CHORDOMA FOUNDATION: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization
CHORDOMA FOUNDATION (EIN 20-8423943)
Tax period
2016-01-01 to 2016-12-31
Filed
2017-05-15
IRS object ID
201711359349305231
Schema version
2016v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2017-05-15T12:40:17-04:00ReturnTs
Tax Period End2016-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN561743537PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1LANGDON & COMPANY LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1223 US HIGHWAY 70 EAST SUITE 100AddressLine1Txt
CityGARNERCityNm
State AbbreviationNCStateAbbreviationCd
ZIP275294051ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2016-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN208423943EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHORDOMA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHORBusinessNameControlTxt
Phone9198096779PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJOSH SOMMERPersonNm
Person TitlePRESIDENT, EXEC. DIRPersonTitleTxt
Phone9198096779PhoneNum
Signature2017-05-15SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonKENDALL TYSONPreparerPersonNm
PTINP01261689PTIN
Phone9196621001PhoneNum
Preparation2017-05-15PreparationDt

Filing Security Information FilingSecurityInformation

FieldValueIRS element (for citing)
At Submission Creation Device Id42AA03748E27943142417EFE162FF9A18A13A2DEAtSubmissionCreationDeviceId
At Submission Filing Device Id42AA03748E27943142417EFE162FF9A18A13A2DEAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2016TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJOSH SOMMERPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,160,051GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CHORDOMAFOUNDATION.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2007FormationYr
Legal Domicile StateNCLegalDomicileStateCd
Activity Or MissionTHE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.ActivityOrMissionDesc
Voting Members Governing Body10VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee9TotalEmployeeCnt
Total Volunteers120TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,915,121PYContributionsGrantsAmt
CY Contributions Grants$4,144,568CYContributionsGrantsAmt
CY Program Service Revenue$15,044CYProgramServiceRevenueAmt
PY Investment Income$711PYInvestmentIncomeAmt
CY Investment Income$439CYInvestmentIncomeAmt
PY Other Revenue$424PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$1,916,256PYTotalRevenueAmt
CY Total Revenue$4,160,051CYTotalRevenueAmt
PY Grants And Similar Paid$462,619PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$751,345CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$513,870PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$667,319CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$278,731CYTotalFundraisingExpenseAmt
PY Other Expenses$470,916PYOtherExpensesAmt
CY Other Expenses$930,341CYOtherExpensesAmt
PY Total Expenses$1,447,405PYTotalExpensesAmt
CY Total Expenses$2,349,005CYTotalExpensesAmt
PY Revenues Less Expenses$468,851PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,811,046CYRevenuesLessExpensesAmt
Total Assets BOY$2,764,956TotalAssetsBOYAmt
Total Assets EOY$5,309,118TotalAssetsEOYAmt
Total Liabilities BOY$497,848TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,230,964TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,267,108NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,078,154NetAssetsOrFundBalancesEOYAmt
MissionTHE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,523,117ExpenseAmt
Grant$721,345GrantAmt
DescTHE CHORDOMA FOUNDATION INITIATED, FACILITATED, AND FUNDED RESEARCH AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS FOR CHORDOMA. THIS INCLUDED DEVELOPING PDX MODELS OF CHORDOMA, PERFORMING DRUG SCREENING IN PDX MODELS, AND FACILITATING CLINICAL TRIALS FOR POTENTIAL SYSTEMIC TREATMENTS, DISTRIBUTING CHORDOMA CELL LINES TO RESEARCHERS ACROSS THE WORLD, FACILITATING THE EXCHANGE OF CHORDOMA TISSUE, AND BROKERING COLLABORATIONS AMONG PHYSICIANS AND SCIENTISTS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$435,631ExpenseAmt
Revenue$15,044RevenueAmt
DescTHE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND RARE CANCERS, AND SPONSORED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,958,748TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntYes (true)BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document6IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee9EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members10GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJOSH SOMMERPersonNm
Phone9198096779PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line12520 MERIDIAN PKWY STE 480AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27713ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (10 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
JOSH SOMMER
PRESIDENT, E60.00Yes (X)Yes (X)$91,557$0$8,834
JOEL BECKMAN
VICE CHAIR8.00Yes (X)$0$0$0
PAULA SONG
TREASURER3.00Yes (X)$0$0$0
ANDY SCHOELKOPF
CHAIR15.00Yes (X)$0$0$0
CHANDRA SEN
DIRECTOR2.00Yes (X)$0$0$0
KERRY SHAD
SECRETARY4.00Yes (X)$0$0$0
DAVID SANDAK
DIRECTOR2.00Yes (X)$0$0$0
DAVID DREWRY
DIRECTOR2.00Yes (X)$0$0$0
CHRISTY SHAFFER
DIRECTOR2.00Yes (X)$0$0$0
INGEMAR LANEVI
DIRECTOR2.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$91,557TotalReportableCompFromOrgAmt
Total Other Compensation$8,834TotalOtherCompensationAmt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$4,144,568AllOtherContributionsAmt
Noncash Contributions$26,640NoncashContributionsAmt
Total Contributions$4,144,568TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescCOMMUNITY CONFERENCEDesc
Total Revenue Column$15,044TotalRevenueColumnAmt
Exclusion$15,044ExclusionAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$15,044TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$439TotalRevenueColumnAmt
Exclusion$439ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,160,051TotalRevenueColumnAmt
Exclusion$15,483ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$480,000TotalAmt
Program Services$480,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$271,345TotalAmt
Program Services$271,345ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$100,391TotalAmt
Program Services$67,726ProgramServicesAmt
Management And General$11,402ManagementAndGeneralAmt
Fundraising$21,263FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$462,349TotalAmt
Program Services$312,903ProgramServicesAmt
Management And General$51,832ManagementAndGeneralAmt
Fundraising$97,614FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$61,722TotalAmt
Program Services$40,264ProgramServicesAmt
Management And General$7,954ManagementAndGeneralAmt
Fundraising$13,504FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$42,857TotalAmt
Program Services$28,599ProgramServicesAmt
Management And General$5,293ManagementAndGeneralAmt
Fundraising$8,965FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$11,694TotalAmt
Program Services$1,369ProgramServicesAmt
Management And General$9,911ManagementAndGeneralAmt
Fundraising$414FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$167,868TotalAmt
Program Services$117,569ProgramServicesAmt
Management And General$2,812ManagementAndGeneralAmt
Fundraising$47,487FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$35,400TotalAmt
Program Services$19,981ProgramServicesAmt
Management And General$22ManagementAndGeneralAmt
Fundraising$15,397FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$39,567TotalAmt
Program Services$14,234ProgramServicesAmt
Management And General$3,023ManagementAndGeneralAmt
Fundraising$22,310FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$95,105TotalAmt
Program Services$58,411ProgramServicesAmt
Management And General$9,566ManagementAndGeneralAmt
Fundraising$27,128FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$31,636TotalAmt
Program Services$25,689ProgramServicesAmt
Management And General$1,708ManagementAndGeneralAmt
Fundraising$4,239FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$43,764TotalAmt
Program Services$32,942ProgramServicesAmt
Management And General$2,428ManagementAndGeneralAmt
Fundraising$8,394FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$117,758TotalAmt
Program Services$104,962ProgramServicesAmt
Management And General$2,264ManagementAndGeneralAmt
Fundraising$10,532FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$3,999TotalAmt
Program Services$3,247ProgramServicesAmt
Management And General$216ManagementAndGeneralAmt
Fundraising$536FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$13,952TotalAmt
Program Services$9,909ProgramServicesAmt
Management And General$3,095ManagementAndGeneralAmt
Fundraising$948FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmt
CONTRACT RESEARCH$307,777$307,777
BIOREPOSITORY$61,821$61,821

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,349,005TotalAmt
Program Services$1,958,748ProgramServicesAmt
Management And General$111,526ManagementAndGeneralAmt
Fundraising$278,731FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,057,571BOYAmt
EOY$2,769,921EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$746,834BOYAmt
EOY$460,995EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$836,168BOYAmt
EOY$1,951,840EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$87,588BOYAmt
EOY$84,970EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$22,892BOYAmt
EOY$28,393EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$27,714LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$17,180LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$11,438BOYAmt
EOY$10,534EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$2,465BOYAmt
EOY$2,465EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,764,956BOYAmt
EOY$5,309,118EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$45,954BOYAmt
EOY$85,823EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$451,894BOYAmt
EOY$1,145,141EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$497,848BOYAmt
EOY$1,230,964EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,672,666BOYAmt
EOY$1,605,907EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$594,442BOYAmt
EOY$2,472,247EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,267,108BOYAmt
EOY$4,078,154EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,764,956BOYAmt
EOY$5,309,118EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,811,046ReconcilationRevenueExpnssAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$780,659CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,609,663CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,011,406CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,915,121CurrentTaxYearMinus1YearAmt
Current Tax Year$4,144,568CurrentTaxYearAmt
Total$10,461,417TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$780,659CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,609,663CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,011,406CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,915,121CurrentTaxYearMinus1YearAmt
Current Tax Year$4,144,568CurrentTaxYearAmt
Total$10,461,417TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,556,504SubstantialContributorsTotAmt
Public Support Total170$5,904,913PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,075CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$622CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$513CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$711CurrentTaxYearMinus1YearAmt
Current Tax Year$439CurrentTaxYearAmt
Total$3,360TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year$15,044CurrentTaxYearAmt
Total$15,044TotalAmt
FieldValueIRS element (for citing)
Total Support$10,479,821TotalSupportAmt
Public Support CY1700.56350PublicSupportCY170Pct
Public Support PY1700.86410PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$27,714OtherCostOrOtherBasisAmt
Depreciation$17,180DepreciationAmt
Book Value$10,534BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$10,534TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,299,111TotalRevEtcAuditedFinclStmtAmt
Donated Services And Use Fclts$139,060DonatedServicesAndUseFcltsAmt
Revenue Not Reported$139,060RevenueNotReportedAmt
Revenue Subtotal$4,160,051RevenueSubtotalAmt
Total Revenue Per Form990$4,160,051TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,488,065TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$139,060DonatedServicesUseFcltsAmt
Expenses Not Reported$139,060ExpensesNotReportedAmt
Expenses Subtotal$2,349,005ExpensesSubtotalAmt
Total Expenses Per Form990$2,349,005TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE D, PAGE 3, PART XFormAndLineReferenceDesc
ExplanationTHE ORGANIZATION EVALUATES ITS UNCERTAIN TAX POSITIONS USING THE PROVISIONS OF ASC 740-10-25, RECOGNITION OF A TAX POSITION. ACCORDINGLY, THE ORGANIZATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE ORGANIZATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT, WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS, WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT BELIEVES THERE ARE NO SUCH POSITIONS AS OF DECEMBER 31, 2016.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionEUROPERegionTxt
Type Of Activities ConductedGRANTSTypeOfActivitiesConductedTxt
Specific Services ProvidedRESEARCHSpecificServicesProvidedTxt
Region Total Expenditures$271,345RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Subtotal Spent$271,345SubtotalSpentAmt
Total Spent$271,345TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

Purpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
RESEARCH$10,000WIRE TRANSFER
RESEARCH$261,345WIRE TRANSFER
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
SCHEDULE F, PAGE 1, PART I, LINE 2MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.
SCHEDULE F, PAGE 1, PART I, LINE 3EUROPE 271,345 0
SCHEDULE F, PAGE 5, PART V10,000 WAS AWARDED TO THE UNIVERSITY OF ULM IN GERMANY AS AN UNRESTRICTED PRIZE TO BE USED BY DR. PETER MOLLER FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 261,345 (270,000 BEFORE A PRESENT VALUE FACTOR) WAS AWARDED TO LEIDEN UNIVERSITY MEDICAL CENTER IN THE NETHERLANDS FOR THE TRANSLATIONAL RESEARCH PART OF THE MULTI-CENTER TRIAL BEING PERFORMED AT LEIDEN MEDICAL CENTER, AT FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI IN MILAN, ITALY AND AT UCL NHS IN LONDON, UNITED KINGDOM UNDER THE COORDINATION OF LEIDEN UNIVERSITY MEDICAL CENTER.

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (5 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
MASSACHUSETTS GEN HOSPITAL
185 CAMBRIDGE STBOSTONMA02114041564655501C3$25,000RESEARCH GRANT
DUKE UNIVERSITY MEDICAL CTR
BOX 3396 DUMC ERWIN ROADDURHAMNC27710560532129501C3$80,000RESEARCH GRANT
JOHNS HOPKINS UNIVERSITY SCH OF MED
600 N WOLFE STBALTIMOREMD21287520595110501C3$215,000RESEARCH GRANT
THE BROAD INSTITUTE
415 MAIN STREETCAMBRIDGEMA02142263428781501C3$150,000RESEARCH GRANT
UNIVERSITY OF CALIFORNIA SAN FRAN
1450 3RD STSAN FRANCISCOCA94158946036493501C3$10,000RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org5Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE I, PAGE 1, PART I, LINE 2FormAndLineReferenceDesc
ExplanationMONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.ExplanationTxt

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp (6 entries)

Relationship DescriptionRelationshipDescriptionTxtTransactionTransactionAmtTransactionTransactionDescSharing Of RevenuesSharingOfRevenuesInd
SMITH ANDERSON LLP
BOARD DIRECTOR$76,350IN-KIND LEGAL SVCSfalse
ANDREW SCHOELKOPF
BOARD DIRECTOR$10,000CONTRIBUTIONfalse
CHANDRA SEN
BOARD DIRECTOR$16,000CONTRIBUTIONfalse
JOEL BECKMAN
BOARD DIRECTOR$125,000CONTRIBUTIONfalse
CHRISTY SHAFFER
BOARD DIRECTOR$10,000CONTRIBUTIONfalse
JOSH SOMMER
OFFICER$1,250CONTRIBUTIONfalse

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE L, PART VFormAndLineReferenceDesc
ExplanationTHE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. KERRY SHAD, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. THE FOUNDATIONS' BOARD MEMBERS AND FORMER BOARD MEMBERS PROVIDED CONTRIBUTIONS TOTALING 162,250 IN 2016. THE FUNDS ARE TREATED THE SAME AS A PLEDGE OR CONTRIBUTION FROM AN UNRELATED OR UNINTERESTED PARTY.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution3ContributionCnt
Noncash Contributions Rpt F990$10,716NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Noncash Contributions Rpt F990$15,924NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PAGE 6, PART VI, LINE 11BFINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL.
FORM 990, PAGE 6, PART VI, LINE 12CEACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION ANNUALLY SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION.
FORM 990, PAGE 6, PART VI, LINE 15ATHE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE.
FORM 990, PAGE 6, PART VI, LINE 15BTHE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR.
FORM 990, PAGE 6, PART VI, LINE 19GOVERNING DOCUMENTS, DISCLOSURE EXPLANATION, ARTICLES OF INCORPORATION, BY-LAWS, POLICIES AND PROCEDURES MANUAL, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING POLICIES, ANNUAL AUDITS AND 990'S ARE ON FILE IN THE FINANCE OFFICE, AVAILABLE ON THE FOUNDATION'S WEBSITE AND AVAILABLE TO THE PUBLIC UPON REQUEST.

Comments

Anonymous: no account or email. Up to 2,000 characters, at most one link. Comments are checked automatically; some wait for review.