2018-11-15T05:27:24-06:00 2017-12-31 BDO USA LLP 8401 GREENSBORO DRIVE 800 MCLEAN VA 22102 990 2017-01-01 131665552 MUSCULAR DYSTROPHY ASSOCIATION INC % JENNIFER BUZALSKIVP FINANCE MUSC 3122605975 161 N CLARK ST Suite 3550 CHICAGO IL 60601 MICHAEL J KENNEDY CFO 3122605900 2018-11-08 true Marc Berger P01871563 7038930600 72.190.123.86 54621820183195000001 2018-11-15 P 453C092F4FAE56C85AAB65CCAB8DCA36E7EE5C2A 453C092F4FAE56C85AAB65CCAB8DCA36E7EE5C2A 2017 2019-02-21 02:37:17Z X Lynn O'Connor Vos 161 N CLARK ST3550 CHICAGO IL 60601 154243004 false X www.mda.org X 1950 NY SEE SCHEDULE O 21 21 939 350000 298749 117071918 113962253 0 0 2325061 2531003 1263423 992004 120660402 117485260 26545578 26449500 0 0 56846712 56599128 1302349 0 16591367 33386666 29034942 118081305 112083570 2579097 5401690 91932738 94239232 84003147 78070364 7929591 16168868 X MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. false false 48615507 11107459 HEALTH CARE AND COMMUNITY SERVICES Individuals with muscular dystrophy, ALS and related life-threatening diseases are our moms and dads, sons and daughters, our friends, neighbors, co-workers and loved ones. At MDA, were proud to offer expert multidisciplinary care that will help manage disease symptoms to help optimize health and well-being from day one. Were committed to maximizing strength and mobility for families, promoting their quality of life and independence, breaking down barriers and making sure they know they are never alone in this fight. Individuals and families living with neuromuscular diseases face a variety of daily challenges. To help, MDA offers a comprehensive services program to help improve lives and support families from day one. Ranging from a nationwide network of state-of-the-art MDA Care Centers located at the nations top medical facilities to assistance with essential support services, MDA is here to help families today. Our heath care and community services accounted for 48,615,507 of our 2017 expenditures. As we strive to revolutionize care and support, here are some of the key ways we supported families in 2017: -More than 100,000 kids and adults and their families are registered with MDA to receive care, services, support and information through MDA Care Centers and other MDA local and national programs. -Provided comprehensive multidisciplinary care focused on families needs at more than 150 MDA Care Centers through nearly 50,000 visits. -Hosted more than 340 events and activities, including support groups, educational events and family gatherings, for families to learn, connect and address daily needs and challenges. -Offered 71 weeklong, barrier-free summer camps for nearly 3,800 children - at no cost to their families - to help them build self-confidence and independence so they can live unlimited. -Provided more than 3,000 gently used assistive devices to kids and adults to help them maintain mobility and independence through MDAs equipment assistance program. -Supported young adults through MDAs online tools and services, helping them navigate education, employment and independent living through resources, programming and community connections. -Helped 10,000 individuals with the answers and assistance they needed through its National Resource Center, which connects individuals impacted by neuromuscular disease with trained one-on-one specialists for resources and support. Additionally, through MDAs public policy and advocacy program, were working together to ensure that policymakers understand the needs of the neuromuscular disease community. 18275689 15342041 RESEARCH Every day, children are born with muscular dystrophy and related life-threatening diseases affecting muscles that take away the ability to walk, move, hug, talk and even breathe. Similarly, adults are facing devastating diseases like ALS that cause nerves to die and muscles to deteriorate, resulting in loss of mobility and other severe health complications. For these kids and adults, there are currently few treatments and no cures. MDAs research program is designed to change that. We are the only nonprofit taking a big-picture perspective on diseases that limit muscle strength and mobility by focusing on making breakthroughs across diseases. What we learn on the frontlines in one area can potentially have positive impacts in others. In 2017, MDA spent $18,275,689 on research projects aimed at accelerating urgently needed treatments and cures for the families we serve. MDAs long-term investment in research has contributed to dozens of clinical trials now underway for novel drugs and therapies, and led to the approvals in 2017 of Exondys 51 to treat some forms of Duchenne muscular dystrophy and Spinraza to treat spinal muscular atrophy. On the heels of this progress, more new drugs in development to treat neuromuscular diseases are expected during the next five years than in the previous 50. Some of the areas where we see the greatest potential are: -Gene targeting therapies (replacement, exon skipping, mutation read through and editing) -Stem cell therapies -Small molecule therapies: In trials to improve multiple facets of neuromuscular disease, such as muscle atrophy, mitochondrial dysfunction, muscle contractility, inflammation, reduced perfusion and fibrosis. In 2017, MDA awarded 70 new research grants to leading scientists around the globe. MDA's Research and MVP Advisory Committees - whose members are among the nation's foremost scientists, physicians and experts in the field of neuromuscular disease and the drug development industry - carefully evaluate all grant proposals submitted and recommend the best to MDAs Board of Directors for approval. Reports on ongoing progress in MDAs efforts to speed the development of treatments and cures, including the status of human clinical trials to test potential therapies, can be found at mda.org/research. 14307318 PROFESSIONAL AND PUBLIC HEALTH EDUCATION Muscular dystrophy, ALS and related life-threatening diseases that limit muscle strength and mobility take away everyday abilities such as walking, standing, dressing oneself, hugging someone dear and even breathing. At MDA, we dedicate every minute of every day to fighting to free our families from the harmful effects of these diseases. Providing professional and public health education is one of the many ways in which MDA is working to save and improve lives. In 2017, MDA spent $14,307,318 to provide professional and public health education. We promoted a deeper understanding and an awareness to rally and inspire action through a variety of innovative strategies, including the following: -Delivered timely information on mda.org, which is recognized internationally as a key source of information about neuromuscular diseases. -Every month, nearly 300,000 visitors come to mda.org and related MDA websites to find the information and resources they need - thats about 3.4 million people a year. -Placed thousands of documented news stories about MDAs mission with network, syndicated and local broadcast outlets, print news publications and online, including frequent social media postings through Facebook, Twitter and Instagram. -Delivered critical information on research, care and independent living through MDAs award-winning national Quest Magazine, which has a readership of nearly 800,000 in print and online combined. -Produced, distributed and posted on YouTube hundreds of informational videos and educational materials about the challenges of living with muscular dystrophy and related diseases, facts and information, practical tips to help families, personal stories and more. -Launched its blog Strongly to bring together the stories and voices of individuals and families across the MDA community, publishing more than 200 stories that reached more than 80,000 people. MDA used social media to promote Strongly stories and other content of interest to MDA families and supporters, reaching more than 20 million people. -Hosted the pre-eminent gathering of clinicians, allied health professionals and scientific experts specializing in neuromuscular disease research and clinical care at the 2016 MDA Clinical Conference in Arlington, Va., bringing together the nations best and brightest experts to share information and learn about new approaches and techniques for clinical management of neuromuscular disorders, to hear about the latest information regarding clinical trial results and to engage in dialogue and networking among peers. 81198514 true false false true false false false true false true true false false false true true true false false false true true false false true true false true false true false false false false true false false true true true false false false false false false false true 1001 23 true 939 true true true false false false false true true true 10 false false false X 21 21 false false false false false false false true true false false true true true true true true true true false AL AK AZ CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NJ NM NY NC ND OH OK OR PA PR RI SC SD TN UT VA WA WV WI WY X X JENNIFER BUZALSKIVP FINANCE 3122605975 161 N CLARK STREET STE 3550 CHICAGO IL 60601 STANLEY APPEL MD DIRECTOR 1.0 0.0 X 0 0 0 BENJAMIN CUMBO III DIRECTOR 1.0 0.0 X 0 0 0 STEVE FARELLA DIRECTOR 1.0 0.0 X 0 0 0 DANIEL G FRIES DIRECTOR 1.0 0.0 X 0 0 0 GOVERNOR BRAD HENRY DIRECTOR 1.0 0.0 X 0 0 0 R RODNEY HOWELL MD CHAIRMAN 5.0 0.0 X X 0 0 0 DAVE HUTTON DIRECTOR 1.0 0.0 X 0 0 0 LOUIS KUNKEL PHD DIRECTOR 1.0 0.0 X 0 0 0 PATRICIA NAZEMETZ DIRECTOR 1.0 0.0 X 0 0 0 CHRISTOPHER J ROSA PHD VICE CHAIR 1.0 0.0 X X 0 0 0 MIKE ROWLETT DIRECTOR 1.0 0.0 X 0 0 0 CHARLES D SCHOOR ESQ SECRETARY 2.0 0.0 X X 0 0 0 MARK SMITH DIRECTOR 1.0 0.0 X 0 0 0 JOHN TOGNINO DIRECTOR 1.0 0.0 X 0 0 0 VICTOR WRIGHT TREASURER 2.0 0.0 X X 0 0 0 LILIAN WU PHD DIRECTOR 1.0 0.0 X 0 0 0 HAROLD CRUMP EMERITUS DIRECTOR 1.0 0.0 X 0 0 0 OLIN MORRIS EMERITUS DIRECTOR 1.0 0.0 X 0 0 0 BART CONNER EMERITUS DIRECTOR 1.0 0.0 X 0 0 0 JOSEPH S DIMARTINO EMERITUS DIRECTOR 1.0 0.0 X 0 0 0 TIMMI MASTERS EMERITUS DIRECTOR 1.0 0.0 X 0 0 0 KRISTINE WELKER INTERIM PRES. & CEO (Feb-Sept) 50.0 0.0 X X 211207 0 0 STEVEN M DERKS PRESIDENT & CEO 50.0 0.0 X 1088326 0 3504 JULIE FABER CPA ASST. TREASURER & CFO 50.0 0.0 X 240628 0 7361 EILEEN TIMMINS PHD ASST.SEC.EVP CHIEF PPL OFFICER 50.0 0.0 X 194724 0 14341 VALERIE A CWIK MD ASST. SEC. CHIEF MED SCIENTIFI 50.0 0.0 X 74157 0 0 KAREN ALEXANDER EVP,CHIEF IMPACT/PHILAN.OFFICE 50.0 0.0 X 357243 0 11213 JOHN WALSH DIVISION CHIEF EXECUTIVE 50.0 0.0 X 167054 0 18503 GRACE K PAVLATH PHD SR VP SCIENTIFIC PROGRAM DIR. 50.0 0.0 X 197227 0 12233 GAIL SCHMERTZ KERNER ESQ SR. VP & GENERAL COUNSEL 50.0 0.0 X 189068 0 18503 NANCY STINSON HARRIS NVP OF CORP PARTNERSHIPS 50.0 0.0 X 188168 0 7906 KRISTIN STEPHENSON SVP,CHIEF POL&COMM ENG OFFICER 50.0 0.0 X 156384 0 18503 NATALIE STAMER VP OF DIGITAL & CONTENT MARKET 50.0 0.0 X 144803 0 21023 3208989 0 133090 56 false true false EGL GENETIC DIAGNOSTICS LLC 2165 NORTH DECATUR RD DECATUR GA 30033 GENETIC TESTING 576900 HYATT REGENCY CRYSTAL CITY 2799 JEFFERSON DAVIS HWY ARLINGTON VA 22202 HOTEL SERVICES 319724 INVOLTA LLC PO BOX 1986 CEDAR RAPIDS IA 524061986 IT SERVICES 197876 HOLLAND KNIGHT LLP PO BOX 864084 ORLANDO FL 328864084 LEGAL SERVICES 172036 RANDSTAD STAFFING SERVICES 2300 NORTH MAYFAIR RD STE 220 WAUWATOSA WI 53226 TEMPORARY STAFFING 167567 13 479536 89304229 490406 23688082 1723809 113962253 0 1918927 1918927 0 1550 1550 0 0 0 29396969 0 28783518 1375 613451 -1375 612076 612076 7942063 89304229 7942063 374547 30788 343759 343759 0 0 0 QUEST ADVERTISING 541800 298749 298749 OTHER REVENUE 900099 347946 347946 646695 117485260 298749 3224258 23988758 23988758 0 2460742 2460742 0 2543740 399002 1765827 378911 0 41632172 32815341 4325981 4490850 0 8925427 6116006 1859285 950136 3497789 2735128 398790 363871 0 168199 76306 86318 5575 271389 271389 0 0 152064 133329 18735 8400679 1726820 993500 5680359 0 8206220 3118259 1499631 3588330 329186 329186 0 5815123 4808874 593535 412714 3069619 2477285 236129 356205 0 73723 64692 6315 2716 327298 327298 0 278568 203728 59980 14860 0 MISC EXPENSES 1942874 207573 1407196 328105 112083570 81198514 14293689 16591367 X 3154925 452907 766296 1935722 18072103 19034996 0 0 2721033 2897784 0 0 0 0 0 0 0 0 0 0 1927974 1916899 6897201 6341269 639060 555932 68572568 69833621 0 0 0 0 0 0 0 0 91932738 94239232 6162142 5713039 9061097 9674969 0 0 0 0 0 0 0 0 13500000 10000000 0 0 55279908 52682356 84003147 78070364 X 3423467 10090586 3902429 5160724 603695 917558 7929591 16168868 91932738 94239232 X 5401690 6376730 -3539143 X X false true X true false X 144990094 135174690 121934463 117071918 113962253 633133418 0 0 144990094 135174690 121934463 117071918 113962253 633133418 0 633133418 1465164 2555130 1700561 1736766 1918927 9376548 0 478287 331475 432222 312578 347946 1902508 644412474 0.98250 0.98436 X 0 510119 510119 119719164 120229283 1000000 250000 false 1000000 1000000 1000000 1000000 4000000 6000000 261051 375042 463056 510119 1609268 250000 250000 250000 250000 1000000 1500000 15977 17255 1438 0 34670 X X X false 477155 259816 54014 790985 357197 90075 29883 477155 362888 -5691 357197 346757 16131 362888 251275 50000 45482 346757 0.00000 1.00000 0.00000 false false 17247 14735 2512 6823847 6270642 553205 56107 55892 215 555932 0 PENSION POSTRETIREMENT PLAN OB 52682356 52682356 X 123861990 6376730 6376730 117485260 117485260 112083570 112083570 112083570 FORM 990, SCHEDULE D, PART III, LINE 4 THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY. FORM 990, SCHEDULE D, PART X, LINE 2 U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2017, 2016, 2015 AND 2014 ARE ALSO OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. true East Asia and the Pacific 0 0 Program Services GRANTS TO RECIPIENTS 505876 Europe (Including Iceland and Greenland) 0 0 Program Services GRANTS TO RECIPIENTS 879632 North America 0 0 Program Services GRANTS TO RECIPIENTS 907234 South America 0 0 Program Services GRANTS TO RECIPIENTS 158000 0 0 0 0 2450742 2450742 East Asia and the Pacific RESEARCH 505876 CHECK Europe (Including Iceland and Greenland) RESEARCH 879632 CHECK North America RESEARCH 907234 check South America Research 158000 CHECK 4 false false false false false false FORM 990, SCHEDULE F, PART I, LINE 2 UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. SPECIAL EVENTS 66928112 63814294 3113818 3113818 SIGNATURE 14569963 11777030 2792933 2792933 333 15745744 13712905 2032839 2032839 97243819 89304229 7939590 7939590 7939590 374547 30788 true 1.00000 374547 30788 30788 343759 CT GA LA MN NE NY OK PA TX VA WA WI true false false false 1.00000 JENNIFER BUZALSKI Vice President F 161 N CLARK ST CHICAGO IL 60601 false NA false true Als Biomarker Consortium PO Box 1598 New York NY 10101 810756743 100000 Research American Brain Foundation 201 Chicago ave Minneapolis MN 55415 411717098 501(C)(3) 43333 Research Ann & Robert H Lurie Childrens Hosp 225 E Chicago ave Chicago IL 60611 362170833 501(c)(3) 100000 Research Ann an Robert H Lurie Childrens Hosp 225 E Chicago ave Chicago IL 60611 362170833 501(c)(3) 50000 Medical Diagnosis Baycare MEDICAL Group 300 pk Place Blvd Clearwater FL 33759 593140335 501(C)(3) 25000 Medical Diagnosis Baylor College of Medicine PO Box 301207 Dallas TX 753031207 741613878 501(c)(3) 35000 Medical Diagnosis Baylor College Of Medicine One Baylor Plaza MS Houston TX 77030 741613878 501(c)(3) 360000 Research Beaumont Health System 3601 W 13 Mile rd Royal Oak MI 48073 381459362 501(C)(3) 25000 Medical Diagnosis Billings Clinic fOUNDATION PO Box 31031 Billings MT 591071031 810407289 501(C)(3) 10000 Medical Diagnosis BOD of S Illinois University PO Box 19616 Springfield IL 627949616 376005961 STATE OF IL 10000 Medical Diagnosis Brigham & Womens Hosp Research PO Box 3149 Boston MA 022413149 042312909 501(C)(3) 7500 Medical Diagnosis Brigham & Womens Hosp Research PO Box 3149 Boston MA 022413149 042312909 501(C)(3) 22500 Medical Diagnosis Broad Institute 75 Ames St Cambridge MA 02142 263428781 501(C)(3) 110000 Research Brown University 164 Angell St Providence RI 02912 050258809 501(C)(3) 103750 Research cali PACIFIC MEDICAL CENTER FOUNDATION 2324 Sacramento St San Francisco CA 94115 942728943 501(C)(3) 313186 Medical Diagnosis cali PACIFIC medical 2324 Sacramento St San Francisco CA 94115 942728943 501(C)(3) 22414 Medical Diagnosis Carilion Clinic Resrchdev 101 Elm ave SE Roanoke VA 24013 540506332 501(C)(3) 20000 Medical Diagnosis Carle foundation hospital 611 West pk Urbana IL 618012512 371119538 10000 Medical Diagnosis Carolinas HealthCare foundation 208 East blvd Charlotte NC 28203 566060481 501(C)(3) 60659 Research Carolinas HealthCare foundation 208 East blvd Charlotte NC 28203 566060481 501(C)(3) 60659 Research Carolinas HealthCare foundation 208 East blvd Charlotte NC 28203 566060481 501(C)(3) 60659 Research Carolinas HealthCare foundation 208 East blvd Charlotte NC 28203 566060481 501(C)(3) 60659 Research Carolinas HealthCare foundation 208 East blvd Charlotte NC 28203 566060481 501(C)(3) 90000 Medical Diagnosis Cedars-Sinai medical center 8700 Beverly blvd Los Angeles CA 90048 951644600 501(c)(3) 100000 Research Cedars-Sinai medical center 8701 Beverly blvd Los Angeles CA 90048 951644600 501(c)(3) 50000 Medical Diagnosis CTRL TX Neurology ConsultANTS 16040 pk Valley Dr Round Rock TX 78681 742710396 501(C)(3) 10000 Medical Diagnosis Child Neurology Consultants of austin 6811 Austin ctr Blvd Austin TX 78731 472192039 10000 Medical Diagnosis childrens Clinic for Rehab svc 2600 North Wyatt Drive Tucson AZ 85712 860667510 501(C)(3) 20000 Medical Diagnosis childrens Healthcare of Atlanta 1577 NE Expressway Atlanta GA 30329 580572465 501(C)(3) 25000 Medical Diagnosis childrens'S hospital Boston PO Box 414413 Boston MA 022414413 042774441 501(c)(3) 358387 Research childrens hospital CO 13123 E 16th ave Aurora CO 80045 840166760 501(C)(3) 55000 Medical Diagnosis childrens hospital Corporation PO Box 414413 Boston MA 022414413 042774441 501(C)(3) 25000 Medical Diagnosis childrens hospital Los Angeles Spon Proj Office Los Angeles CA 90027 951690977 501(c)(3) 20000 Medical Diagnosis childrens hospital medical center 3333 Burnet Ave Cincinnati OH 452293039 310833963 501(C)(3) 50000 Medical Diagnosis childrens hospital of Orange Cty 1201 W La Veta Ave Orange CA 928683874 952321786 501(C)(3) 10000 Medical Diagnosis childrens hospital of PA 3401 Civic ctr Blvd Philadelphia PA 19104 231352166 501(C)(3) 75000 Medical Diagnosis childrens hospital of PA 3401 Civic ctr Blvd Philadelphia PA 19104 231352166 501(C)(3) 100000 Research childrens hospital of Pittsbgh fdn 4401 Penn ave Pittsburgh PA 15224 251865744 501(C)(3) 25000 Medical Diagnosis childrens hospital of King Daug Inc 601 chldns Lane Norfolk VA 23507 540506321 501(C)(3) 15000 Medical Diagnosis childrens hospital 200 Henry Clay ave New Orleans LA 70118 720467503 501(C)(3) 10000 Medical Diagnosis childrens National medical center 111 Michigan ave NW Washington DC 20010 521640403 501(C)(3) 31250 Medical Diagnosis children's Research Institute 111 Michigan ave NW Washington DC 20010 521654453 501(c)(3) 219563 Research Clinical neurology PC 4221 S Western Oklahoma City OK 73109 412141136 501(C)(3) 75000 Medical Diagnosis Colorado State University Box 2002 Fort Collins CO 805232002 846000545 State of CO 100000 Research Columbia university medical center 630 West 168th st New York NY 10032 135598093 501(C)(3) 209917 Research Columbia university medical center 630 West 168th st New York NY 10032 135598093 501(C)(3) 70192 Research Connecticut chldns medical center 282 Washington st Hartford CT 061063322 060646755 501(C)(3) 20000 Medical Diagnosis Cook childrends medical center 801 Seventh ave Ft Worth TX 76104 752051646 501(C)(3) 15000 Medical Diagnosis Cornell University 373 Pine Tree rd Ithaca NY 14850 150532082 501(c)(3) 99999 Research Dana-Farber Cancer Institute 450 Brookline ave Boston MA 022155450 042263040 C-corp 60000 Research Dean Health Systems Inc 1808 West Beltline Hwy Madison WI 53715 391128616 501(C)(3) 20000 Medical Diagnosis Dent Neurologic Institute 3980 Sheridan Drive Amherst NY 14226 161582336 501(C)(3) 20000 Medical Diagnosis St Josephs hosp AZ Case File 57431 Los Angeles CA 900748781 860096787 501(C)(3) 50000 Medical Diagnosis Driscoll childrens hospital 3533 S Alameda St Corpus Christi TX 78411 742577746 501(C)(3) 10000 Medical Diagnosis Duke Uni medical center PO Box 602651 Charlotte NC 282602651 560532129 501(C)(3) 100000 Medical Diagnosis Emory University 1599 Clifton rd NE Atlanta GA 30322 580566256 501(c)(3) 99998 Research Emory University 1599 Clifton rd NE Atlanta GA 30322 580566256 501(c)(3) 38873 Research Emory University 1599 Clifton rd NE Atlanta GA 30322 580566256 501(c)(3) 77746 Research Emory University 1599 Clifton rd NE Atlanta GA 30322 580566256 501(c)(3) 38873 Research Essentia Health Duluth 400 E 3rd st Duluth MN 55805 410884623 501(C)(3) 10000 Medical Diagnosis Geisinger Clinic 100 N Academy Ave Danville PA 178223069 236291113 501(C)(3) 20000 Medical Diagnosis George Washington University 2121 Eye St NW Washington DC 20052 530196584 501(C)(3) 240496 Research Gillette childrens specialty healthcare 200 East Uni ave St Paul MN 55101 363379150 501(C)(3) 50000 Medical Diagnosis Global Conf On Myositis 4909 Lannie rd Jacksonville FL 32218 812402265 501(C)(3) 7500 Research Good Shepherd Rehab hospital 850 South 5Th st Allentown PA 18103 231371947 501(C)(3) 50000 Medical Diagnosis Greenville Health System 701 Grove rd Greenville SC 29605 811723202 501(C)(3) 20000 Medical Diagnosis Harvard medical School PO Box 415649 Boston MA 02241 042103580 501(c)(3) 100000 Research hospital For Special Care 2150 Corbin ave New Britain CT 60530 060646766 501(C)(3) 50000 Medical Diagnosis Icagen-T 2090 E Inno pk Dr Oro Valley AZ 85755 813002107 C-CORP 99500 Research Inland NW Health services PO Box 2185 Spokane WA 99210 911307555 501(C)(3) 20000 Medical Diagnosis Instituto Rehabilitacion del Caribe PO BOX 363792 San Juan PR 00936 583880529 15000 Medical Diagnosis IRON HORSE DIAGNOSTICS 21053 N 75th st Scottsdale AZ 85255 454537278 c-corp 55000 Research IU Health Neuroscience ctr 355 W 16th st Indianapolis IN 46202 351955872 501(c)(3) 20000 Medical Diagnosis IU Health Riley hospital for children 355 W 16th st Indianapolis IN 46202 351955872 501(c)(3) 20000 Medical Diagnosis Izumi Biosciences Inc 23 Blueberry Lane Lexington MA 02420 472572265 501(C)(3) 56400 Research Joan&Sanford Weill Medical college 1300 York ave New York NY 10065 131623978 501(C)(3) 100000 Research Johns Hopkins University 12529 Colls ctr Dr Chicago IL 60693 520595110 501(c)(3) 200000 Medical Diagnosis Johns Hopkins University School 733 N Brdway Baltimore MD 21205 520595110 501(C)(3) 70192 Research Johns Hopkins University 733 N Brdway Baltimore MD 21205 520595110 501(C)(3) 520000 Research KUMC Research Institute Inc 3901 Rainbow Blvd Kansas City KS 66160 481108830 501(C)(3) 75000 Medical Diagnosis Le Bonheur Community Health 50 Peabody Place Memphis TN 38103 621251288 501(C)(3) 25000 Medical Diagnosis Loma Linda University 24887 Taylor st Loma Linda CA 92350 951816009 501(C)(3) 35000 Medical Diagnosis LA State Uni health sciences center 433 Bolivar St New Orleans LA 70112 726087770 501(C)(3) 30000 Medical Diagnosis LSUHSC-Shreveport 1501 Kings Hwy Shreveport LA 71103 720702002 501(C)(3) 20000 Medical Diagnosis Ludwig Inst For Cancer research 9500 Gilman Drive La Jolla CA 920930660 237121131 501(C)(3) 220000 Research Maine medical center 22 Bramhall St Portland ME 04102 010238552 501(C)(3) 15000 Medical Diagnosis Marshfield Clinic Research foundation 1000 North Oak ave Marshfield WI 54449 390452970 501(C)(3) 10000 Medical Diagnosis Mass General hospital - research PO Box 414876 Boston MA 022414876 042697983 501(C)(3) 125000 Medical Diagnosis MA General hospital 101 Huntington Ave Boston MA 02199 042697983 501(C)(3) 257717 Research MA General hospital 101 Huntington Ave Boston MA 02199 042697983 501(C)(3) 110000 Research Mayo Clinic 4500 San Pablo rd Jacksonville FL 32224 593337028 501(c)(3) 20000 Medical Diagnosis Mayo Clinic Jacksonvill 4500 San Pablo rd Jacksonville FL 32224 593337028 501(C)(3) 195000 Research Mayo Clinic Jacksonville 4500 San Pablo rd Jacksonville FL 32224 593337028 501(C)(3) 35000 Medical Diagnosis McKinnon md Group PLLC 351 N Buffalo Dr Las Vegas NV 89145 453720025 10000 Medical Diagnosis MCV Associated Physicians PO Box 980599 Richmond VA 232980599 541581185 501(C)(3) 30000 Medical Diagnosis MDA Care center 814 750 East Adams St Syracuse NY 13210 141368361 501(C)(3) 10000 Medical Diagnosis MDA Clinic at Dartmouth One md ctr Drive Lebanon NH 03756 020222140 501(c)(3) 15000 Medical Diagnosis medical College of Wisconsin 9200 West WI ave Milwaukee WI 53226 390806261 501(C)(3) 30000 Medical Diagnosis medical university of South Carolina 19 Hagood ave Charleston SC 294258080 576000722 501(C)(3) 20000 Medical Diagnosis Medstar Georgetown univeristy hospital 3800 Reservoir Rd Washington DC 20007 522228444 501(C)(3) 15000 Medical Diagnosis Mercy Health foundation 620 S Glenstone Ave Springfield MO 65802 320195818 501(C)(3) 10000 Medical Diagnosis Michigan State university 426 Auditorium rd East Lansing MI 48824 386005984 501(C)(3) 25000 Medical Diagnosis Miller School Of Medicine 1320 S Dixie Highway Coral Gables FL 33146 590624458 State of FL 150000 Research Montefiore medical center 3351 Steuben Ave Bronx NY 10467 131740114 501(C)(3) 50000 Medical Diagnosis NTL Inst Of Neuro Disorder & stroke 6001 Executive Bv North Bethesda MD 20852 520858115 us gov 59794 Research Nemours 10140 Centrn pkway Jacksonville FL 32256 590634433 501(C)(3) 35000 Medical Diagnosis Nemours foundation 10140 Centrn pkway Jacksonville FL 32256 590634433 501(C)(3) 65000 Medical Diagnosis Neurology LLPC 1919 S Wheeling ave Tulsa OK 74104 731502318 25000 Medical Diagnosis Neurology medical service Group 750 East Adams st Syracuse NY 13210 141368361 501(C)(3) 10000 Medical Diagnosis New York Uni School of Medicine PO Box 415026 Boston MA 022415026 135562308 STATE of NY 50000 Medical Diagnosis Northeast Als Consortium 2720 Neilson Way Santa Monica CA 90409 562547779 501(c)(3) 53045 Research NW medical Group Dept of Neuro 710 N Lakeshore Dr Chicago IL 60611 363097297 ST OF IL 50000 Medical Diagnosis Northwestern University 750 N Lake Shore Dr Chicago IL 60611 362167817 501(c)(3) 160000 Research UCLA EduResearch Institute 14445 Olive View Dr Sylmar CA 913421495 952249539 501(C)(3) 25000 Medical Diagnosis Oregon Health and Sci University 0690 SW Bancroft St Portland OR 97239 931176109 STATE OF OR 25000 Medical Diagnosis OSF Multi-Specialty Group 800 NE Glen Oak Ave Peoria IL 61603 383852646 501(C)(3) 10000 Medical Diagnosis Palo Alto Vet Institute For Research 3801 Miranda ave Palo Alto CA 943040038 770207331 501(C)(3) 60000 Research Phoenix childrens hospital 1919 East Thomas Rd Phoenix AZ 85016 860422559 501(C)(3) 10000 Medical Diagnosis Ponce Health Sciences University PO Box 7004 Ponce PR 007327004 660379122 501(C)(3) 20000 Medical Diagnosis Purdue University 155 S Grant st w Lafayette IN 479072114 356002041 STATE OF IN 58074 Research Rady childrens hospital foundation 3020 chldns Way San Diego CA 921234282 330170626 501(C)(3) 20000 Medical Diagnosis Regents of the University of california 4860 Y st Sacramento CA 95817 946036494 501(C)(3) 50000 Medical Diagnosis Regents of the University of MN PO Box 1450 Minneapolis MN 554855957 416007513 STATE OF MN 75000 Medical Diagnosis Nationwide childrens hospital 700 chldns Drive Columbus OH 43205 316056230 501(C)(3) 170000 Research Rhode Island hospital 593 Eddy st Providence RI 029034923 050258954 501(C)(3) 10000 Medical Diagnosis Rush University medical center 1653 W Congress pkway Chicago IL 60612 362174823 501(C)(3) 20000 Medical Diagnosis Rutgers 65 Bergen st Newark NJ 07103 462354111 STATE OF NJ 100000 Research Rutgers State University of NJ 65 Bergen st Newark NJ 07103 462354111 STATE OF NJ 50000 Medical Diagnosis Salk Institute for Biological studies 10010 N Torrey Pines rd La Jolla CA 920371002 952160097 501(C)(3) 60000 Research Sanford childrens specialty Clinic 415 N 3rd ave Fargo ND 58102 911770748 501(C)(3) 10000 Medical Diagnosis Sanford medical center Fargo 415 N 3rd ave Fargo ND 58102 911770748 501(C)(3) 10000 Medical Diagnosis Sanford-Burnham medical research inst 10901 N Torrey Pines rd La Jolla CA 92037 510197108 501(c)(3) 198934 Research Sarasota Memorial hospital 1700 Tamiami Trail Sarasota FL 34239 596012500 501(C)(3) 20000 Medical Diagnosis Seattle childrens hospital 4300 Roosevelt Way NE Seattle WA 98105 910564748 501(C)(3) 50000 Medical Diagnosis Shriners hospital for children 3101 SW Sam Jksn pk Portland OR 97239 362193608 501(C)(3) 7500 Medical Diagnosis Shriners hospital for children 12502 Pine Dr Tampa FL 33612 362193608 501(C)(3) 6250 Medical Diagnosis Shriners hospital for children 2211 North Oak pk Ave Chicago IL 60707 362193608 501(C)(3) 20000 Medical Diagnosis Shriners hospital for children 12502 Pine Dr Tampa FL 33612 362193608 501(C)(3) 18750 Medical Diagnosis St Charles hospital foundation 200 Belle Terre rd Port Jefferson NY 11777 412076312 501(C)(3) 20000 Medical Diagnosis St Joseph'S hospital medical center 350 West Thomas rd Phoenix AZ 85013 860096787 501(C)(3) 100000 Research St Lukes Health System PO Box 1663 Attn GGA Boise ID 837011663 820161600 501(C)(3) 20000 Medical Diagnosis St Peters hospital 310 S Manning Blvd Albany NY 12208 222262982 501(C)(3) 100000 Medical Diagnosis St Vincent hospital PO Box 19070 Green Bay WI 543079070 390817529 501(C)(3) 7500 Medical Diagnosis Stanford Child health research institute 4100 Bohannon rd Menlo pk CA 94025 770003859 501(C)(3) 62500 Medical Diagnosis Stanford Health Care PO Box 742835 Los Angeles CA 90074 946174066 501(C)(3) 37500 Medical Diagnosis Stanford University 3172 Porter Dr Palo Alto CA 94304 941156365 501(C)(3) 227500 Research Suny At Binghamton University PO Box 6000 Binghamton NY 139026000 141368361 501(C)(3) 100000 Research Sutter Pacific medical foundation 2324 Sacramento st San Francisco CA 94115 942728943 501(C)(3) 50000 Medical Diagnosis Temple University PO Box 827997 Philadelphia PA 191827997 231365971 501(C)(3) 17500 Medical Diagnosis Temple UniDept of Neuro 3401 N Brd St Philadelphia PA 19140 231365971 501(C)(3) 17500 Medical Diagnosis Texas Neurology PA 6301 Gaston Ave Dallas TX 75214 752654757 501(C)(3) 20000 Medical Diagnosis TX Tech Uni Health Science center 3601 4th St Lubbock TX 794306271 752668014 STATE OF TX 93500 Research Uni of Wisconsin System UW-Madison Milwaukee WI 532780538 396006492 STATE OF WI 20000 Medical Diagnosis The Emory Clinic Inc 12 Executive pk Dr Atlanta GA 30329 582030692 501(C)(3) 125000 Medical Diagnosis hospital for Special Surgery 535 East 70th st New York NY 100214872 131624135 501(C)(3) 50000 Medical Diagnosis The Jackson Laboratory 600 Main st Bar Harbor ME 04609 010211513 501(c)(3) 100000 Research The Methodist hosp fdn 6560 Fannin st Houston TX 77030 760094743 501(C)(3) 100000 Medical Diagnosis The MetroHealth System PO Box 73308 Cleveland OH 44193 346004382 501(C)(3) 25000 Medical Diagnosis The Ohio State University 1960 Kenny rd 4th Fl Columbus OH 43210 316025986 State of OH 100000 Medical Diagnosis The Ohio State University research 1960 Kenny rd 4th Fl Columbus OH 43210 316025986 STATE OF OH 24989 Research PA State Uni College of Medicine PO Box 850 Hershey PA 17033 246000376 STATE OF PA 35000 Medical Diagnosis University of Virginia POB 400195 Charlottesville VA 229044195 546001796 501(C)(3) 30000 Medical Diagnosis university of california 120 Theory Irvine CA 926971050 952226406 501(C)(3) 75000 Medical Diagnosis university of california 1125 Murphy Hall Los Angeles CA 900959000 956006143 501(C)(3) 125000 Medical Diagnosis university of california 9500 Gilman Dr La Jolla CA 920930934 956006144 501(C)(3) 20000 Medical Diagnosis university of california 9500 Gilman Dr La Jolla CA 920930934 956006144 501(C)(3) 100000 Research university of california 1855 Folsom st San Francisco CA 941430897 946036493 501(C)(3) 70000 Medical Diagnosis Uni of Michigan Box 223131 Pittsburgh PA 152512131 386006309 501(C)(3) 50000 Medical Diagnosis Nationwide childrens hospital PO Box 78000 Detroit MI 482781653 316056230 501(C)(3) 50000 Medical Diagnosis The Scripps Research Institute 10550 N Torrey Pines rd La Jolla CA 92037 330435954 501(c)(3) 100000 Research The Toledo hospital 3949 Sunforest Ct Toledo OH 43623 344428256 501(C)(3) 15000 Medical Diagnosis Columbia University 710 W 168th st New York NY 10032 135598093 501(C)(3) 175000 Medical Diagnosis University of PA PO Box 785541 Philadelphia PA 191785541 231352685 501(C)(3) 50000 Medical Diagnosis Trustees Of University Of PA PO Box 785541 Philadelphia PA 191785541 231352685 501(C)(3) 100000 Research The University of Al at Birmingham 1600 7th ave Birmingham AL 35233 636005396 State of AL 20000 Medical Diagnosis The University Of Iowa 2 Gilmore Hall Iowa City IA 52242 426004813 STATE OF IA 251496 Research The University of North Carolina PO Box 402420 Atlanta GA 303842420 566001393 501(c)(3) 20000 Medical Diagnosis Thomas Jefferson University 125 S 9th st Philadelphia PA 19107 231352651 501(c)(3) 300000 Research Trinity Health 200 Jefferson SE Grand Rapids MI 49503 272491974 501(C)(3) 20000 Medical Diagnosis university Faculty Associates Inc 2335 E Kashian Ln Fresno CA 93701 463969536 501(C)(3) 15000 Medical Diagnosis university hospital Broooklyn 450 Clarkson Ave Brooklyn NY 11203 141368361 501(C)(3) 35000 Medical Diagnosis university Neurology Inc 77 Goodell St Buffalo NY 14203 161359213 501(C)(3) 10000 Medical Diagnosis university Of Al At Birmingham 1720 7th ave s Birmingham AL 35233 636005396 STATE OF AL 293657 Research university of AL At Birmingham 1720 7th ave S Birmingham AL 35233 636005396 STATE OF AL 20000 Medical Diagnosis university Of Arizona 1303 E Uni Blvd Tucson AZ 85719 742652689 State of AZ 99881 Research university of AK for medical Sciences 4301 West Markham Little Rock AR 72205 716046242 STATE OF AR 20000 Medical Diagnosis university of california 1850 Research pk Dr Davis CA 95618 946036494 501(C)(3) 365000 Research university of california 11000 Kinross ave Los Angeles CA 90095 956006143 501(C)(3) 233663 Research university of california 9500 Gilman Dr La Jolla CA 920930009 956006144 501(C)(3) 60000 Research university of california 1855 Folsom st San Francisco CA 94143 946036493 501(C)(3) 100000 Research University of Cincinnati 51 Goodman Dr Cincinnati OH 452210222 316000989 501(c)(3) 26250 Medical Diagnosis University of Cincinnati Physicians 260 Stetson st Cincinnati OH 45219 316000989 501(C)(3) 17500 Medical Diagnosis University Of Colorado 3100 Marine st Boulder CO 803090572 846000555 STATE OF CO 100000 Research University of Colorado Denver PO Box 910238 Denver CO 802910238 846000555 STATE OF CO 100000 Medical Diagnosis University Of Colorado Denver 500 13001 E 17th Pl Aurora CO 80045 846000555 STATE OF CO 60000 Research University of Florida PO Box 100244 Gainesville FL 32611 596002052 State of FL 55000 Medical Diagnosis University Of Florida 219 Grinter Hall Gainesville FL 32611 596002052 STATE OF FL 748310 Research University Of GA Research foundation 617 Boyd GSRC Athens GA 30602 581353149 501(C)(3) 100000 Research University Of Illinois 1901 S 1st st Champaign IL 61820 376000511 501(C)(3) 100000 Research University of Iowa 118 S Clinton st Iowa City IA 52242 426004813 State of IA 100000 Medical Diagnosis University Of KY Research foundation 500 S Limestone Lexington KY 405260001 616033693 501(C)(3) 100000 Research University of Louisville Research fdn 300 E Market st Louisville KY 402021959 611029626 501(C)(3) 15000 Medical Diagnosis University Of Maryland 620 W Lexington st Baltimore MD 21201 526002033 STATE OF MD 100000 Research University of MA medical school 55 Lake ave North Worcester MA 016550002 043167352 State of MA 20000 Medical Diagnosis University of MA medical school 55 Lake ave N Worcester MA 01655 043167352 501(C)(3) 200000 Research University Of Miami 1320 S Dixie Highway Miami FL 33146 590624458 STATE OF FL 300000 Research University of Miami PO Box 405803 Atlanta GA 303845803 590624458 STATE OF FL 75000 Medical Diagnosis University OF MIAMI DEPT OF NEURO PO Box 405803 Atlanta GA 303845803 590624458 STATE OF FL 23796 Medical Diagnosis University Of Michigan 3003 S State st Ann Arbor MI 481091274 386006309 501(C)(3) 200000 Research University Of Minnesota PO Box 1450 Minneapolis MN 554855957 416007513 STATE OF MN 460000 Research University of Mississippi medical center 2500 North State st Jackson MS 392164505 646008520 STATE OF MS 20000 Medical Diagnosis University Of Missouri 310 Jesse Hall Columbia MO 65211 436003859 State of MO 100000 Research University of Nebraska medical center 985450 Nebraska ctr Omaha NE 681985450 470049123 STATE OF NE 35000 Medical Diagnosis University Of Nevada 1664 N Va St Reno NV 895570325 886000024 STATE OF NV 200000 Research University of New Mexico HSC 1 Uni of Nm Albuquerque NM 871310001 856000642 STATE OF NM 20000 Medical Diagnosis University Of Oklahoma 1000 Stanton Blvd OKL City OK 73117 736017987 State of OK 100000 Research University of Pittsburgh 200 Lathrop st Pittsburgh PA 15261 250965591 State of PA 50000 Medical Diagnosis University Of Pittsburgh 123 Uni Place Pittsburgh PA 15213 250965591 STATE OF PA 276659 Research University of Puerto Rico medical sci 400 FD Roosevelt Ave san juan PR 00918 660433762 PUERTO RICO 40000 Medical Diagnosis University Of Rochester 601 Elmwood ave Rochester NY 146428673 160743209 501(c)(3) 383500 Research University of Rochester 601 Elmwood ave Rochester NY 146428673 160743209 501(c)(3) 100000 Medical Diagnosis University of Rochester 518 Hylan Bldg Rochester NY 14627 160743209 501(C)(3) 93548 Research University Of Southern california 3720 S Flower st Los Angeles CA 90089 951642394 State of CA 60000 Research University of Tx Health Science center 7703 Floyd Curl Dr San Ant TX 782293900 741586031 STATE OF TX 75000 Medical Diagnosis University of Utah 15 N 2030 E Salt Lake City UT 84112 876000525 STATE OF UT 196406 Medical Diagnosis University of Vermont medical center PO Box 1902 Burlington VT 054011902 030219303 STATE OF VT 20000 Medical Diagnosis University of Washington 1959 NE Pacific Seattle WA 981956143 916001537 STATE OF WA 38237 Research University of Washington 1959 NE Pacific Seattle WA 981956143 916001537 STATE OF WA 38237 Research University of Washington medical center 1959 NE Pacific Seattle WA 981956143 916001537 STATE OF WA 12500 Medical Diagnosis University Of Washington 4333 Brooklyn Ave N Seattle WA 98195 916001537 STATE OF WA 200000 Research University Physicians - Finance One hosp Drive Columbia MO 65212 436003859 STATE OF MO 10000 Medical Diagnosis Univesity of Washington 12455 Collections Dr Chicago IL 60693 916001537 STATE OF WA 12500 Medical Diagnosis univeristy of washington medical center 1959 NE Pacific Seattle WA 981956143 916001537 STATE OF WA 25000 Medical Diagnosis University Of Southern california 3720 S Flower st Los Angeles CA 90089 951642394 STATE OF CA 100000 Research UT Southwestern medical center PO Box 841753 Dallas TX 752841753 756002868 State of TX 190000 Medical Diagnosis UT Southwestern medical center PO Box 841753 Dallas TX 752841753 756002868 STATE OF TX 100000 Research UW hospital and Clinics Authority Drawer 853 Milwaukee WI 53278 391835630 501(C)(3) 20000 Medical Diagnosis Valley childrens hospital 9300 Valley chldns Pl Madera CA 93636 941294954 501(C)(3) 10000 Medical Diagnosis Vanderbilt univeristy medical center PO Box 121236 Dallas TX 753121236 352528741 501(C)(3) 100000 Medical Diagnosis Via Christi hospitals WichitaInc 707 N Emporia ave Wichita KS 67214 481172106 501(c)(3) 15000 Medical Diagnosis VCU PO BOX 980568 Richmond VA 232980568 546001758 STATE OF VA 100000 Research Wake Forest University Health Sciences Programs md ctr Blvd WinstonSalem NC 271570001 223849199 501(C)(3) 20000 Medical Diagnosis WA University in St Louis 1 Brookings Dr St Louis MO 631304862 430653611 501(C)(3) 93750 Medical Diagnosis WA University in StLouis 1 Brookings Dr St Louis MO 631304862 430653611 501(C)(3) 53291 Research WA University in StLouis 1 Brookings Dr St Louis MO 631304862 430653611 501(C)(3) 31250 Medical Diagnosis Washington university 1 Brookings Dr St Louis MO 631304862 430653611 501(C)(3) 364287 Research Wesley Neuro Clinic PC 8000 ctrview pkway Cordova TN 38018 621499155 501(C)(3) 50000 Medical Diagnosis west virginia university research corp 886 Chestnut Ridge rd Morgantown WV 26506 550665758 501(C)(3) 20000 Medical Diagnosis Wright State University 3640 Colonel Glenn Hwy Dayton OH 45435 310732831 501(c)(3) 85120 Research Yale University PO Box 1873 New Haven CT 065081873 060646973 501(C)(3) 30000 Medical Diagnosis 242 8 FORM 990, SCHEDULE I, PART I, LINE 2 UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. X X X X X false false false false false false false false false STEVEN M DERKS PRESIDENT & CEO 774023 0 0 0 314303 0 0 0 3504 0 1091830 0 0 0 JULIE FABER CPA ASST. TREASURER & CFO 240628 0 0 0 0 0 0 0 7361 0 247989 0 0 0 KRISTINE WELKER INTERIM PRES. & CEO (Feb-Sept) 211207 0 0 0 0 0 0 0 0 0 211207 0 0 0 EILEEN TIMMINS PHD ASST.SEC.EVP CHIEF PPL OFFICER 194724 0 0 0 0 0 0 0 14341 0 209065 0 0 0 KAREN ALEXANDER EVP,CHIEF IMPACT/PHILAN.OFFICE 347243 0 10000 0 0 0 0 0 11213 0 368456 0 0 0 JOHN WALSH DIVISION CHIEF EXECUTIVE 167054 0 0 0 0 0 0 0 18503 0 185557 0 0 0 STEVEN FORD EVP-CHIEF COMM/MKT OFFICER 143783 0 0 0 0 0 0 0 8759 0 152542 0 0 0 GRACE K PAVLATH PHD SR VP SCIENTIFIC PROGRAM DIR. 188227 0 0 0 9000 0 0 0 12233 0 209460 0 0 0 GAIL SCHMERTZ KERNER ESQ SR. VP & GENERAL COUNSEL 189068 0 0 0 0 0 0 0 18503 0 207571 0 0 0 NANCY STINSON HARRIS NVP OF CORP PARTNERSHIPS 188168 0 0 0 0 0 0 0 7906 0 196074 0 0 0 KRISTIN STEPHENSON SVP,CHIEF POL&COMM ENG OFFICER 147384 0 0 0 9000 0 0 0 18503 0 174887 0 0 0 NATALIE STAMER VP OF DIGITAL & CONTENT MARKET 137803 0 1000 0 6000 0 0 0 21023 0 165826 0 0 0 STANLEY APPEL BOARD MEMBER 21150 RESEARCH GRANT see part v Daniel G Fries MDA BOARD MEMBER 205900 Pension Actuaries Service false PART III, LINE 1, COLUMN E: THE GRANT AMOUNT WENT TO Stanley Appel's institution, The Methodist Hospital Research Institute. He was the researcher that the grant benefits. PART IV, LINE 1, COLUMN D: DESCRIPTION OF TRANSACTION: MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. X 79 1608677 SELLING PRICE X MEDICAL EQUIPMENT 20 115132 APPRAISAL false true false FORM 990, PART I, LINE 1 MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH LEGAL. FORM 990, PART VI, SECTION B, LINES 15A AND 15B A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 9 OTHER CHANGES IN NET ASSETS: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS (3,539,277)