2016-05-16T15:10:12-05:00 2015-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2015-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER PRESIDENT, EXEC. DIR 9198096779 2016-05-13 true KENDALL TYSON P01261689 9196621001 2016-05-13 2015 2016-12-15 16:53:06Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 1916256 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 6 5 10 45 0 2011406 1915121 0 -163 711 14706 424 2025949 1916256 870478 462619 0 368357 513870 0 270123 422585 470916 1661420 1447405 364529 468851 2379674 2764956 581417 497848 1798257 2267108 THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 953412 435119 THE CHORDOMA FOUNDATION INITIATED, FACILITATED, AND FUNDED RESEARCH AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS FOR CHORDOMA. THIS INCLUDED PERFORMING GENOMIC ANALYSIS OF CHORDOMA TUMORS, DISTRIBUTING CHORDOMA CELL LINES TO RESEARCHERS ACROSS THE WORLD, FACILITATING THE EXCHANGE OF CHORDOMA TISSUE, AND BROKERING COLLABORATIONS AMONG PHYSICIANS AND SCIENTISTS. 108092 7500 THE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND OTHER RARE CANCERS, AND SPONSORED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA. 1061504 true true false false false false false false false false true false false false false true true false false false true true false false false false false true false false false false false false false true false false false false false false false false false false false true 5 0 true 10 true false false false false false true true false false false false false false X 6 5 false false false false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 2525 MERIDIAN PKWY STE 210 DURHAM NC 27713 JOSH SOMMER PRESIDENT, E 60.00 X X 92734 0 5051 JOEL BECKMAN VICE CHAIR 8.00 X 0 0 0 PAULA SONG TREASURER 3.00 X 0 0 0 ANDY SCHOELKOPF CHAIR 15.00 X 0 0 0 CHANDRA SEN DIRECTOR 2.00 X 0 0 0 KERRY SHAD SECRETARY 4.00 X 0 0 0 92734 5051 false false false 1915121 15923 1915121 711 711 OTHER REVENUE 424 424 424 1916256 424 711 427619 427619 35000 35000 97786 48336 13180 36270 350674 173334 47268 130072 29407 14535 3964 10908 36003 17796 4853 13354 12032 830 10632 570 20637 10812 5482 4343 26267 12938 102 13227 24252 7228 466 16558 41413 14430 6515 20468 27140 14519 3854 8767 34476 22743 4027 7706 52813 44849 3481 4483 2274 1432 273 569 10631 6578 1355 2698 CONTRACT RESEARCH 132131 132131 BIOREPOSITORY 76394 76394 BAD DEBT EXPENSE 10210 10210 MISCELLANEOUS EXPENSE 246 116 130 1447405 1061504 115778 270123 922559 1057571 785721 746834 560710 836168 79780 87588 22368 22892 28942 17504 6071 11438 2465 2465 2379674 2764956 33519 45954 547898 451894 581417 497848 X 1436159 1672666 362098 594442 1798257 2267108 2379674 2764956 468851 X false true X true false X 584425 780659 1609663 2011406 1915121 6901274 584425 780659 1609663 2011406 1915121 6901274 931942 5969332 3820 1075 622 513 711 6741 6908015 424 0.86410 0.66160 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 28942 17504 11438 11438 X 2061012 144756 144756 1916256 1916256 1592161 144756 144756 1447405 1447405 SCHEDULE D, PAGE 3, PART X THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATIONS POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2015 OR 2014. true EUROPE GRANTS RESEARCH 35000 35000 35000 RESEARCH 15000 WIRE TRANSFER RESEARCH 10000 WIRE TRANSFER RESEARCH 10000 WIRE TRANSFER 3 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 35,000 0 SCHEDULE F, PAGE 5, PART V 15,000 WAS AWARDED TO THE EUROPEAN SOCIETY OF MEDICAL ONCOLOGY IN SWITZERLAND AS SUPPORT FOR A PROFESSIONAL MEETING ON A CONSENSUS APPROACH TO CHORDOMA AND A CHORDOMA COMMUNITY CONFERENCE. 10,000 WAS AWARDED TO THE ROYAL NATIONAL ORTHOPAEDICS HOSPITAL AS AN UNRESTRICTED PRIZE TO BE USED BY DR. ADRIENNE FLANAGAN FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 10,000 WAS AWARDED TO THE MEDICAL UNIVERSITY OF GRAZ IN AUSTRIA AS AN UNRESTRICTED PRIZE TO BE USED BY DR. BEATE RINNER FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. true MEMORIAL SLOAN KETTERING CANCER CTR 1275 YORK AVENUE NEW YORK NY 10065 131924236 501C3 100000 RESEARCH GRANT MASSACHUSETTS GEN HOSPITAL 100 BLOSSOM CT JACKSON 1115 BOSTON MA 02114 041564655 501C3 56336 RESEARCH GRANT DUKE UNIVERSITY MEDICAL CTR 615 DOUGLAS STREET NO 700 DURHAM NC 27705 562070036 501C3 49500 RESEARCH GRANT JOHNS HOPKINS UNIVERSITY SCH OF MED 733 N BROADWAY STE 117 BALTIMORE MD 21205 900329755 501C3 30000 RESEARCH GRANT THE BROAD INSTITUTE 415 MAIN STREET CAMBRIDGE MA 02142 263428781 501C3 191783 RESEARCH GRANT 5 SCHEDULE I, PAGE 1, PART I, LINE 2 MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SMITH ANDERSON LLP FORMER BD DIR. 49911 IN-KIND LEGAL SVCS false DEVELOPMENTAL ASSOCIATES BOARD DIRECTOR 2625 EMPLOYEE RECRUITMENT false ANDREW SCHOELKOPF BOARD DIRECTOR 10100 CONTRIBUTION false CHANDRA SEN BOARD DIRECTOR 15000 CONTRIBUTION false HANS KEULEN FORMER BD DIR. 500 CONTRIBUTION false HEATHER LEE FORMER BD DIR. 11500 CONTRIBUTION false JOEL BECKMAN BOARD DIRECTOR 130100 CONTRIBUTION false KERRY SHAD BOARD DIRECTOR 10000 CONTRIBUTION false JOSH SOMMER OFFICER 1200 CONTRIBUTION false SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A FORMER BOARD MEMBER OF THE FOUNDATION, IS ALSO A PARTNER IN THE LAW FIRM SMITH ANDERSON, LLP. JOHN IS NOT LISTED ON PART VII OF THE FORM 990 AS HIS BOARD TERM ENDED APRIL 30, 2015. THE FOUNDATION USED THE SERVICES OF DEVELOPMENTAL ASSOCIATES, AN EMPLOYMENT RECRUITING COMPANY, FOR THE PURPOSE OF HIRING A MARKETING AND COMMUNICATIONS MANAGER. HEATHER LEE, A FORMER BOARD MEMBER OF THE FOUNDATION, IS ALSO A PARTNER OF THE DEVELOPMENTAL ASSOCIATES. HEATHER IS NOT LISTED ON PART VII FOR THE FORM 990 AS HER BOARD TERM ENDED NOVEMBER 30, 2015. THE FOUNDATIONS' BOARD MEMBERS AND FORMER BOARD MEMBERS PROVIDED CONTRIBUTIONS TOTALING 178,400 IN 2015. THE FUNDS ARE TREATED THE SAME AS A PLEDGE OR CONTRIBUTION FROM AN UNRELATED OR UNINTERESTED PARTY. HANS KEULEN IS NOT LISTED ON PART VII OF THE FORM 990 AS HIS BOARD TERM ENDED OCTOBER 29, 2015. FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION ANNUALLY SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS, DISCLOSURE EXPLANATION, ARTICLES OF INCORPORATION, BY-LAWS, POLICIES AND PROCEDURES MANUAL, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING POLICIES, ANNUAL AUDITS AND 990'S ARE ON FILE IN THE FINANCE OFFICE, AVAILABLE ON THE FOUNDATION'S WEBSITE AND AVAILABLE TO THE PUBLIC UPON REQUEST.