LONE STAR CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- LONE STAR CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION (EIN 76-0661966)
- Tax period
- 2024-01-01 to 2024-12-31
- Filed
- 2025-11-17
- IRS object ID
- 202523219349327237
- Schema version
- 2024v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-11-17T21:50:03-05:00 | ReturnTs |
| Tax Period End | 2024-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 464265129 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CASTLE & COMPANY CPAS PLLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7887 SAN FELIPE ST STE 122 | AddressLine1Txt |
| City | HOUSTON | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 770631600 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 760661966 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LONE STAR BLEEDING DISORDERS | BusinessNameLine1Txt |
| Business Name Line2 | FOUNDATION | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | LONE | BusinessNameControlTxt |
| Phone | 7136866100 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 5600 NW CENTRAL DR STE 140 | AddressLine1Txt |
| City | HOUSTON | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 77092 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JENNIFER FARNELL | PersonNm |
| Person Title | TREASURER | PersonTitleTxt |
| Phone | 7136866100 | PhoneNum |
| Signature | 2025-11-17 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (true) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | DAVID W CASTLE | PreparerPersonNm |
| PTIN | P00542980 | PTIN |
| Phone | 7136299770 | PhoneNum |
| Preparation | 2025-11-17 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | RAYMOND STANHOPE | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | SAME AS ABOVE | AddressLine1Txt |
| City | HOUSTON | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 77092 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $846,151 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.LONESTARBLEEDINGDISORDERS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1985 | FormationYr |
| Legal Domicile State | TX | LegalDomicileStateCd |
| Activity Or Mission | DEDICATED TO IMPROVING THE QUALIFY OF LIFE FOR SOUTH TEXANS AFFECTED BY RARE BLEEDING DISORDERS THROUGH EDUCATION, ADVOCACY FOR HEALTHCARE ACCESS, RESEARCH SUPPORT FOR BETTER TREATMENTS AND A CURE, AND PUBLIC AWARENESS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 10 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 10 | VotingMembersIndependentCnt |
| Total Employee | 3 | TotalEmployeeCnt |
| Total Volunteers | 25 | TotalVolunteersCnt |
| Total Gross UBI | $8,708 | TotalGrossUBIAmt |
| PY Contributions Grants | $902,944 | PYContributionsGrantsAmt |
| CY Contributions Grants | $830,977 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $20,437 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $15,174 | CYProgramServiceRevenueAmt |
| CY Investment Income | $0 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$39,019 | PYOtherRevenueAmt |
| CY Other Revenue | -$26,696 | CYOtherRevenueAmt |
| PY Total Revenue | $884,362 | PYTotalRevenueAmt |
| CY Total Revenue | $819,455 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $54,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $46,840 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $143,643 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $154,565 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $1,255 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $545,889 | PYOtherExpensesAmt |
| CY Other Expenses | $485,794 | CYOtherExpensesAmt |
| PY Total Expenses | $743,532 | PYTotalExpensesAmt |
| CY Total Expenses | $687,199 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $140,830 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $132,256 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $1,454,616 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,586,872 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $0 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,454,616 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,586,872 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | SEE SCHEDULE O | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $598,011 | ExpenseAmt |
| Grant | $46,840 | GrantAmt |
| Revenue | $15,174 | RevenueAmt |
| Desc | EDUCATION AND TRAINING: LSBDF AIDED AND PROMOTED THE EDUCATION OF INDIVIDUALS WITH INHERITED BLEEDING DISORDERS, THEIR FAMILIES, THE GENERAL PUBLIC, AND THE MEDICAL/SCIENTIFIC COMMUNITY REGARDING ALL ASPECTS OF INHERITED BLEEDING DISORDERS, RELATED COMPLICATIONS, AND TREATMENTS. (CONTINUED SCHEDULE O) | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $17,532 | ExpenseAmt |
| Desc | COMMUNITY NEEDS: LSBDF PROMOTED ACCESS TO HIGH QUALITY, SAFE THERAPEUTIC MATERIALS CRUCIAL IN THE TREATMENT OF INHERITED BLEEDING DISORDERS, AND ENCOURAGED THE COMPREHENSIVE CARE INCLUDING MENTAL WELL-BEING OF PERSONS WITH A BLEEDING DISORDER. THROUGH THE HELPING HANDS PROGRAM, LSBDF ASSISTED OVER 50 FAMILIES IN CRISIS WHO WERE UNABLE TO PAY OR RECEIVE TREATMENT FOR THEIR MEDICAL CONDITION, OR HAD AN UNUSUAL STRAIN PLACED ON HOUSEHOLD FINANCES BECAUSE OF THEIR BLEEDING DISORER. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $615,543 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (true) | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | false | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (true) | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 5 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 3 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (true) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (true) | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 10 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 10 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MELISSA COMPTON | PersonNm |
| Phone | 7136866100 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 5600 NW CENTRAL DR STE 140 | AddressLine1Txt |
| City | HOUSTON | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 77092 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (12 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|
| MELISSA COMPTON | ||||||
| EXECUTIVE DI | 40.00 | Yes (X) | $67,477 | $0 | $0 | |
| ROSIE LAZANO | ||||||
| TRUSTEE | 2.00 | $0 | $0 | $0 | Yes (X) | |
| CELIA PATINO | ||||||
| TRUSTEE | 2.00 | $0 | $0 | $0 | Yes (X) | |
| LAURA PORTALES | ||||||
| TRUSTEE | 2.00 | $0 | $0 | $0 | Yes (X) | |
| TRINH NGUYEN | ||||||
| HTC REPRESEN | 2.00 | $0 | $0 | $0 | Yes (X) | |
| SABRINA FARINA | ||||||
| HTC REPRESEN | 2.00 | $0 | $0 | $0 | Yes (X) | |
| CAMDYN WALLIS | ||||||
| TEEN REPRESE | 2.00 | $0 | $0 | $0 | Yes (X) | |
| RAYMOND STANHOPE | ||||||
| PRESIDENT | 4.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| ALLISON POHL | ||||||
| 1ST VICE PRE | 3.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| LAURA PORTALES | ||||||
| 2ND VICE PRE | 3.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| AMANDA WOLGAMOTT | ||||||
| SECRETARY | 3.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| JENNIFER FARNELL | ||||||
| TREASURER | 3.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $67,477 | TotalReportableCompFromOrgAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $76,685 | FundraisingAmt |
| All Other Contributions | $754,292 | AllOtherContributionsAmt |
| Total Contributions | $830,977 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|---|
| NEWSLETTER/ADVERTISING | 611710 | $8,708 | $8,708 | |
| EDUCATION CONFERENCE | 541800 | $6,466 | $6,466 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $15,174 | TotalProgramServiceRevenueAmt |
| Contri Rpt Fundraising Event | $76,685 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $26,696 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$26,696 | TotalRevenueColumnAmt |
| Exclusion | -$26,696 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $819,455 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $6,466 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $8,708 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$26,696 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,340 | TotalAmt |
| Program Services | $34,340 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,500 | TotalAmt |
| Program Services | $12,500 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $67,477 | TotalAmt |
| Program Services | $33,738 | ProgramServicesAmt |
| Management And General | $33,739 | ManagementAndGeneralAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $75,427 | TotalAmt |
| Program Services | $75,427 | ProgramServicesAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,661 | TotalAmt |
| Program Services | $9,080 | ProgramServicesAmt |
| Management And General | $2,581 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,205 | TotalAmt |
| Management And General | $3,205 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,690 | TotalAmt |
| Program Services | $1,690 | ProgramServicesAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,396 | TotalAmt |
| Program Services | $5,396 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,432 | TotalAmt |
| Program Services | $13,237 | ProgramServicesAmt |
| Management And General | $1,195 | ManagementAndGeneralAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,015 | TotalAmt |
| Management And General | $13,015 | ManagementAndGeneralAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,239 | TotalAmt |
| Program Services | $49,239 | ProgramServicesAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,059 | TotalAmt |
| Management And General | $3,059 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,902 | TotalAmt |
| Program Services | $262 | ProgramServicesAmt |
| Management And General | $4,640 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|
| FACILITY COSTS FOR EVENTS | $250,431 | $250,431 | |
| CHILDCARE AT EVENTS | $33,792 | $33,792 | |
| ENTERTAINMENT AT EVENTS | $23,341 | $23,341 | |
| COMPUTER APPLICATIONS | $18,822 | $17,638 | $1,184 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $64,470 | TotalAmt |
| Program Services | $55,432 | ProgramServicesAmt |
| Management And General | $7,783 | ManagementAndGeneralAmt |
| Fundraising | $1,255 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $687,199 | TotalAmt |
| Program Services | $615,543 | ProgramServicesAmt |
| Management And General | $70,401 | ManagementAndGeneralAmt |
| Fundraising | $1,255 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,454,616 | BOYAmt |
| EOY | $1,586,872 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $4,764 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $4,764 | LandBldgEquipAccumDeprecAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,454,616 | BOYAmt |
| EOY | $1,586,872 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Org Does Not Follow FASB117 | Yes (X) | OrgDoesNotFollowFASB117Ind |
Rtn Earn Endowment Incm Oth Fnds RtnEarnEndowmentIncmOthFndsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,454,616 | BOYAmt |
| EOY | $1,586,872 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,454,616 | BOYAmt |
| EOY | $1,586,872 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,454,616 | BOYAmt |
| EOY | $1,586,872 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $132,256 | ReconcilationRevenueExpnssAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | false | FSAuditedInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $306,890 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $733,254 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $670,041 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $892,947 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $830,977 | CurrentTaxYearAmt |
| Total | $3,434,109 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $306,890 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $733,254 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $670,041 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $892,947 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $830,977 | CurrentTaxYearAmt |
| Total | $3,434,109 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $1,729,826 | SubstantialContributorsTotAmt |
| Public Support Total170 | $1,704,283 | PublicSupportTotal170Amt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $25,500 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $11,000 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,158 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $573 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $708 | CurrentTaxYearAmt |
| Total | $38,939 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $3,473,048 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $31,799 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.49070 | PublicSupportCY170Pct |
| Public Support PY170 | 0.47320 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II, LINE 10 | FormAndLineReferenceDesc |
| Explanation | OTHER INCOME 38,939 | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (true) | VolunteersInd |
| Paid Staff Or Management | Yes (true) | PaidStaffOrManagementInd |
| Media Advertisements | false | MediaAdvertisementsInd |
| Mailings Members | false | MailingsMembersInd |
| Publications Or Broadcast | false | PublicationsOrBroadcastInd |
| Grants Other Organizations | false | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (true) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $5,148 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | Yes (true) | RalliesDemonstrationsInd |
| Rallies Demonstrations | $5,148 | RalliesDemonstrationsAmt |
| Other Activities | false | OtherActivitiesInd |
| Total Lobbying Expenditures | $10,296 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | false | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE C, PART II-B, LINE 1 | FormAndLineReferenceDesc |
| Explanation | IN COLLABORATION WITH FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, AND INDUSTRY AND ALLIED ORGANIZATIONS, LSBDF IS AN ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PERSONS WITH BLEEDING DISORDERS. ANNUALLY IN MARCH, LSBDF PARTICIPATES IN WASHINGTON DAYS, A GRASSROOTS EVENT ORGANIZED BY THE NATIONAL HEMOPHILIA FOUNDATION THAT BRINGS PATIENTS TO WASHINGTON DC TO MEET WITH MEMBERS OF CONGRESS. | ExplanationTxt |
Schedule D IRS990ScheduleD
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $4,764 | OtherCostOrOtherBasisAmt |
| Depreciation | $4,764 | DepreciationAmt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | HEROES IN HILLS | Event1Nm |
| Gross Receipts Event1 | $16,292 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $16,292 | CharitableContriEvent1Amt |
| Rent Facility Costs Event1 | $4,834 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $1,471 | OtherDirectExpensesEvent1Amt |
| Event2 | UNITE WALKS | Event2Nm |
| Gross Receipts Event2 | $60,393 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $60,393 | CharitableContriEvent2Amt |
| Rent Facility Costs Event2 | $6,212 | RentFacilityCostsEvent2Amt |
| Entertainment Event2 | $5,734 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $8,445 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 1 | OtherEventsTotalCnt |
| Gross Receipts Total | $76,685 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $76,685 | CharitableContributionsTotAmt |
| Rent Fclty Costs Total Events | $11,046 | RentFcltyCostsTotalEventsAmt |
| Entertainment Total Events | $5,734 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $9,916 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $26,696 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$26,696 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt |
|---|---|---|---|---|---|---|
| NATIONAL BLEEDING DISORDERS FOUNDAT | ||||||
| 1230 AVE OF THE AMERICAS 16TH FL | NEW YORK | NY | 10020 | 135641857 | C3 | $10,000 |
| TEXAS BLEEDING DISORDERS CAMP FOUND | ||||||
| 20212 CHAMPION FOREST DR ST 700312 | SPRING | TX | 77379 | 462115460 | C3 | $17,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 2 | Total501c3OrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | SCHOLARSHIPS | GrantTypeTxt |
| Recipient | 5 | RecipientCnt |
| Cash Grant | $12,500 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE I, PAGE 1, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | LSBDF REVIEWS THE MISSION OF POTENTIAL GRANTEES BEFORE A BOARD VOTE TO APPROVE OR REJECT FUNDING IN CASES WHERE THE GRANTEE'S MISSION AND CURRENT GOALS ALIGN WITH LSBDF'S PURPOSE. SELECTION CRITERIA AND ELIGIBILITY RECORDS ARE MAINTAINED IN THE GOVERNING BOARD'S MINUTES. LSBDF MONITORS THE USE OF GRANTS BY REVIEWING PROJECT UPDATES AND FINANCIAL REPORTS RECEIVED ANNUALLY OR SEMI-ANNUALLY FROM GRANTEE ORGANIZATIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART III | MISSION AND VISION OF THE LONE STAR BLEEDING DISORDERS FOUNDATION (LSBDF): DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR SOUTH TEXANS AFFECTED BY RARE BLEEDING DISORDERS THROUGH EDUCATION, ADVOCACY EFFORTS TO ENSURE ACCESS TO CARE, SUPPORTING RESEARCH FOR BETTER TREATMENTS AND A CURE, AND RAISING PUBLIC AWARENESS. BASED IN HOUSTON AND SERVING THE COMMUNITIES OF MCALLEN, CORPUS CHRISTI, SAN ANTONIO, AUSTIN, AND EL PASO, LSBDF'S VISION IS TO ENSURE THAT THE NEEDS OF EVERY SOUTH TEXAN LIVING WITH A BLEEDING DISORDER ARE MET FOR SUCCESSFUL MANAGEMENT OF THE CONDITION. THE PROGRAM SERVICE PLATFORM PROVIDES EDUCATION, CONNECTIONS THROUGH PEER BASED SUPPORT GROUPS, HEALTHCARE ADVOCACY, AND FINANCIAL ASSISTANCE FOR EMERGENCIES AND EDUCATIONAL SCHOLARSHIPS. FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: THE TEXAS BLEEDING DISORDERS CONFERENCE (TBDC) WAS A JOINT EFFORT BETWEEN LSBDF AND TEXAS CENTRAL BLEEDING DISORDERS BRINGING NEARLY 1000 PEOPLE FROM ALL OVER THE STATE OF TEXAS TOGETHER FOR A WEEKEND OF EDUCATION, NETWORKING, AND FUN. ACTIVITIES WERE PLANNED FOR THE WHOLE FAMILY, CHILDCARE WAS PROVIDED, AND SPANISH ACCOMODATIONS WERE MADE FOR BILINGUAL PARTICIPANTS. SESSIONS WERE OFFERED TO MAKE EVERY STEP OF LIFE WITH A BLEEDING DISORDER BETTER. LSBDF PROVIDED CAMP SPONSORSHIPS FOR CAMPERS AT CAMP AILIHPOMEH, OFFERING A UNIQUE EXPERIENCE WHERE BOYS THROUGHOUT TEXAS MET AND BUILT STRONG RELATIONSHIPS WITH THEIR PEERS AFFECTED BY BLEEDING DISORDERS. CAMP AILIHPOMEH (HEMOPHILIA SPELLED BACKWARDS) BEGAN IN THE SUMMER OF 1979 AS THE FIRST OF ITS KIND FOR CHILDREN TRADITIONALLY EXCLUDED FROM SUMMER CAMP PROGRAMS. EACH SUMMER, THE CAMP SERVES HUNDREDS OF KIDS. IN THE SPRING AND SUMMER MONTHS, LSBDF HOSTED REGIONAL FAMILY EDUCATION DAYS WHERE FAMILIES AFFECTED BY BLEEDING DISORDERS WERE INTRODUCED TO ONE ANOTHER FOR NETWORKING AND EDUCATION. INDUSTRY PARTNERS ALSO ATTENDED THESE EVENTS OFFERING THE LATEST INFORMATION ABOUT HEALTH AND SERVICES TO THE PARTICIPANTS. UNITE WALKS PROVIDED EDUCATION AND AWARENESS OPPORTUNITIES. IN 2008, LSBDF WAS PROUDLY ONE OF THE FIRST 5 INAUGURAL SITES OF THE NATIONAL BLEEDING DISORDER FOUNDATION'S HEMOPHILIA WALK PROGRAM. STARTING LOCALLY IN HOUSTON FOR THE INAUGURAL WALK, LSBDF'S UNITE WALK EVENTS HAVE EXPANDED TO MULTIPLE CITIES, HOSTING OVER 500 WALKERS EACH YEAR. LSBDF SUPPORTED YOUNG ADULTS DIRECTLY AFFECTED WITH AN INHERITED BLEEDING DISORDER, OR AN IMMEDIATE FAMILY MEMBER OF SOMEONE WITH A BLEEDING DISORDER, PURSUING POST-HIGH SCHOOL EDUCATION WITH ACADEMIC SCHOLARSHIPS. IN 2024, 5 SCHOLARSHIPS WERE AWARDED TO STUDENTS ATTENDING OKLAHOMA STATE UNIVERSITY, SOUTHWESTERN UNIVERSITY, TEXAS A&M UNIVERSITY, UNIVERSITY OF HOUSTON, AND UNIVERSITY OF TEXAS. THROUGH OUTREACH EFFORTS IN 2024, LSBDF WELCOMED NEWLY DIAGNOSED FAMILIES WITH WELCOME BAGS AND HOSTED ENGLISH AND SPANISH EDUCATIONAL DINNERS THAT PROVIDED BACK TO SCHOOL TIPS FOR PARENTS AND STUDENTS, BEST PRACTICES FOR SCHOOL NURSES AND HEALTHCARE PROVIDERS FOCUSED ON PATIENT DIAGNOSIS AND TREATMENT, AND OTHER EDUCATIONAL MATERIALS. TO REACH SPECIFIC SEGMENTS OF THE BLEEDING DISORDERS COMMUNITY, INCLUDING MEN, WOMEN, TEENS, AND FAMILIES, RETREATS AND WINTER HOLIDAY EVENTS WERE HOSTED IN HOUSTON, THE VALLEY, AND THE HILL COUNTRY. LSBDF ADVOCATED AT THE FEDERAL AND STATE LEVEL ON ISSUES IMPORTANT TO TEXAS' BLEEDING DISORDERS COMMUNITY, INCLUDING PARTICIPATION IN THE NATIONAL BLEEDING DISORDER FOUNDATION'S ANNUAL WASHINGTON DAYS BRINGING PATIENTS AND THEIR FAMILIES TO WASHINGTON DC TO MEET WITH LAWMAKERS WHO SHAPE NATIONAL HEALTHCARE POLICY. LSBDF PUSHED FOR AWARENESS OF RARE DISEASES IN CONNECTION WITH THE NATIONAL RED TIE CAMPAIGN. |
| FORM 990, PAGE 6, PART VI, LINE 11B | THE 990 IS EXAMINED BY THE TREASURER AND GOVERNING BOARD. |
| FORM 990, PAGE 6, PART VI, LINE 12C | DISCLOSURES ARE ASKED FOR AT THE BEGINNING OF EVERY BOARD MEETING. ANY CONFLICT OF INTEREST RESULTS IN IMMEDIATE LOSS OF VOTING PRIVILEGES. |
| FORM 990, PAGE 6, PART VI, LINE 15A | EACH YEAR, A SPECIAL COMPENSATION COMMITTEE COMPRISED OF COMMUNITY MEMBERS AND BOARD OF DIRECTORS INDEPENDENT OF THE EXECUTIVE DIRECTOR(ED), REVIEWS AND ESTABLISHES COMPENSATION AND CRITICAL QUALIFICATIONS FOR THE ED POSITION, IN ADDITION TO BENEFIT PACKAGES FOR OTHER EMPLOYEES. THE COMMITTEE REVIEWS THE CURRENT COMPENSATION PACKAGE AGAINST THOSE OF OGRANIZATIONS OF SIMILAR SIZE AND OPERATING IN THE SAME TERRITORIAL JURISDICTION. THE COMMITTEE'S DELIBERATIONS ARE INCLUDED WITH EXECUTIVE SESSION MINUTES AND REQUIRE MAJORITY VOTE FOR APPROVAL. |
| FORM 990, PAGE 6, PART VI, LINE 15B | OTHER THAN EXECUTIVE DIRECTOR, OFFICERS ARE NOT COMPENSATED. BASED ON ANNUAL COMPENSATION, THE ORGANIZATION DOES NOT HAVE ANY EMPLOYEES MEETING KEY EMPLOYEE STANDARDS. |
| FORM 990, PAGE 6, PART VI, LINE 19 | THE GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST AT THE ADDRESS AT WHICH THE BOOKS AND RECORDS OF THE ORGANIZATION ARE KEPT. |
| FORM 990, PART XII | DURING 2024, THE BOARD OF DIRECTORS ESTABLISHED AN AUDIT COMMITTEE, COMPRISED OF THE TREASURER, PRESIDENT, AND TWO PERSONS NOT ON THE BOARD, TO ASSUME RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR. THE AUDIT COMMITTEE REPORTS TO THE FULL BOARD OF DIRECTORS DURING THE AUDIT AND AT COMPLETION. |
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