2017-05-15T12:40:17-04:00 2016-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2016-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER PRESIDENT, EXEC. DIR 9198096779 2017-05-15 true KENDALL TYSON P01261689 9196621001 2017-05-15 42AA03748E27943142417EFE162FF9A18A13A2DE 42AA03748E27943142417EFE162FF9A18A13A2DE 2016 2021-01-29 14:40:06Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 4160051 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 10 9 9 120 0 1915121 4144568 15044 711 439 424 0 1916256 4160051 462619 751345 0 513870 667319 0 278731 470916 930341 1447405 2349005 468851 1811046 2764956 5309118 497848 1230964 2267108 4078154 THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 1523117 721345 THE CHORDOMA FOUNDATION INITIATED, FACILITATED, AND FUNDED RESEARCH AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS FOR CHORDOMA. THIS INCLUDED DEVELOPING PDX MODELS OF CHORDOMA, PERFORMING DRUG SCREENING IN PDX MODELS, AND FACILITATING CLINICAL TRIALS FOR POTENTIAL SYSTEMIC TREATMENTS, DISTRIBUTING CHORDOMA CELL LINES TO RESEARCHERS ACROSS THE WORLD, FACILITATING THE EXCHANGE OF CHORDOMA TISSUE, AND BROKERING COLLABORATIONS AMONG PHYSICIANS AND SCIENTISTS. 435631 15044 THE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND RARE CANCERS, AND SPONSORED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA. 1958748 true true false false false false false false false false true false false false false true true false false false true true false false false false false true false false false false false false false false false true true false false false false false false false false true 6 0 true 9 true false false false false false false false false false false false false X 10 9 false false false false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 2520 MERIDIAN PKWY STE 480 DURHAM NC 27713 JOSH SOMMER PRESIDENT, E 60.00 X X 91557 0 8834 JOEL BECKMAN VICE CHAIR 8.00 X 0 0 0 PAULA SONG TREASURER 3.00 X 0 0 0 ANDY SCHOELKOPF CHAIR 15.00 X 0 0 0 CHANDRA SEN DIRECTOR 2.00 X 0 0 0 KERRY SHAD SECRETARY 4.00 X 0 0 0 DAVID SANDAK DIRECTOR 2.00 X 0 0 0 DAVID DREWRY DIRECTOR 2.00 X 0 0 0 CHRISTY SHAFFER DIRECTOR 2.00 X 0 0 0 INGEMAR LANEVI DIRECTOR 2.00 X 0 0 0 91557 8834 false false false 4144568 26640 4144568 COMMUNITY CONFERENCE 15044 15044 15044 439 439 4160051 15483 480000 480000 271345 271345 100391 67726 11402 21263 462349 312903 51832 97614 61722 40264 7954 13504 42857 28599 5293 8965 11694 1369 9911 414 167868 117569 2812 47487 35400 19981 22 15397 39567 14234 3023 22310 95105 58411 9566 27128 31636 25689 1708 4239 43764 32942 2428 8394 117758 104962 2264 10532 3999 3247 216 536 13952 9909 3095 948 CONTRACT RESEARCH 307777 307777 BIOREPOSITORY 61821 61821 2349005 1958748 111526 278731 1057571 2769921 746834 460995 836168 1951840 87588 84970 22892 28393 27714 17180 11438 10534 2465 2465 2764956 5309118 45954 85823 451894 1145141 497848 1230964 X 1672666 1605907 594442 2472247 2267108 4078154 2764956 5309118 1811046 X false true X true false X 780659 1609663 2011406 1915121 4144568 10461417 780659 1609663 2011406 1915121 4144568 10461417 4556504 5904913 1075 622 513 711 439 3360 15044 15044 10479821 0.56350 0.86410 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 27714 17180 10534 10534 X 4299111 139060 139060 4160051 4160051 2488065 139060 139060 2349005 2349005 SCHEDULE D, PAGE 3, PART X THE ORGANIZATION EVALUATES ITS UNCERTAIN TAX POSITIONS USING THE PROVISIONS OF ASC 740-10-25, RECOGNITION OF A TAX POSITION. ACCORDINGLY, THE ORGANIZATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE ORGANIZATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT, WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS, WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT BELIEVES THERE ARE NO SUCH POSITIONS AS OF DECEMBER 31, 2016. true EUROPE GRANTS RESEARCH 271345 271345 271345 RESEARCH 10000 WIRE TRANSFER RESEARCH 261345 WIRE TRANSFER 2 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 271,345 0 SCHEDULE F, PAGE 5, PART V 10,000 WAS AWARDED TO THE UNIVERSITY OF ULM IN GERMANY AS AN UNRESTRICTED PRIZE TO BE USED BY DR. PETER MOLLER FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 261,345 (270,000 BEFORE A PRESENT VALUE FACTOR) WAS AWARDED TO LEIDEN UNIVERSITY MEDICAL CENTER IN THE NETHERLANDS FOR THE TRANSLATIONAL RESEARCH PART OF THE MULTI-CENTER TRIAL BEING PERFORMED AT LEIDEN MEDICAL CENTER, AT FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI IN MILAN, ITALY AND AT UCL NHS IN LONDON, UNITED KINGDOM UNDER THE COORDINATION OF LEIDEN UNIVERSITY MEDICAL CENTER. true MASSACHUSETTS GEN HOSPITAL 185 CAMBRIDGE ST BOSTON MA 02114 041564655 501C3 25000 RESEARCH GRANT DUKE UNIVERSITY MEDICAL CTR BOX 3396 DUMC ERWIN ROAD DURHAM NC 27710 560532129 501C3 80000 RESEARCH GRANT JOHNS HOPKINS UNIVERSITY SCH OF MED 600 N WOLFE ST BALTIMORE MD 21287 520595110 501C3 215000 RESEARCH GRANT THE BROAD INSTITUTE 415 MAIN STREET CAMBRIDGE MA 02142 263428781 501C3 150000 RESEARCH GRANT UNIVERSITY OF CALIFORNIA SAN FRAN 1450 3RD ST SAN FRANCISCO CA 94158 946036493 501C3 10000 RESEARCH 5 SCHEDULE I, PAGE 1, PART I, LINE 2 MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SMITH ANDERSON LLP BOARD DIRECTOR 76350 IN-KIND LEGAL SVCS false ANDREW SCHOELKOPF BOARD DIRECTOR 10000 CONTRIBUTION false CHANDRA SEN BOARD DIRECTOR 16000 CONTRIBUTION false JOEL BECKMAN BOARD DIRECTOR 125000 CONTRIBUTION false CHRISTY SHAFFER BOARD DIRECTOR 10000 CONTRIBUTION false JOSH SOMMER OFFICER 1250 CONTRIBUTION false SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. KERRY SHAD, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. THE FOUNDATIONS' BOARD MEMBERS AND FORMER BOARD MEMBERS PROVIDED CONTRIBUTIONS TOTALING 162,250 IN 2016. THE FUNDS ARE TREATED THE SAME AS A PLEDGE OR CONTRIBUTION FROM AN UNRELATED OR UNINTERESTED PARTY. X 3 10716 FMV X 15924 FMV false true false FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION ANNUALLY SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS, DISCLOSURE EXPLANATION, ARTICLES OF INCORPORATION, BY-LAWS, POLICIES AND PROCEDURES MANUAL, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING POLICIES, ANNUAL AUDITS AND 990'S ARE ON FILE IN THE FINANCE OFFICE, AVAILABLE ON THE FOUNDATION'S WEBSITE AND AVAILABLE TO THE PUBLIC UPON REQUEST.