RARE VILLAGE FOUNDATION: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- RARE VILLAGE FOUNDATION (EIN 83-4699994)
- Tax period
- 2024-01-01 to 2024-12-31
- Filed
- 2025-09-29
- IRS object ID
- 202532729349300638
- Schema version
- 2024v5.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-09-29T11:55:01-04:00 | ReturnTs |
| Tax Period End | 2024-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 742478664 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TAX BUSTERS INC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7310 REMCON CIR STE B | AddressLine1Txt |
| City | El Paso | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 79912 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 834699994 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RARE VILLAGE FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| In Care Of | % KASEY WOLLEBEN | InCareOfNm |
| Business Name Control | RARE | BusinessNameControlTxt |
| Phone | 2145700700 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6808 OLD GLORY CT | AddressLine1Txt |
| City | MCKINNEY | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 75071 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KASEY WOLLEBEN OFFICER | PersonNm |
| Person Title | PRESIDENT DIRECTOR | PersonTitleTxt |
| Phone | 2145700700 | PhoneNum |
| Signature | 2025-09-29 | SignatureDt |
| Discuss With Paid Preparer | false | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (true) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | KENNETH J CROUCHER JR | PreparerPersonNm |
| PTIN | P00316524 | PTIN |
| Phone | 9158338299 | PhoneNum |
| Preparation | 2025-09-29 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | KASEY WOLLEBEN OFFICER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6808 OLD GLORY CT | AddressLine1Txt |
| City | MCKINNEY | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 75071 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $3,496,194 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | HTTPS://RAREVILLAGE.ORG/ | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2019 | FormationYr |
| Legal Domicile State | TX | LegalDomicileStateCd |
| Activity Or Mission | TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES | ActivityOrMissionDesc |
| Voting Members Governing Body | 4 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 0 | VotingMembersIndependentCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| CY Contributions Grants | $3,496,019 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| CY Investment Income | $175 | CYInvestmentIncomeAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| CY Total Revenue | $3,496,194 | CYTotalRevenueAmt |
| CY Grants And Similar Paid | $3,015,227 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| CY Salaries Comp Emp Bnft Paid | $0 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $38,293 | CYTotalFundraisingExpenseAmt |
| CY Other Expenses | $132,739 | CYOtherExpensesAmt |
| CY Total Expenses | $3,147,966 | CYTotalExpensesAmt |
| CY Revenues Less Expenses | $348,228 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $1,681,476 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,029,704 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $0 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,681,476 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,029,704 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $3,039,652 | ExpenseAmt |
| Grant | $3,039,652 | GrantAmt |
| Revenue | $3,496,194 | RevenueAmt |
| Desc | DONATED MILLIONS DOLLARS TO RESEARCH INITIATIVES | Desc |
| Total Program Service Expenses | $3,039,652 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | false | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | false | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | false | TransactionWithControlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 0 | EmployeeCnt |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| DAF Excess Business Holdings | false | DAFExcessBusinessHoldingsInd |
| Taxable Distributions | false | TaxableDistributionsInd |
| Distribution To Donor | false | DistributionToDonorInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 4 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 0 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | GINA HANN OFFICER | PersonNm |
| Phone | 2145700700 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6808 OLD GLORY CT | AddressLine1Txt |
| City | MCKINNEY | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 75071 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (4 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| GINA HANN | ||||||
| VICE PRESIDENT SECRETARY DIRECTOR | 10.00 | 0.00 | Yes (X) | $0 | $0 | $0 |
| KASEY WOLLEBEN | ||||||
| PRESIDENT DIRECTOR | 10.00 | 0.00 | Yes (X) | $0 | $0 | $0 |
| AMY SOWELL | ||||||
| TREASURER DIRECTOR | 3.00 | 0.00 | Yes (X) | $0 | $0 | $0 |
| AMBER FREED | ||||||
| DIRECTOR | 3.00 | 0.00 | Yes (X) | $0 | $0 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $0 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 0 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $45,287 | FundraisingAmt |
| All Other Contributions | $3,450,732 | AllOtherContributionsAmt |
| Total Contributions | $3,496,019 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $175 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $175 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contri Rpt Fundraising Event | $45,287 | ContriRptFundraisingEventAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,496,194 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $175 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,015,227 | TotalAmt |
| Program Services | $3,015,227 | ProgramServicesAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,486 | TotalAmt |
| Management And General | $26,486 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,293 | TotalAmt |
| Fundraising | $38,293 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $19,050 | TotalAmt |
| Program Services | $9,049 | ProgramServicesAmt |
| Management And General | $10,001 | ManagementAndGeneralAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,512 | TotalAmt |
| Management And General | $25,512 | ManagementAndGeneralAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,376 | TotalAmt |
| Program Services | $15,376 | ProgramServicesAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|
| DUES AND SUBSCRIPTIONS | $5,170 | $5,170 |
| POSTAGE | $1,700 | $1,700 |
| BANK FEES | $793 | $793 |
| UTILITY | $359 | $359 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,147,966 | TotalAmt |
| Program Services | $3,039,652 | ProgramServicesAmt |
| Management And General | $70,021 | ManagementAndGeneralAmt |
| Fundraising | $38,293 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,681,476 | BOYAmt |
| EOY | $2,029,704 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,681,476 | BOYAmt |
| EOY | $2,029,704 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Org Does Not Follow FASB117 | Yes (X) | OrgDoesNotFollowFASB117Ind |
Cap Stk Tr Prin Current Funds CapStkTrPrinCurrentFundsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,681,476 | BOYAmt |
| EOY | $2,029,704 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,681,476 | BOYAmt |
| EOY | $2,029,704 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,681,476 | BOYAmt |
| EOY | $2,029,704 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $348,228 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | Yes (true) | AccountantCompileOrReviewInd |
Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| FS Audited | false | FSAuditedInd |
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $38,873 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,314,036 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,374,501 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,128,217 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,496,019 | CurrentTaxYearAmt |
| Total | $9,351,646 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $38,873 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,314,036 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,374,501 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,128,217 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,496,019 | CurrentTaxYearAmt |
| Total | $9,351,646 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $1,794,373 | SubstantialContributorsTotAmt |
| Public Support Total170 | $7,557,273 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $21 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $245 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,100 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $175 | CurrentTaxYearAmt |
| Total | $1,541 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $9,353,187 | TotalSupportAmt |
| Public Support CY170 | 0.80800 | PublicSupportCY170Pct |
| Public Support PY170 | 0.89030 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | TSHIRTS | Event1Nm |
| Gross Receipts Event1 | $45,287 | GrossReceiptsEvent1Amt |
| Gross Revenue Event1 | $45,287 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $38,293 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $45,287 | GrossReceiptsTotalAmt |
| Gross Revenue Total Events | $45,287 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $38,293 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $38,293 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $6,994 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (26 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line1ForeignAddress/AddressLine1Txt | CityForeignAddress/CityNm | Province Or StateForeignAddress/ProvinceOrStateNm | CountryForeignAddress/CountryCd | Foreign PostalForeignAddress/ForeignPostalCd | IRC SectionIRCSectionDesc |
|---|---|---|---|---|---|---|---|---|---|---|---|
| CANOPY LIFE SCIENCES | |||||||||||
| 4 MOUNTAIN VIEW TERRACE | DANBURY | CT | 06810 | $11,238 | RESEARCH | ||||||
| CHARLES RIVER DISCOVERY RESEARCH | |||||||||||
| 251 BALLARDVALE | Reading | MA | 01867 | $304,722 | RESEARCH | ||||||
| PERLARA PBC | |||||||||||
| 6000 SHORELINE CT | South San Francisco | CA | 94080 | $130,727 | RESEARCH | ||||||
| BOSTON CHILDRENS HOSPITAL | |||||||||||
| 300 LONGWOOD AVE | Boston | MA | 02115 | $10,000 | RESEARCH | ||||||
| EVRLUM BIO | |||||||||||
| 6101 HIGHLAND CAMPUS DR | Austin | TX | 78752 | $291,521 | RESEARCH | ||||||
| LA JOLLA LABS | |||||||||||
| 1825 GILLESPIE WAY | El Cajon | CA | 92020 | $75,831 | RESEARCH | ||||||
| ANDELYN BIOSCIENCES | |||||||||||
| 1180 ARTHUR E ADAMS DR | COLUMBUS | OH | 43221 | $599,152 | RESEARCH | ||||||
| ST JOHN REGIONAL HOSPITAL | |||||||||||
| 1600 N ROSE AVE | OXNARD | CA | 93030 | $3,980 | RESEARCH | ||||||
| UNRAVEL BIOSCIENCE | |||||||||||
| 196 BOSTON AVE | Medford | MA | 02155 | $120,550 | RESEARCH | ||||||
| CTNNB1 FOUNDATION | |||||||||||
| $11,153 | RESEARCH | DALMONTICA ULNIVA | LLUJBAJANA | LLULBANA | SI | 510000 | |||||
| CHILDRENS HOSPITAL | |||||||||||
| 4845 ALAMEDA | EL PASO | TX | 79902 | $5,936 | RESEARCH | ||||||
| ATXPC FOUNDATION | |||||||||||
| 49 ORCHARD ST | PLEASANTVILLE | NY | 10570 | $3,400 | RESEARCH | ||||||
| UNIVERSITY OF MISSOURI | |||||||||||
| 325 JESSE HALL | COLUMBIA | MO | 65211 | $91,488 | RESEARCH | ||||||
| RAREBASETRANSCRIPTA BIO | |||||||||||
| 2882 GREER RD | PALO ALTO | CA | 94303 | $105,288 | RESEARCH | ||||||
| IXCELLS | |||||||||||
| 10101 WILLOW CREEK | SAN DIEGO | CA | 92131 | $27,621 | RESEARCH | ||||||
| UNIVERSIT OF PENN | |||||||||||
| 19104 | PHILADELPHIA | PA | 19104 | $35,027 | RESEARCH | ||||||
| FOR HENRY AHC | |||||||||||
| PO BOX 181 | COLCHESTER | VT | 05446 | $842,626 | RESEARCH | 501C3 | |||||
| SONSHINE FOUNDATION | |||||||||||
| 1040 6TH AVE | NEW YORK | NY | 10018 | $161,526 | RESEARCH | ||||||
| UNIVERSITY OF STRASBURG | |||||||||||
| $18,046 | RESEARCH | 4 RU BLAISE PASCAL | STRASBOURG | STRASBOURG | FR | 67081 | |||||
| NORTHWESTERN UNIVERSITY | |||||||||||
| 633 CLARK ST | EVANSTON | IL | 60208 | $109,091 | RESEARCH | ||||||
| SEATTLE CHILDRENS HOSPITAL | |||||||||||
| 4800 SANDPOINT WAY | SEATTLE | WA | 98105 | $50,000 | RESEARCH | ||||||
| ICHAN SCHOOL OF MEDICINE | |||||||||||
| 1 GUSTAVE LEVY PL | NEW YORK | NY | 10029 | $38,000 | RESEARCH | ||||||
| VARIANTYX | |||||||||||
| 1671 WORCESTER RD | Framingham | MA | 01701 | $3,700 | RESEARCH | ||||||
| OSPEDALE SAN RAFFALE | |||||||||||
| $11,237 | RESEARCH | VIA OLGETTINA | MILAN | MILAN | IT | 20132 | |||||
| TALUS BIOSCIENCE | |||||||||||
| 550 17TH AVE | Seattle | WA | 98122 | $5,000 | RESEARCH | ||||||
| CH NEUROLOGY | |||||||||||
| 4801 ALNBERTA AVE | El Paso | TX | 79905 | $2,289 | RESEARCH | ||||||
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990 governing body review Part VI line 11 | GOVERNING BODY HAS REVIWED 990 PRIOR TO FILING AND THE PRESIDENT HAS SIGNED THE RETURN GOVENING BODY DID NOT DO REVIEW |
| Conflict of interest policy compliance Part VI line 12c | GOVERNING BODY AND BOARD ROUTINELY CHECKS COMPLINACE IN REGARDS TO CONFLICT OF INTEREST BY VOTING ON ALL EXPENDITURES AND MAKING SURE NO RELATED PARTY IS BENEFITING FROM EXPENDITURES |
| CEO executive director top management comp Part VI line 15a | ALL MEMBERS OF THE GOVERNING BODY ARE UNPAID, THERE IS NO COMPENSATION FOR ANY MEMBERS OF GOVERNING BODY |
| Other officer or key employee compensation Part VI line 15b | NO EMPLOYEES EXIST IN THE NON PROFIT, NO MEMBER OF OFFICER RECEIVES ANY COMPENSATION FOR WORK PERFOMED IN THE CHARITY |
| Governing documents etc available to public Part VI line 19 | ALL DATA AND INFORMATION INCLUDING BOOKKEEPING AND FILING OF 990 IS AVAILABLE UPON REQUEST BY EMAIL TO GOVERNING BODY PRESIDENT |
| Part III response or note to any other line in Part III | TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES |
Comments