FANCONI CANCER FOUNDATION: Form 990, tax year 2020
View the entire original 990 at ProPublica ↗
- Organization
- FANCONI CANCER FOUNDATION (EIN 93-0995453)
- Tax period
- 2020-01-01 to 2020-12-31
- Filed
- 2022-05-26
- IRS object ID
- 202201469349300940
- Schema version
- 2020v4.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-05-26T19:00:47Z | ReturnTs |
| Tax Period End | 2020-12-31 | TaxPeriodEndDt |
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2020-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 930995453 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FANCONI ANEMIA RESEARCH FUND INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | FANC | BusinessNameControlTxt |
| Phone | 5416874658 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 360 east 10th Ave | AddressLine1Txt |
| City | EUGENE | CityNm |
| State Abbreviation | OR | StateAbbreviationCd |
| ZIP | 97401 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Mark Quinlan | PersonNm |
| Person Title | Executive Director | PersonTitleTxt |
| Phone | 5416874658 | PhoneNum |
| Signature | 2022-05-26 | SignatureDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2020 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Initial Return | Yes (X) | InitialReturnInd |
| Principal Officer | Mark Quinlan | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 360 East 10th Ave | AddressLine1Txt |
| Address Line2 | Suite 201 | AddressLine2Txt |
| City | Eugene | CityNm |
| State Abbreviation | RI | StateAbbreviationCd |
| ZIP | 97401 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,056,234 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | Fanconi.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1989 | FormationYr |
| Legal Domicile State | OR | LegalDomicileStateCd |
| Activity Or Mission | TO FIND EFFECTIVE TREATMENTS AND A CURE FOR.FANCONI ANEMIA AND TO PROVIDE.EDUCATION AND.SUPPORT SERVICES TO.FAMILIES. WORLD WIDE | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 11 | TotalEmployeeCnt |
| Total Volunteers | 100 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $3,213,829 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,860,743 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $859,852 | PYInvestmentIncomeAmt |
| CY Investment Income | $638,552 | CYInvestmentIncomeAmt |
| PY Other Revenue | $48,572 | PYOtherRevenueAmt |
| CY Other Revenue | $556,939 | CYOtherRevenueAmt |
| PY Total Revenue | $4,122,253 | PYTotalRevenueAmt |
| CY Total Revenue | $4,056,234 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,708,648 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $479,857 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $895,098 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $948,740 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $235,384 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,120,089 | PYOtherExpensesAmt |
| CY Other Expenses | $558,112 | CYOtherExpensesAmt |
| PY Total Expenses | $3,723,835 | PYTotalExpensesAmt |
| CY Total Expenses | $1,986,709 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $398,418 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,069,525 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $7,856,802 | TotalAssetsBOYAmt |
| Total Assets EOY | $8,601,390 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $2,006,127 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $655,795 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $5,850,675 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,945,595 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO.FAMILIES. WORLD WIDE | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $706,409 | ExpenseAmt |
| Grant | $421,834 | GrantAmt |
| Desc | RESEARCH. SINCE FARF WAS FOUNDED IN 1989, WE HAVE SUPPORTED MORE THAN $24 MILLION IN.RESEARCH, SUPPORTING ... MORE THAN 230 RESEARCH.GRANTS AT MORE THAN 74. CENTERS WORLDWIDE .. EVERY YEAR WE. HOST A.SCIENTIFIC SVMPOSIUM GATHERING OVER 200 FANCONI ANEMIA (FA) SCIENTISTS,.RESEARCHERS,.AND DOCTORS FROM AROUND THE WORLD TO PRESENT RESULTS. FROM THEIR RESEARCH AND TO. COLLABORATE WITH OTHERS IN THE.FIELD. IN ADDITION, WE. HOLD SMALL WORKSHOPS ON AREAS OF SPECIFIC INTEREST, SUCH AS HEAD AND NECK SQUAMOUS CELL CARCINOMA,.IDENTIFICATION.OFNEW DRUSG TO TREAT PATIENTS, AND.GENE THERAPY. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $254,854 | ExpenseAmt |
| Desc | FAMILY SUPPORT AND EDUCATION SERVICES. CURRENTLY, THERE ARE NEARLY 1,000 FAMILIES. WORLDWIDE THAT ARE REGISTERED WITH. OUR ORGANIZATION. AND AN UNDETERMINED NUMBER OF NEWLY DIAGNOSED PATIENTS. WHEN. FACED WITH THIS DEVASTATING DIAGNOSIS, THEY LOOK TO FARF FOR SUPPORT .. WE.PRODUCE_INFORMATIONAL PUBLICATIONS, INCLUDING.OUR HANDBOOK."GUIDELINES FOR DIAGNOSIS AND.MANAGEMENT",.A FAMILY DIRECTORY, AND A RESOURCE GUIDE USING.ALL TREATMENT CENTERS AND DOCTORS WHO WORK FOR.FA .. WE ALSO ORGANIZE.A WEEKLONG.CAMP FOR.FAMILIES AFFECTED BY FA, WHERE WE BRING SCIENTISTS AND CLINICIANS TO PRESENT THE LATEST RESEARCH AND TREATMENT WE INCLUDE.SUPPORT GROUPS.FOR PARENTS AND PATIENTS,.RECREATIONAL ACTIVITIES FOR CHILDREN, | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prog Srvc Accom Acty3 | ProgSrvcAccomActy3Grp | |
| Total Program Service Expenses | $961,263 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (true) | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | false | TransactionWithControlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 11 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | false | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | false | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Jitasa | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2082874777 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1750 W Front Street | AddressLine1Txt |
| City | Boise | CityNm |
| State Abbreviation | ID | StateAbbreviationCd |
| ZIP | 83702 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| Andre Hessels | ||||||||
| President | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Orion Marx | ||||||||
| Vice Presdident | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Lisa Mingo | ||||||||
| Treasurer | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Jhn Connelly | ||||||||
| Secretary | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Lynn Frohnmayer | ||||||||
| Founder | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Win Gouldin | ||||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Jasmine Bennetsen | ||||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Tracy Strimling | ||||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Stella Davies | ||||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Aileen Carlos | ||||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Rachel Altmann | ||||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Mark Quinlan | ||||||||
| Executive Director | 40.00 | $124,200 | $0 | $0 | Yes (X) | Yes (X) | ||
| Isis Sroka | ||||||||
| Scientific Director | 40.00 | $111,395 | $0 | $0 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $235,595 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $2,860,743 | AllOtherContributionsAmt |
| Total Contributions | $2,860,743 | TotalContributionsAmt |
| Total Oth Program Service Rev | TotalOthProgramServiceRevGrp |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $638,552 | TotalRevenueColumnAmt |
| Exclusion | $638,552 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incm From Invest Bond Proceeds | IncmFromInvestBondProceedsGrp | |
| Royalties Revenue | RoyaltiesRevenueGrp | |
| Gross Rents | GrossRentsGrp | |
| Less Rental Expenses | LessRentalExpensesGrp | |
| Rental Income Or Loss | RentalIncomeOrLossGrp | |
| Net Rental Income Or Loss | NetRentalIncomeOrLossGrp | |
| Gross Amount Sales Assets | GrossAmountSalesAssetsGrp | |
| Less Cost Oth Basis Sales Expnss | LessCostOthBasisSalesExpnssGrp | |
| Gain Or Loss | GainOrLossGrp | |
| Net Gain Or Loss Investments | NetGainOrLossInvestmentsGrp |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Other Income | Desc |
| Business | 900009 | BusinessCd |
| Total Revenue Column | $556,939 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $556,939 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $556,939 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,056,234 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $1,195,491 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $453,345 | TotalAmt |
| Program Services | $453,345 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,512 | TotalAmt |
| Program Services | $26,512 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $235,595 | TotalAmt |
| Program Services | $111,395 | ProgramServicesAmt |
| Management And General | $124,200 | ManagementAndGeneralAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $514,807 | TotalAmt |
| Program Services | $237,714 | ProgramServicesAmt |
| Management And General | $137,443 | ManagementAndGeneralAmt |
| Fundraising | $139,650 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $198,338 | TotalAmt |
| Program Services | $75,252 | ProgramServicesAmt |
| Management And General | $93,069 | ManagementAndGeneralAmt |
| Fundraising | $30,017 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $147,526 | TotalAmt |
| Program Services | $1,163 | ProgramServicesAmt |
| Management And General | $115,494 | ManagementAndGeneralAmt |
| Fundraising | $30,869 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,622 | TotalAmt |
| Program Services | $1,177 | ProgramServicesAmt |
| Management And General | $445 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $63,643 | TotalAmt |
| Program Services | $14,997 | ProgramServicesAmt |
| Management And General | $46,056 | ManagementAndGeneralAmt |
| Fundraising | $2,590 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100,844 | TotalAmt |
| Program Services | $13,997 | ProgramServicesAmt |
| Management And General | $86,847 | ManagementAndGeneralAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,252 | TotalAmt |
| Management And General | $22,072 | ManagementAndGeneralAmt |
| Fundraising | $5,180 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $185,318 | TotalAmt |
| Program Services | $72,485 | ProgramServicesAmt |
| Management And General | $85,755 | ManagementAndGeneralAmt |
| Fundraising | $27,078 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Other Expenses | Desc |
| Total | $31,907 | TotalAmt |
| Program Services | $8,074 | ProgramServicesAmt |
| Management And General | $23,833 | ManagementAndGeneralAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,986,709 | TotalAmt |
| Program Services | $1,016,111 | ProgramServicesAmt |
| Management And General | $735,214 | ManagementAndGeneralAmt |
| Fundraising | $235,384 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $111 | BOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,266,882 | BOYAmt |
| EOY | $1,587,453 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $30,282 | BOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,425,640 | BOYAmt |
| EOY | $6,863,256 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $133,887 | BOYAmt |
| EOY | $150,681 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,856,802 | BOYAmt |
| EOY | $8,601,390 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $134,628 | BOYAmt |
| EOY | $217,088 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,871,499 | BOYAmt |
| EOY | $438,707 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,006,127 | BOYAmt |
| EOY | $655,795 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,309,159 | BOYAmt |
| EOY | $7,794,914 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,541,516 | BOYAmt |
| EOY | $150,681 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,850,675 | BOYAmt |
| EOY | $7,945,595 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,856,802 | BOYAmt |
| EOY | $8,601,390 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $2,069,525 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $720,749 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
| Supported Organizations | 0 | SupportedOrganizationsCnt |
| Supported Organizations Total | 0 | SupportedOrganizationsTotalCnt |
| Support Sum | $0 | SupportSumAmt |
| Other Support Sum | $0 | OtherSupportSumAmt |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,096,737 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,262,131 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,638,623 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,213,829 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $235,071 | CurrentTaxYearAmt |
| Total | $12,446,391 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $0 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $0 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $0 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $0 | CurrentTaxYearAmt |
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,096,737 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,262,131 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,638,623 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,213,829 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $235,071 | CurrentTaxYearAmt |
| Total | $12,446,391 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $4,626,699 | SubstantialContributorsTotAmt |
| Public Support Total170 | $7,819,692 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $82,382 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $122,924 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $142,793 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $187,667 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $125,808 | CurrentTaxYearAmt |
| Total | $661,574 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $13,107,965 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $1,500 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.59660 | PublicSupportCY170Pct |
| Public Support PY170 | 0.66000 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $3,335,174 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $600,382 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $600,382 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,734,792 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,734,792 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,982,366 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $1,982,366 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $1,982,366 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| EUROPE | REESEARCH | $103,900 | CHECK |
| Europe | RESEARCH | $732,432 | CHECK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 2 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (8 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Cash GrantCashGrantAmt |
|---|---|---|---|---|
| University of Pensylvania | ||||
| 3615 Civic Center Blvd | Pennsylvania | PA | 19104 | $250,000 |
| Georgetown University | ||||
| 37th O Streets NW | Washington | DC | 20057 | $250,000 |
| University of Washington | ||||
| 1959 NE Pacific St | Seattle | WA | 98915 | $77,255 |
| Rockefeller University | ||||
| 1230 York Ave | New York | NY | 10065 | $150,589 |
| University of Minnesota | ||||
| 2231 6th St SE | Minneapolis | MN | 55455 | $250,000 |
| Stanford University | ||||
| 3160 Porter Drive | Palo Alto | CA | 94304 | $51,982 |
| Oregon Health Sciences University | ||||
| 3181 SW Sam Jackson Park Rd | Portland | OR | 97239 | $97,067 |
| University of Minnesota | ||||
| 2231 6th St SE | Minneapolis | MN | 55455 | $250,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 8 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | Clinical Trial Scholarships | GrantTypeTxt |
| Recipient | 4 | RecipientCnt |
| Cash Grant | $9,328 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2 | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION COMPILES A GRANT FILE FOR EACH GRANT RECIPIENT THAT HOUSES THE GRANT APPLICATION, REVIEWS CONDUCTED BY OUTSIDE REVIEWERS, THE PROPOSAL REVIEW COMMITTEES REPORT, A CV FOR ALL PARTICIPATING IN THE PROJECT, AND A SIGNED ACCEPTANCE OF THE AWARD. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS FINANCIAL AND RESEARCH REPORTS ARE REQUIRED ON AN ANNUAL BASIS DURING THE LIFE OF THE GRANT AND REVIEWED BY THE EXECUTIVE DIRECTOR TO ENSURE FUNDS ARE BEING USED APPROPRIATELY IN ADDITION TO BEING REVIEWED BY THE PROPOSAL COMMITTEE AND THE BOARD. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part VI, Line 11b | The Form 990 will be prepared for a Board meeting during the year at which time a final draft version will be shared with the Board and approved by vote prior to submitting to the IRS. |
| Part VI, Line 12c | On an annual basis, Board members state any real or potential conflicts of interest on a conflict of interest disclosure form. |
| Part VI, Line 15a | Executive Director compensation is set by the Board President after reviewing self-conducted market research. Employee compensation is evaluated by collecting comparable data from non-profit, state, and county sources, as well as a wge analysis review by independent persons which is then used to formulate wages by the Executive Director. |
| Part VI, Line 19 | When governing documents or the conflict of interest policy are requested a copy is mailed to the requesting party. The annual form 990 and audit report are on the organizations website and copies are also issued when requested. |
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