2013-08-27T15:26:35-07:00 2012-12-31 PROPP CHRISTENSEN CANIGLIA LLP 9261 Sierra College Boulevard Roseville CA 956615919 990 2012-01-01 205014628 MYOTONIC DYSTROPHY FOUNDATION INC MYOT 4158007745 1003B OREILLY AVENUE SAN FRANCISCO CA 94129 MOLLY WHITE 2013-08-27 true K JEFFREY DE LYSER CPA P00022269 9167512900 2012 2016-02-24 21:20:13Z X 737501 false false X WWW.MYOTONIC.ORG X 2006 CA To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. 10 10 5 15 0 1602055 726874 10308 307 319 0 1602362 737501 208273 701500 0 153183 301093 0 82698 374704 309772 736160 1312365 866202 -574864 1890239 1699136 153769 537530 1736470 1161606 To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. false false 736536 701500 Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal of finding a treatment and eventually a cure for this chronic, degenerative disease. 277378 Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals. 106889 Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support. 1120803 true true false false false false false false false false false false false false false false true false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false true 19 0 false 5 false false false false false false false false false 0 false false false false false false false false false false X 10 10 false false false false false false false true true false false true true true true true true true true false CA X MOLLY WHITE 4158007745 1003B OREILLY AVENUE SAN FRANCISCO CA 94129 MELVIN KOHN 2.00 0.00 0 0 0 WOODIE KESSEL 3.00 0.00 0 0 0 RICHARD WESTON 0.50 0.00 X 0 0 0 TODD STONE 0.50 0.00 X 0 0 0 ONA LOUISA MCCONNELL 0.50 0.00 X 0 0 0 ELIZABETH FLORENCE 0.50 0.00 X 0 0 0 TIMOTHY M KAINE 0.01 0.00 X 0 0 0 JOHN FITZPATRICK 1.00 0.00 X X 0 0 0 JOHN BREKKA 5.00 0.00 X X 0 0 0 JEREMY KELLY 5.00 0.00 X X 0 0 0 MOLLY WHITE 40.00 0.00 X 140625 0 0 140625 1 false false false 0 726874 726874 Conference Revenue 624100 10308 10308 10308 319 319 0 0 0 0 0 0 0 0 737501 10308 319 701500 701500 0 0 0 140625 93910 26103 20612 0 119234 79625 22133 17476 0 22822 15241 4236 3345 18412 12850 2742 2820 0 55201 32787 12081 10333 10700 6355 2342 2003 0 0 0 61869 36747 13540 11582 2174 1517 324 333 0 3061 2136 456 469 0 24469 17077 3644 3748 0 0 1262 881 188 193 0 0 0 2215 1546 330 339 FURNITURE & EQUIPMENT 5030 3511 749 770 EMPLOYMENT AND HUMAN RESOURCES 6045 4219 900 926 AUDIO/VISUAL 18894 18377 517 ADMINISTRATION 117503 91583 18378 7542 1349 941 201 207 1312365 1120803 108864 82698 38927 1750317 1428109 139922 230000 0 0 0 0 0 2100 0 0 0 0 0 0 1890239 1699136 53769 37530 100000 500000 153769 537530 X 711233 738466 1025237 423140 1736470 1161606 1890239 1699136 -574864 X false true X true false X 907395 331402 481910 1602055 726874 4049636 10308 10308 0 0 0 907395 331402 481910 1602055 737182 4059944 0 0 4059944 14738 2010 119 307 319 17493 0 14738 2010 119 307 319 17493 0 43 43 922176 333412 482029 1602362 737501 4077480 0.99570 0.99440 0.00430 0.00560 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 737501 737501 737501 1312365 1312365 1312365 true UNIVERSITY OF ROCHESTER 518 HYLAN BLDGPO BOX 270140 ROCHESTER NY 14627 160743209 400000 0 RESEARCH - DR. JOHNSON & CRN UNIVERSITY OF OREGON PO BOX 3237 EUGENE OR 97403 481278531 100000 0 RESEARCH - DR. BODNER MASSACHUSETTS INST OF TECH 77 MASSACHUSETTS AVE CAMBRIDGE MA 02139 042103594 100000 0 RESEARCH - DR. WANG BAYLOR COLLEGE OF MEDICINE PO BOX 201361 HOUSTON TX 77216 741613878 100000 0 RESEARCH - DR. GAO 4 0 Grantmaker's Description of How Grants are Used WHEN A GRANT IS RECEIVED FUNDS ARE ALLOCATED TO APPROPRIATE REVENUE AND PROGRAM ACCOUNTS WITHIN THE ACCOUNTING SOFTWARE. MDF TRACKS ALL GRANT MONEY AND HOW IT IS SPENT. ANY HIGH LEVEL GRANT REQUIREMENTS ARE DOCUMENTED AND ANY REPORTING REQUIREMENTS ARE FOLLOWED UP ON ACCORDINGLY. Form 990, Part VI, Line 19 Form 990, Part VI, Line 19: Other Organization Documents Publicly Available AVAILABLE UPON REQUEST. 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