FOUNDATION FIGHTING BLINDNESS INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization
FOUNDATION FIGHTING BLINDNESS INC (EIN 23-7135845)
Tax period
2012-07-01 to 2013-06-30
Filed
2013-11-04
IRS object ID
201333089349301553
Schema version
2012v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2013-11-04T16:18:36-06:00Timestamp
Tax Period End Date2013-06-30TaxPeriodEndDate

Preparer Firm PreparerFirm

FieldValueIRS element (for citing)
EIN521511275EIN

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1Raffa PCBusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line11899 L Street NW Suite 900AddressLine1
CityWashingtonCity
StateDCState
ZIP Code20036ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnType
Tax Period Begin Date2012-07-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN237135845EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1The Foundation Fighting Blindness IncBusinessNameLine1
FieldValueIRS element (for citing)
Name ControlFOUNNameControl
Phone4104230600Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line17168 Columbia Gateway Drive No 100AddressLine1
CityColumbiaCity
StateMDState
ZIP Code21046ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameAnnette HinkleName
TitleChief Financial OfficerTitle
Phone4104230600Phone
Date Signed2013-11-04DateSigned
Authorize Third Party1AuthorizeThirdParty

Preparer Preparer

FieldValueIRS element (for citing)
NameFrank H SmithName
PTINP00639053PTIN
Phone2028225000Phone
Date Prepared2013-11-01DatePrepared
FieldValueIRS element (for citing)
Tax Year2012TaxYear
Build TS2015-11-30 17:44:51ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Name Of Principal Officer PersonAnnette HinkleNameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

FieldValueIRS element (for citing)
Address Line17168 Columbia Gateway Drive No 100AddressLine1
CityColumbiaCity
StateMDState
ZIP Code21046ZIPCode
FieldValueIRS element (for citing)
Gross Receipts133121249GrossReceipts
Group Return For Affiliates0GroupReturnForAffiliates
Organization501c3XOrganization501c3
Web Sitewww.fightblindness.orgWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation1971YearFormation
State Legal DomicileMDStateLegalDomicile
Activity Or Mission DescriptionFFB funds research to discover causes and cures for retinal diseases leading to blindness.ActivityOrMissionDescription
Nbr Voting Members Governing Body25NbrVotingMembersGoverningBody
Nbr Independent Voting Members25NbrIndependentVotingMembers
Total Nbr Employees106TotalNbrEmployees
Total Nbr Volunteers2500TotalNbrVolunteers
Total Gross UBI0TotalGrossUBI
Net Unrelated Business Txbl Income0NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year38553517ContributionsGrantsPriorYear
Contributions Grants Current Year40828587ContributionsGrantsCurrentYear
Program Service Revenue Prior Year113715ProgramServiceRevenuePriorYear
Program Service Revenue CY328270ProgramServiceRevenueCY
Investment Income Prior Year1639783InvestmentIncomePriorYear
Investment Income Current Year2196517InvestmentIncomeCurrentYear
Other Revenue Prior Year-677402OtherRevenuePriorYear
Other Revenue Current Year-688965OtherRevenueCurrentYear
Total Revenue Prior Year39629613TotalRevenuePriorYear
Total Revenue Current Year42664409TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year15724312GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY11850463GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year0BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Prior Year7479697SalariesEtcPriorYear
Salaries Etc Current Year7404141SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year176306TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY381920TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year7612726TotalFundrsngExpCurrentYear
Other Expense Prior Year6345047OtherExpensePriorYear
Other Expenses Current Year6317052OtherExpensesCurrentYear
Total Expenses Prior Year29725362TotalExpensesPriorYear
Total Expenses Current Year25953576TotalExpensesCurrentYear
Revenues Less Expenses Prior Year9904251RevenuesLessExpensesPriorYear
Revenues Less Expenses CY16710833RevenuesLessExpensesCY
Total Assets BOY60105388TotalAssetsBOY
Total Assets EOY73618451TotalAssetsEOY
Total Liabilities BOY17120795TotalLiabilitiesBOY
Total Liabilities EOY15872986TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY42984593NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY57745465NetAssetsOrFundBalancesEOY
Info In Schedule O Part IIIXInfoInScheduleOPartIII
Mission DescriptionThe mission of The Foundation Fighting Blindness, Inc. (FFB) is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome, and the spectrum of retinal degenerative diseases.MissionDescription
Significant New Program Services0SignificantNewProgramServices
Significant Change0SignificantChange
Expense13666629Expense
Grants11850463Grants
Revenue200350Revenue
DescriptionResearch - FFB funded researchers and clinicians have further developed retinal treatments using gene, cell based, neuroprotective, and nutritional therapies. Many of these therapies have led us into a new era of human clinical trials. Today, we can correct human genetic defects that cause blindness and restore vision. We can create, from stem cells, new retinal cells that sense light. We can slow and stop disease progression through a protein-dispensing capsule implanted in the eye. We can create a "bionic eye," first-generation technology that provides functional vision to the blind.FFB, along with its supporting organization FFB Clinical Research Institute, was successful in increasing its revenue this year and dedicated nearly 78% of its overall revenue to current and future research, oversight of that research and public health education programs. Although actual grant awards were not as great this year due to prioritization of research opportunities, FFB has dedicated and set aside nearly $15 million for future research. This allows FFB the flexibility and opportunity to invest in future, large-scale studies and clinical trials when they become available to ensure our ability to eradicate devastating retinal diseases.Description

Activity2 Activity2

FieldValueIRS element (for citing)
Expense2506950Expense
Revenue127920Revenue
DescriptionPublic Health Education - FFB funded health education programs reach over 250,000 people through educational seminars, newsletters, web based information, and community outreach through FFB's approximately 50 chapters around the U.S. and through partnerships with numerous retinal specialists.Description
FieldValueIRS element (for citing)
Total Program Service Expense16173579TotalProgramServiceExpense
Described In501 C31DescribedIn501C3
Schedule B Required1ScheduleBRequired
Political Activities0PoliticalActivities
Lobbying Activities0LobbyingActivities
Subject To Proxy Tax0SubjectToProxyTax
Donor Advised Funds0DonorAdvisedFunds
Conservation Easements0ConservationEasements
Collections Of Art0CollectionsOfArt
Credit Counseling0CreditCounseling
Term Or Permanent Endowments1TermOrPermanentEndowments
Report Land Bldg Equip1ReportLandBldgEquip
Report Invest Oth Securities1ReportInvestOthSecurities
Report Prog Rel Invest0ReportProgRelInvest
Report Other Assets0ReportOtherAssets
Report Other Liabilities1ReportOtherLiabilities
Report Fin48 Footnote1ReportFin48Footnote
Independent Audit Financial Stmt0IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt1ConsolidatedAuditFinancialStmt
School0School
Foreign Office0ForeignOffice
Foreign Activities1ForeignActivities
More Than5000 K To Organizations1MoreThan5000KToOrganizations
More Than5000 K To Individuals0MoreThan5000KToIndividuals
Professional Fundraising1ProfessionalFundraising
Fundraising Activities1FundraisingActivities
Gaming0Gaming
Hospital0Hospital
Grants To Organizations1GrantsToOrganizations
Grants To Individuals0GrantsToIndividuals
Schedule J Required1ScheduleJRequired
Tax Exempt Bonds0TaxExemptBonds
Excess Benefit Transaction0ExcessBenefitTransaction
Prior Excess Benefit Transaction0PriorExcessBenefitTransaction
Loan To Officer Or DQP0LoanToOfficerOrDQP
Grant To Related Person0GrantToRelatedPerson
Bsnss Rltnshp With Organization0BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member0BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp0OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions1DeductibleNonCashContributions
Deductible Contributions Of Art0DeductibleContributionsOfArt
Terminated0Terminated
Partial Liquidation0PartialLiquidation
Disregarded Entity0DisregardedEntity
Related Entity1RelatedEntity
Related Org Controlled Entity1RelatedOrgControlledEntity
Transaction Related Entity0TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org0TransfersToExemptNonChrtblOrg
Activities Conducted Partnership0ActivitiesConductedPartnership
Schedule O Required1ScheduleORequired
Number Forms Transmitted With1096183NumberFormsTransmittedWith1096
Number W2 G Included0NumberW2GIncluded
Compliance With Backup Witholding1ComplianceWithBackupWitholding
Number Of Employees106NumberOfEmployees
Employment Tax Returns Filed1EmploymentTaxReturnsFiled
Unrelated Business Income0UnrelatedBusinessIncome
Foreign Financial Account0ForeignFinancialAccount
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTrans
Taxable Party Notification0TaxablePartyNotification
Non Deductible Contributions0NonDeductibleContributions
Quid Pro Quo Contributions1QuidProQuoContributions
Quid Pro Quo Disclosure1QuidProQuoDisclosure
Form8282 Property Disposed Of0Form8282PropertyDisposedOf
Funds To Pay Premiums0FundsToPayPremiums
Premiums Paid0PremiumsPaid
Indoor Tanning Services0IndoorTanningServices
Info In Schedule O Part VIXInfoInScheduleOPartVI
Nbr Voting Governing Body Members25NbrVotingGoverningBodyMembers
Number Independent Voting Members25NumberIndependentVotingMembers
Family Or Business Relationship1FamilyOrBusinessRelationship
Delegation Of Management Duties0DelegationOfManagementDuties
Changes To Organizing Docs0ChangesToOrganizingDocs
Material Diversion Or Misuse0MaterialDiversionOrMisuse
Members Or Stockholders1MembersOrStockholders
Election Of Board Members1ElectionOfBoardMembers
Decisions Subject To Approval0DecisionsSubjectToApproval
Minutes Of Governing Body1MinutesOfGoverningBody
Minutes Of Committees1MinutesOfCommittees
Officer Mailing Address0OfficerMailingAddress
Local Chapters1LocalChapters
Policies Reference Chapters1PoliciesReferenceChapters
Form990 Provided To Governing Body1Form990ProvidedToGoverningBody
Conflict Of Interest Policy1ConflictOfInterestPolicy
Annual Disclosure Covered Persons1AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement1RegularMonitoringEnforcement
Whistleblower Policy1WhistleblowerPolicy
Document Retention Policy1DocumentRetentionPolicy
Compensation Process CEO1CompensationProcessCEO
Compensation Process Other1CompensationProcessOther
Investment In Joint Venture0InvestmentInJointVenture
States Where Copy Of Return Is FiledALStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledAKStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledARStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledCAStatesWhereCopyOfReturnIsFiled
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States Where Copy Of Return Is FiledMAStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledMEStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledMDStatesWhereCopyOfReturnIsFiled
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Own WebsiteXOwnWebsite
Upon RequestXUponRequest

The Books Are In Care Of TheBooksAreInCareOf

Name Business NameBusiness

FieldValueIRS element (for citing)
Business Name Line1Annette HinkleBusinessNameLine1
FieldValueIRS element (for citing)
Telephone Number4104230600TelephoneNumber

Address US AddressUS

FieldValueIRS element (for citing)
Address Line17168 Columbia Gateway Drive 100AddressLine1
CityColumbiaCity
StateMDState
ZIP Code21046ZIPCode
FieldValueIRS element (for citing)
Info In Schedule O Part VIIXInfoInScheduleOPartVII

Form990 Part VII Section A Form990PartVIISectionA (36 entries)

TitleTitleAverage Hours Per WeekAverageHoursPerWeekIndividual Trustee Or DirectorIndividualTrusteeOrDirectorOfficerOfficerReportable Comp From OrganizationReportableCompFromOrganizationReportable Comp From Related OrgsReportableCompFromRelatedOrgsOther CompensationOtherCompensationAverage Hours Per Week RelatedAverageHoursPerWeekRelatedHighest Compensated EmployeeHighestCompensatedEmployee
Gordon Gund
Chairman10.00XX000
Jeremiah Shaw
Vice Chairman1.00XX000
Edward Gollob
President1.00XX000
Joel Davis
Senior Vice President1.00XX000
David Brint
Vice President1.00XX000
Haynes Lea
Vice President and Treasurer1.00XX000
Yvonne Chester
Secretary1.00XX000
Steve Alper
Director1.00X000
Gregory Austin
Director1.00X000
Daniel Bergstein
Director1.00X000
Marilyn Green
Director1.00X000
Alan Kahn
Director1.00X000
James McNiel
Director1.00X000
Nancy Mendelow
Director1.00X000
Evan Mittman
Director1.00X000
Karen Petrou
Director1.00X000
Nancy Pollak
Director1.00X000
Edward Russnow
Director1.00X000
Bruce Sawyer
Director1.00X000
Debbie Shaw
Director1.00X000
Moira Shea
Director1.00X000
Warren Thaler
Director1.00X000
George Villere
Director1.00X000
David Walsh
Director1.00X000
Ted Welp
Director1.00X000
William Schmidt
Chief Executive Officer40.00X3264860102441.00
James Minow
Chief Development Officer40.00X242811016312
Patricia Zillox
Chief Drug Development Officer40.00X228340078831.00
Stephen Rose
Chief Research Officer40.00X214787023512
Annette Hinkle
Chief Financial Officer40.00X1937000121691.00
Pat Dudley
Chief Human Resource Officer40.00X139118020749
Susan Brumley
Sr. National Director Major Gifts40.00157708016790X
Brian Mansfield
Deputy Chief Research Officer40.00155812021544X
Lorraine Hirsch
Controller40.0011899804469X
Tim Schoen
Director of Science40.001103210199981.00X
Michele Mercer
Sr. Director Database40.00102769014919X
FieldValueIRS element (for citing)
Total Reportable Comp From Org1990850TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs0TotalReportableCompFrmRltdOrgs
Total Other Compensation168589TotalOtherCompensation
Number Individuals GT100 K13NumberIndividualsGT100K
Formers Listed0FormersListed
Total Comp GT150 K1TotalCompGT150K
Compensation From Other Sources0CompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1CityAddressOfContractor/AddressUS/CityStateAddressOfContractor/AddressUS/StateZIP CodeAddressOfContractor/AddressUS/ZIPCodeDescription Of ServicesDescriptionOfServicesCompensationCompensation
Production Advantage
13873 Park Center Road Suite 15Oak HillVA20171Printing services329682
Hyatt Regency Minneapolis
PO Box 86012MinneapolisMN55486Conference venue229719
DP Solutions
9160 Red Branch Road Suite W-1ColumbiaMD21045IT services227159
Convio Inc
PO Box 671445DallasTX75267Online fundraising224331
Caskey Group
850 Vogelsong RoadYorkPA17404Printing services186200
FieldValueIRS element (for citing)
Number Of Contractors GT100 K11NumberOfContractorsGT100K
Federated Campaigns191177FederatedCampaigns
Fundraising Events11213278FundraisingEvents
All Other Contributions29424132AllOtherContributions
Noncash Contributions7544710NoncashContributions
Total Contributions40828587TotalContributions

Program Service Revenue ProgramServiceRevenue (2 entries)

DescriptionDescriptionBusiness CodeBusinessCodeTotal Revenue ColumnTotalRevenueColumnRelated Or Exempt Function IncomeRelatedOrExemptFunctionIncome
Contract revenue900099200350200350
Conference fees900099127920127920
FieldValueIRS element (for citing)
Total Program Service Revenue328270TotalProgramServiceRevenue

Investment Income InvestmentIncome

FieldValueIRS element (for citing)
Total Revenue Column2327645TotalRevenueColumn
Exclusion$2,327,645ExclusionAmount

Gross Amount Sales Assets GrossAmountSalesAssets

FieldValueIRS element (for citing)
Securities88660460Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

FieldValueIRS element (for citing)
Securities88791588Securities

Gain Or Loss GainOrLoss

FieldValueIRS element (for citing)
Securities-131128Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

FieldValueIRS element (for citing)
Total Revenue Column-131128TotalRevenueColumn
Exclusion-$131,128ExclusionAmount
FieldValueIRS element (for citing)
Gross Income Fundraising Events816863GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events11213278CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses1639318FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

FieldValueIRS element (for citing)
Total Revenue Column-822455TotalRevenueColumn
Exclusion-$822,455ExclusionAmount
FieldValueIRS element (for citing)
Gross Income Gaming14571GrossIncomeGaming
Gaming Direct Expenses25934GamingDirectExpenses

Net Income From Gaming NetIncomeFromGaming

FieldValueIRS element (for citing)
Total Revenue Column-11363TotalRevenueColumn
Exclusion-$11,363ExclusionAmount

Other Revenue Misc OtherRevenueMisc (3 entries)

DescriptionDescriptionBusiness CodeBusinessCodeTotal Revenue ColumnTotalRevenueColumnExclusionExclusionAmount
FFB CRI service fees90009999900$99,900
Sublease income90009932473$32,473
Research patent90009912480$12,480
FieldValueIRS element (for citing)
Total Other Revenue144853TotalOtherRevenue

Total Revenue TotalRevenue

FieldValueIRS element (for citing)
Total Revenue Column42664409TotalRevenueColumn
Related Or Exempt Function Income328270RelatedOrExemptFunctionIncome
Unrelated Business Revenue0UnrelatedBusinessRevenue
Exclusion$1,507,552ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

FieldValueIRS element (for citing)
Total10171257Total
Program Services10171257ProgramServices

Foreign Grants ForeignGrants

FieldValueIRS element (for citing)
Total1679206Total
Program Services1679206ProgramServices

Comp Current Officers Directors CompCurrentOfficersDirectors

FieldValueIRS element (for citing)
Total1465997Total
Program Services682268ProgramServices
Management And General432966ManagementAndGeneral
Fundraising350763Fundraising

Other Salaries And Wages OtherSalariesAndWages

FieldValueIRS element (for citing)
Total4717574Total
Program Services1230538ProgramServices
Management And General574595ManagementAndGeneral
Fundraising2912441Fundraising

Pension Plan Contributions PensionPlanContributions

FieldValueIRS element (for citing)
Total86890Total
Program Services24812ProgramServices
Management And General3696ManagementAndGeneral
Fundraising58382Fundraising

Other Employee Benefits OtherEmployeeBenefits

FieldValueIRS element (for citing)
Total672361Total
Program Services175711ProgramServices
Management And General110607ManagementAndGeneral
Fundraising386043Fundraising

Payroll Taxes PayrollTaxes

FieldValueIRS element (for citing)
Total461319Total
Program Services135418ProgramServices
Management And General64558ManagementAndGeneral
Fundraising261343Fundraising

Fees For Services Legal FeesForServicesLegal

FieldValueIRS element (for citing)
Total14618Total
Management And General8173ManagementAndGeneral
Fundraising6445Fundraising

Fees For Services Accounting FeesForServicesAccounting

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Total71597Total
Management And General66555ManagementAndGeneral
Fundraising5042Fundraising

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total381920Total
Fundraising381920Fundraising

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

FieldValueIRS element (for citing)
Total175463Total
Management And General161583ManagementAndGeneral
Fundraising13880Fundraising

Fees For Services Other FeesForServicesOther

FieldValueIRS element (for citing)
Total750430Total
Program Services494362ProgramServices
Management And General61416ManagementAndGeneral
Fundraising194652Fundraising

Office Expenses OfficeExpenses

FieldValueIRS element (for citing)
Total1083334Total
Program Services133384ProgramServices
Management And General153338ManagementAndGeneral
Fundraising796612Fundraising

Information Technology InformationTechnology

FieldValueIRS element (for citing)
Total370956Total
Program Services63460ProgramServices
Fundraising307496Fundraising

Occupancy Occupancy

FieldValueIRS element (for citing)
Total603997Total
Program Services77493ProgramServices
Management And General100032ManagementAndGeneral
Fundraising426472Fundraising

Travel Travel

FieldValueIRS element (for citing)
Total456443Total
Program Services108996ProgramServices
Management And General30164ManagementAndGeneral
Fundraising317283Fundraising

Conferences Meetings ConferencesMeetings

FieldValueIRS element (for citing)
Total805664Total
Program Services580002ProgramServices
Management And General73620ManagementAndGeneral
Fundraising152042Fundraising

Depreciation Depletion DepreciationDepletion

FieldValueIRS element (for citing)
Total480070Total
Program Services313117ProgramServices
Management And General27435ManagementAndGeneral
Fundraising139518Fundraising

Insurance Insurance

FieldValueIRS element (for citing)
Total161316Total
Program Services46997ProgramServices
Management And General23044ManagementAndGeneral
Fundraising91275Fundraising

Other Expenses OtherExpenses (2 entries)

DescriptionDescriptionTotalTotalProgram ServicesProgramServicesManagement And GeneralManagementAndGeneralFundraisingFundraising
Printing & production99274522777415916749055
Miscellaneous3504192878425957362062

Total Functional Expenses TotalFunctionalExpenses

FieldValueIRS element (for citing)
Total25953576Total
Program Services16173579ProgramServices
Management And General2167271ManagementAndGeneral
Fundraising7612726Fundraising

Cash Non Interest Bearing CashNonInterestBearing

FieldValueIRS element (for citing)
BOY5929922BOY
EOY2372214EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

FieldValueIRS element (for citing)
BOY6189BOY
EOY6209EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

FieldValueIRS element (for citing)
BOY6452717BOY
EOY4791757EOY

Accounts Receivable AccountsReceivable

FieldValueIRS element (for citing)
BOY711053BOY
EOY959053EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

FieldValueIRS element (for citing)
BOY470628BOY
EOY562476EOY
FieldValueIRS element (for citing)
Land Buildings Equipment Basis5686485LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec3184897LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

FieldValueIRS element (for citing)
BOY1806019BOY
EOY2501588EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

FieldValueIRS element (for citing)
BOY39235957BOY
EOY55995664EOY

Investments Other Securities InvestmentsOtherSecurities

FieldValueIRS element (for citing)
BOY5396099BOY
EOY6365579EOY

Other Assets Total OtherAssetsTotal

FieldValueIRS element (for citing)
BOY96804BOY
EOY63911EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY60105388BOY
EOY73618451EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

FieldValueIRS element (for citing)
BOY2447013BOY
EOY2089833EOY

Grants Payable GrantsPayable

FieldValueIRS element (for citing)
BOY13326558BOY
EOY12406812EOY

Deferred Revenue DeferredRevenue

FieldValueIRS element (for citing)
BOY324008BOY
EOY228755EOY

Other Liabilities OtherLiabilities

FieldValueIRS element (for citing)
BOY1023216BOY
EOY1147586EOY

Total Liabilities TotalLiabilities

FieldValueIRS element (for citing)
BOY17120795BOY
EOY15872986EOY
FieldValueIRS element (for citing)
Follow SFAS117XFollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

FieldValueIRS element (for citing)
BOY4811606BOY
EOY7223133EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY37672987BOY
EOY50022332EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY500000BOY
EOY500000EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY42984593BOY
EOY57745465EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY60105388BOY
EOY73618451EOY
FieldValueIRS element (for citing)
Reconcilation Revenue Expenses16710833ReconcilationRevenueExpenses
Reconciliation Unrealized Invest-1976360ReconciliationUnrealizedInvest
Reconcilation Donated Services26400ReconcilationDonatedServices
Reconcilation Other Changes0ReconcilationOtherChanges
Method Of Accounting AccrualXMethodOfAccountingAccrual
Accountant Compile Or Review0AccountantCompileOrReview
FS Audited1FSAudited

FS Audited Basis FSAuditedBasis

FieldValueIRS element (for citing)
Financial Statement ConsolidatedXFinancialStatementConsolidated
FieldValueIRS element (for citing)
Audit Committee1AuditCommittee
Federal Grant Audit Required1FederalGrantAuditRequired
Federal Grant Audit Performed1FederalGrantAuditPerformed

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org170b1 AviXPubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years27483731CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years30918188CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years36268303CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year38553517CurrentTaxYearMinus1Year
Current Tax Year40828587CurrentTaxYear
Total174052326Total

Total170 Total170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years27483731CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years30918188CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years36268303CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year38553517CurrentTaxYearMinus1Year
Current Tax Year40828587CurrentTaxYear
Total174052326Total
FieldValueIRS element (for citing)
Amounts Subst Contributors Total61719360AmountsSubstContributorsTotal
Public Support Total170112332966PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years483120CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years368024CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years717281CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year1671104CurrentTaxYearMinus1Year
Current Tax Year2360118CurrentTaxYear
Total5599647Total

Other Income170 OtherIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years158807CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years185097CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years155990CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year162804CurrentTaxYearMinus1Year
Current Tax Year112380CurrentTaxYear
Total775078Total
FieldValueIRS element (for citing)
Total Support180427051TotalSupport
Gross Receipts From Admissions Etc5199187GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage1700.62260PublicSupportPertcentage170
Public Support Pertcent Prior Year0.67310PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170XThirtyThreePercntTestsCY170
General ExplanationSchedule A, Part II, Line 10, Explanation of Other Income: FFB CRI service fees Miscellaneous Research patentGeneralExplanation

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Schedule D IRS990ScheduleD

Current Year CurrentYear

FieldValueIRS element (for citing)
Beginning Of Year Balance500000BeginningOfYearBalance
Investment Earnings Or Losses14507InvestmentEarningsOrLosses
Grants Or Scholarships12469GrantsOrScholarships
Administrative Expenses2038AdministrativeExpenses
End Of Year Balance500000EndOfYearBalance

Current Year Minus1 Year CurrentYearMinus1Year

FieldValueIRS element (for citing)
Beginning Of Year Balance500000BeginningOfYearBalance
Investment Earnings Or Losses19092InvestmentEarningsOrLosses
Grants Or Scholarships17076GrantsOrScholarships
Administrative Expenses2016AdministrativeExpenses
End Of Year Balance500000EndOfYearBalance

Current Year Minus2 Years CurrentYearMinus2Years

FieldValueIRS element (for citing)
Beginning Of Year Balance500000BeginningOfYearBalance
Investment Earnings Or Losses32633InvestmentEarningsOrLosses
Grants Or Scholarships29953GrantsOrScholarships
Administrative Expenses2680AdministrativeExpenses
End Of Year Balance500000EndOfYearBalance

Current Year Minus3 Years CurrentYearMinus3Years

FieldValueIRS element (for citing)
Beginning Of Year Balance500000BeginningOfYearBalance
Investment Earnings Or Losses54476InvestmentEarningsOrLosses
Grants Or Scholarships52024GrantsOrScholarships
Administrative Expenses2452AdministrativeExpenses
End Of Year Balance500000EndOfYearBalance

Current Year Minus4 Years CurrentYearMinus4Years

FieldValueIRS element (for citing)
Beginning Of Year Balance500000BeginningOfYearBalance
Investment Earnings Or Losses38341InvestmentEarningsOrLosses
Grants Or Scholarships36101GrantsOrScholarships
Administrative Expenses2240AdministrativeExpenses
End Of Year Balance500000EndOfYearBalance
FieldValueIRS element (for citing)
Permanent Endowment EOY Balance1.00000PermanentEndowmentEOYBalance
Endowments Held By Unrelated Orgs0EndowmentsHeldByUnrelatedOrgs
Endowments Held By Related Orgs0EndowmentsHeldByRelatedOrgs

Leasehold Improvements LeaseholdImprovements

FieldValueIRS element (for citing)
Other Cost Or Other Basis914852OtherCostOrOtherBasis
Depreciation209676Depreciation
Book Value705176BookValue

Equipment Equipment

FieldValueIRS element (for citing)
Other Cost Or Other Basis1457383OtherCostOrOtherBasis
Depreciation1017779Depreciation
Book Value439604BookValue

Other Land Buildings OtherLandBuildings

FieldValueIRS element (for citing)
Other Cost Or Other Basis3314250OtherCostOrOtherBasis
Depreciation1957442Depreciation
Book Value1356808BookValue
FieldValueIRS element (for citing)
Total Of Book Value Land Buildings2501588TotalOfBookValueLandBuildings

Other Securities OtherSecurities (3 entries)

DescriptionDescriptionBook ValueBookValueMethod Of ValuationMethodOfValuation
Charitable gift annuity funds711479F
Pooled income funds44960F
Beneficial interest in remainder trusts5609140F
FieldValueIRS element (for citing)
Total Of Book Value Securities6365579TotalOfBookValueSecurities

Other Liabilities OtherLiabilities (3 entries)

DescriptionDescriptionAmountAmount
Pooled income fund obligation$9,723
Charitable gift annuity obligation$731,070
Deferred compensation obligation$406,793
FieldValueIRS element (for citing)
Total Of Amounts1147586TotalOfAmounts
Footnote In Part XIIIXFootnoteInPartXIII
Tot Revenue Etc Audited Fincl Stmt44754196TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments-1976360NetUnrealizedGainsInvestments
Donated Srvc And Use Of Facilities135505DonatedSrvcAndUseOfFacilities
Other Revenues5193919OtherRevenues
Revenue Not Rptd F9903353064RevenueNotRptdF990
Revenue Subtotal41401132RevenueSubtotal
Other Revenues Not Included1263277OtherRevenuesNotIncluded
Revenue Not Rptd On Fin Stmt1263277RevenueNotRptdOnFinStmt
Total Revenue Per Form99042664409TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt29892922TotExpensesEtcAuditedFinclStmt
Donated Services Use Of Facilities109111DonatedServicesUseOfFacilities
Other Expenses Included5093512OtherExpensesIncluded
Expenses Not Rptd F9905202623ExpensesNotRptdF990
Expenses Subtotal24690299ExpensesSubtotal
Other Expenses Not Included1263277OtherExpensesNotIncluded
Expenses Not Rptd On Fin Stmt1263277ExpensesNotRptdOnFinStmt
Total Expenses Per Form99025953576TotalExpensesPerForm990

Form990 Schedule D Part XIII Form990ScheduleDPartXIII (6 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
Description of Intended Use of Endowment Funds:Part V, Line 4:The income earned on these net assets is restricted by the donors for research. Investment earnings on endowment funds are expended for the restricted purpose required in the year earned.
Description of Uncertain Tax Positions Under FIN 48:Part X, Line 2:The Foundation has performed an evaluation of its uncertain tax positions for the year ended June 30, 2013, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status.
Part XI, Line 2d - Other Adjustments:Subsidiary revenue included on consolidated financial statements 5,193,919.
Part XI, Line 4b - Other Adjustments:Intercompany grants and management fee 1,263,277.
Part XII, Line 2d - Other Adjustments:Subsidiary expenses included on consolidated financial statements 5,093,512.
Part XII, Line 4b - Other Adjustments:Intercompany grants and management fee 1,263,277.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained1GrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable (3 entries)

RegionRegionNumber Of OfficesNumberOfOfficesNumber Of EmployeesNumberOfEmployeesType Of Activities ConductedTypeOfActivitiesConductedTotal ExpendituresTotalExpenditures
Europe (including Iceland and Greenland)00Grantmaking1456206
Middle East and North Africa00Grantmaking148000
South Asia00Grantmaking75000
FieldValueIRS element (for citing)
Subtotal Number Of Offices0SubtotalNumberOfOffices
Subtotal Number Of Employees0SubtotalNumberOfEmployees
Cont Number Of Offices0ContNumberOfOffices
Cont Number Of Employees0ContNumberOfEmployees
Total Number Of Offices0TotalNumberOfOffices
Total Number Of Employees0TotalNumberOfEmployees
Subtotal Amount Spent1679206SubtotalAmountSpent
Cont Amount Spent0ContAmountSpent
Total Amount Spent1679206TotalAmountSpent

Grants To Orgs Outside US GrantsToOrgsOutsideUS (11 entries)

RegionRegionPurpose Of GrantPurposeOfGrantAmount Of Cash GrantAmountOfCashGrantManner Of Cash DisbursementMannerOfCashDisbursement
Europe (including Iceland and Greenland)Research361300Check
Europe (including Iceland and Greenland)Research334347Check
Europe (including Iceland and Greenland)Research260378Check
Europe (including Iceland and Greenland)Research200000Check
Middle East and North AfricaResearch100000Check
Europe (including Iceland and Greenland)Research99681Check
Europe (including Iceland and Greenland)Research75000Check
Europe (including Iceland and Greenland)Research75000Check
South AsiaResearch75000Check
Europe (including Iceland and Greenland)Research50500Check
Middle East and North AfricaResearch48000Check
FieldValueIRS element (for citing)
Total Number Of501c3 Orgs0TotalNumberOf501c3Orgs
Total Number Of Other Orgs8TotalNumberOfOtherOrgs
Transfer To Foreign Corp0TransferToForeignCorp
Interest In Foreign Trust0InterestInForeignTrust
Own Foreign Corp0OwnForeignCorp
Passive Foreign Invest Co0PassiveForeignInvestCo
Foreign Partnership0ForeignPartnership
Boycott Countries0BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

FieldValueIRS element (for citing)
IdentifierProcedure for Monitoring Grants Outside the U.S.:Identifier
ExplanationSchedule F, Part I, Line 2: Each grantee is required to submit a yearly scientific progress report, which is reviewed by the FFB science staff and compared with the proposed milestones submitted with the original grant application. Attention is also given to the plan for experiments to be performed in the coming year. Any problems or issues identified by the grantee and/or FFB scientific staff are resolved to our mutual satisfaction; however, if a consensus cannot be reached or if the apparent progress is not satisfactory in the opinion of FFB scientific staff, after consultation with members of the FFB Scientific Advisory Board, the grant is terminated with a short phase out period. Each grantee is required to submit a yearly financial report detailing grant expenditures according to their FFB approved grant budget. Science staff review each financial report for adherence to budgeted expenditures in each category. With proper documentation and if determined appropriate, requests for carryover of unexpended funds to the next fiscal year are reviewed and approved on a case-by-case basis.Explanation

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsXMailSolicitations
Email SolicitationsXEmailSolicitations
Phone SolicitationsXPhoneSolicitations
In Person SolicitationsXInPersonSolicitations
Solicitation Of Non Govt GrantsXSolicitationOfNonGovtGrants
Special Fundraising EventsXSpecialFundraisingEvents
Agreement Ref Fundraising1AgreementRefFundraising

Fundraiser Activity Information FundraiserActivityInformation (5 entries)

Address Line1AddressUS/AddressLine1CityAddressUS/CityStateAddressUS/StateZIP CodeAddressUS/ZIPCodeActivityActivityFundraiser Control Of FundsFundraiserControlOfFundsGross ReceiptsGrossReceiptsAmount Retained By ContractorAmountRetainedByContractorNet To OrganizationNetToOrganization
Events with Ginger & Co
717 Harding StreetWestfieldNJ07090Special Event Fundraising Counsel065307518335634740
Dina Beaumont
9720 Owen Brown RoadColumbiaMD21045Special Event Fundraising Counsel059523582524512711
Strategic Fundraising
7591 9th Street NSt PaulMN55128Telemarketing Fundraising Counsel0230018125436104582
NNE Marketing
724 Massachusetts AvenueArlingtonMA02476Fundraising Counsel0086150-86150
Charity Dynamics
3420 Executive Center Drive G-100AustinTX78731Fundraising Counsel0069475-69475
FieldValueIRS element (for citing)
Total Gross Receipts1478328TotalGrossReceipts
Total Retained By Contractors381920TotalRetainedByContractors
Total Net To Organization1096408TotalNetToOrganization
Licensed StatesALLicensedStates
Licensed StatesAKLicensedStates
Licensed StatesAZLicensedStates
Licensed StatesARLicensedStates
Licensed StatesCALicensedStates
Licensed StatesCOLicensedStates
Licensed StatesCTLicensedStates
Licensed StatesDELicensedStates
Licensed StatesDCLicensedStates
Licensed StatesFLLicensedStates
Licensed StatesGALicensedStates
Licensed StatesHILicensedStates
Licensed StatesIDLicensedStates
Licensed StatesILLicensedStates
Licensed StatesINLicensedStates
Licensed StatesIALicensedStates
Licensed StatesKSLicensedStates
Licensed StatesKYLicensedStates
Licensed StatesLALicensedStates
Licensed StatesMELicensedStates
Licensed StatesMDLicensedStates
Licensed StatesMALicensedStates
Licensed StatesMILicensedStates
Licensed StatesMNLicensedStates
Licensed StatesMSLicensedStates
Licensed StatesMOLicensedStates
Licensed StatesMTLicensedStates
Licensed StatesNELicensedStates
Licensed StatesNVLicensedStates
Licensed StatesNHLicensedStates
Licensed StatesNJLicensedStates
Licensed StatesNMLicensedStates
Licensed StatesNYLicensedStates
Licensed StatesNCLicensedStates
Licensed StatesNDLicensedStates
Licensed StatesOHLicensedStates
Licensed StatesOKLicensedStates
Licensed StatesORLicensedStates
Licensed StatesPALicensedStates
Licensed StatesRILicensedStates
Licensed StatesSCLicensedStates
Licensed StatesSDLicensedStates
Licensed StatesTNLicensedStates
Licensed StatesTXLicensedStates
Licensed StatesUTLicensedStates
Licensed StatesVTLicensedStates
Licensed StatesVALicensedStates
Licensed StatesWALicensedStates
Licensed StatesWVLicensedStates
Licensed StatesWILicensedStates
Licensed StatesWYLicensedStates

Events Information EventsInformation

FieldValueIRS element (for citing)
Name Of Event1Chicago DinnerNameOfEvent1
Gross Receipts Event1748588GrossReceiptsEvent1
Charitable Contributions Event1692038CharitableContributionsEvent1
Gross Revenue Event156550GrossRevenueEvent1
Rent Facility Costs Event136250RentFacilityCostsEvent1
Food And Beverage Event140691FoodAndBeverageEvent1
Entertainment Event121300EntertainmentEvent1
Other Direct Expenses Event114413OtherDirectExpensesEvent1
Name Of Event2NY Visionary AwardNameOfEvent2
Gross Receipts Event2460965GrossReceiptsEvent2
Charitable Contributions Event2408165CharitableContributionsEvent2
Gross Revenue Event252800GrossRevenueEvent2
Food And Beverage Event243788FoodAndBeverageEvent2
Entertainment Event27015EntertainmentEvent2
Other Direct Expenses Event27871OtherDirectExpensesEvent2
Total Number Of Other Events86TotalNumberOfOtherEvents
Gross Receipts Other Events10820588GrossReceiptsOtherEvents
Charitable Contrib Other Events10113075CharitableContribOtherEvents
Gross Revenue Other Events707513GrossRevenueOtherEvents
Rent Facility Costs Other Events320915RentFacilityCostsOtherEvents
Food And Beverage Other Events792149FoodAndBeverageOtherEvents
Entertainment Other Events66724EntertainmentOtherEvents
Other Direct Expenses Other Events288202OtherDirectExpensesOtherEvents
Gross Receipts Total12030141GrossReceiptsTotal
Charitable Contributions Total11213278CharitableContributionsTotal
Gross Revenue Total Events816863GrossRevenueTotalEvents
Rent Facility Costs Total Events357165RentFacilityCostsTotalEvents
Food And Beverage Total Events876628FoodAndBeverageTotalEvents
Entertainment Total Events95039EntertainmentTotalEvents
Other Direct Expenses Total Events310486OtherDirectExpensesTotalEvents
Direct Expense Summary Events1639318DirectExpenseSummaryEvents
Net Income Summary-822455NetIncomeSummary

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Records Maintained1RecordsMaintained

Recipient Table RecipientTable (66 entries)

Address Line1AddressUS/AddressLine1CityAddressUS/CityStateAddressUS/StateZIP CodeAddressUS/ZIPCodeEIN Of RecipientEINOfRecipientIRC SectionIRCSectionAmount Of Cash GrantAmountOfCashGrantPurpose Of GrantPurposeOfGrant
Foundation Fighting Blindness Clinical Research
7168 Columbia Gateway DriveColumbiaMD21046450524687501(c)(3)1163377Research
University of Iowa
2 Gilmore HallIowa CityIA52242237436761501(c)(3)1000000Research
Applied Genetic Technologies
11801 Research Drvie Suite DAlachuaFL32615593533710N/A500000Research
Harvard University
243 Charles StreetBostonMA02114042103580501(c)(3)338200Research
The Cleveland Clinic Foundation
9500 Euclid AvenueClevelandOH44195340714585501(c)(3)336371Research
University of Iowa
200 Hawkins DriveIowa CityIA52242237436761501(c)(3)329000Research
University of California San Francisco
100 Stein PlazaLos AngelesCA90095956006143501(c)(3)297849Research
Oregon Health and Science University
3375 Terwilliger Boulevard SWPortlandOR97201237083114501(c)(3)294545Research
Cornell University
373 Pine Tree StreetIthacaNY14850150532082501(c)(3)270000Research
University of Pennsylvania
422 Curie BlvdPhiladelphiaPA19104232810852501(c)(3)250057Research
University of Florida College of Medicine
219 Grinter HallGainesvilleFL32611592729133501(c)(3)225000Research
University of Michigan
3003 South State StreetAnn ArborMI48109386006309501(c)(3)217461Research
Columbia University Medical Center
630 West 168th StreetNew YorkNY10032135598093501(c)(3)211303Research
Scheie Eye Institute
3535 Market StreetPhiladelphiaPA19104231352685501(c)(3)210000Research
The Cleveland Clinic Foundation
9500 Euclid AvenueClevelandOH44195340714585501(c)(3)200000Research
Retina Foundation of the Southwest
9900 North Central ExpresswayDallasTX75231510151514501(c)(3)197099Research
Michigan State
426 Auditorium RoadEast LansingMI48824386005984501(c)(3)153585Research
University of Oklahoma Health Science Center
1000 Stanton L Young BlvdOklahoma CityOK73117730762267501(c)(3)152087Research
University of California Los Angeles
100 Stein PlazaLos AngelesCA90095956006143501(c)(3)104827Research
Baylor College of Medicine
One Baylor PlazaHoustonTX77030741613878501(c)(3)100000Research
Foundation of UMDNJ
90 Bergen StreetNewarkNJ07103237313160501(c)(3)100000Research
Johns Hopkins University
600 North Wolfe StreetBaltimoreMD21287520595110501(c)(3)100000Research
Massachusetts Eye and Ear Infirmary
243 Charles StreetBostonMA02114042103591501(c)(3)100000Research
NYU Medical Center
545 First Avenue GBH-SC1-81New YorkNY10016135562308501(c)(3)100000Research
Tufts Univ School of Medicine
800 Washington Street Box 817BostonMA02111042103634501(c)(3)100000Research
Univ Mass Medical Center
S6-408 55 Lake Avenue NorthWorchesterMA01655043167352501(c)(3)100000Research
Univ of Cal Berkeley
2150 Shattuck AvenueBerkeleyCA94720946002123501(c)(3)100000Research
Univ of Cal Berkeley
2150 Shattuck AvenueBerkeleyCA94720946002123501(c)(3)100000Research
University of Florida
Box 115500GainesvilleFL32610592729133501(c)(3)100000Research
University of Florida
PO Box 100284GainesvilleFL32610592729133501(c)(3)100000Research
University of Florida
PO Box 100284GainesvilleFL32610592729133501(c)(3)100000Research
University of Minnesota
200 Oak StreetMinneapolisMN55455416007513501(c)(3)100000Research
University of Oklahoma Health Sciences
608 Stanton L Young BlvdOklahoma CityOK73104730762267501(c)(3)100000Research
University of Pennsylvania
3900 Delancy StreetPhiladelphiaPA19104232810852501(c)(3)100000Research
Indiana University
509 East Third StreetBloomingtonIN47401356001673501(c)(3)99964Research
University of California San Francisco
3333 California St Suite 315San FranciscoCA94148946036494501(c)(3)99923Research
Medical College of Wisconsin
8701 Watertown Plank RoadMilwaukeeWI53226139080626501(c)(3)99553Research
Shiley Eye Center
9500 Gilman Dr MC 0009LA JollaCA92093956006144501(c)(3)99446Research
University of Texas Health Science Center
1200 Herman Pressler DriveHoustonTX77030741761309501(c)(3)97283Research
The Schepens Eye Research Institute
20 Staniford StreetBostonMA02114042129889501(c)(3)92965Research
University of Texas Health Science Center
PO Box 20036HoustonTX77225741761309501(c)(3)92748Research
University of Kentucky
109 Kinkead HallLexingtonKY40506616033693501(c)(3)90738Research
Emory University
1599 Clifton RoadAtlantaGA30322580566256501(c)(3)90068Research
Medical University of South Carolina
167 Ashley AvenueCharlestonSC29425576028985501(c)(3)89440Research
Foundation of UMDNJ
90 Bergen StreetNewarkNJ07103237313160501(c)(3)88837Research
University of Florida
PO Box 100284GainesvilleFL32610592729133501(c)(3)87551Research
Stanford University School of Medicine
SUMC RM L-331StanfordCA94305941156365501(c)(3)78107Research
Oregon Health and Science University
2525 SW 1st AvenuePortlandOR97201237083114501(c)(3)75000Research
Univ of Illinois at Chicago
1905 W Taylor StreetChicagoIL60612376006007501(c)(3)75000Research
University of Florida
PO Box 100284GainesvilleFL32610592729133501(c)(3)75000Research
University of Iowa
375 Newborn RoadIowa CityIA52245237436761501(c)(3)75000Research
University of Kentucky
109 Kinkead HallLexingtonKY40506616033693501(c)(3)75000Research
University of Michigan
100 Wall StreetAnn ArborMI48105386006309501(c)(3)75000Research
Helen Wills Neuroscience Institute
112 Barker HallBerkeleyCA94720946090626501(c)(3)74836Research
University of Pennsylvania
3451 Walnut StreetPhiladelphiaPA19104232810852501(c)(3)70000Research
Columbia University
635 West 165th StreetNew YorkNY10032135598093501(c)(3)65000Research
University of Utah
75 South 2000 EastSalt Lake CityUT84132237112869501(c)(3)65000Research
University of Utah
75 South 2000 EastSalt Lake CityUT84132237112869501(c)(3)57000Research
Retina Foundation of the Southwest
9900 North Central ExpresswayDallasTX75231510151514501(c)(3)50086Research
University of Florida
1600 SW Archer RoadGainesvilleFL32610592729133501(c)(3)50000Research
University of Utah School of Medicine
65 N Medical DriveSalt Lake CityUT84132237112869501(c)(3)50000Research
Univ of Massachussets Medical School
55 Lake Avenue NorthWorchesterMA01655043167352501(c)(3)45261Research
University of California San Diego
9500 Gilman DriveLa JollaCA92037956006144501(c)(3)40000Research
Case Western Reserve Univesity
10900 Euclid AvenueClevelandOH44106341018992501(c)(3)35000Research
University of Pennsylvania
422 Curie BlvdPhiladelphiaPA19104232810852501(c)(3)28000Research
Various prior year refunds and misc
-66310Research
FieldValueIRS element (for citing)
Total Nbr Of501 C3 And Govt Grants45TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations1TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

FieldValueIRS element (for citing)
IdentifierProcedure for Monitoring Grants in the U.S.:Identifier
Return ReferencePart I, Line 2:ReturnReference
ExplanationSchedule I, Part I, Line 2: Each grantee is required to submit a yearly scientific progress report, which is reviewed by the FFB science staff and compared with the proposed milestones submitted with the original grant application. Attention is also given to the plan for experiments to be performed in the coming year. Any problems or issues identified by the grantee and/or FFB scientific staff are resolved to our mutual satisfaction; however, if a consensus cannot be reached or if the apparent progress is not satisfactory in the opinion of FFB scientific staff, after consultation with members of the FFB Scientific Advisory Board, the grant is terminated with a short phase out period. Each grantee is required to submit a yearly financial report detailing grant expenditures according to their FFB approved grant budget. Science staff review each financial report for adherence to budgeted expenditures in each category. With proper documentation and if determined appropriate, requests for carryover of unexpended funds to the next fiscal year are reviewed and approved on a case-by-case basis.Explanation

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeXCompensationCommittee
Independent ConsultantXIndependentConsultant
Form990 Of Other OrganizationsXForm990OfOtherOrganizations
Compensation SurveyXCompensationSurvey
Board Or Committee ApprovalXBoardOrCommitteeApproval
Severance Payment0SeverancePayment
Supplemental Nonqual Retire Plan0SupplementalNonqualRetirePlan
Equity Based Comp Arrangement0EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org0CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs0CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org0CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs0CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments0AnyNonFixedPayments
Initial Contract Exception0InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII (8 entries)

TitleTitleBase Compensation Filing OrgBaseCompensationFilingOrgComp Based On Related OrgsCompBasedOnRelatedOrgsBonus Filing OrgBonusFilingOrgBonus Related OrgsBonusRelatedOrgsOther Compensation Filing OrgOtherCompensationFilingOrgOther Compensation Related OrgsOtherCompensationRelatedOrgsDeferred Comp Filing OrgDeferredCompFilingOrgDeferred Comp Related OrgsDeferredCompRelatedOrgsNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgNontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgsTotal Compensation Filing OrgTotalCompensationFilingOrgTotal Compensation Related OrgsTotalCompensationRelatedOrgsComp Report Prior990 Filing OrgCompReportPrior990FilingOrgComp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs
William Schmidt
Chief Executive Officer326486000008268019760336730000
James Minow
Chief Development Officer2428110000061410101710259123000
Patricia Zillox
Chief Drug Development Officer228340000005757021260236223000
Stephen Rose
Chief Research Officer2147870000055960179160238299000
Annette Hinkle
Chief Financial Officer193700000004889072800205869000
Pat Dudley
Chief Human Resource Officer1391180000034480173010159867000
Susan Brumley
Sr. National Director Major Gifts1577080000041280126620174498000
Brian Mansfield
Deputy Chief Research Officer1558120000041260174180177356000

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTraded

FieldValueIRS element (for citing)
Non Cash CheckboxXNonCashCheckbox
Number Of Contributions34NumberOfContributions
Noncash Contribs Rptd F9906732928NoncashContribsRptdF990
Method Of Determining RevenuesFair Market ValueMethodOfDeterminingRevenues

Other Non Cash Contributions Table OtherNonCashContributionsTable

FieldValueIRS element (for citing)
Non Cash CheckboxXNonCashCheckbox
DescriptionEvent itemsDescription
Noncash Contribs Rptd F990811782NoncashContribsRptdF990
Method Of Determining RevenuesFair Market ValueMethodOfDeterminingRevenues
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeld
Review Process Unusual NC Gifts1ReviewProcessUnusualNCGifts
Third Parties Used0ThirdPartiesUsed

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (8 entries)

Return ReferenceReturnReferenceExplanationExplanation
Form 990, Part VI, Section A, line 2Jeremiah H. Shaw, Vice Chairman, has a family relationship with Debbie Shaw, Director. Eddie Russnow, Director, has a family relationship with Edward Gollob, President.
Form 990, Part VI, Section A, line 6Members of FFB are known as National Trustees. The qualifications and eligibility for membership and the manner of admission into membership is prescribed by resolution of the Board of Directors. The National Trustees are entitled to vote on electon of directors.
Form 990, Part VI, Section A, line 7aDuring the annual meeting of the National Trustees, members of the Board of Directors are elected.
Form 990, Part VI, Section B, line 11Data to prepare the federal Form 990 is provided to our outside accounting firm for preparation and guidance. After it has been completed, a draft of the federal Form 990 is reviewed by the Chief Financial Officer. With the CFO's approval the draft federal Form 990 is then made available to all Board members who are also invited to a special meeting of the Finance Committee to review the federal Form 990 before filing.
Form 990, Part VI, Section B, line 12cConflict of interest policy forms are obtained upon Board election and hiring. New forms are obtained at the beginning of every fiscal year. Senior management and Board members are aware that conflict of interests must be documented and disclosed to the Board of Directors. Finance staff review activity throughout the year for proper disclosure.
Form 990, Part VI, Section B, line 15As part of the annual budget process, FFB reviews all salaries and performances, including officers and key employees, in order to determine appropriate salary adjustments. An overall increase pool, based on feedback from market data, is approved by the Board of Directors for use in this process. On a routine basis, external data provided by outside expert compensation consultants is used to measure reasonableness of salaries to the market place and results are communicated by outside consultants to the Board Chair/Compensation Committee.
Form 990, Part VI, Section C, line 19FFB's federal Form 990, Form 1023 and consolidated audited financial statements are available at www.fightblindness.org. Other public governing documents including the conflict of interest policy are available upon request through the contact information disclosed on FFB's web site.
Part VII FFB acts as the common paymaster for the Foundation Fighting Blindness Clinical Research Institute, a related organization.

Schedule R IRS990ScheduleR

Form990 Schedule R Part II Form990ScheduleRPartII (3 entries)

Address Line1AddressUS/AddressLine1CityAddressUS/CityStateAddressUS/StateZIP CodeAddressUS/ZIPCodeEINEINPrimary ActivitiesPrimaryActivitiesLegal Domicile StateLegalDomicileStateExempt Code SectionExemptCodeSectionPublic Charity StatusPublicCharityStatusBusiness Name Line1DirectControllingEntityName/BusinessNameLine1Controlled OrgControlledOrg
Foundation Fighting Blindness Clinical Research Institute
7168 Columbia Gateway Drive Suite 1ColumbiaMD21046450524687ResearchDE501(c)(3)Line 11aFoundation Fighting Blindness1
Macular Degeneration International Inc
7168 Columbia Gateway Drive Suite 1ColumbiaMD21046363923922FundraisingIL501(c)(3)Line 7Foundation Fighting Blindness1
National Retinitis Pigmentosa Foundation
7168 Columbia Gateway Drive Suite 1ColumbiaMD21046522072391FundraisingMD501(c)(3)Line 11aFoundation Fighting Blindness1
FieldValueIRS element (for citing)
Receipt Of Int Ann Rents Royalties0ReceiptOfIntAnnRentsRoyalties
Gift Grant Or Cap Contr To Other Org1GiftGrantOrCapContrToOtherOrg
Gift Grant Or Cap Contr Fr Other Org0GiftGrantOrCapContrFrOtherOrg
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrg
Loans Or Guarantees From Other Org0LoansOrGuaranteesFromOtherOrg
Dividends Related Organization0DividendsRelatedOrganization
Sale Of Assets To Other Org0SaleOfAssetsToOtherOrg
Purchase Of Assets From Other Org0PurchaseOfAssetsFromOtherOrg
Exchange Of Assets0ExchangeOfAssets
Rental Of Facilities To Other Orgs0RentalOfFacilitiesToOtherOrgs
Rental Of Facilities Fr Other Orgs0RentalOfFacilitiesFrOtherOrgs
Perform Of Services For Other Orgs1PerformOfServicesForOtherOrgs
Perform Of Services By Other Orgs0PerformOfServicesByOtherOrgs
Sharing Of Facilities1SharingOfFacilities
Sharing Of Paid Employees1SharingOfPaidEmployees
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrg
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrg
Other Transfer To Other Org0OtherTransferToOtherOrg
Other Transfer From Other Org0OtherTransferFromOtherOrg

Transactions Related Orgs Table TransactionsRelatedOrgsTable (3 entries)

Transaction TypeTransactionTypeAmount InvolvedAmountInvolvedMethod Of Amt DeterminationMethodOfAmtDetermination
Foundation Fighting Blindness Clinical Research Institute
B1163377FMV
Foundation Fighting Blindness Clinical Research Institute
L99900FMV
Foundation Fighting Blindness Clinical Research Institute
O583848FMV

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