2020-08-17T13:04:50-05:00 2019-09-30 822029500 TOAL MURRAY DAY & LALOR LLC 130 ADMIRAL COCHRANE DR SUITE 200 ANNAPOLIS MD 214017368 990 2018-10-01 352222262 CURE JM FOUNDATION CURE 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 JAMES MINOW EXECUTIVE DIRECTOR 2025966267 2020-08-17 THADDEUS N TOAL CPA P00780668 4102240343 2020-08-17 35.196.31.124 2020-08-17 13:04:50 CD P 7A8FBFD014382CA630879A3BE5BA77C88A84E285 7A8FBFD014382CA630879A3BE5BA77C88A84E285 2018 2020-11-06 18:47:13Z X JAMES MINOW 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 2018688 false X WWW.CUREJM.ORG X 2003 CA TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. 9 9 5 1910 0 1959884 1854330 0 11812 13143 3098 55797 1974794 1923270 914637 880722 0 284526 660872 0 357618 512971 198806 1712134 1740400 262660 182870 2144275 1920336 532750 105866 1611525 1814470 X TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. false false 880722 THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 196 ,106 TO THE CURE JM CENTER OF EXCELLENCE IN JM RESEARCH AT STANLEY MANNE CHILDREN'S RESEARCH INSTITUTE, AFFILIATED WITH ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL. THIS FACILITY HAS CARED FOR OVER 600 CHILDREN WITH JDM AND OTHER FORMS OF INFLAMMATORY MYOPATHY. THE TEAM IS WORKING TO DISCOVER THE BIOMARKERS OF JM ACTIVITY TO GUIDE THE UTILIZATION AND/OR CREATION OF MORE EFFECTIVE THERAPIES. THEY HAVE ALREADY IDENTIFIED A VARIETY OF GENETIC AND ENVIRONMENTAL FACTORS THAT NOT ONLY PLAY A ROLE IN THE ONSET OF SYMPTOMS, BUT ALSO GOVERN THE CHILD' S OUTCOME; 2) 200,000 TO THE GW MEDICAL FACULTY ASSOCIATES MYOSITIS CENTER IN WASHINGTON, DC. AS A NATIONAL REFERRAL SITE FOR INFLAMMATORY MUSCLE DISEASES, THE CENTER IS OFTEN CALLED UPON TO EITHER ESTABLISH A DIAGNOSIS OR TO PROVIDE A SECOND OPINION RELATED TO THE MANAGEMENT OF CHILDREN AND ADULTS WITH JM. THE CENTER ALSO SPECIALIZES IN JM RESEARCH AND EDUCATION WORKING IN COLLABORATION WITH THE NATIONAL INSTITUTE OF HEALTH (NIH); 3) 100,000 TO NACTS TO ADVANCE TRANSLATIONAL SCIENCE RESEARCH IN THE AREA OF JUVENILE AUTOIMMUNE DISORDERS; 4) 130,000 TO GEORGE WASHINGTON UNIVERSITY FOR A STUDY TO EXPLORE RELATIONSHIPS BETWEEN VARIOUS COMPONENTS OF FATIGUE PRIMARILY MEDIATED BY THE CARDIORESPIRATORY SYSTEM ; 5 62,500 TO CARRA TO SUPPORT EXPANSION OF THE REGISTRY TO INCLUDE PATIENTS WITH JDM; 6) 120,000 TO UNIVERSITY OF CALIFORNIA, SAN FRANCISCO FOR A FELLOW TO CONDUCT RESEARCH REGARDING LONGITUDINAL IMMUNE PROFILING FOR BIOMARKER DISCOVERY IN PATIENTS WITH JDM; 7 40 ,000 TO UNIVERSITY OF PITTSBURGH TO DETERMINE IF ULTRASOUND CAN DETECT MUSCLE DISEASE IN CHILDREN WITH ACTIVE INFLAMMATION; 8) 1,031 FOR TRANSCRIPTION SERVICES AND RECORDING DEVICES RELATED TO A MENTAL HEALTH FOCUS GROUP; AND 10 65,000 TO UNIVERSITY OF BATH (UK) FOR VALIDATION OF COMMERCIAL MYOSITIS AUTOANTIBODY PANELS LEADING TO INCREASED ACCESSIBILITY OF TESTING, STANDARDIZATION IN TESTING AND IMPROVED DIAGNOSTIC CRITERIA. 90886 THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN ARLINGTON, VA JUST OUTSIDE OF WASHINGTON, DC. 90 FAMILIES ATTENDED INCLUDING 40 GRANDPARENTS , 150+ PARENTS, 70 CHILDREN, 50 TEENS AND OVER A DOZEN YOUNG ADULTS. 90 MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A 1-DAY MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM DC EVENT. 182231 THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE. 1153839 true true false false false false false false false false false false false false true true true false false false false false false false true false false true false true false false false false false false false false false false false false false false false false false true 0 0 false 5 true false false false false false true true false false false false false false false false X 9 9 true false false false false false false true true false true true true true true true true true true false false CA OR IL WA MD CO NY FL MN PA MA X X JAMES MINOW 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 X KRISTINE ALDERFER DIRECTOR 10.00 X 0 0 0 RAGAN CANTRELLE SECRETARY 12.00 X X 0 0 0 KEVIN COFFEY DIRECTOR 2.00 X 0 0 0 DENISE C DORIA CFO & DIRECT 20.00 X X 0 0 0 SUZANNE EDISON DIRECTOR 10.00 X 0 0 0 SHARI HUME CO-FOUNDER 42.00 X 0 0 0 TOM HUME CO-FOUNDER 8.00 X 0 0 0 JAMES MINOW EXECUTIVE DI 40.00 X 152773 0 0 ANNIE MITCHELL VICE PRESIDE 5.00 X 0 0 0 TRACY VAN NESS DIRECTOR 2.00 X 0 0 0 152773 1 false true false 760191 1094139 1854330 13143 13143 95418 760191 95418 1501 1501 1501 OTHER REVENUE 900099 46796 46796 SERVICES REVENUE 900099 7500 7500 54296 1923270 54296 14644 880722 880722 173451 60708 52035 60708 372521 118750 70414 183357 114900 52900 18447 43553 16725 2509 14216 44812 8962 7907 27943 33815 31458 2357 15356 9556 5800 6612 6612 OTHER EXPENSES 57647 12187 21399 24061 EDUCATIONAL/SPECIAL EVENT 12649 144 12505 WEB DEVELOPMENT 6041 4117 1924 CONFERENCES 5149 3284 655 1210 1740400 1153839 228943 357618 1299313 1136751 774566 783585 5579 50000 12392 2425 2144275 1920336 16697 452500 63553 105866 532750 105866 X 1367997 1814470 243528 1611525 1814470 2144275 1920336 X 182870 20075 X true false true false X 814347 1288464 1721373 1959884 1854330 7638398 814347 1288464 1721373 1959884 1854330 7638398 1406087 6232311 3886 5929 7916 11812 13143 42686 1501 1501 7682585 144919 0.81120 0.80900 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED PAYROLL TAXES PAYABLE 105866 105866 X 2018688 95418 95418 1923270 1923270 1835818 95418 95418 1740400 1740400 SCHEDULE D, PAGE 3, PART X CURE JM FOUNDATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAX POSITIONS IN THE FINANCIAL STATEMENTS BY APPLYING A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN AND HAS CONCLUDED THAT AS OF SEPTEMBER 30, 2019, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS. SCHEDULE D, PAGE 4, PART XI, LINE 2D RECLASSIFICATION OF EVENT EXPENSES 95,418 SCHEDULE D, PAGE 4, PART XII, LINE 2D RECLASSIFICATION OF EVENT EXPENSES 95,418 NEW YORK WALK S 138495 133700 4795 4795 CHICAGO WALK ST 124319 119031 5288 5288 8 592795 507460 85335 85335 855609 760191 95418 95418 95418 false CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE 555 EAST WELLS STREET SUITE 1100 MILWAUKEE WI 53202 464152355 501C3 262548 SUPPORT THE EXPANSIO DUKE UNIVERSITY MEDICAL CENTER BOX 3212 DURHAM NC 27710 560532129 501C3 83500 JUVENILE IDIOPATHIC GLOBAL CONFERENCE ON MYOSITIS INC 4909 LENNIE ROAD SUITE B JACKSONVILLE FL 32218 812402265 501C3 11581 STUDY OF MYOSITIS HOSPITAL FOR SICK CHILDREN 1731 BUNKER HILL ROAD NE SUITE 30 WASHINGTON DC 20017 530204670 501C3 73938 PROVIDE QUALITY CARE NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES - NIH BUILDING 31 RM 3811 31 CENTER DR BETHESDA MD 208922128 560686338 501C3 100000 ADVANCE TRANSLATIONA THE GEORGE WASHINGTON UNIVERSITY 45155 RESEARCH PLACE SUITE 260 ASHBURN VA 20147 530196584 501C3 95000 STUDY TO EXPLORE REL ANN & ROBERT H LURIE CHILDREN'S 2225 E CHICAGO AVENUE BOX 4 CHICAGO IL 606112605 362170833 501C3 87500 CONDUCT THE ONGOING NATL INSTITUTE OF ENVIR HEALTH SCIE 111 TW ALEXANDER DRIVE DURHAM NC 27709 GOV 20000 SEATTLE CHILDRENS HOSPITAL PO BOX 5371 MS RC-507 SEATTLE WA 981455005 910564748 501C3 60014 false false false false false false false false false JAMES MINOW EXECUTIVE DIRECTOR 152773 152773 FORM 990, PAGE 2, PART III, LINE 4A THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 196 ,106 TO THE CURE JM CENTER OF EXCELLENCE IN JM RESEARCH AT STANLEY MANNE CHILDREN'S RESEARCH INSTITUTE, AFFILIATED WITH ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL. THIS FACILITY HAS CARED FOR OVER 600 CHILDREN WITH JDM AND OTHER FORMS OF INFLAMMATORY MYOPATHY. THE TEAM IS WORKING TO DISCOVER THE BIOMARKERS OF JM ACTIVITY TO GUIDE THE UTILIZATION AND/OR CREATION OF MORE EFFECTIVE THERAPIES. THEY HAVE ALREADY IDENTIFIED A VARIETY OF GENETIC AND ENVIRONMENTAL FACTORS THAT NOT ONLY PLAY A ROLE IN THE ONSET OF SYMPTOMS, BUT ALSO GOVERN THE CHILD' S OUTCOME; 2) 200,000 TO THE GW MEDICAL FACULTY ASSOCIATES MYOSITIS CENTER IN WASHINGTON, DC. AS A NATIONAL REFERRAL SITE FOR INFLAMMATORY MUSCLE DISEASES, THE CENTER IS OFTEN CALLED UPON TO EITHER ESTABLISH A DIAGNOSIS OR TO PROVIDE A SECOND OPINION RELATED TO THE MANAGEMENT OF CHILDREN AND ADULTS WITH JM. THE CENTER ALSO SPECIALIZES IN JM RESEARCH AND EDUCATION WORKING IN COLLABORATION WITH THE NATIONAL INSTITUTE OF HEALTH (NIH); 3) 100,000 TO NACTS TO ADVANCE TRANSLATIONAL SCIENCE RESEARCH IN THE AREA OF JUVENILE AUTOIMMUNE DISORDERS; 4) 130,000 TO GEORGE WASHINGTON UNIVERSITY FOR A STUDY TO EXPLORE RELATIONSHIPS BETWEEN VARIOUS COMPONENTS OF FATIGUE PRIMARILY MEDIATED BY THE CARDIORESPIRATORY SYSTEM ; 5 62,500 TO CARRA TO SUPPORT EXPANSION OF THE REGISTRY TO INCLUDE PATIENTS WITH JDM; 6) 120,000 TO UNIVERSITY OF CALIFORNIA, SAN FRANCISCO FOR A FELLOW TO CONDUCT RESEARCH REGARDING LONGITUDINAL IMMUNE PROFILING FOR BIOMARKER DISCOVERY IN PATIENTS WITH JDM; 7 40 ,000 TO UNIVERSITY OF PITTSBURGH TO DETERMINE IF ULTRASOUND CAN DETECT MUSCLE DISEASE IN CHILDREN WITH ACTIVE INFLAMMATION; 8) 1,031 FOR TRANSCRIPTION SERVICES AND RECORDING DEVICES RELATED TO A MENTAL HEALTH FOCUS GROUP; AND 10 65,000 TO UNIVERSITY OF BATH (UK) FOR VALIDATION OF COMMERCIAL MYOSITIS AUTOANTIBODY PANELS LEADING TO INCREASED ACCESSIBILITY OF TESTING, STANDARDIZATION IN TESTING AND IMPROVED DIAGNOSTIC CRITERIA. FORM 990, PAGE 6, PART VI, LINE 2 TOM HUME SHARI HUME CO-FOUNDER CO-FOUNDER HUSBAND/WIFE FORM 990, PAGE 6, PART VI, LINE 11B DRAFT COPY OF FORM 990 WAS PROVIDED TO THE EXECUTIVE COMMITTEE FOR REVIEW BEFORE IT WAS FILED. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION REGULARLY REVIEWS CONTRACTS AND RELATIONSHIPS WITH VENDORS TO ASSURE COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD OF DIRECTORS RESEARCHED THE COMPENSATION OF COMPARABLE ORGANIZATIONS BASED ON JOB DESCRIPTION AND EVALUATED THE PERFORMANCE OF EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S EXEMPT ORGANIZATION TAX RETURNS AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE FOR REVIEW ON ITS WEBSITE AT WWW.CUREJM.ORG. THE ORGANIZATION'S FORM 1023, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW UPON REQUEST. FORM 990, PART XI, LINE 9 RECLASSIFICATION OF EVENT EXPENSES 95,418 RECLASSIFICATION OF EVENT EXPENSES -95,418