RESEARCH DOWN SYNDROME: Form 990, tax year 2014

View the entire original 990 at ProPublica ↗

Organization
RESEARCH DOWN SYNDROME (EIN 27-0477191)
Tax period
2014-01-01 to 2014-12-31
Filed
2015-08-12
IRS object ID
201502249349302205
Schema version
2014v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2015-08-12T10:38:38-07:00ReturnTs
Tax Period End2014-12-31TaxPeriodEndDt

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Preparer Firm Name PreparerFirmName

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Business Name Line1FIRAK ACCOUNTING & COBusinessNameLine1Txt

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CityHUNTLEYCityNm
State AbbreviationILStateAbbreviationCd
ZIP60142ZIPCd
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Return Type990ReturnTypeCd
Tax Period Begin2014-01-01TaxPeriodBeginDt

Filer Filer

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EIN270477191EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1RESEARCH DOWN SYNDROMEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlRESEBusinessNameControlTxt
Phone8778632121PhoneNum

US Address USAddress

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Address Line1115 PARKER DRIVEAddressLine1Txt
CityGRAYSLAKECityNm
State AbbreviationILStateAbbreviationCd
ZIP60030ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonROBERT SCHOENPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone8778632121PhoneNum
Signature2015-08-12SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJASON FIRAKPreparerPersonNm
Phone8473475403PhoneNum
Preparation2015-08-12PreparationDt
Self EmployedYes (X)SelfEmployedInd
FieldValueIRS element (for citing)
Tax2014TaxYr
Build TS2016-02-25 16:41:14ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerROBERT SCHOENPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1115 PARKER DRIVEAddressLine1Txt
CityGRAYSLAKECityNm
State AbbreviationILStateAbbreviationCd
ZIP60030ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$688,800GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.researchds.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2009FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionThe mission of Research Down Syndrome is to raise awareness of and fund scientific research directed towards the development of safe and effective drug therapies that will improve memory, learning and communication in persons with Down syndrome and address the increased likelihood for Alzheimer's disease.ActivityOrMissionDesc
Voting Members Governing Body4VotingMembersGoverningBodyCnt
Voting Members Independent3VotingMembersIndependentCnt
Total Employee2TotalEmployeeCnt
Total Volunteers25TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$607,594PYContributionsGrantsAmt
CY Contributions Grants$653,722CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$371PYInvestmentIncomeAmt
CY Investment Income$378CYInvestmentIncomeAmt
PY Other Revenue-$27,276PYOtherRevenueAmt
CY Other Revenue-$144,100CYOtherRevenueAmt
PY Total Revenue$580,689PYTotalRevenueAmt
CY Total Revenue$510,000CYTotalRevenueAmt
PY Grants And Similar Paid$305,321PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$315,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$146,190PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$147,758CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$97,178CYTotalFundraisingExpenseAmt
PY Other Expenses$109,772PYOtherExpensesAmt
CY Other Expenses$104,761CYOtherExpensesAmt
PY Total Expenses$561,283PYTotalExpensesAmt
CY Total Expenses$567,519CYTotalExpensesAmt
PY Revenues Less Expenses$19,406PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$57,519CYRevenuesLessExpensesAmt
Total Assets BOY$353,333TotalAssetsBOYAmt
Total Assets EOY$361,164TotalAssetsEOYAmt
Total Liabilities BOY$8,176TotalLiabilitiesBOYAmt
Total Liabilities EOY$73,526TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$345,157NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$287,638NetAssetsOrFundBalancesEOYAmt
MissionThe mission of Research Down Syndrome isMissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$350,445ExpenseAmt
Grant$315,000GrantAmt
DescRESEARCH DOWN SYNDROME RAISED FUNDS THROUGH GENERAL PUBLIC SUPPORT, ASSOCIATION SUPPORT, FUNDRAISING EVENTS AND CORPORATE SUPPORT IN 2014. THE FUNDS RAISED IN 2014 ALLOWED RESEARCH DOWN SYNDROME TO GRANT $315,000 IN AWARDS IN 2014 TO LEADING DOWN SYNDROME COGNITIVE RESEARCH INSTITUTIONS ACROSS THE COUNTRY AND TO SUPPORT SCIENTIFIC MEETINGS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$35,445ExpenseAmt
DescRESEARCH DOWN SYNDROME INTERACTED WITH THE NATIONAL DOWN SYNDROME RESEARCH CONSORTIUM, NATIONAL DOWN SYNDROME ORGANIZATIONS, AN AFFILIATION OF DOWN SYNDROME COMMUNITY ASSOCIATIONS, INDIVIDUAL DOWN SYNDROME ASSOCIATIONS NATIONWIDE, AND OTHER MEMBERS OF THE DOWN SYNDROME COMMUNITY, ALONG WITH THE BROADER PUBLIC, TO RAISE AWARENESS OF DOWN SYNDROME COGNITIVE RESEARCH AND PROVIDE UPDATES ON THE PROGRESS OF THIS RESEARCH.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$35,445ExpenseAmt
DescIN ADDITION TO SUPPORTING THE FOUNDATION MISSION OF SPREADING AWARENESS OF DOWN SYNDROME COGNITIVE RESEARCH AND RAISING FUNDS TO SUPPORT THESE SCIENTIFIC STUDIES, RESEARCH DOWN SYNDROME IN 2014 CONTINUED TO BE A RECOGNIZED NATIONAL LEADER IN ADVOCATING FOR INCREASED LIFE OPPORTUNITIES FOR PERSONS WITH DOWN SYNDROME. RESEARCH DOWN SYNDROME PARTICIPATED IN NATIONAL FORUMS TO ADVOCATE FOR INCREASED PUBLIC SUPPORT OF THIS RESEARCH, AND TO ENGAGE WITH OTHER PARTICIPANTS IN THE DOWN SYNDROME RESEARCHDesc
FieldValueIRS element (for citing)
Total Program Service Expenses$421,335TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
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Credit CounselingfalseCreditCounselingInd
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Nondeductible Contri DisclYes (true)NondeductibleContriDisclInd
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Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members4GoverningBodyVotingMembersCnt
Independent Voting Member3IndependentVotingMemberCnt
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Compensation Process CEOYes (true)CompensationProcessCEOInd
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Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonROBERT SCHOENPersonNm
Phone8778632121PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1115 PARKER DRIVEAddressLine1Txt
CityGRAYSLAKECityNm
State AbbreviationILStateAbbreviationCd
ZIP60030ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (4 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
ROBERT SCHOEN
DIRECTOR/PRESIDENT50.00Yes (X)Yes (X)$103,000$0$0
MARY BETH SCHOEN
DIRECTOR/SECRETARY10.00Yes (X)Yes (X)$0$0$0
DANIEL K FLATLEY
DIRECTOR/TREASURER10.00Yes (X)Yes (X)$0$0$0
PATRICIA WHITE FLATLEY
DIRECTOR10.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$103,000TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
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Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$328,100FundraisingAmt
All Other Contributions$325,622AllOtherContributionsAmt
Total Contributions$653,722TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$378TotalRevenueColumnAmt
Exclusion$378ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$34,700FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$328,100ContriRptFundraisingEventAmt
Fundraising Direct Expenses$178,800FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$144,100TotalRevenueColumnAmt
Exclusion-$144,100ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$510,000TotalRevenueColumnAmt
Exclusion-$143,722ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$315,000TotalAmt
Program Services$315,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$103,000TotalAmt
Program Services$72,100ProgramServicesAmt
Management And General$15,450ManagementAndGeneralAmt
Fundraising$15,450FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$31,802TotalAmt
Program Services$0ProgramServicesAmt
Management And General$10,590ManagementAndGeneralAmt
Fundraising$21,212FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$2,643TotalAmt
Program Services$0ProgramServicesAmt
Management And General$880ManagementAndGeneralAmt
Fundraising$1,763FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$10,313TotalAmt
Program Services$5,548ProgramServicesAmt
Management And General$1,980ManagementAndGeneralAmt
Fundraising$2,785FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$10,744TotalAmt
Program Services$0ProgramServicesAmt
Management And General$10,744ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$17,605TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$17,605FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$30,594TotalAmt
Program Services$12,693ProgramServicesAmt
Management And General$1,144ManagementAndGeneralAmt
Fundraising$16,757FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$7,194TotalAmt
Program Services$2,878ProgramServicesAmt
Management And General$2,518ManagementAndGeneralAmt
Fundraising$1,798FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$3,366TotalAmt
Program Services$1,683ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$1,683FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$6,000TotalAmt
Program Services$3,000ProgramServicesAmt
Management And General$1,500ManagementAndGeneralAmt
Fundraising$1,500FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$5,422TotalAmt
Program Services$3,795ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$1,627FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$3,251TotalAmt
Program Services$3,251ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$2,382TotalAmt
Program Services$0ProgramServicesAmt
Management And General$2,382ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
STATE REGISTRATION/FILING FEES$700$0$700$0
CREDIT CARD PROCESSING FEES$14,611$0$0$14,611
MEMBERSHIPS, DUES, AND SUBSCRIPTIONS$1,343$1,000$343$0
PRINTING/COPYING EXPENSES$1,549$387$775$387

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$567,519TotalAmt
Program Services$421,335ProgramServicesAmt
Management And General$49,006ManagementAndGeneralAmt
Fundraising$97,178FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$16,558BOYAmt
EOY$47,772EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$214,272BOYAmt
EOY$298,217EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$100,000BOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$22,503BOYAmt
EOY$15,175EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$353,333BOYAmt
EOY$361,164EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$8,176BOYAmt
EOY$73,526EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$8,176BOYAmt
EOY$73,526EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$245,157BOYAmt
EOY$287,638EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$100,000BOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$345,157BOYAmt
EOY$287,638EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$353,333BOYAmt
EOY$361,164EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$57,519ReconcilationRevenueExpnssAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewYes (true)AccountantCompileOrReviewInd

Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
FS AuditedfalseFSAuditedInd
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$452,089CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$437,131CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$711,343CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$607,594CurrentTaxYearMinus1YearAmt
Current Tax Year$653,722CurrentTaxYearAmt
Total$2,861,879TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$452,089CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$437,131CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$711,343CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$607,594CurrentTaxYearMinus1YearAmt
Current Tax Year$653,722CurrentTaxYearAmt
Total$2,861,879TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$2,861,879PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$264CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$478CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$495CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$371CurrentTaxYearMinus1YearAmt
Current Tax Year$378CurrentTaxYearAmt
Total$1,986TotalAmt
FieldValueIRS element (for citing)
Total Support$2,863,865TotalSupportAmt
Public Support CY1700.99930PublicSupportCY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind
Public Support Total509$0PublicSupportTotal509Amt
Public Support CY5090PublicSupportCY509Pct
Investment Income CY0InvestmentIncomeCYPct

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Tribute 21Event1Nm
Gross Receipts Event1$219,609GrossReceiptsEvent1Amt
Charitable Contri Event1$196,809CharitableContriEvent1Amt
Gross Revenue Event1$22,800GrossRevenueEvent1Amt
Rent Facility Costs Event1$40,229RentFacilityCostsEvent1Amt
Food And Beverage Event1$6,412FoodAndBeverageEvent1Amt
Entertainment Event1$7,875EntertainmentEvent1Amt
Other Direct Expenses Event1$91,268OtherDirectExpensesEvent1Amt
Event2Dallas Golf ClassicEvent2Nm
Gross Receipts Event2$107,721GrossReceiptsEvent2Amt
Charitable Contri Event2$102,721CharitableContriEvent2Amt
Gross Revenue Event2$5,000GrossRevenueEvent2Amt
Rent Facility Costs Event2$12,027RentFacilityCostsEvent2Amt
Other Direct Expenses Event2$5,249OtherDirectExpensesEvent2Amt
Other Events Total1OtherEventsTotalCnt
Gross Receipts Other Events$35,470GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$28,570CharitableContriOtherEventsAmt
Gross Revenue Other Events$6,900GrossRevenueOtherEventsAmt
Food And Beverage Other Events$11,710FoodAndBeverageOtherEventsAmt
Oth Direct Expnss Other Events$4,030OthDirectExpnssOtherEventsAmt
Gross Receipts Total$362,800GrossReceiptsTotalAmt
Charitable Contributions Tot$328,100CharitableContributionsTotAmt
Gross Revenue Total Events$34,700GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$52,256RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$18,122FoodAndBeverageTotalEventsAmt
Entertainment Total Events$7,875EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$100,547OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$178,800DirectExpenseSummaryEventsAmt
Net Income Summary-$144,100NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (6 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
University of Arizona
1503 E University BlvdTucsonAZ85721186600479$55,000See Sch I, Part IV
Stanford University
Gilbert RM 420AStanfordCA94305941156365$32,500See Sch I, Part IV
University of California San Diego
9500 Gilman DriveLa JollaCA92093195600614$85,000See Sch I, Part IV
Johns Hopkins University
725 North Wolfe StreetBaltimoreMD21025521479934$50,000See Sch I, Part IV
VA Palo Alto Health Care System
3801 Miranda Ave 151YPalo AltoCA94304143734072$32,500See Sch I, Part IV
Emory University School of Medicine
615 Michael St Room 305CAtlantaGA30322580566256$60,000See Sch I, Part IV
FieldValueIRS element (for citing)
Total Other Org6TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Pt I Line 2A final project progress report must be submitted by grantees no later than eight (8) weeks following the date a grant is terminated. Research Down Syndrome (RDS) may require additional progress reports at any time during an award period as a condition of continuing the award. Each Progress Report should include a nontechnical summary, as well as a detailed scientific report of the progress of the research under the RDS Research Grant. The Progress Report should clearly identify and describe specific research, associated results, and their significance as supported by the RDS Research Grant funds.
OtherPart II Line 1, Section (h): The purpose of all grants made in 2014 was to support Down syndrome cognitive research.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Pt VI, Line 2A family relationship exists between director Robert Schoen and Mary Beth Schoen who are brother and sister. A family relationship also exists between director Daniel Flatley and Patricia White Flatley who are husband and wife.
Pt VI, Line 8bNo committee's exist with the authority to act on behalf of the governing body. All meetings of the governing body and actions undertaken by the governing body were documented.
Pt VI, Line 11bForm 990 is provided to all directors and members of the governing body of Research Down Syndrome to review before it is filed, and a meeting between the Chairman/Treasurer, President/Director, and the Form 990 preparer takes place before Form 990 is filed.
Pt VI, Line 12cThe Board of Directors of Research Down Syndrome reviews the written conflict of interest policy and disclosures annually, and conducts periodic reviews to insure compliance with the written policy.
Pt VI, Line 15aThe compensation of the Executive Director/President of Research Down Syndrome is determined by the Board of Directors, and all deliberations and decisions of the board regarding compensation are documented. Compensation is determined based on a number of factors including current trends in non-profit salaries of similar organizations across the country and budget figures for the 2014 calendar year. During 2014, no other officers or key employees received compensation from Research Down Syndrome so question 15b in Part VI does not apply for 2014.
Pt VI, Line 19The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.

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