MACULAR DEGENERATION ASSOCIATION: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
MACULAR DEGENERATION ASSOCIATION (EIN 27-3025707)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-05-19
IRS object ID
202541399349301049
Schema version
2024v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-05-19T16:58:06-04:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Linda Patterson CPA PABusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line15732 Whistlewood CircleAddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN273025707EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Macular Degeneration AssociationBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% Linda PattersonInCareOfNm
Business Name ControlMACUBusinessNameControlTxt
Phone9418704399PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd STE 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonLINDA PATTERSONPersonNm
Person TitleTreasurerPersonTitleTxt
Phone9418704399PhoneNum
Signature2025-03-03SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLINDA PATTERSONPreparerPersonNm
PTINP00543037PTIN
Phone9417354042PhoneNum
Preparation2025-05-19PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLawrence HoffheimerPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd STE 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,567,782GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.macularhope.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2010FormationYr
Legal Domicile StateFLLegalDomicileStateCd
Activity Or MissionThe mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease.ActivityOrMissionDesc
Voting Members Governing Body4VotingMembersGoverningBodyCnt
Voting Members Independent1VotingMembersIndependentCnt
Total Employee7TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,224,423PYContributionsGrantsAmt
CY Contributions Grants$4,214,800CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$473,880PYInvestmentIncomeAmt
CY Investment Income$352,982CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$3,698,303PYTotalRevenueAmt
CY Total Revenue$4,567,782CYTotalRevenueAmt
CY Grants And Similar Paid$50,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$668,303PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$751,461CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$30,000PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$36,000CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$677,457CYTotalFundraisingExpenseAmt
PY Other Expenses$1,736,439PYOtherExpensesAmt
CY Other Expenses$1,856,606CYOtherExpensesAmt
PY Total Expenses$2,434,742PYTotalExpensesAmt
CY Total Expenses$2,694,067CYTotalExpensesAmt
PY Revenues Less Expenses$1,263,561PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,873,715CYRevenuesLessExpensesAmt
Total Assets BOY$5,908,615TotalAssetsBOYAmt
Total Assets EOY$7,756,435TotalAssetsEOYAmt
Total Liabilities BOY$174,203TotalLiabilitiesBOYAmt
Total Liabilities EOY$183,488TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$5,734,412NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$7,572,947NetAssetsOrFundBalancesEOYAmt
MissionThe mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$771,687ExpenseAmt
DescThe Macular Degeneration Association (MDA) created informative and necessary educational programs for those affected by macular degeneration, diabetic macular edema, geographic atrophy, and dry eye disease. These programs not only provide information for the person affected by these eye diseases but also bring precautionary measures to their family members and helpful information for their caregivers. All programs feature experts in the field of retina or optometry providing information about risk factors, genetic predisposition, proper diagnosis, new treatment options, research information, clinical trials, and new drug advances. Participants are given a chance to interact with the doctor and ask questions. They are also able to share their challenges and successes with the other attendees.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$567,604ExpenseAmt
DescThe Macular Degeneration Association produces newsletters quarterly. The information provided is for those who have age-related macular degeneration, diabetic eye disease, glaucoma, geographic atrophy, dry eye disease, and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials, and treatments. The newsletters go out to 49,200 doctors, patients, families, and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. We have a very robust social media following including 17,225 followers on Facebook, 6,700 on Twitter, 5,000 on Linked In, and 375 on Pinterest.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$253,478ExpenseAmt
DescMacular Degeneration Association has created a state-of-the-art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA-compliant and is accessible to people with vision disabilities. There is also a feature for those who speak Spanish to convert English to Spanish. We continue to include up-to-date information on all eye diseases, new treatment options, research information, clinical trials and new drug advances. Our user-friendly website provides the user with friendly navigation, accessibility tools and information for patients, professionals, caregivers and families. This website has an average of 600,000 hits annually.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$50,000ExpenseAmt
DescThe Macular Degeneration Association funded research to support research. Age-related macular degeneration is a leading cause of blindness in the United States. Geographic atrophy is the advanced form of dry AMD and affects over 5 million Americans and its incidence increases with increasing age. Despite the chronic nature of geographic atrophy, some patients express visual improvement when treated with pegcetacoplan and avacincaptad pegol. This research project aims to investigate the underlying mechanisms and factors contributing to the reported visual improvements in these patients and to help predict which patients may experience visual improvement.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$50,000TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses$1,642,769TotalProgramServiceExpensesAmt
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Foreign OfficefalseForeignOfficeInd
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Professional FundraisingYes (true)ProfessionalFundraisingInd
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Grants To OrganizationsfalseGrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
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Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLinda PattersonPersonNm
Phone9418704399PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd STE 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (5 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
Lawrence Hoffheimer
Chairman of the Board20.0020.00Yes (X)Yes (X)$242,390$155,390$6,316
Linda Patterson
Treasurer20.0020.00Yes (X)Yes (X)$115,000$65,000$7,638
Donna Auger
Director40.000.00Yes (X)$144,000$0$2,096
Dustin Tenney
Employee25.0015.00$74,913$36,898$22,459Yes (X)
Amy Carroll
Secretary2.002.00Yes (X)Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$576,303TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$257,288TotReportableCompRltdOrgAmt
Total Other Compensation$38,509TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DirectMailcomBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line15540 Ketch RoadAddressLine1Txt
CityPrince FrederickCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20678ZIPCd
FieldValueIRS element (for citing)
ServicesDirect Mail ServicServicesDesc
Compensation$443,016CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
All Other Contributions$4,214,800AllOtherContributionsAmt
Total Contributions$4,214,800TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$347,794TotalRevenueColumnAmt
Related Or Exempt Func Income$347,794RelatedOrExemptFuncIncomeAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Other$5,188OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Other$5,188OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,188TotalRevenueColumnAmt
Related Or Exempt Func Income$5,188RelatedOrExemptFuncIncomeAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,567,782TotalRevenueColumnAmt
Related Or Exempt Func Income$352,982RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$50,000TotalAmt
Program Services$50,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$501,390TotalAmt
Program Services$383,293ProgramServicesAmt
Management And General$118,097ManagementAndGeneralAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$191,558TotalAmt
Program Services$164,186ProgramServicesAmt
Management And General$17,998ManagementAndGeneralAmt
Fundraising$9,374FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$3,782TotalAmt
Program Services$3,782ProgramServicesAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$54,731TotalAmt
Program Services$40,950ProgramServicesAmt
Management And General$13,064ManagementAndGeneralAmt
Fundraising$717FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$8,450TotalAmt
Program Services$4,225ProgramServicesAmt
Management And General$4,225ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$36,000TotalAmt
Fundraising$36,000FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$43,215TotalAmt
Management And General$43,215ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$568,867TotalAmt
Program Services$286,020ProgramServicesAmt
Management And General$51,427ManagementAndGeneralAmt
Fundraising$231,420FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$56,212TotalAmt
Program Services$56,212ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$59,033TotalAmt
Program Services$47,227ProgramServicesAmt
Management And General$10,626ManagementAndGeneralAmt
Fundraising$1,180FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$104,080TotalAmt
Program Services$83,264ProgramServicesAmt
Management And General$18,734ManagementAndGeneralAmt
Fundraising$2,082FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$39,935TotalAmt
Program Services$39,935ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$1,319TotalAmt
Management And General$1,319ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$980TotalAmt
Program Services$784ProgramServicesAmt
Management And General$176ManagementAndGeneralAmt
Fundraising$20FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Paper & Postage$727,435$328,482$72,537$326,416
List Rental$154,383$69,472$15,439$69,472
Educational Events$53,896$53,896
Telephone & Internet$6,989$5,591$1,258$140

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$31,812TotalAmt
Program Services$25,450ProgramServicesAmt
Management And General$5,726ManagementAndGeneralAmt
Fundraising$636FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,694,067TotalAmt
Program Services$1,642,769ProgramServicesAmt
Management And General$373,841ManagementAndGeneralAmt
Fundraising$677,457FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$1,432,942TotalAmt
Program Services$573,177ProgramServicesAmt
Management And General$143,294ManagementAndGeneralAmt
Fundraising$716,471FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$742,567BOYAmt
EOY$1,975,066EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$15,324BOYAmt
EOY$555EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$3,472LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$1,493LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$3,298BOYAmt
EOY$1,979EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$5,147,426BOYAmt
EOY$5,778,835EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$5,908,615BOYAmt
EOY$7,756,435EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$174,203BOYAmt
EOY$183,488EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$174,203BOYAmt
EOY$183,488EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,734,412BOYAmt
EOY$7,572,947EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,734,412BOYAmt
EOY$7,572,947EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,908,615BOYAmt
EOY$7,756,435EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,873,715ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$35,180NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteefalseAuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,026,061CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,385,688CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,810,423CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,224,424CurrentTaxYearMinus1YearAmt
Current Tax Year$4,214,800CurrentTaxYearAmt
Total$14,661,396TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,026,061CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,385,688CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,810,423CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,224,424CurrentTaxYearMinus1YearAmt
Current Tax Year$4,214,800CurrentTaxYearAmt
Total$14,661,396TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$493,479SubstantialContributorsTotAmt
Public Support Total170$14,167,917PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$27,184CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$61,553CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$90,224CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$137,878CurrentTaxYearMinus1YearAmt
Current Tax Year$347,794CurrentTaxYearAmt
Total$664,633TotalAmt
FieldValueIRS element (for citing)
Total Support$15,326,029TotalSupportAmt
Public Support CY1700.92440PublicSupportCY170Pct
Public Support PY1700.92240PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$3,472OtherCostOrOtherBasisAmt
Depreciation$1,493DepreciationAmt
Book Value$1,979BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,979TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,532,602TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$35,180NetUnrealizedGainsInvstAmt
Revenue Not Reported-$35,180RevenueNotReportedAmt
Revenue Subtotal$4,567,782RevenueSubtotalAmt
Total Revenue Per Form990$4,567,782TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,694,067TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,694,067ExpensesSubtotalAmt
Total Expenses Per Form990$2,694,067TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X, Line 2-Text in footnote regarding FIN 48 (ASC 740)FormAndLineReferenceDesc
ExplanationManagement has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the Organization had no uncertain income tax positions that could have a significant effect on the consolidated financial statements for the year ended December 31, 2024. The Organizations federal income tax returns for fiscal years ended December 31, 2023, 2022 and 2021 are subject to examination by the Internal Revenue Service generally for three years after the federal income tax returns were filed.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1DirectmailcomBusinessNameLine1Txt
FieldValueIRS element (for citing)
ActivityDirect Mail ManagementActivityTxt
Fundraiser Control Of FundsfalseFundraiserControlOfFundsInd
Gross Receipts$3,400,646GrossReceiptsAmt
Retained By Contractor$36,000RetainedByContractorAmt
Net To Organization$3,364,646NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$3,400,646TotalGrossReceiptsAmt
Total Retained By Contractors$36,000TotalRetainedByContractorsAmt
Total Net To Organization$3,364,646TotalNetToOrganizationAmt
All StatesAll StatesAllStatesCd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFundraiser agreements (Part I, line 2b(v))FormAndLineReferenceDesc
ExplanationAdditional Payments to Directmail.comExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeResearchGrantTypeTxt
Recipient1RecipientCnt
Cash Grant$50,000CashGrantAmt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmt
Lawrence Hoffheimer
Chairman of the Board$162,390$128,390$80,000$27,000$6,316$242,390$161,706
Linda Patterson
Treasurer$115,000$65,000$7,638$115,000$72,638

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

FieldValueIRS element (for citing)
PersonJoanna HoffheimerPersonNm
FieldValueIRS element (for citing)
Relationship DescriptionFamily member of CEORelationshipDescriptionTxt
Transaction$28,150TransactionAmt
TransactionEmployee processes state registrationsTransactionDesc
Sharing Of RevenuesfalseSharingOfRevenuesInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Officer directors etc family relationship Part VI line 2Lawrence Hoffheimer and Amy Carroll are related family members.
Committee meeting documentation Part VI line 8bNo committee meetings were held.
Form 990 governing body review Part VI line 11All members of the board reviewed the tax return prior to submission to the Internal Revenue Service.
Conflict of interest policy compliance Part VI line 12cOfficers must sign annual disclosure staement disclosing conflicts of interest.
CEO executive director top management comp Part VI line 15aExecutive Compensation was compared to other entities reported on their Form 990s and approved by the Board.
Other officer or key employee compensation Part VI line 15bCompensation is reviewed annually and approved by the Board.
Governing documents etc available to public Part VI line 19Available upon request.
List of other fees for services expenses Part IX line 11g11G Total Program Admin Fund RaisingCopywriting 14,300 6,435 1,430 6,435Data Management 28,645 12,890 2,864 12,890Direct Mail Processors 28,306 12,738 2,831 12,738Direct Mail Services 443,016 199,357 44,302 199,357Medical Director 50,000 50,000Honorariums 4,600 4,600
General explanation attachmentPart IV, Schedule C, Line 17 All states recieve copies of Form 990.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1Parkinson Research Foundation IncBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd Suite 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd
FieldValueIRS element (for citing)
EIN200205035EIN
Primary ActivitiesParkinson Disease - Research EducationPrimaryActivitiesTxt
Legal Domicile StateFLLegalDomicileStateCd
Exempt Code Section501c3ExemptCodeSectionTxt
Public Charity Status10PublicCharityStatusTxt
Direct Controlling NAN/ADirectControllingNACd
Controlled OrganizationfalseControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts RyltsfalseReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgfalseGiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgfalseGiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other OrgfalseLoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth OrgfalseLoansOrGuaranteesFromOthOrgInd
Div Related OrganizationfalseDivRelatedOrganizationInd
Asset Sale To Other OrgfalseAssetSaleToOtherOrgInd
Asset Purchase From Other OrgfalseAssetPurchaseFromOtherOrgInd
Asset ExchangefalseAssetExchangeInd
Rental Of Facilities To Oth OrgfalseRentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth OrgYes (true)RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth OrgfalsePerformOfServicesForOthOrgInd
Perform Of Services By Other OrgfalsePerformOfServicesByOtherOrgInd
Sharing Of FacilitiesYes (true)SharingOfFacilitiesInd
Paid Employees SharingYes (true)PaidEmployeesSharingInd
Reimbursement Paid To Other OrgfalseReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other OrgfalseReimbursementPaidByOtherOrgInd
Transfer To Other OrgfalseTransferToOtherOrgInd
Transfer From Other OrgfalseTransferFromOtherOrgInd

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