2023-10-20T18:12:07-07:00 2021-12-31 262176601 EASY OFFICE DBA JITASA 1750 W FRONT STREET SUITE 200 BOISE ID 83702 990 2021-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 360 EAST 10TH AVE SUIT 200 EUGENE OR 97401 MARK QUINLAN EXECUTIVE DIRECTOR 2023-10-20 1 JEREMY CORK P01544850 2082874777 2023-10-20 1 11 1 AAL2 X X 2021 2023-04-26 12:10:37Z MARK QUINLAN 360 EAST 10TH AVE SUITE 200 EUGENE OR 97401 3598784 0 X Fanconi.org X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE. 13 13 15 100 0 0 2860743 3309323 0 0 638552 281913 556939 7548 4056234 3598784 479857 1500673 0 0 948740 943978 0 0 274243 558112 584682 1986709 3029333 2069525 569451 8601390 9115039 655795 210291 7945595 8904748 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE. 0 0 1836716 1481073 0 RESEARCH INITIATIVES - "ADVANCES OUR STAND UP TO CANCER PROJECT, AWARDS AND MANAGES RESEARCH GRANTS, MANAGES THE VIRTUAL TUMOR BOARD, ADVANCES OUR CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, KEEPS FANCONI ANEMI GUIDELINES MANUAL UP TO DATE, MANAGES FANCONI ANEMIA CANCER CONSORTIUM, MANGES FANCONI ANEMIA BRUSH BIOPSY PROJECT, CONVENES FARF SPARKS MEETINGS." 272798 19600 0 FAMILY SUPPORT - "ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS " 80680 0 0 EVENTS - "ANNUAL PLANNING MEETING, JOEL WALKER SERIES MEETINGS, ANNUAL FAMILY RETREAT, SCIENTIFIC SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR FARF SPARKS AND FA CONNECT." 0 0 0 2190194 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 15 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 AL AR CA FL GA HI IL KS KY MA MD MI MN MS NH NJ NM NY OR PA RI SC TN UT VA WA WI WV X X EASY OFFICE DBA JITASA 2082874777 1750 W FRONT STREET SUITE 200 BOISE ID 83702 Mark Quinlan Executive Director 40 X 125960 0 0 Isis Sroka Scientific Director 40 X 113882 0 0 Andre Hessels President 5 X X 0 0 0 Orion Marx Vice President 5 X X 0 0 0 Lisa Mingo Treasurer 5 X X 0 0 0 John Connelly Secretary 5 X X 0 0 0 Lynn Frohnmayer Board Member 5 X 0 0 0 Rachel Altmann Board Member 1 X 0 0 0 Stella Davies Board Member 1 X 0 0 0 Aileen Carlos Board Member 1 X 0 0 0 Tracy Strimling Board Member 1 X 0 0 0 Jasmine Bennetsen Board Member 1 X 0 0 0 Win Gouldin Board Member 1 X 0 0 0 Carmem Bonfim Board Member 1 X 0 0 0 Pedro Ravelo Board Member 1 X 0 0 0 239842 0 0 2 0 0 0 0 0 0 0 0 318945 2990378 0 3309323 0 279590 0 0 279590 0 0 0 0 0 0 0 0 0 0 0 2323 0 0 0 2323 2323 2323 0 0 0 7548 7548 0 0 7548 3598784 9871 0 279590 1119936 1119936 12100 12100 368637 368637 246563 120500 126063 518278 302035 20716 195527 20275 11419 2678 6178 80749 35815 25547 19387 78113 39198 18306 20609 51676 51676 28429 28429 120532 77055 41584 1893 142127 13108 119187 9832 20440 20440 57054 52204 4850 111717 83005 17745 10967 1756 1756 12032 12032 BANK CHARGES & PROCESSING FEES 28419 1886 26533 0 EVENT EXPENSES 10500 5500 0 5000 3029333 2190194 564896 274243 1587453 1603409 47392 6863256 7298361 150681 165877 8601390 9115039 217088 210291 438707 0 655795 210291 X 7794914 8904748 150681 0 7945595 8904748 8601390 9115039 569451 415693 0 0 -25991 0 X 0 1 X 1 0 X 3262131 2638623 3213829 235071 3309323 12658977 3262131 2638623 3213829 235071 3309323 12658977 4121831 8537146 122924 142793 187667 125808 279590 858782 13517759 2323 0.63155 0.5966 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 150681 0 21457 0 0 6261 165877 133887 700 21533 0 0 5439 150681 85985 34272 17728 0 0 4098 133887 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 X 3986048 415693 0 0 0 415693 3570355 28429 0 28429 3598784 3000904 0 0 0 0 0 3000904 28429 0 28429 3029333 Schedule D, Part V, Line 4 The endowment fund was set up to fund the Amy Winn and Christopher Byrd award that is presented annually to someone who is striving to make a difference and has set high goals for him/herself. In addition to funding the award, the endowment is scheduled to fund the travel cost of the award winner to the annual meeting for adults with Fanconi Anemia. All funds within the endowment fund were invested in the Social Impact Pool with the Oregon Community Foundation (OCF). Investments within this fund are subjected to an environmental, social, and governance screening. Distributions out of the endowment fund are subject to OCF discretion. Distributions are based on the grant percentage payout policy for permanent funds which is periodically updated by the board of directors of OCF. This payout rate ranges from 4% to 5% and is applied to a 13-quarter trailing average of fund market values. This rate is reviewed annually and was 4.30% in 2021 and 4.35% in 2020, respectively. In no event will such percentages be less than a reasonable rate of return. Schedule D, Part X, Line 2 The Organization is organized as an Oregon nonprofit corporation and has been recognized by the IRS as exempt from federal income taxes under IRC Section 501(a) as an organization described in IRC Section 501(c)(3), qualifies for the charitable contribution deduction under IRC Sections 170(b)(1)(A)(vi) and (viii), and has been determined not to be a private foundation under IRC Sections 509(a)(1) and (3), respectively. The Organization is annually required to file a Return of Organization Exempt from Income Tax (Form 990) with the IRS and reports in other states where the Organization has activities. In addition, the Organization is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. We have determined that the Organization is not subject to unrelated business income tax and have not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS. 1 Europe (including Iceland and Greenland) 0 0 Program Services Research Grants 358637 Sub-Saharan Africa 0 0 Program Services International Suppot Program 10000 0 0 368637 Europe (including Iceland and Greenland) Research 358637 Check FMV Sub-Saharan Africa Research 10000 Check FMV 0 5 0 0 0 0 0 0 Schedule F, Part I, Line 2 The organization provides funds with the understanding that those funds will be used to fulfill the mission of the receiving organization. 1 Stand Up To Cancer 10880 Wilshire Boulevard Suite 140 Los Angeles CA 90024 951644609 501c3 375000 University of Minnesota 2231 6th St SE Minneapolis MN 55455 416007513 501c3 160000 University of Massachusetts Medical School 55 Lack Avenue North Worcester MA 016550002 043167352 501c1 106368 Oregon Health & Sciences University 3181 SW Sam Jackson Park Rd Portland OR 97239 237083114 501c3 97067 University of Washington 1959 NE Pacific St Seattle WA 98915 911486484 501c5 76732 Yale University PO Box 1873 New Haven CT 065081873 060646973 501c3 62500 Georgetown University 37th O Streets Washington DC 20057 530196603 501c3 62500 Boston Children's Hospital 300 Longwood Avenue Boston MA 02115 042774441 501c3 62500 The Children's Hospital of Philadelphia Research Institute Lockbox 1457 Po Box 8500 Philadelhia PA 191781457 231352166 501c3 54088 The Rockefeller University 1230 York Ave New York NY 10065 131624158 501c3 37190 Stanford University 3160 Porter Drive Palo Alto CA 94304 941156365 501c3 25991 9 2 Clinical Trial Scholarships 12 12100 Schedule I, Part I, Line 2 The organization compiles a grant file for each grant recipient that houses the grant application, reviews conducted by outside reviewers, the proposal review committees report, a CV for all participating in the project, and a signed acceptance of the award. This document must be signed by the principal investigator and the official signing authority of the institution where the research will be performed. To monitor the use of funds financial and research reports are required on an annual basis during the life of the grant and reviewed by the Executive Director to ensure funds are being used appropriately in addition to being reviewed by the proposal committee and the board. Form 990, Part VI, Section B, Line 11b The 990 is reviewed at a regular meeting of the Board of Directors. Form 990, Part VI, Section B, Line 12c The Executive Director reviews the policy annually at the Annual Leadership Meting. Form 990, Part VI, Section B, Line 15 Executive Director compensation is set by the Board President after reviewing self-conducted market research. Employee compensation is evaluated by collecting comparable data from non-profit, state, and county sources, as well as a wge analysis review by independent persons which is then used to formulate wages by the Executive Director. Form 990, Part VI, Section C, Line 19 When governing documents or the conflict of interest policy are requested a copy is mailed to the requesting party. The annual form 990 and audit report are on the organizations website and copies are also issued when requested.