RESEARCH DOWN SYNDROME

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Plain text RESEARCH DOWN SYNDROME. furp.org, nonprofit organization profile, tax years 2014. https://furp.org/org/research-down-syndrome-270477191. Retrieved 2026-10-26.

APA furp.org. (n.d.). RESEARCH DOWN SYNDROME [Nonprofit organization profile; tax years 2014]. Retrieved October 26, 2026, from https://furp.org/org/research-down-syndrome-270477191

MLA “RESEARCH DOWN SYNDROME.” furp.org, tax years 2014, https://furp.org/org/research-down-syndrome-270477191. Accessed 26 Oct. 2026.

Retrieved 2026-10-26; covers tax years 2014. Data: furp.org, CC BY 4.0.

2014 · Form 990 · revenue $510K · expenses $568K · assets $361K

EIN
27-0477191
Address
115 PARKER DRIVE, GRAYSLAKE, IL 60030
Website
www.researchds.org
NTEE code
-
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary
Ruling date
-
IRS status
Exemption revoked May 15, 2018 for not filing a return three years in a row (automatic revocation; posted August 13, 2018) IRS data ↗
Cross-check
ProPublica Nonprofit Explorer

Mission

The mission of Research Down Syndrome is

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Robert Schoen DIRECTOR/PRESIDENT2014 $103,000$103,000 1

Officers and directors, no compensation reported

3 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Mary Beth Schoen DIRECTOR/SECRETARY2014 10 $0 reported 1
Daniel K Flatley DIRECTOR/TREASURER2014 10 $0 reported 1
Patricia White Flatley DIRECTOR2014 10 $0 reported 1

People by year

2014 · 4 people listed · 1 paid, $103K · 2 employees · 25 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ROBERT SCHOEN DIRECTOR/PRESIDENT50 $103,000$0$0 $103,0001
MARY BETH SCHOEN DIRECTOR/SECRETARY10 $0$0$0 $01
DANIEL K FLATLEY DIRECTOR/TREASURER10 $0$0$0 $01
PATRICIA WHITE FLATLEY DIRECTOR10 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2014 · 6 grants to organizations · $315K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$510,000$567,519 $361,164$287,638 $653,722$0 $103,000225

Funders of this organization

9 grantors reported grants to this organization, $539,502 in all, tax years 2011 to 2016. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FORGOOD INC DAF sponsor Exact 2011-2016 6$428,512 2016$16,867
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THE ANNA AND JOHN J SIE FOUNDATION Private foundation Fuzzy filed as “Research Down Syndrome” 2014 1$100,000 2014$100,000
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BANK OF AMERICA CHARITABLE FOUNDATION INC Private foundation Fuzzy filed as “RESEARCH DOWN SYNDROME” 2012-2014 8$5,000 2014$275
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ANDREAS FOUNDATION Private foundation Fuzzy filed as “RESEARCH DOWN SYNDROME” 2012 1$3,500 2012$3,500
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DAVINO FAMILY FOUNDATION INC Private foundation Fuzzy filed as “RESEARCH DOWN SYNDROME” 2011 1$1,000 2011$1,000
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JPMORGAN CHASE FOUNDATION Private foundation Fuzzy filed as “RESEARCH DOWN SYNDROME” 2012-2015 4$720 2015$60
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THE BERNSTEIN FAMILY FOUNDATION Private foundation Fuzzy filed as “RESEARCH DOWN SYNDROME” 2012 1$500 2012$500
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JENSEN FAMILY FOUNDATION Private foundation Fuzzy filed as “RESEARCH DOWN SYNDROME” 2013 1$250 2013$250
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CHARITY PARTNERS FOUNDATION INC Private foundation Fuzzy filed as “RESEARCH DOWN SYNDROME” 2014-2015 2$20 2015$9
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Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
RETT SYNDROME RESEARCH TRUST INCCTE12 $8,678,380$8,239,349 CHIEF EXECUTIVE OFFICER$220,000 Similar name, revenue differs more than 10x
DOWN SYNDROME ROCKSCAL24 $7,149$7,545 PRESIDENT/CE$0 Similar name, revenue differs more than 10x

Who funds organizations like this

Grantors that funded the 2 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
TULL FAM FOUNDATION Private foundation$3,340,0007 12017–2024 RETT SYNDROME RESEARCH TRUST INC
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$1,789,6079 12016–2024 RETT SYNDROME RESEARCH TRUST INC
DONOR ADVISED CHARITABLE GIVING DAF sponsor$929,61210 12015–2024 RETT SYNDROME RESEARCH TRUST INC
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$889,7167 12019–2025 RETT SYNDROME RESEARCH TRUST INC
NATIONAL PHILANTHROPIC TR DAF sponsor$884,05011 12014–2024 RETT SYNDROME RESEARCH TRUST INC
RANDALL FAMILY FOUNDATION Private foundation$395,0004 12019–2024 RETT SYNDROME RESEARCH TRUST INC
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor$360,50014 12014–2024 RETT SYNDROME RESEARCH TRUST INC
V&L MARX FOUNDATION Private foundation$300,0006 12020–2025 RETT SYNDROME RESEARCH TRUST INC
THE BLACKBAUD GIVING FUND DAF sponsor$275,8946 12017–2025 RETT SYNDROME RESEARCH TRUST INC
PAYPAL CHARITABLE GIVING FUND DAF sponsor$227,5707 12015–2024 RETT SYNDROME RESEARCH TRUST INC
WINSTON FOUNDATION INC Private foundation$205,0007 12018–2024 RETT SYNDROME RESEARCH TRUST INC
GOLDMAN SACHS CHARITABLE GIFT FUND DAF sponsor$162,5006 12019–2024 RETT SYNDROME RESEARCH TRUST INC
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$128,3105 12020–2024 RETT SYNDROME RESEARCH TRUST INC
FORGOOD INC funds this one DAF sponsor$122,0828 12011–2022 RETT SYNDROME RESEARCH TRUST INC
BILGER FOUNDATION TR Private foundation$100,00010 12016–2025 RETT SYNDROME RESEARCH TRUST INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2014 · Form 990 · $567,519 spent · pay $147,758 · grants $315,000 · events $182,051
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $315,000$315,000-- 55.5%
Pay: officers, directors, trustees, key employees $103,000$72,100$15,450$15,450 18.1%
Other salaries and wages $31,802$0$10,590$21,212 5.6%
Advertising and promotion $30,594$12,693$1,144$16,757 5.4%
Fees: other services $17,605$0$0$17,605 3.1%
Other (as described)CREDIT CARD PROCESSING FEES $14,611$0$0$14,611 2.6%
Fees: accounting $10,744$0$10,744$0 1.9%
Payroll taxes $10,313$5,548$1,980$2,785 1.8%
Office expenses $7,194$2,878$2,518$1,798 1.3%
Occupancy $6,000$3,000$1,500$1,500 1.1%
Travel $5,422$3,795$0$1,627 1.0%
Information technology $3,366$1,683$0$1,683 0.6%
Conferences, conventions and meetings $3,251$3,251$0$0 0.6%
Other employee benefits $2,643$0$880$1,763 0.5%
Insurance $2,382$0$2,382$0 0.4%
Other (as described)PRINTING/COPYING EXPENSES $1,549$387$775$387 0.3%
Other (as described)MEMBERSHIPS, DUES, AND SUBSCRIPTIONS $1,343$1,000$343$0 0.2%
Other (as described)STATE REGISTRATION/FILING FEES $700$0$700$0 0.1%
Fundraising events Eventdirect expenses; gross income $34,700$178,800reported apart
Total$567,519100%

View the filing

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