2015-09-28T09:38:39-05:00 2014-12-31 135381590 BDO USA LLP 1665 ELK BOULEVARD DES PLAINES IL 600164776 990 2014-01-01 841558631 PULMONARY FIBROSIS FOUNDATION PULM 3125879272 230 EAST OHIO STREET NO 304 CHICAGO IL 606113201 SCOTT STASZAK CFO 3125879272 2015-09-15 1 DIRK AHLBECK P00237637 8478244000 2015-09-15 2014 2016-03-07 17:11:31Z DANIEL ROSE MD 230 EAST OHIO STREET NO 304 CHICAGO IL 606113201 5400907 0 X WWW.PULMONARYFIBROSIS.ORG X 2000 CO IMPROVE QUALITY OF LIFE OF THOSE AFFECTED BY PF. FIND NEW TREATMENTS AND A CURE. SEE PART III. 12 11 32 330 0 0 3493808 5343299 118860 0 2261 11028 -163127 19110 3451802 5373437 502540 468608 0 0 1291410 1737423 0 0 600564 1717821 2064246 3511771 4270277 -59969 1103160 3962848 5200307 345830 601747 3617018 4598560 X TO SERVE AS THE TRUSTED RESOURCE FOR THE PULMONARY FIBROSIS (PF) COMMUNITY BY RAISING AWARENESS, PROVIDING DISEASE EDUCATION, AND FUNDING RESEARCH. 0 0 698051 PFF PATIENT REGISTRY: THE PFF PATIENT REGISTRY IS A COLLABORATIVE EFFORT THAT WILL BRING TOGETHER MULTIPLE STAKEHOLDERS INCLUDING PATIENTS, HEALTH CARE PROVIDERS, AND RESEARCHERS. THE REGISTRY IS AN ELECTRONIC DATABASE OF PATIENT INFORMATION THAT WILL BE DE-IDENTIFIED (MADE ANONYMOUS) AND INDEPENDENTLY MANAGED BY A DATA-COORDINATING CENTER. THE GOALS OF THE PFF PATIENT REGISTRY ARE TO PROVIDE A ROBUST DATASET OF CLINICAL AND QUALITY OF LIFE (QOL) DATA ON THE FULL SPECTRUM OF PULMONARY FIBROSIS PATIENTS, HELP SHAPE AND IMPROVE CLINICAL CARE PATTERNS TO ADVANCE PATIENT OUTCOMES, SERVE AS AN INVALUABLE TOOL IN SUPPORT OF RESEARCH TO IMPROVE QOL AND OUTCOMES AND TO AID AWARENESS OF AND ENROLLMENT INTO CLINICAL TRIALS. 570962 15000 PFF CARE CENTER NETWORK:THE GOAL OF THE PFF CARE CARE CENTER NETWORK IS TO ELEVATE THE STANDARD OF CARE FOR PATIENTS WITH PULMONARY FIBROSIS. THE PFF CARE CENTER NETWORK CONNECTS LEADING MEDICAL CENTERS THROUGHOUT THE US THAT HAVE EXPERTISE IN TREATING FIBROTIC LUNG DISEASES. THE INSTITUTIONS THAT COMPRISE THE NETWORK USE A MULTIDISCIPLINARY APPROACH TO DELIVER COMPREHENSIVE PATIENT CARE. THESE SPECIALIZED CARE TEAMS INCLUDE INDIVIDUALS WITH EXPERTISE IN PULMONARY MEDICINE, RHEUMATOLOGY, RADIOLOGY, PATHOLOGY, GASTROENTEROLOGY, AND THORACIC SURGERY. THIS MULTIPRONGED, COLLABORATIVE APPROACH IS CRITICAL TO MANAGING A COMPLEX DISEASE LIKE PULMONARY FIBROSIS AND ENSURING INDIVIDUALS RECEIVE AN ACCURATE DIAGNOSIS, OBTAIN QUALITY CLINICAL CARE, AND ACQUIRE IMPORTANT SUPPORT SERVICES. 434186 419108 RESEARCH:THE PULMONARY FIBROSIS FOUNDATION (PFF) PLACES ENORMOUS IMPORTANCE ON CREATING AN ENVIRONMENT THAT WILL ASSIST IN THE DEVELOPMENT OF EFFECTIVE TREATMENTS FOR PULMONARY FIBROSIS (PF). WE ARE DEVELOPING THIS ENVIRONMENT BY DIRECTLY FUNDING RESEARCH, PROMOTING ADVOCACY EFFORTS, ENCOURAGING COLLABORATIVE RELATIONS BETWEEN INDUSTRY AND ACADEMIC RESEARCHERS AND DEVELOPING SOLUTIONS TO BRIDGE EXISTING GAPS IN PF RESEARCH.THE PFF RESEARCH FUND SUPPORTS PROJECTS THAT OFFER A HIGH LIKELIHOOD OF IMPROVING THE UNDERSTANDING OF PF IN THE FOLLOWING AREAS: BASIC SCIENCE, TRANSLATIONAL SCIENCE, CLINICAL MEDICINE/RESEARCH AND SOCIAL SCIENCE/QUALITY OF LIFE. THE PFF RESEARCH ADVISORY COMMITTEE ADMINISTERS THE PEER-REVIEWED PROCESS WHICH FUNDS MULTIPLE GRANTS INCLUDING FOUR $50,000 GRANTS PER GRANT CYCLE. 1493887 34500 1 OUTREACH AND AWARENESSPFF AMBASSADOR PROGRAM-THE PFF AMBASSADOR PROGRAM EMPOWERS PATIENTS, CAREGIVERS, AND HEALTH CARE PROFESSIONALS AS SPOKESPERSONS FOR THE PF COMMUNITY ON BEHALF OF THE PFF. PFF AMBASSADORS PROMOTE DISEASE AWARENESS, PROVIDE UP-TO-DATE INFORMATION, AND OFFER HOPE AND INSPIRATION TO THOSE AFFECTED BY PULMONARY FIBROSIS. PFF AMBASSADORS ARE AVAILABLE TO SPEAK AT PFF CARE CENTER NETWORK EVENTS, SUPPORT GROUP MEETINGS, FUNDRAISING EVENTS, AND OTHER DISEASE AWARENESS AND EDUCATION PROGRAMS.PFF DISEASE EDUCATION WEBINAR SERIES-THE PFF DISEASE EDUCATION WEBINAR SERIES ENGAGES THE PF COMMUNITY IN AN ONLINE WEBINAR DISCUSSION WHERE THEY LEARN FROM, CONNECT WITH, AND POSE QUESTIONS TO LEADING PULMONARY FIBROSIS SPECIALISTS EACH MONTH. TEN WEBINARS WERE PRESENTED IN 2014 AND ALL CAN BE VIEWED ON THE PFF WEBSITE AT WWW.PULMONARYFIBROSIS.ORG/WEBINARS.GLOBAL PULMONARY FIBROSIS AWARENESS MONTH-THE PF COMMUNITY UNITES DURING GLOBAL PULMONARY FIBROSIS AWARENESS MONTH AS A COLLECTIVE VOICE TO ENHANCE DISEASE AWARENESS AND PROVIDE OUTREACH TO THOSE IN NEED. IN 2014 THE ENTIRE PF COMMUNITY JOINED THE PFF AND PARTICIPATED IN THE #BLUEUP4PF CAMPAIGN, ATTENDED EDUCATIONAL EVENTS, HOSTED TEAM PFF FUNDRAISING EVENTS, PARTICIPATED IN WEBINARS AND SPREAD DISEASE AWARENESS THROUGH SOCIAL MEDIA. IN CHICAGO, THE PFF KICKED OFF THE MONTH WITH MAYOR RAHM EMANUEL PROCLAIMING SEPTEMBER GLOBAL PULMONARY FIBROSIS AWARENESS MONTH.2 PFF PATIENT COMMUNICATION CENTER (PCC)LAUNCHED IN 2014, THE PCC SERVES AS THE CENTRAL INFORMATION HUB FOR PULMONARY FIBROSIS PATIENTS, CAREGIVERS, AND HEALTH CARE PROFESSIONALS. THE PCC STAFF ANSWERS QUESTIONS AND PROVIDES INFORMATION THAT IS TAILORED TO INDIVIDUALS' NEEDS. RESOURCES AVAILABLE TO CALLERS INCLUDE: INFORMATION ABOUT PULMONARY FIBROSIS; HOW TO FIND MEDICAL CARE, ACCESS SUPPORT SERVICES, OBTAIN AVAILABLE TREATMENTS, AND ENROLL IN CLINICAL TRIALS; PFF PATIENT EDUCATION AND ADVOCACY MATERIALS; AND INFORMATION ON PFF PROGRAMS AND SERVICES.3 PATIENT AND PHYSICIAN EDUCATION: THE PULMONARY FIBROSIS FOUNDATION IS COMMITTED TO PROVIDING QUALITY DISEASE EDUCATION TO THE PULMONARY FIBROSIS COMMUNITY. THE PFF STRIVES TO PROVIDE PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH CARE PROVIDERS WITH THE RESOURCES NECESSARY TO MORE FULLY UNDERSTAND PF, AND TO PROVIDE PATIENTS WITH THE TOOLS NECESSARY TO LIVE WITH THE DISEASE AND IMPROVE THEIR QUALITY OF LIFE. THE FOUNDATION'S SUITE OF PRINTED EDUCATIONAL MATERIALS FOR PHYSICIANS, PATIENTS, AND CAREGIVERS INCLUDES: THE PFF PATIENT INFORMATION GUIDE, PFF PHYSICIAN NOTEPAD, PFF DISEASE AWARENESS BROCHURE, AND PFF DISEASE AWARENESS POSTER. THE PULMONARY FIBROSIS FOUNDATION'S EDUCATIONAL MATERIALS ARE DISTRIBUTED BY THE PFF PATIENT COMMUNICATION CENTER AND THE SUPPORT GROUP LEADER NETWORK (SEE SUPPORT GROUP SECTION).THE FOUNDATION ALSO FACILITATES PHYSICIAN EDUCATION BY ATTENDING AND PROVIDING FUNDING SUPPORT FOR EDUCATIONAL CONFERENCES.4 PFF SUMMIT:PFF SUMMIT 2015: FROM BENCH TO BEDSIDE IS THE PFF'S BIENNIAL INTERNATIONAL HEALTH CARE CONFERENCE ON PULMONARY FIBROSIS (PF). THE GOAL OF THE SUMMIT IS TO FOSTER A COLLABORATIVE ENVIRONMENT TO IMPROVE EDUCATION AND AWARENESS OF PF AND TO IDENTIFY NEW APPROACHES TO TREAT, AND ULTIMATELY CURE, THIS DEVASTATING DISEASE. THE SUMMIT FEATURES AN INNOVATIVE CONTINUING MEDICAL EDUCATION (CME) PROGRAM FOR HEALTH CARE PROFESSIONALS AND SESSIONS FOR PF PATIENTS AND CAREGIVERS THAT ADDRESS THEIR GROWING EDUCATIONAL NEEDS. {NOTE: THE MAJORITY OF EXPENSES FOR THE PFF SUMMIT 2015 WILL BE INCLUDED ON THE 2015 990.5 SUPPORT GROUPS:SUPPORT GROUP LEADER NETWORK-THE PFF SUPPORT GROUP LEADER NETWORK PROVIDES A FORUM FOR PF SUPPORT GROUP LEADERS TO CONNECT, EXCHANGE IDEAS, AND SHARE BEST PRACTICES. THE LEANNE STORCH SUPPORT GROUP FUND FURTHER ENHANCES THE SUPPORT GROUP EXPERIENCE AND ASSISTS THE NEEDS OF THE NETWORK BY FUNDING EDUCATIONAL EVENTS, HELPING ESTABLISH NEW GROUPS, AND SUPPORTING RELATED ACTIVITIES. IN 2014 THE PFF AWARDED 18 LEANNE STORCH SUPPORT GROUP FUND GRANTS.ONLINE SUPPORT GROUP COMMUNITIES-ONLINE SUPPORT GROUPS ARE A GREAT WAY FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND FRIENDS TO VIRTUALLY CONNECT FOR SUPPORT AND INFORMATION. FOR THOSE WHO ARE UNABLE TO ATTEND AN IN-PERSON GROUP, OR SIMPLY WANT ADDITIONAL INTERACTIONS BETWEEN MEETINGS, THE PULMONARY FIBROSIS FOUNDATION OFFERS TWO ONLINE SUPPORT COMMUNITIES: INSPIRE AND RARECONNECT. VISIT HTTP://WWW.PULMONARYFIBROSIS.ORG/LIFE-WITH-PF/SUPPORT-GROUPS/ONLINE-SUPPORT-COMMUNITIES TO LEARN MORE.6 ADVOCACY:IN 2014 THE PFF LAUNCHED AN INDEPENDENT PF PATIENT AND CAREGIVER SURVEY TO COLLECT ESSENTIAL INSIGHTS ABOUT LIVING WITH THE DISEASE AND PRESENTED THE INITIAL RESULTS TO THE US FOOD AND DRUG ADMINISTRATION AT ITS PUBLIC MEETING ON IDIOPATHIC PULMONARY FIBROSIS (IPF) PATIENT-FOCUSED DRUG DEVELOPMENT. THE PURPOSE OF THE MEETING WAS TO OBTAIN A BETTER UNDERSTANDING OF HOW IPF PATIENTS AND CAREGIVERS COPE WITH SYMPTOMS, THE IMPACT OF THE DISEASE ON THEIR DAILY LIVES, AND TO LEARN MORE ABOUT THEIR VIEWS ON CURRENT TREATMENT APPROACHES. 1493887 34500 3197086 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 37 0 32 1 0 0 0 0 0 1 1 0 0 0 0 X 12 11 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 IL X X SCOTT STASZAK 3125879272 230 EAST OHIO STREET SUITE 304 CHICAGO IL 606113201 DANIEL ROSE MD CEO 30.00 X X 0 0 10522 JOE BORUS SECRETARY 1.00 X X 0 0 0 TOM HALES DIRECTOR 1.00 X 0 0 0 SUSAN L RATTNER DIRECTOR 1.00 X 0 0 0 JENNIFER GALVIN MD DIRECTOR 1.00 X 0 0 0 CARL SALZANO VICE-CHAIR 1.00 X X 0 0 0 MATTHEW WILLIAMS DIRECTOR 1.00 X 0 0 0 RITU BARAL FORMER DIRECTOR 1.00 X 0 0 0 MIKE HENDERSON CHAIRMAN 1.00 X X 0 0 0 STEPHEN WALD PH D DIRECTOR 1.00 X 0 0 0 KEVIN BROWN DIRECTOR 1.00 X 0 0 0 DAVE STEFFY TREASURER 1.00 X X 0 0 0 PATTI TUOMEY EDD C.O.O. 40.00 X 195091 0 10180 SCOTT STASZAK C.F.O. 40.00 X 145492 0 4200 ALMA KERVITSKY RCP CCRC V.P. PATIENT RELATIONS 40.00 X 101519 0 6377 GAIL FAIRHALL SENIOR V.P. 40.00 X 134795 0 8199 576897 0 39478 4 0 1 0 DUKE UNIVERSITY 2400 PRATT STREET DURHAM NC 27705 DATA COLLECTION FOR REGISTRY 180305 TWIST MKTG PO BOX 2966 SAN ANTONIO TX 78299 MARKETING SUPPORT 120674 GRENZEBACH GLIER & ASSOCIATES INC PO BOX 88277 DEPT A CHICAGO IL 60680 SCREENING AND ANALYSIS 112990 SNOW COMPANIES INC 219 BULIFANTS BLVD WILLIAMSBURG VA 23188 STORY WRITING AND MANAGEMENT OF PROG. 112205 KLEARSKY SOLUTIONS LLC 1608 ORTH DRIVE WHEATON IL 60189 WEBSITE REDESIGN 110050 5 86988 5256311 17113 5343299 11028 11028 17018 86988 23676 -6658 -6658 23702 3794 19908 19908 MISCELLANEOUS 900099 5860 5860 5860 5373437 0 0 30138 X 449108 449108 4500 4500 15000 15000 365485 223127 60234 82124 1164779 852476 114089 198214 86104 75775 10329 121055 88095 12360 20600 53155 53155 22000 22000 1087407 854238 67986 165183 55744 39383 10874 5487 265834 194475 33570 37789 22272 20786 557 929 97949 69153 11314 17482 226575 177326 30373 18876 49200 21211 23594 4395 2400 2400 31830 10255 20630 945 11823 9296 177 2350 EVENT EXPENSES 99559 73929 1401 24229 MISCELLANEOUS 25270 15848 3801 5621 DUES AND SUBSCRIPTIONS 13228 3105 4112 6011 4270277 3197086 472627 600564 1018807 222897 279417 1616664 199511 756055 34888 53746 101091 85889 48582 20145 37307 2339894 2394470 16440 71823 3962848 5200307 322794 236358 322500 6601 21788 23036 14500 345830 601747 X 3056520 3019815 560498 1578745 3617018 4598560 3962848 5200307 1103160 10882 -132500 0 X 0 1 X 1 0 X 1592081 1971108 2571108 3493808 5343299 14971404 1592081 1971108 2571108 3493808 5343299 14971404 3965296 11006108 62902 57768 46324 12753 11028 190775 15952 76945 60491 46580 199968 15362147 0.71640 0.82880 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 283077 0 283077 424616 4555 0 4555 70769 0 70769 106154 62292 26727 35565 23597 21855 1742 37307 DEFERRED RENT 14500 14500 X 5426827 10882 15038 25920 5400907 -27470 -27470 5373437 4312785 15038 27470 42508 4270277 0 4270277 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, EXCEPT FOR NET INCOME DERIVED FROM UNRELATED BUSINESS ACTIVITIES. IN ADDITION, THE ORGANIZATION QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A) AND HAS BEEN CLASSIFIED AS AN ORGANIZATION OTHER THAN A PRIVATE FOUNDATION UNDER IRC SECTION 509(A). THE ORGANIZATION'S INCOME TAX FILINGS ARE SUBJECT TO AUDIT BY VARIOUS TAXING AUTHORITIES. THE ORGANIZATION'S OPEN AUDIT PERIODS ARE 2011 THROUGH THE CURRENT YEAR. IN EVALUATING THE ORGANIZATION'S ACTIVITIES, MANAGEMENT BELIEVES ITS POSITION OF TAX-EXEMPT STATUS IS BASED ON CURRENT FACTS AND CIRCUMSTANCES AND THERE HAVE BEEN NO UNCERTAIN POSITIONS TAKEN RELATED TO RECORDING INCOME TAXES. IN THE OPINION OF MANAGEMENT THERE ARE NO ACTIVITIES UNRELATED TO THE PURPOSE OF THE ORGANIZATION AND THEREFORE NO TAX IS TO BE RECOGNIZED. IT IS THE POLICY OF THE ORGANIZATION TO INCLUDE IN MANAGEMENT AND GENERAL EXPENSES PENALTIES AND INTEREST ASSESSED BY INCOME TAXING AUTHORITIES. THERE ARE NO PENALTIES OR INTEREST FROM TAXING AUTHORITIES INCLUDED IN MANAGEMENT AND GENERAL EXPENSES FOR THE YEAR ENDED DECEMBER 31, 2013. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENTS EXPENSE -23,676. SALE OF GOODS EXPENSE -3,794. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS EXPENSE 23,676. SALE OF GOODS EXPENSE 3,794. 1 0 0 0 0 0 0 0 0 0 EUROPE SUPPORT FOR THE 18TH INTERNATIONAL COLLOQUIUM ON LUNG AND AIRWAY FIBROSIS. 15000 CHECK 0 1 0 0 0 0 0 0 PART I, LINE 2: THE GRANT TO ICLAF WAS TO SPONSOR THE 2014 BIENNIAL CONFERENCE. ICLAF IS A MEETING WHERE CLINICIANS AND BASIC SCIENTISTS, ESTABLISHED INVESTIGATORS AND STUDENTS, REPRESENTATIVES FROM ACADEMIA, PHARMACEUTICAL INDUSTRY AND PATIENT ADVOCATES GET TOGETHER AND EXCHANGE EMERGING DATA AND EVOLVING PERSPECTIVES ON FIBROTIC LUNG DISEASE. PFF MONITORED THIS GRANT BY SENDING TWO REPRESENTATIVES TO ATTEND THE CONFERENCE. BROADWAY BELTS - PFF! 104006 86988 17018 17989 650 5037 104006 86988 17018 17989 650 5037 23676 -6658 1 AMERICAN THORACIC SOCIETY 61 BROADWAY 4TH FLOOR NEW YORK NY 10006 061548706 501(C)(3) 40000 SEE PART IV NATIONAL JEWISH HEALTH 1400 JACKSON DENVER CO 80206 742044647 501(C)(3) 50000 SEE PART IV UNIVERSITY OF PITTSBURGH 3100 CATHEDRAL OF LEARNING PITTSBURGH PA 15260 250965591 501(C)(3) 12500 SEE PART IV STANFORD UNIVERSITY 3145 PORTER DRIVE PALO ALTO CA 94304 941156365 501(C)(3) 12500 SEE PART IV UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA CA 920930953 956006144 501(C)(3) 12500 SEE PART IV UNIVERSITY OF COLORADO DENVER 1800 GRANT STREET SUITE 600 DENVER CO 80203 846000555 501(C)(3) 12500 SEE PART IV UNIVERSITY OF UTAH 201 SOUTH PRESIDENTS CIRCLE ROOM 411 SALT LAKE CITY UT 841120922 876000525 501(C)(3) 12500 SEE PART IV CHILDREN'S HOSPITAL BOSTON 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501(C)(3) 12500 SEE PART IV UNIVERSITY OF CHICAGO 5751 SOUTH WOODLAWN M/C 6092ROOM 410B CHICAGO IL 60637 362177139 501(C)(3) 50000 SEE PART IV SEE PART IV TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA OFFICE OF RESEARCH SERVICES AV PROVOST RES P-221 FRANKLIN BLDG 345 PHILADELPHIA PA 191046205 231352685 501(C)(3) 25000 SEE PART IV UNIVERSITY OF CALIFORNIA-SAN FRANCISCO 505 PARNASSUS AVE RM M1097 BOX 0111 0111 SAN FRANCISCO CA 94143 966036493 501(C)(3) 5000 SEE PART IV UNIVERSITY OF MD - BALTIMORE 620 WEST LEXINGTON STREET 4TH FLOOR FLOOR BALTIMORE MD 21201 362177139 501(C)(3) 20000 SEE PART IV UNIVERSITY OF CALIFORNIA-SAN FRANCISCO 505 PARNASSUS AVE RM M1097 BOX 0111 0111 SAN FRANCISCO CA 94143 966036493 501(C)(3) 5000 SEE PART IV UNIVERSITY OF ROCHESTER 300 EAST RIVER ROAD BOX 278996 ROCHESTER NY 14627 160743209 501(C)(3) 8098 SEE PART IV UNIVERSITY OF TEXAS 2601 NORTH FLOYD ROAD RICHARDSON TX 75080 751305566 501(C)(3) 50000 SEE PART IV MCMASTER UNIVERSITY 50 CHARLTON AVENUE EAST ONTARIO CA 237213309 501(C)(3) 50000 SEE PART IV PALO ALTO 3801 MIRANDA AVENUES PALO ALTO CA 94304 770207331 501(C)(3) 50000 SEE PART IV 19 0 PART I, LINE 2: FOR LARGER GRANTS, THE ORGANIZATION REQUESTS SEMI-ANNUAL REPORTS DETAILING THE USE OF GRANT FUNDS FROM THE RECIPIENT ORGANIZATIONS. PART II - LINE 1 PURPOSE OF AMERICAN THORACIC SOCIETY GRANT TO SUPPORT MECHANISMS FACILITATING ENHANCED FIBRONECTIN ASSEMBLY BY MYROFIBROBLASTS. PART II - LINE 1 PURPOSE OF NATIONAL JEWISH HEALTH GRANT TO SUPPORT ROLE OF WNT AND FGF SIGNALING IN ALVEOLAR EPITHELIAL REGENERATION AFTER BLEOMYCIN INJURY. PART II - LINE 1 PURPOSE OF UNIVERSITY OF PITTSBURGH GRANT TO STUDY THE AGING OF STEM CELLS AND DISEASE SUSCEPTIBILITY. PART II - LINE 1 PURPOSE OF STANFORD UNIVERSITY GRANT ESTABLISHED INVESTIGATOR AWARD GIVEN TO ANALYZE THE NOVEL FUNCTIONS OF HUMAN TELOMERASE RNA IN IPF. PART II - LINE 1 PURPOSE OF UNIVERSITY OF CALIFORNIA, SAN DIEGO GRANT ESTABLISHED INVESTIGATOR AWARD GIVEN TO RESEARCH THAT EXTRACELLULAR VESICLES ALTER CELL PHENOTYPE IN PULMONARY FIBROSIS. PART II - LINE 1 PURPOSE OF UNIVERSITY OF COLORADO, DENVER GRANT YOUNG INVESTIGATOR AWARD TO RESEARCH THERAPEUTIC TARGETING OF PTPN-13 IN IDIOPATHIC PULMONARY FIBROSIS. PART II - LINE 1 PURPOSE OF UNIVERSITY OF UTAH GRANT YOUNG INVESTIGATOR AWARD TO RESEARCH THE DESIGN AND SYNTHESIS OF SELECTIVE BETA-CATENIN/T-CELL FACTOR INHIBITORS FOR THE TREATMENT OF PULMONARY FIBROSIS. PART II - LINE 1 PURPOSE OF CHILDREN'S HOSPITAL BOSTON GRANT USING ENDOGENOUS LUNG STEM CELLS TO DISCOVER NOVEL PULMONARY FIBROSIS DISEASE MECHANISMS. PART II - LINE 1 PURPOSE OF UNIVERSITY OF CHICAGO GRANT TO SUPPORT REGULATORY MOLECULAR PATHWAYS INVOLVED IN THE PERIPHEREAL BLOOD COMPARTMENT THAT ARE INVOLVED AND HOW THEY INTERACT WITH MIRNA EXPRESSION PATTERNS. PART II - LINE 1 PURPOSE OF TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA GRANT MODELING OF EPITHELIAL CELL DYSFUNCTION IN PULMONARY FIBROSIS USING SP-C BRICHOS MUTATIONS. PART II - LINE 1 PURPOSE OF UNIVERSITY OF CALIFORNIA-SAN FRANCISCO GRANT TO SUPPORT ESTABLISHMENT OF THE FACILITY AS A MEMBER OF THE PFF CARE CENTER NETWORK, PROVIDING HIGH QUALITY COMPREHENSIVE CARE TO PATIENTS. PART II - LINE 1 PURPOSE OF UNIVERSITY OF MARYLAND-BALTIMORE GRANT OPEN LABEL USE OF INHALED CYCLOSPORINE IN LUNG TRANSPLANT RECIPIENTS. THE PURPOSE OF THIS GRANT IS TO STUDY THE USE OF AEROSOLIZED ANTI-REJECTION THERAPY FOR LUNG TRANSPLANT PATIENTS. PART II - LINE 1 PURPOSE OF UNIVERSITY OF CALIFORNIA-SAN FRANCISCO GRANT SUPPORT FOR INTERSTITIAL LUNG DISEASE PATIENT EDUCATION CONFERENCE. PART II - LINE 1 PURPOSE OF UNIVERSITY OF ROCHESTER GRANT TRANSLATIONAL STUDIES OF NEW THERAPEUTIC TARGETS AND BIOMARKERS IN PULMONARY FIBROSIS. PART II - LINE 1 PURPOSE OF UNIVERSITY OF TEXAS GRANT TO SUPPORT THE EVALUATION OF HYPOXIA-INDUCIBLE FACTOR-1 (HIF-1) SIGNALING AS ANTI-FIBROSIS THERAPY. PART II - LINE 1 PURPOSE OF MCMASTER UNIVERSITY GRANT TO SUPPORT THE ROLE OF MAST CELLS IN PATHOPHYSIOLOGY OF PULMONARY FIBROSIS. PART II - LINE 1 PURPOSE OF PALO ALTO GRANT TO SUPPORT THE ROLE OF CHEMERIN AND ITS RECEPTORS IN TGF-BETA-INDUCED EXPERIMENTAL PULMONARY FIBROSIS. X X X X X 0 0 0 0 0 0 0 0 0 PATTI TUOMEY EDD C.O.O. 195091 0 0 0 0 0 5850 0 4330 0 205271 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 JOE BORUS, SECRETARY, IS THE BROTHER-IN-LAW OF DANIEL ROSE, CEO. FORM 990, PART VI, SECTION B, LINE 11 A COPY OF FORM 990 IS REVIEWED BY THE EXECUTIVE AND FINANCE COMMITTEES BEFORE FILING. THE FORM 990 IS AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING THE FORM. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY WITHIN THE EMPLOYEE HANDBOOK AND ALL EMPLOYEES ARE REQUIRED TO ADHERE TO THE POLICY. EMPLOYEES SIGN A DISCLOSURE FORM EACH YEAR. BOARD MEMBERS ARE SENT A FORM TO FILL OUT STATING WHETHER THEY HAVE ANY CONFLICTS OF INTEREST. IF SUCH CONFLICTS EXISTS, THEN THEY FILL OUT AN ADDITIONAL FORM OUTLINING THOSE CONFLICTS. THE EXECUTIVE COMMITTEE REVIEWS ANY CONFLICTS THAT ARISE. FORM 990, PART VI, SECTION B, LINE 15A THE CEO IS NOT COMPENSATED EXCEPT FOR RECEIVING INSURANCE BENEFITS. THE ORGANIZATION DETERMINES COMPENSATION ON AN ANNUAL BASIS FOR THE CHIEF OPERATING OFFICER (COO) AND CHIEF FINANCIAL OFFICER (CFO) POSITIONS THROUGH THE EXECUTIVE COMMITTEE (WHICH SERVES AS THE COMPENSATION COMMITTEE), WITH THE USE OF AN INDEPENDENT COMPENSATION CONSULTANT, A COMPENSATION STUDY, AND APPROVAL BY THE EXECUTIVE COMPENSATION COMMITTEE. LAST REVIEW OF COMPENSATION FOR THESE EMPLOYEES WAS PERFORMED IN NOVEMBER, 2014. FORM 990, PART VI, SECTION B, LINE 15B: THIS QUESTION IS ANSWERED NO BECAUSE THERE ARE NO OTHER OFFICERS OR KEY EMPLOYEES WHO RECEIVE COMPENSATION. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES ITS FORM 1023, 990 AND 990T AVAILABLE TO THE PUBLIC UPON REQUEST. THE 990 AND 990T ALSO ALSO AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST AND ON THE ORGANIZATION'S WEBSITE. THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FORM 990, PART IX, LINE 11G OUTSIDE SERVICES: PROGRAM SERVICE EXPENSES 15,671. MANAGEMENT AND GENERAL EXPENSES 8,947. FUNDRAISING EXPENSES 16,014. TOTAL EXPENSES 40,632. PROCESSING FEES: PROGRAM SERVICE EXPENSES 3,245. MANAGEMENT AND GENERAL EXPENSES 482. FUNDRAISING EXPENSES 23,571. TOTAL EXPENSES 27,298. CONSULTATION: PROGRAM SERVICE EXPENSES 835,322. MANAGEMENT AND GENERAL EXPENSES 58,557. FUNDRAISING EXPENSES 125,598. TOTAL EXPENSES 1,019,477. PART VIII, LINE 1F DURING THE YEAR ENDED DECEMBER 31, 2014, THE ORGANIZATION RECEIVED DONATIONS FROM EVENTS HELD BY THIRD PARTIES IN HONOR OF THE ORGANIZATION. THE NET PROCEEDS OF EACH EVENT ARE REMITTED BY THE THIRD PARTIES TO THE ORGANIZATION AFTER THE EVENT HAS BEEN COMPLETED. THESE PROCEEDS ARE REPORTED AS OTHER CONTRIBUTIONS ON PART VIII.