MYHRE SYNDROME FOUNDATION

Cite this

Plain text MYHRE SYNDROME FOUNDATION. furp.org, nonprofit organization profile, tax years 2019–2024. https://furp.org/org/myhre-syndrome-foundation-834086943. Retrieved 2026-10-29.

APA furp.org. (n.d.). MYHRE SYNDROME FOUNDATION [Nonprofit organization profile; tax years 2019–2024]. Retrieved October 29, 2026, from https://furp.org/org/myhre-syndrome-foundation-834086943

MLA “MYHRE SYNDROME FOUNDATION.” furp.org, tax years 2019–2024, https://furp.org/org/myhre-syndrome-foundation-834086943. Accessed 29 Oct. 2026.

Retrieved 2026-10-29; covers tax years 2019–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $1.7M · expenses $567K · assets $2.0M

EIN
83-4086943
Address
1710 KELLER PKWY PMB 8828, KELLER, TX 76248-3749
Website
https://www.myhresyndrome.org
NTEE code
G20
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
July 2019 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope and improving the lives of those impacted by Myhre syndrome.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Armelle pindon Chief Scientific Officer2024 $120,000$120,000 1
Kate Wears Executive Dir.2021-2024 $64,921$95,187 1

Officers and directors, no compensation reported

18 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Justin Smith Treasurer2019-2024 5 $0 reported 1
Ines White President2021-2024 5 $0 reported 1
Don Clark Vice President2021-2024 3 $0 reported 1
Kathy Young Director2021-2024 3 $0 reported 1
Michelle Smith Director2024 3 $0 reported 1
Betsy Cox Director2024 3 $0 reported 1
Jessica Simkins Director2022-2024 3 $0 reported 1
Zac Burns Director2023-2024 10 $0 reported 1
Matthew Kantor Director2023-2024 3 $0 reported 1
Susan Murphy Director2023-2024 3 $0 reported 1
Mary Young Director2023-2024 3 $0 reported 1
Sandy Taylor (former) Director2021-2023 2 $0 reported 1
Patti Schultz (former) Director2021-2023 3 $0 reported 1
Stephanie Karatsinides (former) Secretary2022-2023 3 $0 reported 1
Levi Holder (former) Director2022-2023 2 $0 reported 1
Jackie Lee (former) Director2021 3 $0 reported 1
Katherine Young (former) Vice President2019 5 $0 reported 1
Margo Veitch (former) Secretary2019 5 $0 reported 1

People by year

2024 · 13 people listed · 2 paid, $185K · 3 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Armelle pindon Chief Scientific Officer40 $120,000$0$0 $120,0001
Kate Wears Executive Dir.21 $64,921$0$0 $64,9211
Justin Smith Treasurer5 $0$0$0 $01
Ines White President5 $0$0$0 $01
Don Clark Vice President3 $0$0$0 $01
Kathy Young Director3 $0$0$0 $01
Michelle Smith Director3 $0$0$0 $01
Betsy Cox Director3 $0$0$0 $01
Jessica Simkins Director3 $0$0$0 $01
Zac Burns Director10 $0$0$0 $01
Matthew Kantor Director3 $0$0$0 $01
Susan Murphy Director3 $0$0$0 $01
Mary Young Director3 $0$0$0 $01
2023 · 13 people listed · 1 paid, $24K · 1 employee
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kate Wears Executive Dir.21 $24,202$0$0 $24,2021
Justin Smith Treasurer3 $0$0$0 $01
Ines White President5 $0$0$0 $01
Don Clark Vice President3 $0$0$0 $01
Sandy Taylor Director2 $0$0$0 $01
Patti Schultz Director3 $0$0$0 $01
Stephanie Karatsinides Secretary3 $0$0$0 $01
Levi Holder Director2 $0$0$0 $01
Jessica Simkins Director3 $0$0$0 $01
Zac Burns Director10 $0$0$0 $01
Matthew Kantor Director2 $0$0$0 $01
Susan Murphy Director2 $0$0$0 $01
Mary Young Director3 $0$0$0 $01
2022 · 9 people listed · 1 paid, $6K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kate Wears Executive Director20 $6,064-$0 $6,0641
Justin Smith Co-Founder Treasurer3 $0-$0 $01
Ines White President5 $0-$0 $01
Don Clark Vice-President3 $0-$0 $01
Sandy Taylor Director2 $0-$0 $01
Patti Schultz Director3 $0-$0 $01
Stephanie Karatsinides Secretary3 $0-$0 $01
Levi Holder Director2 $0-$0 $01
Jessica Simkins Director3 $0-$0 $01
2021 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Justin Smith Co-Founder5 $0-$0 $01
Kathy Young Vice-President5 $0-$0 $01
Jackie Lee Director3 $0-$0 $01
Don Clark Director4 $0-$0 $01
Sandy Taylor Director2 $0-$0 $01
Ines White Secretary5 $0-$0 $01
Patti Schultz Director5 $0-$0 $01
Kate Wears President20 $0-$0 $01
2019 · 3 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Justin C Smith President5 $0-- $01
Katherine Young Vice President5 $0-- $01
Margo Veitch Secretary5 $0-- $01

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2023 · 1 grant to organizations · $24K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2025-06-30 · view filing · original 990 ↗
$1,722,681$567,231 $2,036,989$2,036,989 $1,671,904$0 $72,7533-
2023 · Form 990 period ending 2024-06-30 · view filing · original 990 ↗
$853,869$103,124 $881,539$881,539 $848,036$0 $24,2021-
2022 · Form 990EZ period ending 2023-06-30 · view filing · original 990 ↗
$136,487$59,919 $125,334$125,334 $136,487$0 ---
2021 · Form 990EZ period ending 2022-06-30 · view filing · original 990 ↗
$112,578$181,511 $48,766$48,766 $112,578$0 ---
2019 · Form 990EZ period ending 2020-06-30 · view filing · original 990 ↗
$49,157$25,856 $23,301$23,301 $49,157- ---

Funders of this organization

9 grantors reported grants to this organization, $2,239,065 in all, tax years 2020 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2023-2024 2$2,175,900 2024$1,450,500
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2024-2025 2$25,210 2025$18,783
show
GLOBAL GENES Public charity Exact 2022 1$14,865 2022$14,865
show
PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2024 1$10,740 2024$10,740
show
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2024 1$10,000 2024$10,000
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “MYHRE SYNDROME FOUNDATION” 2020, 2023 2$1,376 2023$1,243
show
AARON OR PEGGY SELBER FOUNDATION INC Private foundation Fuzzy filed as “MYHRE SYNDROME FOUNDATION” 2022-2024 3$750 2024$250
show
JPMORGAN CHASE FOUNDATION Private foundation Fuzzy filed as “MYHRE SYNDROME FOUNDATION” 2021 1$120 2021$120
show
SCRIPPS-HOWARD FOUNDATION Private foundation Fuzzy filed as “Myhre Syndrome Foundation” 2022 1$104 2022$104
show

Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
CHILDRENS CRANIOFACIAL ASSOCIATIONTXG20 $1,071,253$820,342 EXEC DIRECTO$88,200 Same NTEE code G20, revenue within 2x, same state
EASTER SEALS NORTH TEXAS INCTXG20 $1,190,741$340,721 PRESIDENT & CEO OF FEDCAP$894,189 Same NTEE code G20, revenue within 2x, same state
STXBP1 FOUNDATIONNCG20 $1,420,429$1,268,147 PRESIDENT$0 Same NTEE code G20, revenue within 2x
THE FAMILIESCN2A FOUNDATION INCMAG20 $2,240,971$2,232,098 EXECUTIVE DI$124,778 Same NTEE code G20, revenue within 2x, similar mission
POLG FOUNDATIONNYG20 $3,364,753$2,107,901 Director / CSO$315,983 Same NTEE code G20, revenue within 2x
WILLIAMS SYNDROME ASSOCIATION INCNJG20 $2,016,743$2,143,132 EXECUTIVE DIRECTOR AS OF JUL'24$161,534 Same NTEE code G20, revenue within 2x
PROJECT 8P FOUNDATIONNYG20 $1,888,508$1,387,442 Executive Director$102,083 Same NTEE code G20, revenue within 2x
LOU BERTEOTTI FOUNDATIONPAG20 $1,013,781$0 PRESIDENT$0 Same NTEE code G20, revenue within 2x
JACKS CORNER FOUNDATION INCCTG20 $1,547,111$2,259,826 SECRETARY$0 Same NTEE code G20, revenue within 2x
ORGANIZATION OF TERATOLOGY INFORMATION SPECIALISTS NFPTNG20 $2,346,081$2,333,531 BOARD MEMBER$46,647 Same NTEE code G20, revenue within 2x
UNITED CEREBRAL PALSY ASSOCIATION OF SAN DIEGO COUNTYCAG20 $3,392,257$3,264,062 Executive Direc$131,805 Same NTEE code G20, revenue within 2x
UNITED CEREBRAL PALSY ASSOCIATION INC OF STANISLAUS COUNTYCAG20 $3,014,270$2,784,386 EXECUTIVE DIRECTOR$97,641 Same NTEE code G20, revenue within 2x
CYSTIC FIBROSIS RESEARCH FUNDPAG20 $3,033,288$2,762,609 Director$0 Same NTEE code G20, revenue within 2x
UNITED CEREBRAL PALSY ASSOCIATION OF THE TRI-COUNTIES INCNYG20 $2,031,706$2,068,830 PRESIDENT/CE$509,275 Same NTEE code G20, revenue within 2x
HOLIMONT SNOWSPORTS INCNYG20 $1,098,471$1,056,951 PRESIDENT$0 Same NTEE code G20, revenue within 2x
CONGENITAL HEART SURGEONS SOCIETYMAG20 $935,575$869,830 PRESIDENT/VICE PRESIDENT$0 Same NTEE code G20, revenue within 2x
ZACK S PLACE ENRICHMENT CENTER INCVTG20 $1,621,478$469,539 Director$0 Same NTEE code G20, revenue within 2x
MICHIGAN UNITED CEREBRAL PALSYMIG20 $1,012,155$1,089,740 PRESIDENT & CEO (ENDED 2/25)$106,270 Same NTEE code G20, revenue within 2x
GENETIC ALLIANCE INCMDG20 $1,350,741$1,359,383 PRESIDENT/CEO$137,793 Same NTEE code G20, revenue within 2x
DELIGHTED TO DOULA BIRTH SERVICES NONPROFIT CORPORATIONTXG20 $591,575$429,874 CEO$79,165 Same NTEE code G20, revenue within 5x, same state
DLG4 SHINE FOUNDATION INCCTG20 $379,505$188,050 co-President$0 Same NTEE code G20, revenue within 5x
CUREFA FOUNDATION INCWIG20 $371,207$130,918 PRESIDENT$0 Same NTEE code G20, revenue within 5x
MUCOLIPIDOSIS TYPE IV FOUNDATION INCGAG20 $3,776,356$3,084,160 EXECUTIVE DIRECTOR$213,815 Same NTEE code G20, revenue within 5x
CSNK2A1 FOUNDATIONCAG20 $754,167$596,714 EXECUTIVE DIRECTOR$0 Same NTEE code G20, revenue within 5x
HEMOPHILIA FOUNDATION OF MICHIGANMIG20 $4,413,608$4,695,502 Executive Director$207,481 Same NTEE code G20, revenue within 5x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
CASCADE HEMOPHILIA CONSORTIUM Private foundation$14,276,08428 12012–2025 HEMOPHILIA FOUNDATION OF MICHIGAN
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$6,295,49018 112020–2024 CSNK2A1 FOUNDATION; SALLA TREATMENT AND RESEARCH FOUNDATION INC; KCNQ2 CURE ALLIANCE INC; TEAM TELOMERE INC and 7 more
NATIONAL PHILANTHROPIC TR DAF sponsor$5,075,36734 162016–2024 MIRACLEFEET; LITTLE BABY FACE FOUNDATION; UNITED CEREBRAL PALSY ASSOCIATION OF GREATER CLEVELAND INC; CUREFA FOUNDATION INC and 12 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$4,888,967145 442016–2024 MIRACLEFEET; JACKS CORNER FOUNDATION INC; CYSTIC FIBROSIS RESEARCH FUND; HELP 4 HD INTERNATIONAL and 40 more
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$4,138,83987 322014–2024 MIRACLEFEET; CYSTIC FIBROSIS RESEARCH FUND; GENETIC ALLIANCE INC; UNITED CEREBRAL PALSY ASSOCIATION OF CENTRAL CALIFORNIA INC and 28 more
JEWISH COMMUNITY FOUNDATION OF SAN DIEGO DAF sponsor$3,937,02514 32010–2024 MUCOLIPIDOSIS TYPE IV FOUNDATION INC; CYSTIC FIBROSIS RESEARCH FUND; UNITED CEREBRAL PALSY ASSOCIATION OF SAN DIEGO COUNTY
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$3,927,10030 152020–2024 UTAH SMILES FOUNDATION; MIRACLEFEET; LANCASTER CLEFT PALATE CLINIC; CYSTIC FIBROSIS RESEARCH FUND and 11 more
JEWISH FEDERATION OF GREATER ATLANTA INC DAF sponsor$3,053,99815 22011–2024 MUCOLIPIDOSIS TYPE IV FOUNDATION INC; JSCREENORG INC
GOOD VENTURES FOUNDATION Private foundation$2,211,9523 12022–2024 MIRACLEFEET
FORGOOD INC DAF sponsor$1,993,16192 292010–2024 MIRACLEFEET; PROJECT 8P FOUNDATION; ELLIES ARMY INC; CHILDRENS CRANIOFACIAL ASSOCIATION and 25 more
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$1,782,756116 322019–2025 WILLIAMS SYNDROME ASSOCIATION INC; STXBP1 FOUNDATION; CEREBRAL PALSY INC; PROJECT 8P FOUNDATION and 28 more
JOHN AND EMILY PARK FAMILY FOUNDATION Private foundation$1,644,8999 12022–2024 THE FAMILIESCN2A FOUNDATION INC
FORT WORTH SOCIETY FOR CRIPPLED CHILDREN & ADULTS 1352 Private foundation$1,596,39912 12014–2025 EASTER SEALS NORTH TEXAS INC
JOHN AND ENGRID MENG INC Private foundation$1,506,45015 12010–2024 CEREBRAL PALSY INC
COMMUNITY FOUNDATION OF NEW JERSEY DAF sponsor$1,422,12710 22011–2024 MIRACLEFEET; LITTLE BABY FACE FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $567,231 spent · pay $215,577 · grants $0 · events $51,599
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)Discovery Research $238,538$238,538-- 42.1%
Other salaries and wages $125,708$125,708-- 22.2%
Pay: officers, directors, trustees, key employees $72,753$72,753-- 12.8%
Conferences, conventions and meetings $51,599$51,599-- 9.1%
Fees: other services $26,085$26,085-- 4.6%
Payroll taxes $17,116$17,116-- 3.0%
Other (as described)Disease & Support Expenses $13,200$13,200-- 2.3%
Other (as described)Board expenses $8,946$8,946-- 1.6%
Fees: legal $4,350$4,350-- 0.8%
Fees: accounting $4,200$4,200-- 0.7%
Other (as described)Payroll processing fee $1,917$1,917-- 0.3%
All other expenses $1,658$1,658-- 0.3%
Insurance $770$770-- 0.1%
Office expenses $391$391-- 0.1%
Total$567,231100%

View the filing

2023 · Form 990 · $103,124 spent · pay $26,170 · grants $24,227 · events $16,528
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $24,227$24,227-- 23.5%
Pay: officers, directors, trustees, key employees $24,202$19,362$4,840- 23.5%
Conferences, conventions and meetings $16,528$16,528-- 16.0%
Other (as described)Discovery Research $16,270$16,270-- 15.8%
Other (as described)Dues and Subscriptions $8,807$5,819-$2,988 8.5%
Fees: legal $3,815$3,815-- 3.7%
Advertising and promotion $3,315$3,315-- 3.2%
Payroll taxes $1,968$1,968-- 1.9%
Travel $1,700$1,700-- 1.6%
Insurance $1,020-$1,020- 1.0%
Other (as described)Payroll processing fee $588-$588- 0.6%
Other (as described)Shipping $337$337-- 0.3%
All other expenses $335$240$95- 0.3%
Office expenses $12-$12- 0.0%
Total$103,124100%

View the filing

2022 · Form 990EZ · $59,919 spent · pay $6,064 · grants $24,227 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $24,227 40.4%
Other expenses (detail on Schedule O) $23,636 39.4%
Salaries, other pay and benefits $6,064 10.1%
Fees to independent contractors $5,750 9.6%
Printing, publications, postage $242 0.4%
Total$59,919100%

View the filing

2021 · Form 990EZ · $181,511 spent · pay $0 · grants $150,000 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $150,000 82.6%
Fees to independent contractors $18,117 10.0%
Other expenses (detail on Schedule O) $13,394 7.4%
Total$181,511100%

View the filing

2019 · Form 990EZ · $25,856 spent · pay $0 · grants $22,133 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $22,133 85.6%
Other expenses (detail on Schedule O) $3,723 14.4%
Total$25,856100%

View the filing

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