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THERE IS NO COMPENSATION FOR ANY MEMBERS OF GOVERNING BODY Other officer or key employee compensation Part VI line 15b NO EMPLOYEES EXIST IN THE NON PROFIT, NO MEMBER OF OFFICER RECEIVES ANY COMPENSATION FOR WORK PERFOMED IN THE CHARITY Governing documents etc available to public Part VI line 19 ALL DATA AND INFORMATION INCLUDING BOOKKEEPING AND FILING OF 990 IS AVAILABLE UPON REQUEST BY EMAIL TO GOVERNING BODY PRESIDENT Part III response or note to any other line in Part III TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES