SARCOMA FOUNDATION OF AMERICA INC
Cite this
Plain text SARCOMA FOUNDATION OF AMERICA INC. furp.org, nonprofit organization profile, tax years 2010–2025. https://furp.org/org/sarcoma-foundation-of-america-inc-522275294. Retrieved 2026-10-27.
APA furp.org. (n.d.). SARCOMA FOUNDATION OF AMERICA INC [Nonprofit organization profile; tax years 2010–2025]. Retrieved October 27, 2026, from https://furp.org/org/sarcoma-foundation-of-america-inc-522275294
MLA “SARCOMA FOUNDATION OF AMERICA INC.” furp.org, tax years 2010–2025, https://furp.org/org/sarcoma-foundation-of-america-inc-522275294. Accessed 27 Oct. 2026.
Retrieved 2026-10-27; covers tax years 2010–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $3.4M · expenses $4.3M · assets $10.8M
- EIN
- 52-2275294
- Address
- 7700 WISCONSIN AVENUE 310, BETHESDA, MD 20814-3578
- Website
- WWW.CURESARCOMA.ORG
- NTEE code
- A12
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- June 2001 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE MISSION OF THE ORGANIZATION IS TO ADVOCATE FOR SARCOMA PATIENTS BY FUNDING RESEARCH AND BY INCREASING AWARENESS ABOUT THE DISEASE. THE ORGANIZATION RAISES MONEY TO PRIVATELY FUND GRANTS FOR SARCOMA RESEARCHERS AND CONDUCTS EDUCATION AND ADVOCACY EFFORTS ON BEHALF OF SARCOMA PATIENTS.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
11 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Brandi Felser | CEO | 2019-2025 | $261,868 | $1,348,419 | 1 |
| Dean Frohlich | DIRECTOR OF SCIENTIFIC AFFAIRS | 2023-2025 | $166,099 | $489,742 | 1 |
| Annie Blake | NATIONAL DIRECTOR, RTCS | 2023-2025 | $128,251 | $365,973 | 1 |
| Claire Wang | FINANCE DIRECTOR | 2025 | $149,166 | $149,166 | 1 |
| Cheryl Mayes | DIRECTOR OF OPERATIONS | 2025 | $128,560 | $128,560 | 1 |
| Bert Thomas (former) | CEO | 2014-2017 | $71,012 | $471,895 | 1 |
| Anthony Ferlenda (former) | CEO | 2012-2014 | $89,398 | $279,257 | 1 |
| Matthew Alsante (former) | EXECUTIVE DIRECTOR | 2010-2012 | $66,459 | $278,553 | 1 |
| Richard Rumsey (former) | CEO | 2018-2019 | $102,159 | $262,830 | 1 |
| Sandy Lombardo (former) | FINANCE DIRECTOR | 2023 | $122,491 | $122,491 | 1 |
| Rich Rumsey (former) | CEO | 2017 | $18,517 | $18,517 | 1 |
Officers and directors, no compensation reported
34 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Mark Thornton | PRESIDENT | 2010-2025 | 3 | $0 reported | 1 |
| John Brooks | VICE PRESIDENT | 2010-2025 | 1 | $0 reported | 1 |
| Patricia Thornton | TREASURER | 2010-2025 | 3 | $0 reported | 1 |
| Michael Lewis | DIRECTOR | 2013-2025 | 1 | $0 reported | 1 |
| Justin Green | DIRECTOR | 2018-2025 | 1 | $0 reported | 1 |
| Bruce March | DIRECTOR | 2022-2025 | 1 | $0 reported | 1 |
| Jennifer Goodwin | SECRETARY | 2019-2025 | 1 | $0 reported | 1 |
| Jennifer Nellany | DIRECTOR | 2023-2025 | 1 | $0 reported | 1 |
| Chris Connery | DIRECTOR | 2011-2025 | 1 | $0 reported | 1 |
| Michael Barron | DIRECTOR | 2025 | 1 | $0 reported | 1 |
| Christopher Connery (former) | DIRECTOR | 2019-2024 | 1 | $0 reported | 1 |
| Thomas Peroulas (former) | DIRECTOR | 2018-2022 | 1 | $0 reported | 1 |
| Amira Yunis (former) | DIRECTOR | 2015-2021 | 1 | $0 reported | 1 |
| Stacey Breidinger (former) | SECRETARY (UNTIL 11/2020) | 2010-2020 | 1 | $0 reported | 1 |
| Robert Goldberg Phd (former) | DIRECTOR (UNTIL 11/2020) | 2018-2020 | 1 | $0 reported | 1 |
| Nina Roket (former) | DIRECTOR (UNTIL 11/2020) | 2018-2020 | 1 | $0 reported | 1 |
| Brad Pruitt (former) | DIRECTOR | 2013-2018 | 1 | $0 reported | 1 |
| Mina Brenneman (former) | DIRECTOR | 2015-2018 | 1 | $0 reported | 1 |
| Patrick Mortimer (former) | DIRECTOR | 2010-2017 | 1 | $0 reported | 1 |
| Bob Goldberg (former) | DIRECTOR | 2014-2017 | 1 | $0 reported | 1 |
| Alexandra Gillespie (former) | DIRECTOR | 2010-2015 | 1 | $0 reported | 1 |
| Sanj Patel (former) | DIRECTOR | 2013-2015 | 1 | $0 reported | 1 |
| Thomas Tobin (former) | DIRECTOR | 2010-2015 | 1 | $0 reported | 1 |
| Anthony Fedorov (former) | DIRECTOR | 2010-2015 | 1 | $0 reported | 1 |
| Thomas Tobinmd (former) | VICE PRESIDENT & TREASURER | 2013-2014 | 1 | $0 reported | 1 |
| Stacey Breideinger (former) | SECRETARY | 2013-2014 | 1 | $0 reported | 1 |
| Gerry Burdo (former) | DIRECTOR | 2013-2014 | 1 | $0 reported | 1 |
| Alexandria Gillespie (former) | DIRECTOR | 2013-2014 | 1 | $0 reported | 1 |
| Rita Saverino Romeo (former) | DIRECTOR | 2011-2014 | 1 | $0 reported | 1 |
| Gary Tomei (former) | DIRECTOR | 2010-2014 | 1 | $0 reported | 1 |
| Candace Sue (former) | Director | 2010-2012 | 1 | $0 reported | 1 |
| Michael Mandell (former) | Director | 2010-2012 | 1 | $0 reported | 1 |
| Marianne Bouldin (former) | Director | 2010-2011 | 1 | $0 reported | 1 |
| Lisa Crocker (former) | Director | 2010-2011 | 1 | $0 reported | 1 |
People by year
2025 · 15 people listed · 5 paid, $834K · 25 employees · 107 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRANDI FELSER | CEO | 40 | $239,104 | $0 | $22,764 | $261,868 | 1 |
| DEAN FROHLICH | DIRECTOR OF SCIENTIFIC AFFAIRS | 40 | $147,273 | $0 | $18,826 | $166,099 | 1 |
| CLAIRE WANG | FINANCE DIRECTOR | 40 | $131,616 | $0 | $17,550 | $149,166 | 1 |
| CHERYL MAYES | DIRECTOR OF OPERATIONS | 40 | $107,976 | $0 | $20,584 | $128,560 | 1 |
| ANNIE BLAKE | NATIONAL DIRECTOR, RTCS | 40 | $109,476 | $0 | $18,775 | $128,251 | 1 |
| MARK THORNTON | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN BROOKS | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GOODWIN | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRUCE MARCH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER NELLANY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL BARRON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2024 · 12 people listed · 3 paid, $531K · 19 employees · 107 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRANDI CLEARY-FELSER | CEO | 40 | $219,241 | $0 | $22,049 | $241,290 | 1 |
| DEAN FROHLICH | DIRECTOR OF SCIENTIFIC AFFAIRS | 40 | $152,541 | $0 | $14,964 | $167,505 | 1 |
| ANNIE BLAKE | NATIONAL DIRECTOR, RTCS | 40 | $104,885 | $0 | $17,335 | $122,220 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRUCE MARCH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GOODWIN | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER NELLANY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 13 people listed · 4 paid, $622K · 13 employees · 207 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRANDI CLEARY-FELSER | CEO | 40 | $208,373 | $0 | $19,850 | $228,223 | 1 |
| DEAN FROHLICH | DIRECTOR, SCIENTIFIC AFFAIRS | 40 | $148,725 | $0 | $7,413 | $156,138 | 1 |
| SANDY LOMBARDO | FINANCE DIRECTOR | 40 | $106,154 | $0 | $16,337 | $122,491 | 1 |
| ANNIE BLAKE | RTCS NATIONAL DIRECTOR | 40 | $100,231 | $0 | $15,271 | $115,502 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRUCE MARCH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GOODWIN | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER NELLANY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2022 · 10 people listed · 1 paid, $224K · 13 employees · 160 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRANDI CLEARY-FELSER | CEO | 40 | $202,503 | $0 | $21,717 | $224,220 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRUCE MARCH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS PEROULAS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GOODWIN | DIRECTOR/SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
2021 · 10 people listed · 1 paid, $193K · 12 employees · 160 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRANDI CLEARY-FELSER | CEO | 40 | $177,188 | $0 | $16,177 | $193,365 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMIRA YUNIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS PEROULAS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GOODWIN | DIRECTOR/SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
2020 · 13 people listed · 1 paid, $191K · 9 employees · 150 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRANDI CLEARY-FELSER | CEO | 40 | $178,547 | $0 | $11,981 | $190,528 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | SECRETARY (UNTIL 11/2020) | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GOLDBERG PHD | DIRECTOR (UNTIL 11/2020) | 1 | $0 | $0 | $0 | $0 | 1 |
| AMIRA YUNIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS PEROULAS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NINA ROKET | DIRECTOR (UNTIL 11/2020) | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GOODWIN | DIRECTOR/SECRETARY (EFF. 12/2020) | 1 | $0 | $0 | $0 | $0 | 1 |
2019 · 14 people listed · 2 paid, $111K · 9 employees · 482 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| RICHARD RUMSEY | CEO | 40 | $94,973 | $0 | $7,186 | $102,159 | 1 |
| BRANDI CLEARY-FELSER | EXECUTIVE DIRECTOR | 40 | $8,750 | $0 | $175 | $8,925 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GOLDBERG PHD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMIRA YUNIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS PEROULAS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NINA ROKET | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GOODWIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2018 · 14 people listed · 1 paid, $161K · 9 employees · 274 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| RICHARD RUMSEY | CEO | 40 | $150,000 | $0 | $10,671 | $160,671 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN GREEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRAD PRUITT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GOLDBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MINA BRENNEMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMIRA YUNIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS PEROULAS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NINA ROKET | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2017 · 13 people listed · 2 paid, $90K · 10 employees · 400 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BERT THOMAS | CEO | 40 | $66,740 | $0 | $4,272 | $71,012 | 1 |
| RICH RUMSEY | CEO | 40 | $17,308 | $0 | $1,209 | $18,517 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | ASSISTANT TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRAD PRUITT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BOB GOLDBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MINA BRENNEMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMIRA YUNIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2016 · 12 people listed · 1 paid, $163K · 7 employees · 350 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BERT THOMAS | CEO | 40 | $152,550 | $0 | $10,735 | $163,285 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | ASSISTANT TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRAD PRUITT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BOB GOLDBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MINA BRENNEMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMIRA YUNIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2015 · 16 people listed · 1 paid, $148K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BERT THOMAS | CEO | 40 | $137,667 | $0 | $10,413 | $148,080 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | ASSISTANT TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRAD PRUITT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BOB GOLDBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MINA BRENNEMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMIRA YUNIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ALEXANDRA GILLESPIE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SANJ PATEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS TOBIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FEDOROV | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2014 · 18 people listed · 2 paid, $179K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BERT THOMAS | CEO BEGAN MAY 2014 | 40 | $82,842 | $0 | $6,676 | $89,518 | 1 |
| ANTHONY FERLENDA | CEO | 40 | $85,130 | $0 | $4,268 | $89,398 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS TOBINMD | VICE PRESIDENT & TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | ASSISTANT TREASURER | 8 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDEINGER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| GERRY BURDO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FEDOROV | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ALEXANDRIA GILLESPIE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SANJ PATEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRAD PRUITT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RITA SAVERINO ROMEO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BOB GOLDBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GARY TOMEI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2013 · 16 people listed · 1 paid, $150K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ANTHONY FERLENDA | CEO | 40 | $127,721 | $0 | $21,830 | $149,551 | 1 |
| MARK THORNTON MD PHD | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS TOBINMD | VICE PRESIDENT & TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| GARY TOMEI ESQ | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | ASSISTANT TREASURER | 8 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDEINGER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| GERRY BURDO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FEDOROV | DIRCETOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ALEXANDRIA GILLESPIE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SANJ PATEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRAD PRUITT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RITA SAVERINO ROMEO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2012 · 15 people listed · 2 paid, $107K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MATTHEW ALSANTE | EXECUTIVE DIRECTOR | 40 | $66,459 | $0 | $0 | $66,459 | 1 |
| ANTHONY F FERLENDA | CEO | 40 | $40,308 | $0 | $0 | $40,308 | 1 |
| RITA SAVERINO ROMEO | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| CANDACE SUE | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL MANDELL | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FEDOROV | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS TOBIN | Treasurer | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ALEXANDRA GILLESPIE | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
| GARY TOMEI ESQ | Vice President | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | Director | 8 | $0 | $0 | $0 | $0 | 1 |
| MARK THORNTON MD PhD | President | 4 | $0 | $0 | $0 | $0 | 1 |
2011 · 16 people listed · 1 paid, $108K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MATTHEW ALSANTE | Exec. Director | 40 | $107,589 | $0 | $0 | $107,589 | 1 |
| MARIANNE BOULDIN | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ALEXANDRA GILLESPIE | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| RITA SAVERINO ROMEO | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS CONNERY | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| CANDACE SUE | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL MANDELL | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FEDOROV | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS TOBIN | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA CROCKER | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| GARY TOMEI ESQ | Vice President | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | Treasurer | 8 | $0 | $0 | $0 | $0 | 1 |
| MARK THORNTON MD PhD | President | 4 | $0 | $0 | $0 | $0 | 1 |
2010 · 14 people listed · 1 paid, $105K · 7 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MATTHEW ALSANTE | Exec. Director | 40 | $104,505 | $0 | $0 | $104,505 | 1 |
| THOMAS TOBIN | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| STACEY BREIDINGER | Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICK MORTIMER | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA THORNTON | Treasurer | 8 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL MANDELL | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| MARK THORNTON MD PhD | President | 4 | $0 | $0 | $0 | $0 | 1 |
| MARIANNE BOULDIN | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA CROCKER | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN SJ BROOKS MD | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| GARY TOMEI ESQ | Vice President | 1 | $0 | $0 | $0 | $0 | 1 |
| CANDACE SUE | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FEDOROV | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ALEXANDRA GILLESPIE | Director | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2025 · 1 contractor · $132K
| Name | Location | Service | Paid |
|---|---|---|---|
| ROSE GROUP PARK AVENUE LLC | NEW YORK, NY | EVENT SPACE RENTAL | $131,798 |
2024 · 1 contractor · $110K
| Name | Location | Service | Paid |
|---|---|---|---|
| ROSE GROUP PARK AVENUE LLC | NEW YORK, NY | EVENT SPACE RENTAL | $109,833 |
2019 · 2 contractors · $232K
| Name | Location | Service | Paid |
|---|---|---|---|
| WORDS DATA AND IMAGES LLC | EARTH CITY, MO | DIRECT MAIL SERVICE | $127,494 |
| POWERED BY PROFESSIONALS | NEW YORK, NY | CONSULTING, MANAGEMENT, AND FUNDRAISING | $104,067 |
2016 · 1 contractor · $124K
| Name | Location | Service | Paid |
|---|---|---|---|
| REGISTRY PARTNERS INC | BURLINGTON, NC | PATIENT REGISTRY SERVICES | $124,179 |
2015 · 1 contractor · $229K
| Name | Location | Service | Paid |
|---|---|---|---|
| REGISTRY PARTNERS INC | BURLINGTON, NC | PATIENT REGISTRY SERVICES | $228,688 |
2014 · 1 contractor · $226K
| Name | Location | Service | Paid |
|---|---|---|---|
| REGISTRY PARTNERS INC | BURLINGTON, NC | PATIENT REGISTRY SERVICES | $225,872 |
2013 · 2 contractors · $295K
| Name | Location | Service | Paid |
|---|---|---|---|
| REGISTRY PARTNERS INC | PATIENT REGISTRY SERVICES | $187,812 | |
| US ONCOLOGY RESEARCH LLC | CONFERENCE PLANNING AND RESEARCH | $106,806 |
2012 · 2 contractors · $368K
| Name | Location | Service | Paid |
|---|---|---|---|
| REGISTRY PARTNERS | BURLINGTON, NC | PATIENT REGISTRY | $281,987 |
| POWERED BY PROFESSIONALS INC | NEW YORK, NY | ANNUAL GALA | $86,400 |
2011 · 2 contractors · $309K
| Name | Location | Service | Paid |
|---|---|---|---|
| REGISTRY PARTNERS | BURLINGTON, NC | PATIENT REGISTRY | $161,907 |
| POWERED BY PROFESSIONALS INC | NEW YORK, NY | ANNUAL GALA | $147,348 |
2010 · 1 contractor · $116K
| Name | Location | Service | Paid |
|---|---|---|---|
| POWERED BY PROFESSIONALS INC | NEW YORK, NY | ANNUAL GALA | $116,352 |
State business registration
- SARCOMA FOUNDATION OF AMERICA, INC. FL, Foreign nonprofit corporation (FORNP), Active, formed 2024-03-21
The same business name in the same state, from the state’s official registry data.
Trademarks
5 US trademarks, 2 live.
- Sarcoma Foundation of America, Inc. 5 marks, MD EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| SFA SARCOMA STORIES | 99256769 | 2025-06-27 | Registered | TRTDXFAP, file of 2026-04-30 |
| SARCOMA STORIES | 98796655 | 2024-10-11 | Registered | TRTYRAP, file of 2026-04-03 |
| CURE SARCOMA | 98796540 | 2024-10-11 | Abandoned | TRTYRAP, file of 2026-04-03 |
| RACE TO CURE SARCOMA | 90853037 | 2021-07-28 | Abandoned | TRCFECO2, file of 2024-03-27 |
| RACE TO CURE SARCOMA | 90853033 | 2021-07-28 | Abandoned | TRCFECO2, file of 2024-03-27 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2011 | $40,000 | 4 |
Issues: Health Issues, Medical/Disease Research/Clinical Labs
Firms hired: FABIANI & COMPANY
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 15 grants to organizations · $1.1M
Listed grants add up to $1,067,408; the return's “grants paid” expense line says $1,239,448. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 11 grants to organizations · $527K
Listed grants add up to $527,035; the return's “grants paid” expense line says $934,210. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 15 grants to organizations · $824K
Listed grants add up to $824,248; the return's “grants paid” expense line says $995,248. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 14 grants to organizations · $709K
Listed grants add up to $709,423; the return's “grants paid” expense line says $1,074,949. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 16 grants to organizations · $974K
Listed grants add up to $973,792; the return's “grants paid” expense line says $1,126,322. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 12 grants to organizations · $599K
Listed grants add up to $598,516; the return's “grants paid” expense line says $848,516. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 21 grants to organizations · $1.8M
Listed grants add up to $1,758,432; the return's “grants paid” expense line says $2,008,432. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 21 grants to organizations · $1.4M
Listed grants add up to $1,353,168; the return's “grants paid” expense line says $1,403,168. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 18 grants to organizations · $933K
2016 · 14 grants to organizations · $749K
2015 · 12 grants to organizations · $768K
2014 · 12 grants to organizations · $894K
2013 · 13 grants to organizations · $991K
2012 · 10 grants to organizations · $662K
2011 · 9 grants to organizations · $548K
Listed grants add up to $548,321; the return's “grants paid” expense line says $598,321. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 9 grants to organizations · $282K
Listed grants add up to $282,500; the return's “grants paid” expense line says $307,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $3,362,208 | $4,303,065 | $10,848,548 | $10,417,871 | $2,825,668 | $0 | $261,868 | 25 | 107 |
| 2024 · Form 990 | ||||||||
| $3,547,902 | $3,570,622 | $11,423,128 | $11,024,320 | $3,185,724 | $70,000 | $241,290 | 19 | 107 |
| 2023 · Form 990 | ||||||||
| $3,709,252 | $3,222,438 | $11,153,810 | $10,505,513 | $3,689,910 | $20,000 | $228,330 | 13 | 207 |
| 2022 · Form 990 | ||||||||
| $3,674,023 | $2,690,137 | $9,805,602 | $9,266,426 | $3,559,687 | $0 | $224,220 | 13 | 160 |
| 2021 · Form 990 | ||||||||
| $3,973,362 | $2,396,561 | $9,642,356 | $9,322,668 | $3,432,529 | $0 | $193,364 | 12 | 160 |
| 2020 · Form 990 | ||||||||
| $2,719,131 | $1,993,762 | $7,850,855 | $7,541,879 | $2,379,199 | $0 | $191,981 | 9 | 150 |
| 2019 · Form 990 | ||||||||
| $3,308,423 | $3,171,547 | $7,375,324 | $6,445,417 | $3,201,729 | $0 | $111,084 | 9 | 482 |
| 2018 · Form 990 | ||||||||
| $2,942,268 | $2,647,890 | $6,491,558 | $5,791,234 | $2,645,653 | $0 | $150,000 | 9 | 274 |
| 2017 · Form 990 | ||||||||
| $2,284,006 | $1,903,735 | $6,368,547 | $5,841,509 | $2,093,169 | $0 | $89,529 | 10 | 400 |
| 2016 · Form 990 | ||||||||
| $2,097,944 | $1,761,851 | $5,682,261 | $5,215,650 | $2,027,706 | $0 | $163,872 | 7 | 350 |
| 2015 · Form 990 | ||||||||
| $1,753,863 | $1,762,208 | $5,094,449 | $4,746,578 | $1,335,557 | $0 | $163,550 | 8 | 50 |
| 2014 · Form 990 | ||||||||
| $3,792,281 | $2,125,797 | $5,395,691 | $4,922,162 | $3,518,296 | $0 | $189,837 | 8 | 50 |
| 2013 · Form 990 | ||||||||
| $2,714,240 | $2,104,428 | $3,505,515 | $3,247,548 | $2,608,202 | $0 | $149,551 | 8 | 50 |
| 2012 · Form 990 | ||||||||
| $2,457,588 | $1,700,357 | $2,836,257 | $2,583,946 | $2,421,291 | $0 | $106,767 | 8 | 50 |
| 2011 · Form 990 | ||||||||
| $1,431,161 | $1,597,418 | $2,014,825 | $1,762,948 | $1,365,483 | $0 | $107,589 | 8 | 50 |
| 2010 · Form 990 | ||||||||
| $1,402,843 | $1,044,139 | $2,016,438 | $1,966,013 | $1,365,250 | $0 | $104,505 | 7 | 50 |
Funders of this organization
144 grantors reported grants to this organization, $4,133,189 in all, tax years 2010 to 2025; the 25 largest shown (all 144). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| JOHN W OBRIEN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “SARCOMA FOUNDATION OF AMERICA” | 2023-2024 | 2 | $570,000 | 2024 | $325,000 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $490,490 | 2024 | $69,430 | show |
| FORGOOD INC | DAF sponsor | Exact | 2013-2018, 2022-2024 | 9 | $483,889 | 2024 | $32,938 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $380,503 | 2025 | $61,188 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2014-2024 | 11 | $372,951 | 2024 | $74,000 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2018-2024 | 7 | $284,537 | 2024 | $76,610 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2015-2018, 2020, 2022-2024 | 9 | $248,849 | 2024 | $5,750 | show |
| UNITED WAY MIAMI INC | DAF sponsor | Exact | 2019, 2021-2022, 2024 | 4 | $112,999 | 2024 | $25,099 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2024 | 5 | $102,000 | 2024 | $32,000 | show |
| TIDES FOUNDATION | DAF sponsor | Exact | 2022 | 1 | $100,000 | 2022 | $100,000 | show |
| PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA | Public charity | Exact | 2015-2017 | 3 | $65,000 | 2017 | $15,000 | show |
| STEVEN VANOVER MEMORIAL RESEARCH & SCHOLARSHIP FUND | Public charity | Exact | 2023 | 1 | $55,000 | 2023 | $55,000 | show |
| MILWAUKEE JEWISH FEDERATION INC | DAF sponsor | Exact | 2020 | 1 | $55,000 | 2020 | $55,000 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2016, 2020-2021, 2023 | 4 | $54,042 | 2023 | $31,500 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2022-2024 | 3 | $53,553 | 2024 | $5,124 | show |
| COMCAST SPECTACOR CHARITIES | Public charity | Exact | 2019 | 1 | $52,420 | 2019 | $52,420 | show |
| GREATER KANSAS CITY COMMUNITY FOUNDATION | DAF sponsor | Exact | 2016-2017 | 2 | $32,430 | 2017 | $12,330 | show |
| WAYNE AND NAN KOCOUREK FOUNDATION | Private foundation | Fuzzy filed as “Sarcoma Foundation of America” | 2021-2025 | 5 | $30,000 | 2025 | $10,000 | show |
| SARCOMA RESEARCH FOUNDATION | Public charity | Exact | 2011 | 1 | $30,000 | 2011 | $30,000 | show |
| MARIN COMMUNITY FOUNDATION | DAF sponsor | Exact | 2016-2017, 2021 | 3 | $29,500 | 2021 | $10,000 | show |
| CHARITIES AID FOUNDATION AMERICA | DAF sponsor | Exact | 2022-2024 | 3 | $26,978 | 2024 | $16,283 | show |
| JEROME B MILLER FAMILY FOUNDATION | Private foundation | Fuzzy filed as “SARCOMA FOUNDATION OF AMERICA” | 2023 | 1 | $25,000 | 2023 | $25,000 | show |
| ALFRED N SANZARI FAMILY FOUNDATIONINC | Private foundation | Fuzzy filed as “Sarcoma Foundation of America” | 2018 | 1 | $25,000 | 2018 | $25,000 | show |
| ILLINOIS PRAIRIE COMMUNITY FOUNDATION INC | DAF sponsor | Exact | 2015-2016 | 2 | $25,000 | 2016 | $15,000 | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | DAF sponsor | Exact | 2013-2016, 2024 | 5 | $20,750 | 2024 | $10,000 | show |
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| FOUNDATION OF PALM SPRINGS UNIFIED SCHOOL DISTRICT | CA | A12 | $1,908,255 | $1,721,874 | SECRETARY | $0 | Same NTEE code A12, revenue within 2x |
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| FOUNDATION FOR THE FLINT CULTURAL CENTER | MI | A12 | $6,114,989 | $1,164,117 | CEO/PRESIDENT | $278,576 | Same NTEE code A12, revenue within 2x |
| BROWNE BOLTON FOUNDATION INC | NY | A12 | $3,307,486 | $142,796 | PRESIDENT | $0 | Same NTEE code A12, revenue within 2x |
| SLOMO AND CINDY SILVIAN FOUNDATION INC | NY | A12 | $5,184,021 | $3,611,546 | PRESIDENT, CHIEF LEGAL OFF | $438,518 | Same NTEE code A12, revenue within 2x |
| OREGON INTERNATIONAL AIRSHOW HILLSBORO INC | OR | A12 | $1,762,511 | $1,982,807 | PRESIDENT (F | $176,110 | Same NTEE code A12, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $4,303,065 spent · pay $1,986,877 · grants $1,239,448 · events $854,151
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,403,011 | $985,823 | $271,834 | $145,354 | 32.6% | |
| Grants to US organizations and governments | $1,067,408 | $1,067,408 | - | - | 24.8% | |
| Fees: other services | $264,679 | $144,145 | $67,570 | $52,964 | 6.2% | |
| Pay: officers, directors, trustees, key employees | $261,868 | $184,001 | $50,737 | $27,130 | 6.1% | |
| Conferences, conventions and meetings | $243,236 | $154,513 | - | $88,723 | 5.7% | |
| Grants outside the US | $147,600 | $147,600 | - | - | 3.4% | |
| Office expenses | $142,440 | $68,705 | $26,837 | $46,898 | 3.3% | |
| Other employee benefits | $137,488 | $96,606 | $26,638 | $14,244 | 3.2% | |
| Payroll taxes | $129,012 | $90,650 | $24,996 | $13,366 | 3.0% | |
| Information technology | $85,490 | $60,069 | $16,564 | $8,857 | 2.0% | |
| Occupancy | $83,326 | $58,549 | $16,144 | $8,633 | 1.9% | |
| Pension plan contributions | $55,498 | $38,996 | $10,752 | $5,750 | 1.3% | |
| Fees: investment management | $46,971 | - | $46,971 | - | 1.1% | |
| Advertising and promotion | $43,407 | $30,500 | $8,410 | $4,497 | 1.0% | |
| Fees: accounting | $34,719 | - | $34,719 | - | 0.8% | |
| Depreciation and depletion | $32,688 | $22,968 | $6,333 | $3,387 | 0.8% | |
| Fees: legal | $27,326 | $11,123 | $16,203 | - | 0.6% | |
| Grants to US individuals | $24,440 | $24,440 | - | - | 0.6% | |
| Other (as described) | SPONSORSHIP | $21,030 | $21,030 | - | - | 0.5% |
| Other (as described) | DUES AND SUBSCRIPTIONS | $15,800 | $15,800 | - | - | 0.4% |
| Other (as described) | REGISTRATION FEES | $12,956 | $9,104 | $2,510 | $1,342 | 0.3% |
| Insurance | $11,585 | $8,140 | $2,245 | $1,200 | 0.3% | |
| Travel | $6,753 | - | $6,753 | - | 0.2% | |
| Other (as described) | MISCELLANEOUS EXPENSES | $4,334 | $4,334 | - | - | 0.1% |
| Fundraising events Event | direct expenses; gross income $567,379 | $610,915 | reported apart | |||
| Total | $4,303,065 | 100% |
2024 · Form 990 · $3,570,622 spent · pay $1,764,175 · grants $934,210 · events $718,472
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,222,624 | $860,131 | $213,674 | $148,819 | 34.2% | |
| Grants to US organizations and governments | $527,057 | $527,057 | - | - | 14.8% | |
| Grants outside the US | $400,000 | $400,000 | - | - | 11.2% | |
| Pay: officers, directors, trustees, key employees | $241,290 | $169,751 | $42,169 | $29,370 | 6.8% | |
| Information technology | $231,688 | $164,589 | $39,552 | $27,547 | 6.5% | |
| Fees: other services | $165,620 | $83,571 | $42,993 | $39,056 | 4.6% | |
| Other employee benefits | $144,065 | $101,351 | $25,178 | $17,536 | 4.0% | |
| Payroll taxes | $107,708 | $75,774 | $18,824 | $13,110 | 3.0% | |
| Office expenses | $91,313 | $61,662 | $13,797 | $15,854 | 2.6% | |
| Conferences, conventions and meetings | $90,820 | $62,948 | $321 | $27,551 | 2.5% | |
| Occupancy | $82,648 | $58,144 | $14,444 | $10,060 | 2.3% | |
| Pension plan contributions | $48,488 | $34,112 | $8,474 | $5,902 | 1.4% | |
| Fees: accounting | $47,483 | - | $47,483 | - | 1.3% | |
| Fees: investment management | $43,349 | - | $43,349 | - | 1.2% | |
| Advertising and promotion | $32,600 | $23,586 | $5,313 | $3,701 | 0.9% | |
| Depreciation and depletion | $22,661 | $15,942 | $3,961 | $2,758 | 0.6% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $15,445 | $15,445 | - | - | 0.4% |
| Other (as described) | REGISTRATION FEES | $12,925 | $9,093 | $2,259 | $1,573 | 0.4% |
| Insurance | $11,617 | $8,173 | $2,030 | $1,414 | 0.3% | |
| Other (as described) | SPONSORSHIP | $10,000 | $10,000 | - | - | 0.3% |
| Fees: legal | $9,465 | $6,659 | $1,654 | $1,152 | 0.3% | |
| Grants to US individuals | $7,153 | $7,153 | - | - | 0.2% | |
| Travel | $3,685 | - | $3,685 | - | 0.1% | |
| Other (as described) | MISCELLANEOUS | $918 | $647 | $159 | $112 | 0.0% |
| Fundraising events Event | direct expenses; gross income $438,667 | $627,652 | reported apart | |||
| Total | $3,570,622 | 100% |
2023 · Form 990 · $3,222,438 spent · pay $1,601,379 · grants $995,248 · events $655,860
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,113,650 | $703,033 | $282,275 | $128,342 | 34.6% | |
| Grants to US organizations and governments | $826,748 | $826,748 | - | - | 25.7% | |
| Pay: officers, directors, trustees, key employees | $228,330 | $182,578 | $22,822 | $22,930 | 7.1% | |
| Grants outside the US | $150,000 | $150,000 | - | - | 4.7% | |
| Office expenses | $128,090 | $82,191 | $26,601 | $19,298 | 4.0% | |
| Other employee benefits | $116,197 | $74,817 | $28,121 | $13,259 | 3.6% | |
| Payroll taxes | $99,653 | $65,560 | $22,848 | $11,245 | 3.1% | |
| Conferences, conventions and meetings | $83,976 | $31,296 | - | $52,680 | 2.6% | |
| Occupancy | $83,827 | $55,148 | $19,220 | $9,459 | 2.6% | |
| Fees: other services | $78,180 | $16,800 | $17,435 | $43,945 | 2.4% | |
| Information technology | $49,810 | $34,478 | $10,275 | $5,057 | 1.5% | |
| Pension plan contributions | $43,549 | $27,527 | $11,096 | $4,926 | 1.4% | |
| Fees: investment management | $34,579 | - | $34,579 | - | 1.1% | |
| Fees: accounting | $33,911 | - | $33,911 | - | 1.1% | |
| Advertising and promotion | $30,081 | $19,790 | $6,897 | $3,394 | 0.9% | |
| Other (as described) | MISCELLANEOUS | $28,374 | $27,219 | $774 | $381 | 0.9% |
| Depreciation and depletion | $19,759 | $12,999 | $4,530 | $2,230 | 0.6% | |
| Grants to US individuals | $18,500 | $18,500 | - | - | 0.6% | |
| Other (as described) | REGISTRATION FEES | $14,415 | $9,483 | $3,305 | $1,627 | 0.4% |
| Travel | $12,502 | $12,502 | - | - | 0.4% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $12,492 | $12,492 | - | - | 0.4% |
| Insurance | $10,815 | $7,115 | $2,480 | $1,220 | 0.3% | |
| Other (as described) | SPONSORSHIP | $5,000 | $5,000 | - | - | 0.2% |
| Fundraising events Event | direct expenses; gross income $378,834 | $571,884 | reported apart | |||
| Total | $3,222,438 | 100% |
2022 · Form 990 · $2,690,137 spent · pay $1,126,705 · grants $1,074,949 · events $428,544
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $732,997 | $469,856 | $178,532 | $84,609 | 27.2% | |
| Grants to US organizations and governments | $724,949 | $724,949 | - | - | 26.9% | |
| Grants outside the US | $350,000 | $350,000 | - | - | 13.0% | |
| Pay: officers, directors, trustees, key employees | $224,220 | $179,376 | $22,422 | $22,422 | 8.3% | |
| Occupancy | $84,851 | $57,310 | $18,030 | $9,511 | 3.2% | |
| Other employee benefits | $73,645 | $47,987 | $17,233 | $8,425 | 2.7% | |
| Payroll taxes | $66,629 | $45,003 | $14,158 | $7,468 | 2.5% | |
| Fees: other services | $58,677 | $34,460 | $24,217 | - | 2.2% | |
| Office expenses | $47,269 | $31,028 | $10,068 | $6,173 | 1.8% | |
| Information technology | $42,349 | $42,349 | - | - | 1.6% | |
| Fees: investment management | $40,314 | - | $40,314 | - | 1.5% | |
| Advertising and promotion | $30,420 | $20,546 | $6,464 | $3,410 | 1.1% | |
| Pension plan contributions | $29,214 | $18,781 | $7,066 | $3,367 | 1.1% | |
| Fees: accounting | $28,836 | - | $28,836 | - | 1.1% | |
| Fees: professional fundraisers | $21,973 | - | - | $21,973 | 0.8% | |
| Other (as described) | TELEPHONE AND INTERNET | $21,322 | $18,372 | $1,931 | $1,019 | 0.8% |
| Travel | $21,241 | $21,241 | - | - | 0.8% | |
| Other (as described) | REPAIRS AND MAINTENANCE | $19,459 | $13,143 | $4,135 | $2,181 | 0.7% |
| Depreciation and depletion | $17,475 | $11,803 | $3,713 | $1,959 | 0.6% | |
| Other (as described) | REGISTRATION FEES | $13,835 | $9,344 | $2,940 | $1,551 | 0.5% |
| Other (as described) | PRINTING AND REPRODUCTI | $13,813 | $6,922 | $3,118 | $3,773 | 0.5% |
| Conferences, conventions and meetings | $12,350 | $12,350 | - | - | 0.5% | |
| Insurance | $9,378 | $6,334 | $1,993 | $1,051 | 0.3% | |
| All other expenses | $4,921 | $4,446 | $311 | $164 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $346,957 | $416,194 | reported apart | |||
| Total | $2,690,137 | 100% |
2021 · Form 990 · $2,396,561 spent · pay $838,782 · grants $1,126,322 · events $150,040
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $976,322 | $976,322 | - | - | 40.7% | |
| Other salaries and wages | $526,074 | $347,560 | $119,244 | $59,270 | 22.0% | |
| Pay: officers, directors, trustees, key employees | $193,364 | $154,692 | $19,336 | $19,336 | 8.1% | |
| Grants outside the US | $150,000 | $150,000 | - | - | 6.3% | |
| Occupancy | $77,062 | $53,618 | $15,008 | $8,436 | 3.2% | |
| Office expenses | $62,106 | $43,163 | $12,555 | $6,388 | 2.6% | |
| Payroll taxes | $57,841 | $40,244 | $11,265 | $6,332 | 2.4% | |
| Fees: other services | $56,333 | $32,861 | $23,472 | - | 2.4% | |
| Information technology | $43,992 | $43,992 | - | - | 1.8% | |
| Other employee benefits | $40,745 | $27,403 | $8,795 | $4,547 | 1.7% | |
| Fees: investment management | $38,160 | - | $38,160 | - | 1.6% | |
| Fees: accounting | $28,598 | - | $28,598 | - | 1.2% | |
| Other (as described) | TELEPHONE AND INTERNET | $21,230 | $18,493 | $1,752 | $985 | 0.9% |
| Pension plan contributions | $20,758 | $13,704 | $4,714 | $2,340 | 0.9% | |
| Fees: professional fundraisers | $19,998 | - | - | $19,998 | 0.8% | |
| Depreciation and depletion | $17,035 | $11,852 | $3,318 | $1,865 | 0.7% | |
| Other (as described) | REGISTRATION FEES | $14,036 | $9,765 | $2,734 | $1,537 | 0.6% |
| Other (as described) | PRINTING AND REPRODUCTI | $13,462 | $9,252 | $3,531 | $679 | 0.6% |
| All other expenses | $12,473 | $8,808 | $2,347 | $1,318 | 0.5% | |
| Other (as described) | REPAIRS AND MAINTENANCE | $7,560 | $5,260 | $1,472 | $828 | 0.3% |
| Insurance | $6,843 | $4,761 | $1,333 | $749 | 0.3% | |
| Fees: legal | $6,084 | $6,084 | - | - | 0.3% | |
| Travel | $5,820 | $5,820 | - | - | 0.2% | |
| Conferences, conventions and meetings | $665 | $665 | - | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $270,951 | $149,375 | reported apart | |||
| Total | $2,396,561 | 100% |
2020 · Form 990 · $1,993,762 spent · pay $659,107 · grants $848,516 · events $109,965
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $598,516 | $598,516 | - | - | 30.0% | |
| Other salaries and wages | $382,425 | $240,262 | $100,287 | $41,876 | 19.2% | |
| Grants outside the US | $250,000 | $250,000 | - | - | 12.5% | |
| Pay: officers, directors, trustees, key employees | $191,981 | $153,585 | $38,396 | - | 9.6% | |
| Fees: other services | $126,737 | $46,518 | $80,219 | - | 6.4% | |
| Occupancy | $85,084 | $58,131 | $20,618 | $6,335 | 4.3% | |
| Information technology | $52,278 | $52,278 | - | - | 2.6% | |
| Payroll taxes | $43,906 | $29,998 | $10,639 | $3,269 | 2.2% | |
| Fees: professional fundraisers | $35,750 | - | - | $35,750 | 1.8% | |
| Fees: investment management | $34,254 | - | $34,254 | - | 1.7% | |
| Other employee benefits | $33,506 | $21,913 | $8,474 | $3,119 | 1.7% | |
| Office expenses | $30,756 | $20,693 | $7,123 | $2,940 | 1.5% | |
| All other expenses | $24,171 | $13,602 | $7,860 | $2,709 | 1.2% | |
| Other (as described) | TELEPHONE AND INTERNET | $21,053 | $6,922 | $13,377 | $754 | 1.1% |
| Other (as described) | PROMOTIONAL MATERIALS | $19,986 | $13,655 | $4,843 | $1,488 | 1.0% |
| Depreciation and depletion | $17,834 | $12,185 | $4,321 | $1,328 | 0.9% | |
| Other (as described) | REGISTRATION FEES | $14,039 | $9,592 | $3,402 | $1,045 | 0.7% |
| Other (as described) | DUES AND SUBSCRIPTIONS | $13,018 | $13,018 | - | - | 0.7% |
| Insurance | $7,672 | $5,242 | $1,859 | $571 | 0.4% | |
| Pension plan contributions | $7,289 | $4,559 | $1,919 | $811 | 0.4% | |
| Travel | $2,718 | $2,718 | - | - | 0.1% | |
| Conferences, conventions and meetings | $789 | $789 | - | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $266,795 | $109,176 | reported apart | |||
| Total | $1,993,762 | 100% |
2019 · Form 990 · $3,171,547 spent · pay $531,919 · grants $2,008,432 · events $612,669
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,758,432 | $1,758,432 | - | - | 55.4% | |
| Other salaries and wages | $355,322 | $226,130 | $92,587 | $36,605 | 11.2% | |
| Grants outside the US | $250,000 | $250,000 | - | - | 7.9% | |
| Fees: other services | $155,665 | $26,453 | $128,136 | $1,076 | 4.9% | |
| Pay: officers, directors, trustees, key employees | $111,084 | $77,323 | $22,848 | $10,913 | 3.5% | |
| Other (as described) | PRINTING AND REPRODUCTI | $97,829 | $49,839 | $1,497 | $46,493 | 3.1% |
| Fees: professional fundraisers | $62,440 | - | - | $62,440 | 2.0% | |
| All other expenses | $61,839 | $27,447 | $32,031 | $2,361 | 1.9% | |
| Occupancy | $56,700 | $36,899 | $14,106 | $5,695 | 1.8% | |
| Office expenses | $48,279 | $21,226 | $18,169 | $8,884 | 1.5% | |
| Other (as described) | SOFTWARE | $42,753 | $15,034 | $5,017 | $22,702 | 1.3% |
| Payroll taxes | $38,750 | $25,218 | $9,640 | $3,892 | 1.2% | |
| Other (as described) | PROMOTIONAL MATERIALS | $28,168 | $13,577 | $1,141 | $13,450 | 0.9% |
| Other (as described) | TELEPHONE AND INTERNET | $26,333 | $20,520 | $4,141 | $1,672 | 0.8% |
| Other employee benefits | $20,111 | $12,828 | $5,261 | $2,022 | 0.6% | |
| Travel | $19,462 | $15,918 | $1,201 | $2,343 | 0.6% | |
| Conferences, conventions and meetings | $13,378 | $10,667 | $1,413 | $1,298 | 0.4% | |
| Depreciation and depletion | $11,971 | $7,790 | $2,979 | $1,202 | 0.4% | |
| Pension plan contributions | $6,652 | $4,227 | $1,739 | $686 | 0.2% | |
| Insurance | $6,379 | $4,151 | $1,587 | $641 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $573,280 | $599,291 | reported apart | |||
| Total | $3,171,547 | 100% |
2018 · Form 990 · $2,647,890 spent · pay $507,864 · grants $1,403,168 · events $558,368
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,353,168 | $1,353,168 | - | - | 51.1% | |
| Other salaries and wages | $289,040 | $169,873 | $84,721 | $34,446 | 10.9% | |
| Fees: management | $208,619 | $130,847 | $77,772 | - | 7.9% | |
| Pay: officers, directors, trustees, key employees | $150,000 | $105,000 | $30,000 | $15,000 | 5.7% | |
| Other (as described) | PRINTING AND REPRODUCTI | $74,251 | $3,930 | $2,392 | $67,929 | 2.8% |
| Other (as described) | TELEPHONE AND INTERNET | $63,576 | $55,806 | $5,430 | $2,340 | 2.4% |
| Office expenses | $51,054 | $36,605 | $10,097 | $4,352 | 1.9% | |
| Grants outside the US | $50,000 | $50,000 | - | - | 1.9% | |
| Fees: professional fundraisers | $46,805 | - | - | $46,805 | 1.8% | |
| Occupancy | $45,030 | $28,192 | $11,767 | $5,071 | 1.7% | |
| All other expenses | $44,242 | $34,734 | $7,100 | $2,408 | 1.7% | |
| Fees: other services | $39,336 | $2,873 | $1,199 | $35,264 | 1.5% | |
| Payroll taxes | $34,976 | $21,898 | $9,139 | $3,939 | 1.3% | |
| Other (as described) | SOFTWARE | $32,088 | $20,090 | $8,384 | $3,614 | 1.2% |
| Travel | $31,616 | $22,001 | $9,615 | - | 1.2% | |
| Depreciation and depletion | $30,028 | $18,800 | $7,846 | $3,382 | 1.1% | |
| Other employee benefits | $26,505 | $16,594 | $6,926 | $2,985 | 1.0% | |
| Other (as described) | PROMOTIONAL MATERIALS | $25,150 | $15,746 | $6,572 | $2,832 | 0.9% |
| Fees: accounting | $20,695 | - | $20,695 | - | 0.8% | |
| Conferences, conventions and meetings | $17,096 | $4,440 | $12,656 | - | 0.6% | |
| Pension plan contributions | $7,343 | $4,597 | $1,919 | $827 | 0.3% | |
| Insurance | $6,798 | $4,256 | $1,776 | $766 | 0.3% | |
| Fees: legal | $474 | - | $474 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $552,545 | $541,272 | reported apart | |||
| Total | $2,647,890 | 100% |
2017 · Form 990 · $1,903,735 spent · pay $550,427 · grants $937,614 · events $381,902
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $937,614 | $937,614 | - | - | 49.3% | |
| Other salaries and wages | $393,972 | $263,674 | $77,990 | $52,308 | 20.7% | |
| Pay: officers, directors, trustees, key employees | $89,529 | $60,514 | $20,062 | $8,953 | 4.7% | |
| Other (as described) | TELEPHONE AND INTERNET | $60,679 | $56,801 | $2,383 | $1,495 | 3.2% |
| Fees: professional fundraisers | $46,800 | - | - | $46,800 | 2.5% | |
| Occupancy | $45,119 | $30,253 | $9,135 | $5,731 | 2.4% | |
| Office expenses | $41,907 | $31,760 | $6,235 | $3,912 | 2.2% | |
| All other expenses | $40,417 | $13,714 | $24,352 | $2,351 | 2.1% | |
| Payroll taxes | $39,534 | $26,509 | $8,004 | $5,021 | 2.1% | |
| Travel | $36,396 | $2,857 | $33,539 | - | 1.9% | |
| Fees: management | $31,200 | $19,500 | $11,700 | - | 1.6% | |
| Other (as described) | REGISTRY | $27,558 | $27,558 | - | - | 1.4% |
| Other employee benefits | $19,900 | $13,538 | $3,724 | $2,638 | 1.0% | |
| Fees: accounting | $19,129 | - | $19,129 | - | 1.0% | |
| Other (as described) | SOFTWARE | $18,132 | $12,158 | $3,671 | $2,303 | 1.0% |
| Other (as described) | PROMOTIONAL MATERIALS | $18,023 | $12,085 | $3,649 | $2,289 | 0.9% |
| Depreciation and depletion | $8,219 | $5,511 | $1,664 | $1,044 | 0.4% | |
| Pension plan contributions | $7,492 | $4,843 | $1,660 | $989 | 0.4% | |
| Conferences, conventions and meetings | $7,068 | $1,148 | $5,920 | - | 0.4% | |
| Insurance | $6,708 | $4,498 | $1,358 | $852 | 0.4% | |
| Fees: other services | $4,603 | $3,086 | $932 | $585 | 0.2% | |
| Fees: legal | $3,736 | - | $3,736 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $304,357 | $374,834 | reported apart | |||
| Total | $1,903,735 | 100% |
2016 · Form 990 · $1,761,851 spent · pay $533,915 · grants $749,312 · events $367,812
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $749,312 | $749,312 | - | - | 42.5% | |
| Other salaries and wages | $306,223 | $173,456 | $73,757 | $59,010 | 17.4% | |
| Pay: officers, directors, trustees, key employees | $163,872 | $131,098 | $16,387 | $16,387 | 9.3% | |
| Other (as described) | REGISTRY | $97,439 | $97,439 | - | - | 5.5% |
| Other (as described) | TELEPHONE AND INTERNET | $51,878 | $24,412 | $13,328 | $14,138 | 2.9% |
| Fees: professional fundraisers | $49,320 | - | - | $49,320 | 2.8% | |
| All other expenses | $44,565 | $29,737 | $5,507 | $9,321 | 2.5% | |
| Office expenses | $40,550 | $29,451 | $5,661 | $5,438 | 2.3% | |
| Occupancy | $37,321 | $24,046 | $7,237 | $6,038 | 2.1% | |
| Payroll taxes | $34,658 | $22,330 | $6,720 | $5,608 | 2.0% | |
| Fees: management | $32,880 | $20,550 | $12,330 | - | 1.9% | |
| Other (as described) | PRINTING AND REPRODUCTI | $29,670 | $14,063 | $1,911 | $13,696 | 1.7% |
| Travel | $29,204 | $24,655 | $1,881 | $2,668 | 1.7% | |
| Other employee benefits | $23,741 | $14,118 | $5,314 | $4,309 | 1.3% | |
| Fees: accounting | $19,986 | - | $19,986 | - | 1.1% | |
| Other (as described) | SOFTWARE | $17,661 | $14,688 | $1,620 | $1,353 | 1.0% |
| Depreciation and depletion | $6,995 | $4,507 | $1,356 | $1,132 | 0.4% | |
| Insurance | $6,584 | $4,242 | $1,277 | $1,065 | 0.4% | |
| Conferences, conventions and meetings | $5,715 | $3,935 | $865 | $915 | 0.3% | |
| Pension plan contributions | $5,421 | $3,000 | $1,348 | $1,073 | 0.3% | |
| Fees: legal | $4,577 | - | $4,577 | - | 0.3% | |
| Fees: other services | $4,279 | $2,757 | $830 | $692 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $249,317 | $362,097 | reported apart | |||
| Total | $1,761,851 | 100% |
2015 · Form 990 · $1,762,208 spent · pay $454,853 · grants $768,444 · events $227,298
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $768,444 | $768,444 | - | - | 43.6% | |
| Other salaries and wages | $237,097 | $126,945 | $78,344 | $31,808 | 13.5% | |
| Other (as described) | REGISTRY | $233,128 | $233,128 | - | - | 13.2% |
| Pay: officers, directors, trustees, key employees | $163,550 | $114,485 | $16,355 | $32,710 | 9.3% | |
| Fees: professional fundraisers | $51,840 | - | - | $51,840 | 2.9% | |
| All other expenses | $43,527 | $27,925 | $7,122 | $8,480 | 2.5% | |
| Occupancy | $35,638 | $21,383 | $8,553 | $5,702 | 2.0% | |
| Fees: management | $34,560 | $21,600 | $12,960 | - | 2.0% | |
| Office expenses | $29,046 | $17,428 | $6,971 | $4,647 | 1.6% | |
| Payroll taxes | $28,547 | $17,128 | $6,851 | $4,568 | 1.6% | |
| Other (as described) | TELEPHONE AND INTERNET | $24,597 | $7,183 | $10,896 | $6,518 | 1.4% |
| Other employee benefits | $21,303 | $12,057 | $6,127 | $3,119 | 1.2% | |
| Travel | $19,929 | $16,258 | $1,729 | $1,942 | 1.1% | |
| Fees: accounting | $17,877 | - | $17,877 | - | 1.0% | |
| Other (as described) | WEBSITE | $16,250 | $16,250 | - | - | 0.9% |
| Other (as described) | PROMOTIONAL MATERIALS | $13,766 | $11,702 | $84 | $1,980 | 0.8% |
| Insurance | $6,172 | $3,703 | $1,481 | $988 | 0.4% | |
| Depreciation and depletion | $5,160 | $3,096 | $1,238 | $826 | 0.3% | |
| Pension plan contributions | $4,356 | $2,297 | $1,488 | $571 | 0.2% | |
| Fees: other services | $4,024 | $2,374 | $1,046 | $604 | 0.2% | |
| Conferences, conventions and meetings | $2,906 | $1,744 | $697 | $465 | 0.2% | |
| Fees: legal | $491 | - | $491 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $363,168 | $224,392 | reported apart | |||
| Total | $1,762,208 | 100% |
2014 · Form 990 · $2,125,797 spent · pay $584,302 · grants $893,862 · events $357,315
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $893,862 | $893,862 | - | - | 42.0% | |
| Other salaries and wages | $322,032 | $195,892 | $75,821 | $50,319 | 15.1% | |
| Other (as described) | REGISTRY | $202,393 | $202,393 | - | - | 9.5% |
| Pay: officers, directors, trustees, key employees | $189,837 | $105,820 | $57,649 | $26,368 | 8.9% | |
| Fees: other services | $74,681 | $72,967 | $1,087 | $627 | 3.5% | |
| All other expenses | $50,827 | $28,707 | $9,755 | $12,365 | 2.4% | |
| Fees: professional fundraisers | $40,770 | - | - | $40,770 | 1.9% | |
| Payroll taxes | $39,635 | $23,385 | $10,305 | $5,945 | 1.9% | |
| Fees: management | $35,430 | $22,350 | $13,080 | - | 1.7% | |
| Occupancy | $34,397 | $20,294 | $8,943 | $5,160 | 1.6% | |
| Other (as described) | TELEPHONE AND INTERNET | $32,463 | $19,153 | $8,440 | $4,870 | 1.5% |
| Office expenses | $31,160 | $18,384 | $8,102 | $4,674 | 1.5% | |
| Other (as described) | GSK STUDY | $30,786 | $30,786 | - | - | 1.4% |
| Fees: legal | $29,683 | $11,648 | $18,035 | - | 1.4% | |
| Other employee benefits | $27,542 | $16,313 | $7,092 | $4,137 | 1.3% | |
| Travel | $25,070 | $21,684 | $2,007 | $1,379 | 1.2% | |
| Fees: accounting | $23,354 | - | $23,354 | - | 1.1% | |
| Other (as described) | PROMOTIONAL MATERIALS | $22,337 | $15,455 | $2,034 | $4,848 | 1.1% |
| Pension plan contributions | $5,256 | $3,328 | $1,052 | $876 | 0.2% | |
| Depreciation and depletion | $5,197 | $3,066 | $1,351 | $780 | 0.2% | |
| Insurance | $5,082 | $2,998 | $1,322 | $762 | 0.2% | |
| Conferences, conventions and meetings | $4,003 | $2,362 | $1,041 | $600 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $513,459 | $353,312 | reported apart | |||
| Total | $2,125,797 | 100% |
2013 · Form 990 · $2,104,428 spent · pay $526,929 · grants $991,200 · events $496,978
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $991,200 | $991,200 | - | - | 47.1% | |
| Other salaries and wages | $307,669 | $152,194 | $69,839 | $85,636 | 14.6% | |
| Other (as described) | REGISTRY | $180,341 | $180,341 | - | - | 8.6% |
| Pay: officers, directors, trustees, key employees | $149,551 | $47,856 | $92,722 | $8,973 | 7.1% | |
| Conferences, conventions and meetings | $118,015 | $112,046 | $3,731 | $2,238 | 5.6% | |
| Fees: professional fundraisers | $40,770 | - | - | $40,770 | 1.9% | |
| Fees: management | $37,930 | $22,350 | $13,080 | $2,500 | 1.8% | |
| Travel | $35,965 | $34,034 | $1,207 | $724 | 1.7% | |
| Occupancy | $34,018 | $14,968 | $11,906 | $7,144 | 1.6% | |
| Payroll taxes | $32,046 | $14,100 | $11,216 | $6,730 | 1.5% | |
| Other employee benefits | $32,012 | $14,889 | $9,397 | $7,726 | 1.5% | |
| Office expenses | $27,303 | $12,013 | $9,556 | $5,734 | 1.3% | |
| All other expenses | $25,108 | $13,722 | $7,116 | $4,270 | 1.2% | |
| Other (as described) | PROMOTIONAL MATERIALS | $18,508 | $9,314 | $1,474 | $7,720 | 0.9% |
| Fees: investment management | $16,752 | - | $16,752 | - | 0.8% | |
| Other (as described) | TELEPHONE AND INTERNET | $13,347 | $5,873 | $4,671 | $2,803 | 0.6% |
| Other (as described) | PRINTING AND REPRODUCTI | $13,082 | $5,756 | $4,579 | $2,747 | 0.6% |
| Fees: accounting | $11,820 | - | $11,820 | - | 0.6% | |
| Insurance | $5,811 | $2,557 | $2,034 | $1,220 | 0.3% | |
| Pension plan contributions | $5,651 | $2,810 | $1,251 | $1,590 | 0.3% | |
| Depreciation and depletion | $5,108 | $2,248 | $1,787 | $1,073 | 0.2% | |
| Fees: other services | $2,421 | - | $2,421 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $423,403 | $378,963 | reported apart | |||
| Total | $2,104,428 | 100% |
2012 · Form 990 · $1,700,357 spent · pay $451,802 · grants $663,078 · events $326,632
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $663,078 | $663,078 | - | - | 39.0% | |
| Other (as described) | PATIENT REGISTRY | $282,029 | $282,029 | - | - | 16.6% |
| Other salaries and wages | $261,081 | $66,684 | $73,920 | $120,477 | 15.4% | |
| Pay: officers, directors, trustees, key employees | $106,767 | $57,802 | $30,337 | $18,628 | 6.3% | |
| Fees: professional fundraisers | $86,400 | - | - | $86,400 | 5.1% | |
| All other expenses | $47,667 | $14,817 | $18,930 | $13,920 | 2.8% | |
| Other employee benefits | $47,389 | $16,112 | $13,269 | $18,008 | 2.8% | |
| Occupancy | $31,709 | - | $31,709 | - | 1.9% | |
| Payroll taxes | $29,810 | $10,135 | $8,347 | $11,328 | 1.8% | |
| Travel | $25,176 | $16,648 | $1,451 | $7,077 | 1.5% | |
| Other (as described) | ADVERTISING & MARKETING | $24,508 | $8,193 | - | $16,315 | 1.4% |
| Other (as described) | Printing and Publications | $16,459 | $7,811 | $672 | $7,976 | 1.0% |
| Fees: investment management | $13,992 | - | $13,992 | - | 0.8% | |
| Other (as described) | Postage and Shipping | $10,742 | $4,306 | $1,752 | $4,684 | 0.6% |
| Fees: accounting | $10,480 | - | $10,480 | - | 0.6% | |
| Information technology | $9,860 | $2,239 | $7,358 | $263 | 0.6% | |
| Conferences, conventions and meetings | $7,211 | $4,583 | $2,628 | - | 0.4% | |
| Pension plan contributions | $6,755 | $2,224 | $2,046 | $2,485 | 0.4% | |
| Depreciation and depletion | $6,274 | - | $6,274 | - | 0.4% | |
| Office expenses | $5,915 | $752 | $5,163 | - | 0.3% | |
| Insurance | $5,805 | - | $5,805 | - | 0.3% | |
| Fees: legal | $1,250 | - | $1,250 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $319,421 | reported apart | |||
| Total | $1,700,357 | 100% |
2011 · Form 990 · $1,597,418 spent · pay $427,842 · grants $598,321 · events $656,562
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $548,321 | $548,321 | - | - | 34.3% | |
| Other salaries and wages | $229,751 | $55,140 | $71,223 | $103,388 | 14.4% | |
| Other (as described) | PATIENT REGISTRY | $184,936 | $184,936 | - | - | 11.6% |
| Fees: professional fundraisers | $147,348 | - | - | $147,348 | 9.2% | |
| Pay: officers, directors, trustees, key employees | $107,589 | $91,451 | $5,379 | $10,759 | 6.7% | |
| Fees: lobbying | $60,000 | $60,000 | - | - | 3.8% | |
| Other employee benefits | $57,048 | $24,531 | $12,550 | $19,967 | 3.6% | |
| Grants outside the US | $50,000 | $50,000 | - | - | 3.1% | |
| All other expenses | $36,839 | $10,403 | $23,906 | $2,530 | 2.3% | |
| Payroll taxes | $26,751 | $11,503 | $5,885 | $9,363 | 1.7% | |
| Occupancy | $20,809 | - | $20,809 | - | 1.3% | |
| Travel | $17,984 | $11,381 | $2,323 | $4,280 | 1.1% | |
| Information technology | $15,202 | $718 | $6,023 | $8,461 | 1.0% | |
| Other (as described) | Printing and Publications | $14,936 | $5,607 | $639 | $8,690 | 0.9% |
| Fees: investment management | $11,642 | - | $11,642 | - | 0.7% | |
| Other (as described) | Postage and Shipping | $9,565 | $3,359 | $2,597 | $3,609 | 0.6% |
| Conferences, conventions and meetings | $9,097 | $7,038 | $1,148 | $911 | 0.6% | |
| Other (as described) | Marketing | $7,027 | $2,564 | - | $4,463 | 0.4% |
| Other (as described) | BANK & CREDIT CARD CHARGES | $6,874 | - | $6,874 | - | 0.4% |
| Fees: accounting | $6,780 | - | $6,780 | - | 0.4% | |
| Pension plan contributions | $6,703 | $2,882 | $1,475 | $2,346 | 0.4% | |
| Office expenses | $5,655 | $600 | $4,385 | $670 | 0.4% | |
| Insurance | $5,271 | - | $5,271 | - | 0.3% | |
| Depreciation and depletion | $4,436 | - | $4,436 | - | 0.3% | |
| Advertising and promotion | $3,956 | - | - | $3,956 | 0.2% | |
| Fees: other services | $2,898 | - | $2,898 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $647,465 | reported apart | |||
| Total | $1,597,418 | 100% |
2010 · Form 990 · $1,044,139 spent · pay $335,239 · grants $307,500 · events $304,464
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $282,500 | $282,500 | - | - | 27.1% | |
| Other salaries and wages | $169,941 | $27,700 | $72,999 | $69,242 | 16.3% | |
| Other (as described) | PATIENT REGISTRY | $127,205 | $127,205 | - | - | 12.2% |
| Fees: professional fundraisers | $116,352 | - | - | $116,352 | 11.1% | |
| Pay: officers, directors, trustees, key employees | $104,505 | $88,830 | $5,225 | $10,450 | 10.0% | |
| Other employee benefits | $35,451 | $17,016 | $9,572 | $8,863 | 3.4% | |
| All other expenses | $33,869 | - | $30,793 | $3,076 | 3.2% | |
| Grants outside the US | $25,000 | $25,000 | - | - | 2.4% | |
| Occupancy | $20,431 | - | $20,431 | - | 2.0% | |
| Payroll taxes | $20,373 | $9,779 | $5,501 | $5,093 | 2.0% | |
| Other (as described) | Printing and Publications | $13,219 | $5,578 | $1,606 | $6,035 | 1.3% |
| Travel | $11,372 | $50 | $7,209 | $4,113 | 1.1% | |
| Other (as described) | Marketing | $10,685 | $2,592 | $690 | $7,403 | 1.0% |
| Other (as described) | MEETING EXPENSES - CLINICAL TR | $10,083 | $10,083 | - | - | 1.0% |
| Information technology | $9,236 | $660 | $7,101 | $1,475 | 0.9% | |
| Fees: investment management | $7,869 | - | $7,869 | - | 0.8% | |
| Other (as described) | Postage and Shipping | $7,638 | $2,480 | $2,369 | $2,789 | 0.7% |
| Fees: other services | $7,361 | - | $7,361 | - | 0.7% | |
| Fees: accounting | $6,800 | - | $6,800 | - | 0.7% | |
| Pension plan contributions | $4,969 | $2,385 | $1,342 | $1,242 | 0.5% | |
| Insurance | $4,894 | - | $4,894 | - | 0.5% | |
| Depreciation and depletion | $4,766 | - | $4,766 | - | 0.5% | |
| Conferences, conventions and meetings | $4,631 | - | $3,911 | $720 | 0.4% | |
| Office expenses | $3,452 | $20 | $3,432 | - | 0.3% | |
| Interest | $1,537 | - | $1,537 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $299,833 | reported apart | |||
| Total | $1,044,139 | 100% |
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