CHORDOMA FOUNDATION: Form 990, tax year 2015
View the entire original 990 at ProPublica ↗
- Organization
- CHORDOMA FOUNDATION (EIN 20-8423943)
- Tax period
- 2015-01-01 to 2015-12-31
- Filed
- 2016-05-16
- IRS object ID
- 201631379349308668
- Schema version
- 2015v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2016-05-16T15:10:12-05:00 | ReturnTs |
| Tax Period End | 2015-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 561743537 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LANGDON & COMPANY LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 223 US HIGHWAY 70 EAST SUITE 100 | AddressLine1Txt |
| City | GARNER | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 275294051 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2015-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 208423943 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CHORDOMA FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CHOR | BusinessNameControlTxt |
| Phone | 9198096779 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 2127 | AddressLine1Txt |
| City | DURHAM | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27702 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JOSH SOMMER | PersonNm |
| Person Title | PRESIDENT, EXEC. DIR | PersonTitleTxt |
| Phone | 9198096779 | PhoneNum |
| Signature | 2016-05-13 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | KENDALL TYSON | PreparerPersonNm |
| PTIN | P01261689 | PTIN |
| Phone | 9196621001 | PhoneNum |
| Preparation | 2016-05-13 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2015 | TaxYr |
| Build TS | 2016-12-15 16:53:06Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | JOSH SOMMER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 2127 | AddressLine1Txt |
| City | DURHAM | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27702 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $1,916,256 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CHORDOMAFOUNDATION.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2007 | FormationYr |
| Legal Domicile State | NC | LegalDomicileStateCd |
| Activity Or Mission | THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. | ActivityOrMissionDesc |
| Voting Members Governing Body | 6 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 5 | VotingMembersIndependentCnt |
| Total Employee | 10 | TotalEmployeeCnt |
| Total Volunteers | 45 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $2,011,406 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,915,121 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | -$163 | PYInvestmentIncomeAmt |
| CY Investment Income | $711 | CYInvestmentIncomeAmt |
| PY Other Revenue | $14,706 | PYOtherRevenueAmt |
| CY Other Revenue | $424 | CYOtherRevenueAmt |
| PY Total Revenue | $2,025,949 | PYTotalRevenueAmt |
| CY Total Revenue | $1,916,256 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $870,478 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $462,619 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $368,357 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $513,870 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $270,123 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $422,585 | PYOtherExpensesAmt |
| CY Other Expenses | $470,916 | CYOtherExpensesAmt |
| PY Total Expenses | $1,661,420 | PYTotalExpensesAmt |
| CY Total Expenses | $1,447,405 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $364,529 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $468,851 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,379,674 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,764,956 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $581,417 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $497,848 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,798,257 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,267,108 | NetAssetsOrFundBalancesEOYAmt |
| Mission | THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $953,412 | ExpenseAmt |
| Grant | $435,119 | GrantAmt |
| Desc | THE CHORDOMA FOUNDATION INITIATED, FACILITATED, AND FUNDED RESEARCH AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS FOR CHORDOMA. THIS INCLUDED PERFORMING GENOMIC ANALYSIS OF CHORDOMA TUMORS, DISTRIBUTING CHORDOMA CELL LINES TO RESEARCHERS ACROSS THE WORLD, FACILITATING THE EXCHANGE OF CHORDOMA TISSUE, AND BROKERING COLLABORATIONS AMONG PHYSICIANS AND SCIENTISTS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $108,092 | ExpenseAmt |
| Grant | $7,500 | GrantAmt |
| Desc | THE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND OTHER RARE CANCERS, AND SPONSORED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $1,061,504 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | false | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (true) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | false | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 5 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 10 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 6 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 5 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JOSH SOMMER | PersonNm |
| Phone | 9198096779 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2525 MERIDIAN PKWY STE 210 | AddressLine1Txt |
| City | DURHAM | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27713 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (6 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| JOSH SOMMER | ||||||
| PRESIDENT, E | 60.00 | Yes (X) | Yes (X) | $92,734 | $0 | $5,051 |
| JOEL BECKMAN | ||||||
| VICE CHAIR | 8.00 | Yes (X) | $0 | $0 | $0 | |
| PAULA SONG | ||||||
| TREASURER | 3.00 | Yes (X) | $0 | $0 | $0 | |
| ANDY SCHOELKOPF | ||||||
| CHAIR | 15.00 | Yes (X) | $0 | $0 | $0 | |
| CHANDRA SEN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| KERRY SHAD | ||||||
| SECRETARY | 4.00 | Yes (X) | $0 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $92,734 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $5,051 | TotalOtherCompensationAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| All Other Contributions | $1,915,121 | AllOtherContributionsAmt |
| Noncash Contributions | $15,923 | NoncashContributionsAmt |
| Total Contributions | $1,915,121 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $711 | TotalRevenueColumnAmt |
| Exclusion | $711 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER REVENUE | Desc |
| Total Revenue Column | $424 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $424 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $424 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,916,256 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $424 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $711 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $427,619 | TotalAmt |
| Program Services | $427,619 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $35,000 | TotalAmt |
| Program Services | $35,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $97,786 | TotalAmt |
| Program Services | $48,336 | ProgramServicesAmt |
| Management And General | $13,180 | ManagementAndGeneralAmt |
| Fundraising | $36,270 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $350,674 | TotalAmt |
| Program Services | $173,334 | ProgramServicesAmt |
| Management And General | $47,268 | ManagementAndGeneralAmt |
| Fundraising | $130,072 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $29,407 | TotalAmt |
| Program Services | $14,535 | ProgramServicesAmt |
| Management And General | $3,964 | ManagementAndGeneralAmt |
| Fundraising | $10,908 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $36,003 | TotalAmt |
| Program Services | $17,796 | ProgramServicesAmt |
| Management And General | $4,853 | ManagementAndGeneralAmt |
| Fundraising | $13,354 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,032 | TotalAmt |
| Program Services | $830 | ProgramServicesAmt |
| Management And General | $10,632 | ManagementAndGeneralAmt |
| Fundraising | $570 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,637 | TotalAmt |
| Program Services | $10,812 | ProgramServicesAmt |
| Management And General | $5,482 | ManagementAndGeneralAmt |
| Fundraising | $4,343 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,267 | TotalAmt |
| Program Services | $12,938 | ProgramServicesAmt |
| Management And General | $102 | ManagementAndGeneralAmt |
| Fundraising | $13,227 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,252 | TotalAmt |
| Program Services | $7,228 | ProgramServicesAmt |
| Management And General | $466 | ManagementAndGeneralAmt |
| Fundraising | $16,558 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $41,413 | TotalAmt |
| Program Services | $14,430 | ProgramServicesAmt |
| Management And General | $6,515 | ManagementAndGeneralAmt |
| Fundraising | $20,468 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,140 | TotalAmt |
| Program Services | $14,519 | ProgramServicesAmt |
| Management And General | $3,854 | ManagementAndGeneralAmt |
| Fundraising | $8,767 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,476 | TotalAmt |
| Program Services | $22,743 | ProgramServicesAmt |
| Management And General | $4,027 | ManagementAndGeneralAmt |
| Fundraising | $7,706 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $52,813 | TotalAmt |
| Program Services | $44,849 | ProgramServicesAmt |
| Management And General | $3,481 | ManagementAndGeneralAmt |
| Fundraising | $4,483 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,274 | TotalAmt |
| Program Services | $1,432 | ProgramServicesAmt |
| Management And General | $273 | ManagementAndGeneralAmt |
| Fundraising | $569 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,631 | TotalAmt |
| Program Services | $6,578 | ProgramServicesAmt |
| Management And General | $1,355 | ManagementAndGeneralAmt |
| Fundraising | $2,698 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CONTRACT RESEARCH | $132,131 | $132,131 | ||
| BIOREPOSITORY | $76,394 | $76,394 | ||
| BAD DEBT EXPENSE | $10,210 | $10,210 | ||
| MISCELLANEOUS EXPENSE | $246 | $116 | $130 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,447,405 | TotalAmt |
| Program Services | $1,061,504 | ProgramServicesAmt |
| Management And General | $115,778 | ManagementAndGeneralAmt |
| Fundraising | $270,123 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $922,559 | BOYAmt |
| EOY | $1,057,571 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $785,721 | BOYAmt |
| EOY | $746,834 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $560,710 | BOYAmt |
| EOY | $836,168 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $79,780 | BOYAmt |
| EOY | $87,588 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $22,368 | BOYAmt |
| EOY | $22,892 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $28,942 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $17,504 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,071 | BOYAmt |
| EOY | $11,438 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,465 | BOYAmt |
| EOY | $2,465 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,379,674 | BOYAmt |
| EOY | $2,764,956 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $33,519 | BOYAmt |
| EOY | $45,954 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $547,898 | BOYAmt |
| EOY | $451,894 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $581,417 | BOYAmt |
| EOY | $497,848 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,436,159 | BOYAmt |
| EOY | $1,672,666 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $362,098 | BOYAmt |
| EOY | $594,442 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,798,257 | BOYAmt |
| EOY | $2,267,108 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,379,674 | BOYAmt |
| EOY | $2,764,956 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $468,851 | ReconcilationRevenueExpnssAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $584,425 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $780,659 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,609,663 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,011,406 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,915,121 | CurrentTaxYearAmt |
| Total | $6,901,274 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $584,425 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $780,659 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,609,663 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,011,406 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,915,121 | CurrentTaxYearAmt |
| Total | $6,901,274 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $931,942 | SubstantialContributorsTotAmt |
| Public Support Total170 | $5,969,332 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,820 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,075 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $622 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $513 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $711 | CurrentTaxYearAmt |
| Total | $6,741 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $6,908,015 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $424 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.86410 | PublicSupportCY170Pct |
| Public Support PY170 | 0.66160 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $28,942 | OtherCostOrOtherBasisAmt |
| Depreciation | $17,504 | DepreciationAmt |
| Book Value | $11,438 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $11,438 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,061,012 | TotalRevEtcAuditedFinclStmtAmt |
| Donated Services And Use Fclts | $144,756 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $144,756 | RevenueNotReportedAmt |
| Revenue Subtotal | $1,916,256 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $1,916,256 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,592,161 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $144,756 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $144,756 | ExpensesNotReportedAmt |
| Expenses Subtotal | $1,447,405 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $1,447,405 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE D, PAGE 3, PART X | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATIONS POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2015 OR 2014. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE | RegionTxt |
| Type Of Activities Conducted | GRANTS | TypeOfActivitiesConductedTxt |
| Specific Services Provided | RESEARCH | SpecificServicesProvidedTxt |
| Region Total Expenditures | $35,000 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $35,000 | SubtotalSpentAmt |
| Total Spent | $35,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|
| RESEARCH | $15,000 | WIRE TRANSFER |
| RESEARCH | $10,000 | WIRE TRANSFER |
| RESEARCH | $10,000 | WIRE TRANSFER |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| SCHEDULE F, PAGE 1, PART I, LINE 2 | MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. |
| SCHEDULE F, PAGE 1, PART I, LINE 3 | EUROPE 35,000 0 |
| SCHEDULE F, PAGE 5, PART V | 15,000 WAS AWARDED TO THE EUROPEAN SOCIETY OF MEDICAL ONCOLOGY IN SWITZERLAND AS SUPPORT FOR A PROFESSIONAL MEETING ON A CONSENSUS APPROACH TO CHORDOMA AND A CHORDOMA COMMUNITY CONFERENCE. 10,000 WAS AWARDED TO THE ROYAL NATIONAL ORTHOPAEDICS HOSPITAL AS AN UNRESTRICTED PRIZE TO BE USED BY DR. ADRIENNE FLANAGAN FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 10,000 WAS AWARDED TO THE MEDICAL UNIVERSITY OF GRAZ IN AUSTRIA AS AN UNRESTRICTED PRIZE TO BE USED BY DR. BEATE RINNER FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (5 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| MEMORIAL SLOAN KETTERING CANCER CTR | |||||||
| 1275 YORK AVENUE | NEW YORK | NY | 10065 | 131924236 | 501C3 | $100,000 | RESEARCH GRANT |
| MASSACHUSETTS GEN HOSPITAL | |||||||
| 100 BLOSSOM CT JACKSON 1115 | BOSTON | MA | 02114 | 041564655 | 501C3 | $56,336 | RESEARCH GRANT |
| DUKE UNIVERSITY MEDICAL CTR | |||||||
| 615 DOUGLAS STREET NO 700 | DURHAM | NC | 27705 | 562070036 | 501C3 | $49,500 | RESEARCH GRANT |
| JOHNS HOPKINS UNIVERSITY SCH OF MED | |||||||
| 733 N BROADWAY STE 117 | BALTIMORE | MD | 21205 | 900329755 | 501C3 | $30,000 | RESEARCH GRANT |
| THE BROAD INSTITUTE | |||||||
| 415 MAIN STREET | CAMBRIDGE | MA | 02142 | 263428781 | 501C3 | $191,783 | RESEARCH GRANT |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 5 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE I, PAGE 1, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. | ExplanationTxt |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp (9 entries)
| Relationship DescriptionRelationshipDescriptionTxt | TransactionTransactionAmt | TransactionTransactionDesc | Sharing Of RevenuesSharingOfRevenuesInd |
|---|---|---|---|
| SMITH ANDERSON LLP | |||
| FORMER BD DIR. | $49,911 | IN-KIND LEGAL SVCS | false |
| DEVELOPMENTAL ASSOCIATES | |||
| BOARD DIRECTOR | $2,625 | EMPLOYEE RECRUITMENT | false |
| ANDREW SCHOELKOPF | |||
| BOARD DIRECTOR | $10,100 | CONTRIBUTION | false |
| CHANDRA SEN | |||
| BOARD DIRECTOR | $15,000 | CONTRIBUTION | false |
| HANS KEULEN | |||
| FORMER BD DIR. | $500 | CONTRIBUTION | false |
| HEATHER LEE | |||
| FORMER BD DIR. | $11,500 | CONTRIBUTION | false |
| JOEL BECKMAN | |||
| BOARD DIRECTOR | $130,100 | CONTRIBUTION | false |
| KERRY SHAD | |||
| BOARD DIRECTOR | $10,000 | CONTRIBUTION | false |
| JOSH SOMMER | |||
| OFFICER | $1,200 | CONTRIBUTION | false |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE L, PART V | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A FORMER BOARD MEMBER OF THE FOUNDATION, IS ALSO A PARTNER IN THE LAW FIRM SMITH ANDERSON, LLP. JOHN IS NOT LISTED ON PART VII OF THE FORM 990 AS HIS BOARD TERM ENDED APRIL 30, 2015. THE FOUNDATION USED THE SERVICES OF DEVELOPMENTAL ASSOCIATES, AN EMPLOYMENT RECRUITING COMPANY, FOR THE PURPOSE OF HIRING A MARKETING AND COMMUNICATIONS MANAGER. HEATHER LEE, A FORMER BOARD MEMBER OF THE FOUNDATION, IS ALSO A PARTNER OF THE DEVELOPMENTAL ASSOCIATES. HEATHER IS NOT LISTED ON PART VII FOR THE FORM 990 AS HER BOARD TERM ENDED NOVEMBER 30, 2015. THE FOUNDATIONS' BOARD MEMBERS AND FORMER BOARD MEMBERS PROVIDED CONTRIBUTIONS TOTALING 178,400 IN 2015. THE FUNDS ARE TREATED THE SAME AS A PLEDGE OR CONTRIBUTION FROM AN UNRELATED OR UNINTERESTED PARTY. HANS KEULEN IS NOT LISTED ON PART VII OF THE FORM 990 AS HIS BOARD TERM ENDED OCTOBER 29, 2015. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PAGE 6, PART VI, LINE 11B | FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. |
| FORM 990, PAGE 6, PART VI, LINE 12C | EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION ANNUALLY SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. |
| FORM 990, PAGE 6, PART VI, LINE 15A | THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE. |
| FORM 990, PAGE 6, PART VI, LINE 15B | THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. |
| FORM 990, PAGE 6, PART VI, LINE 19 | GOVERNING DOCUMENTS, DISCLOSURE EXPLANATION, ARTICLES OF INCORPORATION, BY-LAWS, POLICIES AND PROCEDURES MANUAL, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING POLICIES, ANNUAL AUDITS AND 990'S ARE ON FILE IN THE FINANCE OFFICE, AVAILABLE ON THE FOUNDATION'S WEBSITE AND AVAILABLE TO THE PUBLIC UPON REQUEST. |
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