MYHRE SYNDROME FOUNDATION
Cite this
Plain text MYHRE SYNDROME FOUNDATION. furp.org, nonprofit organization profile, tax years 2019–2024. https://furp.org/org/myhre-syndrome-foundation-834086943. Retrieved 2026-10-29.
APA furp.org. (n.d.). MYHRE SYNDROME FOUNDATION [Nonprofit organization profile; tax years 2019–2024]. Retrieved October 29, 2026, from https://furp.org/org/myhre-syndrome-foundation-834086943
MLA “MYHRE SYNDROME FOUNDATION.” furp.org, tax years 2019–2024, https://furp.org/org/myhre-syndrome-foundation-834086943. Accessed 29 Oct. 2026.
Retrieved 2026-10-29; covers tax years 2019–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $1.7M · expenses $567K · assets $2.0M
- EIN
- 83-4086943
- Address
- 1710 KELLER PKWY PMB 8828, KELLER, TX 76248-3749
- Website
- https://www.myhresyndrome.org
- NTEE code
- G20
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- July 2019 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope and improving the lives of those impacted by Myhre syndrome.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Armelle pindon | Chief Scientific Officer | 2024 | $120,000 | $120,000 | 1 |
| Kate Wears | Executive Dir. | 2021-2024 | $64,921 | $95,187 | 1 |
Officers and directors, no compensation reported
18 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Justin Smith | Treasurer | 2019-2024 | 5 | $0 reported | 1 |
| Ines White | President | 2021-2024 | 5 | $0 reported | 1 |
| Don Clark | Vice President | 2021-2024 | 3 | $0 reported | 1 |
| Kathy Young | Director | 2021-2024 | 3 | $0 reported | 1 |
| Michelle Smith | Director | 2024 | 3 | $0 reported | 1 |
| Betsy Cox | Director | 2024 | 3 | $0 reported | 1 |
| Jessica Simkins | Director | 2022-2024 | 3 | $0 reported | 1 |
| Zac Burns | Director | 2023-2024 | 10 | $0 reported | 1 |
| Matthew Kantor | Director | 2023-2024 | 3 | $0 reported | 1 |
| Susan Murphy | Director | 2023-2024 | 3 | $0 reported | 1 |
| Mary Young | Director | 2023-2024 | 3 | $0 reported | 1 |
| Sandy Taylor (former) | Director | 2021-2023 | 2 | $0 reported | 1 |
| Patti Schultz (former) | Director | 2021-2023 | 3 | $0 reported | 1 |
| Stephanie Karatsinides (former) | Secretary | 2022-2023 | 3 | $0 reported | 1 |
| Levi Holder (former) | Director | 2022-2023 | 2 | $0 reported | 1 |
| Jackie Lee (former) | Director | 2021 | 3 | $0 reported | 1 |
| Katherine Young (former) | Vice President | 2019 | 5 | $0 reported | 1 |
| Margo Veitch (former) | Secretary | 2019 | 5 | $0 reported | 1 |
People by year
2024 · 13 people listed · 2 paid, $185K · 3 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Armelle pindon | Chief Scientific Officer | 40 | $120,000 | $0 | $0 | $120,000 | 1 |
| Kate Wears | Executive Dir. | 21 | $64,921 | $0 | $0 | $64,921 | 1 |
| Justin Smith | Treasurer | 5 | $0 | $0 | $0 | $0 | 1 |
| Ines White | President | 5 | $0 | $0 | $0 | $0 | 1 |
| Don Clark | Vice President | 3 | $0 | $0 | $0 | $0 | 1 |
| Kathy Young | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Michelle Smith | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Betsy Cox | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Jessica Simkins | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Zac Burns | Director | 10 | $0 | $0 | $0 | $0 | 1 |
| Matthew Kantor | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Susan Murphy | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Mary Young | Director | 3 | $0 | $0 | $0 | $0 | 1 |
2023 · 13 people listed · 1 paid, $24K · 1 employee
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Kate Wears | Executive Dir. | 21 | $24,202 | $0 | $0 | $24,202 | 1 |
| Justin Smith | Treasurer | 3 | $0 | $0 | $0 | $0 | 1 |
| Ines White | President | 5 | $0 | $0 | $0 | $0 | 1 |
| Don Clark | Vice President | 3 | $0 | $0 | $0 | $0 | 1 |
| Sandy Taylor | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Patti Schultz | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Stephanie Karatsinides | Secretary | 3 | $0 | $0 | $0 | $0 | 1 |
| Levi Holder | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jessica Simkins | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Zac Burns | Director | 10 | $0 | $0 | $0 | $0 | 1 |
| Matthew Kantor | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Susan Murphy | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mary Young | Director | 3 | $0 | $0 | $0 | $0 | 1 |
2022 · 9 people listed · 1 paid, $6K
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Kate Wears | Executive Director | 20 | $6,064 | - | $0 | $6,064 | 1 |
| Justin Smith | Co-Founder Treasurer | 3 | $0 | - | $0 | $0 | 1 |
| Ines White | President | 5 | $0 | - | $0 | $0 | 1 |
| Don Clark | Vice-President | 3 | $0 | - | $0 | $0 | 1 |
| Sandy Taylor | Director | 2 | $0 | - | $0 | $0 | 1 |
| Patti Schultz | Director | 3 | $0 | - | $0 | $0 | 1 |
| Stephanie Karatsinides | Secretary | 3 | $0 | - | $0 | $0 | 1 |
| Levi Holder | Director | 2 | $0 | - | $0 | $0 | 1 |
| Jessica Simkins | Director | 3 | $0 | - | $0 | $0 | 1 |
2021 · 8 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Justin Smith | Co-Founder | 5 | $0 | - | $0 | $0 | 1 |
| Kathy Young | Vice-President | 5 | $0 | - | $0 | $0 | 1 |
| Jackie Lee | Director | 3 | $0 | - | $0 | $0 | 1 |
| Don Clark | Director | 4 | $0 | - | $0 | $0 | 1 |
| Sandy Taylor | Director | 2 | $0 | - | $0 | $0 | 1 |
| Ines White | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Patti Schultz | Director | 5 | $0 | - | $0 | $0 | 1 |
| Kate Wears | President | 20 | $0 | - | $0 | $0 | 1 |
2019 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Justin C Smith | President | 5 | $0 | - | - | $0 | 1 |
| Katherine Young | Vice President | 5 | $0 | - | - | $0 | 1 |
| Margo Veitch | Secretary | 5 | $0 | - | - | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2023 · 1 grant to organizations · $24K
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $1,722,681 | $567,231 | $2,036,989 | $2,036,989 | $1,671,904 | $0 | $72,753 | 3 | - |
| 2023 · Form 990 | ||||||||
| $853,869 | $103,124 | $881,539 | $881,539 | $848,036 | $0 | $24,202 | 1 | - |
| 2022 · Form 990EZ | ||||||||
| $136,487 | $59,919 | $125,334 | $125,334 | $136,487 | $0 | - | - | - |
| 2021 · Form 990EZ | ||||||||
| $112,578 | $181,511 | $48,766 | $48,766 | $112,578 | $0 | - | - | - |
| 2019 · Form 990EZ | ||||||||
| $49,157 | $25,856 | $23,301 | $23,301 | $49,157 | - | - | - | - |
Funders of this organization
9 grantors reported grants to this organization, $2,239,065 in all, tax years 2020 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2023-2024 | 2 | $2,175,900 | 2024 | $1,450,500 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2024-2025 | 2 | $25,210 | 2025 | $18,783 | show |
| GLOBAL GENES | Public charity | Exact | 2022 | 1 | $14,865 | 2022 | $14,865 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2024 | 1 | $10,740 | 2024 | $10,740 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2024 | 1 | $10,000 | 2024 | $10,000 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “MYHRE SYNDROME FOUNDATION” | 2020, 2023 | 2 | $1,376 | 2023 | $1,243 | show |
| AARON OR PEGGY SELBER FOUNDATION INC | Private foundation | Fuzzy filed as “MYHRE SYNDROME FOUNDATION” | 2022-2024 | 3 | $750 | 2024 | $250 | show |
| JPMORGAN CHASE FOUNDATION | Private foundation | Fuzzy filed as “MYHRE SYNDROME FOUNDATION” | 2021 | 1 | $120 | 2021 | $120 | show |
| SCRIPPS-HOWARD FOUNDATION | Private foundation | Fuzzy filed as “Myhre Syndrome Foundation” | 2022 | 1 | $104 | 2022 | $104 | show |
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Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $567,231 spent · pay $215,577 · grants $0 · events $51,599
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | Discovery Research | $238,538 | $238,538 | - | - | 42.1% |
| Other salaries and wages | $125,708 | $125,708 | - | - | 22.2% | |
| Pay: officers, directors, trustees, key employees | $72,753 | $72,753 | - | - | 12.8% | |
| Conferences, conventions and meetings | $51,599 | $51,599 | - | - | 9.1% | |
| Fees: other services | $26,085 | $26,085 | - | - | 4.6% | |
| Payroll taxes | $17,116 | $17,116 | - | - | 3.0% | |
| Other (as described) | Disease & Support Expenses | $13,200 | $13,200 | - | - | 2.3% |
| Other (as described) | Board expenses | $8,946 | $8,946 | - | - | 1.6% |
| Fees: legal | $4,350 | $4,350 | - | - | 0.8% | |
| Fees: accounting | $4,200 | $4,200 | - | - | 0.7% | |
| Other (as described) | Payroll processing fee | $1,917 | $1,917 | - | - | 0.3% |
| All other expenses | $1,658 | $1,658 | - | - | 0.3% | |
| Insurance | $770 | $770 | - | - | 0.1% | |
| Office expenses | $391 | $391 | - | - | 0.1% | |
| Total | $567,231 | 100% |
2023 · Form 990 · $103,124 spent · pay $26,170 · grants $24,227 · events $16,528
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $24,227 | $24,227 | - | - | 23.5% | |
| Pay: officers, directors, trustees, key employees | $24,202 | $19,362 | $4,840 | - | 23.5% | |
| Conferences, conventions and meetings | $16,528 | $16,528 | - | - | 16.0% | |
| Other (as described) | Discovery Research | $16,270 | $16,270 | - | - | 15.8% |
| Other (as described) | Dues and Subscriptions | $8,807 | $5,819 | - | $2,988 | 8.5% |
| Fees: legal | $3,815 | $3,815 | - | - | 3.7% | |
| Advertising and promotion | $3,315 | $3,315 | - | - | 3.2% | |
| Payroll taxes | $1,968 | $1,968 | - | - | 1.9% | |
| Travel | $1,700 | $1,700 | - | - | 1.6% | |
| Insurance | $1,020 | - | $1,020 | - | 1.0% | |
| Other (as described) | Payroll processing fee | $588 | - | $588 | - | 0.6% |
| Other (as described) | Shipping | $337 | $337 | - | - | 0.3% |
| All other expenses | $335 | $240 | $95 | - | 0.3% | |
| Office expenses | $12 | - | $12 | - | 0.0% | |
| Total | $103,124 | 100% |
2022 · Form 990EZ · $59,919 spent · pay $6,064 · grants $24,227 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $24,227 | 40.4% | |
| Other expenses (detail on Schedule O) | $23,636 | 39.4% | |
| Salaries, other pay and benefits | $6,064 | 10.1% | |
| Fees to independent contractors | $5,750 | 9.6% | |
| Printing, publications, postage | $242 | 0.4% | |
| Total | $59,919 | 100% |
2021 · Form 990EZ · $181,511 spent · pay $0 · grants $150,000 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $150,000 | 82.6% | |
| Fees to independent contractors | $18,117 | 10.0% | |
| Other expenses (detail on Schedule O) | $13,394 | 7.4% | |
| Total | $181,511 | 100% |
2019 · Form 990EZ · $25,856 spent · pay $0 · grants $22,133 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $22,133 | 85.6% | |
| Other expenses (detail on Schedule O) | $3,723 | 14.4% | |
| Total | $25,856 | 100% |
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