FANCONI CANCER FOUNDATION: Form 990, tax year 2021

View the entire original 990 at ProPublica ↗

Organization
FANCONI CANCER FOUNDATION (EIN 93-0995453)
Tax period
2021-01-01 to 2021-12-31
Filed
2023-10-20
IRS object ID
202342969349300719
Schema version
2021v4.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-10-20T18:12:07-07:00ReturnTs
Tax Period End2021-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN262176601PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1EASY OFFICE DBA JITASABusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11750 W FRONT STREET SUITE 200AddressLine1Txt
CityBOISECityNm
State AbbreviationIDStateAbbreviationCd
ZIP83702ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2021-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN930995453EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FANCONI ANEMIA RESEARCH FUND INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlFANCBusinessNameControlTxt
Phone5416874658PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1360 EAST 10TH AVE SUIT 200AddressLine1Txt
CityEUGENECityNm
State AbbreviationORStateAbbreviationCd
ZIP97401ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARK QUINLANPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Signature2023-10-20SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJEREMY CORKPreparerPersonNm
PTINP01544850PTIN
Phone2082874777PhoneNum
Preparation2023-10-20PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer1TrustedCustomerCd
OOB Security Verification11OOBSecurityVerificationCd
Last Submission Rqr OOB1LastSubmissionRqrOOBCd
Authentication Assurance LevelAAL2AuthenticationAssuranceLevelCd
Profile User Name ChangeYes (X)ProfileUserNameChangeInd
Profile Password ChangeYes (X)ProfilePasswordChangeInd
FieldValueIRS element (for citing)
Tax2021TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerMARK QUINLANPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1360 EAST 10TH AVE SUITE 200AddressLine1Txt
CityEUGENECityNm
State AbbreviationORStateAbbreviationCd
ZIP97401ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,598,784GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressFanconi.orgWebsiteAddressTxt
Type Of Organization AssocYes (X)TypeOfOrganizationAssocInd
Formation1989FormationYr
Legal Domicile StateORLegalDomicileStateCd
Activity Or MissionTO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee15TotalEmployeeCnt
Total Volunteers100TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$2,860,743PYContributionsGrantsAmt
CY Contributions Grants$3,309,323CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$638,552PYInvestmentIncomeAmt
CY Investment Income$281,913CYInvestmentIncomeAmt
PY Other Revenue$556,939PYOtherRevenueAmt
CY Other Revenue$7,548CYOtherRevenueAmt
PY Total Revenue$4,056,234PYTotalRevenueAmt
CY Total Revenue$3,598,784CYTotalRevenueAmt
PY Grants And Similar Paid$479,857PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,500,673CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$948,740PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$943,978CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$274,243CYTotalFundraisingExpenseAmt
PY Other Expenses$558,112PYOtherExpensesAmt
CY Other Expenses$584,682CYOtherExpensesAmt
PY Total Expenses$1,986,709PYTotalExpensesAmt
CY Total Expenses$3,029,333CYTotalExpensesAmt
PY Revenues Less Expenses$2,069,525PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$569,451CYRevenuesLessExpensesAmt
Total Assets BOY$8,601,390TotalAssetsBOYAmt
Total Assets EOY$9,115,039TotalAssetsEOYAmt
Total Liabilities BOY$655,795TotalLiabilitiesBOYAmt
Total Liabilities EOY$210,291TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$7,945,595NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,904,748NetAssetsOrFundBalancesEOYAmt
MissionTO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,836,716ExpenseAmt
Grant$1,481,073GrantAmt
Revenue$0RevenueAmt
DescRESEARCH INITIATIVES - "ADVANCES OUR STAND UP TO CANCER PROJECT, AWARDS AND MANAGES RESEARCH GRANTS, MANAGES THE VIRTUAL TUMOR BOARD, ADVANCES OUR CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, KEEPS FANCONI ANEMI GUIDELINES MANUAL UP TO DATE, MANAGES FANCONI ANEMIA CANCER CONSORTIUM, MANGES FANCONI ANEMIA BRUSH BIOPSY PROJECT, CONVENES FARF SPARKS MEETINGS."Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$272,798ExpenseAmt
Grant$19,600GrantAmt
Revenue$0RevenueAmt
DescFAMILY SUPPORT - "ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS "Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$80,680ExpenseAmt
Grant$0GrantAmt
Revenue$0RevenueAmt
DescEVENTS - "ANNUAL PLANNING MEETING, JOEL WALKER SERIES MEETINGS, ANNUAL FAMILY RETREAT, SCIENTIFIC SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR FARF SPARKS AND FA CONNECT."Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$0TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$0TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue$0TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$2,190,194TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document7IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee15EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower Policy0WhistleblowerPolicyInd
Document Retention Policy0DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1EASY OFFICE DBA JITASABusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone2082874777PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11750 W FRONT STREET SUITE 200AddressLine1Txt
CityBOISECityNm
State AbbreviationIDStateAbbreviationCd
ZIP83702ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Mark Quinlan
Executive Director40Yes (X)$125,960$0$0
Isis Sroka
Scientific Director40Yes (X)$113,882$0$0
Andre Hessels
President5Yes (X)$0$0$0Yes (X)
Orion Marx
Vice President5Yes (X)$0$0$0Yes (X)
Lisa Mingo
Treasurer5Yes (X)$0$0$0Yes (X)
John Connelly
Secretary5Yes (X)$0$0$0Yes (X)
Lynn Frohnmayer
Board Member5$0$0$0Yes (X)
Rachel Altmann
Board Member1$0$0$0Yes (X)
Stella Davies
Board Member1$0$0$0Yes (X)
Aileen Carlos
Board Member1$0$0$0Yes (X)
Tracy Strimling
Board Member1$0$0$0Yes (X)
Jasmine Bennetsen
Board Member1$0$0$0Yes (X)
Win Gouldin
Board Member1$0$0$0Yes (X)
Carmem Bonfim
Board Member1$0$0$0Yes (X)
Pedro Ravelo
Board Member1$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$239,842TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K2IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Federated Campaigns$0FederatedCampaignsAmt
Membership Dues$0MembershipDuesAmt
Fundraising$0FundraisingAmt
Related Organizations$0RelatedOrganizationsAmt
Government Grants$318,945GovernmentGrantsAmt
All Other Contributions$2,990,378AllOtherContributionsAmt
Noncash Contributions$0NoncashContributionsAmt
Total Contributions$3,309,323TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$279,590TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$279,590ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$0RealAmt
Personal$0PersonalAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$0SecuritiesAmt
Other$2,323OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$0SecuritiesAmt
Other$0OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$0SecuritiesAmt
Other$2,323OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,323TotalRevenueColumnAmt
Related Or Exempt Func Income$2,323RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Contri Rpt Fundraising Event$0ContriRptFundraisingEventAmt

Miscellaneous Revenue MiscellaneousRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$7,548TotalRevenueColumnAmt
Related Or Exempt Func Income$7,548RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$7,548OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,598,784TotalRevenueColumnAmt
Related Or Exempt Func Income$9,871RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$279,590ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,119,936TotalAmt
Program Services$1,119,936ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$12,100TotalAmt
Program Services$12,100ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$368,637TotalAmt
Program Services$368,637ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$246,563TotalAmt
Program Services$120,500ProgramServicesAmt
Management And General$126,063ManagementAndGeneralAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$518,278TotalAmt
Program Services$302,035ProgramServicesAmt
Management And General$20,716ManagementAndGeneralAmt
Fundraising$195,527FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$20,275TotalAmt
Program Services$11,419ProgramServicesAmt
Management And General$2,678ManagementAndGeneralAmt
Fundraising$6,178FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$80,749TotalAmt
Program Services$35,815ProgramServicesAmt
Management And General$25,547ManagementAndGeneralAmt
Fundraising$19,387FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$78,113TotalAmt
Program Services$39,198ProgramServicesAmt
Management And General$18,306ManagementAndGeneralAmt
Fundraising$20,609FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$51,676TotalAmt
Management And General$51,676ManagementAndGeneralAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$28,429TotalAmt
Management And General$28,429ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$120,532TotalAmt
Program Services$77,055ProgramServicesAmt
Management And General$41,584ManagementAndGeneralAmt
Fundraising$1,893FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$142,127TotalAmt
Program Services$13,108ProgramServicesAmt
Management And General$119,187ManagementAndGeneralAmt
Fundraising$9,832FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$20,440TotalAmt
Management And General$20,440ManagementAndGeneralAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$57,054TotalAmt
Management And General$52,204ManagementAndGeneralAmt
Fundraising$4,850FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$111,717TotalAmt
Program Services$83,005ProgramServicesAmt
Management And General$17,745ManagementAndGeneralAmt
Fundraising$10,967FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$1,756TotalAmt
Management And General$1,756ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$12,032TotalAmt
Management And General$12,032ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
BANK CHARGES & PROCESSING FEES$28,419$1,886$26,533$0
EVENT EXPENSES$10,500$5,500$0$5,000

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,029,333TotalAmt
Program Services$2,190,194ProgramServicesAmt
Management And General$564,896ManagementAndGeneralAmt
Fundraising$274,243FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,587,453BOYAmt
EOY$1,603,409EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
EOY$47,392EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$6,863,256BOYAmt
EOY$7,298,361EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$150,681BOYAmt
EOY$165,877EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$8,601,390BOYAmt
EOY$9,115,039EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$217,088BOYAmt
EOY$210,291EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$438,707BOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$655,795BOYAmt
EOY$210,291EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$7,794,914BOYAmt
EOY$8,904,748EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$150,681BOYAmt
EOY$0EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,945,595BOYAmt
EOY$8,904,748EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$8,601,390BOYAmt
EOY$9,115,039EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$569,451ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$415,693NetUnrlzdGainsLossesInvstAmt
Donated Services And Use Fclts$0DonatedServicesAndUseFcltsAmt
Investment Expense$0InvestmentExpenseAmt
Prior Period Adjustments-$25,991PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,262,131CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,638,623CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,213,829CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$235,071CurrentTaxYearMinus1YearAmt
Current Tax Year$3,309,323CurrentTaxYearAmt
Total$12,658,977TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,262,131CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,638,623CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,213,829CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$235,071CurrentTaxYearMinus1YearAmt
Current Tax Year$3,309,323CurrentTaxYearAmt
Total$12,658,977TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,121,831SubstantialContributorsTotAmt
Public Support Total170$8,537,146PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$122,924CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$142,793CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$187,667CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$125,808CurrentTaxYearMinus1YearAmt
Current Tax Year$279,590CurrentTaxYearAmt
Total$858,782TotalAmt
FieldValueIRS element (for citing)
Total Support$13,517,759TotalSupportAmt
Gross Receipts Rltd Activities$2,323GrossReceiptsRltdActivitiesAmt
Public Support CY1700.63155PublicSupportCY170Pct
Public Support PY1700.5966PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$150,681BeginningYearBalanceAmt
Contributions$0ContributionsAmt
Investment Earnings Or Losses$21,457InvestmentEarningsOrLossesAmt
Grants Or Scholarships$0GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$6,261AdministrativeExpensesAmt
End Year Balance$165,877EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$133,887BeginningYearBalanceAmt
Contributions$700ContributionsAmt
Investment Earnings Or Losses$21,533InvestmentEarningsOrLossesAmt
Grants Or Scholarships$0GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$5,439AdministrativeExpensesAmt
End Year Balance$150,681EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$85,985BeginningYearBalanceAmt
Contributions$34,272ContributionsAmt
Investment Earnings Or Losses$17,728InvestmentEarningsOrLossesAmt
Grants Or Scholarships$0GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$4,098AdministrativeExpensesAmt
End Year Balance$133,887EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$0BeginningYearBalanceAmt
Contributions$0ContributionsAmt
Investment Earnings Or Losses$0InvestmentEarningsOrLossesAmt
Grants Or Scholarships$0GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$0AdministrativeExpensesAmt
End Year Balance$0EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$0BeginningYearBalanceAmt
Contributions$0ContributionsAmt
Investment Earnings Or Losses$0InvestmentEarningsOrLossesAmt
Grants Or Scholarships$0GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$0AdministrativeExpensesAmt
End Year Balance$0EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY1BoardDesignatedBalanceEOYPct
Prmnnt Endowment Balance EOY0PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY0TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt
Total Liability$0TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$3,986,048TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$415,693NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$0DonatedServicesAndUseFcltsAmt
Recoveries Prior Year Grants$0RecoveriesPriorYearGrantsAmt
Other Revenue$0OtherRevenueAmt
Revenue Not Reported$415,693RevenueNotReportedAmt
Revenue Subtotal$3,570,355RevenueSubtotalAmt
Investment Expenses Not Incld$28,429InvestmentExpensesNotIncldAmt
Other Revenues Not Included$0OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$28,429RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$3,598,784TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,000,904TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$0DonatedServicesUseFcltsAmt
Prior Year Adjustments$0PriorYearAdjustmentsAmt
Losses Reported$0LossesReportedAmt
Other Expenses Included$0OtherExpensesIncludedAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$3,000,904ExpensesSubtotalAmt
Investment Expenses Not Incld2$28,429InvestmentExpensesNotIncld2Amt
Other Expenses Not Included$0OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$28,429ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,029,333TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Schedule D, Part V, Line 4The endowment fund was set up to fund the Amy Winn and Christopher Byrd award that is presented annually to someone who is striving to make a difference and has set high goals for him/herself. In addition to funding the award, the endowment is scheduled to fund the travel cost of the award winner to the annual meeting for adults with Fanconi Anemia. All funds within the endowment fund were invested in the Social Impact Pool with the Oregon Community Foundation (OCF). Investments within this fund are subjected to an environmental, social, and governance screening. Distributions out of the endowment fund are subject to OCF discretion. Distributions are based on the grant percentage payout policy for permanent funds which is periodically updated by the board of directors of OCF. This payout rate ranges from 4% to 5% and is applied to a 13-quarter trailing average of fund market values. This rate is reviewed annually and was 4.30% in 2021 and 4.35% in 2020, respectively. In no event will such percentages be less than a reasonable rate of return.
Schedule D, Part X, Line 2The Organization is organized as an Oregon nonprofit corporation and has been recognized by the IRS as exempt from federal income taxes under IRC Section 501(a) as an organization described in IRC Section 501(c)(3), qualifies for the charitable contribution deduction under IRC Sections 170(b)(1)(A)(vi) and (viii), and has been determined not to be a private foundation under IRC Sections 509(a)(1) and (3), respectively. The Organization is annually required to file a Return of Organization Exempt from Income Tax (Form 990) with the IRS and reports in other states where the Organization has activities. In addition, the Organization is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. We have determined that the Organization is not subject to unrelated business income tax and have not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
Europe (including Iceland and Greenland)00Program ServicesResearch Grants$358,637
Sub-Saharan Africa00Program ServicesInternational Suppot Program$10,000
FieldValueIRS element (for citing)
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Total Spent$368,637TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtValuation Method UsedValuationMethodUsedDesc
Europe (including Iceland and Greenland)Research$358,637CheckFMV
Sub-Saharan AfricaResearch$10,000CheckFMV
FieldValueIRS element (for citing)
Total501c3 Org0Total501c3OrgCnt
Total Other Org5TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule F, Part I, Line 2FormAndLineReferenceDesc
ExplanationThe organization provides funds with the understanding that those funds will be used to fulfill the mission of the receiving organization.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (11 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmt
Stand Up To Cancer
10880 Wilshire Boulevard Suite 140Los AngelesCA90024951644609501c3$375,000
University of Minnesota
2231 6th St SEMinneapolisMN55455416007513501c3$160,000
University of Massachusetts Medical School
55 Lack AvenueNorth WorcesterMA016550002043167352501c1$106,368
Oregon Health & Sciences University
3181 SW Sam Jackson Park RdPortlandOR97239237083114501c3$97,067
University of Washington
1959 NE Pacific StSeattleWA98915911486484501c5$76,732
Yale University
PO Box 1873New HavenCT065081873060646973501c3$62,500
Georgetown University
37th O StreetsWashingtonDC20057530196603501c3$62,500
Boston Children's Hospital
300 Longwood AvenueBostonMA02115042774441501c3$62,500
The Children's Hospital of Philadelphia Research Institute
Lockbox 1457 Po Box 8500PhiladelhiaPA191781457231352166501c3$54,088
The Rockefeller University
1230 York AveNew YorkNY10065131624158501c3$37,190
Stanford University
3160 Porter DrivePalo AltoCA94304941156365501c3$25,991
FieldValueIRS element (for citing)
Total501c3 Org9Total501c3OrgCnt
Total Other Org2TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeClinical Trial ScholarshipsGrantTypeTxt
Recipient12RecipientCnt
Cash Grant$12,100CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule I, Part I, Line 2FormAndLineReferenceDesc
ExplanationThe organization compiles a grant file for each grant recipient that houses the grant application, reviews conducted by outside reviewers, the proposal review committees report, a CV for all participating in the project, and a signed acceptance of the award. This document must be signed by the principal investigator and the official signing authority of the institution where the research will be performed. To monitor the use of funds financial and research reports are required on an annual basis during the life of the grant and reviewed by the Executive Director to ensure funds are being used appropriately in addition to being reviewed by the proposal committee and the board.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bThe 990 is reviewed at a regular meeting of the Board of Directors.
Form 990, Part VI, Section B, Line 12cThe Executive Director reviews the policy annually at the Annual Leadership Meting.
Form 990, Part VI, Section B, Line 15Executive Director compensation is set by the Board President after reviewing self-conducted market research. Employee compensation is evaluated by collecting comparable data from non-profit, state, and county sources, as well as a wge analysis review by independent persons which is then used to formulate wages by the Executive Director.
Form 990, Part VI, Section C, Line 19When governing documents or the conflict of interest policy are requested a copy is mailed to the requesting party. The annual form 990 and audit report are on the organizations website and copies are also issued when requested.

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