2017-11-13T08:28:42-08:00 2016-12-31 Ritz Holman LLP 330 E Kilbourn Ste 550 Milwaukee WI 532023144 990 2016-01-01 464152355 CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE CHIL 4149189822 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 ROBERT FUHLBRIGGE MD PHD Vice President 2017-11-13 true KATY L SOMMER P00273273 4142711451 2016 2018-03-14 21:41:22Z X ROBERT FUHLBRIGGE MD PHD 2608 ERWIN RD STE 148-191 DURHAM NC 27705 8418430 false false X https://www.carragroup.org/ X 2014 CA CONDUCT COLLABORATIVE RESEARCH TO PREVENT, TREAT, AND CURE PEDIATRIC RHEUMATIC DISEASES. 7 6 3 0 2755621 4523687 738980 3893476 672 1267 0 3495273 8418430 100 197064 0 313680 2475 0 0 2273896 4544192 2276471 5054936 1218802 3363494 3241651 7177060 361236 933151 2880415 6243909 X CONDUCT COLLABORATIVE RESEARCH TO PREVENT, TREAT, AND CURE PEDIATRIC RHEUMATIC DISEASES. false false 2922554 CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES. 1021511 OTHER: INFORMATICS/PROGRAMMING, LEADERSHIP, SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES. 433034 ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS. 197064 197064 4574163 true true false false false false false false false false true false false false false false false false false false false true false false false false false true false true false false false false false false false true false false false false false false false false false false false false false true 8 0 true 3 true false false false false false false false false 0 false false false false false false false false false false X 7 6 false false false false true false false true true false false true true true true false true true true false X EXECUTIVE DIRECTOR INC 4142766445 555 E WELLS STREET SUITE 110 MILWAUKEE WI 53202 YUKIKO KIMURA MD President 3.00 0.00 X X 47971 0 0 CAROL WALLACE MD Director 1.00 0.00 X 0 0 0 ELIZABETH MELLINS Director 1.00 0.00 X 0 0 0 STEVE RUSSELL Director 1.00 0.00 X 0 0 0 CHRISTY SANDBORG MD Director 1.00 0.00 X 0 0 0 BRIAN KOTZIN MD Director 1.00 0.00 X 0 0 0 LEIGH WHITE JD Director 1.00 0.00 X 0 0 0 ROBERT FUHLBRIGGE MD PHD Vice President 3.00 0.00 X 0 0 0 NORMAN ILOWITE Secretary 3.00 0.00 X 0 0 0 EMILY VON SCHEVEN Treasurer 3.00 0.00 X 0 0 0 JASON JONES sr dir of research 40.00 0.00 X 200000 0 1250 247971 1250 1 false true false DUKE CLINICAL RESEARCH INSTITUTE 2400 PRATT ST DURHAM NC 27705 REGISTRY MANAGEMENT 1944614 BOSTON CHILDRENS HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT 260000 GRENDEL BURRELL CONSULTING LLC 11220 S TRACY AVE BOZEMAN MT 59715 REGISTRY CONSULTING 112000 3 4523687 4523687 annual meeting 46947 46947 Membership Dues & Assessments 900099 37285 37285 RESEARCH STUDIES & COLLAB 3809244 3809244 3893476 1267 1267 0 0 0 0 0 0 0 0 8418430 3893476 1267 X 174564 174564 0 22500 22500 0 47971 47971 0 252079 252079 0 0 13630 13630 0 705 705 11919 11919 0 0 0 927691 625117 302574 0 20958 20958 2985573 2922554 63019 0 0 31861 31861 0 542771 515748 27023 0 0 441 441 18854 18854 Miscellaneous 2799 2799 STAFF TRAINING 620 620 0 5054936 4574163 480773 0 2230077 3314795 1000921 3502188 0 348885 0 0 0 0 10212 11192 671 671 441 0 0 0 0 0 0 3241651 7177060 358601 933151 2635 361236 933151 X 2880415 6243909 2880415 6243909 3241651 7177060 3363494 X false false false X 1840811 2755621 4523687 9120119 0 0 1840811 2755621 4523687 9120119 3319846 5800273 286 672 1267 2225 0 0 9122344 4632456 X 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 671 671 CANADA SMALL GRANT 22500 CASH 1 false false false false false false Part II, Line 1 - Method of Accounting CARRA has a Grants Review Committee that oversees the funding of grants. Grant recipients must go through a grant review process, which includes a final grant report due within 30 days of the end of the project period. false CHILDRENS HOSPITAL OF PITTSB 4401 PENN AVE PITTSBURGH PA 15224 251865744 501(C)(3) 25000 0 SMALL GRANT CHILDRENS MERCY HOSPITAL PO BOX 803852 KANSAS CITY MO 64180 431564302 501(C)(3) 22117 0 SMALL GRANT CHOP RESEARCH INSTITUTE LOCKBOX 1457 PO BOX 8500 PHILADELPHIA PA 19178 231352166 501(C)(3) 25000 0 SMALL GRANT HACKENSACK UMC RESEARCH 30 PROSPECT AVE HACKENSACK NJ 07601 221487576 501(C)(3) 8320 0 PUBLICATION SUPPORT RUTGERS STATE UNIVERSITY 33 KNIGHTSBRIDGE RD 2ND FL E PISCATAWAY NJ 08854 226001086 501(C)(3) 43195 0 SMALL GRANT SEATTLE CHILDRENS HOSPITAL 400 SAND POINT WAY NE SEATTLE WA 98105 910564748 501(C)(3) 30040 0 SMALL GRANT UAB BEUKELMAN DPT OF PEDIATRI LOWDER BLDG 608 1600 7TH AVE BIRMINGHAM AL 35233 636005396 501(C)(3) 5440 0 PUBLICATIONS GRANT UW MADISON 21 N PARK ST STE 6401 MADISON WI 53715 396006492 501(C)(3) 10500 0 SMALL GRANT 8 0 false false false false false false false false false false JASON JONES sr dir of research 200000 1250 201250 EMILY VON SCHEVEN OFFICER 20000 GRANT RESEARCH GRANT ELIZABETH MELLINS DIRECTOR 50000 GRANT RESEARCH GRANT Form 990, Part III, Line 4d: Other Program Services Description OTHER PROGRAM SERVICES 4: OTHER: INFORMATICS/PROGRAMMING, LEADERSHIP, SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES. Form 990, Part VI, Line 11b: Form 990 Review Process PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY THE CFO AND THE EXECUTIVE DIRECTOR AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management THE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES OF THE EXECUTIVE DIRECTOR AND THE CHIEF FINANCIAL OFFICER, AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available The most recent Form 990s (including financial information), the Bylaws, Articles ofIncorporation, Form 1023 Application for Exemption, and Conflict of Interest Policyare provided to the public upon request