2025-05-19T16:58:06-04:00 2024-12-31 Linda Patterson CPA PA 5732 Whistlewood Circle Sarasota FL 34232 990 2024-01-01 273025707 Macular Degeneration Association % Linda Patterson MACU 9418704399 5969 Cattleridge Blvd STE 100 Sarasota FL 34232 LINDA PATTERSON Treasurer 9418704399 2025-03-03 true true LINDA PATTERSON P00543037 9417354042 2025-05-19 2024 2025-03-06 01:10:19Z Lawrence Hoffheimer 5969 Cattleridge Blvd STE 100 Sarasota FL 34232 4567782 false X www.macularhope.org X 2010 FL The mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease. 4 1 7 0 0 3224423 4214800 0 473880 352982 0 3698303 4567782 50000 0 668303 751461 30000 36000 677457 1736439 1856606 2434742 2694067 1263561 1873715 5908615 7756435 174203 183488 5734412 7572947 The mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease. false false 771687 The Macular Degeneration Association (MDA) created informative and necessary educational programs for those affected by macular degeneration, diabetic macular edema, geographic atrophy, and dry eye disease. These programs not only provide information for the person affected by these eye diseases but also bring precautionary measures to their family members and helpful information for their caregivers. All programs feature experts in the field of retina or optometry providing information about risk factors, genetic predisposition, proper diagnosis, new treatment options, research information, clinical trials, and new drug advances. Participants are given a chance to interact with the doctor and ask questions. They are also able to share their challenges and successes with the other attendees. 567604 The Macular Degeneration Association produces newsletters quarterly. The information provided is for those who have age-related macular degeneration, diabetic eye disease, glaucoma, geographic atrophy, dry eye disease, and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials, and treatments. The newsletters go out to 49,200 doctors, patients, families, and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. We have a very robust social media following including 17,225 followers on Facebook, 6,700 on Twitter, 5,000 on Linked In, and 375 on Pinterest. 253478 Macular Degeneration Association has created a state-of-the-art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA-compliant and is accessible to people with vision disabilities. There is also a feature for those who speak Spanish to convert English to Spanish. We continue to include up-to-date information on all eye diseases, new treatment options, research information, clinical trials and new drug advances. Our user-friendly website provides the user with friendly navigation, accessibility tools and information for patients, professionals, caregivers and families. This website has an average of 600,000 hits annually. 50000 The Macular Degeneration Association funded research to support research. Age-related macular degeneration is a leading cause of blindness in the United States. Geographic atrophy is the advanced form of dry AMD and affects over 5 million Americans and its incidence increases with increasing age. Despite the chronic nature of geographic atrophy, some patients express visual improvement when treated with pegcetacoplan and avacincaptad pegol. This research project aims to investigate the underlying mechanisms and factors contributing to the reported visual improvements in these patients and to help predict which patients may experience visual improvement. 50000 1642769 true true false false false false false false false false true false false false false true true false false false false false false true false false false false true true false false false false false false true false false false false false false true false false false false true 8 0 true 7 true false false false false false false false false false false false false X 4 1 true false false false false false false true false false false true true true true true true false false false AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WI WV WY X X X Linda Patterson 9418704399 5969 Cattleridge Blvd STE 100 Sarasota FL 34232 Lawrence Hoffheimer Chairman of the Board 20.00 20.00 X X 242390 155390 6316 Linda Patterson Treasurer 20.00 20.00 X X 115000 65000 7638 Donna Auger Director 40.00 0.00 X 144000 0 2096 Dustin Tenney Employee 25.00 15.00 X 74913 36898 22459 Amy Carroll Secretary 2.00 2.00 X X 0 0 0 576303 257288 38509 3 false true false DirectMailcom 5540 Ketch Road Prince Frederick MD 20678 Direct Mail Servic 443016 1 4214800 4214800 347794 347794 5188 5188 5188 5188 0 4567782 352982 0 0 X 50000 50000 501390 383293 118097 191558 164186 17998 9374 3782 3782 54731 40950 13064 717 8450 4225 4225 36000 36000 43215 43215 568867 286020 51427 231420 56212 56212 59033 47227 10626 1180 104080 83264 18734 2082 39935 39935 1319 1319 980 784 176 20 Paper & Postage 727435 328482 72537 326416 List Rental 154383 69472 15439 69472 Educational Events 53896 53896 Telephone & Internet 6989 5591 1258 140 31812 25450 5726 636 2694067 1642769 373841 677457 X 1432942 573177 143294 716471 742567 1975066 15324 555 3472 1493 3298 1979 5147426 5778835 5908615 7756435 174203 183488 174203 183488 X 5734412 7572947 5734412 7572947 5908615 7756435 1873715 -35180 0 X false true X false false X 2026061 2385688 2810423 3224424 4214800 14661396 2026061 2385688 2810423 3224424 4214800 14661396 493479 14167917 27184 61553 90224 137878 347794 664633 15326029 0.92440 0.92240 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3472 1493 1979 1979 X 4532602 -35180 -35180 4567782 4567782 2694067 2694067 2694067 Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) Management has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the Organization had no uncertain income tax positions that could have a significant effect on the consolidated financial statements for the year ended December 31, 2024. The Organizations federal income tax returns for fiscal years ended December 31, 2023, 2022 and 2021 are subject to examination by the Internal Revenue Service generally for three years after the federal income tax returns were filed. X X X X true Directmailcom Direct Mail Management false 3400646 36000 3364646 3400646 36000 3364646 All States Fundraiser agreements (Part I, line 2b(v)) Additional Payments to Directmail.com true Research 1 50000 X false false false false false false false false false Lawrence Hoffheimer Chairman of the Board 162390 128390 80000 27000 6316 242390 161706 Linda Patterson Treasurer 115000 65000 7638 115000 72638 Joanna Hoffheimer Family member of CEO 28150 Employee processes state registrations false Officer directors etc family relationship Part VI line 2 Lawrence Hoffheimer and Amy Carroll are related family members. Committee meeting documentation Part VI line 8b No committee meetings were held. Form 990 governing body review Part VI line 11 All members of the board reviewed the tax return prior to submission to the Internal Revenue Service. Conflict of interest policy compliance Part VI line 12c Officers must sign annual disclosure staement disclosing conflicts of interest. CEO executive director top management comp Part VI line 15a Executive Compensation was compared to other entities reported on their Form 990s and approved by the Board. Other officer or key employee compensation Part VI line 15b Compensation is reviewed annually and approved by the Board. Governing documents etc available to public Part VI line 19 Available upon request. List of other fees for services expenses Part IX line 11g 11G Total Program Admin Fund RaisingCopywriting 14,300 6,435 1,430 6,435Data Management 28,645 12,890 2,864 12,890Direct Mail Processors 28,306 12,738 2,831 12,738Direct Mail Services 443,016 199,357 44,302 199,357Medical Director 50,000 50,000Honorariums 4,600 4,600 General explanation attachment Part IV, Schedule C, Line 17 All states recieve copies of Form 990. Parkinson Research Foundation Inc 5969 Cattleridge Blvd Suite 100 Sarasota FL 34232 200205035 Parkinson Disease - Research Education FL 501c3 10 N/A false false false false false false false false false false false true false false true true false false false false