PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC (EIN 58-1966822)
- Tax period
- 2023-10-01 to 2024-09-30
- Filed
- 2025-08-19
- IRS object ID
- 202512319349301111
- Schema version
- 2023v6.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-08-19T11:27:35-00:00 | ReturnTs |
| Tax Period End | 2024-09-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 331037531 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Outfitters4 Inc | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 717 Coliseum Dr NW | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27106 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-10-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 581966822 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Pediatric Brain Tumor Foundation of the United States Inc | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PEDI | BusinessNameControlTxt |
| Phone | 8002536530 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 380 Knollwood St STE H 125 | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27103 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Larry Little | PersonNm |
| Person Title | Secretary | PersonTitleTxt |
| Phone | 8002536530 | PhoneNum |
| Signature | 2025-08-11 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (true) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Brittany Emery | PreparerPersonNm |
| PTIN | P02119496 | PTIN |
| Phone | 8889299499 | PhoneNum |
| Preparation | 2025-08-11 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Geoff Still | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 380 Knollwood St STE H 125 | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27103 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $5,039,446 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.curethekids.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1992 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | Eliminate childhood brain tumors and support families living with this devastating disease. | ActivityOrMissionDesc |
| Voting Members Governing Body | 13 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 24 | TotalEmployeeCnt |
| Total Volunteers | 475 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $4,929,228 | PYContributionsGrantsAmt |
| CY Contributions Grants | $4,881,230 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $129,201 | PYInvestmentIncomeAmt |
| CY Investment Income | $158,216 | CYInvestmentIncomeAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $5,058,429 | PYTotalRevenueAmt |
| CY Total Revenue | $5,039,446 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,397,216 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,880,872 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,485,381 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $3,010,566 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $683,450 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,685,929 | PYOtherExpensesAmt |
| CY Other Expenses | $1,758,670 | CYOtherExpensesAmt |
| PY Total Expenses | $6,568,526 | PYTotalExpensesAmt |
| CY Total Expenses | $6,650,108 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$1,510,097 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,610,662 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $5,390,187 | TotalAssetsBOYAmt |
| Total Assets EOY | $3,337,274 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,633,344 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,191,093 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $3,756,843 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,146,181 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | Vision A world without childhood brain tumors. Mission Care. Cure. Thrive. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $5,167,796 | ExpenseAmt |
| Desc | See Schedule O | Desc |
| Total Program Service Expenses | $5,167,796 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (true) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | false | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (true) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | Yes (true) | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | Yes (true) | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 23 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 24 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 13 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Outfitters4 Inc | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8889299499 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 717 Coliseum Drive NW | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27106 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|
| Courtney Davies | |||||||
| CEO/President through 9/25/24 | 050.00 | Yes (X) | $306,000 | $0 | $33,145 | ||
| Geoff Still | |||||||
| CFO/COO | 050.00 | Yes (X) | $176,304 | $0 | $21,761 | ||
| Ian M Joyce | |||||||
| Chief Marketing Mission Experience Officer | 040.00 | $175,600 | $0 | $21,729 | Yes (X) | ||
| Robert McNamara | |||||||
| Vice President of Development | 040.00 | $104,150 | $0 | $23,821 | Yes (X) | ||
| Kimberly Roy-Canning | |||||||
| Director of Donor Relations | 040.00 | $100,902 | $0 | $15,703 | Yes (X) | ||
| Michael Henry | |||||||
| Director of Advocacy | 040.00 | $105,595 | $0 | $6,646 | Yes (X) | ||
| Tammy Bates | |||||||
| Senior Director of Operations | 040.00 | $104,081 | $0 | $7,067 | Yes (X) | ||
| Jeff Gelfand | |||||||
| Chair | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Larry Little | |||||||
| Secretary | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Chuck Boderman | |||||||
| Vice Chair | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Andrew Janower | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Karl Mueller | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Ken Murphy | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| John Ragnoni | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Anne Sutton | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Kristin Young | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Bryan Waddell | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Peter Krause | |||||||
| Treasurer | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Katie Bernard | |||||||
| Director Effective June 2024 | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Sanjay Gupta | |||||||
| Director Effective April 2024 | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,072,632 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $129,872 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 7 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| FreeWill Co | |||||
| PO Box 5322 | Kingwood | TX | 77325 | Website Services | $137,614 |
| Teal Media | |||||
| 32600 Telegraph Road Suite 100 | Bingham Farms | MI | 48025 | Website Services | $127,688 |
| Outfitters4 Inc | |||||
| 717 Coliseum Dr NW | Winston Salem | NC | 27106 | Accounting Services | $100,534 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $4,881,230 | AllOtherContributionsAmt |
| Noncash Contributions | $41,533 | NoncashContributionsAmt |
| Total Contributions | $4,881,230 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $158,216 | TotalRevenueColumnAmt |
| Exclusion | $158,216 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,039,446 | TotalRevenueColumnAmt |
| Exclusion | $158,216 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,344,627 | TotalAmt |
| Program Services | $1,344,627 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $471,245 | TotalAmt |
| Program Services | $471,245 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,000 | TotalAmt |
| Program Services | $65,000 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $562,513 | TotalAmt |
| Program Services | $371,342 | ProgramServicesAmt |
| Management And General | $145,028 | ManagementAndGeneralAmt |
| Fundraising | $46,143 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,072,194 | TotalAmt |
| Program Services | $1,482,157 | ProgramServicesAmt |
| Management And General | $253,757 | ManagementAndGeneralAmt |
| Fundraising | $336,280 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $54,382 | TotalAmt |
| Program Services | $39,349 | ProgramServicesAmt |
| Management And General | $5,643 | ManagementAndGeneralAmt |
| Fundraising | $9,390 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $146,664 | TotalAmt |
| Program Services | $105,703 | ProgramServicesAmt |
| Management And General | $17,060 | ManagementAndGeneralAmt |
| Fundraising | $23,901 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $174,813 | TotalAmt |
| Program Services | $123,203 | ProgramServicesAmt |
| Management And General | $25,983 | ManagementAndGeneralAmt |
| Fundraising | $25,627 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,770 | TotalAmt |
| Program Services | $45,770 | ProgramServicesAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $109,900 | TotalAmt |
| Program Services | $75,881 | ProgramServicesAmt |
| Management And General | $31,740 | ManagementAndGeneralAmt |
| Fundraising | $2,279 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fees For Services Prof Fundraising | FeesForServicesProfFundraising |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $405,917 | TotalAmt |
| Program Services | $346,017 | ProgramServicesAmt |
| Management And General | $49,416 | ManagementAndGeneralAmt |
| Fundraising | $10,484 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $107,182 | TotalAmt |
| Program Services | $82,805 | ProgramServicesAmt |
| Management And General | $21,611 | ManagementAndGeneralAmt |
| Fundraising | $2,766 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $181,570 | TotalAmt |
| Program Services | $135,889 | ProgramServicesAmt |
| Management And General | $19,070 | ManagementAndGeneralAmt |
| Fundraising | $26,611 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,395 | TotalAmt |
| Program Services | $13,395 | ProgramServicesAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,474 | TotalAmt |
| Program Services | $244 | ProgramServicesAmt |
| Management And General | $41,374 | ManagementAndGeneralAmt |
| Fundraising | $5,856 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $90,254 | TotalAmt |
| Program Services | $36,360 | ProgramServicesAmt |
| Management And General | $28,227 | ManagementAndGeneralAmt |
| Fundraising | $25,667 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,679 | TotalAmt |
| Program Services | $3,563 | ProgramServicesAmt |
| Management And General | $101 | ManagementAndGeneralAmt |
| Fundraising | $7,015 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $68,574 | TotalAmt |
| Program Services | $34,287 | ProgramServicesAmt |
| Fundraising | $34,287 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,569 | TotalAmt |
| Program Services | $6,106 | ProgramServicesAmt |
| Management And General | $17,733 | ManagementAndGeneralAmt |
| Fundraising | $1,730 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| Fees and licenses | $428,698 | $212,973 | $125,364 | $90,361 |
| Auto Expense | $21,472 | $6,853 | $9,820 | $4,799 |
| Donor Incentives | $57,580 | $57,580 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $144,636 | TotalAmt |
| Program Services | $107,447 | ProgramServicesAmt |
| Management And General | $6,935 | ManagementAndGeneralAmt |
| Fundraising | $30,254 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,650,108 | TotalAmt |
| Program Services | $5,167,796 | ProgramServicesAmt |
| Management And General | $798,862 | ManagementAndGeneralAmt |
| Fundraising | $683,450 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $491,074 | BOYAmt |
| EOY | $430,318 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,040,773 | BOYAmt |
| EOY | $599,471 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $56,927 | BOYAmt |
| EOY | $59,245 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $217,688 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $66,516 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $217,435 | BOYAmt |
| EOY | $151,172 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,239,299 | BOYAmt |
| EOY | $2,097,068 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $344,679 | BOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,390,187 | BOYAmt |
| EOY | $3,337,274 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $824,478 | BOYAmt |
| EOY | $352,453 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $808,866 | BOYAmt |
| EOY | $838,640 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,633,344 | BOYAmt |
| EOY | $1,191,093 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,744,416 | BOYAmt |
| EOY | $732,647 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,012,427 | BOYAmt |
| EOY | $1,413,534 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,756,843 | BOYAmt |
| EOY | $2,146,181 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,390,187 | BOYAmt |
| EOY | $3,337,274 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$1,610,662 | ReconcilationRevenueExpnssAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,471,860 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,836,629 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,000,577 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,929,228 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,805,735 | CurrentTaxYearAmt |
| Total | $26,044,029 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,471,860 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,836,629 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,000,577 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,929,228 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,805,735 | CurrentTaxYearAmt |
| Total | $26,044,029 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $26,044,029 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $45,248 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $14,534 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $21,568 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $129,201 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $158,216 | CurrentTaxYearAmt |
| Total | $368,767 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $26,412,796 | TotalSupportAmt |
| Public Support CY170 | 0.98600 | PublicSupportCY170Pct |
| Public Support PY170 | 0.97140 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incl Escrow Custodial Acct Liab | false | InclEscrowCustodialAcctLiabInd |
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,473,767 | BeginningYearBalanceAmt |
| Other Expenditures | $1,400,000 | OtherExpendituresAmt |
| End Year Balance | $73,767 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,473,767 | BeginningYearBalanceAmt |
| End Year Balance | $1,473,767 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,041,946 | BeginningYearBalanceAmt |
| Contributions | $431,821 | ContributionsAmt |
| End Year Balance | $1,473,767 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $816,243 | BeginningYearBalanceAmt |
| Contributions | $225,703 | ContributionsAmt |
| End Year Balance | $1,041,946 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,016,243 | BeginningYearBalanceAmt |
| Other Expenditures | $200,000 | OtherExpendituresAmt |
| End Year Balance | $816,243 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 1.00000 | BoardDesignatedBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $217,688 | OtherCostOrOtherBasisAmt |
| Depreciation | $66,516 | DepreciationAmt |
| Book Value | $151,172 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $151,172 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc |
|---|
| Financial derivatives and other financial products |
| Closely-held equity interests |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Federal income taxes | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $4,984,991 | TotalRevEtcAuditedFinclStmtAmt |
| Donated Services And Use Fclts | $3,125 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $3,125 | RevenueNotReportedAmt |
| Revenue Subtotal | $4,981,866 | RevenueSubtotalAmt |
| Other Revenues Not Included | $57,580 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $57,580 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,039,446 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,593,840 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $3,125 | DonatedServicesUseFcltsAmt |
| Prior Year Adjustments | -$1,813 | PriorYearAdjustmentsAmt |
| Expenses Not Reported | $1,312 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,592,528 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $57,580 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $57,580 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,650,108 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| X 2 | The Foundation is exempt from federal income taxes under Section 501c3 of the Internal Revenue Code accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The Foundation has determined that it does not have any material unrecognized tax benefits or obligations as of September 30, 2024. |
| XI 4b | Donor incentive expenses included in revenue for audit reporting purposes. |
| XII 4b | Donor incentive expenses included in revenue for audit reporting purposes. |
Schedule F IRS990ScheduleF
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | Europe Including Iceland and Greenland | RegionTxt |
| Purpose Of Grant | Collaboration Scholarship | PurposeOfGrantTxt |
| Cash Grant | $65,000 | CashGrantAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 1 | TotalOtherOrgCnt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (8 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| Dana-Farber Cancer Institute | |||||||
| 450 Brookline Avenue | Boston | MA | 022155450 | 042263040 | 501C3 | $747,855 | Research Grant |
| Regents of the University of Michigan | |||||||
| 3003 S State Street | Ann Arbor | MI | 48109 | 386006309 | 501C3 | $125,000 | Research Grant |
| The Washington University | |||||||
| 7425 Forsyth Boulevard | St Louis | MO | 63105 | 430653611 | 501C3 | $124,480 | Research Grant |
| TippingPoint Biosciences Inc | |||||||
| 145 Higgins Avenue | Los Altos | CA | 94022 | $100,000 | Research Grant | ||
| SonALAsense Inc | |||||||
| 1111 Broadway Suite 2040 | Oakland | CA | 94607 | 833259527 | $100,000 | Research Grant | |
| St Jude Children's Research Hospital | |||||||
| 262 Danny Thomas Place | Memphis | TN | 38105 | 620646012 | 501C3 | $51,856 | Research Grant |
| Children's Hospital of Philadelphia | |||||||
| 2716 South Street | Philadelphia | PA | 19146 | 232237932 | 501C3 | $44,753 | Research Grant |
| Society for Neuro-Oncology | |||||||
| PO Box 273296 | Houston | TX | 772773296 | 760499664 | 501C3 | $40,000 | Research Grant |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 8 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | Direct Aid to Families | GrantTypeTxt |
| Recipient | 256 | RecipientCnt |
| Cash Grant | $471,245 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I Line 2 | FormAndLineReferenceDesc |
| Explanation | All annual research grants are reviewed by our research advisory network and evaluated on several criteria, including scientific merit of the grant application scientific background of the researchers the peer reviewed research publications of the principle investigators applying the supporting collaborative research environment in the research institution and the viability of research environment in the research institution and the viability of research proposed, and facilities available. Each grant recipient is required to submit periodic updates, and a final report before the final grant payment is made. Each research application has to have a hypothesis driven research proposal. Each application must have a list of specific aims that are to be achieved over the timeline of the research project. A timeline is requested for the achievement of the specific aims. The progress reports require that the achievement of the specific aims be detailed with a scientific description of the manner in which they were achieved. If an event has occurred that alters the achievement of the specific aims within the timeline of the research plan the researchers must give a reason that it has not been achieved and a no cost extensions may be requested, and a new timeline is established before the final progress report is issued. Each grant allows for the opportunity of a site visit by the PBTF and these site visits are made by the director of research as well as the senior scientific research advisor, the PBTF president as well as the executive director. Researchers present their research results in person and the PBTF asks questions about the results. All grant applications and research projects have the same requirements on grant approval and reporting regardless of the location of the researcher and his/her institution. These reports are reviewed by our Director of Research Funding and our contracted Senior Scientific Research Advisor. Final approval on all grants is conditioned on Board of Director approval. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt |
|---|---|---|---|---|---|
| Geoff Still | |||||
| CFO/COO | $175,725 | $579 | $7,934 | $13,827 | $198,065 |
| Courtney Davies | |||||
| CEO/President through 9/25/24 | $306,000 | $13,770 | $19,375 | $339,145 | |
| Ian M Joyce | |||||
| Chief Marketing Mission Experience Officer | $175,000 | $600 | $7,902 | $13,827 | $197,329 |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Amy Weinstein | PersonNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | AJ Janower- Board member | RelationshipDescriptionTxt |
| Transaction | $68,750 | TransactionAmt |
| Transaction | See below | TransactionDesc |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part IV Line 1 | FormAndLineReferenceDesc |
| Explanation | Business transactions involving interested persons A Name of person Amy Weinstein D Description of transaction National Director, Research Investments Independent Contractor. | ExplanationTxt |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 3 | ContributionCnt |
| Noncash Contributions Rpt F990 | $18,421 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)
| Non Cash CheckboxNonCashCheckboxInd | DescDesc | ContributionContributionCnt | Noncash Contributions Rpt F990NoncashContributionsRptF990Amt | Method Of Determining RevenuesMethodOfDeterminingRevenuesTxt |
|---|---|---|---|---|
| Yes (X) | Cryptocurrency | 1 | $5,197 | FMV |
| Yes (X) | Gift cards for Auction | 2 | $17,915 | FMV |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, Line 4a | The Pediatric Brain Tumor Foundation released the Voice of the Patient report, highlighting the impact of pediatric lowgrade glioma pLGG and the experiences of patients, families, and caregivers. Based on input from an Externally led Patient-Focused Drug Development EL-PFDD meeting and additional feedback, the report underscores the urgent need for innovative pLGG treatments with fewer side effects that preserve cognitive and functional abilities. Submitted to the FDA, this report represents a significant step in advocating for improved treatment options for the pLGG community. The FDAs approval of OJEMDA tovorafenib, for pediatric low-grade glioma pLGG, the most common brain tumor in children, was a significant breakthrough in treatment options. In 2007, a group of Boston-area families, shocked by the toxicity and lack of effectiveness of treatment options for their children, created the PLGA Foundation/A Kids Brain Tumor Cure AKBTC, to fund research dedicated to understanding and treating pLGG. The PLGA Foundation/AKBTC, which later became the PLGA Fund at PBTF, supported research and clinical trials that led to this breakthrough. PBTF played a key role in advancing OJEMDA by funding research and amplifying the patient voice, continuing its commitment to improving treatments for children with brain tumors. We also want to thank to Catching Up With Jack and the Hope for Kidsfund for their generous support of the novel therapeutic target grant, and Jacks Drive 55 Foundations contributions to both grants through PBTFs PLGA Fund. The Pediatric Brain Tumor Foundations partnership with Uber, launched in November 2024, provided affordable, reliable transportation to help families affected by pediatric brain tumors access critical medical care. This pilots success only reinforces the necessity of sustaining and expanding such initiatives to meet growing demand. 181 unique families were supported and 51 hospital partners engaged. This past holiday season, Jazwares played a crucial role in bringing joy to children in hospitals receiving treatment for brain tumors. Starting on Giving Tuesday, donations transformed into PBTF gifting a comforting Squishmallows to a child undergoing treatment for a brain tumor, generously donated by Jazwares. This initiative raised critical awareness, further engaging donors by transforming each contribution into a meaningful gesture of hope and generosity. Together, we connected with more patient families, care teams, and communities across the country, creating a collective effort to offer comfort, hope, and joy while advancing groundbreaking research, making the holiday season truly special for the children and families who needed it most. The Pediatric Brain Tumor Foundation PBTF is strengthening its efforts with new leadership andexpanded services. Scott Kennedy joins as Vice President of Medical Stewardship and Research, bringing 20 years of experience to drive innovation and family-focused funding. PBTF has also added a nurse navigator and bilingual social worker, with plans to grow nationwide support for families. These advancements reinforce PBTFs commitment to research and comprehensive family care. As we continue to build momentum in research, care, and board development, were excited to launch the Next Gen Leadership Initiative, a network of rising professionals dedicated to advancing PBTFs mission through fundraising, networking, and advocacy. Focused on sustainability and growth, this diverse group spans industries like finance, technology, and healthcare, with many having a personal connection to the cause. Starting in the NYC Metro area, the initiative aims to expand nationwide, empowering emerging leaders to create a lasting impact. The Hearst Foundation has awarded the Pediatric Brain Tumor Foundation a 100K grant to fund the first year of a 3-year Early Career Development ECD research award. This program supports young scientists in pediatric brain tumor research by providing resources, mentorship, and funding. By fostering fresh perspectives and innovative ideas, the program aims to advance treatments and ensure a strong pipeline of experts dedicated to improving outcomes for children and their families. With this vital funding, we are proud to support the next generation of researchers working tirelessly to discover a cure for pediatric brain tumors. |
| Form 990, Part VI, Section A, Line 1A | The Board of Directors may, by resolution, designate two 2 or more Directors to constitute an Executive Committee, which the Committee, to the extent provided in such resolution, shall have and may exercise all of the authority of the Board of Directors in the management of the corporation except as otherwise required by law. All members of the Executive Committee shall be Directors of the corporation. Vacancies in the membership of the Committee shall be filled by the Board of Directors at any annual or special meeting of the Board of Directors. The Executive Committee shall keep regular minutes of its proceedings and report the same to the Board. |
| Form 990, Part VI, Section B, Line 11B | Upon receiving a final draft, the return was presented at a scheduled Board meeting. The return was presented to the full Board by the management of the organization, and a period of time for questions and comments was allowed. |
| Form 990, Part VI, Section B, Line 12C | All financial transactions both revenue and expenses are conducted with the knowledge and/or approval of either the President/CEO or the CFO. These transactions are reviewed for any potential conflicts of interest. Any interests are brought to the attention of the Executive Committee. |
| Form 990, Part VI, Section B, Line 15 | The Boards Executive Committee determines compensation and benefits for the President/CEO after reviewing the most current Guidestar nonprofit compensation report, other comparable data, scope of responsibility, size of organization, responsibility and budget to determine the reasonableness of the salary. |
| Form 990, Part VI, Section C, Line 18 | Recent filings of the Form 990 are available online at curethekids.org, Guidestar, and charity navigator. |
| Form 990, Part VI, Section C, Line 19 | The Foundation makes its governing documents, conflict of interests policy, and financial statements available via written request. Additionally, these documents are made available to all state governments that require annual filling of charitable organizations. |
| Form 990, Part XII, Line 2C | The process has not changed from the prior year. |
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