CURE JM FOUNDATION: Form 990, tax year 2018
View the entire original 990 at ProPublica ↗
- Organization
- CURE JM FOUNDATION (EIN 35-2222262)
- Tax period
- 2018-10-01 to 2019-09-30
- Filed
- 2020-08-17
- IRS object ID
- 202032309349301993
- Schema version
- 2018v3.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2020-08-17T13:04:50-05:00 | ReturnTs |
| Tax Period End | 2019-09-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 822029500 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TOAL MURRAY DAY & LALOR LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 130 ADMIRAL COCHRANE DR SUITE 200 | AddressLine1Txt |
| City | ANNAPOLIS | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 214017368 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2018-10-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 352222262 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE JM FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CURE | BusinessNameControlTxt |
| Phone | 2025966267 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 19309 WINMEADE DRIVE SUITE 204 | AddressLine1Txt |
| City | LEESBURG | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 20176 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JAMES MINOW | PersonNm |
| Person Title | EXECUTIVE DIRECTOR | PersonTitleTxt |
| Phone | 2025966267 | PhoneNum |
| Signature | 2020-08-17 | SignatureDt |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | THADDEUS N TOAL CPA | PreparerPersonNm |
| PTIN | P00780668 | PTIN |
| Phone | 4102240343 | PhoneNum |
| Preparation | 2020-08-17 | PreparationDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 35.196.31.124 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2020-08-17 | IPDt |
| IP Tm | 13:04:50 | IPTm |
| IP Timezone | CD | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | 7A8FBFD014382CA630879A3BE5BA77C88A84E285 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 7A8FBFD014382CA630879A3BE5BA77C88A84E285 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2018 | TaxYr |
| Build TS | 2020-11-06 18:47:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | JAMES MINOW | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 19309 WINMEADE DRIVE SUITE 204 | AddressLine1Txt |
| City | LEESBURG | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 20176 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,018,688 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREJM.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2003 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. | ActivityOrMissionDesc |
| Voting Members Governing Body | 9 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 9 | VotingMembersIndependentCnt |
| Total Employee | 5 | TotalEmployeeCnt |
| Total Volunteers | 1910 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $1,959,884 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,854,330 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $11,812 | PYInvestmentIncomeAmt |
| CY Investment Income | $13,143 | CYInvestmentIncomeAmt |
| PY Other Revenue | $3,098 | PYOtherRevenueAmt |
| CY Other Revenue | $55,797 | CYOtherRevenueAmt |
| PY Total Revenue | $1,974,794 | PYTotalRevenueAmt |
| CY Total Revenue | $1,923,270 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $914,637 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $880,722 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $284,526 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $660,872 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $357,618 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $512,971 | PYOtherExpensesAmt |
| CY Other Expenses | $198,806 | CYOtherExpensesAmt |
| PY Total Expenses | $1,712,134 | PYTotalExpensesAmt |
| CY Total Expenses | $1,740,400 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $262,660 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $182,870 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,144,275 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,920,336 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $532,750 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $105,866 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,611,525 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,814,470 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $880,722 | ExpenseAmt |
| Desc | THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 196 ,106 TO THE CURE JM CENTER OF EXCELLENCE IN JM RESEARCH AT STANLEY MANNE CHILDREN'S RESEARCH INSTITUTE, AFFILIATED WITH ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL. THIS FACILITY HAS CARED FOR OVER 600 CHILDREN WITH JDM AND OTHER FORMS OF INFLAMMATORY MYOPATHY. THE TEAM IS WORKING TO DISCOVER THE BIOMARKERS OF JM ACTIVITY TO GUIDE THE UTILIZATION AND/OR CREATION OF MORE EFFECTIVE THERAPIES. THEY HAVE ALREADY IDENTIFIED A VARIETY OF GENETIC AND ENVIRONMENTAL FACTORS THAT NOT ONLY PLAY A ROLE IN THE ONSET OF SYMPTOMS, BUT ALSO GOVERN THE CHILD' S OUTCOME; 2) 200,000 TO THE GW MEDICAL FACULTY ASSOCIATES MYOSITIS CENTER IN WASHINGTON, DC. AS A NATIONAL REFERRAL SITE FOR INFLAMMATORY MUSCLE DISEASES, THE CENTER IS OFTEN CALLED UPON TO EITHER ESTABLISH A DIAGNOSIS OR TO PROVIDE A SECOND OPINION RELATED TO THE MANAGEMENT OF CHILDREN AND ADULTS WITH JM. THE CENTER ALSO SPECIALIZES IN JM RESEARCH AND EDUCATION WORKING IN COLLABORATION WITH THE NATIONAL INSTITUTE OF HEALTH (NIH); 3) 100,000 TO NACTS TO ADVANCE TRANSLATIONAL SCIENCE RESEARCH IN THE AREA OF JUVENILE AUTOIMMUNE DISORDERS; 4) 130,000 TO GEORGE WASHINGTON UNIVERSITY FOR A STUDY TO EXPLORE RELATIONSHIPS BETWEEN VARIOUS COMPONENTS OF FATIGUE PRIMARILY MEDIATED BY THE CARDIORESPIRATORY SYSTEM ; 5 62,500 TO CARRA TO SUPPORT EXPANSION OF THE REGISTRY TO INCLUDE PATIENTS WITH JDM; 6) 120,000 TO UNIVERSITY OF CALIFORNIA, SAN FRANCISCO FOR A FELLOW TO CONDUCT RESEARCH REGARDING LONGITUDINAL IMMUNE PROFILING FOR BIOMARKER DISCOVERY IN PATIENTS WITH JDM; 7 40 ,000 TO UNIVERSITY OF PITTSBURGH TO DETERMINE IF ULTRASOUND CAN DETECT MUSCLE DISEASE IN CHILDREN WITH ACTIVE INFLAMMATION; 8) 1,031 FOR TRANSCRIPTION SERVICES AND RECORDING DEVICES RELATED TO A MENTAL HEALTH FOCUS GROUP; AND 10 65,000 TO UNIVERSITY OF BATH (UK) FOR VALIDATION OF COMMERCIAL MYOSITIS AUTOANTIBODY PANELS LEADING TO INCREASED ACCESSIBILITY OF TESTING, STANDARDIZATION IN TESTING AND IMPROVED DIAGNOSTIC CRITERIA. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $90,886 | ExpenseAmt |
| Desc | THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN ARLINGTON, VA JUST OUTSIDE OF WASHINGTON, DC. 90 FAMILIES ATTENDED INCLUDING 40 GRANDPARENTS , 150+ PARENTS, 70 CHILDREN, 50 TEENS AND OVER A DOZEN YOUNG ADULTS. 90 MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A 1-DAY MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM DC EVENT. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $182,231 | ExpenseAmt |
| Desc | THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $1,153,839 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | false | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | false | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | false | BackupWthldComplianceInd |
| Employee | 5 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 9 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 9 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JAMES MINOW | PersonNm |
| Phone | 2025966267 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 19309 WINMEADE DRIVE SUITE 204 | AddressLine1Txt |
| City | LEESBURG | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 20176 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (10 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| KRISTINE ALDERFER | |||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| RAGAN CANTRELLE | |||||||
| SECRETARY | 12.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| KEVIN COFFEY | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| DENISE C DORIA | |||||||
| CFO & DIRECT | 20.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| SUZANNE EDISON | |||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| SHARI HUME | |||||||
| CO-FOUNDER | 42.00 | Yes (X) | $0 | $0 | $0 | ||
| TOM HUME | |||||||
| CO-FOUNDER | 8.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES MINOW | |||||||
| EXECUTIVE DI | 40.00 | $152,773 | $0 | $0 | Yes (X) | ||
| ANNIE MITCHELL | |||||||
| VICE PRESIDE | 5.00 | Yes (X) | $0 | $0 | $0 | ||
| TRACY VAN NESS | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $152,773 | TotalReportableCompFromOrgAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $760,191 | FundraisingAmt |
| All Other Contributions | $1,094,139 | AllOtherContributionsAmt |
| Total Contributions | $1,854,330 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $13,143 | TotalRevenueColumnAmt |
| Exclusion | $13,143 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $95,418 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $760,191 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $95,418 | FundraisingDirectExpensesAmt |
| Gross Sales Of Inventory | $1,501 | GrossSalesOfInventoryAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,501 | TotalRevenueColumnAmt |
| Exclusion | $1,501 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| OTHER REVENUE | 900099 | $46,796 | $46,796 |
| SERVICES REVENUE | 900099 | $7,500 | $7,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $54,296 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,923,270 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $54,296 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $14,644 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $880,722 | TotalAmt |
| Program Services | $880,722 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $173,451 | TotalAmt |
| Program Services | $60,708 | ProgramServicesAmt |
| Management And General | $52,035 | ManagementAndGeneralAmt |
| Fundraising | $60,708 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $372,521 | TotalAmt |
| Program Services | $118,750 | ProgramServicesAmt |
| Management And General | $70,414 | ManagementAndGeneralAmt |
| Fundraising | $183,357 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $114,900 | TotalAmt |
| Program Services | $52,900 | ProgramServicesAmt |
| Management And General | $18,447 | ManagementAndGeneralAmt |
| Fundraising | $43,553 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,725 | TotalAmt |
| Program Services | $2,509 | ProgramServicesAmt |
| Management And General | $14,216 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $44,812 | TotalAmt |
| Program Services | $8,962 | ProgramServicesAmt |
| Management And General | $7,907 | ManagementAndGeneralAmt |
| Fundraising | $27,943 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,815 | TotalAmt |
| Management And General | $31,458 | ManagementAndGeneralAmt |
| Fundraising | $2,357 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,356 | TotalAmt |
| Program Services | $9,556 | ProgramServicesAmt |
| Management And General | $5,800 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,612 | TotalAmt |
| Management And General | $6,612 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| OTHER EXPENSES | $57,647 | $12,187 | $21,399 | $24,061 |
| EDUCATIONAL/SPECIAL EVENT | $12,649 | $144 | $12,505 | |
| WEB DEVELOPMENT | $6,041 | $4,117 | $1,924 | |
| CONFERENCES | $5,149 | $3,284 | $655 | $1,210 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,740,400 | TotalAmt |
| Program Services | $1,153,839 | ProgramServicesAmt |
| Management And General | $228,943 | ManagementAndGeneralAmt |
| Fundraising | $357,618 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,299,313 | BOYAmt |
| EOY | $1,136,751 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $774,566 | BOYAmt |
| EOY | $783,585 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,579 | BOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $50,000 | BOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,392 | BOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,425 | BOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,144,275 | BOYAmt |
| EOY | $1,920,336 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,697 | BOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $452,500 | BOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $63,553 | BOYAmt |
| EOY | $105,866 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $532,750 | BOYAmt |
| EOY | $105,866 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,367,997 | BOYAmt |
| EOY | $1,814,470 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $243,528 | BOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,611,525 | BOYAmt |
| EOY | $1,814,470 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,144,275 | BOYAmt |
| EOY | $1,920,336 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $182,870 | ReconcilationRevenueExpnssAmt |
| Prior Period Adjustments | $20,075 | PriorPeriodAdjustmentsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | Yes (true) | AccountantCompileOrReviewInd |
| FS Audited | false | FSAuditedInd |
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $814,347 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,288,464 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,721,373 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,959,884 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,854,330 | CurrentTaxYearAmt |
| Total | $7,638,398 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $814,347 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,288,464 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,721,373 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,959,884 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,854,330 | CurrentTaxYearAmt |
| Total | $7,638,398 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $1,406,087 | SubstantialContributorsTotAmt |
| Public Support Total170 | $6,232,311 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,886 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,929 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $7,916 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $11,812 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $13,143 | CurrentTaxYearAmt |
| Total | $42,686 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year | $1,501 | CurrentTaxYearAmt |
| Total | $1,501 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $7,682,585 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $144,919 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.81120 | PublicSupportCY170Pct |
| Public Support PY170 | 0.80900 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PAYROLL TAXES PAYABLE | Desc |
| Amt | $105,866 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $105,866 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,018,688 | TotalRevEtcAuditedFinclStmtAmt |
| Other Revenue | $95,418 | OtherRevenueAmt |
| Revenue Not Reported | $95,418 | RevenueNotReportedAmt |
| Revenue Subtotal | $1,923,270 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $1,923,270 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,835,818 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $95,418 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $95,418 | ExpensesNotReportedAmt |
| Expenses Subtotal | $1,740,400 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $1,740,400 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| SCHEDULE D, PAGE 3, PART X | CURE JM FOUNDATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAX POSITIONS IN THE FINANCIAL STATEMENTS BY APPLYING A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN AND HAS CONCLUDED THAT AS OF SEPTEMBER 30, 2019, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS. |
| SCHEDULE D, PAGE 4, PART XI, LINE 2D | RECLASSIFICATION OF EVENT EXPENSES 95,418 |
| SCHEDULE D, PAGE 4, PART XII, LINE 2D | RECLASSIFICATION OF EVENT EXPENSES 95,418 |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | NEW YORK WALK S | Event1Nm |
| Gross Receipts Event1 | $138,495 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $133,700 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $4,795 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $4,795 | OtherDirectExpensesEvent1Amt |
| Event2 | CHICAGO WALK ST | Event2Nm |
| Gross Receipts Event2 | $124,319 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $119,031 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $5,288 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $5,288 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 8 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $592,795 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $507,460 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $85,335 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $85,335 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $855,609 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $760,191 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $95,418 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $95,418 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $95,418 | DirectExpenseSummaryEventsAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | false | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (9 entries)
| Business Name Line2RecipientBusinessName/BusinessNameLine2Txt | Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| CHILDHOOD ARTHRITIS & RHEUMATOLOGY | ||||||||
| RESEARCH ALLIANCE | 555 EAST WELLS STREET SUITE 1100 | MILWAUKEE | WI | 53202 | 464152355 | 501C3 | $262,548 | SUPPORT THE EXPANSIO |
| DUKE UNIVERSITY MEDICAL CENTER | ||||||||
| BOX 3212 | DURHAM | NC | 27710 | 560532129 | 501C3 | $83,500 | JUVENILE IDIOPATHIC | |
| GLOBAL CONFERENCE ON MYOSITIS INC | ||||||||
| 4909 LENNIE ROAD SUITE B | JACKSONVILLE | FL | 32218 | 812402265 | 501C3 | $11,581 | STUDY OF MYOSITIS | |
| HOSPITAL FOR SICK CHILDREN | ||||||||
| 1731 BUNKER HILL ROAD NE SUITE 30 | WASHINGTON | DC | 20017 | 530204670 | 501C3 | $73,938 | PROVIDE QUALITY CARE | |
| NATIONAL CENTER FOR ADVANCING | ||||||||
| TRANSLATIONAL SCIENCES - NIH | BUILDING 31 RM 3811 31 CENTER DR | BETHESDA | MD | 208922128 | 560686338 | 501C3 | $100,000 | ADVANCE TRANSLATIONA |
| THE GEORGE WASHINGTON UNIVERSITY | ||||||||
| 45155 RESEARCH PLACE SUITE 260 | ASHBURN | VA | 20147 | 530196584 | 501C3 | $95,000 | STUDY TO EXPLORE REL | |
| ANN & ROBERT H LURIE CHILDREN'S | ||||||||
| 2225 E CHICAGO AVENUE BOX 4 | CHICAGO | IL | 606112605 | 362170833 | 501C3 | $87,500 | CONDUCT THE ONGOING | |
| NATL INSTITUTE OF ENVIR HEALTH SCIE | ||||||||
| 111 TW ALEXANDER DRIVE | DURHAM | NC | 27709 | GOV | $20,000 | |||
| SEATTLE CHILDRENS HOSPITAL | ||||||||
| PO BOX 5371 MS RC-507 | SEATTLE | WA | 981455005 | 910564748 | 501C3 | $60,014 | ||
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JAMES MINOW | PersonNm |
| Title | EXECUTIVE DIRECTOR | TitleTxt |
| Base Compensation Filing Org | $152,773 | BaseCompensationFilingOrgAmt |
| Total Compensation Filing Org | $152,773 | TotalCompensationFilingOrgAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PAGE 2, PART III, LINE 4A | THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 196 ,106 TO THE CURE JM CENTER OF EXCELLENCE IN JM RESEARCH AT STANLEY MANNE CHILDREN'S RESEARCH INSTITUTE, AFFILIATED WITH ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL. THIS FACILITY HAS CARED FOR OVER 600 CHILDREN WITH JDM AND OTHER FORMS OF INFLAMMATORY MYOPATHY. THE TEAM IS WORKING TO DISCOVER THE BIOMARKERS OF JM ACTIVITY TO GUIDE THE UTILIZATION AND/OR CREATION OF MORE EFFECTIVE THERAPIES. THEY HAVE ALREADY IDENTIFIED A VARIETY OF GENETIC AND ENVIRONMENTAL FACTORS THAT NOT ONLY PLAY A ROLE IN THE ONSET OF SYMPTOMS, BUT ALSO GOVERN THE CHILD' S OUTCOME; 2) 200,000 TO THE GW MEDICAL FACULTY ASSOCIATES MYOSITIS CENTER IN WASHINGTON, DC. AS A NATIONAL REFERRAL SITE FOR INFLAMMATORY MUSCLE DISEASES, THE CENTER IS OFTEN CALLED UPON TO EITHER ESTABLISH A DIAGNOSIS OR TO PROVIDE A SECOND OPINION RELATED TO THE MANAGEMENT OF CHILDREN AND ADULTS WITH JM. THE CENTER ALSO SPECIALIZES IN JM RESEARCH AND EDUCATION WORKING IN COLLABORATION WITH THE NATIONAL INSTITUTE OF HEALTH (NIH); 3) 100,000 TO NACTS TO ADVANCE TRANSLATIONAL SCIENCE RESEARCH IN THE AREA OF JUVENILE AUTOIMMUNE DISORDERS; 4) 130,000 TO GEORGE WASHINGTON UNIVERSITY FOR A STUDY TO EXPLORE RELATIONSHIPS BETWEEN VARIOUS COMPONENTS OF FATIGUE PRIMARILY MEDIATED BY THE CARDIORESPIRATORY SYSTEM ; 5 62,500 TO CARRA TO SUPPORT EXPANSION OF THE REGISTRY TO INCLUDE PATIENTS WITH JDM; 6) 120,000 TO UNIVERSITY OF CALIFORNIA, SAN FRANCISCO FOR A FELLOW TO CONDUCT RESEARCH REGARDING LONGITUDINAL IMMUNE PROFILING FOR BIOMARKER DISCOVERY IN PATIENTS WITH JDM; 7 40 ,000 TO UNIVERSITY OF PITTSBURGH TO DETERMINE IF ULTRASOUND CAN DETECT MUSCLE DISEASE IN CHILDREN WITH ACTIVE INFLAMMATION; 8) 1,031 FOR TRANSCRIPTION SERVICES AND RECORDING DEVICES RELATED TO A MENTAL HEALTH FOCUS GROUP; AND 10 65,000 TO UNIVERSITY OF BATH (UK) FOR VALIDATION OF COMMERCIAL MYOSITIS AUTOANTIBODY PANELS LEADING TO INCREASED ACCESSIBILITY OF TESTING, STANDARDIZATION IN TESTING AND IMPROVED DIAGNOSTIC CRITERIA. |
| FORM 990, PAGE 6, PART VI, LINE 2 | TOM HUME SHARI HUME CO-FOUNDER CO-FOUNDER HUSBAND/WIFE |
| FORM 990, PAGE 6, PART VI, LINE 11B | DRAFT COPY OF FORM 990 WAS PROVIDED TO THE EXECUTIVE COMMITTEE FOR REVIEW BEFORE IT WAS FILED. |
| FORM 990, PAGE 6, PART VI, LINE 12C | THE ORGANIZATION REGULARLY REVIEWS CONTRACTS AND RELATIONSHIPS WITH VENDORS TO ASSURE COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY. |
| FORM 990, PAGE 6, PART VI, LINE 15A | THE BOARD OF DIRECTORS RESEARCHED THE COMPENSATION OF COMPARABLE ORGANIZATIONS BASED ON JOB DESCRIPTION AND EVALUATED THE PERFORMANCE OF EXECUTIVE DIRECTOR. |
| FORM 990, PAGE 6, PART VI, LINE 19 | THE ORGANIZATION'S EXEMPT ORGANIZATION TAX RETURNS AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE FOR REVIEW ON ITS WEBSITE AT WWW.CUREJM.ORG. THE ORGANIZATION'S FORM 1023, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW UPON REQUEST. |
| FORM 990, PART XI, LINE 9 | RECLASSIFICATION OF EVENT EXPENSES 95,418 RECLASSIFICATION OF EVENT EXPENSES -95,418 |
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