PULMONARY FIBROSIS FOUNDATION: Form 990, tax year 2014

View the entire original 990 at ProPublica ↗

Organization
PULMONARY FIBROSIS FOUNDATION (EIN 84-1558631)
Tax period
2014-01-01 to 2014-12-31
Filed
2015-09-28
IRS object ID
201502719349300515
Schema version
2014v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2015-09-28T09:38:39-05:00ReturnTs
Tax Period End2014-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN135381590PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BDO USA LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11665 ELK BOULEVARDAddressLine1Txt
CityDES PLAINESCityNm
State AbbreviationILStateAbbreviationCd
ZIP600164776ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2014-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN841558631EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1PULMONARY FIBROSIS FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlPULMBusinessNameControlTxt
Phone3125879272PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1230 EAST OHIO STREET NO 304AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP606113201ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonSCOTT STASZAKPersonNm
Person TitleCFOPersonTitleTxt
Phone3125879272PhoneNum
Signature2015-09-15SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonDIRK AHLBECKPreparerPersonNm
PTINP00237637PTIN
Phone8478244000PhoneNum
Preparation2015-09-15PreparationDt
FieldValueIRS element (for citing)
Tax2014TaxYr
Build TS2016-03-07 17:11:31ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerDANIEL ROSE MDPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1230 EAST OHIO STREET NO 304AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP606113201ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$5,400,907GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.PULMONARYFIBROSIS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2000FormationYr
Legal Domicile StateCOLegalDomicileStateCd
Activity Or MissionIMPROVE QUALITY OF LIFE OF THOSE AFFECTED BY PF. FIND NEW TREATMENTS AND A CURE. SEE PART III.ActivityOrMissionDesc
Voting Members Governing Body12VotingMembersGoverningBodyCnt
Voting Members Independent11VotingMembersIndependentCnt
Total Employee32TotalEmployeeCnt
Total Volunteers330TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,493,808PYContributionsGrantsAmt
CY Contributions Grants$5,343,299CYContributionsGrantsAmt
PY Program Service Revenue$118,860PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$2,261PYInvestmentIncomeAmt
CY Investment Income$11,028CYInvestmentIncomeAmt
PY Other Revenue-$163,127PYOtherRevenueAmt
CY Other Revenue$19,110CYOtherRevenueAmt
PY Total Revenue$3,451,802PYTotalRevenueAmt
CY Total Revenue$5,373,437CYTotalRevenueAmt
PY Grants And Similar Paid$502,540PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$468,608CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,291,410PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,737,423CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$600,564CYTotalFundraisingExpenseAmt
PY Other Expenses$1,717,821PYOtherExpensesAmt
CY Other Expenses$2,064,246CYOtherExpensesAmt
PY Total Expenses$3,511,771PYTotalExpensesAmt
CY Total Expenses$4,270,277CYTotalExpensesAmt
PY Revenues Less Expenses-$59,969PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,103,160CYRevenuesLessExpensesAmt
Total Assets BOY$3,962,848TotalAssetsBOYAmt
Total Assets EOY$5,200,307TotalAssetsEOYAmt
Total Liabilities BOY$345,830TotalLiabilitiesBOYAmt
Total Liabilities EOY$601,747TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$3,617,018NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,598,560NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO SERVE AS THE TRUSTED RESOURCE FOR THE PULMONARY FIBROSIS (PF) COMMUNITY BY RAISING AWARENESS, PROVIDING DISEASE EDUCATION, AND FUNDING RESEARCH.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$698,051ExpenseAmt
DescPFF PATIENT REGISTRY: THE PFF PATIENT REGISTRY IS A COLLABORATIVE EFFORT THAT WILL BRING TOGETHER MULTIPLE STAKEHOLDERS INCLUDING PATIENTS, HEALTH CARE PROVIDERS, AND RESEARCHERS. THE REGISTRY IS AN ELECTRONIC DATABASE OF PATIENT INFORMATION THAT WILL BE DE-IDENTIFIED (MADE ANONYMOUS) AND INDEPENDENTLY MANAGED BY A DATA-COORDINATING CENTER. THE GOALS OF THE PFF PATIENT REGISTRY ARE TO PROVIDE A ROBUST DATASET OF CLINICAL AND QUALITY OF LIFE (QOL) DATA ON THE FULL SPECTRUM OF PULMONARY FIBROSIS PATIENTS, HELP SHAPE AND IMPROVE CLINICAL CARE PATTERNS TO ADVANCE PATIENT OUTCOMES, SERVE AS AN INVALUABLE TOOL IN SUPPORT OF RESEARCH TO IMPROVE QOL AND OUTCOMES AND TO AID AWARENESS OF AND ENROLLMENT INTO CLINICAL TRIALS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$570,962ExpenseAmt
Grant$15,000GrantAmt
DescPFF CARE CENTER NETWORK:THE GOAL OF THE PFF CARE CARE CENTER NETWORK IS TO ELEVATE THE STANDARD OF CARE FOR PATIENTS WITH PULMONARY FIBROSIS. THE PFF CARE CENTER NETWORK CONNECTS LEADING MEDICAL CENTERS THROUGHOUT THE US THAT HAVE EXPERTISE IN TREATING FIBROTIC LUNG DISEASES. THE INSTITUTIONS THAT COMPRISE THE NETWORK USE A MULTIDISCIPLINARY APPROACH TO DELIVER COMPREHENSIVE PATIENT CARE. THESE SPECIALIZED CARE TEAMS INCLUDE INDIVIDUALS WITH EXPERTISE IN PULMONARY MEDICINE, RHEUMATOLOGY, RADIOLOGY, PATHOLOGY, GASTROENTEROLOGY, AND THORACIC SURGERY. THIS MULTIPRONGED, COLLABORATIVE APPROACH IS CRITICAL TO MANAGING A COMPLEX DISEASE LIKE PULMONARY FIBROSIS AND ENSURING INDIVIDUALS RECEIVE AN ACCURATE DIAGNOSIS, OBTAIN QUALITY CLINICAL CARE, AND ACQUIRE IMPORTANT SUPPORT SERVICES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$434,186ExpenseAmt
Grant$419,108GrantAmt
DescRESEARCH:THE PULMONARY FIBROSIS FOUNDATION (PFF) PLACES ENORMOUS IMPORTANCE ON CREATING AN ENVIRONMENT THAT WILL ASSIST IN THE DEVELOPMENT OF EFFECTIVE TREATMENTS FOR PULMONARY FIBROSIS (PF). WE ARE DEVELOPING THIS ENVIRONMENT BY DIRECTLY FUNDING RESEARCH, PROMOTING ADVOCACY EFFORTS, ENCOURAGING COLLABORATIVE RELATIONS BETWEEN INDUSTRY AND ACADEMIC RESEARCHERS AND DEVELOPING SOLUTIONS TO BRIDGE EXISTING GAPS IN PF RESEARCH.THE PFF RESEARCH FUND SUPPORTS PROJECTS THAT OFFER A HIGH LIKELIHOOD OF IMPROVING THE UNDERSTANDING OF PF IN THE FOLLOWING AREAS: BASIC SCIENCE, TRANSLATIONAL SCIENCE, CLINICAL MEDICINE/RESEARCH AND SOCIAL SCIENCE/QUALITY OF LIFE. THE PFF RESEARCH ADVISORY COMMITTEE ADMINISTERS THE PEER-REVIEWED PROCESS WHICH FUNDS MULTIPLE GRANTS INCLUDING FOUR $50,000 GRANTS PER GRANT CYCLE.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$1,493,887ExpenseAmt
Grant$34,500GrantAmt
Desc1 OUTREACH AND AWARENESSPFF AMBASSADOR PROGRAM-THE PFF AMBASSADOR PROGRAM EMPOWERS PATIENTS, CAREGIVERS, AND HEALTH CARE PROFESSIONALS AS SPOKESPERSONS FOR THE PF COMMUNITY ON BEHALF OF THE PFF. PFF AMBASSADORS PROMOTE DISEASE AWARENESS, PROVIDE UP-TO-DATE INFORMATION, AND OFFER HOPE AND INSPIRATION TO THOSE AFFECTED BY PULMONARY FIBROSIS. PFF AMBASSADORS ARE AVAILABLE TO SPEAK AT PFF CARE CENTER NETWORK EVENTS, SUPPORT GROUP MEETINGS, FUNDRAISING EVENTS, AND OTHER DISEASE AWARENESS AND EDUCATION PROGRAMS.PFF DISEASE EDUCATION WEBINAR SERIES-THE PFF DISEASE EDUCATION WEBINAR SERIES ENGAGES THE PF COMMUNITY IN AN ONLINE WEBINAR DISCUSSION WHERE THEY LEARN FROM, CONNECT WITH, AND POSE QUESTIONS TO LEADING PULMONARY FIBROSIS SPECIALISTS EACH MONTH. TEN WEBINARS WERE PRESENTED IN 2014 AND ALL CAN BE VIEWED ON THE PFF WEBSITE AT WWW.PULMONARYFIBROSIS.ORG/WEBINARS.GLOBAL PULMONARY FIBROSIS AWARENESS MONTH-THE PF COMMUNITY UNITES DURING GLOBAL PULMONARY FIBROSIS AWARENESS MONTH AS A COLLECTIVE VOICE TO ENHANCE DISEASE AWARENESS AND PROVIDE OUTREACH TO THOSE IN NEED. IN 2014 THE ENTIRE PF COMMUNITY JOINED THE PFF AND PARTICIPATED IN THE #BLUEUP4PF CAMPAIGN, ATTENDED EDUCATIONAL EVENTS, HOSTED TEAM PFF FUNDRAISING EVENTS, PARTICIPATED IN WEBINARS AND SPREAD DISEASE AWARENESS THROUGH SOCIAL MEDIA. IN CHICAGO, THE PFF KICKED OFF THE MONTH WITH MAYOR RAHM EMANUEL PROCLAIMING SEPTEMBER GLOBAL PULMONARY FIBROSIS AWARENESS MONTH.2 PFF PATIENT COMMUNICATION CENTER (PCC)LAUNCHED IN 2014, THE PCC SERVES AS THE CENTRAL INFORMATION HUB FOR PULMONARY FIBROSIS PATIENTS, CAREGIVERS, AND HEALTH CARE PROFESSIONALS. THE PCC STAFF ANSWERS QUESTIONS AND PROVIDES INFORMATION THAT IS TAILORED TO INDIVIDUALS' NEEDS. RESOURCES AVAILABLE TO CALLERS INCLUDE: INFORMATION ABOUT PULMONARY FIBROSIS; HOW TO FIND MEDICAL CARE, ACCESS SUPPORT SERVICES, OBTAIN AVAILABLE TREATMENTS, AND ENROLL IN CLINICAL TRIALS; PFF PATIENT EDUCATION AND ADVOCACY MATERIALS; AND INFORMATION ON PFF PROGRAMS AND SERVICES.3 PATIENT AND PHYSICIAN EDUCATION: THE PULMONARY FIBROSIS FOUNDATION IS COMMITTED TO PROVIDING QUALITY DISEASE EDUCATION TO THE PULMONARY FIBROSIS COMMUNITY. THE PFF STRIVES TO PROVIDE PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH CARE PROVIDERS WITH THE RESOURCES NECESSARY TO MORE FULLY UNDERSTAND PF, AND TO PROVIDE PATIENTS WITH THE TOOLS NECESSARY TO LIVE WITH THE DISEASE AND IMPROVE THEIR QUALITY OF LIFE. THE FOUNDATION'S SUITE OF PRINTED EDUCATIONAL MATERIALS FOR PHYSICIANS, PATIENTS, AND CAREGIVERS INCLUDES: THE PFF PATIENT INFORMATION GUIDE, PFF PHYSICIAN NOTEPAD, PFF DISEASE AWARENESS BROCHURE, AND PFF DISEASE AWARENESS POSTER. THE PULMONARY FIBROSIS FOUNDATION'S EDUCATIONAL MATERIALS ARE DISTRIBUTED BY THE PFF PATIENT COMMUNICATION CENTER AND THE SUPPORT GROUP LEADER NETWORK (SEE SUPPORT GROUP SECTION).THE FOUNDATION ALSO FACILITATES PHYSICIAN EDUCATION BY ATTENDING AND PROVIDING FUNDING SUPPORT FOR EDUCATIONAL CONFERENCES.4 PFF SUMMIT:PFF SUMMIT 2015: FROM BENCH TO BEDSIDE IS THE PFF'S BIENNIAL INTERNATIONAL HEALTH CARE CONFERENCE ON PULMONARY FIBROSIS (PF). THE GOAL OF THE SUMMIT IS TO FOSTER A COLLABORATIVE ENVIRONMENT TO IMPROVE EDUCATION AND AWARENESS OF PF AND TO IDENTIFY NEW APPROACHES TO TREAT, AND ULTIMATELY CURE, THIS DEVASTATING DISEASE. THE SUMMIT FEATURES AN INNOVATIVE CONTINUING MEDICAL EDUCATION (CME) PROGRAM FOR HEALTH CARE PROFESSIONALS AND SESSIONS FOR PF PATIENTS AND CAREGIVERS THAT ADDRESS THEIR GROWING EDUCATIONAL NEEDS. {NOTE: THE MAJORITY OF EXPENSES FOR THE PFF SUMMIT 2015 WILL BE INCLUDED ON THE 2015 990.5 SUPPORT GROUPS:SUPPORT GROUP LEADER NETWORK-THE PFF SUPPORT GROUP LEADER NETWORK PROVIDES A FORUM FOR PF SUPPORT GROUP LEADERS TO CONNECT, EXCHANGE IDEAS, AND SHARE BEST PRACTICES. THE LEANNE STORCH SUPPORT GROUP FUND FURTHER ENHANCES THE SUPPORT GROUP EXPERIENCE AND ASSISTS THE NEEDS OF THE NETWORK BY FUNDING EDUCATIONAL EVENTS, HELPING ESTABLISH NEW GROUPS, AND SUPPORTING RELATED ACTIVITIES. IN 2014 THE PFF AWARDED 18 LEANNE STORCH SUPPORT GROUP FUND GRANTS.ONLINE SUPPORT GROUP COMMUNITIES-ONLINE SUPPORT GROUPS ARE A GREAT WAY FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND FRIENDS TO VIRTUALLY CONNECT FOR SUPPORT AND INFORMATION. FOR THOSE WHO ARE UNABLE TO ATTEND AN IN-PERSON GROUP, OR SIMPLY WANT ADDITIONAL INTERACTIONS BETWEEN MEETINGS, THE PULMONARY FIBROSIS FOUNDATION OFFERS TWO ONLINE SUPPORT COMMUNITIES: INSPIRE AND RARECONNECT. VISIT HTTP://WWW.PULMONARYFIBROSIS.ORG/LIFE-WITH-PF/SUPPORT-GROUPS/ONLINE-SUPPORT-COMMUNITIES TO LEARN MORE.6 ADVOCACY:IN 2014 THE PFF LAUNCHED AN INDEPENDENT PF PATIENT AND CAREGIVER SURVEY TO COLLECT ESSENTIAL INSIGHTS ABOUT LIVING WITH THE DISEASE AND PRESENTED THE INITIAL RESULTS TO THE US FOOD AND DRUG ADMINISTRATION AT ITS PUBLIC MEETING ON IDIOPATHIC PULMONARY FIBROSIS (IPF) PATIENT-FOCUSED DRUG DEVELOPMENT. THE PURPOSE OF THE MEETING WAS TO OBTAIN A BETTER UNDERSTANDING OF HOW IPF PATIENTS AND CAREGIVERS COPE WITH SYMPTOMS, THE IMPACT OF THE DISEASE ON THEIR DAILY LIVES, AND TO LEARN MORE ABOUT THEIR VIEWS ON CURRENT TREATMENT APPROACHES.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$1,493,887TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$34,500TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$3,197,086TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document37IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee32EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members12GoverningBodyVotingMembersCnt
Independent Voting Member11IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SCOTT STASZAKBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone3125879272PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1230 EAST OHIO STREET SUITE 304AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP606113201ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
DANIEL ROSE MD
CEO30.00Yes (X)Yes (X)$0$0$10,522
JOE BORUS
SECRETARY1.00Yes (X)Yes (X)$0$0$0
TOM HALES
DIRECTOR1.00Yes (X)$0$0$0
SUSAN L RATTNER
DIRECTOR1.00Yes (X)$0$0$0
JENNIFER GALVIN MD
DIRECTOR1.00Yes (X)$0$0$0
CARL SALZANO
VICE-CHAIR1.00Yes (X)Yes (X)$0$0$0
MATTHEW WILLIAMS
DIRECTOR1.00Yes (X)$0$0$0
RITU BARAL
FORMER DIRECTOR1.00Yes (X)$0$0$0
MIKE HENDERSON
CHAIRMAN1.00Yes (X)Yes (X)$0$0$0
STEPHEN WALD PH D
DIRECTOR1.00Yes (X)$0$0$0
KEVIN BROWN
DIRECTOR1.00Yes (X)$0$0$0
DAVE STEFFY
TREASURER1.00Yes (X)Yes (X)$0$0$0
PATTI TUOMEY EDD
C.O.O.40.00Yes (X)$195,091$0$10,180
SCOTT STASZAK
C.F.O.40.00Yes (X)$145,492$0$4,200
ALMA KERVITSKY RCP CCRC
V.P. PATIENT RELATIONS40.00$101,519$0$6,377Yes (X)
GAIL FAIRHALL
SENIOR V.P.40.00$134,795$0$8,199Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$576,897TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$39,478TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K4IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
DUKE UNIVERSITY
2400 PRATT STREETDURHAMNC27705DATA COLLECTION FOR REGISTRY$180,305
TWIST MKTG
PO BOX 2966SAN ANTONIOTX78299MARKETING SUPPORT$120,674
GRENZEBACH GLIER & ASSOCIATES INC
PO BOX 88277 DEPT ACHICAGOIL60680SCREENING AND ANALYSIS$112,990
SNOW COMPANIES INC
219 BULIFANTS BLVDWILLIAMSBURGVA23188STORY WRITING AND MANAGEMENT OF PROG.$112,205
KLEARSKY SOLUTIONS LLC
1608 ORTH DRIVEWHEATONIL60189WEBSITE REDESIGN$110,050
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K5CntrctRcvdGreaterThan100KCnt
Fundraising$86,988FundraisingAmt
All Other Contributions$5,256,311AllOtherContributionsAmt
Noncash Contributions$17,113NoncashContributionsAmt
Total Contributions$5,343,299TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$11,028TotalRevenueColumnAmt
Exclusion$11,028ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$17,018FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$86,988ContriRptFundraisingEventAmt
Fundraising Direct Expenses$23,676FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$6,658TotalRevenueColumnAmt
Exclusion-$6,658ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$23,702GrossSalesOfInventoryAmt
Cost Of Goods Sold$3,794CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$19,908TotalRevenueColumnAmt
Exclusion$19,908ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescMISCELLANEOUSDesc
Business900099BusinessCd
Total Revenue Column$5,860TotalRevenueColumnAmt
Exclusion$5,860ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$5,860OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,373,437TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$30,138ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$449,108TotalAmt
Program Services$449,108ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$4,500TotalAmt
Program Services$4,500ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$15,000TotalAmt
Program Services$15,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$365,485TotalAmt
Program Services$223,127ProgramServicesAmt
Management And General$60,234ManagementAndGeneralAmt
Fundraising$82,124FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,164,779TotalAmt
Program Services$852,476ProgramServicesAmt
Management And General$114,089ManagementAndGeneralAmt
Fundraising$198,214FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$86,104TotalAmt
Program Services$75,775ProgramServicesAmt
Fundraising$10,329FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$121,055TotalAmt
Program Services$88,095ProgramServicesAmt
Management And General$12,360ManagementAndGeneralAmt
Fundraising$20,600FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$53,155TotalAmt
Management And General$53,155ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$22,000TotalAmt
Management And General$22,000ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,087,407TotalAmt
Program Services$854,238ProgramServicesAmt
Management And General$67,986ManagementAndGeneralAmt
Fundraising$165,183FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$55,744TotalAmt
Program Services$39,383ProgramServicesAmt
Management And General$10,874ManagementAndGeneralAmt
Fundraising$5,487FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$265,834TotalAmt
Program Services$194,475ProgramServicesAmt
Management And General$33,570ManagementAndGeneralAmt
Fundraising$37,789FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$22,272TotalAmt
Program Services$20,786ProgramServicesAmt
Management And General$557ManagementAndGeneralAmt
Fundraising$929FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$97,949TotalAmt
Program Services$69,153ProgramServicesAmt
Management And General$11,314ManagementAndGeneralAmt
Fundraising$17,482FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$226,575TotalAmt
Program Services$177,326ProgramServicesAmt
Management And General$30,373ManagementAndGeneralAmt
Fundraising$18,876FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$49,200TotalAmt
Program Services$21,211ProgramServicesAmt
Management And General$23,594ManagementAndGeneralAmt
Fundraising$4,395FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$2,400TotalAmt
Management And General$2,400ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$31,830TotalAmt
Program Services$10,255ProgramServicesAmt
Management And General$20,630ManagementAndGeneralAmt
Fundraising$945FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$11,823TotalAmt
Program Services$9,296ProgramServicesAmt
Management And General$177ManagementAndGeneralAmt
Fundraising$2,350FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
EVENT EXPENSES$99,559$73,929$1,401$24,229
MISCELLANEOUS$25,270$15,848$3,801$5,621
DUES AND SUBSCRIPTIONS$13,228$3,105$4,112$6,011

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$4,270,277TotalAmt
Program Services$3,197,086ProgramServicesAmt
Management And General$472,627ManagementAndGeneralAmt
Fundraising$600,564FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,018,807BOYAmt
EOY$222,897EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$279,417BOYAmt
EOY$1,616,664EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$199,511BOYAmt
EOY$756,055EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$34,888BOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$53,746BOYAmt
EOY$101,091EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$85,889LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$48,582LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$20,145BOYAmt
EOY$37,307EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$2,339,894BOYAmt
EOY$2,394,470EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$16,440BOYAmt
EOY$71,823EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$3,962,848BOYAmt
EOY$5,200,307EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$322,794BOYAmt
EOY$236,358EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
EOY$322,500EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
EOY$6,601EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
EOY$21,788EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$23,036BOYAmt
EOY$14,500EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$345,830BOYAmt
EOY$601,747EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,056,520BOYAmt
EOY$3,019,815EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$560,498BOYAmt
EOY$1,578,745EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,617,018BOYAmt
EOY$4,598,560EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,962,848BOYAmt
EOY$5,200,307EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,103,160ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$10,882NetUnrlzdGainsLossesInvstAmt
Prior Period Adjustments-$132,500PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,592,081CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,971,108CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,571,108CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,493,808CurrentTaxYearMinus1YearAmt
Current Tax Year$5,343,299CurrentTaxYearAmt
Total$14,971,404TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,592,081CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,971,108CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,571,108CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,493,808CurrentTaxYearMinus1YearAmt
Current Tax Year$5,343,299CurrentTaxYearAmt
Total$14,971,404TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$3,965,296SubstantialContributorsTotAmt
Public Support Total170$11,006,108PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$62,902CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$57,768CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$46,324CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$12,753CurrentTaxYearMinus1YearAmt
Current Tax Year$11,028CurrentTaxYearAmt
Total$190,775TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$15,952CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$76,945CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$60,491CurrentTaxYearMinus1YearAmt
Current Tax Year$46,580CurrentTaxYearAmt
Total$199,968TotalAmt
FieldValueIRS element (for citing)
Total Support$15,362,147TotalSupportAmt
Public Support CY1700.71640PublicSupportCY170Pct
Public Support PY1700.82880PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus1$283,077CurrentYearMinus1Amt
Current Year$0CurrentYearAmt
Total$283,077TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$424,616LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus1$4,555CurrentYearMinus1Amt
Current Year$0CurrentYearAmt
Total$4,555TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus1$70,769CurrentYearMinus1Amt
Current Year$0CurrentYearAmt
Total$70,769TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$106,154GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$62,292OtherCostOrOtherBasisAmt
Depreciation$26,727DepreciationAmt
Book Value$35,565BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$23,597OtherCostOrOtherBasisAmt
Depreciation$21,855DepreciationAmt
Book Value$1,742BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$37,307TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescDEFERRED RENTDesc
Amt$14,500Amt
FieldValueIRS element (for citing)
Total Liability$14,500TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$5,426,827TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$10,882NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$15,038DonatedServicesAndUseFcltsAmt
Revenue Not Reported$25,920RevenueNotReportedAmt
Revenue Subtotal$5,400,907RevenueSubtotalAmt
Other Revenues Not Included-$27,470OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt-$27,470RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$5,373,437TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$4,312,785TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$15,038DonatedServicesUseFcltsAmt
Other Expenses Included$27,470OtherExpensesIncludedAmt
Expenses Not Reported$42,508ExpensesNotReportedAmt
Expenses Subtotal$4,270,277ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$4,270,277TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:THE ORGANIZATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, EXCEPT FOR NET INCOME DERIVED FROM UNRELATED BUSINESS ACTIVITIES. IN ADDITION, THE ORGANIZATION QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A) AND HAS BEEN CLASSIFIED AS AN ORGANIZATION OTHER THAN A PRIVATE FOUNDATION UNDER IRC SECTION 509(A). THE ORGANIZATION'S INCOME TAX FILINGS ARE SUBJECT TO AUDIT BY VARIOUS TAXING AUTHORITIES. THE ORGANIZATION'S OPEN AUDIT PERIODS ARE 2011 THROUGH THE CURRENT YEAR. IN EVALUATING THE ORGANIZATION'S ACTIVITIES, MANAGEMENT BELIEVES ITS POSITION OF TAX-EXEMPT STATUS IS BASED ON CURRENT FACTS AND CIRCUMSTANCES AND THERE HAVE BEEN NO UNCERTAIN POSITIONS TAKEN RELATED TO RECORDING INCOME TAXES. IN THE OPINION OF MANAGEMENT THERE ARE NO ACTIVITIES UNRELATED TO THE PURPOSE OF THE ORGANIZATION AND THEREFORE NO TAX IS TO BE RECOGNIZED. IT IS THE POLICY OF THE ORGANIZATION TO INCLUDE IN MANAGEMENT AND GENERAL EXPENSES PENALTIES AND INTEREST ASSESSED BY INCOME TAXING AUTHORITIES. THERE ARE NO PENALTIES OR INTEREST FROM TAXING AUTHORITIES INCLUDED IN MANAGEMENT AND GENERAL EXPENSES FOR THE YEAR ENDED DECEMBER 31, 2013.
PART XI, LINE 4B - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSE -23,676. SALE OF GOODS EXPENSE -3,794.
PART XII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSE 23,676. SALE OF GOODS EXPENSE 3,794.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continutation Total Office0ContinutationTotalOfficeCnt
Continutation Total Employee0ContinutationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$0SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$0TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionEUROPERegionTxt
Purpose Of GrantSUPPORT FOR THE 18TH INTERNATIONAL COLLOQUIUM ON LUNG AND AIRWAY FIBROSIS.PurposeOfGrantTxt
Cash Grant$15,000CashGrantAmt
Manner Of Cash DisbursementCHECKMannerOfCashDisbursementTxt
FieldValueIRS element (for citing)
Total501c3 Org0Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationTHE GRANT TO ICLAF WAS TO SPONSOR THE 2014 BIENNIAL CONFERENCE. ICLAF IS A MEETING WHERE CLINICIANS AND BASIC SCIENTISTS, ESTABLISHED INVESTIGATORS AND STUDENTS, REPRESENTATIVES FROM ACADEMIA, PHARMACEUTICAL INDUSTRY AND PATIENT ADVOCATES GET TOGETHER AND EXCHANGE EMERGING DATA AND EVOLVING PERSPECTIVES ON FIBROTIC LUNG DISEASE. PFF MONITORED THIS GRANT BY SENDING TWO REPRESENTATIVES TO ATTEND THE CONFERENCE.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1BROADWAY BELTS - PFF!Event1Nm
Gross Receipts Event1$104,006GrossReceiptsEvent1Amt
Charitable Contri Event1$86,988CharitableContriEvent1Amt
Gross Revenue Event1$17,018GrossRevenueEvent1Amt
Food And Beverage Event1$17,989FoodAndBeverageEvent1Amt
Entertainment Event1$650EntertainmentEvent1Amt
Other Direct Expenses Event1$5,037OtherDirectExpensesEvent1Amt
Gross Receipts Total$104,006GrossReceiptsTotalAmt
Charitable Contributions Tot$86,988CharitableContributionsTotAmt
Gross Revenue Total Events$17,018GrossRevenueTotalEventsAmt
Food And Beverage Total Events$17,989FoodAndBeverageTotalEventsAmt
Entertainment Total Events$650EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$5,037OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$23,676DirectExpenseSummaryEventsAmt
Net Income Summary-$6,658NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (18 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2TxtAddress Line1ForeignAddress/AddressLine1TxtProvince Or StateForeignAddress/ProvinceOrStateNmCountryForeignAddress/CountryCd
AMERICAN THORACIC SOCIETY
61 BROADWAY 4TH FLOORNEW YORKNY10006061548706501(C)(3)$40,000SEE PART IV
NATIONAL JEWISH HEALTH
1400 JACKSONDENVERCO80206742044647501(C)(3)$50,000SEE PART IV
UNIVERSITY OF PITTSBURGH
3100 CATHEDRAL OF LEARNINGPITTSBURGHPA15260250965591501(C)(3)$12,500SEE PART IV
STANFORD UNIVERSITY
3145 PORTER DRIVEPALO ALTOCA94304941156365501(C)(3)$12,500SEE PART IV
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVELA JOLLACA920930953956006144501(C)(3)$12,500SEE PART IV
UNIVERSITY OF COLORADO DENVER
1800 GRANT STREET SUITE 600DENVERCO80203846000555501(C)(3)$12,500SEE PART IV
UNIVERSITY OF UTAH
201 SOUTH PRESIDENTS CIRCLE ROOMSALT LAKE CITYUT841120922876000525501(C)(3)$12,500SEE PART IV411
CHILDREN'S HOSPITAL BOSTON
300 LONGWOOD AVENUEBOSTONMA02115042774441501(C)(3)$12,500SEE PART IV
UNIVERSITY OF CHICAGO
5751 SOUTH WOODLAWN M/C 6092ROOMCHICAGOIL60637362177139501(C)(3)$50,000SEE PART IV410B
(no name)
SEE PART IV
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
OFFICE OF RESEARCH SERVICES AVPHILADELPHIAPA191046205231352685501(C)(3)$25,000SEE PART IVPROVOST RES P-221 FRANKLIN BLDG 345
UNIVERSITY OF CALIFORNIA-SAN FRANCISCO
505 PARNASSUS AVE RM M1097 BOX 0111SAN FRANCISCOCA94143966036493501(C)(3)$5,000SEE PART IV0111
UNIVERSITY OF MD - BALTIMORE
620 WEST LEXINGTON STREET 4TH FLOORBALTIMOREMD21201362177139501(C)(3)$20,000SEE PART IVFLOOR
UNIVERSITY OF CALIFORNIA-SAN FRANCISCO
505 PARNASSUS AVE RM M1097 BOX 0111SAN FRANCISCOCA94143966036493501(C)(3)$5,000SEE PART IV0111
UNIVERSITY OF ROCHESTER
300 EAST RIVER ROAD BOX 278996ROCHESTERNY14627160743209501(C)(3)$8,098SEE PART IV
UNIVERSITY OF TEXAS
2601 NORTH FLOYD ROADRICHARDSONTX75080751305566501(C)(3)$50,000SEE PART IV
MCMASTER UNIVERSITY
237213309501(C)(3)$50,000SEE PART IV50 CHARLTON AVENUE EASTONTARIOCA
PALO ALTO
3801 MIRANDA AVENUESPALO ALTOCA94304770207331501(C)(3)$50,000SEE PART IV
FieldValueIRS element (for citing)
Total501c3 Org19Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail (18 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 2:FOR LARGER GRANTS, THE ORGANIZATION REQUESTS SEMI-ANNUAL REPORTS DETAILING THE USE OF GRANT FUNDS FROM THE RECIPIENT ORGANIZATIONS.
PART II - LINE 1PURPOSE OF AMERICAN THORACIC SOCIETY GRANT TO SUPPORT MECHANISMS FACILITATING ENHANCED FIBRONECTIN ASSEMBLY BY MYROFIBROBLASTS.
PART II - LINE 1PURPOSE OF NATIONAL JEWISH HEALTH GRANT TO SUPPORT ROLE OF WNT AND FGF SIGNALING IN ALVEOLAR EPITHELIAL REGENERATION AFTER BLEOMYCIN INJURY.
PART II - LINE 1PURPOSE OF UNIVERSITY OF PITTSBURGH GRANT TO STUDY THE AGING OF STEM CELLS AND DISEASE SUSCEPTIBILITY.
PART II - LINE 1PURPOSE OF STANFORD UNIVERSITY GRANT ESTABLISHED INVESTIGATOR AWARD GIVEN TO ANALYZE THE NOVEL FUNCTIONS OF HUMAN TELOMERASE RNA IN IPF.
PART II - LINE 1PURPOSE OF UNIVERSITY OF CALIFORNIA, SAN DIEGO GRANT ESTABLISHED INVESTIGATOR AWARD GIVEN TO RESEARCH THAT EXTRACELLULAR VESICLES ALTER CELL PHENOTYPE IN PULMONARY FIBROSIS.
PART II - LINE 1PURPOSE OF UNIVERSITY OF COLORADO, DENVER GRANT YOUNG INVESTIGATOR AWARD TO RESEARCH THERAPEUTIC TARGETING OF PTPN-13 IN IDIOPATHIC PULMONARY FIBROSIS.
PART II - LINE 1PURPOSE OF UNIVERSITY OF UTAH GRANT YOUNG INVESTIGATOR AWARD TO RESEARCH THE DESIGN AND SYNTHESIS OF SELECTIVE BETA-CATENIN/T-CELL FACTOR INHIBITORS FOR THE TREATMENT OF PULMONARY FIBROSIS.
PART II - LINE 1PURPOSE OF CHILDREN'S HOSPITAL BOSTON GRANT USING ENDOGENOUS LUNG STEM CELLS TO DISCOVER NOVEL PULMONARY FIBROSIS DISEASE MECHANISMS.
PART II - LINE 1PURPOSE OF UNIVERSITY OF CHICAGO GRANT TO SUPPORT REGULATORY MOLECULAR PATHWAYS INVOLVED IN THE PERIPHEREAL BLOOD COMPARTMENT THAT ARE INVOLVED AND HOW THEY INTERACT WITH MIRNA EXPRESSION PATTERNS.
PART II - LINE 1PURPOSE OF TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA GRANT MODELING OF EPITHELIAL CELL DYSFUNCTION IN PULMONARY FIBROSIS USING SP-C BRICHOS MUTATIONS.
PART II - LINE 1PURPOSE OF UNIVERSITY OF CALIFORNIA-SAN FRANCISCO GRANT TO SUPPORT ESTABLISHMENT OF THE FACILITY AS A MEMBER OF THE PFF CARE CENTER NETWORK, PROVIDING HIGH QUALITY COMPREHENSIVE CARE TO PATIENTS.
PART II - LINE 1PURPOSE OF UNIVERSITY OF MARYLAND-BALTIMORE GRANT OPEN LABEL USE OF INHALED CYCLOSPORINE IN LUNG TRANSPLANT RECIPIENTS. THE PURPOSE OF THIS GRANT IS TO STUDY THE USE OF AEROSOLIZED ANTI-REJECTION THERAPY FOR LUNG TRANSPLANT PATIENTS.
PART II - LINE 1PURPOSE OF UNIVERSITY OF CALIFORNIA-SAN FRANCISCO GRANT SUPPORT FOR INTERSTITIAL LUNG DISEASE PATIENT EDUCATION CONFERENCE.
PART II - LINE 1PURPOSE OF UNIVERSITY OF ROCHESTER GRANT TRANSLATIONAL STUDIES OF NEW THERAPEUTIC TARGETS AND BIOMARKERS IN PULMONARY FIBROSIS.
PART II - LINE 1PURPOSE OF UNIVERSITY OF TEXAS GRANT TO SUPPORT THE EVALUATION OF HYPOXIA-INDUCIBLE FACTOR-1 (HIF-1) SIGNALING AS ANTI-FIBROSIS THERAPY.
PART II - LINE 1PURPOSE OF MCMASTER UNIVERSITY GRANT TO SUPPORT THE ROLE OF MAST CELLS IN PATHOPHYSIOLOGY OF PULMONARY FIBROSIS.
PART II - LINE 1PURPOSE OF PALO ALTO GRANT TO SUPPORT THE ROLE OF CHEMERIN AND ITS RECEPTORS IN TGF-BETA-INDUCED EXPERIMENTAL PULMONARY FIBROSIS.

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonPATTI TUOMEY EDDPersonNm
TitleC.O.O.TitleTxt
Base Compensation Filing Org$195,091BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$0BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$0OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$5,850DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$4,330NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$205,271TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$0CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2JOE BORUS, SECRETARY, IS THE BROTHER-IN-LAW OF DANIEL ROSE, CEO.
FORM 990, PART VI, SECTION B, LINE 11A COPY OF FORM 990 IS REVIEWED BY THE EXECUTIVE AND FINANCE COMMITTEES BEFORE FILING. THE FORM 990 IS AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING THE FORM.
FORM 990, PART VI, SECTION B, LINE 12CTHE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY WITHIN THE EMPLOYEE HANDBOOK AND ALL EMPLOYEES ARE REQUIRED TO ADHERE TO THE POLICY. EMPLOYEES SIGN A DISCLOSURE FORM EACH YEAR. BOARD MEMBERS ARE SENT A FORM TO FILL OUT STATING WHETHER THEY HAVE ANY CONFLICTS OF INTEREST. IF SUCH CONFLICTS EXISTS, THEN THEY FILL OUT AN ADDITIONAL FORM OUTLINING THOSE CONFLICTS. THE EXECUTIVE COMMITTEE REVIEWS ANY CONFLICTS THAT ARISE.
FORM 990, PART VI, SECTION B, LINE 15ATHE CEO IS NOT COMPENSATED EXCEPT FOR RECEIVING INSURANCE BENEFITS. THE ORGANIZATION DETERMINES COMPENSATION ON AN ANNUAL BASIS FOR THE CHIEF OPERATING OFFICER (COO) AND CHIEF FINANCIAL OFFICER (CFO) POSITIONS THROUGH THE EXECUTIVE COMMITTEE (WHICH SERVES AS THE COMPENSATION COMMITTEE), WITH THE USE OF AN INDEPENDENT COMPENSATION CONSULTANT, A COMPENSATION STUDY, AND APPROVAL BY THE EXECUTIVE COMPENSATION COMMITTEE. LAST REVIEW OF COMPENSATION FOR THESE EMPLOYEES WAS PERFORMED IN NOVEMBER, 2014. FORM 990, PART VI, SECTION B, LINE 15B: THIS QUESTION IS ANSWERED NO BECAUSE THERE ARE NO OTHER OFFICERS OR KEY EMPLOYEES WHO RECEIVE COMPENSATION.
FORM 990, PART VI, SECTION C, LINE 18THE ORGANIZATION MAKES ITS FORM 1023, 990 AND 990T AVAILABLE TO THE PUBLIC UPON REQUEST. THE 990 AND 990T ALSO ALSO AVAILABLE ON THE ORGANIZATION'S WEBSITE.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST AND ON THE ORGANIZATION'S WEBSITE. THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC.
FORM 990, PART IX, LINE 11GOUTSIDE SERVICES: PROGRAM SERVICE EXPENSES 15,671. MANAGEMENT AND GENERAL EXPENSES 8,947. FUNDRAISING EXPENSES 16,014. TOTAL EXPENSES 40,632. PROCESSING FEES: PROGRAM SERVICE EXPENSES 3,245. MANAGEMENT AND GENERAL EXPENSES 482. FUNDRAISING EXPENSES 23,571. TOTAL EXPENSES 27,298. CONSULTATION: PROGRAM SERVICE EXPENSES 835,322. MANAGEMENT AND GENERAL EXPENSES 58,557. FUNDRAISING EXPENSES 125,598. TOTAL EXPENSES 1,019,477.
PART VIII, LINE 1FDURING THE YEAR ENDED DECEMBER 31, 2014, THE ORGANIZATION RECEIVED DONATIONS FROM EVENTS HELD BY THIRD PARTIES IN HONOR OF THE ORGANIZATION. THE NET PROCEEDS OF EACH EVENT ARE REMITTED BY THE THIRD PARTIES TO THE ORGANIZATION AFTER THE EVENT HAS BEEN COMPLETED. THESE PROCEEDS ARE REPORTED AS OTHER CONTRIBUTIONS ON PART VIII.

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