PROJECT 8P FOUNDATION
Cite this
Plain text PROJECT 8P FOUNDATION. furp.org, nonprofit organization profile, tax years 2018–2024. https://furp.org/org/project-8p-foundation-832545342. Retrieved 2026-10-23.
APA furp.org. (n.d.). PROJECT 8P FOUNDATION [Nonprofit organization profile; tax years 2018–2024]. Retrieved October 23, 2026, from https://furp.org/org/project-8p-foundation-832545342
MLA “PROJECT 8P FOUNDATION.” furp.org, tax years 2018–2024, https://furp.org/org/project-8p-foundation-832545342. Accessed 23 Oct. 2026.
Retrieved 2026-10-23; covers tax years 2018–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $1.9M · expenses $1.4M · assets $2.9M
- EIN
- 83-2545342
- Address
- 787 SEVENTH AVENUE 31ST FLOOR, NEW YORK, NY 10019-6018
- Website
- www.project8p.org
- NTEE code
- G20
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- July 2019 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. Activities include clinical care, research, AI data-driven platform and biorepository, and education and advocacy.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Lauren Chaby | Executive Director | 2024 | $102,083 | $102,083 | 1 |
Officers and directors, no compensation reported
10 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Wissam Nesr | Director | 2022-2024 | 1 | $0 reported | 1 |
| David Jackson | Director | 2024 | 1 | $0 reported | 1 |
| Jahn Marie Surette | Director | 2021-2024 | 1 | $0 reported | 1 |
| Bina Shah | FounderCEOTreasurer | 2018-2024 | 5 | $0 reported | 1 |
| Erica Seaborne | Secretary | 2024 | 1 | $0 reported | 1 |
| Thomas Peterson (former) | Director | 2021-2023 | 1 | $0 reported | 1 |
| Mehul Shah (former) | Director | 2018-2023 | 1 | $0 reported | 1 |
| Shannon Clarke (former) | Director Secretary | 2021-2023 | 1 | $0 reported | 1 |
| Maulin P Shah (former) | Director | 2021 | 1 | $0 reported | 1 |
| Shilpa Maniar (former) | DIRECTOR | 2018-2020 | 1 | $0 reported | 1 |
People by year
2024 · 6 people listed · 1 paid, $102K · 3 employees · 10 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Lauren Chaby | Executive Director | 40 | $102,083 | $0 | $0 | $102,083 | 1 |
| Wissam Nesr | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| David Jackson | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Jahn Marie Surette | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Bina Shah | FounderCEOTreasurer | 5 | $0 | $0 | $0 | $0 | 1 |
| Erica Seaborne | Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 6 people listed · none paid · 1 employee · 8 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Jahn Marie Surette | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Thomas Peterson | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Mehul Shah | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Wissam Nesr | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Bina Shah | FounderCEOTreasurer | 5 | $0 | $0 | $0 | $0 | 1 |
| Shannon Clarke | Director Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
2022 · 5 people listed · none paid · 0 employees · 8 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Thomas Peterson | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Wissam Nesr | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Jahn Marie Surette | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Bina Shah | FounderChief Executive Offic | 5 | $0 | $0 | $0 | $0 | 1 |
| Shannon Clarke | Director Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
2021 · 6 people listed · none paid · 0 employees · 16 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Shannon Clarke | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Thomas Peterson | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Jahn Marie Surette | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Maulin P Shah | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Bina Shah | FounderChief Executive Offic | 5 | $0 | $0 | $0 | $0 | 1 |
| Mehul Shah | Treasurer Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
2020 · 3 people listed · none paid · 0 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BINA MANIAR SHAH | PRESIDENT | 5 | $0 | $0 | $0 | $0 | 1 |
| MEHUL SHAH | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| SHILPA MANIAR | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2019 · 3 people listed · none paid · 0 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BINA MANIAR SHAH | PRESIDENT | 5 | $0 | $0 | $0 | $0 | 1 |
| MEHUL SHAH | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| SHILPA MANIAR | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2018 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BINA MANIAR SHAH | PRESIDENT | 5 | $0 | - | $0 | $0 | 1 |
| MEHUL SHAH | TREASURER | 1 | $0 | - | $0 | $0 | 1 |
| SHILPA MANIAR | DIRECTOR | 1 | $0 | - | $0 | $0 | 1 |
Highest-paid independent contractors
2023 · 2 contractors · $313K
| Name | Location | Service | Paid |
|---|---|---|---|
| Rare-X | Washington, DC | Research | $178,601 |
| Perlara PBC | South San Francisco, CA | Research | $133,975 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 6 grants to organizations · $460K
Listed grants add up to $460,205; the return's “grants paid” expense line says $491,099. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 4 grants to organizations · $344K
Listed grants add up to $343,679; the return's “grants paid” expense line says $378,466. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 3 grants to organizations · $154K
2021 · 3 grants to organizations · $137K
Listed grants add up to $136,711; the return's “grants paid” expense line says $140,461. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $1,888,508 | $1,387,442 | $2,943,272 | $2,856,301 | $1,787,094 | $19,288 | $102,083 | 3 | 10 |
| 2023 · Form 990 | ||||||||
| $2,011,359 | $913,309 | $2,492,008 | $2,303,414 | $1,930,820 | $0 | $0 | 1 | 8 |
| 2022 · Form 990 | ||||||||
| $611,641 | $301,268 | $1,162,555 | $1,162,555 | $599,258 | $0 | $0 | 0 | 8 |
| 2021 · Form 990 | ||||||||
| $644,022 | $569,741 | $973,686 | $973,686 | $632,932 | $11,061 | $0 | 0 | 16 |
| 2020 · Form 990 | ||||||||
| $891,452 | $179,588 | $881,283 | $852,949 | $890,647 | $685 | $0 | 0 | 0 |
| 2020 · Form 990 | ||||||||
| $891,452 | $179,588 | $881,283 | $852,949 | $890,647 | $685 | $0 | 0 | 0 |
| 2019 · Form 990 | ||||||||
| $222,210 | $81,125 | $141,085 | $141,085 | $213,407 | $8,793 | $0 | 0 | 0 |
| 2018 · Form 990EZ | ||||||||
| - | - | $0 | $0 | $0 | - | - | - | - |
Funders of this organization
14 grantors reported grants to this organization, $1,199,210 in all, tax years 2019 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| SILICON VALLEY COMMUNITY FOUNDATION | DAF sponsor | Exact | 2020, 2022 | 2 | $615,000 | 2022 | $150,000 | show |
| FORGOOD INC | DAF sponsor | Exact | 2020-2024 | 5 | $267,794 | 2024 | $51,224 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2024 | 6 | $125,344 | 2024 | $33,894 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2021-2024 | 4 | $66,002 | 2024 | $22,651 | show |
| ALASKA COMMUNITY FOUNDATION | DAF sponsor | Exact | 2022, 2024 | 2 | $43,472 | 2024 | $7,982 | show |
| THE COTTAGE BRIDGE FOUNDATION | Private foundation | Fuzzy filed as “PROJECT 8P FOUNDATION” | 2021-2024 | 4 | $40,000 | 2024 | $10,000 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2020, 2024 | 2 | $20,750 | 2024 | $10,750 | show |
| THE COOPERATIVE IMPACT LAB | Public charity | Exact | 2023 | 1 | $8,700 | 2023 | $8,700 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2023 | 1 | $5,200 | 2023 | $5,200 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “PROJECT 8P FOUNDATION” | 2020-2023 | 4 | $2,873 | 2023 | $969 | show |
| JPMORGAN CHASE FOUNDATION | Private foundation | Fuzzy filed as “PROJECT 8P FOUNDATION” | 2021-2022 | 2 | $2,000 | 2022 | $1,000 | show |
| SYD AND JAN M SILVERMAN FOUNDATION INC | Private foundation | Fuzzy filed as “PROJECT 8P FOUNDATION” | 2022 | 1 | $1,000 | 2022 | $1,000 | show |
| NANDANSONS CHARITABLE FOUNDATION INC | Private foundation | Fuzzy filed as “PROJECT 8P FOUNDATION” | 2019 | 1 | $1,000 | 2019 | $1,000 | show |
| FOUNDATION SOURCE CHARITABLE FOUNDATION INC | Private foundation | Fuzzy filed as “PROJECT 8P FOUNDATION” | 2024 | 1 | $75 | 2024 | $75 | show |
Similar organizations
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| POLG FOUNDATION | NY | G20 | $3,364,753 | $2,107,901 | Director / CSO | $315,983 | Same NTEE code G20, revenue within 2x, same state, similar name |
| UNITED CEREBRAL PALSY ASSOCIATION OF THE TRI-COUNTIES INC | NY | G20 | $2,031,706 | $2,068,830 | PRESIDENT/CE | $509,275 | Same NTEE code G20, revenue within 2x, same state |
| HOLIMONT SNOWSPORTS INC | NY | G20 | $1,098,471 | $1,056,951 | PRESIDENT | $0 | Same NTEE code G20, revenue within 2x, same state |
| STXBP1 FOUNDATION | NC | G20 | $1,420,429 | $1,268,147 | PRESIDENT | $0 | Same NTEE code G20, revenue within 2x |
| MYHRE SYNDROME FOUNDATION | TX | G20 | $1,722,681 | $567,231 | Chief Scientific Officer | $120,000 | Same NTEE code G20, revenue within 2x |
| LOU BERTEOTTI FOUNDATION | PA | G20 | $1,013,781 | $0 | PRESIDENT | $0 | Same NTEE code G20, revenue within 2x |
| MUCOLIPIDOSIS TYPE IV FOUNDATION INC | GA | G20 | $3,776,356 | $3,084,160 | EXECUTIVE DIRECTOR | $213,815 | Same NTEE code G20, revenue within 2x |
| THE FAMILIESCN2A FOUNDATION INC | MA | G20 | $2,240,971 | $2,232,098 | EXECUTIVE DI | $124,778 | Same NTEE code G20, revenue within 2x |
| INCLUSION CONNECTIONS | KS | G20 | $2,534,648 | $1,413,346 | EXECUTIVE DI | $99,370 | Same NTEE code G20, revenue within 2x |
| ORGANIZATION OF TERATOLOGY INFORMATION SPECIALISTS NFP | TN | G20 | $2,346,081 | $2,333,531 | BOARD MEMBER | $46,647 | Same NTEE code G20, revenue within 2x |
| UNITED CEREBRAL PALSY ASSOCIATION OF SAN DIEGO COUNTY | CA | G20 | $3,392,257 | $3,264,062 | Executive Direc | $131,805 | Same NTEE code G20, revenue within 2x |
| WILLIAMS SYNDROME ASSOCIATION INC | NJ | G20 | $2,016,743 | $2,143,132 | EXECUTIVE DIRECTOR AS OF JUL'24 | $161,534 | Same NTEE code G20, revenue within 2x |
| CYSTIC FIBROSIS RESEARCH FUND | PA | G20 | $3,033,288 | $2,762,609 | Director | $0 | Same NTEE code G20, revenue within 2x |
| LANCASTER CLEFT PALATE CLINIC | PA | G20 | $3,563,451 | $3,723,761 | EXECUTIVE DI | $286,965 | Same NTEE code G20, revenue within 2x |
| UNITED CEREBRAL PALSY ASSOCIATION INC OF STANISLAUS COUNTY | CA | G20 | $3,014,270 | $2,784,386 | EXECUTIVE DIRECTOR | $97,641 | Same NTEE code G20, revenue within 2x |
| GENETIC ALLIANCE INC | MD | G20 | $1,350,741 | $1,359,383 | PRESIDENT/CEO | $137,793 | Same NTEE code G20, revenue within 2x |
| MICHIGAN UNITED CEREBRAL PALSY | MI | G20 | $1,012,155 | $1,089,740 | PRESIDENT & CEO (ENDED 2/25) | $106,270 | Same NTEE code G20, revenue within 2x |
| LITTLE BABY FACE FOUNDATION | NY | G20 | $701,584 | $471,521 | PRESIDENT | $0 | Same NTEE code G20, revenue within 5x, same state |
| NEW YORK CITY FOUNDATION FOR CEREBRAL PALSY INC | NY | G20 | $5,500,958 | $5,756,893 | CEO, ADAPT COMMUNITY NETWORK (THRU 11/24) | $943,636 | Same NTEE code G20, revenue within 5x, same state |
| HUNTINGTON STUDY GROUP LTD | NY | G20 | $5,041,772 | $4,916,902 | CEO/SECRETARY (UNTIL 7/3/24) | $282,263 | Same NTEE code G20, revenue within 5x, same state |
| XLH NETWORK INC | NY | G20 | $381,202 | $404,314 | EXECUTIVE DIRECTOR | $68,480 | Same NTEE code G20, revenue within 5x, same state |
| SICKLE CELL-THALASSEMIA PATIENTS NETWORKS INC | NY | G20 | $483,355 | $483,415 | PRESIDENT | $0 | Same NTEE code G20, revenue within 5x, same state |
| DLG4 SHINE FOUNDATION INC | CT | G20 | $379,505 | $188,050 | co-President | $0 | Same NTEE code G20, revenue within 5x |
| CSNK2A1 FOUNDATION | CA | G20 | $754,167 | $596,714 | EXECUTIVE DIRECTOR | $0 | Same NTEE code G20, revenue within 5x |
| CACNA1A FOUNDATION INC | CT | G20 | $710,127 | $390,485 | Executive Director | $42,073 | Same NTEE code G20, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $1,387,442 spent · pay $248,683 · grants $491,099 · events $97,962
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $425,418 | $425,418 | - | - | 30.7% | |
| Fees: other services | $400,944 | $363,845 | $35,891 | $1,208 | 28.9% | |
| Other salaries and wages | $127,025 | $70,629 | $37,507 | $18,889 | 9.2% | |
| Pay: officers, directors, trustees, key employees | $102,083 | $56,761 | $30,143 | $15,179 | 7.4% | |
| Conferences, conventions and meetings | $97,962 | $97,962 | - | - | 7.1% | |
| Grants outside the US | $63,181 | $63,181 | - | - | 4.6% | |
| Information technology | $49,777 | $35,149 | $4,348 | $10,280 | 3.6% | |
| Travel | $33,714 | $27,836 | $5,544 | $334 | 2.4% | |
| Fees: legal | $20,576 | $6,398 | $13,716 | $462 | 1.5% | |
| Fees: accounting | $20,424 | $6,351 | $13,615 | $458 | 1.5% | |
| Payroll taxes | $19,575 | $10,884 | $5,780 | $2,911 | 1.4% | |
| Other (as described) | Other | $8,401 | $6,614 | $1,787 | - | 0.6% |
| Office expenses | $8,212 | $2,327 | $4,312 | $1,573 | 0.6% | |
| Advertising and promotion | $5,215 | $4,324 | $891 | - | 0.4% | |
| Grants to US individuals | $2,500 | $2,500 | - | - | 0.2% | |
| Insurance | $1,294 | - | $1,294 | - | 0.1% | |
| Fees: investment management | $1,141 | - | $1,141 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $28,845 | - | reported apart | |||
| Total | $1,387,442 | 100% |
2023 · Form 990 · $913,309 spent · pay $20,686 · grants $378,466 · events $15,509
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $463,538 | $375,650 | $8,248 | $79,640 | 50.8% | |
| Grants to US organizations and governments | $378,466 | $378,466 | - | - | 41.4% | |
| Other salaries and wages | $20,686 | $10,343 | $10,343 | - | 2.3% | |
| Information technology | $17,838 | $9,782 | $1,593 | $6,463 | 2.0% | |
| Office expenses | $10,809 | $3,567 | $1,738 | $5,504 | 1.2% | |
| Travel | $7,310 | $6,483 | - | $827 | 0.8% | |
| Advertising and promotion | $5,016 | $2,694 | $392 | $1,930 | 0.5% | |
| Fees: legal | $3,786 | $750 | $3,036 | - | 0.4% | |
| Other (as described) | Other | $2,805 | $2,805 | - | - | 0.3% |
| Fees: accounting | $1,693 | - | $1,693 | - | 0.2% | |
| Insurance | $1,325 | - | $1,325 | - | 0.1% | |
| Fees: investment management | $37 | - | $37 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $64,997 | $15,509 | reported apart | |||
| Total | $913,309 | 100% |
2022 · Form 990 · $301,268 spent · pay $0 · grants $153,818 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $153,818 | $153,818 | - | - | 51.1% | |
| Fees: other services | $67,455 | $67,455 | - | - | 22.4% | |
| Fees: professional fundraisers | $33,875 | - | - | $33,875 | 11.2% | |
| Information technology | $18,419 | $12,052 | $1,254 | $5,113 | 6.1% | |
| Advertising and promotion | $8,381 | $5,409 | $268 | $2,704 | 2.8% | |
| Travel | $5,788 | $5,709 | - | $79 | 1.9% | |
| Other (as described) | Other | $5,645 | $4,564 | $120 | $961 | 1.9% |
| Fees: accounting | $3,310 | $980 | $2,330 | - | 1.1% | |
| Occupancy | $2,275 | - | - | $2,275 | 0.8% | |
| Fees: legal | $1,911 | - | $1,911 | - | 0.6% | |
| Office expenses | $376 | $195 | - | $181 | 0.1% | |
| Insurance | $15 | - | $15 | - | 0.0% | |
| Total | $301,268 | 100% |
2021 · Form 990 · $569,741 spent · pay $0 · grants $140,461 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $195,664 | $139,064 | $56,600 | - | 34.3% | |
| Grants to US organizations and governments | $140,461 | $140,461 | - | - | 24.7% | |
| Travel | $121,115 | $120,582 | $443 | $90 | 21.3% | |
| Information technology | $72,769 | $71,252 | $1,517 | - | 12.8% | |
| Other (as described) | BioBank | $22,153 | $22,153 | - | - | 3.9% |
| Advertising and promotion | $7,886 | $4,666 | - | $3,220 | 1.4% | |
| Office expenses | $4,596 | $4,504 | $92 | - | 0.8% | |
| Fees: professional fundraisers | $3,616 | - | - | $3,616 | 0.6% | |
| Other (as described) | Registrations Dues Subsc | $1,304 | $142 | $1,162 | - | 0.2% |
| Other (as described) | Bank Charges and Fees | $97 | - | - | $97 | 0.0% |
| Fees: legal | $80 | - | $80 | - | 0.0% | |
| Total | $569,741 | 100% |
2020 · Form 990 · $179,588 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $152,410 | $146,410 | $6,000 | - | 84.9% | |
| Other (as described) | PATIENT REGISTRY | $15,000 | $15,000 | $0 | $0 | 8.4% |
| Other (as described) | BANK CHARGES AND FEES | $3,453 | $0 | $3,453 | $0 | 1.9% |
| Other (as described) | COMMUNITY SUPPORT PROGRAMS | $2,625 | $2,625 | $0 | $0 | 1.5% |
| Fees: accounting | $2,000 | - | $2,000 | - | 1.1% | |
| Fees: legal | $1,566 | - | $1,566 | - | 0.9% | |
| Office expenses | $1,149 | $107 | $1,042 | - | 0.6% | |
| Travel | $1,106 | $1,106 | - | - | 0.6% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $279 | $0 | $279 | $0 | 0.2% |
| Total | $179,588 | 100% |
2019 · Form 990 · $81,125 spent · pay $0 · grants $4,450 · events $28,284
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: legal | $31,849 | $15,925 | $15,924 | - | 39.3% | |
| Conferences, conventions and meetings | $28,284 | $28,284 | - | - | 34.9% | |
| Fees: other services | $11,709 | $11,709 | - | - | 14.4% | |
| Grants to US individuals | $4,450 | $4,450 | - | - | 5.5% | |
| Other (as described) | BANK CHARGES AND FEES | $1,474 | - | $1,474 | - | 1.8% |
| Travel | $1,296 | $1,296 | - | - | 1.6% | |
| Other (as described) | DUES AND SUNSCRIPTIONS | $976 | - | $976 | - | 1.2% |
| Office expenses | $551 | $514 | $37 | - | 0.7% | |
| Other (as described) | PROGRAM SUPPLIES | $336 | $336 | - | - | 0.4% |
| Advertising and promotion | $200 | $200 | - | - | 0.2% | |
| Total | $81,125 | 100% |
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