CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization
CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (EIN 46-4152355)
Tax period
2016-01-01 to 2016-12-31
Filed
2017-11-13
IRS object ID
201743179349302569
Schema version
2016v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2017-11-13T08:28:42-08:00ReturnTs
Tax Period End2016-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Ritz Holman LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1330 E Kilbourn Ste 550AddressLine1Txt
CityMilwaukeeCityNm
State AbbreviationWIStateAbbreviationCd
ZIP532023144ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2016-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN464152355EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHILDHOOD ARTHRITIS AND RHEUMATOLOGYBusinessNameLine1Txt
Business Name Line2RESEARCH ALLIANCEBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlCHILBusinessNameControlTxt
Phone4149189822PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1555 E WELLS ST STE 1100AddressLine1Txt
CityMILWAUKEECityNm
State AbbreviationWIStateAbbreviationCd
ZIP53202ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonROBERT FUHLBRIGGE MD PHDPersonNm
Person TitleVice PresidentPersonTitleTxt
Signature2017-11-13SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonKATY L SOMMERPreparerPersonNm
PTINP00273273PTIN
Phone4142711451PhoneNum
FieldValueIRS element (for citing)
Tax2016TaxYr
Build TS2018-03-14 21:41:22ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerROBERT FUHLBRIGGE MD PHDPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line12608 ERWIN RD STE 148-191AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27705ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$8,418,430GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
All Affiliates IncludedfalseAllAffiliatesIncludedInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresshttps://www.carragroup.org/WebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2014FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionCONDUCT COLLABORATIVE RESEARCH TO PREVENT, TREAT, AND CURE PEDIATRIC RHEUMATIC DISEASES.ActivityOrMissionDesc
Voting Members Governing Body7VotingMembersGoverningBodyCnt
Voting Members Independent6VotingMembersIndependentCnt
Total Employee3TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$2,755,621PYContributionsGrantsAmt
CY Contributions Grants$4,523,687CYContributionsGrantsAmt
PY Program Service Revenue$738,980PYProgramServiceRevenueAmt
CY Program Service Revenue$3,893,476CYProgramServiceRevenueAmt
PY Investment Income$672PYInvestmentIncomeAmt
CY Investment Income$1,267CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$3,495,273PYTotalRevenueAmt
CY Total Revenue$8,418,430CYTotalRevenueAmt
PY Grants And Similar Paid$100PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$197,064CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
CY Salaries Comp Emp Bnft Paid$313,680CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$2,475PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$2,273,896PYOtherExpensesAmt
CY Other Expenses$4,544,192CYOtherExpensesAmt
PY Total Expenses$2,276,471PYTotalExpensesAmt
CY Total Expenses$5,054,936CYTotalExpensesAmt
PY Revenues Less Expenses$1,218,802PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$3,363,494CYRevenuesLessExpensesAmt
Total Assets BOY$3,241,651TotalAssetsBOYAmt
Total Assets EOY$7,177,060TotalAssetsEOYAmt
Total Liabilities BOY$361,236TotalLiabilitiesBOYAmt
Total Liabilities EOY$933,151TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,880,415NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$6,243,909NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionCONDUCT COLLABORATIVE RESEARCH TO PREVENT, TREAT, AND CURE PEDIATRIC RHEUMATIC DISEASES.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$2,922,554ExpenseAmt
DescCARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,021,511ExpenseAmt
DescOTHER: INFORMATICS/PROGRAMMING, LEADERSHIP, SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$433,034ExpenseAmt
DescANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$197,064TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$197,064TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$4,574,163TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Invest Tax Exempt BondsfalseInvestTaxExemptBondsInd
Escrow AccountfalseEscrowAccountInd
On Behalf Of IssuerfalseOnBehalfOfIssuerInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonYes (true)GrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document8IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee3EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Org Filed In Lieu Of Form1041falseOrgFiledInLieuOfForm1041Ind
Licensed More Than One StatefalseLicensedMoreThanOneStateInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members7GoverningBodyVotingMembersCnt
Independent Voting Member6IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersYes (true)MembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonEXECUTIVE DIRECTOR INCPersonNm
Phone4142766445PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1555 E WELLS STREET SUITE 110AddressLine1Txt
CityMILWAUKEECityNm
State AbbreviationWIStateAbbreviationCd
ZIP53202ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (11 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
YUKIKO KIMURA MD
President3.000.00Yes (X)Yes (X)$47,971$0$0
CAROL WALLACE MD
Director1.000.00Yes (X)$0$0$0
ELIZABETH MELLINS
Director1.000.00Yes (X)$0$0$0
STEVE RUSSELL
Director1.000.00Yes (X)$0$0$0
CHRISTY SANDBORG MD
Director1.000.00Yes (X)$0$0$0
BRIAN KOTZIN MD
Director1.000.00Yes (X)$0$0$0
LEIGH WHITE JD
Director1.000.00Yes (X)$0$0$0
ROBERT FUHLBRIGGE MD PHD
Vice President3.000.00Yes (X)$0$0$0
NORMAN ILOWITE
Secretary3.000.00Yes (X)$0$0$0
EMILY VON SCHEVEN
Treasurer3.000.00Yes (X)$0$0$0
JASON JONES
sr dir of research40.000.00$200,000$0$1,250Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$247,971TotalReportableCompFromOrgAmt
Total Other Compensation$1,250TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
DUKE CLINICAL RESEARCH INSTITUTE
2400 PRATT STDURHAMNC27705REGISTRY MANAGEMENT$1,944,614
BOSTON CHILDRENS HOSPITAL
300 LONGWOOD AVEBOSTONMA02115INFORMATICS SUPPORT$260,000
GRENDEL BURRELL CONSULTING LLC
11220 S TRACY AVEBOZEMANMT59715REGISTRY CONSULTING$112,000
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
All Other Contributions$4,523,687AllOtherContributionsAmt
Total Contributions$4,523,687TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmtBusinessBusinessCd
annual meeting$46,947$46,947
Membership Dues & Assessments$37,285$37,285900099
RESEARCH STUDIES & COLLAB$3,809,244$3,809,244
FieldValueIRS element (for citing)
Total Program Service Revenue$3,893,476TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,267TotalRevenueColumnAmt
Exclusion$1,267ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,418,430TotalRevenueColumnAmt
Related Or Exempt Func Income$3,893,476RelatedOrExemptFuncIncomeAmt
Exclusion$1,267ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$174,564TotalAmt
Program Services$174,564ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$22,500TotalAmt
Program Services$22,500ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$47,971TotalAmt
Program Services$47,971ProgramServicesAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$252,079TotalAmt
Program Services$252,079ProgramServicesAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$13,630TotalAmt
Program Services$13,630ProgramServicesAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$705TotalAmt
Management And General$705ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$11,919TotalAmt
Management And General$11,919ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$927,691TotalAmt
Program Services$625,117ProgramServicesAmt
Management And General$302,574ManagementAndGeneralAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$20,958TotalAmt
Management And General$20,958ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$2,985,573TotalAmt
Program Services$2,922,554ProgramServicesAmt
Management And General$63,019ManagementAndGeneralAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$31,861TotalAmt
Management And General$31,861ManagementAndGeneralAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$542,771TotalAmt
Program Services$515,748ProgramServicesAmt
Management And General$27,023ManagementAndGeneralAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$441TotalAmt
Management And General$441ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$18,854TotalAmt
Management And General$18,854ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtManagement And GeneralManagementAndGeneralAmt
Miscellaneous$2,799$2,799
STAFF TRAINING$620$620

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$5,054,936TotalAmt
Program Services$4,574,163ProgramServicesAmt
Management And General$480,773ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$2,230,077BOYAmt
EOY$3,314,795EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,000,921BOYAmt
EOY$3,502,188EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$348,885EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$10,212BOYAmt
EOY$11,192EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$671LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$671LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$441BOYAmt
EOY$0EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$3,241,651BOYAmt
EOY$7,177,060EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$358,601BOYAmt
EOY$933,151EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$2,635BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$361,236BOYAmt
EOY$933,151EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,880,415BOYAmt
EOY$6,243,909EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,880,415BOYAmt
EOY$6,243,909EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,241,651BOYAmt
EOY$7,177,060EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$3,363,494ReconcilationRevenueExpnssAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedfalseFSAuditedInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$1,840,811CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,755,621CurrentTaxYearMinus1YearAmt
Current Tax Year$4,523,687CurrentTaxYearAmt
Total$9,120,119TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$1,840,811CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,755,621CurrentTaxYearMinus1YearAmt
Current Tax Year$4,523,687CurrentTaxYearAmt
Total$9,120,119TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$3,319,846SubstantialContributorsTotAmt
Public Support Total170$5,800,273PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$286CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$672CurrentTaxYearMinus1YearAmt
Current Tax Year$1,267CurrentTaxYearAmt
Total$2,225TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$9,122,344TotalSupportAmt
Gross Receipts Rltd Activities$4,632,456GrossReceiptsRltdActivitiesAmt
First5 Years170Yes (X)First5Years170Ind
Public Support CY1700.00000PublicSupportCY170Pct

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$671OtherCostOrOtherBasisAmt
Depreciation$671DepreciationAmt

Schedule F IRS990ScheduleF

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionCANADARegionTxt
Purpose Of GrantSMALL GRANTPurposeOfGrantTxt
Cash Grant$22,500CashGrantAmt
Manner Of Cash DisbursementCASHMannerOfCashDisbursementTxt
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart II, Line 1 - Method of AccountingFormAndLineReferenceDesc
ExplanationCARRA has a Grants Review Committee that oversees the funding of grants. Grant recipients must go through a grant review process, which includes a final grant report due within 30 days of the end of the project period.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable (8 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
CHILDRENS HOSPITAL OF PITTSB
4401 PENN AVEPITTSBURGHPA15224251865744501(C)(3)$25,000$0SMALL GRANT
CHILDRENS MERCY HOSPITAL
PO BOX 803852KANSAS CITYMO64180431564302501(C)(3)$22,117$0SMALL GRANT
CHOP RESEARCH INSTITUTE
LOCKBOX 1457 PO BOX 8500PHILADELPHIAPA19178231352166501(C)(3)$25,000$0SMALL GRANT
HACKENSACK UMC RESEARCH
30 PROSPECT AVEHACKENSACKNJ07601221487576501(C)(3)$8,320$0PUBLICATION SUPPORT
RUTGERS STATE UNIVERSITY
33 KNIGHTSBRIDGE RD 2ND FL EPISCATAWAYNJ08854226001086501(C)(3)$43,195$0SMALL GRANT
SEATTLE CHILDRENS HOSPITAL
400 SAND POINT WAY NESEATTLEWA98105910564748501(C)(3)$30,040$0SMALL GRANT
UAB BEUKELMAN DPT OF PEDIATRI
LOWDER BLDG 608 1600 7TH AVEBIRMINGHAMAL35233636005396501(C)(3)$5,440$0PUBLICATIONS GRANT
UW MADISON
21 N PARK ST STE 6401MADISONWI53715396006492501(C)(3)$10,500$0SMALL GRANT
FieldValueIRS element (for citing)
Total501c3 Org8Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd
Rebuttable Presumption ProcfalseRebuttablePresumptionProcInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonJASON JONESPersonNm
Titlesr dir of researchTitleTxt
Base Compensation Filing Org$200,000BaseCompensationFilingOrgAmt
Nontaxable Benefits Filing Org$1,250NontaxableBenefitsFilingOrgAmt
Total Compensation Filing Org$201,250TotalCompensationFilingOrgAmt

Schedule L IRS990ScheduleL

Grnt Asst Bnft Interested Prsn GrntAsstBnftInterestedPrsnGrp (2 entries)

Relationship With OrgRelationshipWithOrgTxtCash GrantCashGrantAmtType Of AssistanceTypeOfAssistanceTxtAssistance PurposeAssistancePurposeTxt
EMILY VON SCHEVEN
OFFICER$20,000GRANTRESEARCH GRANT
ELIZABETH MELLINS
DIRECTOR$50,000GRANTRESEARCH GRANT

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part III, Line 4d: Other Program Services DescriptionOTHER PROGRAM SERVICES 4: OTHER: INFORMATICS/PROGRAMMING, LEADERSHIP, SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.
Form 990, Part VI, Line 11b: Form 990 Review ProcessPRIOR TO FILING, FORM 990 WILL BE REVIEWED BY THE CFO AND THE EXECUTIVE DIRECTOR AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsTHE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementTHE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES OF THE EXECUTIVE DIRECTOR AND THE CHIEF FINANCIAL OFFICER, AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableThe most recent Form 990s (including financial information), the Bylaws, Articles ofIncorporation, Form 1023 Application for Exemption, and Conflict of Interest Policyare provided to the public upon request

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