FURP.ORG / PUBLIC DATA EXPLORER

ALPORT SYNDROME FOUNDATION INC

Cite this

Plain text ALPORT SYNDROME FOUNDATION INC. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/208237159. Retrieved 2026-10-21.

APA furp.org. (n.d.). ALPORT SYNDROME FOUNDATION INC [Nonprofit organization profile; tax years 2010–2024]. Retrieved October 21, 2026, from https://furp.org/org/208237159

MLA “ALPORT SYNDROME FOUNDATION INC.” furp.org, tax years 2010–2024, https://furp.org/org/208237159. Accessed 21 Oct. 2026.

Retrieved 2026-10-21; covers tax years 2010–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $1.2M · expenses $1.0M · assets $2.8M

EIN
20-8237159
Address
1608 E BRIARWOOD TER, PHOENIX, AZ 85048-9414
Website
ALPORTSYNDROME.ORG
NTEE code
E86
Subsection
501(c)(3)
Ruling year
2007
Cross-check
ProPublica Nonprofit Explorer

Mission

THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Lisa Bonebrake EXECUTIVE DIRECTOR2017-2024 $105,000$105,000 1
Gina Parziale (former) EXECUTIVE DIRECTOR TO 7/20192016-2019 $76,613$384,082 1

Officers and directors, no compensation reported

24 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Andrew Kronenberg BOARD CHAIR2017-2024 10 $0 reported 1
Ryan Linder SECRETARY2018-2024 2 $0 reported 1
Daniel Kilpatrick TREASURER2024 5 $0 reported 1
Sharon Lagas CO-FOUNDER, DIRECTOR PAST CHAIR2010-2024 5 $0 reported 1
Amy Rhodes DIRECTOR2023-2024 5 $0 reported 1
December West DIRECTOR2024 1 $0 reported 1
Marty Dunleavy DIRECTOR2024 1 $0 reported 1
Phillip Kumnick DIRECTOR2018-2024 1 $0 reported 1
Stephen Malach DIRECTOR2022-2024 1 $0 reported 1
Martin Dunleavy (former) TREASURER2015-2023 6 $0 reported 1
Andre Weinstock (former) DIRECTOR RESEARCH CHAIR2017-2023 10 $0 reported 1
Daniel Kilpattrick (former) DIRECTOR FINANCE COMMITTEE2023 2 $0 reported 1
Janine Reed (former) DIRECTOR2019-2022 6 $0 reported 1
Jennifer Beauchamp (former) DIRECTOR2019-2020 2 $0 reported 1
Michael Panella (former) DIRECTOR2010-2018 10 $0 reported 1
Vint Degraw (former) DIRECTOR THRU 5/20182010-2018 5 $0 reported 1
Stanley Silver (former) DIRECTOR THRU 8/20182010-2018 30 $0 reported 1
Jane Schneirov (former) DIRECTOR2013-2016 5 $0 reported 1
Karen Gaylord (former) DIRECTOR2014-2015 2 $0 reported 1
Jeffery Ross (former) DIRECTOR2012-2014 15 $0 reported 1
Margaret Blue (former) SECRETARY2010-2013 2 $0 reported 1
Cynthia Arnold (former) DIRECTOR2011-2012 3 $0 reported 1
Vint De Graw (former) VICE PRESIDENT2011 3 $0 reported 1
Jeff Ross (former) BOARD MEMBER2011 10 $0 reported 1

People by year

2024 · 10 people listed · 1 paid, $105K · 5 employees · 95 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LISA BONEBRAKE EXECUTIVE DIRECTOR65 $105,000$0$0 $105,0001
ANDREW KRONENBERG BOARD CHAIR10 $0$0$0 $01
RYAN LINDER SECRETARY2 $0$0$0 $01
DANIEL KILPATRICK TREASURER5 $0$0$0 $01
SHARON LAGAS CO-FOUNDER, DIRECTOR PAST CHAIR5 $0$0$0 $01
AMY RHODES DIRECTOR5 $0$0$0 $01
DECEMBER WEST DIRECTOR1 $0$0$0 $01
MARTY DUNLEAVY DIRECTOR1 $0$0$0 $01
PHILLIP KUMNICK DIRECTOR1 $0$0$0 $01
STEPHEN MALACH DIRECTOR1 $0$0$0 $01
2023 · 10 people listed · none paid · 2 employees · 179 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANDREW KRONENBERG BOARD CHAIR6 $0$0$0 $01
RYAN LINDER SECRETARY2 $0$0$0 $01
MARTIN DUNLEAVY TREASURER6 $0$0$0 $01
SHARON LAGAS CO-FOUNDER, DIRECTOR PAST CHAIR2 $0$0$0 $01
ANDRE WEINSTOCK DIRECTOR RESEARCH CHAIR10 $0$0$0 $01
AMY RHODES DIRECTOR FB MODERATOR4 $0$0$0 $01
DANIEL KILPATTRICK DIRECTOR FINANCE COMMITTEE2 $0$0$0 $01
PHILLIP KUMNICK DIRECTOR DEV. CHAIR2 $0$0$0 $01
STEPHEN MALACH DIRECTOR PROGRAM CHAIR6 $0$0$0 $01
LISA BONEBRAKE EXECUTIVE DIRECTOR65 $0$0$0 $01
2022 · 9 people listed · none paid · 2 employees · 249 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANDREW KRONENBERG CHAIR3 $0$0$0 $01
RYAN LINDER SECRETARY1 $0$0$0 $01
MARTIN DUNLEAVY TREASURER3 $0$0$0 $01
SHARON LAGAS CO-FOUNDER DIRECTOR2 $0$0$0 $01
ANDRE WEINSTOCK RESEARCH CHAIR DIRECTOR8 $0$0$0 $01
JANINE REED DIRECTOR6 $0$0$0 $01
PHILLIP KUMNICK DIRECTOR1 $0$0$0 $01
STEPHEN MALACH DIRECTOR2 $0$0$0 $01
LISA BONEBRAKE EXECUTIVE DIRECTOR65 $0$0$0 $01
2021 · 8 people listed · none paid · 2 employees · 282 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANDREW KRONENBERG CHAIR6 $0$0$0 $01
RYAN LINDER SECRETARY2 $0$0$0 $01
MARTIN DUNLEAVY TREASURER5 $0$0$0 $01
SHARON LAGAS CO-FOUNDER PAST CHAIR4 $0$0$0 $01
ANDRE WEINSTOCK DIRECTOR8 $0$0$0 $01
JANINE REED DIRECTOR6 $0$0$0 $01
PHILLIP KUMNICK DIRECTOR2 $0$0$0 $01
LISA BONEBRAKE EXECUTIVE DIRECTOR40 $0$0$0 $01
2020 · 9 people listed · none paid · 1 employee · 83 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANDREW KRONENBERG CHAIR6 $0$0$0 $01
RYAN LINDER SECRETARY2 $0$0$0 $01
MARTIN DUNLEAVY TREASURER5 $0$0$0 $01
SHARON LAGAS CO-FOUNDER PAST CHAIR4 $0$0$0 $01
ANDRE WEINSTOCK DIRECTOR8 $0$0$0 $01
JANINE REED DIRECTOR6 $0$0$0 $01
PHILLIP KUMNICK DIRECTOR2 $0$0$0 $01
JENNIFER BEAUCHAMP DIRECTOR2 $0$0$0 $01
LISA BONEBRAKE EXECUTIVE DIRECTOR40 $0$0$0 $01
2019 · 10 people listed · 1 paid, $77K · 2 employees · 8 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GINA PARZIALE EXECUTIVE DIRECTOR TO 7/201940 $73,815$0$2,798 $76,6131
ANDREW KRONENBERG CHAIR5 $0$0$0 $01
RYAN LINDER SECRETARY5 $0$0$0 $01
MARTIN DUNLEAVY TREASURER5 $0$0$0 $01
SHARON LAGAS CO-FOUNDER PAST CHAIR5 $0$0$0 $01
ANDRE WEINSTOCK DIRECTOR5 $0$0$0 $01
PHILLIP KUMNICK DIRECTOR5 $0$0$0 $01
JENNIFER BEAUCHAMP DIRECTOR FROM 2/20195 $0$0$0 $01
JANINE REED DIRECTOR FROM 12/20195 $0$0$0 $01
LISA BONEBRAKE EXEC DIR FROM 8/2019/ DIR.COMM. TO 7/201940 $0$0$0 $01
2018 · 11 people listed · 1 paid, $115K · 1 employee · 60 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GINA PARZIALE EXECUTIVE DIRECTOR50 $108,014$0$7,452 $115,4661
SHARON LAGAS CHAIR40 $0$0$0 $01
ANDREW KRONENBERG VICE CHAIR5 $0$0$0 $01
MARTIN DUNLEAVY TREASURER5 $0$0$0 $01
RYAN LINDER SECRETARY3 $0$0$0 $01
LISA BONEBRAKE DIRECTOR3 $0$0$0 $01
MICHAEL PANELLA DIRECTOR10 $0$0$0 $01
ANDRE WEINSTOCK DIRECTOR3 $0$0$0 $01
PHILLIP KUMNICK DIRECTOR FROM 04/20183 $0$0$0 $01
VINT DEGRAW DIRECTOR THRU 5/20185 $0$0$0 $01
STANLEY SILVER DIRECTOR THRU 8/201830 $0$0$0 $01
2017 · 9 people listed · 1 paid, $108K · 1 employee · 60 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GINA PARZIALE EXECUTIVE DIRECTOR50 $106,911$0$650 $107,5611
SHARON LAGAS PRESIDENT40 $0$0$0 $01
VINT DEGRAW VICE PRESIDENT5 $0$0$0 $01
STANLEY SILVER TREASURER30 $0$0$0 $01
MICHAEL PANELLA DIRECTOR10 $0$0$0 $01
MARTIN DUNLEAVY DIRECTOR5 $0$0$0 $01
ANDREW KRONENBERG DIRECTOR 3/2017 -12/20175 $0$0$0 $01
ANDRE WEINSTOCK DIRECTOR 6/2017 -12/20173 $0$0$0 $01
LISA BONEBRAKE DIRECTOR 9/2017 -12/20173 $0$0$0 $01
2016 · 7 people listed · 1 paid, $84K · 1 employee · 60 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GINA PARZIALE EXECUTIVE DIRECTOR50 $84,442$0$0 $84,4421
SHARON LAGAS PRESIDENT40 $0$0$0 $01
VINT DEGRAW VICE PRESIDENT3 $0$0$0 $01
STANLEY SILVER TREASURER30 $0$0$0 $01
MICHAEL PANELLA DIRECTOR10 $0$0$0 $01
JANE SCHNEIROV DIRECTOR5 $0$0$0 $01
MARTIN DUNLEAVY DIRECTOR3 $0$0$0 $01
2015 · 7 people listed · none paid · 0 employees · 60 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
SHARON LAGAS PRESIDENT40 $0$0$0 $01
VINT DEGRAW VICE PRESIDENT3 $0$0$0 $01
STANLEY SILVER TREASURER30 $0$0$0 $01
MICHAEL PANELLA DIRECTOR10 $0$0$0 $01
JANE SCHNEIROV DIRECTOR5 $0$0$0 $01
KAREN GAYLORD DIRECTOR2 $0$0$0 $01
MARTIN DUNLEAVY DIRECTOR3 $0$0$0 $01
2014 · 7 people listed · none paid · 0 employees · 60 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
SHARON LAGAS PRESIDENT30 $0$0$0 $01
VINT DEGRAW VICE PRESIDENT3 $0$0$0 $01
STANLEY SILVER TREASURER30 $0$0$0 $01
JEFFERY ROSS DIRECTOR15 $0$0$0 $01
MICHAEL PANELLA DIRECTOR10 $0$0$0 $01
JANE SCHNEIROV DIRECTOR2 $0$0$0 $01
KAREN GAYLORD DIRECTOR2 $0$0$0 $01
2013 · 7 people listed · none paid · 0 employees · 60 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
SHARON LAGAS PRESIDENT30 $0$0$0 $01
VINT DEGRAW VICE PRESIDENT3 $0$0$0 $01
MARGARET BLUE SECRETARY2 $0$0$0 $01
STANLEY SILVER TREASURER30 $0$0$0 $01
JEFFERY ROSS DIRECTOR15 $0$0$0 $01
MICHAEL PANELLA DIRECTOR10 $0$0$0 $01
JANE SCHNEIROV DIRECTOR10 $0$0$0 $01
2012 · 7 people listed · none paid · 0 employees · 53 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
SHARON LAGAS PRESIDENT25 $0$0$0 $01
VINT DEGRAW VICE PRES5 $0$0$0 $01
MARGARET BLUE SECRETARY3 $0$0$0 $01
STANLEY SILVER TREASURER30 $0$0$0 $01
JEFFERY ROSS DIRECTOR10 $0$0$0 $01
MICHAEL PANELLA DIRECTOR10 $0$0$0 $01
CYNTHIA ARNOLD DIRECTOR3 $0$0$0 $01
2011 · 7 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
SHARON LAGAS PRESIDENT25 $0-- $01
VINT DE GRAW VICE PRESIDENT3 $0-- $01
MARGARET BLUE SECRETARY1 $0-- $01
STANLEY SILVER TREASURER30 $0-- $01
MICHAEL PANELLA BOARD MEMBER5 $0-- $01
JEFF ROSS BOARD MEMBER10 $0-- $01
CYNTHIA ARNOLD BOARD MEMBER5 $0-- $01
2010 · 5 people listed · none paid · 0 employees · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
SHARON LAGAS PRESIDENT25 $0$0$0 $01
VINT DEGRAW VICE PRESIDENT3 $0$0$0 $01
MARGARET BLUE SECRETARY1 $0$0$0 $01
STANLEY SILVER TREASURER30 $0$0$0 $01
MICHAEL PANELLA BOARD MEMBER10 $0$0$0 $01

Highest-paid independent contractors

2023 · 1 contractor · $103K
NameLocationServicePaid
L BONEBRAKE LLCSAN DIEGO, CAMANAGEMENT SERVICES$103,335

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 3 grants to organizations · $315K

Listed grants add up to $314,631; the return's “grants paid” expense line says $324,631. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2023 · 1 grant to organizations · $97K

Listed grants add up to $97,151; the return's “grants paid” expense line says $111,151. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2022 · 2 grants to organizations · $92K

Listed grants add up to $92,268; the return's “grants paid” expense line says $100,268. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2021 · 2 grants to organizations · $158K

Listed grants add up to $158,000; the return's “grants paid” expense line says $163,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2020 · 1 grant to organizations · $35K

Listed grants add up to $35,289; the return's “grants paid” expense line says $167,289. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2019 · 3 grants to organizations · $331K

Listed grants add up to $331,067; the return's “grants paid” expense line says $338,067. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2018 · 1 grant to organizations · $25K

Listed grants add up to $25,000; the return's “grants paid” expense line says $279,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2017 · 1 grant to organizations · $50K

Listed grants add up to $50,000; the return's “grants paid” expense line says $102,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2016 · 1 grant to organizations · $50K

Listed grants add up to $50,000; the return's “grants paid” expense line says $176,200. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2015 · 2 grants to organizations · $60K

Listed grants add up to $60,000; the return's “grants paid” expense line says $65,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2014 · 2 grants to organizations · $150K

Listed grants add up to $150,000; the return's “grants paid” expense line says $156,050. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2013 · 1 grant to organizations · $25K

Listed grants add up to $25,000; the return's “grants paid” expense line says $127,250. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2012 · 2 grants to organizations · $75K

Listed grants add up to $75,000; the return's “grants paid” expense line says $77,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$1,194,735$1,003,948 $2,817,931$2,801,393 $1,063,256$0 $105,000595
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$1,016,405$612,534 $2,669,586$2,638,419 $953,036$0 $02179
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$990,673$499,455 $2,277,966$2,235,475 $990,503$0 $02249
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$993,526$478,020 $1,762,638$1,744,722 $993,479$0 $02282
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$738,552$438,250 $1,307,819$1,229,216 $738,310$0 $0183
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$552,035$656,048 $1,069,034$928,914 $548,370$0 $65,11228
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$806,994$693,773 $1,206,840$1,032,927 $803,620$0 $116,966160
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$664,301$427,654 $930,216$919,706 $658,922$0 $111,961160
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$570,777$515,256 $772,448$683,059 $574,905$0 $94,442160
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$272,033$184,677 $583,786$577,538 $270,761$0 $0060
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$387,045$247,984 $492,809$490,182 $382,352$0 $0060
2013 · Form 990 period ending 2013-12-31 · view filing · original 990 ↗
$206,809$219,212 $353,476$353,476 $206,350$0 $0060
2012 · Form 990 period ending 2012-12-31 · view filing · original 990 ↗
$274,642$169,002 $365,879$365,879 $216,610$54,129 $0053
2011 · Form 990EZ period ending 2011-12-31 · view filing · original 990 ↗
$191,021$132,147 $260,657$260,657 $150,049- ---
2010 · Form 990 period ending 2010-12-31 · view filing · original 990 ↗
$213,544$87,269 $201,783$201,783 $75,138$0 $0050

Funders of this organization

34 grantors reported grants to this organization, $832,961 in all, tax years 2011 to 2025; the 25 largest shown (all 34). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2021-2024 4$187,650 2024$129,750
show
FORGOOD INC DAF sponsor Exact 2017-2023 7$130,331 2023$6,446
show
NOT IN GOOD TASTE INC Public charity Exact 2011-2019 9$121,250 2019$11,250
show
COMMUNITY FOUNDATION OF NEW JERSEY DAF sponsor Exact 2015-2017 3$85,100 2017$35,100
show
KENNETH AND CLAUDIA SILVERMAN FAMILY FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION” 2011-2012 2$65,000 2012$60,000
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2021-2024 4$54,082 2024$18,085
show
NATIONAL PHILANTHROPIC TR DAF sponsor Exact 2024 1$26,500 2024$26,500
show
ERNST & YOUNG FOUNDATION DAF sponsor Exact 2021-2022, 2024 3$26,000 2024$10,000
show
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2022-2024 3$20,590 2024$7,790
show
THE MARCIA AND NED KAPLIN FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION”, “ALPORT SYNDROME FOUNDATION INC” 2016, 2020-2025 8$15,000 2025$2,000
show
GLOBAL GENES Public charity Exact 2017 1$15,000 2017$15,000
show
PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2024 1$11,799 2024$11,799
show
WILLIAM AND EVELYN FUCHS FAMILY FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION” 2025 1$10,000 2025$10,000
show
TIMOTHY AND MICHELE BARAKETT FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION” 2019 1$10,000 2019$10,000
show
STARKEY HEARING FOUNDATION Public charity Exact 2012 1$10,000 2012$10,000
show
PFIZER FOUNDATION INC Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” 2022-2024 5$6,618 2024$6,168
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AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” 2020-2023 4$6,444 2023$1,566
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THE BLACKBAUD GIVING FUND DAF sponsor Exact 2022 1$5,545 2022$5,545
show
SIMPLISTIC FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” 2025 1$5,000 2025$5,000
show
POSES FAMILY FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION” 2024 1$5,000 2024$5,000
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US VENTURE-SCHMIDT FAMILY FOUNDATION INC Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” 2022 1$5,000 2022$5,000
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KAHN FOUNDATION INC Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION”, “ALPORT SYNDROME FOUNDATION INC” 2013-2014, 2016, 2023-2024 5$2,500 2024$250
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ROSS FAMILY FUND INC Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” 2024-2025 2$2,000 2025$1,000
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WINDHAM FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION” 2020-2024 5$1,750 2024$200
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EDWARD JONES FOUNDATION Private foundation Fuzzy filed as “ALPORT SYNDROME FOUNDATION INC” 2023-2024 2$1,207 2024$1,000
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THE MARTY LYONS FOUNDATION INCNYE86 $903,546$1,422,905 Executive Dir.$102,000 Same NTEE code E86, revenue within 2x
THE HEIMERDINGER FOUNDATION INCTNE86 $760,573$643,020 Executive Director$83,000 Same NTEE code E86, revenue within 2x
BEAUTY BUS FOUNDATIONCAE86 $1,367,730$907,694 Executive Dir.$155,250 Same NTEE code E86, revenue within 2x
TEDDY BEAR CANCER FOUNDATIONCAE86 $1,648,669$2,058,691 Executive Director$158,716 Same NTEE code E86, revenue within 2x
IMD GUEST HOUSE FOUNDATIONILE86 $2,169,191$1,957,097 Executive Director$150,265 Same NTEE code E86, revenue within 2x
HAILEY MAYZ FOUNDATIONCAE86 $1,611,438$1,753,955 PRESIDENT/CHAIRMAN$0 Same NTEE code E86, revenue within 2x
DOWN SYNDROME ASSOCIATION OF DELAWAREDEE86 $720,269$856,083 EXECUTIVE DIRECTOR$100,058 Same NTEE code E86, revenue within 2x
CATCH A DREAM FOUNDATIONMSE86 $1,562,324$1,300,926 EXECUTIVE DIRECTOR$165,000 Same NTEE code E86, revenue within 2x
MAKE A WISH FOUNDATION OF EAST TENNESSEE INCTNE86 $1,474,962$1,473,043 CEO$116,496 Same NTEE code E86, revenue within 2x
JOHN THEISSEN CHILDRENS FOUNDATIONNYE86 $2,175,115$2,083,853 EXECUTIVE DIRECTOR$109,077 Same NTEE code E86, revenue within 2x
ILLUMINATION HEALTH INCNJE86 $1,583,335$1,272,522 PRESIDENT$0 Same NTEE code E86, revenue within 2x
F C CANCER FOUNDATIONCAE86 $940,174$804,400 President$130,000 Same NTEE code E86, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
GREATER GOOD CHARITIES DAF sponsor$37,868,13510 12015–2024 PET PROJECT FOR PETS INC
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$12,580,555249 582016–2024 F C CANCER FOUNDATION; THE COURAGEOUS PARENTS NETWORK INC; FAIR HAVEN FOUNDATION INC; POSITIVE EXPOSURE PRODUCTIONS INC and 54 more
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$3,415,586185 542014–2024 KATHYS HOUSE INC; H U G S FOR HAWAIIS SERIOUSLY ILL CHILDREN AND THEIR FAMILIES; TEDDY BEAR CANCER FOUNDATION; RONALD MCDONALD HOUSE CHARITIES OF BURLINGTON VT INC and 50 more
THE BATCHELOR FOUNDATION INC Private foundation$2,940,00044 32009–2024 SHAKE-A-LEG MIAMI INC; PET PROJECT FOR PETS INC; LITTLE SMILES INC
EASTER FOUNDATION INC Private foundation$2,193,00014 12011–2024 DAVIDS REFUGE INC
NATIONAL PHILANTHROPIC TR funds this one DAF sponsor$2,146,72769 232014–2024 OUR PLACE OF NEW TRIER TOWNSHIP INC; LUKE S WINGS INC; KATHYS HOUSE INC; SHAKE-A-LEG MIAMI INC and 19 more
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$1,790,385150 472019–2024 ONE MISSION INC; KATHYS HOUSE INC; ISABELLA SANTOS FOUNDATION; RONALD MCDONALD HOUSE CHARITIES OF GREATER CHATTANOOGA INC and 43 more
FORGOOD INC funds this one DAF sponsor$1,550,217106 372011–2024 RONALD MCDONALD HOUSE CHARITIES OF THE OHIO VALLEY INC; COMPASS TO CARE THE MIKE & SANDY ERNSDORFF CHILDHOOD CANCER FOUNDAT; ONE MISSION INC; HOUSES FOR HEALING INC and 33 more
NATIONAL CHRISTIAN CHARITABLE FOUNDATION DAF sponsor$1,452,244108 282012–2024 FAIR HAVEN FOUNDATION INC; REFUGE 1212 INC; MAGIC MOMENTS INC; MAKE A WISH FOUNDATION OF EAST TENNESSEE INC and 24 more
PATTERSON FAMILY FOUNDATION Private foundation$1,108,9001 12024–2024 FIRST HAND FOUNDATION
PAYPAL CHARITABLE GIVING FUND funds this one DAF sponsor$973,21349 222017–2024 WORKSHOP OF WISHES INC; GREAT LAKES ADAPTIVE SPORTS ASSOC; FRIENDS ARE BY YOUR SIDE INC WIGS AND WISHES; LIMB KIND FOUNDATION INC and 18 more
DIANE AND DOROTHY BROOKS FOUNDATION Private foundation$900,0002 12022–2024 BEAUTY BUS FOUNDATION
SCHWARTZ WIEKAMP FOUNDATION Private foundation$880,00010 12020–2024 OHANA HERITAGE FOUNDATION INC
PATTERSON FAMILY FOUNDATION Private foundation$800,0002 12019–2020 FIRST HAND FOUNDATION
LESLIE L ALEXANDER FOUNDATION Private foundation$800,0005 12020–2024 LITTLE SMILES INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $1,003,948 spent · pay $376,180 · grants $324,631 · events $77,636
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $314,631$314,631-- 31.3%
Other salaries and wages $242,828$215,913$20,540$6,375 24.2%
Pay: officers, directors, trustees, key employees $105,000$93,362$8,881$2,757 10.5%
Information technology $99,589$99,589-- 9.9%
Conferences, conventions and meetings $77,636$77,474$98$64 7.7%
Travel $48,358$43,054$4,048$1,256 4.8%
Office expenses $29,635$15,155$8,578$5,902 3.0%
Payroll taxes $28,352$25,210$2,398$744 2.8%
Fees: accounting $22,371$5,593$15,659$1,119 2.2%
Depreciation and depletion $11,198$9,957$947$294 1.1%
Grants to US individuals $10,000$10,000-- 1.0%
Advertising and promotion $6,474--$6,474 0.6%
Insurance $4,421$3,931$374$116 0.4%
Fees: other services $3,455$3,124$253$78 0.3%
Total$1,003,948100%

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2023 · Form 990 · $612,534 spent · pay $151,973 · grants $111,151 · events $44,119
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $141,115$133,156$7,163$796 23.0%
Fees: management $104,168$72,917$20,834$10,417 17.0%
Grants to US organizations and governments $97,151$97,151-- 15.9%
Information technology $63,712$63,712-- 10.4%
Travel $57,922$49,904$6,300$1,718 9.5%
Conferences, conventions and meetings $44,119$43,999$89$31 7.2%
Office expenses $32,098$19,795$6,932$5,371 5.2%
Fees: accounting $23,033$5,758$16,123$1,152 3.8%
Grants to US individuals $14,000$14,000-- 2.3%
Depreciation and depletion $10,983$9,445$1,208$330 1.8%
Payroll taxes $10,858$10,246$551$61 1.8%
Advertising and promotion $6,325--$6,325 1.0%
Insurance $4,714$4,206$411$97 0.8%
Fees: other services $2,336$2,336-- 0.4%
Total$612,534100%

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2022 · Form 990 · $499,455 spent · pay $145,098 · grants $100,268 · events $17,486
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $134,582$126,507$6,729$1,346 26.9%
Fees: management $95,437$71,578$19,087$4,772 19.1%
Grants to US organizations and governments $92,268$92,268-- 18.5%
Information technology $57,138$57,138-- 11.4%
Office expenses $23,787$13,543$6,305$3,939 4.8%
Fees: accounting $22,960$6,115$15,622$1,223 4.6%
Conferences, conventions and meetings $17,486$17,486-- 3.5%
Depreciation and depletion $13,708$11,789$1,508$411 2.7%
Advertising and promotion $12,059--$12,059 2.4%
Payroll taxes $10,516$9,885$526$105 2.1%
Grants to US individuals $8,000$8,000-- 1.6%
Insurance $4,917$4,374$432$111 1.0%
Travel $3,734$2,924$637$173 0.7%
Fees: other services $2,863$1,123$1,740- 0.6%
Total$499,455100%

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2021 · Form 990 · $478,020 spent · pay $85,258 · grants $163,500 · events $22,327
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $158,000$158,000-- 33.1%
Fees: management $90,343$58,723$27,103$4,517 18.9%
Other salaries and wages $78,939$62,046$9,275$7,618 16.5%
Information technology $32,785$32,339$245$201 6.9%
Conferences, conventions and meetings $22,327$22,327-- 4.7%
Fees: accounting $22,100$18,550$1,273$2,277 4.6%
Office expenses $21,523$10,548$5,955$5,020 4.5%
Fees: other services $19,729$19,259$258$212 4.1%
Depreciation and depletion $9,096$7,149$1,069$878 1.9%
Advertising and promotion $7,099--$7,099 1.5%
Payroll taxes $6,259$4,920$735$604 1.3%
Grants to US individuals $5,500$5,500-- 1.2%
Insurance $4,260$3,348$501$411 0.9%
Other employee benefits $60$47$7$6 0.0%
Total$478,020100%

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2020 · Form 990 · $438,250 spent · pay $73,636 · grants $167,289 · events $15,397
LineAs describedTotalProgramManagementFundraisingShare
Grants outside the US $125,000$125,000-- 28.5%
Fees: management $83,339$54,371$24,801$4,167 19.0%
Other salaries and wages $63,928$51,142$6,393$6,393 14.6%
Grants to US organizations and governments $35,289$35,289-- 8.1%
Information technology $31,902$31,902-- 7.3%
Fees: accounting $22,430$19,144$893$2,393 5.1%
Office expenses $15,919$8,590$3,890$3,439 3.6%
Conferences, conventions and meetings $13,372$13,372-- 3.1%
Fees: other services $12,082$11,638$222$222 2.8%
Grants to US individuals $7,000$7,000-- 1.6%
Depreciation and depletion $6,179$4,943$618$618 1.4%
Payroll taxes $4,891$3,913$489$489 1.1%
Other employee benefits $4,817$3,854$481$482 1.1%
Insurance $4,323$3,459$432$432 1.0%
Advertising and promotion $4,100--$4,100 0.9%
Travel $3,679$2,943$368$368 0.8%
Fundraising events Eventdirect expenses; gross income $1,560$2,025reported apart
Total$438,250100%

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2019 · Form 990 · $656,048 spent · pay $87,776 · grants $338,067 · events $106,708
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $331,067$331,067-- 50.5%
Conferences, conventions and meetings $91,734$91,734-- 14.0%
Pay: officers, directors, trustees, key employees $65,112$52,090$6,511$6,511 9.9%
Fees: management $61,991$49,593$6,199$6,199 9.4%
Fees: other services $30,162$9,979$18,935$1,248 4.6%
Office expenses $21,301$1,848$14,667$4,786 3.2%
Other salaries and wages $13,353$10,683$1,335$1,335 2.0%
Fees: accounting $11,376-$11,376- 1.7%
Payroll taxes $9,211$7,369$921$921 1.4%
Information technology $7,712$5,450$681$1,581 1.2%
Grants to US individuals $7,000$7,000-- 1.1%
Insurance $2,023$87$1,925$11 0.3%
Fees: legal $1,814-$1,814- 0.3%
Travel $1,726-$1,726- 0.3%
Advertising and promotion $366--$366 0.1%
Other employee benefits $100$80$10$10 0.0%
Fundraising events Eventdirect expenses; gross income $14,974$14,974reported apart
Total$656,048100%

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2018 · Form 990 · $693,773 spent · pay $127,674 · grants $279,500 · events $161,310
LineAs describedTotalProgramManagementFundraisingShare
Grants outside the US $250,000$250,000-- 36.0%
Conferences, conventions and meetings $150,340$150,340-- 21.7%
Pay: officers, directors, trustees, key employees $116,966$93,573$11,696$11,697 16.9%
Fees: other services $82,340$50,080$32,260- 11.9%
Grants to US organizations and governments $25,000$25,000-- 3.6%
Office expenses $17,411$2,489$8,767$6,155 2.5%
Information technology $16,827$12,874$1,609$2,344 2.4%
Fees: accounting $12,170$9,736$1,217$1,217 1.8%
Payroll taxes $10,708$8,566$1,071$1,071 1.5%
Grants to US individuals $4,500$4,500-- 0.6%
Insurance $4,146$314$3,793$39 0.6%
Fees: professional fundraisers $2,000--$2,000 0.3%
Fees: legal $1,101$881$110$110 0.2%
Travel $264-$264- 0.0%
Fundraising events Eventdirect expenses; gross income $10,970$10,970reported apart
Total$693,773100%

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2017 · Form 990 · $427,654 spent · pay $120,140 · grants $102,000 · events $99,544
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $111,961$89,569$11,196$11,196 26.2%
Conferences, conventions and meetings $92,482$92,208$137$137 21.6%
Fees: other services $55,855$54,717$1,138- 13.1%
Grants to US organizations and governments $50,000$50,000-- 11.7%
Grants outside the US $50,000$50,000-- 11.7%
Fees: accounting $24,586$12,789$10,198$1,599 5.7%
Information technology $17,548$14,038$1,755$1,755 4.1%
Office expenses $11,017-$9,356$1,661 2.6%
Payroll taxes $8,179$6,543$818$818 1.9%
Insurance $3,289$357$2,887$45 0.8%
Grants to US individuals $2,000$2,000-- 0.5%
Occupancy $655-$655- 0.2%
Fees: legal $82$66$8$8 0.0%
Fundraising events Eventdirect expenses; gross income $10,660$7,062reported apart
Total$427,654100%

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2016 · Form 990 · $515,256 spent · pay $100,902 · grants $176,200 · events $131,590
LineAs describedTotalProgramManagementFundraisingShare
Grants outside the US $150,000$150,000-- 29.1%
Conferences, conventions and meetings $120,930$120,324$303$303 23.5%
Pay: officers, directors, trustees, key employees $94,442$75,554$9,444$9,444 18.3%
Office expenses $74,817$45,167$22,715$6,935 14.5%
Grants to US organizations and governments $26,200$26,200-- 5.1%
Fees: accounting $14,888$8,870$4,909$1,109 2.9%
Information technology $11,309$9,187$1,061$1,061 2.2%
Payroll taxes $6,460$5,168$646$646 1.3%
Fees: other services $5,263$4,127$1,136- 1.0%
Fees: legal $3,712$2,970$371$371 0.7%
Insurance $3,228$2,582$323$323 0.6%
Travel $2,417$2,417-- 0.5%
Other (as described)REGISTRATION FEES $1,495-$1,495- 0.3%
Advertising and promotion $95--$95 0.0%
Fundraising events Eventdirect expenses; gross income -$10,660reported apart
Total$515,256100%

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2015 · Form 990 · $184,677 spent · pay $0 · grants $65,000 · events $28,008
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $60,000$60,000-- 32.5%
Fees: other services $51,144$38,205$8,626$4,313 27.7%
Conferences, conventions and meetings $20,253$20,190$63- 11.0%
Fees: accounting $12,565-$10,553$2,012 6.8%
Office expenses $8,424$5,793$842$1,789 4.6%
Information technology $7,150$5,864$762$524 3.9%
Travel $5,635$5,635-- 3.1%
Grants outside the US $5,000$5,000-- 2.7%
Other (as described)BANK AND CREDIT CARD FEES $4,849$2,938$781$1,130 2.6%
Other (as described)PROGRAM EXHIBIT MATERIALS , SUPPLIES $2,969$2,969-- 1.6%
Insurance $2,527$1,642$632$253 1.4%
Fees: legal $2,524-$1,741$783 1.4%
Other (as described)REGISTRATION FEES $1,637$300$10$1,327 0.9%
Fundraising events Eventdirect expenses; gross income -$7,755reported apart
Total$184,677100%

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2014 · Form 990 · $247,984 spent · pay $0 · grants $156,050 · events $22,016
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $150,050$150,050-- 60.5%
Fees: other services $29,002$13,266$9,551$6,185 11.7%
Conferences, conventions and meetings $17,512$17,512-- 7.1%
Fees: accounting $9,425$4,820$4,002$603 3.8%
Office expenses $7,728$4,525$1,788$1,415 3.1%
Travel $6,639$6,639-- 2.7%
Information technology $6,055$4,838$606$611 2.4%
Other (as described)BANK AND CREDIT CARD FEED $5,504$1,693$1,636$2,175 2.2%
Grants outside the US $5,000$5,000-- 2.0%
Fees: legal $4,249$3,399$425$425 1.7%
Insurance $2,286$754$1,532- 0.9%
Other (as described)PROGRAM EXHIBIT MATERIALS , SUPPLIES $1,879$1,879-- 0.8%
Other (as described)REGISTRATION FEES $1,655-$10$1,645 0.7%
Grants to US individuals $1,000$1,000-- 0.4%
Fundraising events Eventdirect expenses; gross income -$4,504reported apart
Total$247,984100%

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2013 · Form 990 · $219,212 spent · pay $0 · grants $127,250 · events $18,075
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $123,500$123,500-- 56.3%
Other (as described)PROGRAM EXHIBIT MATERIALS , SUPPLIES $23,095$19,345-$3,750 10.5%
Fees: other services $22,636$8,318$8,318$6,000 10.3%
Conferences, conventions and meetings $12,811$12,811-- 5.8%
Travel $10,271$10,271-- 4.7%
Office expenses $6,613$5,691$764$158 3.0%
Information technology $6,246$5,618$628- 2.8%
Grants to US individuals $3,750$3,750-- 1.7%
Fees: accounting $2,772-$2,772- 1.3%
Other (as described)BANK AND CREDIT CARD FEED $2,620$1,986$444$190 1.2%
Insurance $2,243$725$1,518- 1.0%
Fees: investment management $1,121--$1,121 0.5%
Other (as described)REGISTRATION FEES $785$10-$775 0.4%
Advertising and promotion $749--$749 0.3%
Fundraising events Eventdirect expenses; gross income -$5,264reported apart
Total$219,212100%

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2012 · Form 990 · $169,002 spent · pay $0 · grants $77,000 · events $67,830
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $75,000$75,000-- 44.4%
Conferences, conventions and meetings $59,890$59,890-- 35.4%
Office expenses $12,042$6,695$4,513$834 7.1%
Fees: other services $5,315$5,315-- 3.1%
Fees: accounting $4,420$2,820$1,600- 2.6%
Information technology $3,062$3,062-- 1.8%
Other (as described)BANK AND CREDIT CARD FEED $2,271$1,572$347$352 1.3%
Other (as described)REGISTRATION FEES $2,208-$55$2,153 1.3%
Travel $2,136$222$1,471$443 1.3%
Grants to US individuals $2,000$2,000-- 1.2%
Advertising and promotion $465--$465 0.3%
Insurance $193$89$104- 0.1%
Fundraising events Eventdirect expenses; gross income -$7,940reported apart
Total$169,002100%

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2011 · Form 990EZ · $132,147 spent · pay $0 · grants $103,800 · events $6,697
LineAs describedTotalShare
Grants and similar amounts paid $103,800 78.5%
Other expenses (detail on Schedule O) $24,554 18.6%
Printing, publications, postage $2,632 2.0%
Fees to independent contractors $1,161 0.9%
Fundraising events Eventdirect expenses; gross income -$6,697reported apart
Total$132,147100%

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2010 · Form 990 · $87,269 spent · pay $0 · grants $12,800 · events $11,809
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)IPNA PROGRAM $40,539$40,539-- 46.5%
Fees: management $11,599$8,586$3,013- 13.3%
Grants outside the US $9,550$9,550-- 10.9%
Information technology $6,755$6,755-- 7.7%
Other (as described)ASN RENAL WEEK $4,908$4,908-- 5.6%
Conferences, conventions and meetings $3,655$3,655-- 4.2%
Grants to US individuals $3,250$3,250-- 3.7%
Office expenses $2,449$1,284$1,165- 2.8%
Insurance $1,660$350$1,310- 1.9%
Other (as described)INFORMATIONAL BROCHURE $1,610$1,610-- 1.8%
Fees: accounting $1,294-$1,294- 1.5%
Fundraising events Eventdirect expenses; gross income -$8,154reported apart
Total$87,269100%

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