RESEARCH DOWN SYNDROME
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Plain text RESEARCH DOWN SYNDROME. furp.org, nonprofit organization profile, tax years 2014. https://furp.org/org/research-down-syndrome-270477191. Retrieved 2026-10-26.
APA furp.org. (n.d.). RESEARCH DOWN SYNDROME [Nonprofit organization profile; tax years 2014]. Retrieved October 26, 2026, from https://furp.org/org/research-down-syndrome-270477191
MLA “RESEARCH DOWN SYNDROME.” furp.org, tax years 2014, https://furp.org/org/research-down-syndrome-270477191. Accessed 26 Oct. 2026.
Retrieved 2026-10-26; covers tax years 2014. Data: furp.org, CC BY 4.0.
2014 · Form 990 · revenue $510K · expenses $568K · assets $361K
- EIN
- 27-0477191
- Address
- 115 PARKER DRIVE, GRAYSLAKE, IL 60030
- Website
- www.researchds.org
- NTEE code
- -
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary
- Ruling date
- -
- IRS status
- Exemption revoked May 15, 2018 for not filing a return three years in a row (automatic revocation; posted August 13, 2018) IRS data ↗
- Cross-check
- ProPublica Nonprofit Explorer
Mission
The mission of Research Down Syndrome is
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Robert Schoen | DIRECTOR/PRESIDENT | 2014 | $103,000 | $103,000 | 1 |
Officers and directors, no compensation reported
3 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Mary Beth Schoen | DIRECTOR/SECRETARY | 2014 | 10 | $0 reported | 1 |
| Daniel K Flatley | DIRECTOR/TREASURER | 2014 | 10 | $0 reported | 1 |
| Patricia White Flatley | DIRECTOR | 2014 | 10 | $0 reported | 1 |
People by year
2014 · 4 people listed · 1 paid, $103K · 2 employees · 25 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBERT SCHOEN | DIRECTOR/PRESIDENT | 50 | $103,000 | $0 | $0 | $103,000 | 1 |
| MARY BETH SCHOEN | DIRECTOR/SECRETARY | 10 | $0 | $0 | $0 | $0 | 1 |
| DANIEL K FLATLEY | DIRECTOR/TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA WHITE FLATLEY | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2014 · 6 grants to organizations · $315K
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2014 · Form 990 | ||||||||
| $510,000 | $567,519 | $361,164 | $287,638 | $653,722 | $0 | $103,000 | 2 | 25 |
Funders of this organization
9 grantors reported grants to this organization, $539,502 in all, tax years 2011 to 2016. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FORGOOD INC | DAF sponsor | Exact | 2011-2016 | 6 | $428,512 | 2016 | $16,867 | show |
| THE ANNA AND JOHN J SIE FOUNDATION | Private foundation | Fuzzy filed as “Research Down Syndrome” | 2014 | 1 | $100,000 | 2014 | $100,000 | show |
| BANK OF AMERICA CHARITABLE FOUNDATION INC | Private foundation | Fuzzy filed as “RESEARCH DOWN SYNDROME” | 2012-2014 | 8 | $5,000 | 2014 | $275 | show |
| ANDREAS FOUNDATION | Private foundation | Fuzzy filed as “RESEARCH DOWN SYNDROME” | 2012 | 1 | $3,500 | 2012 | $3,500 | show |
| DAVINO FAMILY FOUNDATION INC | Private foundation | Fuzzy filed as “RESEARCH DOWN SYNDROME” | 2011 | 1 | $1,000 | 2011 | $1,000 | show |
| JPMORGAN CHASE FOUNDATION | Private foundation | Fuzzy filed as “RESEARCH DOWN SYNDROME” | 2012-2015 | 4 | $720 | 2015 | $60 | show |
| THE BERNSTEIN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “RESEARCH DOWN SYNDROME” | 2012 | 1 | $500 | 2012 | $500 | show |
| JENSEN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “RESEARCH DOWN SYNDROME” | 2013 | 1 | $250 | 2013 | $250 | show |
| CHARITY PARTNERS FOUNDATION INC | Private foundation | Fuzzy filed as “RESEARCH DOWN SYNDROME” | 2014-2015 | 2 | $20 | 2015 | $9 | show |
Similar organizations
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| RETT SYNDROME RESEARCH TRUST INC | CT | E12 | $8,678,380 | $8,239,349 | CHIEF EXECUTIVE OFFICER | $220,000 | Similar name, revenue differs more than 10x |
| DOWN SYNDROME ROCKS | CA | L24 | $7,149 | $7,545 | PRESIDENT/CE | $0 | Similar name, revenue differs more than 10x |
Who funds organizations like this
Grantors that funded the 2 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2014 · Form 990 · $567,519 spent · pay $147,758 · grants $315,000 · events $182,051
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $315,000 | $315,000 | - | - | 55.5% | |
| Pay: officers, directors, trustees, key employees | $103,000 | $72,100 | $15,450 | $15,450 | 18.1% | |
| Other salaries and wages | $31,802 | $0 | $10,590 | $21,212 | 5.6% | |
| Advertising and promotion | $30,594 | $12,693 | $1,144 | $16,757 | 5.4% | |
| Fees: other services | $17,605 | $0 | $0 | $17,605 | 3.1% | |
| Other (as described) | CREDIT CARD PROCESSING FEES | $14,611 | $0 | $0 | $14,611 | 2.6% |
| Fees: accounting | $10,744 | $0 | $10,744 | $0 | 1.9% | |
| Payroll taxes | $10,313 | $5,548 | $1,980 | $2,785 | 1.8% | |
| Office expenses | $7,194 | $2,878 | $2,518 | $1,798 | 1.3% | |
| Occupancy | $6,000 | $3,000 | $1,500 | $1,500 | 1.1% | |
| Travel | $5,422 | $3,795 | $0 | $1,627 | 1.0% | |
| Information technology | $3,366 | $1,683 | $0 | $1,683 | 0.6% | |
| Conferences, conventions and meetings | $3,251 | $3,251 | $0 | $0 | 0.6% | |
| Other employee benefits | $2,643 | $0 | $880 | $1,763 | 0.5% | |
| Insurance | $2,382 | $0 | $2,382 | $0 | 0.4% | |
| Other (as described) | PRINTING/COPYING EXPENSES | $1,549 | $387 | $775 | $387 | 0.3% |
| Other (as described) | MEMBERSHIPS, DUES, AND SUBSCRIPTIONS | $1,343 | $1,000 | $343 | $0 | 0.2% |
| Other (as described) | STATE REGISTRATION/FILING FEES | $700 | $0 | $700 | $0 | 0.1% |
| Fundraising events Event | direct expenses; gross income $34,700 | $178,800 | reported apart | |||
| Total | $567,519 | 100% |
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