ORGANIC ACIDEMIA ASSOCIATION CORPORATION

Cite this

Plain text ORGANIC ACIDEMIA ASSOCIATION CORPORATION. furp.org, nonprofit organization profile, tax years 2010–2025. https://furp.org/org/organic-acidemia-association-corporation-481038050. Retrieved 2026-11-01.

APA furp.org. (n.d.). ORGANIC ACIDEMIA ASSOCIATION CORPORATION [Nonprofit organization profile; tax years 2010–2025]. Retrieved November 1, 2026, from https://furp.org/org/organic-acidemia-association-corporation-481038050

MLA “ORGANIC ACIDEMIA ASSOCIATION CORPORATION.” furp.org, tax years 2010–2025, https://furp.org/org/organic-acidemia-association-corporation-481038050. Accessed 1 Nov. 2026.

Retrieved 2026-11-01; covers tax years 2010–2025. Data: furp.org, CC BY 4.0.

2025 · Form 990 · revenue $101K · expenses $100K · assets $644K

EIN
48-1038050
Address
9040 DULUTH ST, GOLDEN VALLEY, MN 55427-3122
Website
WWW.OAANEWS.ORG
NTEE code
Z99Z
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
October 1991 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

To provide information and support to parents and professionals dealing with a set of inborn errors of metabolism diseases known as organic acidemia.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Kathy Stagni Executive Dir.2010-2025 $45,000$180,000 1

Officers and directors, no compensation reported

10 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Menta Pitre Board Member2012-2025 1 $0 reported 1
Cay Welch Board Member2010-2025 1 $0 reported 1
Jana Monaco Board Liason2012-2025 1 $0 reported 1
Karen Dalton Finance Manager2021-2025 1 $0 reported 1
Richard Bazzy Board Member2021-2025 1 $0 reported 1
Allison Wood Board Member2021-2025 1 $0 reported 1
Steph Mustin Board Member2025 1 $0 reported 1
Jenni Jaehnke Board Member2025 1 $0 reported 1
Erin MacLean (former) Director2021-2023 10 $0 reported 1
Carol Barton (former) EXECUTIVE DIRECTOR2010-2011 10 $0 reported 1

People by year

2025 · 9 people listed · 1 paid, $45K · 0 employees · 8 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kathy Stagni Executive Dir.25 $45,000$0$0 $45,0001
Menta Pitre Board Member1 $0$0$0 $01
Cay Welch Board Member1 $0$0$0 $01
Jana Monaco Board Liason1 $0$0$0 $01
Karen Dalton Finance Manager1 $0$0$0 $01
Steph Mustin Board Member1 $0$0$0 $01
Richard Bazzy Board Member1 $0$0$0 $01
Allison Wood Board Member1 $0$0$0 $01
Jenni Jaehnke Board Member1 $0$0$0 $01
2024 · 7 people listed · 1 paid, $45K · 0 employees · 7 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kathy Stagni Executive Dir.25 $45,000$0$0 $45,0001
Menta Pitre Director2 $0$0$0 $01
Cay Welch Director1 $0$0$0 $01
Jana Monaco Board Liason5 $0$0$0 $01
Karen Dalton Finance Directo5 $0$0$0 $01
Richard Bazzy Director3 $0$0$0 $01
Allison Wood Director1 $0$0$0 $01
2023 · 8 people listed · 1 paid, $45K · 0 employees · 7 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kathy Stagni Executive Dir.32 $45,000$0$0 $45,0001
Menta Pitre Director2 $0$0$0 $01
Cay Welch Director1 $0$0$0 $01
Jana Monaco Board Liason5 $0$0$0 $01
Karen Dalton Finance Directo5 $0$0$0 $01
Erin MacLean Director10 $0$0$0 $01
Richard Bazzy Director3 $0$0$0 $01
Allison Wood Director4 $0$0$0 $01
2022 · 8 people listed · 1 paid, $45K · 0 employees · 7 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kathy Stagni Executive Dir.32 $45,000$0$0 $45,0001
Menta Pitre Director2 $0$0$0 $01
Cay Welch Director1 $0$0$0 $01
Jana Monaco Board Liason5 $0$0$0 $01
Karen Dalton Finance Directo5 $0$0$0 $01
Erin MacLean Director10 $0$0$0 $01
Richard Bazzy Director3 $0$0$0 $01
Allison Wood Director4 $0$0$0 $01
2021 · 8 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Menta Pitre Director2 $0$0$0 $01
Cay Welch Director1 $0$0$0 $01
Jana Monaco Board Liason5 $0$0$0 $01
Kathy Stagni Executive Dir.32 $0$0$0 $01
Karen Dalton Finance Directo5 $0$0$0 $01
Erin MacLean Director10 $0$0$0 $01
Richard Bazzy Director3 $0$0$0 $01
Allison Wood Director4 $0$0$0 $01
2020 · 4 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Menta Pitre Director2 $0-- $01
Cay Welch Director2 $0-- $01
Jana Monaco Board Liason2 $0-- $01
Kathy Stagni Executive Dir.20 $0-- $01
2019 · 4 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MENTA PITRE DIRECTOR2 $0-$0 $01
CAY WELCH DIRECTOR2 $0-$0 $01
JANA MONACO BOARD LIASON2 $0-$0 $01
KATHY STAGNI EXECUTIVE DIRECTOR20 $0-$0 $01
2018 · 4 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MENTA PITRE DIRECTOR2 $0-$0 $01
CAY WELCH DIRECTOR2 $0-$0 $01
JANA MONACO BOARD LIASON2 $0-$0 $01
KATHY STAGNI EXECUTIVE DIRECTOR15 $0-$0 $01
2017 · 4 people listed · none paid · 0 employees · 10 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MENTA PITRE DIRECTOR2 $0$0$0 $01
CAY WELCH DIRECTOR2 $0$0$0 $01
JANA MONACO BOARD LIASON2 $0$0$0 $01
KATHY STAGNI EXECUTIVE DIRECTOR15 $0$0$0 $01
2016 · 4 people listed · none paid · 0 employees · 20 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MENTA PITRE DIRECTOR2 $0$0$0 $01
CAY WELCH DIRECTOR2 $0$0$0 $01
JANA MONACO BOARD LIASON2 $0$0$0 $01
KATHY STAGNI EXECUTIVE DIRECTOR15 $0$0$0 $01
2015 · 4 people listed · none paid · 0 employees · 15 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MENTA PITRE DIRECTOR2 $0$0$0 $01
CAY WELCH DIRECTOR2 $0$0$0 $01
JANA MONACO BOARD LIASON2 $0$0$0 $01
KATHY STAGNI EXECUTIVE DIRECTOR15 $0$0$0 $01
2014 · 4 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KATHY STAGNI EXECUTIVE DIRECTOR10 $0$0$0 $01
MENTA PITRE BOARD MEMBER2 $0$0$0 $01
CAY WELCH BOARD MEMBER2 $0$0$0 $01
JANA MONACO BOARD LIASON2 $0$0$0 $01
2013 · 4 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KATHY STAGNI EXECUTIVE DIRECTOR10 $0$0$0 $01
MENTA PITRE BOARD MEMBER2 $0$0$0 $01
CAY WELCH BOARD MEMBER2 $0$0$0 $01
JANA MONACO BOARD LIASON2 $0$0$0 $01
2012 · 4 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KATHY STAGNI EXECUTIVE DIRECTOR10 $0$0$0 $01
MENTA PITRE BOARD MEMBER2 $0$0$0 $01
CAY WELCH BOARD MEMBER2 $0$0$0 $01
JANA MONACO BOARD LIASON2 $0$0$0 $01
2011 · 3 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KATHY STAGNI ADMINISTRATIVE DIRECTOR10 $0$0$0 $01
CAROL BARTON EXECUTIVE DIRECTOR10 $0$0$0 $01
CAY WELCH BOARD OF DIRECTORS10 $0$0$0 $01
2010 · 3 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KATHY STAGNI ADMINISTRATIVE DIRECTOR10 $0$0$0 $01
CAROL BARTON EXECUTIVE DIRECTOR10 $0$0$0 $01
CAY WELCH BOARD OF DIRECTORS10 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2023 · 2 grants to organizations · $75K
2022 · 1 grant to organizations · $10K

Listed grants add up to $10,000; the return's “grants paid” expense line says $14,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2021 · 1 grant to organizations · $100K
2016 · 1 grant to organizations · $15K
2015 · 1 grant to organizations · $10K
2013 · 1 grant to organizations · $10K
2012 · 1 grant to organizations · $10K

Listed grants add up to $10,000; the return's “grants paid” expense line says $11,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2010 · 2 grants to organizations · $9K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2025 · Form 990 period ending 2025-12-31 · view filing · original 990 ↗
$100,612$99,894 $644,289$643,789 $70,368$3,111 $45,00008
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$161,337$139,190 $643,572$643,071 $141,159$0 $45,00007
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$96,803$164,297 $620,936$620,924 $90,784$382 $45,00007
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$109,117$139,647 $689,296$688,418 $62,835$34,966 $45,00007
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$773,343$130,632 $719,299$718,948 $765,413$5,000 $00-
2020 · Form 990EZ period ending 2020-12-31 · view filing · original 990 ↗
$55,131$47,613 $76,588$76,237 $47,332$7,400 ---
2019 · Form 990EZ period ending 2019-12-31 · view filing · original 990 ↗
$73,012$50,244 $69,448$68,719 $73,008- ---
2018 · Form 990EZ period ending 2018-12-31 · view filing · original 990 ↗
$116,269$106,352 $46,193$45,951 $116,266- ---
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$24,112$16,785 $36,262$36,034 $24,111$0 $0010
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$75,938$103,073 $29,074$28,707 $75,330$0 $0020
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$24,268$29,408 $51,228$49,313 $23,037$0 $0015
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$76,152$79,683 $54,900$54,454 $37,650$38,500 $000
2013 · Form 990 period ending 2013-12-31 · view filing · original 990 ↗
$39,379$24,241 $58,676$57,985 $39,378$0 $000
2012 · Form 990 period ending 2012-12-31 · view filing · original 990 ↗
$67,791$68,356 $42,846$42,846 $41,789$26,000 $000
2011 · Form 990 period ending 2011-12-31 · view filing · original 990 ↗
$31,953$22,507 $43,411$43,411 $31,949$0 $000
2010 · Form 990 period ending 2010-12-31 · view filing · original 990 ↗
$57,346$49,978 $33,965$33,965 $35,282$21,808 $000

Funders of this organization

6 grantors reported grants to this organization, $42,605 in all, tax years 2013 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2023-2024 2$30,000 2024$20,000
show
PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2018 1$5,859 2018$5,859
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “ORGANIC ACIDEMIA ASSOCIATION CORPORATION” 2020-2023 4$3,721 2023$784
show
ABBVIE FOUNDATION Private foundation Fuzzy filed as “ORGANIC ACIDEMIA ASSOCIATION CORPORATION” 2020 1$2,000 2020$2,000
show
SHELL USA COMPANY FOUNDATION Private foundation Fuzzy filed as “Organic Acidemia Association Corporation” 2013-2014 2$1,000 2014$500
show
VERIZON FOUNDATION Private foundation Fuzzy filed as “ORGANIC ACIDEMIA ASSOCIATION CORPORATION” 2023 1$25 2023$25
show

Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
MAHTOMEDI FASTPITCH ASSOCIATIONMNZ99 $97,082$93,375 President$0 Same NTEE code Z99, revenue within 2x, same state
MINNESOTA DEAF BLIND ASSOCIATIONMNZ99 $91,079$19,013 TRUSTEE$0 Same NTEE code Z99, revenue within 2x, same state
DEER RIVER VOLUNTEER FIREMENS RELIEF ASSOCIATIONMNZ99 $128,390$53,460 Treasurer$1,000 Same NTEE code Z99, revenue within 2x, same state
BEACON SHORES OFFICE PARK ASSOCIATIONMNZ99 $84,657$150,278 BOARD MEMBER$0 Same NTEE code Z99, revenue within 2x, same state
CAG FOUNDATIONMNZ99 $80,416$63,655 CHARIMAN$0 Same NTEE code Z99, revenue within 2x, same state
BLOOMINGTON ROTARY FOUNDATIONMNZ99 $89,340$151,767 PRESIDENT$0 Same NTEE code Z99, revenue within 2x, same state
HAWLEY SCHOLARSHIP FOUNDATIONMNZ99 $102,150$94,477 Director$0 Same NTEE code Z99, revenue within 2x, same state
HORN OF AFRICA DEVELOPMENT AND EDUCATION FOUNDATIONMNZ99 $111,578$105,581 EXECUTIVE DIRECTOR$0 Same NTEE code Z99, revenue within 2x, same state
CROSS OF BENTON COUNTYMNZ99 $81,713$81,820 TREAS$0 Same NTEE code Z99, revenue within 2x, same state
EASTERN MORRISON COUNTY 4-WHEELER CLUB INCMNZ99 $78,207$39,958 Secretary$600 Same NTEE code Z99, revenue within 2x, same state
TRUMPETS OF CHRIST INTERNATIONAL AFCM CITY PLEXMNZ99 $80,241$84,122 VICE PRESIDENT$21,089 Same NTEE code Z99, revenue within 2x, same state
HALSTAD COMMUNITY HOMES INCMNZ99 $78,080$84,255 DIRECTOR$0 Same NTEE code Z99, revenue within 2x, same state
SOAR FOUNDATIONMNZ99 $123,782$45,658 PRESIDENT$0 Same NTEE code Z99, revenue within 2x, same state
TEMPLE OF HMONGISMMNZ99 $132,251$46,981 Treasurer$0 Same NTEE code Z99, revenue within 2x, same state
EMERALD BAY ASSOCIATIONCAZ99 $105,928$101,188 Director$0 Same NTEE code Z99, revenue within 2x
ADAPT HOUSING CORPORATION NUMBER ONE INCMIZ99 $134,934$160,056 Executive Dir.$0 Same NTEE code Z99, revenue within 2x
INFANT DEVELOPMENT ASSOCIATION OF CALIFORNIA INCCAZ99 $135,738$79,723 public policy$0 Same NTEE code Z99, revenue within 2x
MASTER GARDENER ASSOCIATION OF SAN DIEGO COUNTYCAZ99 $99,043$92,633 MEMBER SERV$0 Same NTEE code Z99, revenue within 2x
WAKE ROBIN RESIDENTS ASSOCIATION INCORPORATEDVTZ99 $101,298$88,300 PRESIDENT$0 Same NTEE code Z99, revenue within 2x
SANTA CRUZ LAND CORPORATIONAZZ99 $96,314$78,163 Treasurer$0 Same NTEE code Z99, revenue within 2x
OHIO ASSOCIATION OF EMERGENCY VEHICLE TECHNICIANS INCOHZ99 $91,804$90,634 President$0 Same NTEE code Z99, revenue within 2x
ASTOR COMMUNITY ASSOCIATION INCFLZ99 $92,179$53,620 Treasurer$1,800 Same NTEE code Z99, revenue within 2x
PULLMAN CHILD WELFARE ASSOCIATIONWAZ99 $126,162$80,285 President$0 Same NTEE code Z99, revenue within 2x
ELIZABETH AREA DEVELOPMENT CORPORATIONPAZ99 $83,461$57,339 President$0 Same NTEE code Z99, revenue within 2x
1010 DEVELOPMENT CORPORATIONCAZ99 $107,993$422,963 PRESIDENT & CEO$150,000 Same NTEE code Z99, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
CALIFORNIA COMMUNITY FOUNDATION DAF sponsor$1,190,6413 22009–2010 COMMUNITY FOUNDATION LAND TRUST; 1010 DEVELOPMENT CORPORATION
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$917,56733 112016–2024 TRI-CENTRIC FOUNDATION INC; HAWLEY SCHOLARSHIP FOUNDATION; CHURCH OF THE GOOD SAMARITAN CORVALLIS OREGON FOUNDATION; BREAST CANCER ACTION and 7 more
UNITED WAY OF NEW YORK CITY DAF sponsor$644,5892 12009–2010 SURVIVORS OF THE SHIELD INC
THE SCHMIDT FAMILY FOUNDATION Private foundation$400,0005 12019–2023 BREAST CANCER ACTION
HOUSTON ENDOWMENT INC Private foundation$400,0002 12022–2024 EAST END IMPROVEMENT CORPORATION
HORIZONS FOUNDATION DAF sponsor$368,75015 22011–2024 BREAST CANCER ACTION; KASHMIR HUMAN RIGHTS FOUNDATION
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$218,56817 52014–2024 BREAST CANCER ACTION; BLOOMINGTON ROTARY FOUNDATION; PULLMAN CHILD WELFARE ASSOCIATION; AMERICAN ASSOCIATION OF PHYSICIANS OF INDIAN ORIGIN INC and 1 more
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$189,69114 42019–2025 ALZHEIMERS AID SOCIETY OF NORTHERN CALIFORNIA INC; BREAST CANCER ACTION; AMERICAN ASSOCIATION OF PHYSICIANS OF INDIAN ORIGIN INC; HARRISBURG TELUGU ASSOCIATION
SAN FRANCISCO FOUNDATION DAF sponsor$177,7509 22010–2024 BREAST CANCER ACTION; COTTAGE 1886 FOUNDATION INC
OREGON COMMUNITY FOUNDATION DAF sponsor$152,77811 12014–2024 ZONTA SERVICE FOUNDATION OF CORVALLIS
ALBERT E AND MABEL C WALKER FOUNDATION Private foundation$150,0006 12020–2025 ELIZABETH AREA DEVELOPMENT CORPORATION
WOODTIGER FUND Private foundation$150,0002 12018–2019 BREAST CANCER ACTION
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$131,5004 42020–2024 BREAST CANCER ACTION; SURVIVORS OF THE SHIELD INC; MINNESOTA DEAF BLIND ASSOCIATION; MORE TRANSPLANTS MORE LIFE
HEADWATERS FOUNDATION FOR JUSTICE DAF sponsor$127,00013 12011–2023 BREAST CANCER ACTION
HUTTON FOUNDATION A DELAWARE CORP Private foundation$102,50010 12015–2024 PASSKEYS FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2025 · Form 990 · $99,894 spent · pay $48,484 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $45,000$45,000-- 45.0%
All other expenses $11,887$11,817$70- 11.9%
Other (as described)Contractors $8,967-$8,967- 9.0%
Other (as described)Printing and Publications $8,691$8,691-- 8.7%
Travel $7,432$7,432-- 7.4%
Other (as described)Family Support $5,440$5,440-- 5.4%
Other (as described)Telephone & Internet $4,024$4,024-- 4.0%
Payroll taxes $3,484-$3,484- 3.5%
Fees: legal $2,351-$2,351- 2.4%
Office expenses $1,204$1,204-- 1.2%
Insurance $1,005-$1,005- 1.0%
Advertising and promotion $384$384-- 0.4%
Fees: other services $25-$25- 0.0%
Fundraising events Eventdirect expenses; gross income $2,626-reported apart
Total$99,894100%

View the filing

2024 · Form 990 · $139,190 spent · pay $48,484 · grants $28,199 · events $22,669
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $45,000$45,000-- 32.3%
Grants to US individuals $26,199$26,199-- 18.8%
Conferences, conventions and meetings $22,669$22,669-- 16.3%
Travel $11,148$11,148-- 8.0%
Other (as described)Printing and Publications $7,743$7,743-- 5.6%
Other (as described)Patient Registry Maintenance $5,000$5,000-- 3.6%
Other (as described)Internet $4,001$4,001-- 2.9%
Other (as described)Postage and Shipping $3,500$3,500-- 2.5%
Payroll taxes $3,484-$3,484- 2.5%
All other expenses $3,431$2,552$879- 2.5%
Fees: legal $2,350-$2,350- 1.7%
Grants to US organizations and governments $2,000$2,000-- 1.4%
Office expenses $1,505-$1,505- 1.1%
Insurance $1,005-$1,005- 0.7%
Fees: other services $155-$155- 0.1%
Total$139,190100%

View the filing

2023 · Form 990 · $164,297 spent · pay $49,900 · grants $75,600 · events $5,329
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $75,000$75,000-- 45.6%
Pay: officers, directors, trustees, key employees $45,000$45,000-- 27.4%
Other (as described)Printing and Publications $11,735$11,735-- 7.1%
Payroll taxes $4,900$4,900-- 3.0%
Conferences, conventions and meetings $4,287$4,287-- 2.6%
Fees: other services $4,190$4,190-- 2.6%
Travel $3,567$3,567-- 2.2%
Other (as described)Internet $3,496$3,496-- 2.1%
Fees: accounting $2,800-$2,800- 1.7%
Other (as described)Postage and Delivery $2,661$2,661-- 1.6%
All other expenses $2,295$2,295-- 1.4%
Other (as described)Website $1,466$1,466-- 0.9%
Office expenses $1,445-$1,445- 0.9%
Insurance $855-$855- 0.5%
Grants to US individuals $600$600-- 0.4%
Fundraising events Eventdirect expenses; gross income $167$1,042reported apart
Total$164,297100%

View the filing

2022 · Form 990 · $139,647 spent · pay $48,863 · grants $14,500 · events $37,299
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $45,000$45,000-- 32.2%
Conferences, conventions and meetings $37,299$37,299-- 26.7%
Grants to US organizations and governments $14,500$14,500-- 10.4%
Other (as described)Website $8,877$8,877-- 6.4%
Other (as described)Printing and Publications $7,618$7,618-- 5.5%
Travel $7,165$7,165-- 5.1%
Payroll taxes $3,863$3,863-- 2.8%
Other (as described)Internet $3,463-$3,463- 2.5%
Fees: other services $3,408$2,750$658- 2.4%
All other expenses $2,145$2,048$97- 1.5%
Other (as described)Postage and Delivery $2,044$2,044-- 1.5%
Fees: accounting $2,000-$2,000- 1.4%
Office expenses $1,431-$1,431- 1.0%
Insurance $822-$822- 0.6%
Interest $12-$12- 0.0%
Fundraising events Eventdirect expenses; gross income $737-reported apart
Total$139,647100%

View the filing

2021 · Form 990 · $130,632 spent · pay $0 · grants $100,378 · events $1,304
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $100,000$100,000-- 76.6%
Other (as described)Printing and Publications $9,734$9,734-- 7.5%
Fees: other services $3,604$3,500$104- 2.8%
Other (as described)Website $3,596$3,596-- 2.8%
Office expenses $2,858-$2,858- 2.2%
Other (as described)Internet $2,407-$2,407- 1.8%
All other expenses $2,335$2,274$61- 1.8%
Other (as described)Postage and Delivery $2,094$2,094-- 1.6%
Fees: accounting $1,500-$1,500- 1.1%
Conferences, conventions and meetings $1,304$1,304-- 1.0%
Insurance $822-$822- 0.6%
Grants to US individuals $378$378-- 0.3%
Fundraising events Eventdirect expenses; gross income $2,930-reported apart
Total$130,632100%

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2020 · Form 990EZ · $47,613 spent · pay $0 · grants $22,161 · events $300
LineAs describedTotalShare
Grants and similar amounts paid $22,161 46.5%
Other expenses (detail on Schedule O) $11,917 25.0%
Printing, publications, postage $7,050 14.8%
Fees to independent contractors $6,485 13.6%
Fundraising events Eventdirect expenses; gross income -$300reported apart
Total$47,613100%

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2019 · Form 990EZ · $50,244 spent · pay $0 · grants $16,000 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $16,000 31.8%
Printing, publications, postage $15,626 31.1%
Other expenses (detail on Schedule O) $13,201 26.3%
Occupancy, rent, utilities, maintenance $3,239 6.4%
Fees to independent contractors $2,178 4.3%
Total$50,244100%

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2018 · Form 990EZ · $106,352 spent · pay $0 · grants $10,000 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $79,920 75.1%
Printing, publications, postage $11,119 10.5%
Grants and similar amounts paid $10,000 9.4%
Fees to independent contractors $2,725 2.6%
Occupancy, rent, utilities, maintenance $2,588 2.4%
Total$106,352100%

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2017 · Form 990 · $16,785 spent · pay $0 · grants $1,000 · events $450
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)PRINTING AND REPRODUCTI $3,977$3,977-- 23.7%
Other (as described)FAMILY SUPPORT $2,679$2,679-- 16.0%
Other (as described)TELEPHONE/INTERNET $2,381$2,381-- 14.2%
Other (as described)POSTAGE AND DELIVERY $1,952$1,952-- 11.6%
All other expenses $1,499$1,499-- 8.9%
Grants to US individuals $1,000$1,000-- 6.0%
Insurance $877-$877- 5.2%
Fees: accounting $700-$700- 4.2%
Office expenses $511-$511- 3.0%
Travel $472-$472- 2.8%
Conferences, conventions and meetings $450$450-- 2.7%
Fees: other services $186-$186- 1.1%
Advertising and promotion $101$101-- 0.6%
Total$16,785100%

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2016 · Form 990 · $103,073 spent · pay $0 · grants $15,000 · events $68,884
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $68,884$68,884-- 66.8%
Grants to US organizations and governments $15,000$15,000-- 14.6%
Other (as described)PRINTING AND REPRODUCTI $5,004$5,004-- 4.9%
Travel $3,504$3,504-- 3.4%
Other (as described)TELEPHONE/INTERNET $2,303-$2,303- 2.2%
Other (as described)POSTAGE AND DELIVERY $2,300$2,300-- 2.2%
Other (as described)FAMILY SUPPORT $1,832$1,832-- 1.8%
Fees: accounting $1,485-$1,485- 1.4%
All other expenses $1,221$1,221-- 1.2%
Insurance $877-$877- 0.9%
Office expenses $572$51$521- 0.6%
Fees: other services $91-$91- 0.1%
Total$103,073100%

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2015 · Form 990 · $29,408 spent · pay $0 · grants $10,350 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $10,000$10,000-- 34.0%
Other (as described)PRINTING AND REPRODUCTION $8,491$8,491$0- 28.9%
All other expenses $3,384$3,102$282- 11.5%
Fees: accounting $1,900-$1,900- 6.5%
Other (as described)INTERNET $1,896$1,896$0$0 6.4%
Travel $1,056$1,056-- 3.6%
Insurance $877-$877- 3.0%
Office expenses $843$74$769- 2.9%
Grants to US individuals $350$350-- 1.2%
Fees: legal $298$99$199$0 1.0%
Other (as described)DUES AND FEES $180$50$130- 0.6%
Other (as described)BANK FEES $108$0$108- 0.4%
Interest $25-$25- 0.1%
Total$29,408100%

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2014 · Form 990 · $79,683 spent · pay $0 · grants $550 · events $58,200
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $58,200$57,758$442- 73.0%
Other (as described)PRINTING $7,918$4,778-$3,140 9.9%
Travel $5,116$5,116-- 6.4%
Fees: accounting $2,042-$2,042- 2.6%
Other (as described)POSTAGE AND SHIPPING $1,988$1,691-$297 2.5%
Office expenses $1,567-$1,567- 2.0%
Insurance $877-$877- 1.1%
Other (as described)TELEPHONE $637$319$159$159 0.8%
Grants to US organizations and governments $550$550-- 0.7%
Other (as described)WEBSITE $338$338-- 0.4%
All other expenses $321$19$302- 0.4%
Advertising and promotion $129--$129 0.2%
Total$79,683100%

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2013 · Form 990 · $24,241 spent · pay $0 · grants $10,175 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $10,175$10,175-- 42.0%
Other (as described)PRINTING $5,271$3,464-$1,807 21.7%
Other (as described)POSTAGE AND SHIPPING $2,573$1,690-$883 10.6%
Fees: accounting $1,350-$1,350- 5.6%
Advertising and promotion $1,152--$1,152 4.8%
Other (as described)DESIGN EXPENSE $898$898-- 3.7%
Insurance $877-$877- 3.6%
All other expenses $661$286$375- 2.7%
Office expenses $652-$652- 2.7%
Other (as described)TELEPHONE $632$316$158$158 2.6%
Total$24,241100%

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2012 · Form 990 · $68,356 spent · pay $0 · grants $11,500 · events $47,983
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $47,983$47,983-- 70.2%
Grants to US organizations and governments $11,500$11,500-- 16.8%
Other (as described)PRINTING $3,172$2,912-$260 4.6%
Fees: accounting $1,476-$1,476- 2.2%
Other (as described)POSTAGE AND SHIPPING $1,378$1,035-$343 2.0%
Insurance $885-$885- 1.3%
All other expenses $697$471$226- 1.0%
Other (as described)TELEPHONE $572$286$143$143 0.8%
Other (as described)MISCELLANEOUS $430$318$112- 0.6%
Office expenses $183-$183- 0.3%
Advertising and promotion $80--$80 0.1%
Total$68,356100%

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2011 · Form 990 · $22,507 spent · pay $0 · grants $3,000 · events $2,324
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)WEBSITE $5,192$5,192-- 23.1%
Other (as described)PRINTING $3,606$3,606-- 16.0%
Grants to US organizations and governments $3,000$3,000-- 13.3%
Conferences, conventions and meetings $2,324$2,324-- 10.3%
Other (as described)POSTAGE AND SHIPPING $2,126$471-$1,655 9.4%
Fees: accounting $1,650-$1,650- 7.3%
Travel $1,572$1,572-- 7.0%
Office expenses $1,250$94$1,156- 5.6%
Insurance $885-$885- 3.9%
All other expenses $459$224$235- 2.0%
Other (as described)TELEPHONE $248$124$62$62 1.1%
Advertising and promotion $195--$195 0.9%
Total$22,507100%

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2010 · Form 990 · $49,978 spent · pay $0 · grants $9,025 · events $31,281
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $31,281$31,281-- 62.6%
Grants to US organizations and governments $9,025$9,025-- 18.1%
Other (as described)PRINTING $2,899$2,441-$458 5.8%
Other (as described)POSTAGE AND SHIPPING $2,757$886-$1,871 5.5%
Fees: accounting $1,700-$1,700- 3.4%
Insurance $885-$885- 1.8%
Other (as described)TELEPHONE $360$180$90$90 0.7%
All other expenses $323$45$278- 0.6%
Office expenses $289-$289- 0.6%
Other (as described)WEBSITE $202$202-- 0.4%
Other (as described)MISCELLANEOUS $200$182$18- 0.4%
Depreciation and depletion $57-$57- 0.1%
Total$49,978100%

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