2022-05-26T19:00:47Z 2020-12-31 990 2020-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 360 east 10th Ave EUGENE OR 97401 Mark Quinlan Executive Director 5416874658 2022-05-26 2020 2022-09-23 18:48:47Z X X Mark Quinlan 360 East 10th Ave Suite 201 Eugene RI 97401 4056234 false X Fanconi.org X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR.FANCONI ANEMIA AND TO PROVIDE.EDUCATION AND.SUPPORT SERVICES TO.FAMILIES. WORLD WIDE 11 11 11 100 0 0 3213829 2860743 0 0 859852 638552 48572 556939 4122253 4056234 1708648 479857 0 0 895098 948740 0 0 235384 1120089 558112 3723835 1986709 398418 2069525 7856802 8601390 2006127 655795 5850675 7945595 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO.FAMILIES. WORLD WIDE false false 706409 421834 RESEARCH. SINCE FARF WAS FOUNDED IN 1989, WE HAVE SUPPORTED MORE THAN $24 MILLION IN.RESEARCH, SUPPORTING ... MORE THAN 230 RESEARCH.GRANTS AT MORE THAN 74. CENTERS WORLDWIDE .. EVERY YEAR WE. HOST A.SCIENTIFIC SVMPOSIUM GATHERING OVER 200 FANCONI ANEMIA (FA) SCIENTISTS,.RESEARCHERS,.AND DOCTORS FROM AROUND THE WORLD TO PRESENT RESULTS. FROM THEIR RESEARCH AND TO. COLLABORATE WITH OTHERS IN THE.FIELD. IN ADDITION, WE. HOLD SMALL WORKSHOPS ON AREAS OF SPECIFIC INTEREST, SUCH AS HEAD AND NECK SQUAMOUS CELL CARCINOMA,.IDENTIFICATION.OFNEW DRUSG TO TREAT PATIENTS, AND.GENE THERAPY. 254854 FAMILY SUPPORT AND EDUCATION SERVICES. CURRENTLY, THERE ARE NEARLY 1,000 FAMILIES. WORLDWIDE THAT ARE REGISTERED WITH. OUR ORGANIZATION. AND AN UNDETERMINED NUMBER OF NEWLY DIAGNOSED PATIENTS. WHEN. FACED WITH THIS DEVASTATING DIAGNOSIS, THEY LOOK TO FARF FOR SUPPORT .. WE.PRODUCE_INFORMATIONAL PUBLICATIONS, INCLUDING.OUR HANDBOOK."GUIDELINES FOR DIAGNOSIS AND.MANAGEMENT",.A FAMILY DIRECTORY, AND A RESOURCE GUIDE USING.ALL TREATMENT CENTERS AND DOCTORS WHO WORK FOR.FA .. WE ALSO ORGANIZE.A WEEKLONG.CAMP FOR.FAMILIES AFFECTED BY FA, WHERE WE BRING SCIENTISTS AND CLINICIANS TO PRESENT THE LATEST RESEARCH AND TREATMENT WE INCLUDE.SUPPORT GROUPS.FOR PARENTS AND PATIENTS,.RECREATIONAL ACTIVITIES FOR CHILDREN, 961263 true true false false false false false false false false false false false false false false true false false false false true false false false false false true true false false false false false false false false false false false false false false false false false false false true 0 0 11 true false false false false false false false false false false false false false X 11 11 false false false false false false false true false false false true true true true true true true true false AR CA AL GA FL HI KS MI IL KY MN MA MD MS NJ OR NH NM NY PA RI SC UT TN VA WA WV WI X X Jitasa 2082874777 1750 W Front Street Boise ID 83702 Andre Hessels President 5.00 X X 0 0 0 Orion Marx Vice Presdident 5.00 X X 0 0 0 Lisa Mingo Treasurer 5.00 X X 0 0 0 Jhn Connelly Secretary 5.00 X X 0 0 0 Lynn Frohnmayer Founder 5.00 X X 0 0 0 Win Gouldin Board Member 1.00 X 0 0 0 Jasmine Bennetsen Board Member 1.00 X 0 0 0 Tracy Strimling Board Member 1.00 X 0 0 0 Stella Davies Board Member 1.00 X 0 0 0 Aileen Carlos Board Member 1.00 X 0 0 0 Rachel Altmann Board Member 1.00 X 0 0 0 Mark Quinlan Executive Director 40.00 X X 124200 0 0 Isis Sroka Scientific Director 40.00 X 111395 0 0 235595 0 0 2 false false false 0 2860743 2860743 638552 638552 Other Income 900009 556939 0 556939 556939 4056234 0 0 1195491 453345 453345 26512 26512 235595 111395 124200 514807 237714 137443 139650 198338 75252 93069 30017 147526 1163 115494 30869 1622 1177 445 63643 14997 46056 2590 100844 13997 86847 27252 22072 5180 185318 72485 85755 27078 Other Expenses 31907 8074 23833 1986709 1016111 735214 235384 111 3266882 1587453 30282 4425640 6863256 133887 150681 7856802 8601390 134628 217088 1871499 438707 2006127 655795 X 4309159 7794914 1541516 150681 5850675 7945595 7856802 8601390 2069525 720749 X false true true false X 0 0 0 0 3096737 3262131 2638623 3213829 235071 12446391 0 0 0 0 0 0 3096737 3262131 2638623 3213829 235071 12446391 4626699 7819692 82382 122924 142793 187667 125808 661574 13107965 1500 0.59660 0.66000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3335174 600382 600382 2734792 0 2734792 1982366 0 1982366 0 1982366 EUROPE REESEARCH 103900 CHECK Europe RESEARCH 732432 CHECK 2 false false false false false false true University of Pensylvania 3615 Civic Center Blvd Pennsylvania PA 19104 250000 Georgetown University 37th O Streets NW Washington DC 20057 250000 University of Washington 1959 NE Pacific St Seattle WA 98915 77255 Rockefeller University 1230 York Ave New York NY 10065 150589 University of Minnesota 2231 6th St SE Minneapolis MN 55455 250000 Stanford University 3160 Porter Drive Palo Alto CA 94304 51982 Oregon Health Sciences University 3181 SW Sam Jackson Park Rd Portland OR 97239 97067 University of Minnesota 2231 6th St SE Minneapolis MN 55455 250000 8 Clinical Trial Scholarships 4 9328 Part I, Line 2 THE ORGANIZATION COMPILES A GRANT FILE FOR EACH GRANT RECIPIENT THAT HOUSES THE GRANT APPLICATION, REVIEWS CONDUCTED BY OUTSIDE REVIEWERS, THE PROPOSAL REVIEW COMMITTEES REPORT, A CV FOR ALL PARTICIPATING IN THE PROJECT, AND A SIGNED ACCEPTANCE OF THE AWARD. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS FINANCIAL AND RESEARCH REPORTS ARE REQUIRED ON AN ANNUAL BASIS DURING THE LIFE OF THE GRANT AND REVIEWED BY THE EXECUTIVE DIRECTOR TO ENSURE FUNDS ARE BEING USED APPROPRIATELY IN ADDITION TO BEING REVIEWED BY THE PROPOSAL COMMITTEE AND THE BOARD. Part VI, Line 11b The Form 990 will be prepared for a Board meeting during the year at which time a final draft version will be shared with the Board and approved by vote prior to submitting to the IRS. Part VI, Line 12c On an annual basis, Board members state any real or potential conflicts of interest on a conflict of interest disclosure form. Part VI, Line 15a Executive Director compensation is set by the Board President after reviewing self-conducted market research. Employee compensation is evaluated by collecting comparable data from non-profit, state, and county sources, as well as a wge analysis review by independent persons which is then used to formulate wages by the Executive Director. Part VI, Line 19 When governing documents or the conflict of interest policy are requested a copy is mailed to the requesting party. The annual form 990 and audit report are on the organizations website and copies are also issued when requested.