FAMILIES OF SMA: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization: FAMILIES OF SMA (EIN 36-3320440)
Tax period: 2013-07-01 to 2014-06-30
Filed: 2014-11-12
IRS object ID: 201443169349301309
Schema version: 2013v3.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2014-11-12T09:04:22-06:00	ReturnTs
Tax Period End	2014-06-30	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	591818353	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	KAUFMAN ROSSIN & CO PA	BusinessNameLine1

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	2699 S BAYSHORE DRIVE	AddressLine1
City	MIAMI	City
State	FL	State
ZIP Code	33133	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2013-07-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	363320440	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	FAMILIES OF SPINAL MUSCULAR ATROPHY	BusinessNameLine1

Field	Value	IRS element (for citing)
Business Name Control	FAMI	BusinessNameControlTxt
Phone	8008861762	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	925 BUSSE ROAD	AddressLine1
City	ELK GROVE VILLAGE	City
State	IL	State
ZIP Code	60007	ZIPCode

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	KENNETH HOBBY	PersonNm
Person Title	PRESIDENT	PersonTitleTxt
Phone	8008861762	PhoneNum
Signature	2014-11-12	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	GEOFFREY ADAMS	PreparerPersonNm
PTIN	P00541065	PTIN
Phone	3058585600	PhoneNum
Preparation	2014-11-12	PreparationDt

Field	Value	IRS element (for citing)
Tax	2013	TaxYr
Build TS	2015-11-30 17:44:51Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	CURE SMA	BusinessNameLine1

Field	Value	IRS element (for citing)
Principal Officer	KENNETH HOBBY	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	925 BUSSE ROAD	AddressLine1
City	ELK GROVE VILLAGE	City
State	IL	State
ZIP Code	60007	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	$5,227,297	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CURESMA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1984	FormationYr
Legal Domicile State	IL	LegalDomicileStateCd
Activity Or Mission	DEVELOPING A TREATMENT AND CURE FOR SPINAL MUSCULAR ATROPHY; PROVIDING RESOURCES FOR PATIENTS & FAMILIES.	ActivityOrMissionDesc
Voting Members Governing Body	15	VotingMembersGoverningBodyCnt
Voting Members Independent	14	VotingMembersIndependentCnt
Total Employee	18	TotalEmployeeCnt
Total Volunteers	5000	TotalVolunteersCnt
Total Gross UBI	$122	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$4,596,877	PYContributionsGrantsAmt
CY Contributions Grants	$4,639,671	CYContributionsGrantsAmt
PY Program Service Revenue	$324,212	PYProgramServiceRevenueAmt
CY Program Service Revenue	$381,031	CYProgramServiceRevenueAmt
PY Investment Income	$13,901	PYInvestmentIncomeAmt
CY Investment Income	$3,452	CYInvestmentIncomeAmt
PY Other Revenue	-$2,662	PYOtherRevenueAmt
CY Other Revenue	$26,540	CYOtherRevenueAmt
PY Total Revenue	$4,932,328	PYTotalRevenueAmt
CY Total Revenue	$5,050,694	CYTotalRevenueAmt
PY Grants And Similar Paid	$1,232,668	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$1,004,654	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$1,137,972	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$1,355,302	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$15,413	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$1,361,698	CYTotalFundraisingExpenseAmt
PY Other Expenses	$2,137,256	PYOtherExpensesAmt
CY Other Expenses	$2,460,052	CYOtherExpensesAmt
PY Total Expenses	$4,507,896	PYTotalExpensesAmt
CY Total Expenses	$4,835,421	CYTotalExpensesAmt
PY Revenues Less Expenses	$424,432	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$215,273	CYRevenuesLessExpensesAmt
Total Assets BOY	$3,439,299	TotalAssetsBOYAmt
Total Assets EOY	$3,380,394	TotalAssetsEOYAmt
Total Liabilities BOY	$1,394,203	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$1,155,939	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$2,045,096	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$2,224,455	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	FAMILIES OF SPINAL MUSCULAR ATROPHY (D/B/A CURE SMA)FUNDS AND DIRECTS THE LEADING SMA RESEARCH PROGRAMS TO DEVELOP A TREATMENT AND CURE FOR THE DISEASE. THE SUCCESSFUL RESULTS AND PROGRESS THAT THE ORGANIZATION HAS DELIVERED, FROM BASIC RESEARCH TO DRUG DISCOVERY TO CLINICAL TRIALS, PROVIDE REAL HOPE FOR FAMILIES AND PATIENTS IMPACTED BY THE DISEASE. THE CHARITY HAS INVESTED OVER $57 MILLION IN RESEARCH AND BEEN INVOLVED IN FUNDING HALF OF ALL THE ONGOING NOVEL DRUG PROGRAMS FOR SMA. CURE SMA IS A NONPROFIT 501(C)(3) ORGANIZATION, WITH 31 CHAPTERS AND 110,000 MEMBERS AND SUPPORTERS THROUGHOUT THE UNITED STATES, AND IS DEDICATED TO CREATING A TREATMENT AND CURE BY: FUNDING AND ADVANCING A COMPREHENSIVE RESEARCH PROGRAM; SUPPORTING SMA FAMILIES THROUGH NETWORKING, INFORMATION AND SERVICES; IMPROVING CARE FOR ALL SMA PATIENTS; EDUCATING HEALTHCARE PROFESSIONALS AND THE PUBLIC ABOUT SMA; ENLISTING GOVERNMENT SUPPORT FOR SMA; EMBRACING ALL TOUCHED BY SMA IN A CARING COMMUNITY.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$1,273,503	ExpenseAmt
Revenue	$17,770	RevenueAmt
Desc	CURE SMA PROVIDES INVALUABLE SUPPORT AND SERVICES TO INDIVIDUALS AND FAMILIES SUCH AS MEDICAL INFORMATION, EQUIPMENT, FAMILY SUPPORT AND RESOURCES. LOCAL COMMUNITY SUPPORT IS AVAILABLE THROUGH OUR VAST VOLUNTEER NETWORK. FOR NEWLY DIAGNOSED FAMILIES WE PROVIDE EMOTIONAL SUPPORT AND WILL PROVIDE A COMPREHENSIVE INFORMATIONAL PACKET AS WELL AS A "CARE PACKAGE" OF TOYS FOR EACH CHILD, SPECIFIC TO THE DISEASE TYPE. CURE SMA HAS COMPREHENSIVE INFORMATION AVAILABLE ON CRITICAL TOPICS ON SMA MEDICAL CARE INCLUDING GENETICS, RESPIRATORY CARE, NUTRITION AND MUCH MORE. OUR MEMBERS ARE PROVIDED A SUBSCRIPTION TO OUR FAMILY SUPPORT NEWSLETTER CALLED DIRECTIONS THAT IS DEDICATED TO NEWS AND PROGRESS. COMPASS NEWSLETTER FOCUSES ON RESEARCH UPDATES, HIGHLIGHTING ALL MAJOR RESEARCH DEVELOPMENTS. WE OFFER SUPPORT PROGRAMS SUCH AS THE EQUIPMENT POOL, FREE OF CHARGE TO MEMBERS OF CURE SMA. THE POOL INCLUDES A WIDESPREAD LIST OF EQUIPMENT SUITABLE FOR SMA CHILDREN. WE ALSO OFFER THE "ASK THE EXPERT" SERVICE WHERE FAMILIES CAN GET ANSWERS TO IMPORTANT HEALTH-RELATED QUESTIONS FROM SMA PHYSICIANS AND CLINICIANS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$1,375,175	ExpenseAmt
Grant	$1,004,654	GrantAmt
Desc	CURE SMA HAS FUNDED NEARLY TWO THIRDS OF ALL THE ONGOING DRUG PROGRAMS FOR SMA. IN THE PAST 18 MONTHS, CURE SMA HAS FUNDED FIVE ADDITIONAL NEW DRUG PROGRAMS, INCLUDING THE FOLLOWING IN JUST THE PAST FEW MONTHS: ASSESSING SECOND-GENERATION ASO SEQUENCES FOR SMA; USING A PATIENT DERIVED MOTOR NEURON SCREEN TO IDENTIFY NOVEL SMA THERAPEUTICS; AND TESTING IN SMA MICE A DRUG THAT ENHANCES MUSCLE FUNCTION NOW IN PHASE II TRIALS FOR ALS. DEVELOPING NEW THERAPIES TO TREAT AND ULTIMATELY CURE SMA IS THE DRIVING FORCE BEHIND CURE SMA. TO ACHIEVE THIS GOAL, CURE SMA AGGRESSIVELY INVESTS IN BASIC RESEARCH TO IDENTIFY THERAPEUTIC APPROACHES AND THEN APPLIED DRUG DEVELOPMENT TO MAKE DRUGS. CURE SMA HAS FUNDED ALMOST TWO THIRDS OF ALL THE ONGOING DRUG PROGRAMS FOR SMA. CLEAR EVIDENCE OF PROGRESS IS BEING SEEN: 1) PROGRAMS ARE ADVANCING INTO THE CLINICAL TRIAL STAGE OF TESTING. 2) THERE IS BROAD DIVERSITY OF APPROACHES IN DEVELOPMENT. 3) THE TOTAL NUMBER OF PROGRAMS IS GROWING. 4) FUNDING AND RESOURCES FROM GOVERNMENT AND INDUSTRY ARE INCREASING. CLINICAL PROGRAMSOUR COMMUNITY HAS SEEN SUCCESS OVER RECENT YEARS IN ADVANCING BASIC RESEARCH DISCOVERIES FROM THE BENCH TO THE CLINIC. THERE ARE NOW 5 NOVEL PROGRAMS TESTING DRUGS IN HUMAN CLINICAL TRIALS FOR SMA:CURE SMA IS ATTACKING THE DISEASE FROM EVERY ANGLE POSSIBLE, AND THERE ARE NOW MORE NEW DRUG PROGRAMS IN DEVELOPMENT THAN AT ANY OTHER TIME.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$575,251	ExpenseAmt
Revenue	$381,031	RevenueAmt
Desc	CURE SMA HOSTED ITS 25TH ANNUAL NATIONAL CONFERENCE IN WASHINGTON DC. OVER 1350 FAMILIES AND MEMBERS OF THE SCIENTIFIC COMMUNITY FROM 23 COUNTRIES AROUND THE WORLD PARTICIPATED. THE CONFERENCE PROVIDES NETWORKING OPPORTUNITIES WITH OTHER FAMILIES, WORKSHOPS AND MEMORABLE CHILDREN'S PROGRAMING. IT IS THE GOAL OF CURE SMA TO PROVIDE THE FAMILIES WITH THE OPPORTUNITY TO INTERACT WITH RESEARCHERS AND MEDICAL PROVIDERS TO SHARE IDEAS AND HOPE FOR THE FUTURE.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$3,223,929	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	Yes (1)	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	0	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	0	ForeignActivitiesInd
More Than5000 K To Org	0	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	25	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Employee	18	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	15	GoverningBodyVotingMembersCnt
Independent Voting Member	14	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TX	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	KENNETH HOBBY	BusinessNameLine1

Field	Value	IRS element (for citing)
Phone	8008861762	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	925 BUSSE ROAD	AddressLine1
City	ELK GROVE VILLAGE	City
State	IL	State
ZIP Code	60007	ZIPCode

Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Highest Compensated EmployeeHighestCompensatedEmployeeInd
RICHARD RUBENSTEIN
BOARD CHAIR	6.00	Yes (X)	Yes (X)	$0	$0	$0
KENNETH HOBBY
PRESIDENT	70.00	Yes (X)	Yes (X)	$145,167	$0	$8,229
STEVE RAGLAND
SECRETARY	6.00	Yes (X)	Yes (X)	$0	$0	$0
BRAD NUNEMAKER
TREASURER	6.00	Yes (X)	Yes (X)	$0	$0	$0
ADI RAPPOPORT
DIRECTOR	2.00	Yes (X)		$0	$0	$0
NATALIE GIBBS
DIRECTOR	2.00	Yes (X)		$0	$0	$0
ROCCO ARIZZI
DIRECTOR	4.00	Yes (X)		$0	$0	$0
MARY MCHALE
DIRECTOR	2.00	Yes (X)		$0	$0	$0
DOUGLAS ERWIN
DIRECTOR	2.00	Yes (X)		$0	$0	$0
ROBERT LOCKWOOD
DIRECTOR	2.00	Yes (X)		$0	$0	$0
MELISSA MILINOVICH
DIRECTOR	2.00	Yes (X)		$0	$0	$0
JUSTIN KUESTER
DIRECTOR	2.00	Yes (X)		$0	$0	$0
BARB TRAINOR
DIRECTOR	2.50	Yes (X)		$0	$0	$0
COREY BRAASTAD
DIRECTOR	2.00	Yes (X)		$0	$0	$0
GREG ZERZAN
DIRECTOR	2.00	Yes (X)		$0	$0	$0
JILL JARECKI
RESEARCH DIRECTOR	70.00			$125,745	$0	$84	Yes (X)
THEODORE WACHHOLZ
OPERATIONS/FINANCE DIRECTO	50.00			$116,230	$0	$6,356	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$387,142	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$14,669	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	3	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K	0	CntrctRcvdGreaterThan100KCnt
Fundraising	$3,000,759	FundraisingAmt
Government Grants	$28,000	GovernmentGrantsAmt
All Other Contributions	$1,610,912	AllOtherContributionsAmt
Noncash Contributions	$105,099	NoncashContributionsAmt
Total Contributions	$4,639,671	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	ANNUAL CONFERENCE	Desc
Business	900099	BusinessCd
Total Revenue Column	$381,031	TotalRevenueColumnAmt
Related Or Exempt Func Income	$381,031	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$381,031	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,330	TotalRevenueColumnAmt
Exclusion	$3,330	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$10,096	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$9,974	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$122	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$122	TotalRevenueColumnAmt
Unrelated Business Revenue	$122	UnrelatedBusinessRevenueAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$175,399	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$3,000,759	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$166,629	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$8,770	TotalRevenueColumnAmt
Exclusion	$8,770	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	MISCELLANEOUS	Desc
Business	900099	BusinessCd
Total Revenue Column	$17,770	TotalRevenueColumnAmt
Related Or Exempt Func Income	$17,770	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$17,770	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$5,050,694	TotalRevenueColumnAmt
Related Or Exempt Func Income	$398,801	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$122	UnrelatedBusinessRevenueAmt
Exclusion	$12,100	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$1,004,654	TotalAmt
Program Services	$1,004,654	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$156,514	TotalAmt
Program Services	$104,343	ProgramServicesAmt
Management And General	$26,086	ManagementAndGeneralAmt
Fundraising	$26,085	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$1,067,752	TotalAmt
Program Services	$651,507	ProgramServicesAmt
Management And General	$83,053	ManagementAndGeneralAmt
Fundraising	$333,192	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$45,387	TotalAmt
Program Services	$30,222	ProgramServicesAmt
Management And General	$196	ManagementAndGeneralAmt
Fundraising	$14,969	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$85,649	TotalAmt
Program Services	$51,084	ProgramServicesAmt
Management And General	$8,264	ManagementAndGeneralAmt
Fundraising	$26,301	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$31,844	TotalAmt
Program Services	$15,804	ProgramServicesAmt
Management And General	$250	ManagementAndGeneralAmt
Fundraising	$15,790	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$36,362	TotalAmt
Program Services	$22,908	ProgramServicesAmt
Management And General	$7,727	ManagementAndGeneralAmt
Fundraising	$5,727	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$49,530	TotalAmt
Program Services	$48,241	ProgramServicesAmt
Management And General	$1,289	ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$15,413	TotalAmt
Fundraising	$15,413	FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$254,381	TotalAmt
Program Services	$99,250	ProgramServicesAmt
Management And General	$41,685	ManagementAndGeneralAmt
Fundraising	$113,446	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$57,920	TotalAmt
Program Services	$38,690	ProgramServicesAmt
Management And General	$9,611	ManagementAndGeneralAmt
Fundraising	$9,619	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$284,826	TotalAmt
Program Services	$176,934	ProgramServicesAmt
Management And General	$18,143	ManagementAndGeneralAmt
Fundraising	$89,749	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$132,542	TotalAmt
Program Services	$78,936	ProgramServicesAmt
Management And General	$6,400	ManagementAndGeneralAmt
Fundraising	$47,206	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$86,303	TotalAmt
Program Services	$56,988	ProgramServicesAmt
Management And General	$14,267	ManagementAndGeneralAmt
Fundraising	$15,048	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$99,614	TotalAmt
Program Services	$27,295	ProgramServicesAmt
Management And General	$17,671	ManagementAndGeneralAmt
Fundraising	$54,648	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$577,334	TotalAmt
Program Services	$575,251	ProgramServicesAmt
Management And General	$343	ManagementAndGeneralAmt
Fundraising	$1,740	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$39,846	TotalAmt
Program Services	$35,220	ProgramServicesAmt
Management And General	$2,313	ManagementAndGeneralAmt
Fundraising	$2,313	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$15,114	TotalAmt
Program Services	$10,076	ProgramServicesAmt
Management And General	$2,519	ManagementAndGeneralAmt
Fundraising	$2,519	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
FUNDRAISING EVENTS	$647,954	$89,196	$3,099	$555,659
PATIENT SERVICES	$111,143	$103,973		$7,170
MERCHANDISE	$23,076			$23,076
MISCELLANEOUS	$12,263	$3,357	$6,878	$2,028

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$4,835,421	TotalAmt
Program Services	$3,223,929	ProgramServicesAmt
Management And General	$249,794	ManagementAndGeneralAmt
Fundraising	$1,361,698	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$2,644,145	BOYAmt
EOY	$2,400,803	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$411,463	BOYAmt
EOY	$337,411	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$149,349	BOYAmt
EOY	$279,648	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$55,490	BOYAmt
EOY	$99,413	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$586,395	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$329,620	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$136,594	BOYAmt
EOY	$256,775	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$36,461	BOYAmt
EOY	$547	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$5,797	BOYAmt
EOY	$5,797	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,439,299	BOYAmt
EOY	$3,380,394	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$389,641	BOYAmt
EOY	$469,441	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$1,004,562	BOYAmt
EOY	$686,498	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$1,394,203	BOYAmt
EOY	$1,155,939	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$1,104,164	BOYAmt
EOY	$1,275,179	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$533,986	BOYAmt
EOY	$358,761	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$406,946	BOYAmt
EOY	$590,515	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$2,045,096	BOYAmt
EOY	$2,224,455	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,439,299	BOYAmt
EOY	$3,380,394	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	$215,273	ReconcilationRevenueExpnssAmt
Other Changes In Net Assets	-$35,914	OtherChangesInNetAssetsAmt
Info In Schedule O Part XII	Yes (X)	InfoInScheduleOPartXIIInd
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,553,474	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,603,995	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$4,241,909	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$4,596,877	CurrentTaxYearMinus1YearAmt
Current Tax Year	$4,639,671	CurrentTaxYearAmt
Total	$20,635,926	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,553,474	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,603,995	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$4,241,909	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$4,596,877	CurrentTaxYearMinus1YearAmt
Current Tax Year	$4,639,671	CurrentTaxYearAmt
Total	$20,635,926	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$20,635,926	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,892	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,278	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,193	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,391	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,330	CurrentTaxYearAmt
Total	$12,084	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$949,490	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$918,280	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$362,448	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$589,565	CurrentTaxYearMinus1YearAmt
Current Tax Year	$556,430	CurrentTaxYearAmt
Total	$3,376,213	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$24,024,223	TotalSupportAmt
Gross Receipts Rltd Activities	$2,769,908	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.85900	PublicSupportCY170Pct
Public Support PY170	0.85540	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Volunteers	0	VolunteersInd
Paid Staff Or Management	0	PaidStaffOrManagementInd
Media Advertisements	0	MediaAdvertisementsInd
Mailings Members	0	MailingsMembersInd
Publications Or Broadcast	0	PublicationsOrBroadcastInd
Grants Other Organizations	0	GrantsOtherOrganizationsInd
Direct Contact Legislators	0	DirectContactLegislatorsInd
Rallies Demonstrations	0	RalliesDemonstrationsInd
Other Activities	Yes (1)	OtherActivitiesInd
Other Activities	$49,530	OtherActivitiesAmt
Total Lobbying Expenditures	$49,530	TotalLobbyingExpendituresAmt
Not Described Section501c3	0	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART II-B, LINE 1:	FormAndLineReferenceDesc
Explanation	THE ORGANIZATION PAID WASHINGTON STRATEGIC CONSULTING, INC, A PROFESSIONAL LOBBYING FIRM, FEES TOTALING $49,530 TO LOBBY FOR LEGISLATION THAT BENEFITS THE ORGANIZATION'S MISSION AND TO KEEP THE ORGANIZATION'S MANAGEMENT INFORMED ABOUT LEGISLATION THAT MAY AFFECT THE ORGANIZATION'S MISSION.	ExplanationTxt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$436,946	BeginningYearBalanceAmt
Contributions	$181,698	ContributionsAmt
Investment Earnings Or Losses	$1,871	InvestmentEarningsOrLossesAmt
End Year Balance	$620,515	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$220,438	BeginningYearBalanceAmt
Contributions	$214,976	ContributionsAmt
Investment Earnings Or Losses	$1,532	InvestmentEarningsOrLossesAmt
End Year Balance	$436,946	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Contributions	$220,438	ContributionsAmt
End Year Balance	$220,438	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	0.04830	BoardDesignatedBalanceEOYPct
Prmnnt Endowment Balance EOY	0.95170	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$586,395	OtherCostOrOtherBasisAmt
Depreciation	$329,620	DepreciationAmt
Book Value	$256,775	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$256,775	TotalBookValueLandBuildingsAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$5,181,409	TotalRevEtcAuditedFinclStmtAmt
Other Revenue	$130,715	OtherRevenueAmt
Revenue Not Reported	$130,715	RevenueNotReportedAmt
Revenue Subtotal	$5,050,694	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$5,050,694	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$5,002,050	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	$166,629	OtherExpensesIncludedAmt
Expenses Not Reported	$166,629	ExpensesNotReportedAmt
Expenses Subtotal	$4,835,421	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$4,835,421	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART X, LINE 2:	THE ORGANIZATION ASSESSES ITS TAX POSITION IN ACCORDANCE WITH "ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES" AS PRESCRIBED BY THE ACCOUNTING STANDARDS CODIFICATION, WHICH PROVIDES GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN FOR OPEN TAX YEARS (GENERALLY A PERIOD OF THREE YEARS FROM THE LATER OF EACH RETURN'S DUE DATE OR THE DATE FILED) THAT REMAIN SUBJECT TO EXAMINATION BY THE ORGANIZATION'S MAJOR TAX JURISDICTIONS. THE ORGANIZATION BELIEVES THAT IT DOES NOT HAVE ANY SIGNIFICANT UNCERTAIN TAX POSITIONS REQUIRING RECOGNITION OR MEASUREMENT.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	SPECIAL EVENT EXPENSE 166,629. ASSET VALUE ADJUSTMENT -35,914.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	SPECIAL EVENT EXPENSES 166,629.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	0	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	EPIPHANY PRODUCTIONS INC	BusinessNameLine1

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	104 HUME AVENUE	AddressLine1
City	ALEXANDRIA	City
State	VA	State
ZIP Code	22301	ZIPCode

Field	Value	IRS element (for citing)
Activity	FUND RAISING CONSULTANT	ActivityTxt
Fundraiser Control Of Funds	0	FundraiserControlOfFundsInd
Gross Receipts	$0	GrossReceiptsAmt
Retained By Contractor	$0	RetainedByContractorAmt
Net To Organization	$0	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd
Licensed States	DC	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Name Of Event1	WALK & ROLL	NameOfEvent1Amt
Gross Receipts Event1	$1,079,594	GrossReceiptsEvent1Amt
Charitable Contri Event1	$981,127	CharitableContriEvent1Amt
Gross Revenue Event1	$98,467	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$93,544	OtherDirectExpensesEvent1Amt
Name Of Event2	DINNERS / GALAS	NameOfEvent2Amt
Gross Receipts Event2	$721,445	GrossReceiptsEvent2Amt
Charitable Contri Event2	$644,513	CharitableContriEvent2Amt
Gross Revenue Event2	$76,932	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$73,085	OtherDirectExpensesEvent2Amt
Other Events Total	206	OtherEventsTotalCnt
Gross Receipts Other Events	$1,375,119	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$1,375,119	CharitableContriOtherEventsAmt
Oth Direct Expnss Other Events	$0	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$3,176,158	GrossReceiptsTotalAmt
Charitable Contributions Tot	$3,000,759	CharitableContributionsTotAmt
Gross Revenue Total Events	$175,399	GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events	$166,629	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$166,629	DirectExpenseSummaryEventsAmt
Net Income Summary	$8,770	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

SCHEDULE G, PART I, LINE 2B, COLUMN (V)

EPIPHANY PRODUCTIONS, INC WAS PAID TO PROVIDE FUND RAISING AND CONSULTING SERVICES AND ADVICE. THE PAYMENTS DO NOT RELATE TO ANY SPECIFIC SPECIAL EVENT. THE FUNDRAISER DOES NOT TAKE POSSESSION OF ANY FUNDS.

FORM 990, SCHEDULE D, PART II, FUNDRAISING EVENTS

CURE SMA HAS MULTIPLE CHAPTERS IN MANY STATES WHOSE PURPOSE IS TO RAISE FUNDS FOR THE ORGANIZATION. THE AMOUNTS LISTED IN COLUMNS (A) AND (C) ARE SUMMARY AMOUNTS FOR MULTIPLE SIMILAR EVENTS HELD THROUGH OUT THE COUNTRY. AMOUNTS LISTED IN COLUMN (C) ARE FOR A VARIETY OF EVENTS HELD BY CHAPTERS THROUGHOUT THE COUNTRY. COLUMN (A): PARTICIPANTS IN THE WALK AND ROLL EVENTS RECEIVE NO DIRECT BENEFITS OTHER THAN A TEE-SHIRT AND ACCESS TO BEVERAGES ALONG THE RACE PATH AND AT THE END OF THE RACE PATH. COLUMN (C): OTHER EVENTS ARE SIMILAR IN NATURE TO THE CURE SMA WALK AND ROLLS, SUCH AS FUN-RUNS OR 5K RUNS, AND NO OTHER BENEFITS ARE RECEIVED OTHER THAN A TEE-SHIRT OR RACE BEVERAGES. OTHER EVENTS ARE NOT HELD UNDER THE NATIONALLY BRANDED NAME "WALK AND ROLL" WHICH ARE COORDINATED AND PROMOTED AS A NATION-WIDE FUNDRAISING EVENT BY CURE SMA.

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (10 entries)

Address Line1USAddress/AddressLine1	CityUSAddress/City	StateUSAddress/State	ZIP CodeUSAddress/ZIPCode	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line1ForeignAddress/AddressLine1	CityForeignAddress/City	CountryForeignAddress/Country
INDIANA UNIVERSITY
620 UNION DRIVE RM 518	INDIANAPOLIS	IN	46202	356001373	501(C)(3)	$30,312	IDENTIFY AND RECRUIT SMA PATIENTS AND FAMILIES. TRACK RESEARCH STUDIES, EXPAND AWARENESS AND THE USE OF THE REGISTRY.
THE UNIVERSITY OF SOUTHERN CALIFORNIA
837 DOWNEY WAY	LOS ANGELES	CA	96150	956006143	501(C)(3)	$75,000	RESEARCH OF NOVEL NEUROMUSCULAR PREPARATIONS
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	311036372	501(C)(3)	$125,000	IND ENABLINGS STUDIES FOR A CNS DELIVERED GENE THERAPY
UNIVERSITY OF COLORADO-DENVER
PO BOX 910238	DENVER	CO	80291	846000555	501(C)(3)	$95,000	RESEARCH GRANT
CALIFORNIA INSTITUTE OF BIOMEDICAL RESEARCH
10931 NORTH TORREY PINES ROAD	LA JOLLA	CA	92037	453682796	501(C)(3)	$195,000	RESEARCH GRANT - DRUG DISCOVERY
COLD SPRING HARBOR LABRATORY
ONE BUNGTOWN ROAD	COLD SPRING HARBOR	NY	11724	112013303	501(C)(3)	$150,000	RESEARCH GRANT - DRUG DISCOVERY
UNIVERSITY OF EDINBURGH
				943145385	501(C)(3)	$55,000	RESEARCH GRANT	OLD COLLEGE SOUTH BRIDGE	EDINBURGH	UK
THE JACKSON LABRATORY
600 MAIN ST	BAR HARBOR	ME	04609	010211513	501(C)(3)	$89,342	RESEARCH GRANT
HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF MILITARY MEDICINE
6720 A ROCKLEDGE DR	BETHESDA	MD	20817	521317896	501(C)(3)	$95,000	RESEARCH GRANT
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$95,000	RESEARCH GRANT

Field	Value	IRS element (for citing)
Total501c3 Org	10	Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

DETAILED REQUIREMENTS MADE OF RECIPIENTS IN GRANT CONTRACTS: RECIPIENTS SHALL PROVIDE THE ORGANIZATION WITH REPORTS OF THE WORK PERFORMED UNDER THIS AGREEMENT IN ACCORDANCE WITH THE FOLLOWING SCHEDULE: QUARTERLY WRITTEN PROGRESS REPORTS DUE WITHIN THIRTY (30) DAYS AFTER THE END OF THE QUARTER. RECIPIENTS SHALL ALSO SUBMIT TO THE ORGANIZATION A COMPREHENSIVE FINAL REPORT WITHIN NINETY (90) DAYS OF TERMINATION OF THE RESEARCH PROJECT. FOR THE PURPOSE OF IDENTIFYING PATENTABLE INVENTIONS NOT COVERED BY PRE EXISTING PATENTS, RECIPIENTS SHALL SUBMIT A COPY OF ALL PROPOSED PUBLICATIONS, PAPERS, AND ANY OTHER WRITTEN DISCLOSURE OF SUCH DATA OR INFORMATION TO THE ORGANIZATION AT LEAST THIRTY (30) DAYS PRIOR TO SUBMISSION FOR PUBLICATION OR DISCLOSURE TO A THIRD PARTY.

SCHEDULE I, PART II

CERTAIN GRANT PAYMENTS ARE MADE TO GRANTEES BASED ON RESEARCH MILESTONES BEING MET. THESE AMOUNTS ARE NOT INCLUDED IN THE GRANTS PAYABLE. AS OF THE END OF THE CURRENT YEAR, FUTURE AMOUNTS OF THESE PAYMENTS ARE ESTIMATED TO BE $410,000.

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

Field	Value	IRS element (for citing)
Person	KENNETH HOBBY	PersonNm
Title	PRESIDENT	TitleTxt
Base Compensation Filing Org	$145,167	BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs	$0	CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization	$0	BonusFilingOrganizationAmount
Bonus Related Organizations	$0	BonusRelatedOrganizationsAmt
Other Compensation Filing Org	$0	OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs	$0	OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org	$0	DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs	$0	DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org	$8,229	NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs	$0	NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org	$153,396	TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs	$0	TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org	$0	CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs	$0	CompReportPrior990RltdOrgsAmt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	6	ContributionCnt
Noncash Contributions Rpt F990	$19,424	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FAIR MARKET VALUE	MethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	SEE PART II	Desc
Contribution	1	ContributionCnt
Noncash Contributions Rpt F990	$85,675	NoncashContributionsRptF990Amt
Method Of Determining Revenues	RETAIL RENTAL VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	0	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 33:	FormAndLineReferenceDesc
Explanation	EXPLANATION: PAGE 1, LINE 25: DONATED RENTAL EQUIPMENT FOR SPECIAL EVENTS	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11	THE EXECUTIVE COMMITTEE OF THE BOARD AND THE PRESIDENT PERFORM AN INITIAL REVIEW OF FORM 990. AFTER ACCEPTANCE OF FORM 990 BY THE EXECUTIVE COMMITTEE OF THE BOARD AND THE PRESIDENT, FORM 990 IS EMAILED TO THE FULL BOARD FOR REVIEW AND COMMENT BEFORE IT IS FILED.
FORM 990, PART VI, SECTION B, LINE 12C	MEMBERS OF THE BOARD OF DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL STATEMENT DISCLOSING ANY POSSIBLE CONFLICTS OF INTEREST.
FORM 990, PART VI, SECTION B, LINE 15	PRESIDENT'S COMPENSATION - APPROVED BY THE BOARD OF DIRECTORS. THE BOARD'S EXECUTIVE COMMITTEE CONDUCTS A MARKET SURVEY OF THE POSITION USING INDEPENDENT COMPENSATION SOURCES, AND THEN PRESENTS A RECOMMENDATION TO THE FULL BOARD FOR APPROVAL.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE REQUEST FOR DOCUMENTS CAN BE MADE IN WRITING OR BY PHONE BY CONTACTING THE NATIONAL OFFICE. WHEN A REQUEST IS MADE FOR DOCUMENTS, THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS APPROVES THE RELEASE OF THE DOCUMENTS.
FORM 990, PART XI, LINE 9:	ASSET VALUE ADJUSTMENT -35,914.
FORM 990, PAGE 12, PART XII, QUESTION 2C:	NO CHANGES WERE MADE TO THE AUDIT OVERSIGHT PROCESS FOR THE CURRENT YEAR.