HOPE FOR HIE

Cite this

Plain text HOPE FOR HIE. furp.org, nonprofit organization profile, tax years 2016–2024. https://furp.org/org/hope-for-hie-464038344. Retrieved 2026-10-28.

APA furp.org. (n.d.). HOPE FOR HIE [Nonprofit organization profile; tax years 2016–2024]. Retrieved October 28, 2026, from https://furp.org/org/hope-for-hie-464038344

MLA “HOPE FOR HIE.” furp.org, tax years 2016–2024, https://furp.org/org/hope-for-hie-464038344. Accessed 28 Oct. 2026.

Retrieved 2026-10-28; covers tax years 2016–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $395K · expenses $397K · assets $236K

EIN
46-4038344
Address
PO BOX 250472, W BLOOMFIELD, MI 48325-0472
NTEE code
G96
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
September 2014 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

Hope for HIEs mission is to improve the quality of life for children and families affected by neonatal and pediatric-acquired hypoxic ischemic encephalopathy HIE through awareness advocacy education research and support.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Betsy Pilon Executive Director2021-2024 $92,465$345,095 1

Officers and directors, no compensation reported

12 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Danielle Barber Director2022-2024 5 $0 reported 1
Amy Cutler Director - Professional Outreach Chair2020-2024 5 $0 reported 1
David Ford Director - President2019-2024 5 $0 reported 1
Matthew Kegyes Director - Treasurer2016-2024 5 $0 reported 1
Crystal Kostick Director2020-2024 5 $0 reported 1
Becky Detlaf (former) Director - Secretary Loss Coordinator2022-2023 5 $0 reported 1
Becky Detlef (former) Secretary2019-2021 5 $0 reported 1
Elizabeth Pilon (former) President2016-2019 20 $0 reported 1
Annie Goeller (former) Director2016-2019 5 $0 reported 1
Jennifer Kegyes (former) Director2019 5 $0 reported 1
Lindsay VanZandt (former) Secretary2016-2018 5 $0 reported 1
Nick Burton (former) Director2016-2017 5 $0 reported 1

People by year

2024 · 6 people listed · 1 paid, $92K · 4 employees · 30 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Betsy Pilon Executive Director45 $92,465$0$0 $92,4651
Danielle Barber Director5 $0$0$0 $01
Amy Cutler Director - Professional Outreach Chair5 $0$0$0 $01
David Ford Director - President5 $0$0$0 $01
Matthew Kegyes Director - Treasurer5 $0$0$0 $01
Crystal Kostick Director5 $0$0$0 $01
2023 · 7 people listed · 1 paid, $86K · 0 employees · 40 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Betsy Pilon Executive Director45 $86,047$0$0 $86,0471
Danielle Barber Director5 $0$0$0 $01
Amy Cutler Director - Professional Outreach Chair5 $0$0$0 $01
Becky Detlaf Director - Secretary Loss Coordinator5 $0$0$0 $01
David Ford Director - President5 $0$0$0 $01
Matthew Kegyes Director - Treasurer5 $0$0$0 $01
Crystal Kostick Director5 $0$0$0 $01
2022 · 7 people listed · 1 paid, $83K · 0 employees · 40 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Betsy Pilon Executive Director45 $83,375$0$0 $83,3751
Danielle Barber Director5 $0$0$0 $01
Amy Cutler Director - Professional Outreach Chair5 $0$0$0 $01
Becky Detlaf Director - Secretary Loss Coordinator5 $0$0$0 $01
David Ford Director - President5 $0$0$0 $01
Matthew Kegyes Director - Treasurer5 $0$0$0 $01
Crystal Kostick Director5 $0$0$0 $01
2021 · 6 people listed · 1 paid, $83K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Betsy Pilon Executive Director45 $83,208-$0 $83,2081
David Ford President5 $0-$0 $01
Matthew Kegyes Treasurer5 $0-$0 $01
Becky Detlef Secretary5 $0-$0 $01
Crystal Kostick Director at Large5 $0-$0 $01
Amy Cutler Professional Outreach Chair5 $0-$0 $01
2020 · 5 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
David Ford President5 $0-$0 $01
Matthew Kegyes Treasurer5 $0-$0 $01
Becky Detlef Secretary5 $0-$0 $01
Crystal Kostick Director at Large5 $0-$0 $01
Amy Cutler Professional Outreach Chair5 $0-$0 $01
2019 · 6 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Elizabeth Pilon President20 $0-$0 $01
Matthew Kegyes Treasurer5 $0-$0 $01
Becky Detlef Secretary5 $0-$0 $01
David Ford Director5 $0-$0 $01
Annie Goeller Director5 $0-$0 $01
Jennifer Kegyes Director5 $0-$0 $01
2018 · 4 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Elizabeth Pilon President10 $0-$0 $01
Matthew Kegyes Treasurer5 $0-$0 $01
Lindsay VanZandt Secretary5 $0-$0 $01
Annie Goeller Director5 $0-$0 $01
2017 · 5 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Elizabeth Pilon President10 $0-$0 $01
Matthew Kegyes Treasurer5 $0-$0 $01
Lindsay VanZandt Secretary5 $0-$0 $01
Annie Goeller Director5 $0-$0 $01
Nick Burton Director5 $0-$0 $01
2016 · 5 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Elizabeth Pilon President10 $0-$0 $01
Matthew Kegyes Treasurer5 $0-$0 $01
Lindsay VanZandt Secretary5 $0-$0 $01
Annie Goeller Director5 $0-$0 $01
Nick Burton Director5 $0-$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$394,629$396,791 $236,173$236,173 $390,752$0 $92,465430
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$223,106$290,097 $238,335$238,335 $222,694$0 $86,047040
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$236,869$213,522 $305,326$305,326 $236,869$0 $0040
2021 · Form 990EZ period ending 2021-12-31 · view filing · original 990 ↗
$161,216$133,201 $281,979$281,979 $161,216- ---
2020 · Form 990PF period ending 2020-12-31 · view filing · original 990 ↗
$157,778$62,000 $253,964$253,964 $157,778- $0--
2019 · Form 990PF period ending 2019-12-31 · view filing · original 990 ↗
$59,682$34,221 $158,186$158,186 $59,682- $0--
2018 · Form 990PF period ending 2018-12-31 · view filing · original 990 ↗
$56,656$26,519 $132,725$132,725 $56,656- ---
2017 · Form 990PF period ending 2017-12-31 · view filing · original 990 ↗
$77,221$34,034 $116,390$102,588 $77,221- ---
2016 · Form 990PF period ending 2016-12-31 · view filing · original 990 ↗
$64,365$31,567 $59,401$59,401 $64,365- ---

Funders of this organization

5 grantors reported grants to this organization, $89,871 in all, tax years 2020 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2023-2024 2$37,788 2024$28,888
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2024-2025 2$32,742 2025$16,961
show
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2024 1$16,150 2024$16,150
show
DEACON CHARITABLE FOUNDATION Private foundation Fuzzy filed as “HOPE FOR HIE” 2020, 2022-2023 3$2,985 2023$75
show
ANALOG DEVICES FOUNDATION Private foundation Fuzzy filed as “HOPE FOR HIE” 2022 1$206 2022$206
show

Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
FIELD NEUROSCIENCE INSTITUTEMIG96 $679,067$213,724 DIRECTOR (PART YEAR)$2,106,820 Same NTEE code G96, revenue within 2x, same state
LENDING HANDS OF MICHIGAN INCMIG96 $210,301$177,224 CHAIR$0 Same NTEE code G96, revenue within 2x, same state
HOPE HAPPENS INCMOG96 $267,866$302,947 DIRECTOR OF OPERATIONS$59,180 Same NTEE code G96, revenue within 2x
BRAINS TOGETHER FOR A CUREMNG96 $214,308$254,821 DIRECTOR$0 Same NTEE code G96, revenue within 2x
INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INCMNG96 $504,220$160,613 President / Treasurer / Secretary$0 Same NTEE code G96, revenue within 2x
KAMEN BRAIN TUMOR FOUNDATIONNYG96 $395,943$456,558 BOARD MEMBER$0 Same NTEE code G96, revenue within 2x
ATLANTA NEUROSCIENCE FOUNDATION INCGAG96 $436,569$385,143 CEO - ANI$422,959 Same NTEE code G96, revenue within 2x
ALEX MANFULL FUNDNHG96 $355,671$292,609 TRUSTEE$0 Same NTEE code G96, revenue within 2x
33 FOUNDATION INCMAG96 $275,350$270,652 FOUNDER/EXECUTIVE DIRECTOR$0 Same NTEE code G96, revenue within 2x
GUSSIE LEE FOUNDATIONCAG96 $554,636$163,353 PRESIDENT$391,283 Same NTEE code G96, revenue within 2x
AMERICAN SOCIETY OF NEUROREHABILITATIONMNG96 $447,652$458,149 EDITOR-IN-CH$51,800 Same NTEE code G96, revenue within 2x
NOT IMPOSSIBLE FOUNDATION INCCAG96 $261,428$180,835 PRESIDENT$0 Same NTEE code G96, revenue within 2x
CAMP SUMA INCTNG96 $276,610$134,161 Board Chair$0 Same NTEE code G96, revenue within 2x
JOI LIFE FOUNDATION INCGAG96 $257,035$245,148 DIRECTOR$21,250 Same NTEE code G96, revenue within 2x
NEUROHOSPITALIST SOCIETYCAG96 $256,828$208,984 Immediate Past President$0 Same NTEE code G96, revenue within 2x
AMERICAN SOCIETY OF NEUROPHYSIOLOGICAL MONITORINGILG96 $511,112$494,464 DIRECTOR$0 Same NTEE code G96, revenue within 2x
NEXTSTEP KANSAS CITYKSG96 $572,642$470,999 EXECUTIVE DIRECTOR$55,993 Same NTEE code G96, revenue within 2x
PSYCHONEUROIMMUNOLOGY RESEARCH SOCIETY INCVAG96 $279,576$246,571 President$0 Same NTEE code G96, revenue within 2x
SOCIETY FOR THE NEURAL CONTROL OF MOVEMENTMDG96 $460,350$364,565 VICE-PRES/PROGRAM CHAIR$0 Same NTEE code G96, revenue within 2x
NEUROLOGY AND NEUROMUSCULAR CARE CENTER INCTXG96 $453,769$517,992 Vice President$30,000 Same NTEE code G96, revenue within 2x
NORTH CAROLINA NEUROLOGICAL SOCIETYNCG96 $264,970$184,435 EXECUTIVE DIRECTOR$9,380 Same NTEE code G96, revenue within 2x
E MALCOLM FIELD CENTER FOR NEUROSCIENCEMIG96 $161,220$20 President-Director$0 Same NTEE code G96, revenue within 5x, same state
VICTOR RIVERA FOUNDATIONTXG96 $86,273$5,672 Executive Director Chair$0 Same NTEE code G96, revenue within 5x
NEURO ASSISTANCE FOUNDATIONTXG96 $923,913$943,274 EXECUTIVE DIRECTOR$146,583 Same NTEE code G96, revenue within 5x
CHIARI & SYRINGOMYELIA FOUNDATIONNYG96 $1,153,190$917,419 EXECUTIVE DI$175,777 Same NTEE code G96, revenue within 5x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
THE CHICAGO COMMUNITY TRUST DAF sponsor$2,428,3548 32018–2024 MARGARET HACKETT FAMILY CENTER NFP; INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC; VICTOR RIVERA FOUNDATION
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$2,295,21169 262016–2024 LEWY BODY DEMENTIA ASSOCIATION INC; CHIARI & SYRINGOMYELIA FOUNDATION; NEXTSTEP KANSAS CITY; HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA and 22 more
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$891,18139 152019–2025 LEWY BODY DEMENTIA ASSOCIATION INC; NOT IMPOSSIBLE FOUNDATION INC; COLOR OF AUTISM FOUNDATION INCORPORATED; EARLY INTERVENTION CENTER and 11 more
NATIONAL PHILANTHROPIC TR DAF sponsor$838,00018 62018–2024 SOCIETY OF NUCLEAR MEDICINE AND MOLECULAR IMAGING; LEWY BODY DEMENTIA ASSOCIATION INC; DONT FORGET ME; VISION OUTREACH INTERNATIONAL INC and 2 more
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$734,0008 42019–2024 COMBINEDBRAIN INC; CONGRESS OF NEUROLOGICAL SURGEONS INC UNIVERSITY OF MICHIGAN; LEWY BODY DEMENTIA ASSOCIATION INC; KURT PETER FOUNDATION
DONOR ADVISED CHARITABLE GIVING DAF sponsor$703,25639 132015–2024 LEWY BODY DEMENTIA ASSOCIATION INC; NEUROLOGY AND NEUROMUSCULAR CARE CENTER INC; HOPE HAPPENS INC; DYNAMI FOUNDATION and 9 more
PEDIATRIC EPILEPSY RESEARCH FOUNDATION Private foundation$568,00013 12014–2024 CHILD NEUROLOGY SOCIETY
THE COMMUNITY FOUNDATION OF UTAH DAF sponsor$500,0001 12024–2024 LEWY BODY DEMENTIA ASSOCIATION INC
ST LOUIS COMMUNITY FOUNDATION INCORPORATED DAF sponsor$449,60015 12011–2024 HOPE HAPPENS INC
HARPERS HOPE THE ROTH FAMILY FOUNDATION Private foundation$415,6523 12021–2023 DONT FORGET ME
WILLIAM GERALD WILLETT CHARITABLE FOUNDATION Private foundation$360,0757 12019–2025 LEWY BODY DEMENTIA ASSOCIATION INC
CHARITIES AID FOUNDATION AMERICA DAF sponsor$343,0369 62020–2024 NOT IMPOSSIBLE FOUNDATION INC; LEWY BODY DEMENTIA ASSOCIATION INC; STARLITE SHORES FAMILY CAMP; DYNAMI FOUNDATION and 2 more
FERRANTINO FOUNDATION Private foundation$337,4008 22019–2025 DYNAMI FOUNDATION; SHADES OF PINK FOUNDATION
MONKTON INSTITUTE INC Private foundation$332,4396 12017–2022 CHIARI & SYRINGOMYELIA FOUNDATION
GREATER KANSAS CITY COMMUNITY FOUNDATION DAF sponsor$310,0404 22010–2024 NEXTSTEP KANSAS CITY; CAYMAN BIOMEDICAL RESEARCH INSTITUTE

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $396,791 spent · pay $179,761 · grants $0 · events $13,168
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $92,465$64,726$18,493$9,246 23.3%
Other (as described)Support $90,363$90,363$0$0 22.8%
Other (as described)Awareness, Advocacy, & Education $77,211$77,211$0$0 19.5%
Other salaries and wages $72,231$72,231$0$0 18.2%
Travel $15,906$0$15,906$0 4.0%
Conferences, conventions and meetings $13,168$13,168$0$0 3.3%
Payroll taxes $12,605$10,483$1,415$707 3.2%
Office expenses $8,871$0$8,871$0 2.2%
Information technology $3,841$0$3,841$0 1.0%
Other (as described)Research $2,977$2,977$0$0 0.8%
Other employee benefits $2,460$2,460$0$0 0.6%
All other expenses $1,745$0$1,303$442 0.4%
Fees: management $1,251$0$1,251$0 0.3%
Insurance $893$0$893$0 0.2%
Fees: accounting $804$0$804$0 0.2%
Total$396,791100%

View the filing

2023 · Form 990 · $290,097 spent · pay $154,846 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $86,047$60,233$17,209$8,605 29.7%
Other (as described)Awareness & Education $64,103$64,103$0$0 22.1%
Other salaries and wages $46,906$46,906$0$0 16.2%
Other (as described)Outreach & Family Support $33,254$33,254$0$0 11.5%
Payroll taxes $21,893$21,893$0$0 7.5%
Travel $17,662$13,584$4,078$0 6.1%
Office expenses $8,326$0$8,326$0 2.9%
All other expenses $8,010$5,607$2,403$0 2.8%
Information technology $2,174$0$2,174$0 0.7%
Fees: legal $761$0$761$0 0.3%
Insurance $746$0$746$0 0.3%
Fees: accounting $215$0$215$0 0.1%
Total$290,097100%

View the filing

2022 · Form 990 · $213,522 spent · pay $0 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Fees: management $118,325$91,138$18,125$9,062 55.4%
Other (as described)Awareness & Education $47,705$47,705$0$0 22.3%
All other expenses $11,713$8,199$3,514$0 5.5%
Travel $11,668$3,029$8,639$0 5.5%
Office expenses $11,548$0$11,548$0 5.4%
Other (as described)Outreach & Family Support $8,944$8,944$0$0 4.2%
Fees: accounting $1,880$0$1,880$0 0.9%
Information technology $1,739$0$1,739$0 0.8%
Total$213,522100%

View the filing

2021 · Form 990EZ · $133,201 spent · pay $0 · grants $0 · events $0
LineAs describedTotalShare
Fees to independent contractors $84,458 63.4%
Other expenses (detail on Schedule O) $41,129 30.9%
Occupancy, rent, utilities, maintenance $5,172 3.9%
Printing, publications, postage $2,442 1.8%
Total$133,201100%

View the filing

2020 · Form 990PF · $62,000 spent · pay $0 · grants $0 · events $4,980
LineAs describedTotalShare
Other expenses $48,172 77.7%
Fees: other professional $6,934 11.2%
Travel, conferences and meetings $4,980 8.0%
Printing and publications $1,289 2.1%
Fees: legal $450 0.7%
Fees: accounting $175 0.3%
Total$62,000100%

View the filing

2019 · Form 990PF · $34,221 spent · pay $0 · grants $0 · events $3,975
LineAs describedTotalShare
Other expenses $25,181 73.6%
Printing and publications $5,065 14.8%
Travel, conferences and meetings $3,975 11.6%
Total$34,221100%

View the filing

2018 · Form 990PF · $26,519 spent · pay $0 · grants $0 · events $234
LineAs describedTotalShare
Other expenses $25,940 97.8%
Printing and publications $275 1.0%
Travel, conferences and meetings $234 0.9%
Fees: legal $55 0.2%
Fees: accounting $15 0.1%
Total$26,519100%

View the filing

2017 · Form 990PF · $34,034 spent · pay $0 · grants $0 · events $3,320
LineAs describedTotalShare
Other expenses $29,469 86.6%
Travel, conferences and meetings $3,320 9.8%
Printing and publications $1,129 3.3%
Fees: accounting $116 0.3%
Total$34,034100%

View the filing

2016 · Form 990PF · $31,567 spent · pay $0 · grants $0 · events $2,866
LineAs describedTotalShare
Other expenses $23,062 73.1%
Printing and publications $5,029 15.9%
Travel, conferences and meetings $2,866 9.1%
Taxes $610 1.9%
Total$31,567100%

View the filing

Trademarks

3 US trademarks, 2 live.

MarkSerialFiledStatusSource
HOPE FOR HIE997993162026-05-01RegisteredTRTDXFAP, file of 2026-10-14
SUPER HIERO888026142020-02-19AbandonedTRCFECO2, file of 2024-03-27
HOPE FOR HIE AWARENESS · EDUCATION · SUPPORT865024472015-01-13Registered and renewedTRTYRAP, file of 2026-04-03

The newest marks of the trademark owners above, matched to this record by name (and state).

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