2025-11-17T21:50:03-05:00 2024-12-31 464265129 CASTLE & COMPANY CPAS PLLC 7887 SAN FELIPE ST STE 122 HOUSTON TX 770631600 990 2024-01-01 760661966 LONE STAR BLEEDING DISORDERS FOUNDATION LONE 7136866100 5600 NW CENTRAL DR STE 140 HOUSTON TX 77092 JENNIFER FARNELL TREASURER 7136866100 2025-11-17 true true DAVID W CASTLE P00542980 7136299770 2025-11-17 2024 2025-03-06 01:10:19Z RAYMOND STANHOPE SAME AS ABOVE HOUSTON TX 77092 846151 false X WWW.LONESTARBLEEDINGDISORDERS.ORG X 1985 TX DEDICATED TO IMPROVING THE QUALIFY OF LIFE FOR SOUTH TEXANS AFFECTED BY RARE BLEEDING DISORDERS THROUGH EDUCATION, ADVOCACY FOR HEALTHCARE ACCESS, RESEARCH SUPPORT FOR BETTER TREATMENTS AND A CURE, AND PUBLIC AWARENESS. 10 10 3 25 8708 902944 830977 20437 15174 0 -39019 -26696 884362 819455 54000 46840 0 143643 154565 0 1255 545889 485794 743532 687199 140830 132256 1454616 1586872 0 1454616 1586872 X SEE SCHEDULE O false false 598011 46840 15174 EDUCATION AND TRAINING: LSBDF AIDED AND PROMOTED THE EDUCATION OF INDIVIDUALS WITH INHERITED BLEEDING DISORDERS, THEIR FAMILIES, THE GENERAL PUBLIC, AND THE MEDICAL/SCIENTIFIC COMMUNITY REGARDING ALL ASPECTS OF INHERITED BLEEDING DISORDERS, RELATED COMPLICATIONS, AND TREATMENTS. (CONTINUED SCHEDULE O) 17532 COMMUNITY NEEDS: LSBDF PROMOTED ACCESS TO HIGH QUALITY, SAFE THERAPEUTIC MATERIALS CRUCIAL IN THE TREATMENT OF INHERITED BLEEDING DISORDERS, AND ENCOURAGED THE COMPREHENSIVE CARE INCLUDING MENTAL WELL-BEING OF PERSONS WITH A BLEEDING DISORDER. THROUGH THE HELPING HANDS PROGRAM, LSBDF ASSISTED OVER 50 FAMILIES IN CRISIS WHO WERE UNABLE TO PAY OR RECEIVE TREATMENT FOR THEIR MEDICAL CONDITION, OR HAD AN UNUSUAL STRAIN PLACED ON HOUSEHOLD FINANCES BECAUSE OF THEIR BLEEDING DISORER. 615543 true true false true false false false false false false true false false false false false false false false false false false false false true false false true true false false false false false false false false false false false false false false false false false false true 5 0 3 true true true false false false false false false false false false false false X 10 10 false false false false false false false true true false true true true true true true true true true true false X X MELISSA COMPTON 7136866100 5600 NW CENTRAL DR STE 140 HOUSTON TX 77092 MELISSA COMPTON EXECUTIVE DI 40.00 X 67477 0 0 ROSIE LAZANO TRUSTEE 2.00 X 0 0 0 CELIA PATINO TRUSTEE 2.00 X 0 0 0 LAURA PORTALES TRUSTEE 2.00 X 0 0 0 TRINH NGUYEN HTC REPRESEN 2.00 X 0 0 0 SABRINA FARINA HTC REPRESEN 2.00 X 0 0 0 CAMDYN WALLIS TEEN REPRESE 2.00 X 0 0 0 RAYMOND STANHOPE PRESIDENT 4.00 X X 0 0 0 ALLISON POHL 1ST VICE PRE 3.00 X X 0 0 0 LAURA PORTALES 2ND VICE PRE 3.00 X X 0 0 0 AMANDA WOLGAMOTT SECRETARY 3.00 X X 0 0 0 JENNIFER FARNELL TREASURER 3.00 X X 0 0 0 67477 false false false 76685 754292 830977 NEWSLETTER/ADVERTISING 611710 8708 8708 EDUCATION CONFERENCE 541800 6466 6466 15174 76685 26696 -26696 -26696 819455 6466 8708 -26696 34340 34340 12500 12500 67477 33738 33739 75427 75427 11661 9080 2581 3205 3205 1690 1690 5396 5396 14432 13237 1195 13015 13015 49239 49239 3059 3059 4902 262 4640 FACILITY COSTS FOR EVENTS 250431 250431 CHILDCARE AT EVENTS 33792 33792 ENTERTAINMENT AT EVENTS 23341 23341 COMPUTER APPLICATIONS 18822 17638 1184 64470 55432 7783 1255 687199 615543 70401 1255 1454616 1586872 4764 4764 1454616 1586872 0 0 X 1454616 1586872 1454616 1586872 1454616 1586872 132256 X X false false false X 306890 733254 670041 892947 830977 3434109 306890 733254 670041 892947 830977 3434109 1729826 1704283 25500 11000 1158 573 708 38939 3473048 31799 0.49070 0.47320 X PART II, LINE 10 OTHER INCOME 38,939 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false false false false true 5148 true 5148 false 10296 false SCHEDULE C, PART II-B, LINE 1 IN COLLABORATION WITH FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, AND INDUSTRY AND ALLIED ORGANIZATIONS, LSBDF IS AN ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PERSONS WITH BLEEDING DISORDERS. ANNUALLY IN MARCH, LSBDF PARTICIPATES IN WASHINGTON DAYS, A GRASSROOTS EVENT ORGANIZED BY THE NATIONAL HEMOPHILIA FOUNDATION THAT BRINGS PATIENTS TO WASHINGTON DC TO MEET WITH MEMBERS OF CONGRESS. 4764 4764 HEROES IN HILLS 16292 16292 4834 1471 UNITE WALKS 60393 60393 6212 5734 8445 1 76685 76685 11046 5734 9916 26696 -26696 true NATIONAL BLEEDING DISORDERS FOUNDAT 1230 AVE OF THE AMERICAS 16TH FL NEW YORK NY 10020 135641857 C3 10000 TEXAS BLEEDING DISORDERS CAMP FOUND 20212 CHAMPION FOREST DR ST 700312 SPRING TX 77379 462115460 C3 17500 2 SCHOLARSHIPS 5 12500 SCHEDULE I, PAGE 1, PART I, LINE 2 LSBDF REVIEWS THE MISSION OF POTENTIAL GRANTEES BEFORE A BOARD VOTE TO APPROVE OR REJECT FUNDING IN CASES WHERE THE GRANTEE'S MISSION AND CURRENT GOALS ALIGN WITH LSBDF'S PURPOSE. SELECTION CRITERIA AND ELIGIBILITY RECORDS ARE MAINTAINED IN THE GOVERNING BOARD'S MINUTES. LSBDF MONITORS THE USE OF GRANTS BY REVIEWING PROJECT UPDATES AND FINANCIAL REPORTS RECEIVED ANNUALLY OR SEMI-ANNUALLY FROM GRANTEE ORGANIZATIONS. FORM 990, PART III MISSION AND VISION OF THE LONE STAR BLEEDING DISORDERS FOUNDATION (LSBDF): DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR SOUTH TEXANS AFFECTED BY RARE BLEEDING DISORDERS THROUGH EDUCATION, ADVOCACY EFFORTS TO ENSURE ACCESS TO CARE, SUPPORTING RESEARCH FOR BETTER TREATMENTS AND A CURE, AND RAISING PUBLIC AWARENESS. BASED IN HOUSTON AND SERVING THE COMMUNITIES OF MCALLEN, CORPUS CHRISTI, SAN ANTONIO, AUSTIN, AND EL PASO, LSBDF'S VISION IS TO ENSURE THAT THE NEEDS OF EVERY SOUTH TEXAN LIVING WITH A BLEEDING DISORDER ARE MET FOR SUCCESSFUL MANAGEMENT OF THE CONDITION. THE PROGRAM SERVICE PLATFORM PROVIDES EDUCATION, CONNECTIONS THROUGH PEER BASED SUPPORT GROUPS, HEALTHCARE ADVOCACY, AND FINANCIAL ASSISTANCE FOR EMERGENCIES AND EDUCATIONAL SCHOLARSHIPS. FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: THE TEXAS BLEEDING DISORDERS CONFERENCE (TBDC) WAS A JOINT EFFORT BETWEEN LSBDF AND TEXAS CENTRAL BLEEDING DISORDERS BRINGING NEARLY 1000 PEOPLE FROM ALL OVER THE STATE OF TEXAS TOGETHER FOR A WEEKEND OF EDUCATION, NETWORKING, AND FUN. ACTIVITIES WERE PLANNED FOR THE WHOLE FAMILY, CHILDCARE WAS PROVIDED, AND SPANISH ACCOMODATIONS WERE MADE FOR BILINGUAL PARTICIPANTS. SESSIONS WERE OFFERED TO MAKE EVERY STEP OF LIFE WITH A BLEEDING DISORDER BETTER. LSBDF PROVIDED CAMP SPONSORSHIPS FOR CAMPERS AT CAMP AILIHPOMEH, OFFERING A UNIQUE EXPERIENCE WHERE BOYS THROUGHOUT TEXAS MET AND BUILT STRONG RELATIONSHIPS WITH THEIR PEERS AFFECTED BY BLEEDING DISORDERS. CAMP AILIHPOMEH (HEMOPHILIA SPELLED BACKWARDS) BEGAN IN THE SUMMER OF 1979 AS THE FIRST OF ITS KIND FOR CHILDREN TRADITIONALLY EXCLUDED FROM SUMMER CAMP PROGRAMS. EACH SUMMER, THE CAMP SERVES HUNDREDS OF KIDS. IN THE SPRING AND SUMMER MONTHS, LSBDF HOSTED REGIONAL FAMILY EDUCATION DAYS WHERE FAMILIES AFFECTED BY BLEEDING DISORDERS WERE INTRODUCED TO ONE ANOTHER FOR NETWORKING AND EDUCATION. INDUSTRY PARTNERS ALSO ATTENDED THESE EVENTS OFFERING THE LATEST INFORMATION ABOUT HEALTH AND SERVICES TO THE PARTICIPANTS. UNITE WALKS PROVIDED EDUCATION AND AWARENESS OPPORTUNITIES. IN 2008, LSBDF WAS PROUDLY ONE OF THE FIRST 5 INAUGURAL SITES OF THE NATIONAL BLEEDING DISORDER FOUNDATION'S HEMOPHILIA WALK PROGRAM. STARTING LOCALLY IN HOUSTON FOR THE INAUGURAL WALK, LSBDF'S UNITE WALK EVENTS HAVE EXPANDED TO MULTIPLE CITIES, HOSTING OVER 500 WALKERS EACH YEAR. LSBDF SUPPORTED YOUNG ADULTS DIRECTLY AFFECTED WITH AN INHERITED BLEEDING DISORDER, OR AN IMMEDIATE FAMILY MEMBER OF SOMEONE WITH A BLEEDING DISORDER, PURSUING POST-HIGH SCHOOL EDUCATION WITH ACADEMIC SCHOLARSHIPS. IN 2024, 5 SCHOLARSHIPS WERE AWARDED TO STUDENTS ATTENDING OKLAHOMA STATE UNIVERSITY, SOUTHWESTERN UNIVERSITY, TEXAS A&M UNIVERSITY, UNIVERSITY OF HOUSTON, AND UNIVERSITY OF TEXAS. THROUGH OUTREACH EFFORTS IN 2024, LSBDF WELCOMED NEWLY DIAGNOSED FAMILIES WITH WELCOME BAGS AND HOSTED ENGLISH AND SPANISH EDUCATIONAL DINNERS THAT PROVIDED BACK TO SCHOOL TIPS FOR PARENTS AND STUDENTS, BEST PRACTICES FOR SCHOOL NURSES AND HEALTHCARE PROVIDERS FOCUSED ON PATIENT DIAGNOSIS AND TREATMENT, AND OTHER EDUCATIONAL MATERIALS. TO REACH SPECIFIC SEGMENTS OF THE BLEEDING DISORDERS COMMUNITY, INCLUDING MEN, WOMEN, TEENS, AND FAMILIES, RETREATS AND WINTER HOLIDAY EVENTS WERE HOSTED IN HOUSTON, THE VALLEY, AND THE HILL COUNTRY. LSBDF ADVOCATED AT THE FEDERAL AND STATE LEVEL ON ISSUES IMPORTANT TO TEXAS' BLEEDING DISORDERS COMMUNITY, INCLUDING PARTICIPATION IN THE NATIONAL BLEEDING DISORDER FOUNDATION'S ANNUAL WASHINGTON DAYS BRINGING PATIENTS AND THEIR FAMILIES TO WASHINGTON DC TO MEET WITH LAWMAKERS WHO SHAPE NATIONAL HEALTHCARE POLICY. LSBDF PUSHED FOR AWARENESS OF RARE DISEASES IN CONNECTION WITH THE NATIONAL RED TIE CAMPAIGN. FORM 990, PAGE 6, PART VI, LINE 11B THE 990 IS EXAMINED BY THE TREASURER AND GOVERNING BOARD. FORM 990, PAGE 6, PART VI, LINE 12C DISCLOSURES ARE ASKED FOR AT THE BEGINNING OF EVERY BOARD MEETING. ANY CONFLICT OF INTEREST RESULTS IN IMMEDIATE LOSS OF VOTING PRIVILEGES. FORM 990, PAGE 6, PART VI, LINE 15A EACH YEAR, A SPECIAL COMPENSATION COMMITTEE COMPRISED OF COMMUNITY MEMBERS AND BOARD OF DIRECTORS INDEPENDENT OF THE EXECUTIVE DIRECTOR(ED), REVIEWS AND ESTABLISHES COMPENSATION AND CRITICAL QUALIFICATIONS FOR THE ED POSITION, IN ADDITION TO BENEFIT PACKAGES FOR OTHER EMPLOYEES. THE COMMITTEE REVIEWS THE CURRENT COMPENSATION PACKAGE AGAINST THOSE OF OGRANIZATIONS OF SIMILAR SIZE AND OPERATING IN THE SAME TERRITORIAL JURISDICTION. THE COMMITTEE'S DELIBERATIONS ARE INCLUDED WITH EXECUTIVE SESSION MINUTES AND REQUIRE MAJORITY VOTE FOR APPROVAL. FORM 990, PAGE 6, PART VI, LINE 15B OTHER THAN EXECUTIVE DIRECTOR, OFFICERS ARE NOT COMPENSATED. BASED ON ANNUAL COMPENSATION, THE ORGANIZATION DOES NOT HAVE ANY EMPLOYEES MEETING KEY EMPLOYEE STANDARDS. FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST AT THE ADDRESS AT WHICH THE BOOKS AND RECORDS OF THE ORGANIZATION ARE KEPT. FORM 990, PART XII DURING 2024, THE BOARD OF DIRECTORS ESTABLISHED AN AUDIT COMMITTEE, COMPRISED OF THE TREASURER, PRESIDENT, AND TWO PERSONS NOT ON THE BOARD, TO ASSUME RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR. THE AUDIT COMMITTEE REPORTS TO THE FULL BOARD OF DIRECTORS DURING THE AUDIT AND AT COMPLETION.