MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period
2017-01-01 to 2017-12-31
Filed
2018-11-15
IRS object ID
201813199349300911
Schema version
2017v2.3
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-11-15T05:27:24-06:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BDO USA LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line18401 GREENSBORO DRIVE 800AddressLine1Txt
CityMCLEANCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22102ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN131665552EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MUSCULAR DYSTROPHY ASSOCIATION INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% JENNIFER BUZALSKIVP FINANCEInCareOfNm
Business Name ControlMUSCBusinessNameControlTxt
Phone3122605975PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK ST Suite 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMICHAEL J KENNEDYPersonNm
Person TitleCFOPersonTitleTxt
Phone3122605900PhoneNum
Signature2018-11-08SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMarc BergerPreparerPersonNm
PTINP01871563PTIN
Phone7038930600PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address72.190.123.86IPv4AddressTxt
FieldValueIRS element (for citing)
Federal Original Submission Id54621820183195000001FederalOriginalSubmissionId
Federal Original Submission Id2018-11-15FederalOriginalSubmissionIdDt
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id453C092F4FAE56C85AAB65CCAB8DCA36E7EE5C2AAtSubmissionCreationDeviceId
At Submission Filing Device Id453C092F4FAE56C85AAB65CCAB8DCA36E7EE5C2AAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerLynn O'Connor VosPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK ST3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$154,243,004GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.mda.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1950FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionSEE SCHEDULE OActivityOrMissionDesc
Voting Members Governing Body21VotingMembersGoverningBodyCnt
Voting Members Independent21VotingMembersIndependentCnt
Total Employee939TotalEmployeeCnt
Total Volunteers350000TotalVolunteersCnt
Total Gross UBI$298,749TotalGrossUBIAmt
PY Contributions Grants$117,071,918PYContributionsGrantsAmt
CY Contributions Grants$113,962,253CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$2,325,061PYInvestmentIncomeAmt
CY Investment Income$2,531,003CYInvestmentIncomeAmt
PY Other Revenue$1,263,423PYOtherRevenueAmt
CY Other Revenue$992,004CYOtherRevenueAmt
PY Total Revenue$120,660,402PYTotalRevenueAmt
CY Total Revenue$117,485,260CYTotalRevenueAmt
PY Grants And Similar Paid$26,545,578PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$26,449,500CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$56,846,712PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$56,599,128CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$1,302,349PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$16,591,367CYTotalFundraisingExpenseAmt
PY Other Expenses$33,386,666PYOtherExpensesAmt
CY Other Expenses$29,034,942CYOtherExpensesAmt
PY Total Expenses$118,081,305PYTotalExpensesAmt
CY Total Expenses$112,083,570CYTotalExpensesAmt
PY Revenues Less Expenses$2,579,097PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$5,401,690CYRevenuesLessExpensesAmt
Total Assets BOY$91,932,738TotalAssetsBOYAmt
Total Assets EOY$94,239,232TotalAssetsEOYAmt
Total Liabilities BOY$84,003,147TotalLiabilitiesBOYAmt
Total Liabilities EOY$78,070,364TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$7,929,591NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$16,168,868NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionMDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$48,615,507ExpenseAmt
Grant$11,107,459GrantAmt
DescHEALTH CARE AND COMMUNITY SERVICES Individuals with muscular dystrophy, ALS and related life-threatening diseases are our moms and dads, sons and daughters, our friends, neighbors, co-workers and loved ones. At MDA, were proud to offer expert multidisciplinary care that will help manage disease symptoms to help optimize health and well-being from day one. Were committed to maximizing strength and mobility for families, promoting their quality of life and independence, breaking down barriers and making sure they know they are never alone in this fight. Individuals and families living with neuromuscular diseases face a variety of daily challenges. To help, MDA offers a comprehensive services program to help improve lives and support families from day one. Ranging from a nationwide network of state-of-the-art MDA Care Centers located at the nations top medical facilities to assistance with essential support services, MDA is here to help families today. Our heath care and community services accounted for 48,615,507 of our 2017 expenditures. As we strive to revolutionize care and support, here are some of the key ways we supported families in 2017: -More than 100,000 kids and adults and their families are registered with MDA to receive care, services, support and information through MDA Care Centers and other MDA local and national programs. -Provided comprehensive multidisciplinary care focused on families needs at more than 150 MDA Care Centers through nearly 50,000 visits. -Hosted more than 340 events and activities, including support groups, educational events and family gatherings, for families to learn, connect and address daily needs and challenges. -Offered 71 weeklong, barrier-free summer camps for nearly 3,800 children - at no cost to their families - to help them build self-confidence and independence so they can live unlimited. -Provided more than 3,000 gently used assistive devices to kids and adults to help them maintain mobility and independence through MDAs equipment assistance program. -Supported young adults through MDAs online tools and services, helping them navigate education, employment and independent living through resources, programming and community connections. -Helped 10,000 individuals with the answers and assistance they needed through its National Resource Center, which connects individuals impacted by neuromuscular disease with trained one-on-one specialists for resources and support. Additionally, through MDAs public policy and advocacy program, were working together to ensure that policymakers understand the needs of the neuromuscular disease community.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$18,275,689ExpenseAmt
Grant$15,342,041GrantAmt
DescRESEARCH Every day, children are born with muscular dystrophy and related life-threatening diseases affecting muscles that take away the ability to walk, move, hug, talk and even breathe. Similarly, adults are facing devastating diseases like ALS that cause nerves to die and muscles to deteriorate, resulting in loss of mobility and other severe health complications. For these kids and adults, there are currently few treatments and no cures. MDAs research program is designed to change that. We are the only nonprofit taking a big-picture perspective on diseases that limit muscle strength and mobility by focusing on making breakthroughs across diseases. What we learn on the frontlines in one area can potentially have positive impacts in others. In 2017, MDA spent $18,275,689 on research projects aimed at accelerating urgently needed treatments and cures for the families we serve. MDAs long-term investment in research has contributed to dozens of clinical trials now underway for novel drugs and therapies, and led to the approvals in 2017 of Exondys 51 to treat some forms of Duchenne muscular dystrophy and Spinraza to treat spinal muscular atrophy. On the heels of this progress, more new drugs in development to treat neuromuscular diseases are expected during the next five years than in the previous 50. Some of the areas where we see the greatest potential are: -Gene targeting therapies (replacement, exon skipping, mutation read through and editing) -Stem cell therapies -Small molecule therapies: In trials to improve multiple facets of neuromuscular disease, such as muscle atrophy, mitochondrial dysfunction, muscle contractility, inflammation, reduced perfusion and fibrosis. In 2017, MDA awarded 70 new research grants to leading scientists around the globe. MDA's Research and MVP Advisory Committees - whose members are among the nation's foremost scientists, physicians and experts in the field of neuromuscular disease and the drug development industry - carefully evaluate all grant proposals submitted and recommend the best to MDAs Board of Directors for approval. Reports on ongoing progress in MDAs efforts to speed the development of treatments and cures, including the status of human clinical trials to test potential therapies, can be found at mda.org/research.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$14,307,318ExpenseAmt
DescPROFESSIONAL AND PUBLIC HEALTH EDUCATION Muscular dystrophy, ALS and related life-threatening diseases that limit muscle strength and mobility take away everyday abilities such as walking, standing, dressing oneself, hugging someone dear and even breathing. At MDA, we dedicate every minute of every day to fighting to free our families from the harmful effects of these diseases. Providing professional and public health education is one of the many ways in which MDA is working to save and improve lives. In 2017, MDA spent $14,307,318 to provide professional and public health education. We promoted a deeper understanding and an awareness to rally and inspire action through a variety of innovative strategies, including the following: -Delivered timely information on mda.org, which is recognized internationally as a key source of information about neuromuscular diseases. -Every month, nearly 300,000 visitors come to mda.org and related MDA websites to find the information and resources they need - thats about 3.4 million people a year. -Placed thousands of documented news stories about MDAs mission with network, syndicated and local broadcast outlets, print news publications and online, including frequent social media postings through Facebook, Twitter and Instagram. -Delivered critical information on research, care and independent living through MDAs award-winning national Quest Magazine, which has a readership of nearly 800,000 in print and online combined. -Produced, distributed and posted on YouTube hundreds of informational videos and educational materials about the challenges of living with muscular dystrophy and related diseases, facts and information, practical tips to help families, personal stories and more. -Launched its blog Strongly to bring together the stories and voices of individuals and families across the MDA community, publishing more than 200 stories that reached more than 80,000 people. MDA used social media to promote Strongly stories and other content of interest to MDA families and supporters, reaching more than 20 million people. -Hosted the pre-eminent gathering of clinicians, allied health professionals and scientific experts specializing in neuromuscular disease research and clinical care at the 2016 MDA Clinical Conference in Arlington, Va., bringing together the nations best and brightest experts to share information and learn about new approaches and techniques for clinical management of neuromuscular disorders, to hear about the latest information regarding clinical trial results and to engage in dialogue and networking among peers.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$81,198,514TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredfalseScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtYes (true)CollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsYes (true)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesYes (true)GamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonYes (true)GrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntYes (true)BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionYes (true)DeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document1001IRPDocumentCnt
IRP Document W2 G23IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee939EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OfYes (true)Form8282PropertyDisposedOfInd
Form8282 Filed10Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members21GoverningBodyVotingMembersCnt
Independent Voting Member21IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPRStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJENNIFER BUZALSKIVP FINANCEPersonNm
Phone3122605975PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK STREET STE 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (33 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
STANLEY APPEL MD
DIRECTOR1.00.0Yes (X)$0$0$0
BENJAMIN CUMBO III
DIRECTOR1.00.0Yes (X)$0$0$0
STEVE FARELLA
DIRECTOR1.00.0Yes (X)$0$0$0
DANIEL G FRIES
DIRECTOR1.00.0Yes (X)$0$0$0
GOVERNOR BRAD HENRY
DIRECTOR1.00.0Yes (X)$0$0$0
R RODNEY HOWELL MD
CHAIRMAN5.00.0Yes (X)$0$0$0Yes (X)
DAVE HUTTON
DIRECTOR1.00.0Yes (X)$0$0$0
LOUIS KUNKEL PHD
DIRECTOR1.00.0Yes (X)$0$0$0
PATRICIA NAZEMETZ
DIRECTOR1.00.0Yes (X)$0$0$0
CHRISTOPHER J ROSA PHD
VICE CHAIR1.00.0Yes (X)$0$0$0Yes (X)
MIKE ROWLETT
DIRECTOR1.00.0Yes (X)$0$0$0
CHARLES D SCHOOR ESQ
SECRETARY2.00.0Yes (X)$0$0$0Yes (X)
MARK SMITH
DIRECTOR1.00.0Yes (X)$0$0$0
JOHN TOGNINO
DIRECTOR1.00.0Yes (X)$0$0$0
VICTOR WRIGHT
TREASURER2.00.0Yes (X)$0$0$0Yes (X)
LILIAN WU PHD
DIRECTOR1.00.0Yes (X)$0$0$0
HAROLD CRUMP
EMERITUS DIRECTOR1.00.0Yes (X)$0$0$0
OLIN MORRIS
EMERITUS DIRECTOR1.00.0Yes (X)$0$0$0
BART CONNER
EMERITUS DIRECTOR1.00.0Yes (X)$0$0$0
JOSEPH S DIMARTINO
EMERITUS DIRECTOR1.00.0Yes (X)$0$0$0
TIMMI MASTERS
EMERITUS DIRECTOR1.00.0Yes (X)$0$0$0
KRISTINE WELKER
INTERIM PRES. & CEO (Feb-Sept)50.00.0Yes (X)$211,207$0$0Yes (X)
STEVEN M DERKS
PRESIDENT & CEO50.00.0$1,088,326$0$3,504Yes (X)
JULIE FABER CPA
ASST. TREASURER & CFO50.00.0$240,628$0$7,361Yes (X)
EILEEN TIMMINS PHD
ASST.SEC.EVP CHIEF PPL OFFICER50.00.0$194,724$0$14,341Yes (X)
VALERIE A CWIK MD
ASST. SEC. CHIEF MED SCIENTIFI50.00.0$74,157$0$0Yes (X)
KAREN ALEXANDER
EVP,CHIEF IMPACT/PHILAN.OFFICE50.00.0$357,243$0$11,213Yes (X)
JOHN WALSH
DIVISION CHIEF EXECUTIVE50.00.0$167,054$0$18,503Yes (X)
GRACE K PAVLATH PHD
SR VP SCIENTIFIC PROGRAM DIR.50.00.0$197,227$0$12,233Yes (X)
GAIL SCHMERTZ KERNER ESQ
SR. VP & GENERAL COUNSEL50.00.0$189,068$0$18,503Yes (X)
NANCY STINSON HARRIS
NVP OF CORP PARTNERSHIPS50.00.0$188,168$0$7,906Yes (X)
KRISTIN STEPHENSON
SVP,CHIEF POL&COMM ENG OFFICER50.00.0$156,384$0$18,503Yes (X)
NATALIE STAMER
VP OF DIGITAL & CONTENT MARKET50.00.0$144,803$0$21,023Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$3,208,989TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$133,090TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K56IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
EGL GENETIC DIAGNOSTICS LLC
2165 NORTH DECATUR RDDECATURGA30033GENETIC TESTING$576,900
HYATT REGENCY CRYSTAL CITY
2799 JEFFERSON DAVIS HWYARLINGTONVA22202HOTEL SERVICES$319,724
INVOLTA LLC
PO BOX 1986CEDAR RAPIDSIA524061986IT SERVICES$197,876
HOLLAND KNIGHT LLP
PO BOX 864084ORLANDOFL328864084LEGAL SERVICES$172,036
RANDSTAD STAFFING SERVICES
2300 NORTH MAYFAIR RD STE 220WAUWATOSAWI53226TEMPORARY STAFFING$167,567
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K13CntrctRcvdGreaterThan100KCnt
Federated Campaigns$479,536FederatedCampaignsAmt
Fundraising$89,304,229FundraisingAmt
Government Grants$490,406GovernmentGrantsAmt
All Other Contributions$23,688,082AllOtherContributionsAmt
Noncash Contributions$1,723,809NoncashContributionsAmt
Total Contributions$113,962,253TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,918,927TotalRevenueColumnAmt
Exclusion$1,918,927ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,550TotalRevenueColumnAmt
Exclusion$1,550ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$0RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$29,396,969SecuritiesAmt
Other$0OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$28,783,518SecuritiesAmt
Other$1,375OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$613,451SecuritiesAmt
Other-$1,375OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$612,076TotalRevenueColumnAmt
Exclusion$612,076ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$7,942,063FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$89,304,229ContriRptFundraisingEventAmt
Fundraising Direct Expenses$7,942,063FundraisingDirectExpensesAmt
Gaming Gross Income$374,547GamingGrossIncomeAmt
Gaming Direct Expenses$30,788GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$343,759TotalRevenueColumnAmt
Exclusion$343,759ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$0GrossSalesOfInventoryAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtExclusionExclusionAmt
QUEST ADVERTISING541800$298,749$298,749
OTHER REVENUE900099$347,946$347,946
FieldValueIRS element (for citing)
Other Revenue Total$646,695OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$117,485,260TotalRevenueColumnAmt
Unrelated Business Revenue$298,749UnrelatedBusinessRevenueAmt
Exclusion$3,224,258ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$23,988,758TotalAmt
Program Services$23,988,758ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$2,460,742TotalAmt
Program Services$2,460,742ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$2,543,740TotalAmt
Program Services$399,002ProgramServicesAmt
Management And General$1,765,827ManagementAndGeneralAmt
Fundraising$378,911FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$41,632,172TotalAmt
Program Services$32,815,341ProgramServicesAmt
Management And General$4,325,981ManagementAndGeneralAmt
Fundraising$4,490,850FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$8,925,427TotalAmt
Program Services$6,116,006ProgramServicesAmt
Management And General$1,859,285ManagementAndGeneralAmt
Fundraising$950,136FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$3,497,789TotalAmt
Program Services$2,735,128ProgramServicesAmt
Management And General$398,790ManagementAndGeneralAmt
Fundraising$363,871FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$168,199TotalAmt
Program Services$76,306ProgramServicesAmt
Management And General$86,318ManagementAndGeneralAmt
Fundraising$5,575FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$271,389TotalAmt
Management And General$271,389ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$152,064TotalAmt
Management And General$133,329ManagementAndGeneralAmt
Fundraising$18,735FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$8,400,679TotalAmt
Program Services$1,726,820ProgramServicesAmt
Management And General$993,500ManagementAndGeneralAmt
Fundraising$5,680,359FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$8,206,220TotalAmt
Program Services$3,118,259ProgramServicesAmt
Management And General$1,499,631ManagementAndGeneralAmt
Fundraising$3,588,330FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$329,186TotalAmt
Management And General$329,186ManagementAndGeneralAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$5,815,123TotalAmt
Program Services$4,808,874ProgramServicesAmt
Management And General$593,535ManagementAndGeneralAmt
Fundraising$412,714FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$3,069,619TotalAmt
Program Services$2,477,285ProgramServicesAmt
Management And General$236,129ManagementAndGeneralAmt
Fundraising$356,205FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$73,723TotalAmt
Program Services$64,692ProgramServicesAmt
Management And General$6,315ManagementAndGeneralAmt
Fundraising$2,716FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$327,298TotalAmt
Management And General$327,298ManagementAndGeneralAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$278,568TotalAmt
Program Services$203,728ProgramServicesAmt
Management And General$59,980ManagementAndGeneralAmt
Fundraising$14,860FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescMISC EXPENSESDesc
Total$1,942,874TotalAmt
Program Services$207,573ProgramServicesAmt
Management And General$1,407,196ManagementAndGeneralAmt
Fundraising$328,105FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$112,083,570TotalAmt
Program Services$81,198,514ProgramServicesAmt
Management And General$14,293,689ManagementAndGeneralAmt
Fundraising$16,591,367FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$3,154,925TotalAmt
Program Services$452,907ProgramServicesAmt
Management And General$766,296ManagementAndGeneralAmt
Fundraising$1,935,722FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$18,072,103BOYAmt
EOY$19,034,996EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$2,721,033BOYAmt
EOY$2,897,784EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$1,927,974BOYAmt
EOY$1,916,899EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$6,897,201LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$6,341,269LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$639,060BOYAmt
EOY$555,932EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$68,572,568BOYAmt
EOY$69,833,621EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$91,932,738BOYAmt
EOY$94,239,232EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$6,162,142BOYAmt
EOY$5,713,039EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$9,061,097BOYAmt
EOY$9,674,969EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$13,500,000BOYAmt
EOY$10,000,000EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$55,279,908BOYAmt
EOY$52,682,356EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$84,003,147BOYAmt
EOY$78,070,364EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,423,467BOYAmt
EOY$10,090,586EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,902,429BOYAmt
EOY$5,160,724EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$603,695BOYAmt
EOY$917,558EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,929,591BOYAmt
EOY$16,168,868EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$91,932,738BOYAmt
EOY$94,239,232EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$5,401,690ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$6,376,730NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets-$3,539,143OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$144,990,094CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$135,174,690CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$121,934,463CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$117,071,918CurrentTaxYearMinus1YearAmt
Current Tax Year$113,962,253CurrentTaxYearAmt
Total$633,133,418TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$144,990,094CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$135,174,690CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$121,934,463CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$117,071,918CurrentTaxYearMinus1YearAmt
Current Tax Year$113,962,253CurrentTaxYearAmt
Total$633,133,418TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$633,133,418PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,465,164CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,555,130CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,700,561CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,736,766CurrentTaxYearMinus1YearAmt
Current Tax Year$1,918,927CurrentTaxYearAmt
Total$9,376,548TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$478,287CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$331,475CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$432,222CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$312,578CurrentTaxYearMinus1YearAmt
Current Tax Year$347,946CurrentTaxYearAmt
Total$1,902,508TotalAmt
FieldValueIRS element (for citing)
Total Support$644,412,474TotalSupportAmt
Public Support CY1700.98250PublicSupportCY170Pct
Public Support PY1700.98436PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$510,119FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$510,119FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$119,719,164FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$120,229,283FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$1,000,000FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$250,000FilingOrganizationsTotalAmt
FieldValueIRS element (for citing)
Tot Lbbyng Grassroot Mns Non TxTotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non TxTotLbbyExpendMnsLbbyngNonTxGrp
Form4720 FiledfalseForm4720FiledInd

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$1,000,000CurrentYearMinus3Amt
Current Year Minus2$1,000,000CurrentYearMinus2Amt
Current Year Minus1$1,000,000CurrentYearMinus1Amt
Current Year$1,000,000CurrentYearAmt
Total$4,000,000TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$6,000,000LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$261,051CurrentYearMinus3Amt
Current Year Minus2$375,042CurrentYearMinus2Amt
Current Year Minus1$463,056CurrentYearMinus1Amt
Current Year$510,119CurrentYearAmt
Total$1,609,268TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$250,000CurrentYearMinus3Amt
Current Year Minus2$250,000CurrentYearMinus2Amt
Current Year Minus1$250,000CurrentYearMinus1Amt
Current Year$250,000CurrentYearAmt
Total$1,000,000TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,500,000GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$15,977CurrentYearMinus3Amt
Current Year Minus2$17,255CurrentYearMinus2Amt
Current Year Minus1$1,438CurrentYearMinus1Amt
Current Year$0CurrentYearAmt
Total$34,670TotalAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Art Public Exhibition AmountsArtPublicExhibitionAmountsGrp
Held Works ArtHeldWorksArtGrp
Collection Used Pub ExhibitionYes (X)CollectionUsedPubExhibitionInd
Collection Used PreservationYes (X)CollectionUsedPreservationInd
Coll Used Loan Or Exch ProgYes (X)CollUsedLoanOrExchProgInd
Solicited Assets SalefalseSolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$477,155BeginningYearBalanceAmt
Contributions$259,816ContributionsAmt
Investment Earnings Or Losses$54,014InvestmentEarningsOrLossesAmt
End Year Balance$790,985EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$357,197BeginningYearBalanceAmt
Contributions$90,075ContributionsAmt
Investment Earnings Or Losses$29,883InvestmentEarningsOrLossesAmt
End Year Balance$477,155EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$362,888BeginningYearBalanceAmt
Investment Earnings Or Losses-$5,691InvestmentEarningsOrLossesAmt
End Year Balance$357,197EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$346,757BeginningYearBalanceAmt
Investment Earnings Or Losses$16,131InvestmentEarningsOrLossesAmt
End Year Balance$362,888EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$251,275BeginningYearBalanceAmt
Contributions$50,000ContributionsAmt
Investment Earnings Or Losses$45,482InvestmentEarningsOrLossesAmt
End Year Balance$346,757EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY0.00000BoardDesignatedBalanceEOYPct
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY0.00000TermEndowmentBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd
LandLandGrp
BuildingsBuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$17,247OtherCostOrOtherBasisAmt
Depreciation$14,735DepreciationAmt
Book Value$2,512BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$6,823,847OtherCostOrOtherBasisAmt
Depreciation$6,270,642DepreciationAmt
Book Value$553,205BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$56,107OtherCostOrOtherBasisAmt
Depreciation$55,892DepreciationAmt
Book Value$215BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$555,932TotalBookValueLandBuildingsAmt
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescPENSION POSTRETIREMENT PLAN OBDesc
Amt$52,682,356Amt
FieldValueIRS element (for citing)
Total Liability$52,682,356TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$123,861,990TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$6,376,730NetUnrealizedGainsInvstAmt
Revenue Not Reported$6,376,730RevenueNotReportedAmt
Revenue Subtotal$117,485,260RevenueSubtotalAmt
Total Revenue Per Form990$117,485,260TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$112,083,570TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$112,083,570ExpensesSubtotalAmt
Total Expenses Per Form990$112,083,570TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, SCHEDULE D, PART III, LINE 4THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
FORM 990, SCHEDULE D, PART X, LINE 2U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2017, 2016, 2015 AND 2014 ARE ALSO OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
East Asia and the Pacific00Program ServicesGRANTS TO RECIPIENTS$505,876
Europe (Including Iceland and Greenland)00Program ServicesGRANTS TO RECIPIENTS$879,632
North America00Program ServicesGRANTS TO RECIPIENTS$907,234
South America00Program ServicesGRANTS TO RECIPIENTS$158,000
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$2,450,742SubtotalSpentAmt
Total Spent$2,450,742TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
East Asia and the PacificRESEARCH$505,876CHECK
Europe (Including Iceland and Greenland)RESEARCH$879,632CHECK
North AmericaRESEARCH$907,234check
South AmericaResearch$158,000CHECK
FieldValueIRS element (for citing)
Total501c3 Org4Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990, SCHEDULE F, PART I, LINE 2FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1SPECIAL EVENTSEvent1Nm
Gross Receipts Event1$66,928,112GrossReceiptsEvent1Amt
Charitable Contri Event1$63,814,294CharitableContriEvent1Amt
Gross Revenue Event1$3,113,818GrossRevenueEvent1Amt
Other Direct Expenses Event1$3,113,818OtherDirectExpensesEvent1Amt
Event2SIGNATUREEvent2Nm
Gross Receipts Event2$14,569,963GrossReceiptsEvent2Amt
Charitable Contri Event2$11,777,030CharitableContriEvent2Amt
Gross Revenue Event2$2,792,933GrossRevenueEvent2Amt
Other Direct Expenses Event2$2,792,933OtherDirectExpensesEvent2Amt
Other Events Total333OtherEventsTotalCnt
Gross Receipts Other Events$15,745,744GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$13,712,905CharitableContriOtherEventsAmt
Gross Revenue Other Events$2,032,839GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$2,032,839OthDirectExpnssOtherEventsAmt
Gross Receipts Total$97,243,819GrossReceiptsTotalAmt
Charitable Contributions Tot$89,304,229CharitableContributionsTotAmt
Gross Revenue Total Events$7,939,590GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$7,939,590OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$7,939,590DirectExpenseSummaryEventsAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$374,547GrossRevenueOtherGamingAmt
Oth Direct Expnss Other Gaming$30,788OthDirectExpnssOtherGamingAmt
Volunteer Labor Other GamingYes (true)VolunteerLaborOtherGamingInd
Volunteer Labor Other Gaming1.00000VolunteerLaborOtherGamingPct
Gross Revenue Total Gaming$374,547GrossRevenueTotalGamingAmt
Oth Direct Expnss Total Gaming$30,788OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming$30,788DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$343,759NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedCTStatesWhereGamingConductedCd
States Where Gaming ConductedGAStatesWhereGamingConductedCd
States Where Gaming ConductedLAStatesWhereGamingConductedCd
States Where Gaming ConductedMNStatesWhereGamingConductedCd
States Where Gaming ConductedNEStatesWhereGamingConductedCd
States Where Gaming ConductedNYStatesWhereGamingConductedCd
States Where Gaming ConductedOKStatesWhereGamingConductedCd
States Where Gaming ConductedPAStatesWhereGamingConductedCd
States Where Gaming ConductedTXStatesWhereGamingConductedCd
States Where Gaming ConductedVAStatesWhereGamingConductedCd
States Where Gaming ConductedWAStatesWhereGamingConductedCd
States Where Gaming ConductedWIStatesWhereGamingConductedCd
LicensedYes (true)LicensedInd
License Suspended EtcfalseLicenseSuspendedEtcInd
Gaming With NonmembersfalseGamingWithNonmembersInd
Member Of Other EntityfalseMemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct
Individual With BooksJENNIFER BUZALSKI Vice President FIndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK STAddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game RevfalseCntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonNAGamingManagerPersonNm
Charitable Distribution RqrfalseCharitableDistributionRqrInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (250 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtIRC SectionIRCSectionDesc
Als Biomarker Consortium
PO Box 1598New YorkNY10101810756743$100,000Research
American Brain Foundation
201 Chicago aveMinneapolisMN55415411717098$43,333Research501(C)(3)
Ann & Robert H Lurie Childrens Hosp
225 E Chicago aveChicagoIL60611362170833$100,000Research501(c)(3)
Ann an Robert H Lurie Childrens Hosp
225 E Chicago aveChicagoIL60611362170833$50,000Medical Diagnosis501(c)(3)
Baycare MEDICAL Group
300 pk Place BlvdClearwaterFL33759593140335$25,000Medical Diagnosis501(C)(3)
Baylor College of Medicine
PO Box 301207DallasTX753031207741613878$35,000Medical Diagnosis501(c)(3)
Baylor College Of Medicine
One Baylor Plaza MSHoustonTX77030741613878$360,000Research501(c)(3)
Beaumont Health System
3601 W 13 Mile rdRoyal OakMI48073381459362$25,000Medical Diagnosis501(C)(3)
Billings Clinic fOUNDATION
PO Box 31031BillingsMT591071031810407289$10,000Medical Diagnosis501(C)(3)
BOD of S Illinois University
PO Box 19616SpringfieldIL627949616376005961$10,000Medical DiagnosisSTATE OF IL
Brigham & Womens Hosp Research
PO Box 3149BostonMA022413149042312909$7,500Medical Diagnosis501(C)(3)
Brigham & Womens Hosp Research
PO Box 3149BostonMA022413149042312909$22,500Medical Diagnosis501(C)(3)
Broad Institute
75 Ames StCambridgeMA02142263428781$110,000Research501(C)(3)
Brown University
164 Angell StProvidenceRI02912050258809$103,750Research501(C)(3)
cali PACIFIC MEDICAL CENTER FOUNDATION
2324 Sacramento StSan FranciscoCA94115942728943$313,186Medical Diagnosis501(C)(3)
cali PACIFIC medical
2324 Sacramento StSan FranciscoCA94115942728943$22,414Medical Diagnosis501(C)(3)
Carilion Clinic Resrchdev
101 Elm ave SERoanokeVA24013540506332$20,000Medical Diagnosis501(C)(3)
Carle foundation hospital
611 West pkUrbanaIL618012512371119538$10,000Medical Diagnosis
Carolinas HealthCare foundation
208 East blvdCharlotteNC28203566060481$60,659Research501(C)(3)
Carolinas HealthCare foundation
208 East blvdCharlotteNC28203566060481$60,659Research501(C)(3)
Carolinas HealthCare foundation
208 East blvdCharlotteNC28203566060481$60,659Research501(C)(3)
Carolinas HealthCare foundation
208 East blvdCharlotteNC28203566060481$60,659Research501(C)(3)
Carolinas HealthCare foundation
208 East blvdCharlotteNC28203566060481$90,000Medical Diagnosis501(C)(3)
Cedars-Sinai medical center
8700 Beverly blvdLos AngelesCA90048951644600$100,000Research501(c)(3)
Cedars-Sinai medical center
8701 Beverly blvdLos AngelesCA90048951644600$50,000Medical Diagnosis501(c)(3)
CTRL TX Neurology ConsultANTS
16040 pk Valley DrRound RockTX78681742710396$10,000Medical Diagnosis501(C)(3)
Child Neurology Consultants of austin
6811 Austin ctr BlvdAustinTX78731472192039$10,000Medical Diagnosis
childrens Clinic for Rehab svc
2600 North Wyatt DriveTucsonAZ85712860667510$20,000Medical Diagnosis501(C)(3)
childrens Healthcare of Atlanta
1577 NE ExpresswayAtlantaGA30329580572465$25,000Medical Diagnosis501(C)(3)
childrens'S hospital Boston
PO Box 414413BostonMA022414413042774441$358,387Research501(c)(3)
childrens hospital CO
13123 E 16th aveAuroraCO80045840166760$55,000Medical Diagnosis501(C)(3)
childrens hospital Corporation
PO Box 414413BostonMA022414413042774441$25,000Medical Diagnosis501(C)(3)
childrens hospital Los Angeles
Spon Proj OfficeLos AngelesCA90027951690977$20,000Medical Diagnosis501(c)(3)
childrens hospital medical center
3333 Burnet AveCincinnatiOH452293039310833963$50,000Medical Diagnosis501(C)(3)
childrens hospital of Orange Cty
1201 W La Veta AveOrangeCA928683874952321786$10,000Medical Diagnosis501(C)(3)
childrens hospital of PA
3401 Civic ctr BlvdPhiladelphiaPA19104231352166$75,000Medical Diagnosis501(C)(3)
childrens hospital of PA
3401 Civic ctr BlvdPhiladelphiaPA19104231352166$100,000Research501(C)(3)
childrens hospital of Pittsbgh fdn
4401 Penn avePittsburghPA15224251865744$25,000Medical Diagnosis501(C)(3)
childrens hospital of King Daug Inc
601 chldns LaneNorfolkVA23507540506321$15,000Medical Diagnosis501(C)(3)
childrens hospital
200 Henry Clay aveNew OrleansLA70118720467503$10,000Medical Diagnosis501(C)(3)
childrens National medical center
111 Michigan ave NWWashingtonDC20010521640403$31,250Medical Diagnosis501(C)(3)
children's Research Institute
111 Michigan ave NWWashingtonDC20010521654453$219,563Research501(c)(3)
Clinical neurology PC
4221 S WesternOklahoma CityOK73109412141136$75,000Medical Diagnosis501(C)(3)
Colorado State University
Box 2002Fort CollinsCO805232002846000545$100,000ResearchState of CO
Columbia university medical center
630 West 168th stNew YorkNY10032135598093$209,917Research501(C)(3)
Columbia university medical center
630 West 168th stNew YorkNY10032135598093$70,192Research501(C)(3)
Connecticut chldns medical center
282 Washington stHartfordCT061063322060646755$20,000Medical Diagnosis501(C)(3)
Cook childrends medical center
801 Seventh aveFt WorthTX76104752051646$15,000Medical Diagnosis501(C)(3)
Cornell University
373 Pine Tree rdIthacaNY14850150532082$99,999Research501(c)(3)
Dana-Farber Cancer Institute
450 Brookline aveBostonMA022155450042263040$60,000ResearchC-corp
Dean Health Systems Inc
1808 West Beltline HwyMadisonWI53715391128616$20,000Medical Diagnosis501(C)(3)
Dent Neurologic Institute
3980 Sheridan DriveAmherstNY14226161582336$20,000Medical Diagnosis501(C)(3)
St Josephs hosp AZ
Case File 57431Los AngelesCA900748781860096787$50,000Medical Diagnosis501(C)(3)
Driscoll childrens hospital
3533 S Alameda StCorpus ChristiTX78411742577746$10,000Medical Diagnosis501(C)(3)
Duke Uni medical center
PO Box 602651CharlotteNC282602651560532129$100,000Medical Diagnosis501(C)(3)
Emory University
1599 Clifton rd NEAtlantaGA30322580566256$99,998Research501(c)(3)
Emory University
1599 Clifton rd NEAtlantaGA30322580566256$38,873Research501(c)(3)
Emory University
1599 Clifton rd NEAtlantaGA30322580566256$77,746Research501(c)(3)
Emory University
1599 Clifton rd NEAtlantaGA30322580566256$38,873Research501(c)(3)
Essentia Health Duluth
400 E 3rd stDuluthMN55805410884623$10,000Medical Diagnosis501(C)(3)
Geisinger Clinic
100 N Academy AveDanvillePA178223069236291113$20,000Medical Diagnosis501(C)(3)
George Washington University
2121 Eye St NWWashingtonDC20052530196584$240,496Research501(C)(3)
Gillette childrens specialty healthcare
200 East Uni aveSt PaulMN55101363379150$50,000Medical Diagnosis501(C)(3)
Global Conf On Myositis
4909 Lannie rdJacksonvilleFL32218812402265$7,500Research501(C)(3)
Good Shepherd Rehab hospital
850 South 5Th stAllentownPA18103231371947$50,000Medical Diagnosis501(C)(3)
Greenville Health System
701 Grove rdGreenvilleSC29605811723202$20,000Medical Diagnosis501(C)(3)
Harvard medical School
PO Box 415649BostonMA02241042103580$100,000Research501(c)(3)
hospital For Special Care
2150 Corbin aveNew BritainCT60530060646766$50,000Medical Diagnosis501(C)(3)
Icagen-T
2090 E Inno pk DrOro ValleyAZ85755813002107$99,500ResearchC-CORP
Inland NW Health services
PO Box 2185SpokaneWA99210911307555$20,000Medical Diagnosis501(C)(3)
Instituto Rehabilitacion del Caribe
PO BOX 363792San JuanPR00936583880529$15,000Medical Diagnosis
IRON HORSE DIAGNOSTICS
21053 N 75th stScottsdaleAZ85255454537278$55,000Researchc-corp
IU Health Neuroscience ctr
355 W 16th stIndianapolisIN46202351955872$20,000Medical Diagnosis501(c)(3)
IU Health Riley hospital for children
355 W 16th stIndianapolisIN46202351955872$20,000Medical Diagnosis501(c)(3)
Izumi Biosciences Inc
23 Blueberry LaneLexingtonMA02420472572265$56,400Research501(C)(3)
Joan&Sanford Weill Medical college
1300 York aveNew YorkNY10065131623978$100,000Research501(C)(3)
Johns Hopkins University
12529 Colls ctr DrChicagoIL60693520595110$200,000Medical Diagnosis501(c)(3)
Johns Hopkins University School
733 N BrdwayBaltimoreMD21205520595110$70,192Research501(C)(3)
Johns Hopkins University
733 N BrdwayBaltimoreMD21205520595110$520,000Research501(C)(3)
KUMC Research Institute Inc
3901 Rainbow BlvdKansas CityKS66160481108830$75,000Medical Diagnosis501(C)(3)
Le Bonheur Community Health
50 Peabody PlaceMemphisTN38103621251288$25,000Medical Diagnosis501(C)(3)
Loma Linda University
24887 Taylor stLoma LindaCA92350951816009$35,000Medical Diagnosis501(C)(3)
LA State Uni health sciences center
433 Bolivar StNew OrleansLA70112726087770$30,000Medical Diagnosis501(C)(3)
LSUHSC-Shreveport
1501 Kings HwyShreveportLA71103720702002$20,000Medical Diagnosis501(C)(3)
Ludwig Inst For Cancer research
9500 Gilman DriveLa JollaCA920930660237121131$220,000Research501(C)(3)
Maine medical center
22 Bramhall StPortlandME04102010238552$15,000Medical Diagnosis501(C)(3)
Marshfield Clinic Research foundation
1000 North Oak aveMarshfieldWI54449390452970$10,000Medical Diagnosis501(C)(3)
Mass General hospital - research
PO Box 414876BostonMA022414876042697983$125,000Medical Diagnosis501(C)(3)
MA General hospital
101 Huntington AveBostonMA02199042697983$257,717Research501(C)(3)
MA General hospital
101 Huntington AveBostonMA02199042697983$110,000Research501(C)(3)
Mayo Clinic
4500 San Pablo rdJacksonvilleFL32224593337028$20,000Medical Diagnosis501(c)(3)
Mayo Clinic Jacksonvill
4500 San Pablo rdJacksonvilleFL32224593337028$195,000Research501(C)(3)
Mayo Clinic Jacksonville
4500 San Pablo rdJacksonvilleFL32224593337028$35,000Medical Diagnosis501(C)(3)
McKinnon md Group PLLC
351 N Buffalo DrLas VegasNV89145453720025$10,000Medical Diagnosis
MCV Associated Physicians
PO Box 980599RichmondVA232980599541581185$30,000Medical Diagnosis501(C)(3)
MDA Care center
814 750 East Adams StSyracuseNY13210141368361$10,000Medical Diagnosis501(C)(3)
MDA Clinic at Dartmouth
One md ctr DriveLebanonNH03756020222140$15,000Medical Diagnosis501(c)(3)
medical College of Wisconsin
9200 West WI aveMilwaukeeWI53226390806261$30,000Medical Diagnosis501(C)(3)
medical university of South Carolina
19 Hagood aveCharlestonSC294258080576000722$20,000Medical Diagnosis501(C)(3)
Medstar Georgetown univeristy hospital
3800 Reservoir RdWashingtonDC20007522228444$15,000Medical Diagnosis501(C)(3)
Mercy Health foundation
620 S Glenstone AveSpringfieldMO65802320195818$10,000Medical Diagnosis501(C)(3)
Michigan State university
426 Auditorium rdEast LansingMI48824386005984$25,000Medical Diagnosis501(C)(3)
Miller School Of Medicine
1320 S Dixie HighwayCoral GablesFL33146590624458$150,000ResearchState of FL
Montefiore medical center
3351 Steuben AveBronxNY10467131740114$50,000Medical Diagnosis501(C)(3)
NTL Inst Of Neuro Disorder & stroke
6001 Executive BvNorth BethesdaMD20852520858115$59,794Researchus gov
Nemours
10140 Centrn pkwayJacksonvilleFL32256590634433$35,000Medical Diagnosis501(C)(3)
Nemours foundation
10140 Centrn pkwayJacksonvilleFL32256590634433$65,000Medical Diagnosis501(C)(3)
Neurology LLPC
1919 S Wheeling aveTulsaOK74104731502318$25,000Medical Diagnosis
Neurology medical service Group
750 East Adams stSyracuseNY13210141368361$10,000Medical Diagnosis501(C)(3)
New York Uni School of Medicine
PO Box 415026BostonMA022415026135562308$50,000Medical DiagnosisSTATE of NY
Northeast Als Consortium
2720 Neilson WaySanta MonicaCA90409562547779$53,045Research501(c)(3)
NW medical Group Dept of Neuro
710 N Lakeshore DrChicagoIL60611363097297$50,000Medical DiagnosisST OF IL
Northwestern University
750 N Lake Shore DrChicagoIL60611362167817$160,000Research501(c)(3)
UCLA EduResearch Institute
14445 Olive View DrSylmarCA913421495952249539$25,000Medical Diagnosis501(C)(3)
Oregon Health and Sci University
0690 SW Bancroft StPortlandOR97239931176109$25,000Medical DiagnosisSTATE OF OR
OSF Multi-Specialty Group
800 NE Glen Oak AvePeoriaIL61603383852646$10,000Medical Diagnosis501(C)(3)
Palo Alto Vet Institute For Research
3801 Miranda avePalo AltoCA943040038770207331$60,000Research501(C)(3)
Phoenix childrens hospital
1919 East Thomas RdPhoenixAZ85016860422559$10,000Medical Diagnosis501(C)(3)
Ponce Health Sciences University
PO Box 7004PoncePR007327004660379122$20,000Medical Diagnosis501(C)(3)
Purdue University
155 S Grant stw LafayetteIN479072114356002041$58,074ResearchSTATE OF IN
Rady childrens hospital foundation
3020 chldns WaySan DiegoCA921234282330170626$20,000Medical Diagnosis501(C)(3)
Regents of the University of california
4860 Y stSacramentoCA95817946036494$50,000Medical Diagnosis501(C)(3)
Regents of the University of MN
PO Box 1450MinneapolisMN554855957416007513$75,000Medical DiagnosisSTATE OF MN
Nationwide childrens hospital
700 chldns DriveColumbusOH43205316056230$170,000Research501(C)(3)
Rhode Island hospital
593 Eddy stProvidenceRI029034923050258954$10,000Medical Diagnosis501(C)(3)
Rush University medical center
1653 W Congress pkwayChicagoIL60612362174823$20,000Medical Diagnosis501(C)(3)
Rutgers
65 Bergen stNewarkNJ07103462354111$100,000ResearchSTATE OF NJ
Rutgers State University of NJ
65 Bergen stNewarkNJ07103462354111$50,000Medical DiagnosisSTATE OF NJ
Salk Institute for Biological studies
10010 N Torrey Pines rdLa JollaCA920371002952160097$60,000Research501(C)(3)
Sanford childrens specialty Clinic
415 N 3rd aveFargoND58102911770748$10,000Medical Diagnosis501(C)(3)
Sanford medical center Fargo
415 N 3rd aveFargoND58102911770748$10,000Medical Diagnosis501(C)(3)
Sanford-Burnham medical research inst
10901 N Torrey Pines rdLa JollaCA92037510197108$198,934Research501(c)(3)
Sarasota Memorial hospital
1700 Tamiami TrailSarasotaFL34239596012500$20,000Medical Diagnosis501(C)(3)
Seattle childrens hospital
4300 Roosevelt Way NESeattleWA98105910564748$50,000Medical Diagnosis501(C)(3)
Shriners hospital for children
3101 SW Sam Jksn pkPortlandOR97239362193608$7,500Medical Diagnosis501(C)(3)
Shriners hospital for children
12502 Pine DrTampaFL33612362193608$6,250Medical Diagnosis501(C)(3)
Shriners hospital for children
2211 North Oak pk AveChicagoIL60707362193608$20,000Medical Diagnosis501(C)(3)
Shriners hospital for children
12502 Pine DrTampaFL33612362193608$18,750Medical Diagnosis501(C)(3)
St Charles hospital foundation
200 Belle Terre rdPort JeffersonNY11777412076312$20,000Medical Diagnosis501(C)(3)
St Joseph'S hospital medical center
350 West Thomas rdPhoenixAZ85013860096787$100,000Research501(C)(3)
St Lukes Health System
PO Box 1663 Attn GGABoiseID837011663820161600$20,000Medical Diagnosis501(C)(3)
St Peters hospital
310 S Manning BlvdAlbanyNY12208222262982$100,000Medical Diagnosis501(C)(3)
St Vincent hospital
PO Box 19070Green BayWI543079070390817529$7,500Medical Diagnosis501(C)(3)
Stanford Child health research institute
4100 Bohannon rdMenlo pkCA94025770003859$62,500Medical Diagnosis501(C)(3)
Stanford Health Care
PO Box 742835Los AngelesCA90074946174066$37,500Medical Diagnosis501(C)(3)
Stanford University
3172 Porter DrPalo AltoCA94304941156365$227,500Research501(C)(3)
Suny At Binghamton University
PO Box 6000BinghamtonNY139026000141368361$100,000Research501(C)(3)
Sutter Pacific medical foundation
2324 Sacramento stSan FranciscoCA94115942728943$50,000Medical Diagnosis501(C)(3)
Temple University
PO Box 827997PhiladelphiaPA191827997231365971$17,500Medical Diagnosis501(C)(3)
Temple UniDept of Neuro
3401 N Brd StPhiladelphiaPA19140231365971$17,500Medical Diagnosis501(C)(3)
Texas Neurology PA
6301 Gaston AveDallasTX75214752654757$20,000Medical Diagnosis501(C)(3)
TX Tech Uni Health Science center
3601 4th StLubbockTX794306271752668014$93,500ResearchSTATE OF TX
Uni of Wisconsin System
UW-MadisonMilwaukeeWI532780538396006492$20,000Medical DiagnosisSTATE OF WI
The Emory Clinic Inc
12 Executive pk DrAtlantaGA30329582030692$125,000Medical Diagnosis501(C)(3)
hospital for Special Surgery
535 East 70th stNew YorkNY100214872131624135$50,000Medical Diagnosis501(C)(3)
The Jackson Laboratory
600 Main stBar HarborME04609010211513$100,000Research501(c)(3)
The Methodist hosp fdn
6560 Fannin stHoustonTX77030760094743$100,000Medical Diagnosis501(C)(3)
The MetroHealth System
PO Box 73308ClevelandOH44193346004382$25,000Medical Diagnosis501(C)(3)
The Ohio State University
1960 Kenny rd 4th FlColumbusOH43210316025986$100,000Medical DiagnosisState of OH
The Ohio State University research
1960 Kenny rd 4th FlColumbusOH43210316025986$24,989ResearchSTATE OF OH
PA State Uni College of Medicine
PO Box 850HersheyPA17033246000376$35,000Medical DiagnosisSTATE OF PA
University of Virginia
POB 400195CharlottesvilleVA229044195546001796$30,000Medical Diagnosis501(C)(3)
university of california
120 TheoryIrvineCA926971050952226406$75,000Medical Diagnosis501(C)(3)
university of california
1125 Murphy HallLos AngelesCA900959000956006143$125,000Medical Diagnosis501(C)(3)
university of california
9500 Gilman DrLa JollaCA920930934956006144$20,000Medical Diagnosis501(C)(3)
university of california
9500 Gilman DrLa JollaCA920930934956006144$100,000Research501(C)(3)
university of california
1855 Folsom stSan FranciscoCA941430897946036493$70,000Medical Diagnosis501(C)(3)
Uni of Michigan
Box 223131PittsburghPA152512131386006309$50,000Medical Diagnosis501(C)(3)
Nationwide childrens hospital
PO Box 78000DetroitMI482781653316056230$50,000Medical Diagnosis501(C)(3)
The Scripps Research Institute
10550 N Torrey Pines rdLa JollaCA92037330435954$100,000Research501(c)(3)
The Toledo hospital
3949 Sunforest CtToledoOH43623344428256$15,000Medical Diagnosis501(C)(3)
Columbia University
710 W 168th stNew YorkNY10032135598093$175,000Medical Diagnosis501(C)(3)
University of PA
PO Box 785541PhiladelphiaPA191785541231352685$50,000Medical Diagnosis501(C)(3)
Trustees Of University Of PA
PO Box 785541PhiladelphiaPA191785541231352685$100,000Research501(C)(3)
The University of Al at Birmingham
1600 7th aveBirminghamAL35233636005396$20,000Medical DiagnosisState of AL
The University Of Iowa
2 Gilmore HallIowa CityIA52242426004813$251,496ResearchSTATE OF IA
The University of North Carolina
PO Box 402420AtlantaGA303842420566001393$20,000Medical Diagnosis501(c)(3)
Thomas Jefferson University
125 S 9th stPhiladelphiaPA19107231352651$300,000Research501(c)(3)
Trinity Health
200 Jefferson SEGrand RapidsMI49503272491974$20,000Medical Diagnosis501(C)(3)
university Faculty Associates Inc
2335 E Kashian LnFresnoCA93701463969536$15,000Medical Diagnosis501(C)(3)
university hospital Broooklyn
450 Clarkson AveBrooklynNY11203141368361$35,000Medical Diagnosis501(C)(3)
university Neurology Inc
77 Goodell StBuffaloNY14203161359213$10,000Medical Diagnosis501(C)(3)
university Of Al At Birmingham
1720 7th ave sBirminghamAL35233636005396$293,657ResearchSTATE OF AL
university of AL At Birmingham
1720 7th ave SBirminghamAL35233636005396$20,000Medical DiagnosisSTATE OF AL
university Of Arizona
1303 E Uni BlvdTucsonAZ85719742652689$99,881ResearchState of AZ
university of AK for medical Sciences
4301 West MarkhamLittle RockAR72205716046242$20,000Medical DiagnosisSTATE OF AR
university of california
1850 Research pk DrDavisCA95618946036494$365,000Research501(C)(3)
university of california
11000 Kinross aveLos AngelesCA90095956006143$233,663Research501(C)(3)
university of california
9500 Gilman DrLa JollaCA920930009956006144$60,000Research501(C)(3)
university of california
1855 Folsom stSan FranciscoCA94143946036493$100,000Research501(C)(3)
University of Cincinnati
51 Goodman DrCincinnatiOH452210222316000989$26,250Medical Diagnosis501(c)(3)
University of Cincinnati Physicians
260 Stetson stCincinnatiOH45219316000989$17,500Medical Diagnosis501(C)(3)
University Of Colorado
3100 Marine stBoulderCO803090572846000555$100,000ResearchSTATE OF CO
University of Colorado Denver
PO Box 910238DenverCO802910238846000555$100,000Medical DiagnosisSTATE OF CO
University Of Colorado Denver
500 13001 E 17th PlAuroraCO80045846000555$60,000ResearchSTATE OF CO
University of Florida
PO Box 100244GainesvilleFL32611596002052$55,000Medical DiagnosisState of FL
University Of Florida
219 Grinter HallGainesvilleFL32611596002052$748,310ResearchSTATE OF FL
University Of GA Research foundation
617 Boyd GSRCAthensGA30602581353149$100,000Research501(C)(3)
University Of Illinois
1901 S 1st stChampaignIL61820376000511$100,000Research501(C)(3)
University of Iowa
118 S Clinton stIowa CityIA52242426004813$100,000Medical DiagnosisState of IA
University Of KY Research foundation
500 S LimestoneLexingtonKY405260001616033693$100,000Research501(C)(3)
University of Louisville Research fdn
300 E Market stLouisvilleKY402021959611029626$15,000Medical Diagnosis501(C)(3)
University Of Maryland
620 W Lexington stBaltimoreMD21201526002033$100,000ResearchSTATE OF MD
University of MA medical school
55 Lake ave NorthWorcesterMA016550002043167352$20,000Medical DiagnosisState of MA
University of MA medical school
55 Lake ave NWorcesterMA01655043167352$200,000Research501(C)(3)
University Of Miami
1320 S Dixie HighwayMiamiFL33146590624458$300,000ResearchSTATE OF FL
University of Miami
PO Box 405803AtlantaGA303845803590624458$75,000Medical DiagnosisSTATE OF FL
University OF MIAMI DEPT OF NEURO
PO Box 405803AtlantaGA303845803590624458$23,796Medical DiagnosisSTATE OF FL
University Of Michigan
3003 S State stAnn ArborMI481091274386006309$200,000Research501(C)(3)
University Of Minnesota
PO Box 1450MinneapolisMN554855957416007513$460,000ResearchSTATE OF MN
University of Mississippi medical center
2500 North State stJacksonMS392164505646008520$20,000Medical DiagnosisSTATE OF MS
University Of Missouri
310 Jesse HallColumbiaMO65211436003859$100,000ResearchState of MO
University of Nebraska medical center
985450 Nebraska ctrOmahaNE681985450470049123$35,000Medical DiagnosisSTATE OF NE
University Of Nevada
1664 N Va StRenoNV895570325886000024$200,000ResearchSTATE OF NV
University of New Mexico HSC
1 Uni of NmAlbuquerqueNM871310001856000642$20,000Medical DiagnosisSTATE OF NM
University Of Oklahoma
1000 Stanton BlvdOKL CityOK73117736017987$100,000ResearchState of OK
University of Pittsburgh
200 Lathrop stPittsburghPA15261250965591$50,000Medical DiagnosisState of PA
University Of Pittsburgh
123 Uni PlacePittsburghPA15213250965591$276,659ResearchSTATE OF PA
University of Puerto Rico medical sci
400 FD Roosevelt Avesan juanPR00918660433762$40,000Medical DiagnosisPUERTO RICO
University Of Rochester
601 Elmwood aveRochesterNY146428673160743209$383,500Research501(c)(3)
University of Rochester
601 Elmwood aveRochesterNY146428673160743209$100,000Medical Diagnosis501(c)(3)
University of Rochester
518 Hylan BldgRochesterNY14627160743209$93,548Research501(C)(3)
University Of Southern california
3720 S Flower stLos AngelesCA90089951642394$60,000ResearchState of CA
University of Tx Health Science center
7703 Floyd Curl DrSan AntTX782293900741586031$75,000Medical DiagnosisSTATE OF TX
University of Utah
15 N 2030 ESalt Lake CityUT84112876000525$196,406Medical DiagnosisSTATE OF UT
University of Vermont medical center
PO Box 1902BurlingtonVT054011902030219303$20,000Medical DiagnosisSTATE OF VT
University of Washington
1959 NE PacificSeattleWA981956143916001537$38,237ResearchSTATE OF WA
University of Washington
1959 NE PacificSeattleWA981956143916001537$38,237ResearchSTATE OF WA
University of Washington medical center
1959 NE PacificSeattleWA981956143916001537$12,500Medical DiagnosisSTATE OF WA
University Of Washington
4333 Brooklyn Ave NSeattleWA98195916001537$200,000ResearchSTATE OF WA
University Physicians - Finance
One hosp DriveColumbiaMO65212436003859$10,000Medical DiagnosisSTATE OF MO
Univesity of Washington
12455 Collections DrChicagoIL60693916001537$12,500Medical DiagnosisSTATE OF WA
univeristy of washington medical center
1959 NE PacificSeattleWA981956143916001537$25,000Medical DiagnosisSTATE OF WA
University Of Southern california
3720 S Flower stLos AngelesCA90089951642394$100,000ResearchSTATE OF CA
UT Southwestern medical center
PO Box 841753DallasTX752841753756002868$190,000Medical DiagnosisState of TX
UT Southwestern medical center
PO Box 841753DallasTX752841753756002868$100,000ResearchSTATE OF TX
UW hospital and Clinics Authority
Drawer 853MilwaukeeWI53278391835630$20,000Medical Diagnosis501(C)(3)
Valley childrens hospital
9300 Valley chldns PlMaderaCA93636941294954$10,000Medical Diagnosis501(C)(3)
Vanderbilt univeristy medical center
PO Box 121236DallasTX753121236352528741$100,000Medical Diagnosis501(C)(3)
Via Christi hospitals WichitaInc
707 N Emporia aveWichitaKS67214481172106$15,000Medical Diagnosis501(c)(3)
VCU
PO BOX 980568RichmondVA232980568546001758$100,000ResearchSTATE OF VA
Wake Forest University Health Sciences
Programs md ctr BlvdWinstonSalemNC271570001223849199$20,000Medical Diagnosis501(C)(3)
WA University in St Louis
1 Brookings DrSt LouisMO631304862430653611$93,750Medical Diagnosis501(C)(3)
WA University in StLouis
1 Brookings DrSt LouisMO631304862430653611$53,291Research501(C)(3)
WA University in StLouis
1 Brookings DrSt LouisMO631304862430653611$31,250Medical Diagnosis501(C)(3)
Washington university
1 Brookings DrSt LouisMO631304862430653611$364,287Research501(C)(3)
Wesley Neuro Clinic PC
8000 ctrview pkwayCordovaTN38018621499155$50,000Medical Diagnosis501(C)(3)
west virginia university research corp
886 Chestnut Ridge rdMorgantownWV26506550665758$20,000Medical Diagnosis501(C)(3)
Wright State University
3640 Colonel Glenn HwyDaytonOH45435310732831$85,120Research501(c)(3)
Yale University
PO Box 1873New HavenCT065081873060646973$30,000Medical Diagnosis501(C)(3)
FieldValueIRS element (for citing)
Total501c3 Org242Total501c3OrgCnt
Total Other Org8TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990, SCHEDULE I, PART I, LINE 2FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (12 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
STEVEN M DERKS
PRESIDENT & CEO$774,023$0$0$0$314,303$0$0$0$3,504$0$1,091,830$0$0$0
JULIE FABER CPA
ASST. TREASURER & CFO$240,628$0$0$0$0$0$0$0$7,361$0$247,989$0$0$0
KRISTINE WELKER
INTERIM PRES. & CEO (Feb-Sept)$211,207$0$0$0$0$0$0$0$0$0$211,207$0$0$0
EILEEN TIMMINS PHD
ASST.SEC.EVP CHIEF PPL OFFICER$194,724$0$0$0$0$0$0$0$14,341$0$209,065$0$0$0
KAREN ALEXANDER
EVP,CHIEF IMPACT/PHILAN.OFFICE$347,243$0$10,000$0$0$0$0$0$11,213$0$368,456$0$0$0
JOHN WALSH
DIVISION CHIEF EXECUTIVE$167,054$0$0$0$0$0$0$0$18,503$0$185,557$0$0$0
STEVEN FORD
EVP-CHIEF COMM/MKT OFFICER$143,783$0$0$0$0$0$0$0$8,759$0$152,542$0$0$0
GRACE K PAVLATH PHD
SR VP SCIENTIFIC PROGRAM DIR.$188,227$0$0$0$9,000$0$0$0$12,233$0$209,460$0$0$0
GAIL SCHMERTZ KERNER ESQ
SR. VP & GENERAL COUNSEL$189,068$0$0$0$0$0$0$0$18,503$0$207,571$0$0$0
NANCY STINSON HARRIS
NVP OF CORP PARTNERSHIPS$188,168$0$0$0$0$0$0$0$7,906$0$196,074$0$0$0
KRISTIN STEPHENSON
SVP,CHIEF POL&COMM ENG OFFICER$147,384$0$0$0$9,000$0$0$0$18,503$0$174,887$0$0$0
NATALIE STAMER
VP OF DIGITAL & CONTENT MARKET$137,803$0$1,000$0$6,000$0$0$0$21,023$0$165,826$0$0$0

Schedule L IRS990ScheduleL

Grnt Asst Bnft Interested Prsn GrntAsstBnftInterestedPrsnGrp

FieldValueIRS element (for citing)
PersonSTANLEY APPELPersonNm
Relationship With OrgBOARD MEMBERRelationshipWithOrgTxt
Cash Grant$21,150CashGrantAmt
Type Of AssistanceRESEARCH GRANTTypeOfAssistanceTxt
Assistance Purposesee part vAssistancePurposeTxt

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

FieldValueIRS element (for citing)
PersonDaniel G FriesPersonNm
FieldValueIRS element (for citing)
Relationship DescriptionMDA BOARD MEMBERRelationshipDescriptionTxt
Transaction$205,900TransactionAmt
TransactionPension Actuaries ServiceTransactionDesc
Sharing Of RevenuesfalseSharingOfRevenuesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART III, LINE 1, COLUMN E:THE GRANT AMOUNT WENT TO Stanley Appel's institution, The Methodist Hospital Research Institute. He was the researcher that the grant benefits.
PART IV, LINE 1, COLUMN D:DESCRIPTION OF TRANSACTION: MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES.

Schedule M IRS990ScheduleM

FieldValueIRS element (for citing)
Works Of ArtWorksOfArtGrp
Art Historical TreasuresArtHistoricalTreasuresGrp
Art Fractional InterestArtFractionalInterestGrp
Books And PublicationsBooksAndPublicationsGrp
Clothing And Household GoodsClothingAndHouseholdGoodsGrp
Cars And Other VehiclesCarsAndOtherVehiclesGrp
Boats And PlanesBoatsAndPlanesGrp
Intellectual PropertyIntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution79ContributionCnt
Noncash Contributions Rpt F990$1,608,677NoncashContributionsRptF990Amt
Method Of Determining RevenuesSELLING PRICEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Securities Closely Held StockSecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust IntrstsSecurPrtnrshpTrustIntrstsGrp
Securities MiscellaneousSecuritiesMiscellaneousGrp
Qualified Contrib Hist StructQualifiedContribHistStructGrp
Qualified Contrib OtherQualifiedContribOtherGrp
Real Estate ResidentialRealEstateResidentialGrp
Real Estate CommercialRealEstateCommercialGrp
Real Estate OtherRealEstateOtherGrp
CollectiblesCollectiblesGrp
Food InventoryFoodInventoryGrp
Drugs And Medical SuppliesDrugsAndMedicalSuppliesGrp
TaxidermyTaxidermyGrp
Historical ArtifactsHistoricalArtifactsGrp
Scientific SpecimensScientificSpecimensGrp
Archaeological ArtifactsArchaeologicalArtifactsGrp

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescMEDICAL EQUIPMENTDesc
Contribution20ContributionCnt
Noncash Contributions Rpt F990$115,132NoncashContributionsRptF990Amt
Method Of Determining RevenuesAPPRAISALMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART I, LINE 1MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION.
FORM 990, PART VI, SECTION B, LINE 11BALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12CTHE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH LEGAL.
FORM 990, PART VI, SECTION B, LINES 15A AND 15BA COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART XI, LINE 9OTHER CHANGES IN NET ASSETS: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS (3,539,277)

Comments

Anonymous: no account or email. Up to 2,000 characters, at most one link. Comments are checked automatically; some wait for review.