MYOTONIC DYSTROPHY FOUNDATION: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: MYOTONIC DYSTROPHY FOUNDATION (EIN 20-5014628)
Tax period: 2012-01-01 to 2012-12-31
Filed: 2013-08-27
IRS object ID: 201332399349300028
Schema version: 2012v2.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule I
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-08-27T15:26:35-07:00	Timestamp
Tax Period End Date	2012-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	PROPP CHRISTENSEN CANIGLIA LLP	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	9261 Sierra College Boulevard	AddressLine1
City	Roseville	City
State	CA	State
ZIP Code	956615919	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	205014628	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	MYOTONIC DYSTROPHY FOUNDATION INC	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	MYOT	NameControl
Phone	4158007745	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1003B OREILLY AVENUE	AddressLine1
City	SAN FRANCISCO	City
State	CA	State
ZIP Code	94129	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	MOLLY WHITE	Name
Title	Executive Direc	Title
Date Signed	2013-08-27	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	K JEFFREY DE LYSER CPA	Name
PTIN	P00022269	PTIN
Phone	9167512900	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Address Change	X	AddressChange
Gross Receipts	737501	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
All Affiliates Included	false	AllAffiliatesIncluded
Organization501c3	X	Organization501c3
Web Site	WWW.MYOTONIC.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	2006	YearFormation
State Legal Domicile	CA	StateLegalDomicile
Activity Or Mission Description	To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	10	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	10	NbrIndependentVotingMembers
Total Nbr Employees	5	TotalNbrEmployees
Total Nbr Volunteers	15	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	1602055	ContributionsGrantsPriorYear
Contributions Grants Current Year	726874	ContributionsGrantsCurrentYear
Program Service Revenue CY	10308	ProgramServiceRevenueCY
Investment Income Prior Year	307	InvestmentIncomePriorYear
Investment Income Current Year	319	InvestmentIncomeCurrentYear
Other Revenue Current Year	0	OtherRevenueCurrentYear
Total Revenue Prior Year	1602362	TotalRevenuePriorYear
Total Revenue Current Year	737501	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	208273	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	701500	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	153183	SalariesEtcPriorYear
Salaries Etc Current Year	301093	SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	82698	TotalFundrsngExpCurrentYear
Other Expense Prior Year	374704	OtherExpensePriorYear
Other Expenses Current Year	309772	OtherExpensesCurrentYear
Total Expenses Prior Year	736160	TotalExpensesPriorYear
Total Expenses Current Year	1312365	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	866202	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-574864	RevenuesLessExpensesCY
Total Assets BOY	1890239	TotalAssetsBOY
Total Assets EOY	1699136	TotalAssetsEOY
Total Liabilities BOY	153769	TotalLiabilitiesBOY
Total Liabilities EOY	537530	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	1736470	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	1161606	NetAssetsOrFundBalancesEOY
Mission Description	To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	736536	Expense
Grants	701500	Grants
Description	Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal of finding a treatment and eventually a cure for this chronic, degenerative disease.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	277378	Expense
Description	Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	106889	Expense
Description	Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support.	Description

Field	Value	IRS element (for citing)
Total Program Service Expense	1120803	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	false	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	false	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	true	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	false	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	false	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	false	GrantsToIndividuals
Schedule J Required	false	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Invest Tax Exempt Bonds	false	InvestTaxExemptBonds
Escrow Account	false	EscrowAccount
On Behalf Of Issuer	false	OnBehalfOfIssuer
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	19	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	false	ComplianceWithBackupWitholding
Number Of Employees	5	NumberOfEmployees
Employment Tax Returns Filed	false	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Form990-T Filed	false	Form990-TFiled
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Number Of8282 Filed	0	NumberOf8282Filed
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form8899 Filed	false	Form8899Filed
Form1098 C Filed	false	Form1098CFiled
Excess Business Holdings	false	ExcessBusinessHoldings
Taxable Distributions	false	TaxableDistributions
Distribution To Donor	false	DistributionToDonor
Filed Lieu1041	false	FiledLieu1041
Licensed More Than One State	false	LicensedMoreThanOneState
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	10	NbrVotingGoverningBodyMembers
Number Independent Voting Members	10	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	false	LocalChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	MOLLY WHITE	NamePerson
Telephone Number	4158007745	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	1003B OREILLY AVENUE	AddressLine1
City	SAN FRANCISCO	City
State	CA	State
ZIP Code	94129	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (11 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Average Hours Per Week RelatedAverageHoursPerWeekRelated	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	Individual Trustee Or DirectorIndividualTrusteeOrDirector	OfficerOfficer
MELVIN KOHN
BOARD MEMBER	2.00	0.00	0	0	0
WOODIE KESSEL
BOARD MEMBER	3.00	0.00	0	0	0
RICHARD WESTON
BOARD MEMBER	0.50	0.00	0	0	0	X
TODD STONE
BOARD MEMBER	0.50	0.00	0	0	0	X
ONA LOUISA MCCONNELL
BOARD MEMBER	0.50	0.00	0	0	0	X
ELIZABETH FLORENCE
BOARD MEMBER	0.50	0.00	0	0	0	X
TIMOTHY M KAINE
BOARD MEMBER	0.01	0.00	0	0	0	X
JOHN FITZPATRICK
Treasurer	1.00	0.00	0	0	0	X	X
JOHN BREKKA
VICE-CHAIRMAN	5.00	0.00	0	0	0	X	X
JEREMY KELLY
Chairman	5.00	0.00	0	0	0	X	X
MOLLY WHITE
Executive Direc	40.00	0.00	140625	0	0		X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	140625	TotalReportableCompFromOrg
Number Individuals GT100 K	1	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	false	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources
Number Of Contractors GT100 K	0	NumberOfContractorsGT100K
All Other Contributions	726874	AllOtherContributions
Total Contributions	726874	TotalContributions

Program Service Revenue ProgramServiceRevenue

Field	Value	IRS element (for citing)
Description	Conference Revenue	Description
Business Code	624100	BusinessCode
Total Revenue Column	10308	TotalRevenueColumn
Related Or Exempt Function Income	10308	RelatedOrExemptFunctionIncome

Field	Value	IRS element (for citing)
Total Program Service Revenue	10308	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	319	TotalRevenueColumn
Exclusion	$319	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Field	Value	IRS element (for citing)
Total Other Revenue	0	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	737501	TotalRevenueColumn
Related Or Exempt Function Income	10308	RelatedOrExemptFunctionIncome
Exclusion	$319	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	701500	Total
Program Services	701500	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	0	Total

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	0	Total

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	140625	Total
Program Services	93910	ProgramServices
Management And General	26103	ManagementAndGeneral
Fundraising	20612	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	119234	Total
Program Services	79625	ProgramServices
Management And General	22133	ManagementAndGeneral
Fundraising	17476	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	0	Total

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	22822	Total
Program Services	15241	ProgramServices
Management And General	4236	ManagementAndGeneral
Fundraising	3345	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	18412	Total
Program Services	12850	ProgramServices
Management And General	2742	ManagementAndGeneral
Fundraising	2820	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	55201	Total
Program Services	32787	ProgramServices
Management And General	12081	ManagementAndGeneral
Fundraising	10333	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	10700	Total
Program Services	6355	ProgramServices
Management And General	2342	ManagementAndGeneral
Fundraising	2003	Fundraising

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	61869	Total
Program Services	36747	ProgramServices
Management And General	13540	ManagementAndGeneral
Fundraising	11582	Fundraising

Advertising Advertising

Field	Value	IRS element (for citing)
Total	2174	Total
Program Services	1517	ProgramServices
Management And General	324	ManagementAndGeneral
Fundraising	333	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	0	Total

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	3061	Total
Program Services	2136	ProgramServices
Management And General	456	ManagementAndGeneral
Fundraising	469	Fundraising

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	24469	Total
Program Services	17077	ProgramServices
Management And General	3644	ManagementAndGeneral
Fundraising	3748	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	0	Total

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	1262	Total
Program Services	881	ProgramServices
Management And General	188	ManagementAndGeneral
Fundraising	193	Fundraising

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	0	Total

Insurance Insurance

Field	Value	IRS element (for citing)
Total	2215	Total
Program Services	1546	ProgramServices
Management And General	330	ManagementAndGeneral
Fundraising	339	Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
FURNITURE & EQUIPMENT	5030	3511	749	770
EMPLOYMENT AND HUMAN RESOURCES	6045	4219	900	926
AUDIO/VISUAL	18894	18377	517
ADMINISTRATION	117503	91583	18378	7542

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	1349	Total
Program Services	941	ProgramServices
Management And General	201	ManagementAndGeneral
Fundraising	207	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	1312365	Total
Program Services	1120803	ProgramServices
Management And General	108864	ManagementAndGeneral
Fundraising	82698	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
EOY	38927	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	1750317	BOY
EOY	1428109	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	139922	BOY
EOY	230000	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
EOY	0	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
EOY	2100	EOY

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
EOY	0	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	1890239	BOY
EOY	1699136	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	53769	BOY
EOY	37530	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	100000	BOY
EOY	500000	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	153769	BOY
EOY	537530	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	711233	BOY
EOY	738466	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	1025237	BOY
EOY	423140	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	1736470	BOY
EOY	1161606	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	1890239	BOY
EOY	1699136	EOY

Field	Value	IRS element (for citing)
Reconcilation Revenue Expenses	-574864	ReconcilationRevenueExpenses
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited

FS Audited Basis FSAuditedBasis

Field	Value	IRS element (for citing)
Financial Statement Separate	X	FinancialStatementSeparate

Field	Value	IRS element (for citing)
Audit Committee	true	AuditCommittee
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org509a2	X	PubliclySupportedOrg509a2

Gifts Grants Contrib Received509 GiftsGrantsContribReceived509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	907395	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	331402	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	481910	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	1602055	CurrentTaxYearMinus1Year
Current Tax Year	726874	CurrentTaxYear
Total	4049636	Total

Gross Receipts From Admissions GrossReceiptsFromAdmissions

Field	Value	IRS element (for citing)
Current Tax Year	10308	CurrentTaxYear
Total	10308	Total

Gross Receipts From Non UBI GrossReceiptsFromNonUBI

Field	Value	IRS element (for citing)
Total	0	Total

Tax Rev Levied For Org Benefit509 TaxRevLeviedForOrgBenefit509

Field	Value	IRS element (for citing)
Total	0	Total

Value Of Svcs Fclts Furnishd By Govt ValueOfSvcsFcltsFurnishdByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total509 Total509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	907395	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	331402	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	481910	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	1602055	CurrentTaxYearMinus1Year
Current Tax Year	737182	CurrentTaxYear
Total	4059944	Total

Amts Recd From Disqual Persons AmtsRecdFromDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Amts From Subst Contributors AmtsFromSubstContributors

Field	Value	IRS element (for citing)
Total	0	Total

Field	Value	IRS element (for citing)
Public Support Total509	4059944	PublicSupportTotal509

Gross Investment Income509 GrossInvestmentIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	14738	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	2010	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	119	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	307	CurrentTaxYearMinus1Year
Current Tax Year	319	CurrentTaxYear
Total	17493	Total

Post1975 UBTI Post1975UBTI

Field	Value	IRS element (for citing)
Total	0	Total

Investment Income And UBTI InvestmentIncomeAndUBTI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	14738	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	2010	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	119	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	307	CurrentTaxYearMinus1Year
Current Tax Year	319	CurrentTaxYear
Total	17493	Total

Net Income From Other UBI NetIncomeFromOtherUBI

Field	Value	IRS element (for citing)
Total	0	Total

Other Income509 OtherIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	43	CurrentTaxYearMinus4Years
Total	43	Total

Total Support Total TotalSupportTotal

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	922176	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	333412	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	482029	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	1602362	CurrentTaxYearMinus1Year
Current Tax Year	737501	CurrentTaxYear
Total	4077480	Total

Field	Value	IRS element (for citing)
Public Support Percentage509	0.99570	PublicSupportPercentage509
Prior Year Support Percentage	0.99440	PriorYearSupportPercentage
Investment Income Percentage	0.00430	InvestmentIncomePercentage
Prior Yr Invest Income Percentage	0.00560	PriorYrInvestIncomePercentage
Thirty Three Percnt Tests CY509	X	ThirtyThreePercntTestsCY509

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Tot Revenue Etc Audited Fincl Stmt	737501	TotRevenueEtcAuditedFinclStmt
Revenue Subtotal	737501	RevenueSubtotal
Total Revenue Per Form990	737501	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	1312365	TotExpensesEtcAuditedFinclStmt
Expenses Subtotal	1312365	ExpensesSubtotal
Total Expenses Per Form990	1312365	TotalExpensesPerForm990

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (4 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	Amount Of Cash GrantAmountOfCashGrant	Amount Of Non Cash AssistanceAmountOfNonCashAssistance	Purpose Of GrantPurposeOfGrant
UNIVERSITY OF ROCHESTER
518 HYLAN BLDGPO BOX 270140	ROCHESTER	NY	14627	160743209	400000	0	RESEARCH - DR. JOHNSON & CRN
UNIVERSITY OF OREGON
PO BOX 3237	EUGENE	OR	97403	481278531	100000	0	RESEARCH - DR. BODNER
MASSACHUSETTS INST OF TECH
77 MASSACHUSETTS AVE	CAMBRIDGE	MA	02139	042103594	100000	0	RESEARCH - DR. WANG
BAYLOR COLLEGE OF MEDICINE
PO BOX 201361	HOUSTON	TX	77216	741613878	100000	0	RESEARCH - DR. GAO

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	4	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	0	TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used	Identifier
Explanation	WHEN A GRANT IS RECEIVED FUNDS ARE ALLOCATED TO APPROPRIATE REVENUE AND PROGRAM ACCOUNTS WITHIN THE ACCOUNTING SOFTWARE. MDF TRACKS ALL GRANT MONEY AND HOW IT IS SPENT. ANY HIGH LEVEL GRANT REQUIREMENTS ARE DOCUMENTED AND ANY REPORTING REQUIREMENTS ARE FOLLOWED UP ON ACCORDINGLY.	Explanation

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (4 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Form 990, Part VI, Line 19	Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	AVAILABLE UPON REQUEST.
Form 990, Part VI, Line 15a	Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management	AN INDEPENDENT HUMAN RESOURCE ORGANIZATION IS USED ON A CONSULTING BASIS TO DETERMINE THE APPROPRIATENESS OF SALARIES AND OTHER COMPENSATION.FOLLOWING THAT REVIEW, SALARIES ARE AGAIN REVIEWED AND APPROVED BY BOTH THE EXECUTIVE COMMITTEE AND THE FULL BOARD.
Form 990, Part VI, Line 12c	Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts	THE EXECUTIVE COMMITTEE MONITORS AND ENFORCES COMPLIANCE WITH THE POLICY. THE EXECUTIVE COMMITTEE HAS A FORUM TO RAISE AND ADDRESS ANY POTENTIAL CONFLICTS OF INTEREST AND/OR ANSWER ANY QUESTIONS. MDF MAKES SURE ALL DECISIONS/ACTIONS ARE CLEAR OF CONFLICTS DURING THE WEEKLY CALLS.
Form 990, Part VI, Line 11b	Form 990, Part VI, Line 11b: Form 990 Review Process	THE BOARD IS PROVIDED A COPY OF THE TAX RETURN FOR REVIEW PRIOR TO BEING FINALIZED.