2025-08-19T11:27:35-00:00 2024-09-30 331037531 Outfitters4 Inc 717 Coliseum Dr NW Winston Salem NC 27106 990 2023-10-01 581966822 Pediatric Brain Tumor Foundation of the United States Inc PEDI 8002536530 380 Knollwood St STE H 125 Winston Salem NC 27103 Larry Little Secretary 8002536530 2025-08-11 true true Brittany Emery P02119496 8889299499 2025-08-11 2023 2025-03-06 01:10:19Z Geoff Still 380 Knollwood St STE H 125 Winston Salem NC 27103 5039446 false X www.curethekids.org X 1992 DE Eliminate childhood brain tumors and support families living with this devastating disease. 13 12 24 475 0 4929228 4881230 0 129201 158216 0 5058429 5039446 2397216 1880872 0 2485381 3010566 0 683450 1685929 1758670 6568526 6650108 -1510097 -1610662 5390187 3337274 1633344 1191093 3756843 2146181 X Vision A world without childhood brain tumors. Mission Care. Cure. 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The Foundation has determined that it does not have any material unrecognized tax benefits or obligations as of September 30, 2024. XI 4b Donor incentive expenses included in revenue for audit reporting purposes. XII 4b Donor incentive expenses included in revenue for audit reporting purposes. Europe Including Iceland and Greenland Collaboration Scholarship 65000 1 true Dana-Farber Cancer Institute 450 Brookline Avenue Boston MA 022155450 042263040 501C3 747855 Research Grant Regents of the University of Michigan 3003 S State Street Ann Arbor MI 48109 386006309 501C3 125000 Research Grant The Washington University 7425 Forsyth Boulevard St Louis MO 63105 430653611 501C3 124480 Research Grant TippingPoint Biosciences Inc 145 Higgins Avenue Los Altos CA 94022 100000 Research Grant SonALAsense Inc 1111 Broadway Suite 2040 Oakland CA 94607 833259527 100000 Research Grant St Jude Children's Research Hospital 262 Danny Thomas Place Memphis TN 38105 620646012 501C3 51856 Research Grant Children's Hospital of Philadelphia 2716 South Street Philadelphia PA 19146 232237932 501C3 44753 Research Grant Society for Neuro-Oncology PO Box 273296 Houston TX 772773296 760499664 501C3 40000 Research Grant 8 Direct Aid to Families 256 471245 Part I Line 2 All annual research grants are reviewed by our research advisory network and evaluated on several criteria, including scientific merit of the grant application scientific background of the researchers the peer reviewed research publications of the principle investigators applying the supporting collaborative research environment in the research institution and the viability of research environment in the research institution and the viability of research proposed, and facilities available. Each grant recipient is required to submit periodic updates, and a final report before the final grant payment is made. Each research application has to have a hypothesis driven research proposal. Each application must have a list of specific aims that are to be achieved over the timeline of the research project. A timeline is requested for the achievement of the specific aims. The progress reports require that the achievement of the specific aims be detailed with a scientific description of the manner in which they were achieved. If an event has occurred that alters the achievement of the specific aims within the timeline of the research plan the researchers must give a reason that it has not been achieved and a no cost extensions may be requested, and a new timeline is established before the final progress report is issued. Each grant allows for the opportunity of a site visit by the PBTF and these site visits are made by the director of research as well as the senior scientific research advisor, the PBTF president as well as the executive director. Researchers present their research results in person and the PBTF asks questions about the results. All grant applications and research projects have the same requirements on grant approval and reporting regardless of the location of the researcher and his/her institution. These reports are reviewed by our Director of Research Funding and our contracted Senior Scientific Research Advisor. Final approval on all grants is conditioned on Board of Director approval. X X X false false false false false false false false false Geoff Still CFO/COO 175725 579 7934 13827 198065 Courtney Davies CEO/President through 9/25/24 306000 13770 19375 339145 Ian M Joyce Chief Marketing Mission Experience Officer 175000 600 7902 13827 197329 Amy Weinstein AJ Janower- Board member 68750 See below Part IV Line 1 Business transactions involving interested persons A Name of person Amy Weinstein D Description of transaction National Director, Research Investments Independent Contractor. X 3 18421 FMV X Cryptocurrency 1 5197 FMV X Gift cards for Auction 2 17915 FMV Form 990, Part III, Line 4a The Pediatric Brain Tumor Foundation released the Voice of the Patient report, highlighting the impact of pediatric lowgrade glioma pLGG and the experiences of patients, families, and caregivers. Based on input from an Externally led Patient-Focused Drug Development EL-PFDD meeting and additional feedback, the report underscores the urgent need for innovative pLGG treatments with fewer side effects that preserve cognitive and functional abilities. Submitted to the FDA, this report represents a significant step in advocating for improved treatment options for the pLGG community. The FDAs approval of OJEMDA tovorafenib, for pediatric low-grade glioma pLGG, the most common brain tumor in children, was a significant breakthrough in treatment options. In 2007, a group of Boston-area families, shocked by the toxicity and lack of effectiveness of treatment options for their children, created the PLGA Foundation/A Kids Brain Tumor Cure AKBTC, to fund research dedicated to understanding and treating pLGG. The PLGA Foundation/AKBTC, which later became the PLGA Fund at PBTF, supported research and clinical trials that led to this breakthrough. PBTF played a key role in advancing OJEMDA by funding research and amplifying the patient voice, continuing its commitment to improving treatments for children with brain tumors. We also want to thank to Catching Up With Jack and the Hope for Kidsfund for their generous support of the novel therapeutic target grant, and Jacks Drive 55 Foundations contributions to both grants through PBTFs PLGA Fund. The Pediatric Brain Tumor Foundations partnership with Uber, launched in November 2024, provided affordable, reliable transportation to help families affected by pediatric brain tumors access critical medical care. This pilots success only reinforces the necessity of sustaining and expanding such initiatives to meet growing demand. 181 unique families were supported and 51 hospital partners engaged. This past holiday season, Jazwares played a crucial role in bringing joy to children in hospitals receiving treatment for brain tumors. Starting on Giving Tuesday, donations transformed into PBTF gifting a comforting Squishmallows to a child undergoing treatment for a brain tumor, generously donated by Jazwares. This initiative raised critical awareness, further engaging donors by transforming each contribution into a meaningful gesture of hope and generosity. Together, we connected with more patient families, care teams, and communities across the country, creating a collective effort to offer comfort, hope, and joy while advancing groundbreaking research, making the holiday season truly special for the children and families who needed it most. The Pediatric Brain Tumor Foundation PBTF is strengthening its efforts with new leadership andexpanded services. Scott Kennedy joins as Vice President of Medical Stewardship and Research, bringing 20 years of experience to drive innovation and family-focused funding. PBTF has also added a nurse navigator and bilingual social worker, with plans to grow nationwide support for families. These advancements reinforce PBTFs commitment to research and comprehensive family care. As we continue to build momentum in research, care, and board development, were excited to launch the Next Gen Leadership Initiative, a network of rising professionals dedicated to advancing PBTFs mission through fundraising, networking, and advocacy. Focused on sustainability and growth, this diverse group spans industries like finance, technology, and healthcare, with many having a personal connection to the cause. Starting in the NYC Metro area, the initiative aims to expand nationwide, empowering emerging leaders to create a lasting impact. The Hearst Foundation has awarded the Pediatric Brain Tumor Foundation a 100K grant to fund the first year of a 3-year Early Career Development ECD research award. This program supports young scientists in pediatric brain tumor research by providing resources, mentorship, and funding. By fostering fresh perspectives and innovative ideas, the program aims to advance treatments and ensure a strong pipeline of experts dedicated to improving outcomes for children and their families. With this vital funding, we are proud to support the next generation of researchers working tirelessly to discover a cure for pediatric brain tumors. Form 990, Part VI, Section A, Line 1A The Board of Directors may, by resolution, designate two 2 or more Directors to constitute an Executive Committee, which the Committee, to the extent provided in such resolution, shall have and may exercise all of the authority of the Board of Directors in the management of the corporation except as otherwise required by law. All members of the Executive Committee shall be Directors of the corporation. Vacancies in the membership of the Committee shall be filled by the Board of Directors at any annual or special meeting of the Board of Directors. The Executive Committee shall keep regular minutes of its proceedings and report the same to the Board. Form 990, Part VI, Section B, Line 11B Upon receiving a final draft, the return was presented at a scheduled Board meeting. The return was presented to the full Board by the management of the organization, and a period of time for questions and comments was allowed. Form 990, Part VI, Section B, Line 12C All financial transactions both revenue and expenses are conducted with the knowledge and/or approval of either the President/CEO or the CFO. These transactions are reviewed for any potential conflicts of interest. Any interests are brought to the attention of the Executive Committee. Form 990, Part VI, Section B, Line 15 The Boards Executive Committee determines compensation and benefits for the President/CEO after reviewing the most current Guidestar nonprofit compensation report, other comparable data, scope of responsibility, size of organization, responsibility and budget to determine the reasonableness of the salary. Form 990, Part VI, Section C, Line 18 Recent filings of the Form 990 are available online at curethekids.org, Guidestar, and charity navigator. Form 990, Part VI, Section C, Line 19 The Foundation makes its governing documents, conflict of interests policy, and financial statements available via written request. Additionally, these documents are made available to all state governments that require annual filling of charitable organizations. Form 990, Part XII, Line 2C The process has not changed from the prior year.