants to organizations · $1.5M
Listed grants add up to $1,539,076; the return's “grants paid” expense line says $2,062,306. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 30 grants to organizations · $2.4M
Listed grants add up to $2,372,768; the return's “grants paid” expense line says $3,121,518. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 29 grants to organizations · $2.3M
Listed grants add up to $2,269,318; the return's “grants paid” expense line says $2,854,589. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 24 grants to organizations · $2.2M
Listed grants add up to $2,164,839; the return's “grants paid” expense line says $2,609,834. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 26 grants to organizations · $2.0M
Listed grants add up to $2,043,880; the return's “grants paid” expense line says $2,656,514. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 29 grants to organizations · $2.8M
Listed grants add up to $2,800,792; the return's “grants paid” expense line says $3,840,655. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 25 grants to organizations · $2.4M
Listed grants add up to $2,364,627; the return's “grants paid” expense line says $2,583,429. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 5 grants to organizations · $592K
Listed grants add up to $592,500; the return's “grants paid” expense line says $977,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 9 grants to organizations · $1.5M
Listed grants add up to $1,474,000; the return's “grants paid” expense line says $1,219,840. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 12 grants to organizations · $1.6M
Listed grants add up to $1,644,999; the return's “grants paid” expense line says $1,339,999. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 10 grants to organizations · $1.0M
2012 · 15 grants to organizations · $1.2M
2011 · 14 grants to organizations · $816K
Listed grants add up to $816,283; the return's “grants paid” expense line says $1,027,417. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $15,213,970 | $14,019,399 | $10,645,251 | $7,422,489 | $7,673,243 | $6,912,298 | $1,168,801 | 53 | 6,800 |
| 2023 · Form 990 | ||||||||
| $14,785,235 | $15,621,865 | $10,703,968 | $6,121,329 | $7,517,231 | $6,958,513 | $1,132,708 | 56 | 6,800 |
| 2022 · Form 990 | ||||||||
| $13,668,775 | $14,203,228 | $12,713,304 | $6,792,731 | $9,356,093 | $3,981,929 | $934,245 | 57 | 6,600 |
| 2021 · Form 990 | ||||||||
| $15,022,219 | $14,183,277 | $11,297,459 | $7,230,720 | $9,516,614 | $3,528,616 | $915,445 | 61 | 6,400 |
| 2020 · Form 990 | ||||||||
| $10,416,313 | $10,067,637 | $10,212,314 | $6,619,292 | $8,594,517 | $1,627,325 | $891,276 | 47 | 6,400 |
| 2019 · Form 990 | ||||||||
| $12,083,530 | $11,119,996 | $10,151,974 | $6,077,930 | $8,139,396 | $1,640,500 | $850,281 | 59 | 6,400 |
| 2018 · Form 990 | ||||||||
| $14,318,987 | $14,121,822 | $10,376,286 | $5,104,806 | $9,307,212 | $2,007,413 | $760,175 | 50 | 7,100 |
| 2017 · Form 990 | ||||||||
| $11,464,375 | $9,693,450 | $8,151,278 | $4,955,922 | $10,804,912 | $1,164,295 | $468,876 | 42 | 6,950 |
| 2016 · Form 990 | ||||||||
| $7,873,276 | $7,566,017 | $4,984,542 | $2,695,113 | $5,818,435 | $1,381,841 | $218,855 | 32 | 6,600 |
| 2015 · Form 990 | ||||||||
| $6,109,786 | $5,867,544 | $3,916,800 | $2,315,634 | $5,149,322 | $815,371 | $193,907 | 23 | 5,750 |
| 2014 · Form 990 | ||||||||
| $5,236,655 | $5,395,275 | $3,255,155 | $2,061,213 | $4,716,073 | $403,981 | $395,857 | 22 | 5,000 |
| 2013 · Form 990 | ||||||||
| $5,050,694 | $4,835,421 | $3,380,394 | $2,224,455 | $4,639,671 | $381,031 | $156,514 | 18 | 5,000 |
| 2012 · Form 990 | ||||||||
| $4,932,328 | $4,507,896 | $3,439,299 | $2,045,096 | $4,596,877 | $324,212 | $161,461 | 20 | 5,000 |
| 2011 · Form 990 | ||||||||
| $4,512,554 | $3,727,605 | $2,594,334 | $1,620,664 | $4,241,909 | $243,698 | $404,164 | 18 | 4,800 |
Funders of this organization
81 grantors reported grants to this organization, $7,360,591 in all, tax years 2010 to 2025; the 25 largest shown (all 81). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| LUKE 18-1 FOUNDATION | Public charity | Exact | 2018-2025 | 8 | $2,994,863 | 2025 | $450,181 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $1,267,303 | 2024 | $85,850 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $623,782 | 2025 | $139,520 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2024 | 5 | $323,775 | 2024 | $268,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2017-2024 | 8 | $241,545 | 2024 | $48,850 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2017, 2020-2024 | 6 | $208,245 | 2024 | $105,789 | show |
| CTIA-THE WIRELESS ASSOCIATION | Public charity | Exact | 2015-2016, 2018-2021, 2023-2024 | 8 | $169,280 | 2024 | $25,000 | show |
| FORGOOD INC | DAF sponsor | Exact | 2012, 2016-2018, 2022 | 5 | $166,522 | 2022 | $14,255 | show |
| CHARITIES AID FOUNDATION AMERICA | DAF sponsor | Exact | 2020-2024 | 7 | $133,667 | 2024 | $39,788 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2015-2016, 2019-2020, 2023-2024 | 6 | $121,275 | 2024 | $55,525 | show |
| ST LOUIS COMMUNITY FOUNDATION INCORPORATED | DAF sponsor | Exact | 2011, 2013, 2017-2020 | 6 | $115,000 | 2020 | $20,000 | show |
| GS DONOR ADVISED PHILANTHROPY FUND FOR WEALTH MANAGEMENT INC | DAF sponsor | Exact | 2020, 2024 | 2 | $110,925 | 2024 | $100,725 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2022-2023, 2025 | 3 | $93,427 | 2025 | $22,795 | show |
| PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA | Public charity | Exact | 2015-2017, 2020, 2022, 2024 | 6 | $81,000 | 2024 | $10,000 | show |
| SPINAL MUSCULAR ATROPHY RESEARCH TEAM | Public charity | Exact | 2011, 2015, 2020 | 3 | $71,000 | 2020 | $20,000 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2016-2020, 2022 | 6 | $67,454 | 2022 | $6,000 | show |
| PERMOBIL FOUNDATION | Public charity | Exact | 2018, 2020-2025 | 8 | $63,400 | 2025 | $11,400 | show |
| THE AYCO CHARITABLE FOUNDATION | DAF sponsor | Exact | 2022-2024 | 3 | $48,850 | 2024 | $17,200 | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | DAF sponsor | Exact | 2016, 2018, 2022-2024 | 7 | $35,250 | 2024 | $10,000 | show |
| BLAIR FAMILY FOUNDATION | Private foundation | Fuzzy filed as “Families of SMA” | 2012-2014 | 3 | $30,000 | 2014 | $10,000 | show |
| REAL DARE FOUNDATION | Public charity | Exact | 2023-2024 | 2 | $25,000 | 2024 | $10,000 | show |
| COMMUNITY FOUNDATION OF NEW JERSEY | DAF sponsor | Exact | 2013-2015 | 3 | $25,000 | 2015 | $5,000 | show |
| THE CASWELL JIN FOUNDATION | Private foundation | Fuzzy filed as “FAMILIES OF SMA” | 2019-2020 | 2 | $20,000 | 2020 | $10,000 | show |
| BARNEY & BARNEY FOUNDATION | Public charity | Exact | 2014 | 1 | $20,000 | 2014 | $20,000 | show |
| STANLEY E HANSON FOUNDATION | Private foundation | Fuzzy filed as “FAMILIES OF SMA” | 2020-2022 | 3 | $15,000 | 2022 | $5,000 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| MELANOMA RESEARCH ALLIANCE FOUNDATION | DC | G11 | $16,482,705 | $17,446,662 | TREASURER | $626,632 | Same NTEE code G11, revenue within 2x |
| HKI SUPPORT INC | NY | G11 | $10,538,535 | $10,538,535 | PRESIDENT | $450,270 | Same NTEE code G11, revenue within 2x |
| PINK RIBBON GOOD INC | OH | G11 | $8,295,710 | $8,327,125 | PRESIDENT/CE | $317,212 | Same NTEE code G11, revenue within 2x |
| DONT EVER GIVE UP INC | NC | G11 | $24,608,341 | $33,225,945 | EXECUTIVE DIRECTOR THR: 8.25 | $632,277 | Same NTEE code G11, revenue within 2x |
| NLW INC | IN | G11 | $11,935,852 | $11,436,214 | PRESIDENT/CEO | $968,560 | Same NTEE code G11, revenue within 2x |
| COLUMBUS FOUNDATION INC | UT | G11 | $8,755,354 | $8,770,068 | CEO | $212,627 | Same NTEE code G11, revenue within 2x |
| AUDITORY LEARNING FOUNDATION | TX | G11 | $9,335,396 | $6,969,415 | PRESIDENT | $0 | Same NTEE code G11, revenue within 2x |
| CURESEARCH FOR CHILDRENS CANCER | MD | G11 | $4,967,108 | $6,127,026 | PRESIDENT AND CEO | $497,360 | Same NTEE code G11, revenue within 5x |
| SARNOFF CARDIOVASCULAR RESEARCH FOUNDATION INC | VA | G11 | $4,410,906 | $2,771,048 | EXECUTIVE DIRECTOR | $248,788 | Same NTEE code G11, revenue within 5x |
| RUNNEMEDE INDUSTRIES INC | NJ | G11 | $3,533,354 | $3,394,423 | PRESIDENT/CEO | $390,632 | Same NTEE code G11, revenue within 5x |
| ABILITY CENTER OF GREATER TOLEDO SUPPORTING ORGANIZATION | OH | G11 | $3,429,336 | $3,554,701 | TRUSTEE | $0 | Same NTEE code G11, revenue within 5x |
| ALLIANCE FOR LIVING INC | CT | G11 | $3,223,746 | $3,214,148 | PRESIDENT & | $135,886 | Same NTEE code G11, revenue within 5x |
| TRANSPLANT FOUNDATION | PA | G11 | $4,453,241 | $4,398,059 | PRESIDENT & CEO | $1,011,287 | Same NTEE code G11, revenue within 5x |
| H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE FOUNDATION INC | FL | G11 | $41,320,097 | $34,324,763 | EVP/COO | $1,315,157 | Same NTEE code G11, revenue within 5x |
| SUITE 130 PLASTIC SURGERY PC | NY | G11 | $6,597,467 | $6,214,372 | CEO | $5,943,362 | Same NTEE code G11, revenue within 5x |
| UNIVERSITY PEDIATRIC ASSOCIATES INC | IN | G11 | $6,701,639 | $750,583 | CHAIRMAN OF THE BOARD | $0 | Same NTEE code G11, revenue within 5x |
| BARROW NEUROLOGICAL FOUNDATION | AZ | G11 | $49,260,849 | $40,230,701 | PRESIDENT (THROUGH 07/2024) | $226,806 | Same NTEE code G11, revenue within 5x |
| JAKE GITTLEN MEMORIAL GOLF TOURNAMENT | PA | G11 | $3,232,284 | $2,608,917 | VICE PRESIDE | $0 | Same NTEE code G11, revenue within 5x |
| MID COAST MEDICAL CLINIC | TX | G11 | $6,094,295 | $6,094,295 | PHYSICIAN | $925,980 | Same NTEE code G11, revenue within 5x |
| THE ASSOCIATION OF THE JEWISH BLIND OF CHICAGO | IL | G11 | $1,605,426 | $75,553 | PRESIDENT & TREASURER | $0 | Same NTEE code G11, revenue within 10x, same state |
| ST JUDE RUNNERS ASSOCIATION | IL | G11 | $2,956,648 | $1,783,402 | Director | $0 | Same NTEE code G11, revenue within 10x, same state |
| NEW DAY FOUNDATION FOR FAMILIES | MI | G11 | $2,275,515 | $1,522,855 | CO-FOUNDER/P | $65,021 | Same NTEE code G11, revenue within 10x |
| BISMARCK CANCER CENTER FOUNDATION | ND | G11 | $2,102,973 | $1,170,441 | RADIATION ONCOLOGIST | $1,342,469 | Same NTEE code G11, revenue within 10x |
| SWMF PROPERTIES INC | TX | G11 | $1,968,965 | $2,957,284 | PRESIDENT & CEO | $520,322 | Same NTEE code G11, revenue within 10x |
| COMMUNITY HOUSE CHARITABLE TR | TX | G11 | $1,676,974 | $720,644 | President and CEO | $359,357 | Same NTEE code G11, revenue within 10x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $14,019,399 spent · pay $5,683,143 · grants $2,564,862 · events $4,016,929
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,747,629 | $2,323,971 | $552,700 | $870,958 | 26.7% | |
| Conferences, conventions and meetings | $3,412,351 | $3,268,889 | $115,465 | $27,997 | 24.3% | |
| Grants to US organizations and governments | $1,802,574 | $1,802,574 | - | - | 12.9% | |
| Pay: officers, directors, trustees, key employees | $1,168,801 | $541,662 | $188,361 | $438,778 | 8.3% | |
| Grants outside the US | $565,669 | $565,669 | - | - | 4.0% | |
| Fees: other services | $550,314 | $527,293 | $5,371 | $17,650 | 3.9% | |
| Information technology | $451,247 | $315,874 | $31,586 | $103,787 | 3.2% | |
| Office expenses | $384,534 | $324,550 | $18,238 | $41,746 | 2.7% | |
| Payroll taxes | $348,964 | $204,319 | $52,414 | $92,231 | 2.5% | |
| Other employee benefits | $319,066 | $194,954 | $45,848 | $78,264 | 2.3% | |
| Travel | $204,728 | $119,869 | $30,749 | $54,110 | 1.5% | |
| Grants to US individuals | $196,619 | $196,619 | - | - | 1.4% | |
| Depreciation and depletion | $135,755 | $120,930 | $5,372 | $9,453 | 1.0% | |
| Other (as described) | BANK CHARGES, CREDIT CA | $127,631 | - | $87,298 | $40,333 | 0.9% |
| Occupancy | $123,018 | $72,028 | $18,476 | $32,514 | 0.9% | |
| Other (as described) | WEBSITE | $114,664 | $85,998 | $5,733 | $22,933 | 0.8% |
| Pension plan contributions | $98,683 | $62,575 | $14,285 | $21,823 | 0.7% | |
| All other expenses | $60,594 | $20,725 | $34,065 | $5,804 | 0.4% | |
| Insurance | $43,929 | $19,130 | $16,163 | $8,636 | 0.3% | |
| Other (as described) | PROMOTIONAL ITEMS | $41,402 | $37,245 | $4,157 | - | 0.3% |
| Fees: accounting | $36,050 | - | $36,050 | - | 0.3% | |
| Advertising and promotion | $33,092 | $23,820 | $4,806 | $4,466 | 0.2% | |
| Other (as described) | DUES AND SUBSCRIPTIONS/ | $28,910 | $11,475 | $10,338 | $7,097 | 0.2% |
| Fees: investment management | $18,750 | - | $18,750 | - | 0.1% | |
| Fees: legal | $4,425 | - | $4,425 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $709,219 | $604,578 | reported apart | |||
| Total | $14,019,399 | 100% |
2023 · Form 990 · $15,621,865 spent · pay $5,757,663 · grants $2,062,306 · events $5,567,404
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $5,082,997 | $4,878,749 | $144,781 | $59,467 | 32.5% | |
| Other salaries and wages | $3,851,666 | $2,457,970 | $540,072 | $853,624 | 24.7% | |
| Grants to US organizations and governments | $1,545,948 | $1,545,948 | - | - | 9.9% | |
| Pay: officers, directors, trustees, key employees | $1,132,708 | $590,213 | $176,779 | $365,716 | 7.3% | |
| Information technology | $562,917 | $394,042 | $39,404 | $129,471 | 3.6% | |
| Office expenses | $556,130 | $473,317 | $24,475 | $58,338 | 3.6% | |
| Grants outside the US | $414,762 | $414,762 | - | - | 2.7% | |
| Depreciation and depletion | $355,693 | $342,540 | $4,858 | $8,295 | 2.3% | |
| Payroll taxes | $351,351 | $215,133 | $50,313 | $85,905 | 2.2% | |
| Other employee benefits | $325,706 | $199,982 | $44,056 | $81,668 | 2.1% | |
| Fees: other services | $321,058 | $286,513 | $20,020 | $14,525 | 2.1% | |
| Travel | $300,900 | $184,241 | $43,089 | $73,570 | 1.9% | |
| Other (as described) | BANK CHARGES, CREDIT CA | $135,350 | - | $91,321 | $44,029 | 0.9% |
| Occupancy | $122,592 | $75,063 | $17,555 | $29,974 | 0.8% | |
| Other (as described) | WEBSITE | $107,744 | $80,807 | $5,387 | $21,550 | 0.7% |
| Grants to US individuals | $101,596 | $101,596 | - | - | 0.7% | |
| Pension plan contributions | $96,232 | $62,119 | $13,277 | $20,836 | 0.6% | |
| Insurance | $61,850 | $29,758 | $20,209 | $11,883 | 0.4% | |
| All other expenses | $48,356 | $22,700 | $20,102 | $5,554 | 0.3% | |
| Fees: accounting | $38,400 | - | $38,400 | - | 0.2% | |
| Advertising and promotion | $33,359 | $24,301 | $4,502 | $4,556 | 0.2% | |
| Other (as described) | PROMOTIONAL ITEMS | $27,854 | $22,313 | $5,541 | - | 0.2% |
| Other (as described) | DUES AND SUBSCRIPTIONS/ | $25,210 | - | $19,710 | $5,500 | 0.2% |
| Fees: investment management | $15,593 | - | $15,593 | - | 0.1% | |
| Fees: legal | $5,893 | - | $5,893 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $595,168 | $484,407 | reported apart | |||
| Total | $15,621,865 | 100% |
2022 · Form 990 · $14,203,228 spent · pay $5,343,889 · grants $3,121,518 · events $3,523,788
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,704,349 | $2,319,632 | $822,196 | $562,521 | 26.1% | |
| Conferences, conventions and meetings | $3,133,182 | $2,990,092 | $106,413 | $36,677 | 22.1% | |
| Grants to US organizations and governments | $2,372,768 | $2,372,768 | - | - | 16.7% | |
| Pay: officers, directors, trustees, key employees | $934,245 | $605,944 | $159,699 | $168,602 | 6.6% | |
| Grants outside the US | $672,723 | $672,723 | - | - | 4.7% | |
| Fees: other services | $519,572 | $500,878 | $7,122 | $11,572 | 3.7% | |
| Office expenses | $514,406 | $438,249 | $28,033 | $48,124 | 3.6% | |
| Information technology | $509,779 | $356,845 | $35,685 | $117,249 | 3.6% | |
| Payroll taxes | $319,600 | $201,508 | $67,723 | $50,369 | 2.3% | |
| Other employee benefits | $283,588 | $178,525 | $59,775 | $45,288 | 2.0% | |
| Depreciation and depletion | $237,999 | $225,812 | $6,989 | $5,198 | 1.7% | |
| Travel | $199,387 | $125,714 | $42,250 | $31,423 | 1.4% | |
| Other (as described) | BANK CHARGES, CREDIT CA | $114,420 | - | $76,092 | $38,328 | 0.8% |
| Pension plan contributions | $102,107 | $63,713 | $22,977 | $15,417 | 0.7% | |
| Other (as described) | WEBSITE | $97,065 | $72,799 | $4,853 | $19,413 | 0.7% |
| Occupancy | $89,738 | $56,579 | $19,016 | $14,143 | 0.6% | |
| Advertising and promotion | $76,133 | $59,158 | $5,883 | $11,092 | 0.5% | |
| Grants to US individuals | $76,027 | $76,027 | - | - | 0.5% | |
| Other (as described) | PROMOTIONAL ITEMS | $63,178 | $62,396 | $196 | $586 | 0.4% |
| Insurance | $56,645 | $29,077 | $20,300 | $7,268 | 0.4% | |
| All other expenses | $39,922 | - | $34,324 | $5,598 | 0.3% | |
| Other (as described) | STAFF DEVELOPMENT/TRAIN | $35,012 | $22,075 | $7,419 | $5,518 | 0.2% |
| Fees: accounting | $34,100 | - | $34,100 | - | 0.2% | |
| Fees: investment management | $11,211 | - | $11,211 | - | 0.1% | |
| Fees: legal | $6,072 | - | $6,072 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $547,998 | $390,606 | reported apart | |||
| Total | $14,203,228 | 100% |
2021 · Form 990 · $14,183,277 spent · pay $4,907,217 · grants $2,854,589 · events $3,450,238
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,331,182 | $1,954,302 | $332,982 | $1,043,898 | 23.5% | |
| Conferences, conventions and meetings | $3,134,741 | $3,116,776 | $17,965 | - | 22.1% | |
| Grants to US organizations and governments | $2,268,795 | $2,268,795 | - | - | 16.0% | |
| Pay: officers, directors, trustees, key employees | $915,445 | $606,923 | $114,752 | $193,770 | 6.5% | |
| Fees: other services | $717,656 | $629,300 | $11,173 | $77,183 | 5.1% | |
| Office expenses | $541,976 | $469,980 | $17,122 | $54,874 | 3.8% | |
| Grants outside the US | $440,922 | $440,922 | - | - | 3.1% | |
| Information technology | $426,243 | $298,370 | $29,837 | $98,036 | 3.0% | |
| Depreciation and depletion | $347,456 | $338,031 | $1,885 | $7,540 | 2.4% | |
| Payroll taxes | $286,981 | $172,762 | $30,133 | $84,086 | 2.0% | |
| Advertising and promotion | $285,839 | $223,749 | $20,137 | $41,953 | 2.0% | |
| Other employee benefits | $284,659 | $169,891 | $28,178 | $86,590 | 2.0% | |
| Travel | $226,907 | $136,598 | $23,825 | $66,484 | 1.6% | |
| Occupancy | $214,441 | $149,529 | $25,669 | $39,243 | 1.5% | |
| Grants to US individuals | $144,872 | $144,872 | - | - | 1.0% | |
| Other (as described) | WEBSITE | $140,459 | $105,344 | $7,023 | $28,092 | 1.0% |
| Other (as described) | BANK CHARGES, CREDIT CA | $105,787 | - | $65,197 | $40,590 | 0.7% |
| All other expenses | $101,518 | $26,192 | $69,232 | $6,094 | 0.7% | |
| Pension plan contributions | $88,950 | $50,266 | $9,213 | $29,471 | 0.6% | |
| Insurance | $48,516 | $23,969 | $12,881 | $11,666 | 0.3% | |
| Other (as described) | STAFF DEVELOPMENT/TRAIN | $41,192 | $28,835 | $2,883 | $9,474 | 0.3% |
| Other (as described) | MISCELLANEOUS | $34,710 | $4,457 | $30,253 | - | 0.2% |
| Fees: accounting | $33,335 | - | $33,335 | - | 0.2% | |
| Fees: investment management | $11,739 | - | $11,739 | - | 0.1% | |
| Fees: legal | $8,956 | - | $8,956 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $2,101,320 | $315,497 | reported apart | |||
| Total | $14,183,277 | 100% |
2020 · Form 990 · $10,067,637 spent · pay $4,578,986 · grants $2,609,834 · events $240,006
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,086,046 | $1,756,708 | $297,548 | $1,031,790 | 30.7% | |
| Grants to US organizations and governments | $2,156,901 | $2,156,901 | - | - | 21.4% | |
| Pay: officers, directors, trustees, key employees | $891,276 | $629,742 | $48,578 | $212,956 | 8.9% | |
| Fees: other services | $617,921 | $592,681 | $8,956 | $16,284 | 6.1% | |
| Grants to US individuals | $452,933 | $452,933 | - | - | 4.5% | |
| Depreciation and depletion | $450,159 | $434,958 | $3,040 | $12,161 | 4.5% | |
| Office expenses | $415,253 | $356,079 | $17,438 | $41,736 | 4.1% | |
| Advertising and promotion | $337,152 | $229,146 | $32,713 | $75,293 | 3.3% | |
| Information technology | $288,605 | $202,024 | $20,202 | $66,379 | 2.9% | |
| Payroll taxes | $264,384 | $158,313 | $23,107 | $82,964 | 2.6% | |
| Other employee benefits | $241,236 | $143,020 | $21,503 | $76,713 | 2.4% | |
| Occupancy | $238,612 | $166,384 | $28,562 | $43,666 | 2.4% | |
| Conferences, conventions and meetings | $168,904 | $168,904 | - | - | 1.7% | |
| Other (as described) | WEBSITE | $100,672 | $75,504 | $5,034 | $20,134 | 1.0% |
| Pension plan contributions | $96,044 | $54,113 | $9,467 | $32,464 | 1.0% | |
| Other (as described) | BANK CHARGES, CREDIT CA | $78,909 | - | $51,255 | $27,654 | 0.8% |
| All other expenses | $39,578 | $15,315 | $20,882 | $3,381 | 0.4% | |
| Insurance | $32,675 | $16,605 | $7,368 | $8,702 | 0.3% | |
| Other (as described) | PROMOTIONAL ITEMS | $29,618 | $26,665 | $2,953 | - | 0.3% |
| Fees: accounting | $25,205 | - | $25,205 | - | 0.3% | |
| Other (as described) | DUES AND SUBSCRIPTIONS/ | $22,100 | - | - | $22,100 | 0.2% |
| Travel | $12,049 | $7,215 | $1,053 | $3,781 | 0.1% | |
| Fees: investment management | $10,632 | - | $10,632 | - | 0.1% | |
| Interest | $9,009 | - | $9,009 | - | 0.1% | |
| Fees: legal | $1,764 | - | $1,764 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $22,420 | $71,102 | reported apart | |||
| Total | $10,067,637 | 100% |
2019 · Form 990 · $11,119,996 spent · pay $4,652,897 · grants $2,656,514 · events $1,197,502
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,192,508 | $2,156,374 | $408,771 | $627,363 | 28.7% | |
| Grants to US organizations and governments | $1,891,222 | $1,891,222 | - | - | 17.0% | |
| Pay: officers, directors, trustees, key employees | $850,281 | $602,084 | $45,582 | $202,615 | 7.6% | |
| Conferences, conventions and meetings | $820,001 | $820,001 | - | - | 7.4% | |
| Fees: other services | $541,336 | $436,586 | $78,766 | $25,984 | 4.9% | |
| Depreciation and depletion | $503,705 | $483,566 | $5,030 | $15,109 | 4.5% | |
| Office expenses | $425,396 | $367,629 | $16,149 | $41,618 | 3.8% | |
| Grants to US individuals | $398,392 | $398,392 | - | - | 3.6% | |
| Advertising and promotion | $395,187 | $271,574 | $34,381 | $89,232 | 3.6% | |
| Grants outside the US | $366,900 | $366,900 | - | - | 3.3% | |
| Information technology | $331,892 | $232,324 | $23,233 | $76,335 | 3.0% | |
| Payroll taxes | $276,071 | $188,308 | $31,196 | $56,567 | 2.5% | |
| Other employee benefits | $242,064 | $165,109 | $16,742 | $60,213 | 2.2% | |
| Occupancy | $224,376 | $156,457 | $26,858 | $41,061 | 2.0% | |
| Travel | $178,964 | $122,072 | $20,222 | $36,670 | 1.6% | |
| Other (as described) | BANK CHARGES, CREDIT CA | $98,047 | $25,474 | $37,545 | $35,028 | 0.9% |
| Other (as described) | WEBSITE | $95,835 | $71,887 | $4,790 | $19,158 | 0.9% |
| Pension plan contributions | $91,973 | $61,866 | $23,486 | $6,621 | 0.8% | |
| All other expenses | $49,970 | $2,400 | $28,176 | $19,394 | 0.4% | |
| Other (as described) | STAFF DEVELOPMENT/TRAIN | $38,099 | $25,619 | $2,912 | $9,568 | 0.3% |
| Insurance | $33,996 | $19,815 | $8,229 | $5,952 | 0.3% | |
| Fees: accounting | $25,775 | - | $25,775 | - | 0.2% | |
| Other (as described) | PROMOTIONAL ITEMS | $21,219 | $18,937 | $2,282 | - | 0.2% |
| Fees: legal | $16,494 | $14,663 | $1,831 | - | 0.1% | |
| Fees: investment management | $9,229 | - | $9,229 | - | 0.1% | |
| Interest | $1,064 | - | $1,064 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $2,606,084 | $377,501 | reported apart | |||
| Total | $11,119,996 | 100% |
2018 · Form 990 · $14,121,822 spent · pay $4,344,183 · grants $3,840,655 · events $3,414,087
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $2,995,311 | $1,927,606 | $406,624 | $661,081 | 21.2% | |
| Conferences, conventions and meetings | $2,807,013 | $2,700,987 | $106,026 | - | 19.9% | |
| Grants to US organizations and governments | $2,800,792 | $2,800,792 | - | - | 19.8% | |
| Pay: officers, directors, trustees, key employees | $760,175 | $534,075 | $43,204 | $182,896 | 5.4% | |
| Grants outside the US | $668,895 | $668,895 | - | - | 4.7% | |
| Fees: other services | $556,795 | $483,165 | $51,658 | $21,972 | 3.9% | |
| Office expenses | $519,234 | $447,947 | $19,161 | $52,126 | 3.7% | |
| Grants to US individuals | $370,968 | $370,968 | - | - | 2.6% | |
| Advertising and promotion | $342,945 | $227,659 | $40,484 | $74,802 | 2.4% | |
| Depreciation and depletion | $326,702 | $316,253 | $2,091 | $8,358 | 2.3% | |
| Information technology | $320,030 | $224,021 | $22,402 | $73,607 | 2.3% | |
| Travel | $292,987 | $191,966 | $35,275 | $65,746 | 2.1% | |
| Payroll taxes | $261,169 | $171,117 | $31,446 | $58,606 | 1.8% | |
| Other employee benefits | $245,114 | $160,159 | $19,537 | $65,418 | 1.7% | |
| Occupancy | $217,323 | $151,540 | $26,013 | $39,770 | 1.5% | |
| Fees: legal | $146,798 | $141,873 | $1,149 | $3,776 | 1.0% | |
| Other (as described) | BANK CHARGES, CREDIT CA | $120,534 | - | $72,748 | $47,786 | 0.9% |
| Other (as described) | WEBSITE | $100,133 | $75,100 | $5,007 | $20,026 | 0.7% |
| Pension plan contributions | $82,414 | $53,349 | $22,232 | $6,833 | 0.6% | |
| All other expenses | $51,275 | $2,851 | $48,042 | $382 | 0.4% | |
| Other (as described) | STAFF DEVELOPMENT/TRAIN | $42,743 | $29,920 | $2,992 | $9,831 | 0.3% |
| Fees: accounting | $31,150 | - | $31,150 | - | 0.2% | |
| Insurance | $29,038 | $15,785 | $7,847 | $5,406 | 0.2% | |
| Other (as described) | DUES AND SUBSCRIPTIONS/ | $23,878 | - | - | $23,878 | 0.2% |
| Fees: investment management | $8,406 | - | $8,406 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $3,435,244 | $607,074 | reported apart | |||
| Total | $14,121,822 | 100% |
2017 · Form 990 · $9,693,450 spent · pay $3,278,671 · grants $2,583,429 · events $2,359,942
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $2,373,978 | $1,606,637 | $223,967 | $543,374 | 24.5% | |
| Grants to US organizations and governments | $2,364,627 | $2,364,627 | - | - | 24.4% | |
| Conferences, conventions and meetings | $1,530,579 | $1,512,446 | $1,927 | $16,206 | 15.8% | |
| Pay: officers, directors, trustees, key employees | $468,876 | $387,555 | $44,595 | $36,726 | 4.8% | |
| Fees: other services | $424,018 | $406,901 | $3,687 | $13,430 | 4.4% | |
| Office expenses | $306,605 | $257,492 | $10,535 | $38,578 | 3.2% | |
| Travel | $290,262 | $145,202 | $99,180 | $45,880 | 3.0% | |
| Payroll taxes | $210,960 | $147,651 | $19,809 | $43,500 | 2.2% | |
| Occupancy | $210,008 | $147,010 | $14,692 | $48,306 | 2.2% | |
| Advertising and promotion | $196,258 | $155,859 | $12,568 | $27,831 | 2.0% | |
| Depreciation and depletion | $191,964 | $177,388 | $2,915 | $11,661 | 2.0% | |
| Other (as described) | WEBSITE | $182,308 | $139,813 | $8,599 | $33,896 | 1.9% |
| Grants outside the US | $175,000 | $175,000 | - | - | 1.8% | |
| Other employee benefits | $156,967 | $100,693 | $15,939 | $40,335 | 1.6% | |
| Information technology | $102,017 | $86,704 | $4,126 | $11,187 | 1.1% | |
| Other (as described) | BANK CHARGES, CREDIT CA | $86,148 | - | $43,367 | $42,781 | 0.9% |
| Pension plan contributions | $67,890 | $52,207 | $3,556 | $12,127 | 0.7% | |
| All other expenses | $57,085 | $29,562 | $20,166 | $7,357 | 0.6% | |
| Fees: lobbying | $55,893 | $39,125 | $3,913 | $12,855 | 0.6% | |
| Other (as described) | BAD DEBT EXPENSE | $47,030 | - | $47,030 | - | 0.5% |
| Fees: accounting | $45,847 | - | $45,847 | - | 0.5% | |
| Grants to US individuals | $43,802 | $43,802 | - | - | 0.5% | |
| Other (as described) | ANNUAL CAMPAIGN | $39,861 | $13,763 | - | $26,098 | 0.4% |
| Fees: legal | $36,394 | - | $36,394 | - | 0.4% | |
| Insurance | $21,136 | $11,332 | $6,466 | $3,338 | 0.2% | |
| Fees: investment management | $7,937 | - | $7,937 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $158,737 | $829,363 | reported apart | |||
| Total | $9,693,450 | 100% |
2016 · Form 990 · $7,566,017 spent · pay $2,465,061 · grants $977,500 · events $2,611,172
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,917,325 | $1,364,890 | $104,497 | $447,938 | 25.3% | |
| Conferences, conventions and meetings | $1,377,797 | $1,221,871 | $70,009 | $85,917 | 18.2% | |
| Other (as described) Event | FUNDRAISING EVENTS | $737,310 | $605,880 | $46 | $131,384 | 9.7% |
| Grants to US organizations and governments | $592,500 | $592,500 | - | - | 7.8% | |
| Other (as described) | SMA RESEARCH EXPENSES | $570,709 | $570,709 | - | - | 7.5% |
| Office expenses | $431,754 | $328,586 | $18,977 | $84,191 | 5.7% | |
| Grants outside the US | $385,000 | $385,000 | - | - | 5.1% | |
| Pay: officers, directors, trustees, key employees | $218,855 | $151,010 | $37,205 | $30,640 | 2.9% | |
| Payroll taxes | $171,466 | $120,036 | $12,459 | $38,971 | 2.3% | |
| Occupancy | $149,047 | $104,482 | $10,377 | $34,188 | 2.0% | |
| Depreciation and depletion | $148,136 | $131,097 | $3,408 | $13,631 | 2.0% | |
| Advertising and promotion | $136,227 | $95,919 | $9,414 | $30,894 | 1.8% | |
| Other employee benefits | $129,286 | $91,064 | $6,468 | $31,754 | 1.7% | |
| Fees: lobbying | $123,086 | $123,086 | - | - | 1.6% | |
| Other (as described) | PATIENT SERVICES | $120,000 | $120,000 | - | - | 1.6% |
| Information technology | $114,713 | $86,035 | $5,736 | $22,942 | 1.5% | |
| Fees: legal | $101,399 | $80,751 | - | $20,648 | 1.3% | |
| Fees: accounting | $38,588 | - | $38,588 | - | 0.5% | |
| Other (as described) | MISCELLANEOUS | $29,298 | $11,207 | $1,192 | $16,899 | 0.4% |
| Pension plan contributions | $28,129 | $21,192 | $1,325 | $5,612 | 0.4% | |
| Fees: other services | $18,209 | $2,625 | $8,573 | $7,011 | 0.2% | |
| Insurance | $17,982 | $12,587 | $1,259 | $4,136 | 0.2% | |
| Fees: investment management | $6,701 | - | $6,701 | - | 0.1% | |
| Fees: professional fundraisers | $2,500 | - | - | $2,500 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $502,807 | $496,065 | reported apart | |||
| Total | $7,566,017 | 100% |
2015 · Form 990 · $5,867,544 spent · pay $1,747,547 · grants $1,219,840 · events $1,646,099
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,344,482 | $896,441 | $78,687 | $369,354 | 22.9% | |
| Grants to US organizations and governments | $1,219,840 | $1,219,840 | - | - | 20.8% | |
| Other (as described) Event | FUNDRAISING EVENTS | $733,933 | $534,782 | $12,788 | $186,363 | 12.5% |
| Conferences, conventions and meetings | $537,887 | $533,403 | $164 | $4,320 | 9.2% | |
| Travel | $366,374 | $269,357 | $47,871 | $49,146 | 6.2% | |
| Office expenses | $240,689 | $193,154 | $11,085 | $36,450 | 4.1% | |
| Pay: officers, directors, trustees, key employees | $193,907 | $133,796 | $32,964 | $27,147 | 3.3% | |
| Fees: legal | $138,408 | $138,408 | - | - | 2.4% | |
| Fees: lobbying | $128,038 | $88,349 | $8,873 | $30,816 | 2.2% | |
| Information technology | $126,195 | $94,599 | $6,310 | $25,286 | 2.2% | |
| Payroll taxes | $122,858 | $81,954 | $9,761 | $31,143 | 2.1% | |
| Depreciation and depletion | $102,305 | $88,105 | $2,840 | $11,360 | 1.7% | |
| Occupancy | $88,442 | $58,964 | $6,523 | $22,955 | 1.5% | |
| Other employee benefits | $86,300 | $55,808 | $2,901 | $27,591 | 1.5% | |
| Fees: other services | $79,806 | $78,373 | $218 | $1,215 | 1.4% | |
| Advertising and promotion | $79,531 | $53,743 | $6,358 | $19,430 | 1.4% | |
| Other (as described) | BANK CHARGES | $77,629 | $31,207 | $3,949 | $42,473 | 1.3% |
| Other (as described) | MISCELLANEOUS | $58,251 | $27,640 | $5,084 | $25,527 | 1.0% |
| Other (as described) | PATIENT SERVICES | $43,613 | $42,883 | $18 | $712 | 0.7% |
| Fees: accounting | $39,974 | - | $39,974 | - | 0.7% | |
| Fees: professional fundraisers | $24,159 | - | - | $24,159 | 0.4% | |
| Insurance | $15,931 | $12,457 | $1,240 | $2,234 | 0.3% | |
| All other expenses | $13,384 | $13,384 | - | - | 0.2% | |
| Fees: investment management | $5,608 | - | $5,608 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $521,892 | $374,279 | reported apart | |||
| Total | $5,867,544 | 100% |
2014 · Form 990 · $5,395,275 spent · pay $1,570,338 · grants $1,339,999 · events $1,179,121
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,339,999 | $1,339,999 | - | - | 24.8% | |
| Other salaries and wages | $994,936 | $608,815 | $18,866 | $367,255 | 18.4% | |
| Other (as described) Event | FUNDRAISING EVENTS | $662,452 | $310,063 | $7,398 | $344,991 | 12.3% |
| Conferences, conventions and meetings | $412,541 | $411,536 | $60 | $945 | 7.6% | |
| Pay: officers, directors, trustees, key employees | $395,857 | $263,905 | $65,976 | $65,976 | 7.3% | |
| Travel | $333,674 | $225,312 | $26,234 | $82,128 | 6.2% | |
| Office expenses | $329,827 | $220,736 | $20,722 | $88,369 | 6.1% | |
| Fees: other services | $131,731 | $69,619 | $26,180 | $35,932 | 2.4% | |
| Information technology | $118,666 | $88,999 | $5,934 | $23,733 | 2.2% | |
| Payroll taxes | $110,177 | $69,215 | $7,146 | $33,816 | 2.0% | |
| Occupancy | $87,773 | $57,550 | $14,344 | $15,879 | 1.6% | |
| Advertising and promotion | $79,212 | $53,643 | $12,785 | $12,784 | 1.5% | |
| Other employee benefits | $69,368 | $44,103 | $3,274 | $21,991 | 1.3% | |
| Other (as described) | BANK CHARGES | $63,968 | $25,588 | $3,198 | $35,182 | 1.2% |
| Depreciation and depletion | $60,238 | $53,485 | $2,451 | $4,302 | 1.1% | |
| Other (as described) | PATIENT SERVICES | $49,603 | $44,289 | $63 | $5,251 | 0.9% |
| Fees: accounting | $38,411 | - | $38,411 | - | 0.7% | |
| Fees: lobbying | $27,968 | $15,438 | $2,658 | $9,872 | 0.5% | |
| Other (as described) | MISCELLANEOUS | $22,840 | $10,056 | $8,869 | $3,915 | 0.4% |
| Fees: professional fundraisers | $18,809 | - | - | $18,809 | 0.3% | |
| Fees: legal | $18,073 | $18,073 | - | - | 0.3% | |
| Insurance | $15,061 | $12,690 | $1,021 | $1,350 | 0.3% | |
| All other expenses | $11,744 | $11,744 | - | - | 0.2% | |
| Fees: investment management | $2,347 | - | $2,347 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $201,715 | $104,128 | reported apart | |||
| Total | $5,395,275 | 100% |
2013 · Form 990 · $4,835,421 spent · pay $1,355,302 · grants $1,004,654 · events $1,391,917
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,067,752 | $651,507 | $83,053 | $333,192 | 22.1% | |
| Grants to US organizations and governments | $1,004,654 | $1,004,654 | - | - | 20.8% | |
| Other (as described) Event | FUNDRAISING EVENTS | $647,954 | $89,196 | $3,099 | $555,659 | 13.4% |
| Conferences, conventions and meetings | $577,334 | $575,251 | $343 | $1,740 | 11.9% | |
| Office expenses | $284,826 | $176,934 | $18,143 | $89,749 | 5.9% | |
| Fees: other services | $254,381 | $99,250 | $41,685 | $113,446 | 5.3% | |
| Pay: officers, directors, trustees, key employees | $156,514 | $104,343 | $26,086 | $26,085 | 3.2% | |
| Information technology | $132,542 | $78,936 | $6,400 | $47,206 | 2.7% | |
| Other (as described) | PATIENT SERVICES | $111,143 | $103,973 | - | $7,170 | 2.3% |
| Travel | $99,614 | $27,295 | $17,671 | $54,648 | 2.1% | |
| Occupancy | $86,303 | $56,988 | $14,267 | $15,048 | 1.8% | |
| Payroll taxes | $85,649 | $51,084 | $8,264 | $26,301 | 1.8% | |
| Advertising and promotion | $57,920 | $38,690 | $9,611 | $9,619 | 1.2% | |
| Fees: lobbying | $49,530 | $48,241 | $1,289 | - | 1.0% | |
| Other employee benefits | $45,387 | $30,222 | $196 | $14,969 | 0.9% | |
| Depreciation and depletion | $39,846 | $35,220 | $2,313 | $2,313 | 0.8% | |
| Fees: accounting | $36,362 | $22,908 | $7,727 | $5,727 | 0.8% | |
| Fees: legal | $31,844 | $15,804 | $250 | $15,790 | 0.7% | |
| Other (as described) | MERCHANDISE | $23,076 | - | - | $23,076 | 0.5% |
| Fees: professional fundraisers | $15,413 | - | - | $15,413 | 0.3% | |
| Insurance | $15,114 | $10,076 | $2,519 | $2,519 | 0.3% | |
| Other (as described) | MISCELLANEOUS | $12,263 | $3,357 | $6,878 | $2,028 | 0.3% |
| Fundraising events Event | direct expenses; gross income $175,399 | $166,629 | reported apart | |||
| Total | $4,835,421 | 100% |
2012 · Form 990 · $4,507,896 spent · pay $1,137,972 · grants $1,232,668 · events $1,413,137
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,232,668 | $1,232,668 | - | - | 27.3% | |
| Other salaries and wages | $857,287 | $519,594 | $80,644 | $257,049 | 19.0% | |
| Conferences, conventions and meetings | $592,023 | $587,143 | $79 | $4,801 | 13.1% | |
| Other (as described) Event | FUNDRAISING EVENTS | $532,755 | $64,479 | $11,372 | $456,904 | 11.8% |
| Office expenses | $294,217 | $189,731 | $16,054 | $88,432 | 6.5% | |
| Pay: officers, directors, trustees, key employees | $161,461 | $107,641 | $26,910 | $26,910 | 3.6% | |
| Fees: other services | $137,123 | $81,090 | $22,597 | $33,436 | 3.0% | |
| Information technology | $124,590 | $110,331 | - | $14,259 | 2.8% | |
| Payroll taxes | $80,497 | $38,490 | $6,635 | $35,372 | 1.8% | |
| Occupancy | $70,039 | $46,693 | $11,673 | $11,673 | 1.6% | |
| Fees: legal | $64,328 | $64,328 | - | - | 1.4% | |
| Other (as described) | PATIENT SERVICES | $54,758 | $46,934 | - | $7,824 | 1.2% |
| Fees: lobbying | $53,086 | $51,736 | $1,350 | - | 1.2% | |
| Travel | $51,223 | $25,544 | $25,535 | $144 | 1.1% | |
| Advertising and promotion | $42,119 | $28,450 | $7,036 | $6,633 | 0.9% | |
| Other employee benefits | $38,727 | $23,735 | $1,295 | $13,697 | 0.9% | |
| Depreciation and depletion | $34,179 | $29,720 | $2,144 | $2,315 | 0.8% | |
| Fees: accounting | $34,099 | $19,745 | $9,418 | $4,936 | 0.8% | |
| Other (as described) | MERCHANDISE | $29,667 | - | - | $29,667 | 0.7% |
| Insurance | $12,721 | $8,481 | $2,120 | $2,120 | 0.3% | |
| Other (as described) | MISCELLANEOUS | $10,329 | $3,219 | $5,486 | $1,624 | 0.2% |
| Fundraising events Event | direct expenses; gross income - | $288,359 | reported apart | |||
| Total | $4,507,896 | 100% |
2011 · Form 990 · $3,727,605 spent · pay $990,573 · grants $1,027,417 · events $922,508
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,027,417 | $1,027,417 | - | - | 27.6% | |
| Other salaries and wages | $496,738 | $241,699 | $50,176 | $204,863 | 13.3% | |
| Other (as described) Event | FUNDRAISING EVENTS | $448,975 | $38,159 | $1,246 | $409,570 | 12.0% |
| Pay: officers, directors, trustees, key employees | $404,164 | $244,532 | $31,518 | $128,114 | 10.8% | |
| Conferences, conventions and meetings | $355,867 | $352,685 | - | $3,182 | 9.5% | |
| Office expenses | $268,918 | $179,096 | $22,779 | $67,043 | 7.2% | |
| Travel | $82,292 | $24,767 | $23,932 | $33,593 | 2.2% | |
| Occupancy | $81,956 | $54,637 | $13,660 | $13,659 | 2.2% | |
| Fees: other services | $75,856 | $71,946 | $2,102 | $1,808 | 2.0% | |
| Payroll taxes | $70,889 | $33,514 | $5,437 | $31,938 | 1.9% | |
| Advertising and promotion | $70,324 | $49,532 | $9,500 | $11,292 | 1.9% | |
| Information technology | $63,151 | $44,094 | $6,386 | $12,671 | 1.7% | |
| Other (as described) | PATIENT SERVICES | $52,950 | $45,334 | - | $7,616 | 1.4% |
| Fees: lobbying | $49,441 | $47,626 | $1,815 | - | 1.3% | |
| Fees: accounting | $40,379 | $27,566 | $6,083 | $6,730 | 1.1% | |
| Other (as described) | MERCHANDISE | $34,151 | - | - | $34,151 | 0.9% |
| Fees: legal | $30,598 | $30,098 | - | $500 | 0.8% | |
| Depreciation and depletion | $20,999 | $17,073 | $1,963 | $1,963 | 0.6% | |
| Other (as described) | MISCELLANEOUS | $20,395 | $8,507 | $3,977 | $7,911 | 0.5% |
| Other employee benefits | $18,782 | $14,340 | $1,857 | $2,585 | 0.5% | |
| Insurance | $13,363 | $8,909 | $2,227 | $2,227 | 0.4% | |
| Fundraising events Event | direct expenses; gross income - | $117,666 | reported apart | |||
| Total | $3,727,605 | 100% |
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2020 | $0 | $0 | 1 |
| 2018 | $15,000 | $0 | 2 |
| 2017 | $25,000 | $0 | 2 |
Largest awards · 2 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|---|---|---|---|---|
| 2018 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | 22ND SMA RESEARCHER MEETING | $15,000 |
| 2017 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | 21ST SMA RESEARCHER MEETING | $25,000 |
State business registration
- FAMILIES OF SMA, INC. FL, Foreign nonprofit corporation (FORNP), Active, formed 2001-05-22
The same business name in the same state, from the state’s official registry data.
Comments