ALPORT SYNDROME FOUNDATION INC
Cite this
Plain text ALPORT SYNDROME FOUNDATION INC. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/208237159. Retrieved 2026-10-21.
APA furp.org. (n.d.). ALPORT SYNDROME FOUNDATION INC [Nonprofit organization profile; tax years 2010–2024]. Retrieved October 21, 2026, from https://furp.org/org/208237159
MLA “ALPORT SYNDROME FOUNDATION INC.” furp.org, tax years 2010–2024, https://furp.org/org/208237159. Accessed 21 Oct. 2026.
Retrieved 2026-10-21; covers tax years 2010–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $1.2M · expenses $1.0M · assets $2.8M
- EIN
- 20-8237159
- Address
- 1608 E BRIARWOOD TER, PHOENIX, AZ 85048-9414
- Website
- ALPORTSYNDROME.ORG
- NTEE code
- E86
- Subsection
- 501(c)(3)
- Ruling year
- 2007
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Lisa Bonebrake | EXECUTIVE DIRECTOR | 2017-2024 | $105,000 | $105,000 | 1 |
| Gina Parziale (former) | EXECUTIVE DIRECTOR TO 7/2019 | 2016-2019 | $76,613 | $384,082 | 1 |
Officers and directors, no compensation reported
24 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Andrew Kronenberg | BOARD CHAIR | 2017-2024 | 10 | $0 reported | 1 |
| Ryan Linder | SECRETARY | 2018-2024 | 2 | $0 reported | 1 |
| Daniel Kilpatrick | TREASURER | 2024 | 5 | $0 reported | 1 |
| Sharon Lagas | CO-FOUNDER, DIRECTOR PAST CHAIR | 2010-2024 | 5 | $0 reported | 1 |
| Amy Rhodes | DIRECTOR | 2023-2024 | 5 | $0 reported | 1 |
| December West | DIRECTOR | 2024 | 1 | $0 reported | 1 |
| Marty Dunleavy | DIRECTOR | 2024 | 1 | $0 reported | 1 |
| Phillip Kumnick | DIRECTOR | 2018-2024 | 1 | $0 reported | 1 |
| Stephen Malach | DIRECTOR | 2022-2024 | 1 | $0 reported | 1 |
| Martin Dunleavy (former) | TREASURER | 2015-2023 | 6 | $0 reported | 1 |
| Andre Weinstock (former) | DIRECTOR RESEARCH CHAIR | 2017-2023 | 10 | $0 reported | 1 |
| Daniel Kilpattrick (former) | DIRECTOR FINANCE COMMITTEE | 2023 | 2 | $0 reported | 1 |
| Janine Reed (former) | DIRECTOR | 2019-2022 | 6 | $0 reported | 1 |
| Jennifer Beauchamp (former) | DIRECTOR | 2019-2020 | 2 | $0 reported | 1 |
| Michael Panella (former) | DIRECTOR | 2010-2018 | 10 | $0 reported | 1 |
| Vint Degraw (former) | DIRECTOR THRU 5/2018 | 2010-2018 | 5 | $0 reported | 1 |
| Stanley Silver (former) | DIRECTOR THRU 8/2018 | 2010-2018 | 30 | $0 reported | 1 |
| Jane Schneirov (former) | DIRECTOR | 2013-2016 | 5 | $0 reported | 1 |
| Karen Gaylord (former) | DIRECTOR | 2014-2015 | 2 | $0 reported | 1 |
| Jeffery Ross (former) | DIRECTOR | 2012-2014 | 15 | $0 reported | 1 |
| Margaret Blue (former) | SECRETARY | 2010-2013 | 2 | $0 reported | 1 |
| Cynthia Arnold (former) | DIRECTOR | 2011-2012 | 3 | $0 reported | 1 |
| Vint De Graw (former) | VICE PRESIDENT | 2011 | 3 | $0 reported | 1 |
| Jeff Ross (former) | BOARD MEMBER | 2011 | 10 | $0 reported | 1 |
People by year
2024 · 10 people listed · 1 paid, $105K · 5 employees · 95 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LISA BONEBRAKE | EXECUTIVE DIRECTOR | 65 | $105,000 | $0 | $0 | $105,000 | 1 |
| ANDREW KRONENBERG | BOARD CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| RYAN LINDER | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| DANIEL KILPATRICK | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| SHARON LAGAS | CO-FOUNDER, DIRECTOR PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| AMY RHODES | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DECEMBER WEST | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARTY DUNLEAVY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PHILLIP KUMNICK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| STEPHEN MALACH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 10 people listed · none paid · 2 employees · 179 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ANDREW KRONENBERG | BOARD CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| RYAN LINDER | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| SHARON LAGAS | CO-FOUNDER, DIRECTOR PAST CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANDRE WEINSTOCK | DIRECTOR RESEARCH CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| AMY RHODES | DIRECTOR FB MODERATOR | 4 | $0 | $0 | $0 | $0 | 1 |
| DANIEL KILPATTRICK | DIRECTOR FINANCE COMMITTEE | 2 | $0 | $0 | $0 | $0 | 1 |
| PHILLIP KUMNICK | DIRECTOR DEV. CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEPHEN MALACH | DIRECTOR PROGRAM CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| LISA BONEBRAKE | EXECUTIVE DIRECTOR | 65 | $0 | $0 | $0 | $0 | 1 |
2022 · 9 people listed · none paid · 2 employees · 249 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ANDREW KRONENBERG | CHAIR | 3 | $0 | $0 | $0 | $0 | 1 |
| RYAN LINDER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| SHARON LAGAS | CO-FOUNDER DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANDRE WEINSTOCK | RESEARCH CHAIR DIRECTOR | 8 | $0 | $0 | $0 | $0 | 1 |
| JANINE REED | DIRECTOR | 6 | $0 | $0 | $0 | $0 | 1 |
| PHILLIP KUMNICK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| STEPHEN MALACH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA BONEBRAKE | EXECUTIVE DIRECTOR | 65 | $0 | $0 | $0 | $0 | 1 |
2021 · 8 people listed · none paid · 2 employees · 282 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ANDREW KRONENBERG | CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| RYAN LINDER | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| SHARON LAGAS | CO-FOUNDER PAST CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| ANDRE WEINSTOCK | DIRECTOR | 8 | $0 | $0 | $0 | $0 | 1 |
| JANINE REED | DIRECTOR | 6 | $0 | $0 | $0 | $0 | 1 |
| PHILLIP KUMNICK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA BONEBRAKE | EXECUTIVE DIRECTOR | 40 | $0 | $0 | $0 | $0 | 1 |
2020 · 9 people listed · none paid · 1 employee · 83 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ANDREW KRONENBERG | CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| RYAN LINDER | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| SHARON LAGAS | CO-FOUNDER PAST CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| ANDRE WEINSTOCK | DIRECTOR | 8 | $0 | $0 | $0 | $0 | 1 |
| JANINE REED | DIRECTOR | 6 | $0 | $0 | $0 | $0 | 1 |
| PHILLIP KUMNICK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER BEAUCHAMP | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA BONEBRAKE | EXECUTIVE DIRECTOR | 40 | $0 | $0 | $0 | $0 | 1 |
2019 · 10 people listed · 1 paid, $77K · 2 employees · 8 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| GINA PARZIALE | EXECUTIVE DIRECTOR TO 7/2019 | 40 | $73,815 | $0 | $2,798 | $76,613 | 1 |
| ANDREW KRONENBERG | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| RYAN LINDER | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| SHARON LAGAS | CO-FOUNDER PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| ANDRE WEINSTOCK | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| PHILLIP KUMNICK | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER BEAUCHAMP | DIRECTOR FROM 2/2019 | 5 | $0 | $0 | $0 | $0 | 1 |
| JANINE REED | DIRECTOR FROM 12/2019 | 5 | $0 | $0 | $0 | $0 | 1 |
| LISA BONEBRAKE | EXEC DIR FROM 8/2019/ DIR.COMM. TO 7/2019 | 40 | $0 | $0 | $0 | $0 | 1 |
2018 · 11 people listed · 1 paid, $115K · 1 employee · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| GINA PARZIALE | EXECUTIVE DIRECTOR | 50 | $108,014 | $0 | $7,452 | $115,466 | 1 |
| SHARON LAGAS | CHAIR | 40 | $0 | $0 | $0 | $0 | 1 |
| ANDREW KRONENBERG | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| RYAN LINDER | SECRETARY | 3 | $0 | $0 | $0 | $0 | 1 |
| LISA BONEBRAKE | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| ANDRE WEINSTOCK | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| PHILLIP KUMNICK | DIRECTOR FROM 04/2018 | 3 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | DIRECTOR THRU 5/2018 | 5 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | DIRECTOR THRU 8/2018 | 30 | $0 | $0 | $0 | $0 | 1 |
2017 · 9 people listed · 1 paid, $108K · 1 employee · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| GINA PARZIALE | EXECUTIVE DIRECTOR | 50 | $106,911 | $0 | $650 | $107,561 | 1 |
| SHARON LAGAS | PRESIDENT | 40 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | VICE PRESIDENT | 5 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ANDREW KRONENBERG | DIRECTOR 3/2017 -12/2017 | 5 | $0 | $0 | $0 | $0 | 1 |
| ANDRE WEINSTOCK | DIRECTOR 6/2017 -12/2017 | 3 | $0 | $0 | $0 | $0 | 1 |
| LISA BONEBRAKE | DIRECTOR 9/2017 -12/2017 | 3 | $0 | $0 | $0 | $0 | 1 |
2016 · 7 people listed · 1 paid, $84K · 1 employee · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| GINA PARZIALE | EXECUTIVE DIRECTOR | 50 | $84,442 | $0 | $0 | $84,442 | 1 |
| SHARON LAGAS | PRESIDENT | 40 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | VICE PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| JANE SCHNEIROV | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
2015 · 7 people listed · none paid · 0 employees · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SHARON LAGAS | PRESIDENT | 40 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | VICE PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| JANE SCHNEIROV | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| KAREN GAYLORD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARTIN DUNLEAVY | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
2014 · 7 people listed · none paid · 0 employees · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SHARON LAGAS | PRESIDENT | 30 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | VICE PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| JEFFERY ROSS | DIRECTOR | 15 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| JANE SCHNEIROV | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KAREN GAYLORD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2013 · 7 people listed · none paid · 0 employees · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SHARON LAGAS | PRESIDENT | 30 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | VICE PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| MARGARET BLUE | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| JEFFERY ROSS | DIRECTOR | 15 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| JANE SCHNEIROV | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
2012 · 7 people listed · none paid · 0 employees · 53 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SHARON LAGAS | PRESIDENT | 25 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | VICE PRES | 5 | $0 | $0 | $0 | $0 | 1 |
| MARGARET BLUE | SECRETARY | 3 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| JEFFERY ROSS | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| CYNTHIA ARNOLD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
2011 · 7 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SHARON LAGAS | PRESIDENT | 25 | $0 | - | - | $0 | 1 |
| VINT DE GRAW | VICE PRESIDENT | 3 | $0 | - | - | $0 | 1 |
| MARGARET BLUE | SECRETARY | 1 | $0 | - | - | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | - | - | $0 | 1 |
| MICHAEL PANELLA | BOARD MEMBER | 5 | $0 | - | - | $0 | 1 |
| JEFF ROSS | BOARD MEMBER | 10 | $0 | - | - | $0 | 1 |
| CYNTHIA ARNOLD | BOARD MEMBER | 5 | $0 | - | - | $0 | 1 |
2010 · 5 people listed · none paid · 0 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SHARON LAGAS | PRESIDENT | 25 | $0 | $0 | $0 | $0 | 1 |
| VINT DEGRAW | VICE PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| MARGARET BLUE | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| STANLEY SILVER | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PANELLA | BOARD MEMBER | 10 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2023 · 1 contractor · $103K
| Name | Location | Service | Paid |
|---|---|---|---|
| L BONEBRAKE LLC | SAN DIEGO, CA | MANAGEMENT SERVICES | $103,335 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 3 grants to organizations · $315K
Listed grants add up to $314,631; the return's “grants paid” expense line says $324,631. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 1 grant to organizations · $97K
Listed grants add up to $97,151; the return's “grants paid” expense line says $111,151. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 2 grants to organizations · $92K
Listed grants add up to $92,268; the return's “grants paid” expense line says $100,268. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 2 grants to organizations · $158K
Listed grants add up to $158,000; the return's “grants paid” expense line says $163,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 1 grant to organizations · $35K
Listed grants add up to $35,289; the return's “grants paid” expense line says $167,289. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 3 grants to organizations · $331K
Listed grants add up to $331,067; the return's “grants paid” expense line says $338,067. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 1 grant to organizations · $25K
Listed grants add up to $25,000; the return's “grants paid” expense line says $279,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 1 grant to organizations · $50K
Listed grants add up to $50,000; the return's “grants paid” expense line says $102,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 1 grant to organizations · $50K
Listed grants add up to $50,000; the return's “grants paid” expense line says $176,200. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 2 grants to organizations · $60K
Listed grants add up to $60,000; the return's “grants paid” expense line says $65,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 2 grants to organizations · $150K
Listed grants add up to $150,000; the return's “grants paid” expense line says $156,050. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 1 grant to organizations · $25K
Listed grants add up to $25,000; the return's “grants paid” expense line says $127,250. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 2 grants to organizations · $75K
Listed grants add up to $75,000; the return's “grants paid” expense line says $77,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $1,194,735 | $1,003,948 | $2,817,931 | $2,801,393 | $1,063,256 | $0 | $105,000 | 5 | 95 |
| 2023 · Form 990 | ||||||||
| $1,016,405 | $612,534 | $2,669,586 | $2,638,419 | $953,036 | $0 | $0 | 2 | 179 |
| 2022 · Form 990 | ||||||||
| $990,673 | $499,455 | $2,277,966 | $2,235,475 | $990,503 | $0 | $0 | 2 | 249 |
| 2021 · Form 990 | ||||||||
| $993,526 | $478,020 | $1,762,638 | $1,744,722 | $993,479 | $0 | $0 | 2 | 282 |
| 2020 · Form 990 | ||||||||
| $738,552 | $438,250 | $1,307,819 | $1,229,216 | $738,310 | $0 | $0 | 1 | 83 |
| 2019 · Form 990 | ||||||||
| $552,035 | $656,048 | $1,069,034 | $928,914 | $548,370 | $0 | $65,112 | 2 | 8 |
| 2018 · Form 990 | ||||||||
| $806,994 | $693,773 | $1,206,840 | $1,032,927 | $803,620 | $0 | $116,966 | 1 | 60 |
| 2017 · Form 990 | ||||||||
| $664,301 | $427,654 | $930,216 | $919,706 | $658,922 | $0 | $111,961 | 1 | 60 |
| 2016 · Form 990 | ||||||||
| $570,777 | $515,256 | $772,448 | $683,059 | $574,905 | $0 | $94,442 | 1 | 60 |
| 2015 · Form 990 | ||||||||
| $272,033 | $184,677 | $583,786 | $577,538 | $270,761 | $0 | $0 | 0 | 60 |
| 2014 · Form 990 | ||||||||
| $387,045 | $247,984 | $492,809 | $490,182 | $382,352 | $0 | $0 | 0 | 60 |
| 2013 · Form 990 | ||||||||
| $206,809 | $219,212 | $353,476 | $353,476 | $206,350 | $0 | $0 | 0 | 60 |
| 2012 · Form 990 | ||||||||
| $274,642 | $169,002 | $365,879 | $365,879 | $216,610 | $54,129 | $0 | 0 | 53 |
| 2011 · Form 990EZ | ||||||||
| $191,021 | $132,147 | $260,657 | $260,657 | $150,049 | - | - | - | - |
| 2010 · Form 990 | ||||||||
| $213,544 | $87,269 | $201,783 | $201,783 | $75,138 | $0 | $0 | 0 | 50 |
Funders of this organization
34 grantors reported grants to this organization, $832,961 in all, tax years 2011 to 2025; the 25 largest shown (all 34). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2021-2024 | 4 | $187,650 | 2024 | $129,750 | show |
| FORGOOD INC | DAF sponsor | Exact | 2017-2023 | 7 | $130,331 | 2023 | $6,446 | show |
| NOT IN GOOD TASTE INC | Public charity | Exact | 2011-2019 | 9 | $121,250 | 2019 | $11,250 | show |
| COMMUNITY FOUNDATION OF NEW JERSEY | DAF sponsor | Exact | 2015-2017 | 3 | $85,100 | 2017 | $35,100 | show |
| KENNETH AND CLAUDIA SILVERMAN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION” | 2011-2012 | 2 | $65,000 | 2012 | $60,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2021-2024 | 4 | $54,082 | 2024 | $18,085 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2024 | 1 | $26,500 | 2024 | $26,500 | show |
| ERNST & YOUNG FOUNDATION | DAF sponsor | Exact | 2021-2022, 2024 | 3 | $26,000 | 2024 | $10,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2022-2024 | 3 | $20,590 | 2024 | $7,790 | show |
| THE MARCIA AND NED KAPLIN FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION”, “ALPORT SYNDROME FOUNDATION INC” | 2016, 2020-2025 | 8 | $15,000 | 2025 | $2,000 | show |
| GLOBAL GENES | Public charity | Exact | 2017 | 1 | $15,000 | 2017 | $15,000 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2024 | 1 | $11,799 | 2024 | $11,799 | show |
| WILLIAM AND EVELYN FUCHS FAMILY FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION” | 2025 | 1 | $10,000 | 2025 | $10,000 | show |
| TIMOTHY AND MICHELE BARAKETT FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION” | 2019 | 1 | $10,000 | 2019 | $10,000 | show |
| STARKEY HEARING FOUNDATION | Public charity | Exact | 2012 | 1 | $10,000 | 2012 | $10,000 | show |
| PFIZER FOUNDATION INC | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” | 2022-2024 | 5 | $6,618 | 2024 | $6,168 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” | 2020-2023 | 4 | $6,444 | 2023 | $1,566 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2022 | 1 | $5,545 | 2022 | $5,545 | show |
| SIMPLISTIC FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” | 2025 | 1 | $5,000 | 2025 | $5,000 | show |
| POSES FAMILY FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION” | 2024 | 1 | $5,000 | 2024 | $5,000 | show |
| US VENTURE-SCHMIDT FAMILY FOUNDATION INC | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” | 2022 | 1 | $5,000 | 2022 | $5,000 | show |
| KAHN FOUNDATION INC | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION”, “ALPORT SYNDROME FOUNDATION INC” | 2013-2014, 2016, 2023-2024 | 5 | $2,500 | 2024 | $250 | show |
| ROSS FAMILY FUND INC | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” | 2024-2025 | 2 | $2,000 | 2025 | $1,000 | show |
| WINDHAM FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION” | 2020-2024 | 5 | $1,750 | 2024 | $200 | show |
| EDWARD JONES FOUNDATION | Private foundation | Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” | 2023-2024 | 2 | $1,207 | 2024 | $1,000 | show |
Similar organizations
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| BALLER DREAM FOUNDATION | AZ | E86 | $1,352,422 | $1,162,309 | CHIEF DEVELOPMENT OFFICER | $175,000 | Same NTEE code E86, revenue within 2x, same state |
| AMANDA HOPE RAINBOW ANGELS | AZ | E86 | $1,463,310 | $1,316,189 | FOUNDER, CEO PRESIDENT | $131,100 | Same NTEE code E86, revenue within 2x, same state |
| PHOENIX CANCER SUPPORT NETWORK | AZ | E86 | $608,407 | $598,925 | President | $12,000 | Same NTEE code E86, revenue within 2x, same state |
| BEADS OF COURAGE INC | AZ | E86 | $1,210,566 | $1,189,745 | MISSION OFF | $78,587 | Same NTEE code E86, revenue within 2x, same state |
| ADULT DAY CARE SERVICES INC | AZ | E86 | $932,128 | $952,937 | PRESIDENT & ED | $144,678 | Same NTEE code E86, revenue within 2x, same state |
| VERDECARES INC | AZ | E86 | $677,978 | $492,247 | Founding Director | $75,000 | Same NTEE code E86, revenue within 2x, same state |
| ISABELLA SANTOS FOUNDATION | NC | E86 | $2,012,617 | $2,012,869 | President | $141,042 | Same NTEE code E86, revenue within 2x, similar mission |
| AMEDISYS FOUNDATION | LA | E86 | $893,790 | $1,183,392 | DIRECTOR | $0 | Same NTEE code E86, revenue within 2x |
| RAYMOND A WOOD FOUNDATION INC | MD | E86 | $727,951 | $496,707 | EXECUTIVE DIRECTOR | $72,571 | Same NTEE code E86, revenue within 2x |
| FAIR HAVEN FOUNDATION INC | IN | E86 | $1,157,774 | $1,320,439 | PRESIDENT | $90,575 | Same NTEE code E86, revenue within 2x |
| LIMB KIND FOUNDATION INC | NY | E86 | $759,660 | $955,333 | CEO | $153,514 | Same NTEE code E86, revenue within 2x |
| PARKINSON FOUNDATION OF OKLAHOMA | OK | E86 | $617,758 | $717,206 | EXECUTIVE DI | $91,932 | Same NTEE code E86, revenue within 2x |
| OHANA HERITAGE FOUNDATION INC | IN | E86 | $2,378,917 | $2,045,246 | CEO | $150,896 | Same NTEE code E86, revenue within 2x |
| THE MARTY LYONS FOUNDATION INC | NY | E86 | $903,546 | $1,422,905 | Executive Dir. | $102,000 | Same NTEE code E86, revenue within 2x |
| THE HEIMERDINGER FOUNDATION INC | TN | E86 | $760,573 | $643,020 | Executive Director | $83,000 | Same NTEE code E86, revenue within 2x |
| BEAUTY BUS FOUNDATION | CA | E86 | $1,367,730 | $907,694 | Executive Dir. | $155,250 | Same NTEE code E86, revenue within 2x |
| TEDDY BEAR CANCER FOUNDATION | CA | E86 | $1,648,669 | $2,058,691 | Executive Director | $158,716 | Same NTEE code E86, revenue within 2x |
| IMD GUEST HOUSE FOUNDATION | IL | E86 | $2,169,191 | $1,957,097 | Executive Director | $150,265 | Same NTEE code E86, revenue within 2x |
| HAILEY MAYZ FOUNDATION | CA | E86 | $1,611,438 | $1,753,955 | PRESIDENT/CHAIRMAN | $0 | Same NTEE code E86, revenue within 2x |
| DOWN SYNDROME ASSOCIATION OF DELAWARE | DE | E86 | $720,269 | $856,083 | EXECUTIVE DIRECTOR | $100,058 | Same NTEE code E86, revenue within 2x |
| CATCH A DREAM FOUNDATION | MS | E86 | $1,562,324 | $1,300,926 | EXECUTIVE DIRECTOR | $165,000 | Same NTEE code E86, revenue within 2x |
| MAKE A WISH FOUNDATION OF EAST TENNESSEE INC | TN | E86 | $1,474,962 | $1,473,043 | CEO | $116,496 | Same NTEE code E86, revenue within 2x |
| JOHN THEISSEN CHILDRENS FOUNDATION | NY | E86 | $2,175,115 | $2,083,853 | EXECUTIVE DIRECTOR | $109,077 | Same NTEE code E86, revenue within 2x |
| ILLUMINATION HEALTH INC | NJ | E86 | $1,583,335 | $1,272,522 | PRESIDENT | $0 | Same NTEE code E86, revenue within 2x |
| F C CANCER FOUNDATION | CA | E86 | $940,174 | $804,400 | President | $130,000 | Same NTEE code E86, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $1,003,948 spent · pay $376,180 · grants $324,631 · events $77,636
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $314,631 | $314,631 | - | - | 31.3% | |
| Other salaries and wages | $242,828 | $215,913 | $20,540 | $6,375 | 24.2% | |
| Pay: officers, directors, trustees, key employees | $105,000 | $93,362 | $8,881 | $2,757 | 10.5% | |
| Information technology | $99,589 | $99,589 | - | - | 9.9% | |
| Conferences, conventions and meetings | $77,636 | $77,474 | $98 | $64 | 7.7% | |
| Travel | $48,358 | $43,054 | $4,048 | $1,256 | 4.8% | |
| Office expenses | $29,635 | $15,155 | $8,578 | $5,902 | 3.0% | |
| Payroll taxes | $28,352 | $25,210 | $2,398 | $744 | 2.8% | |
| Fees: accounting | $22,371 | $5,593 | $15,659 | $1,119 | 2.2% | |
| Depreciation and depletion | $11,198 | $9,957 | $947 | $294 | 1.1% | |
| Grants to US individuals | $10,000 | $10,000 | - | - | 1.0% | |
| Advertising and promotion | $6,474 | - | - | $6,474 | 0.6% | |
| Insurance | $4,421 | $3,931 | $374 | $116 | 0.4% | |
| Fees: other services | $3,455 | $3,124 | $253 | $78 | 0.3% | |
| Total | $1,003,948 | 100% |
2023 · Form 990 · $612,534 spent · pay $151,973 · grants $111,151 · events $44,119
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $141,115 | $133,156 | $7,163 | $796 | 23.0% | |
| Fees: management | $104,168 | $72,917 | $20,834 | $10,417 | 17.0% | |
| Grants to US organizations and governments | $97,151 | $97,151 | - | - | 15.9% | |
| Information technology | $63,712 | $63,712 | - | - | 10.4% | |
| Travel | $57,922 | $49,904 | $6,300 | $1,718 | 9.5% | |
| Conferences, conventions and meetings | $44,119 | $43,999 | $89 | $31 | 7.2% | |
| Office expenses | $32,098 | $19,795 | $6,932 | $5,371 | 5.2% | |
| Fees: accounting | $23,033 | $5,758 | $16,123 | $1,152 | 3.8% | |
| Grants to US individuals | $14,000 | $14,000 | - | - | 2.3% | |
| Depreciation and depletion | $10,983 | $9,445 | $1,208 | $330 | 1.8% | |
| Payroll taxes | $10,858 | $10,246 | $551 | $61 | 1.8% | |
| Advertising and promotion | $6,325 | - | - | $6,325 | 1.0% | |
| Insurance | $4,714 | $4,206 | $411 | $97 | 0.8% | |
| Fees: other services | $2,336 | $2,336 | - | - | 0.4% | |
| Total | $612,534 | 100% |
2022 · Form 990 · $499,455 spent · pay $145,098 · grants $100,268 · events $17,486
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $134,582 | $126,507 | $6,729 | $1,346 | 26.9% | |
| Fees: management | $95,437 | $71,578 | $19,087 | $4,772 | 19.1% | |
| Grants to US organizations and governments | $92,268 | $92,268 | - | - | 18.5% | |
| Information technology | $57,138 | $57,138 | - | - | 11.4% | |
| Office expenses | $23,787 | $13,543 | $6,305 | $3,939 | 4.8% | |
| Fees: accounting | $22,960 | $6,115 | $15,622 | $1,223 | 4.6% | |
| Conferences, conventions and meetings | $17,486 | $17,486 | - | - | 3.5% | |
| Depreciation and depletion | $13,708 | $11,789 | $1,508 | $411 | 2.7% | |
| Advertising and promotion | $12,059 | - | - | $12,059 | 2.4% | |
| Payroll taxes | $10,516 | $9,885 | $526 | $105 | 2.1% | |
| Grants to US individuals | $8,000 | $8,000 | - | - | 1.6% | |
| Insurance | $4,917 | $4,374 | $432 | $111 | 1.0% | |
| Travel | $3,734 | $2,924 | $637 | $173 | 0.7% | |
| Fees: other services | $2,863 | $1,123 | $1,740 | - | 0.6% | |
| Total | $499,455 | 100% |
2021 · Form 990 · $478,020 spent · pay $85,258 · grants $163,500 · events $22,327
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $158,000 | $158,000 | - | - | 33.1% | |
| Fees: management | $90,343 | $58,723 | $27,103 | $4,517 | 18.9% | |
| Other salaries and wages | $78,939 | $62,046 | $9,275 | $7,618 | 16.5% | |
| Information technology | $32,785 | $32,339 | $245 | $201 | 6.9% | |
| Conferences, conventions and meetings | $22,327 | $22,327 | - | - | 4.7% | |
| Fees: accounting | $22,100 | $18,550 | $1,273 | $2,277 | 4.6% | |
| Office expenses | $21,523 | $10,548 | $5,955 | $5,020 | 4.5% | |
| Fees: other services | $19,729 | $19,259 | $258 | $212 | 4.1% | |
| Depreciation and depletion | $9,096 | $7,149 | $1,069 | $878 | 1.9% | |
| Advertising and promotion | $7,099 | - | - | $7,099 | 1.5% | |
| Payroll taxes | $6,259 | $4,920 | $735 | $604 | 1.3% | |
| Grants to US individuals | $5,500 | $5,500 | - | - | 1.2% | |
| Insurance | $4,260 | $3,348 | $501 | $411 | 0.9% | |
| Other employee benefits | $60 | $47 | $7 | $6 | 0.0% | |
| Total | $478,020 | 100% |
2020 · Form 990 · $438,250 spent · pay $73,636 · grants $167,289 · events $15,397
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $125,000 | $125,000 | - | - | 28.5% | |
| Fees: management | $83,339 | $54,371 | $24,801 | $4,167 | 19.0% | |
| Other salaries and wages | $63,928 | $51,142 | $6,393 | $6,393 | 14.6% | |
| Grants to US organizations and governments | $35,289 | $35,289 | - | - | 8.1% | |
| Information technology | $31,902 | $31,902 | - | - | 7.3% | |
| Fees: accounting | $22,430 | $19,144 | $893 | $2,393 | 5.1% | |
| Office expenses | $15,919 | $8,590 | $3,890 | $3,439 | 3.6% | |
| Conferences, conventions and meetings | $13,372 | $13,372 | - | - | 3.1% | |
| Fees: other services | $12,082 | $11,638 | $222 | $222 | 2.8% | |
| Grants to US individuals | $7,000 | $7,000 | - | - | 1.6% | |
| Depreciation and depletion | $6,179 | $4,943 | $618 | $618 | 1.4% | |
| Payroll taxes | $4,891 | $3,913 | $489 | $489 | 1.1% | |
| Other employee benefits | $4,817 | $3,854 | $481 | $482 | 1.1% | |
| Insurance | $4,323 | $3,459 | $432 | $432 | 1.0% | |
| Advertising and promotion | $4,100 | - | - | $4,100 | 0.9% | |
| Travel | $3,679 | $2,943 | $368 | $368 | 0.8% | |
| Fundraising events Event | direct expenses; gross income $1,560 | $2,025 | reported apart | |||
| Total | $438,250 | 100% |
2019 · Form 990 · $656,048 spent · pay $87,776 · grants $338,067 · events $106,708
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $331,067 | $331,067 | - | - | 50.5% | |
| Conferences, conventions and meetings | $91,734 | $91,734 | - | - | 14.0% | |
| Pay: officers, directors, trustees, key employees | $65,112 | $52,090 | $6,511 | $6,511 | 9.9% | |
| Fees: management | $61,991 | $49,593 | $6,199 | $6,199 | 9.4% | |
| Fees: other services | $30,162 | $9,979 | $18,935 | $1,248 | 4.6% | |
| Office expenses | $21,301 | $1,848 | $14,667 | $4,786 | 3.2% | |
| Other salaries and wages | $13,353 | $10,683 | $1,335 | $1,335 | 2.0% | |
| Fees: accounting | $11,376 | - | $11,376 | - | 1.7% | |
| Payroll taxes | $9,211 | $7,369 | $921 | $921 | 1.4% | |
| Information technology | $7,712 | $5,450 | $681 | $1,581 | 1.2% | |
| Grants to US individuals | $7,000 | $7,000 | - | - | 1.1% | |
| Insurance | $2,023 | $87 | $1,925 | $11 | 0.3% | |
| Fees: legal | $1,814 | - | $1,814 | - | 0.3% | |
| Travel | $1,726 | - | $1,726 | - | 0.3% | |
| Advertising and promotion | $366 | - | - | $366 | 0.1% | |
| Other employee benefits | $100 | $80 | $10 | $10 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $14,974 | $14,974 | reported apart | |||
| Total | $656,048 | 100% |
2018 · Form 990 · $693,773 spent · pay $127,674 · grants $279,500 · events $161,310
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $250,000 | $250,000 | - | - | 36.0% | |
| Conferences, conventions and meetings | $150,340 | $150,340 | - | - | 21.7% | |
| Pay: officers, directors, trustees, key employees | $116,966 | $93,573 | $11,696 | $11,697 | 16.9% | |
| Fees: other services | $82,340 | $50,080 | $32,260 | - | 11.9% | |
| Grants to US organizations and governments | $25,000 | $25,000 | - | - | 3.6% | |
| Office expenses | $17,411 | $2,489 | $8,767 | $6,155 | 2.5% | |
| Information technology | $16,827 | $12,874 | $1,609 | $2,344 | 2.4% | |
| Fees: accounting | $12,170 | $9,736 | $1,217 | $1,217 | 1.8% | |
| Payroll taxes | $10,708 | $8,566 | $1,071 | $1,071 | 1.5% | |
| Grants to US individuals | $4,500 | $4,500 | - | - | 0.6% | |
| Insurance | $4,146 | $314 | $3,793 | $39 | 0.6% | |
| Fees: professional fundraisers | $2,000 | - | - | $2,000 | 0.3% | |
| Fees: legal | $1,101 | $881 | $110 | $110 | 0.2% | |
| Travel | $264 | - | $264 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $10,970 | $10,970 | reported apart | |||
| Total | $693,773 | 100% |
2017 · Form 990 · $427,654 spent · pay $120,140 · grants $102,000 · events $99,544
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Pay: officers, directors, trustees, key employees | $111,961 | $89,569 | $11,196 | $11,196 | 26.2% | |
| Conferences, conventions and meetings | $92,482 | $92,208 | $137 | $137 | 21.6% | |
| Fees: other services | $55,855 | $54,717 | $1,138 | - | 13.1% | |
| Grants to US organizations and governments | $50,000 | $50,000 | - | - | 11.7% | |
| Grants outside the US | $50,000 | $50,000 | - | - | 11.7% | |
| Fees: accounting | $24,586 | $12,789 | $10,198 | $1,599 | 5.7% | |
| Information technology | $17,548 | $14,038 | $1,755 | $1,755 | 4.1% | |
| Office expenses | $11,017 | - | $9,356 | $1,661 | 2.6% | |
| Payroll taxes | $8,179 | $6,543 | $818 | $818 | 1.9% | |
| Insurance | $3,289 | $357 | $2,887 | $45 | 0.8% | |
| Grants to US individuals | $2,000 | $2,000 | - | - | 0.5% | |
| Occupancy | $655 | - | $655 | - | 0.2% | |
| Fees: legal | $82 | $66 | $8 | $8 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $10,660 | $7,062 | reported apart | |||
| Total | $427,654 | 100% |
2016 · Form 990 · $515,256 spent · pay $100,902 · grants $176,200 · events $131,590
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $150,000 | $150,000 | - | - | 29.1% | |
| Conferences, conventions and meetings | $120,930 | $120,324 | $303 | $303 | 23.5% | |
| Pay: officers, directors, trustees, key employees | $94,442 | $75,554 | $9,444 | $9,444 | 18.3% | |
| Office expenses | $74,817 | $45,167 | $22,715 | $6,935 | 14.5% | |
| Grants to US organizations and governments | $26,200 | $26,200 | - | - | 5.1% | |
| Fees: accounting | $14,888 | $8,870 | $4,909 | $1,109 | 2.9% | |
| Information technology | $11,309 | $9,187 | $1,061 | $1,061 | 2.2% | |
| Payroll taxes | $6,460 | $5,168 | $646 | $646 | 1.3% | |
| Fees: other services | $5,263 | $4,127 | $1,136 | - | 1.0% | |
| Fees: legal | $3,712 | $2,970 | $371 | $371 | 0.7% | |
| Insurance | $3,228 | $2,582 | $323 | $323 | 0.6% | |
| Travel | $2,417 | $2,417 | - | - | 0.5% | |
| Other (as described) | REGISTRATION FEES | $1,495 | - | $1,495 | - | 0.3% |
| Advertising and promotion | $95 | - | - | $95 | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $10,660 | reported apart | |||
| Total | $515,256 | 100% |
2015 · Form 990 · $184,677 spent · pay $0 · grants $65,000 · events $28,008
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $60,000 | $60,000 | - | - | 32.5% | |
| Fees: other services | $51,144 | $38,205 | $8,626 | $4,313 | 27.7% | |
| Conferences, conventions and meetings | $20,253 | $20,190 | $63 | - | 11.0% | |
| Fees: accounting | $12,565 | - | $10,553 | $2,012 | 6.8% | |
| Office expenses | $8,424 | $5,793 | $842 | $1,789 | 4.6% | |
| Information technology | $7,150 | $5,864 | $762 | $524 | 3.9% | |
| Travel | $5,635 | $5,635 | - | - | 3.1% | |
| Grants outside the US | $5,000 | $5,000 | - | - | 2.7% | |
| Other (as described) | BANK AND CREDIT CARD FEES | $4,849 | $2,938 | $781 | $1,130 | 2.6% |
| Other (as described) | PROGRAM EXHIBIT MATERIALS , SUPPLIES | $2,969 | $2,969 | - | - | 1.6% |
| Insurance | $2,527 | $1,642 | $632 | $253 | 1.4% | |
| Fees: legal | $2,524 | - | $1,741 | $783 | 1.4% | |
| Other (as described) | REGISTRATION FEES | $1,637 | $300 | $10 | $1,327 | 0.9% |
| Fundraising events Event | direct expenses; gross income - | $7,755 | reported apart | |||
| Total | $184,677 | 100% |
2014 · Form 990 · $247,984 spent · pay $0 · grants $156,050 · events $22,016
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $150,050 | $150,050 | - | - | 60.5% | |
| Fees: other services | $29,002 | $13,266 | $9,551 | $6,185 | 11.7% | |
| Conferences, conventions and meetings | $17,512 | $17,512 | - | - | 7.1% | |
| Fees: accounting | $9,425 | $4,820 | $4,002 | $603 | 3.8% | |
| Office expenses | $7,728 | $4,525 | $1,788 | $1,415 | 3.1% | |
| Travel | $6,639 | $6,639 | - | - | 2.7% | |
| Information technology | $6,055 | $4,838 | $606 | $611 | 2.4% | |
| Other (as described) | BANK AND CREDIT CARD FEED | $5,504 | $1,693 | $1,636 | $2,175 | 2.2% |
| Grants outside the US | $5,000 | $5,000 | - | - | 2.0% | |
| Fees: legal | $4,249 | $3,399 | $425 | $425 | 1.7% | |
| Insurance | $2,286 | $754 | $1,532 | - | 0.9% | |
| Other (as described) | PROGRAM EXHIBIT MATERIALS , SUPPLIES | $1,879 | $1,879 | - | - | 0.8% |
| Other (as described) | REGISTRATION FEES | $1,655 | - | $10 | $1,645 | 0.7% |
| Grants to US individuals | $1,000 | $1,000 | - | - | 0.4% | |
| Fundraising events Event | direct expenses; gross income - | $4,504 | reported apart | |||
| Total | $247,984 | 100% |
2013 · Form 990 · $219,212 spent · pay $0 · grants $127,250 · events $18,075
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $123,500 | $123,500 | - | - | 56.3% | |
| Other (as described) | PROGRAM EXHIBIT MATERIALS , SUPPLIES | $23,095 | $19,345 | - | $3,750 | 10.5% |
| Fees: other services | $22,636 | $8,318 | $8,318 | $6,000 | 10.3% | |
| Conferences, conventions and meetings | $12,811 | $12,811 | - | - | 5.8% | |
| Travel | $10,271 | $10,271 | - | - | 4.7% | |
| Office expenses | $6,613 | $5,691 | $764 | $158 | 3.0% | |
| Information technology | $6,246 | $5,618 | $628 | - | 2.8% | |
| Grants to US individuals | $3,750 | $3,750 | - | - | 1.7% | |
| Fees: accounting | $2,772 | - | $2,772 | - | 1.3% | |
| Other (as described) | BANK AND CREDIT CARD FEED | $2,620 | $1,986 | $444 | $190 | 1.2% |
| Insurance | $2,243 | $725 | $1,518 | - | 1.0% | |
| Fees: investment management | $1,121 | - | - | $1,121 | 0.5% | |
| Other (as described) | REGISTRATION FEES | $785 | $10 | - | $775 | 0.4% |
| Advertising and promotion | $749 | - | - | $749 | 0.3% | |
| Fundraising events Event | direct expenses; gross income - | $5,264 | reported apart | |||
| Total | $219,212 | 100% |
2012 · Form 990 · $169,002 spent · pay $0 · grants $77,000 · events $67,830
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $75,000 | $75,000 | - | - | 44.4% | |
| Conferences, conventions and meetings | $59,890 | $59,890 | - | - | 35.4% | |
| Office expenses | $12,042 | $6,695 | $4,513 | $834 | 7.1% | |
| Fees: other services | $5,315 | $5,315 | - | - | 3.1% | |
| Fees: accounting | $4,420 | $2,820 | $1,600 | - | 2.6% | |
| Information technology | $3,062 | $3,062 | - | - | 1.8% | |
| Other (as described) | BANK AND CREDIT CARD FEED | $2,271 | $1,572 | $347 | $352 | 1.3% |
| Other (as described) | REGISTRATION FEES | $2,208 | - | $55 | $2,153 | 1.3% |
| Travel | $2,136 | $222 | $1,471 | $443 | 1.3% | |
| Grants to US individuals | $2,000 | $2,000 | - | - | 1.2% | |
| Advertising and promotion | $465 | - | - | $465 | 0.3% | |
| Insurance | $193 | $89 | $104 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $7,940 | reported apart | |||
| Total | $169,002 | 100% |
2011 · Form 990EZ · $132,147 spent · pay $0 · grants $103,800 · events $6,697
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $103,800 | 78.5% | |
| Other expenses (detail on Schedule O) | $24,554 | 18.6% | |
| Printing, publications, postage | $2,632 | 2.0% | |
| Fees to independent contractors | $1,161 | 0.9% | |
| Fundraising events Event | direct expenses; gross income - | $6,697 | reported apart |
| Total | $132,147 | 100% |
2010 · Form 990 · $87,269 spent · pay $0 · grants $12,800 · events $11,809
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | IPNA PROGRAM | $40,539 | $40,539 | - | - | 46.5% |
| Fees: management | $11,599 | $8,586 | $3,013 | - | 13.3% | |
| Grants outside the US | $9,550 | $9,550 | - | - | 10.9% | |
| Information technology | $6,755 | $6,755 | - | - | 7.7% | |
| Other (as described) | ASN RENAL WEEK | $4,908 | $4,908 | - | - | 5.6% |
| Conferences, conventions and meetings | $3,655 | $3,655 | - | - | 4.2% | |
| Grants to US individuals | $3,250 | $3,250 | - | - | 3.7% | |
| Office expenses | $2,449 | $1,284 | $1,165 | - | 2.8% | |
| Insurance | $1,660 | $350 | $1,310 | - | 1.9% | |
| Other (as described) | INFORMATIONAL BROCHURE | $1,610 | $1,610 | - | - | 1.8% |
| Fees: accounting | $1,294 | - | $1,294 | - | 1.5% | |
| Fundraising events Event | direct expenses; gross income - | $8,154 | reported apart | |||
| Total | $87,269 | 100% |