NATIONAL NIEMANN-PICK DISEASE FOUNDATION
Cite this
Plain text NATIONAL NIEMANN-PICK DISEASE FOUNDATION. furp.org, nonprofit organization profile, tax years 2016–2025. https://furp.org/org/national-niemann-pick-disease-foundation-351844264. Retrieved 2026-10-31.
APA furp.org. (n.d.). NATIONAL NIEMANN-PICK DISEASE FOUNDATION [Nonprofit organization profile; tax years 2016–2025]. Retrieved October 31, 2026, from https://furp.org/org/national-niemann-pick-disease-foundation-351844264
MLA “NATIONAL NIEMANN-PICK DISEASE FOUNDATION.” furp.org, tax years 2016–2025, https://furp.org/org/national-niemann-pick-disease-foundation-351844264. Accessed 31 Oct. 2026.
Retrieved 2026-10-31; covers tax years 2016–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $929K · expenses $553K · assets $981K
- Also known as
- FOUNDATION INC
- EIN
- 35-1844264
- Address
- PO BOX 49, FORT ATKINSON, WI 53538-0049
- Website
- NNPDF.ORG
- NTEE code
- H110
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- April 1993 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE NATIONAL NIEMANN-PICK DISEASE FOUNDATION, INC. (NNPDF) IS A NON-PROFIT, PATIENT ADVOCACY AND FAMILY SUPPORT ORGANIZATION DEDICATED TO SUPPORTING AND EMPOWERING PATIENTS AND FAMILIES AFFECTED BY NIEMANN-PICK DISEASE, THROUGH EDUCATION, COLLABORATION AND RESEARCH.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
3 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Shante Antrom | INTERIM EXECUTIVE DIRECTOR (FROM NOVEMBER) | 2025 | $27,518 | $27,518 | 1 |
| Joslyn Crowe (former) | EXECUTIVE DIRECTOR THRU SEPTEMBER | 2018-2024 | $108,839 | $853,165 | 1 |
| Nadine Hill (former) | EXECUTIVE DIRECTOR | 2016 | $78,072 | $78,072 | 1 |
Officers and directors, no compensation reported
33 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Elizabeth Heinze | CHAIR | 2023-2025 | 20 | $0 reported | 1 |
| Becky Mcguire | VICE CHAIR (THRU JUNE) | 2019-2025 | 1 | $0 reported | 1 |
| Mike Smith | TREASURER | 2020-2025 | 2 | $0 reported | 1 |
| Taylor Sabky | SECRETARY/VICE CHAIR | 2022-2025 | 5 | $0 reported | 1 |
| Anthony Leoni | DIRECTOR | 2020-2025 | 1 | $0 reported | 1 |
| Dawn Stites | DIRECTOR | 2024-2025 | 1 | $0 reported | 1 |
| Gail Koujaian | DIRECTOR | 2022-2025 | 1 | $0 reported | 1 |
| Garland Alvey | DIRECTOR | 2024-2025 | 1 | $0 reported | 1 |
| Kari Lato | DIRECTOR (THRU JUNE) | 2021-2025 | 1 | $0 reported | 1 |
| Kelly Lee | DIRECTOR | 2024-2025 | 1 | $0 reported | 1 |
| Mary Frances Harmon | DIRECTOR | 2021-2025 | 1 | $0 reported | 1 |
| Meghann Ferguson | DIRECTOR (THRU JUNE) | 2019-2025 | 1 | $0 reported | 1 |
| Paul Merrigan | DIRECTOR | 2020-2025 | 1 | $0 reported | 1 |
| Travis Obermeyer | DIRECTOR (THRU JUNE) | 2022-2025 | 1 | $0 reported | 1 |
| Deborah Cho | DIRECTOR | 2025 | 1 | $0 reported | 1 |
| Saira Sultan | EXECUTIVE DIRECTOR (THRU JUNE) | 2025 | 40 | $0 reported | 1 |
| Cara Gilmore (former) | DIRECTOR THRU JUNE | 2021-2024 | 1 | $0 reported | 1 |
| Chrystelle Bougault (former) | DIRECTOR | 2019-2024 | 1 | $0 reported | 1 |
| Liz Heinze (former) | VICE CHAIR | 2019-2022 | 1 | $0 reported | 1 |
| Justin Hopkin (former) | CHAIR EMERITUS | 2017-2022 | 4 | $0 reported | 1 |
| Missy Ward (former) | SECRETARY (THRU JUNE) | 2016-2021 | 1 | $0 reported | 1 |
| Kara Avik (former) | DIRECTOR | 2021 | 1 | $0 reported | 1 |
| Anne Oconnor-Smith (former) | INTERIM TREASURER (THRU MAY) | 2016-2020 | 1 | $0 reported | 1 |
| Kara Ayik (former) | DIRECTOR | 2020 | 1 | $0 reported | 1 |
| Lisa Chavez (former) | VICE CHAIR | 2016-2019 | 2 | $0 reported | 1 |
| Corinne Ward (former) | SECRETARY | 2017-2019 | 1 | $0 reported | 1 |
| Darrile Papier (former) | DIRECTOR | 2016-2019 | 1 | $0 reported | 1 |
| Jill Flinton (former) | TREASURER | 2016-2018 | 20 | $0 reported | 1 |
| Rhonda Brown-Kehoe (former) | DIRECTOR | 2016-2017 | 2 | $0 reported | 1 |
| Margo Frey (former) | DIRECTOR | 2016-2017 | 2 | $0 reported | 1 |
| Elissa Miller-Visoky (former) | DIRECTOR | 2016-2017 | 2 | $0 reported | 1 |
| Tammy Vaughan (former) | SECRETARY | 2016-2017 | 10 | $0 reported | 1 |
| Wayne Palmiter (former) | VICE CHAIR | 2016-2017 | 10 | $0 reported | 1 |
People by year
2025 · 17 people listed · 1 paid, $28K · 3 employees · 20 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SHANTE ANTROM | INTERIM EXECUTIVE DIRECTOR (FROM NOVEMBER) | 40 | $27,518 | $0 | $0 | $27,518 | 1 |
| ELIZABETH HEINZE | CHAIR | 20 | $0 | $0 | $0 | $0 | 1 |
| BECKY MCGUIRE | VICE CHAIR (THRU JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE SMITH | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| TAYLOR SABKY | SECRETARY/VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY LEONI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DAWN STITES | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GAIL KOUJAIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GARLAND ALVEY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KARI LATO | DIRECTOR (THRU JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLY LEE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY FRANCES HARMON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MEGHANN FERGUSON | DIRECTOR (THRU JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL MERRIGAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| TRAVIS OBERMEYER | DIRECTOR (THRU JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| DEBORAH CHO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SAIRA SULTAN | EXECUTIVE DIRECTOR (THRU JUNE) | 40 | $0 | $0 | $0 | $0 | 1 |
2024 · 17 people listed · 1 paid, $109K · 3 employees · 20 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR THRU SEPTEMBER | 40 | $105,504 | $0 | $3,335 | $108,839 | 1 |
| ELIZABETH HEINZE | CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| BECKY MCGUIRE | VICE CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE SMITH | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| TAYLOR SABKY | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY LEONI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CARA GILMORE | DIRECTOR THRU JUNE | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRYSTELLE BOUGAULT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DAWN STITES | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GAIL KOUJAIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GARLAND ALVEY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KARI LATO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLY LEE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY FRANCES HARMON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MEGHANN FERGUSON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL MERRIGAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| TRAVIS OBERMEYER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 14 people listed · 1 paid, $135K · 3 employees · 30 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR | 40 | $130,060 | $0 | $5,009 | $135,069 | 1 |
| BECKY MCGUIRE | CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH HEINZE | VICE CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| MEGHANN FERGUSON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE SMITH | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY FRANCES HARMON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRYSTELLE BOUGAULT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GAIL KOUJAIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CARA GILMORE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KARI LATO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY LEONI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL MERRIGAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| TRAVIS OBERMEYER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| TAYLOR SABKY | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
2022 · 15 people listed · 1 paid, $133K · 3 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR | 40 | $128,530 | $0 | $4,603 | $133,133 | 1 |
| BECKY MCGUIRE | CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| LIZ HEINZE | VICE CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| MEGHANN FERGUSON | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE SMITH | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY FRANCES HARMON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRYSTELLE BOUGAULT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GAIL KOUJAIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CARA GILMORE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KARI LATO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY LEONI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL MERRIGAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| TRAVIS OBERMEYER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| TAYLOR SABKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN HOPKIN | CHAIR EMERITUS | 4 | $0 | $0 | $0 | $0 | 1 |
2021 · 14 people listed · 1 paid, $133K · 3 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR | 40 | $128,432 | $0 | $4,122 | $132,554 | 1 |
| JUSTIN HOPKIN | CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| BECKY MCGUIRE | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| LIZ HEINZE | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE SMITH | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY FRANCES HARMON | DIRECTOR (SINCE JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRYSTELLE BOUGAULT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MEGHANN FERGUSON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CARA GILMORE | DIRECTOR (SINCE JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| KARI LATO | DIRECTOR (SINCE JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY LEONI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL MERRIGAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MISSY WARD | SECRETARY (THRU JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
| KARA AVIK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2020 · 12 people listed · 1 paid, $131K · 3 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR | 40 | $125,802 | $0 | $5,000 | $130,802 | 1 |
| JUSTIN HOPKIN | CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| BECKY MCGUIRE | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| MISSY WARD | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| ANNE OCONNOR-SMITH | INTERIM TREASURER (THRU MAY) | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRYSTELLE BOUGAULT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KARA AYIK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MEGHANN FERGUSON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LIZ HEINZE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY LEONI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL MERRIGAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE SMITH | TREASURER (FROM JUNE) | 1 | $0 | $0 | $0 | $0 | 1 |
2019 · 10 people listed · 1 paid, $127K · 3 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR | 40 | $127,480 | $0 | $0 | $127,480 | 1 |
| JUSTIN HOPKIN | CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| LISA CHAVEZ | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| CORINNE WARD | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| ANNE OCONNOR-SMITH | INTERIM TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRYSTELLE BOUGAULT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DARRILE PAPIER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MEGHANN FERGUSON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LIZ HEINZE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BECKY MCGUIRE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2018 · 7 people listed · 1 paid, $85K · 3 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR | 40 | $85,288 | $0 | $0 | $85,288 | 1 |
| JUSTIN HOPKIN | CHAIR | 20 | $0 | $0 | $0 | $0 | 1 |
| LISA CHAVEZ | VICE CHAIR | 20 | $0 | $0 | $0 | $0 | 1 |
| CORINNE WARD | SECRETARY | 10 | $0 | $0 | $0 | $0 | 1 |
| JILL FLINTON | TREASURER | 20 | $0 | $0 | $0 | $0 | 1 |
| ANNE O'CONNOR-SMITH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DARRILE PAPIER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2017 · 11 people listed · none paid · 3 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LISA CHAVEZ | CHAIR | 30 | $0 | $0 | $0 | $0 | 1 |
| JUSTIN HOPKIN | VICE CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| CORINNE WARD | SECRETARY | 10 | $0 | $0 | $0 | $0 | 1 |
| JILL FLINTON | TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| RHONDA BROWN-KEHOE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNE O'CONNOR-SMITH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGO FREY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ELISSA MILLER-VISOKY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DARRILE PAPIER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TAMMY VAUGHAN | SECRETARY | 10 | $0 | $0 | $0 | $0 | 1 |
| WAYNE PALMITER | VICE CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
2016 · 11 people listed · 1 paid, $78K · 6 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| NADINE HILL | EXECUTIVE DIRECTOR | 40 | $73,072 | $0 | $5,000 | $78,072 | 1 |
| LISA CHAVEZ | CHAIR | 20 | $0 | $0 | $0 | $0 | 1 |
| WAYNE PALMITER | VICE CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| TAMMY VAUGHAN | SECRETARY | 10 | $0 | $0 | $0 | $0 | 1 |
| JILL FLINTON | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| RHONDA BROWN-KEHOE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANNE O'CONNOR-SMITH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGO FREY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ELISSA MILLER-VISOKY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DARRILE PAPIER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MISSY WARD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2018 · 1 contractor · $140K
| Name | Location | Service | Paid |
|---|---|---|---|
| AMY KANT | WATERTOWN, MA | MANAGEMENT AND STRATEGIC PLANNING | $139,630 |
2017 · 1 contractor · $167K
| Name | Location | Service | Paid |
|---|---|---|---|
| AMY KANT | WATERTOWN, MA | MANAGEMENT AND STRATEGIC PLANNING | $167,478 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2023 · 1 grant to organizations · $23K
Listed grants add up to $22,803; the return's “grants paid” expense line says $108,422. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 1 grant to organizations · $40K
Listed grants add up to $40,000; the return's “grants paid” expense line says $107,831. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 1 grant to organizations · $90K
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $929,337 | $553,122 | $981,265 | $962,611 | $886,744 | $24,425 | $30,514 | 3 | 20 |
| 2024 · Form 990 | ||||||||
| $676,224 | $589,340 | $607,164 | $586,396 | $633,087 | $29,969 | $94,067 | 3 | 20 |
| 2023 · Form 990 | ||||||||
| $591,177 | $796,672 | $581,378 | $499,512 | $552,816 | $26,030 | $135,068 | 3 | 30 |
| 2022 · Form 990 | ||||||||
| $556,671 | $725,852 | $698,723 | $625,007 | $526,689 | $24,017 | $134,895 | 3 | 50 |
| 2021 · Form 990 | ||||||||
| $499,229 | $479,388 | $850,802 | $794,188 | $490,047 | $3,400 | $134,567 | 3 | 50 |
| 2020 · Form 990 | ||||||||
| $674,861 | $675,000 | $799,194 | $774,347 | $663,734 | $7,710 | $130,801 | 3 | 50 |
| 2019 · Form 990 | ||||||||
| $766,399 | $508,539 | $794,988 | $774,486 | $686,056 | $50,905 | $127,480 | 3 | 50 |
| 2018 · Form 990 | ||||||||
| $743,556 | $471,117 | $548,210 | $516,626 | $725,414 | $16,494 | $90,288 | 3 | 50 |
| 2017 · Form 990 | ||||||||
| $562,396 | $449,950 | $419,556 | $244,187 | $541,637 | $18,748 | $0 | 3 | 50 |
| 2016 · Form 990 | ||||||||
| $326,537 | $476,271 | $436,134 | $106,741 | $306,750 | $17,576 | $78,072 | 6 | 50 |
Funders of this organization
17 grantors reported grants to this organization, $474,240 in all, tax years 2010 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FORGOOD INC | DAF sponsor | Exact | 2010-2023 | 14 | $349,653 | 2023 | $7,366 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2021-2024 | 4 | $40,591 | 2024 | $7,307 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2022 | 1 | $26,100 | 2022 | $26,100 | show |
| THE HIDE AND SEEK FOUNDATION | Public charity | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2015-2020 | 6 | $25,000 | 2020 | $1,000 | show |
| ANDREWS FIREFLY FUND | Public charity | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2021 | 1 | $10,000 | 2021 | $10,000 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2024 | 1 | $6,081 | 2024 | $6,081 | show |
| CHARITIES AID FOUNDATION AMERICA | DAF sponsor | Exact | 2024 | 1 | $5,016 | 2024 | $5,016 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2020-2023 | 4 | $4,921 | 2023 | $1,156 | show |
| JANUS FOUNDATION | Private foundation | Fuzzy filed as “National Niemann-Pick Disease Foundation” | 2020-2021 | 2 | $2,678 | 2021 | $1,648 | show |
| ROBERT I SCHATTNER FOUNDATION INC | Private foundation | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2020 | 1 | $1,000 | 2020 | $1,000 | show |
| DE RAMEL FOUNDATION | Private foundation | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2015 | 1 | $1,000 | 2015 | $1,000 | show |
| ARTHUR J GALLAGHER FOUNDATION | Private foundation | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2020 | 1 | $900 | 2020 | $900 | show |
| JPMORGAN CHASE FOUNDATION | Private foundation | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2024-2025 | 2 | $450 | 2025 | $50 | show |
| NISOURCE CHARITABLE FOUNDATION | Private foundation | Fuzzy filed as “NATIONAL NIEMANN PICK DISEASE FOUNDATION” | 2016 | 1 | $300 | 2016 | $300 | show |
| NATIONAL CHRISTIAN CHARITABLE FOUNDATION | DAF sponsor | Exact | 2014 | 1 | $300 | 2014 | $300 | show |
| SEMPRA ENERGY FOUNDATION | Private foundation | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2023 | 1 | $200 | 2023 | $200 | show |
| GANNETT FOUNDATION INC | Private foundation | Fuzzy filed as “NATIONAL NIEMANN-PICK DISEASE FOUNDATION” | 2020 | 1 | $50 | 2020 | $50 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| ADNP KIDS RESEARCH FOUNDATION | WA | H11 | $1,121,205 | $1,131,127 | President | $0 | Same NTEE code H11, revenue within 2x |
| STASIS FOUNDATION | FL | H11 | $1,204,042 | $955,635 | Executive Director of Operations | $100,000 | Same NTEE code H11, revenue within 2x |
| NAVAJO HOPI HEALTH FOUNDATION INC | AZ | H11 | $719,093 | $79,888 | MEMBER | $56,400 | Same NTEE code H11, revenue within 2x |
| STAR LEGACY FOUNDATION | MN | H11 | $870,474 | $980,708 | EXECUTIVE DIRECTOR | $111,440 | Same NTEE code H11, revenue within 2x |
| A S P E N RHOADS RESEARCH FOUNDATION INC | MD | H11 | $616,524 | $234,095 | Chief Executive Officer | $359,274 | Same NTEE code H11, revenue within 2x |
| BRAIN MAPPING SUPPORT FOUNDATION | CA | H11 | $502,767 | $501,224 | CHAIRMAN | $0 | Same NTEE code H11, revenue within 2x |
| THE ARVO FOUNDATION FOR EYE RESEARCH INC | MD | H11 | $1,826,745 | $1,434,632 | EXECUTIVE DIRECTOR | $426,747 | Same NTEE code H11, revenue within 2x |
| CEREBRAL PALSY RESEARCH ENDOWMENT ASSOCIATION | KS | H11 | $1,588,169 | $1,347,294 | SECRETARY/TREASURER | $183,880 | Same NTEE code H11, revenue within 2x |
| INTERNATIONAL CLINICAL CYTOMETRY SOCIETY | IL | H11 | $683,469 | $869,361 | Past President | $0 | Same NTEE code H11, revenue within 2x |
| FRIENDS OF FSH RESEARCH | WA | H11 | $863,950 | $1,317,279 | PRESIDENT | $0 | Same NTEE code H11, revenue within 2x |
| COPIC MEDICAL FOUNDATION | CO | H11 | $1,026,218 | $673,174 | DIRECTOR, FOUNDATION | $95,000 | Same NTEE code H11, revenue within 2x |
| TOM SLICK MEMORIAL TRUST FBO | TX | H11 | $642,657 | $1,805,442 | PRESIDENT, CEO | $861,721 | Same NTEE code H11, revenue within 2x |
| COLUMBUS HEALTHCARE SYSTEM | TX | H11 | $1,853,122 | $1,690,675 | CEO | $265,416 | Same NTEE code H11, revenue within 2x |
| SIMONS FUND | PA | H11 | $664,249 | $695,032 | IMM. PAST EX | $123,459 | Same NTEE code H11, revenue within 2x |
| IHPBA FOUNDATION INC | WI | H11 | $281,319 | $307,951 | Director | $0 | Same NTEE code H11, revenue within 5x, same state |
| STEVENSON DENTAL FOUNDATION | CA | H11 | $369,675 | $400,998 | TREASURER | $48,000 | Same NTEE code H11, revenue within 5x |
| PURA SYNDROME FOUNDATION | ME | H11 | $256,460 | $107,971 | Co President | $0 | Same NTEE code H11, revenue within 5x |
| NCCN FOUNDATION | PA | H11 | $3,897,459 | $2,456,446 | CHIEF EXECUTIVE OFFICER | $728,776 | Same NTEE code H11, revenue within 5x |
| MED13L FOUNDATION INC | IL | H11 | $188,215 | $348,032 | TREASURER | $0 | Same NTEE code H11, revenue within 5x |
| CINCINNATI SIGHT RESTORATION FOUNDATION INC | OH | H11 | $3,555,236 | $2,356,060 | EXECUTIVE DIRECTOR AND SEC | $200,205 | Same NTEE code H11, revenue within 5x |
| FAMILIAL DYSAUTONOMIA NOW FOUNDATION | IL | H11 | $289,025 | $233,939 | PRESIDENT | $0 | Same NTEE code H11, revenue within 5x |
| RICHMOND MEDICAL CENTER FOUNDATION INC | NY | H11 | $2,748,386 | $3,237,333 | DIRECTOR - president/ceo | $1,400,400 | Same NTEE code H11, revenue within 5x |
| MONTGOMERY HEALTH FOUNDATION | PA | H11 | $462,814 | $4,591 | CHAIR - TRUSTEE | $0 | Same NTEE code H11, revenue within 5x |
| RESEARCH FOR A CURE | MD | H11 | $194,994 | $180,252 | TREASURER AND CFO | $7,500 | Same NTEE code H11, revenue within 5x, similar mission |
| HOFFMAN INSTITUTE SUPPORTINGFOUNDATION | CA | H11 | $4,191,180 | $863,248 | DIRECTOR | $214,219 | Same NTEE code H11, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $553,122 spent · pay $120,230 · grants $49,356 · events $192,701
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $192,701 | $190,715 | $1,986 | - | 34.8% | |
| Other salaries and wages | $74,824 | $48,894 | $20,799 | $5,131 | 13.5% | |
| Fees: management | $55,426 | $19,626 | $33,588 | $2,212 | 10.0% | |
| Grants to US individuals | $41,378 | $41,378 | - | - | 7.5% | |
| Fees: other services | $38,066 | $26,999 | $8,023 | $3,044 | 6.9% | |
| Fees: accounting | $33,677 | - | $33,677 | - | 6.1% | |
| Pay: officers, directors, trustees, key employees | $30,514 | $19,940 | $8,482 | $2,092 | 5.5% | |
| Office expenses | $17,405 | $4,717 | $2,086 | $10,602 | 3.1% | |
| Information technology | $12,171 | $5,920 | $2,347 | $3,904 | 2.2% | |
| Travel | $11,774 | $5,571 | $6,203 | - | 2.1% | |
| Other (as described) | MEMBERSHIP DUES | $10,550 | $10,000 | $550 | - | 1.9% |
| Payroll taxes | $8,729 | $5,704 | $2,426 | $599 | 1.6% | |
| Grants outside the US | $7,978 | $7,978 | - | - | 1.4% | |
| Other employee benefits | $6,163 | $4,027 | $1,713 | $423 | 1.1% | |
| Insurance | $4,887 | $3,245 | $1,286 | $356 | 0.9% | |
| Fees: legal | $4,505 | - | $4,505 | - | 0.8% | |
| All other expenses | $2,374 | - | $2,374 | - | 0.4% | |
| Total | $553,122 | 100% |
2024 · Form 990 · $589,340 spent · pay $204,465 · grants $44,068 · events $202,311
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $202,311 | $200,532 | $1,653 | $126 | 34.3% | |
| Pay: officers, directors, trustees, key employees | $94,067 | $67,159 | $18,098 | $8,810 | 16.0% | |
| Other salaries and wages | $87,732 | $63,461 | $16,587 | $7,684 | 14.9% | |
| Grants to US individuals | $43,910 | $43,910 | - | - | 7.5% | |
| Fees: accounting | $32,493 | - | $32,493 | - | 5.5% | |
| Travel | $30,594 | $25,816 | $4,725 | $53 | 5.2% | |
| Fees: other services | $29,324 | $7,222 | $20,283 | $1,819 | 5.0% | |
| Office expenses | $15,705 | $2,733 | $1,455 | $11,517 | 2.7% | |
| Payroll taxes | $14,566 | $10,466 | $2,779 | $1,321 | 2.5% | |
| Information technology | $12,615 | $7,225 | $1,927 | $3,463 | 2.1% | |
| Other employee benefits | $8,100 | $5,820 | $1,545 | $735 | 1.4% | |
| Other (as described) | MEMBERSHIP DUES | $5,689 | $5,000 | $689 | - | 1.0% |
| Insurance | $4,538 | $3,258 | $869 | $411 | 0.8% | |
| All other expenses | $4,181 | $248 | $3,933 | - | 0.7% | |
| Depreciation and depletion | $2,337 | - | $2,337 | - | 0.4% | |
| Occupancy | $970 | $696 | $186 | $88 | 0.2% | |
| Grants outside the US | $158 | $158 | - | - | 0.0% | |
| Interest | $50 | - | $50 | - | 0.0% | |
| Total | $589,340 | 100% |
2023 · Form 990 · $796,672 spent · pay $252,076 · grants $108,422 · events $189,447
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $189,447 | $189,371 | - | $76 | 23.8% | |
| Pay: officers, directors, trustees, key employees | $135,068 | $87,344 | $32,587 | $15,137 | 17.0% | |
| Fees: other services | $118,533 | $55,653 | $47,943 | $14,937 | 14.9% | |
| Other salaries and wages | $91,664 | $69,519 | $11,929 | $10,216 | 11.5% | |
| Grants to US individuals | $46,094 | $46,094 | - | - | 5.8% | |
| Grants outside the US | $39,525 | $39,525 | - | - | 5.0% | |
| Travel | $30,576 | $27,257 | $2,421 | $898 | 3.8% | |
| Fees: accounting | $27,889 | - | $27,889 | - | 3.5% | |
| Office expenses | $24,657 | $4,727 | $7,081 | $12,849 | 3.1% | |
| Grants to US organizations and governments | $22,803 | $22,803 | - | - | 2.9% | |
| Payroll taxes | $16,985 | $11,751 | $3,335 | $1,899 | 2.1% | |
| Information technology | $15,653 | $6,964 | $1,985 | $6,704 | 2.0% | |
| Other (as described) | MEMBERSHIP DUES | $10,850 | $10,000 | $850 | - | 1.4% |
| All other expenses | $8,613 | $725 | $5,213 | $2,675 | 1.1% | |
| Other employee benefits | $8,359 | $5,783 | $1,641 | $935 | 1.0% | |
| Insurance | $6,312 | $4,363 | $1,244 | $705 | 0.8% | |
| Depreciation and depletion | $2,804 | - | $2,804 | - | 0.4% | |
| Occupancy | $840 | $581 | $165 | $94 | 0.1% | |
| Total | $796,672 | 100% |
2022 · Form 990 · $725,852 spent · pay $245,343 · grants $107,831 · events $155,097
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $155,097 | $154,090 | $1,007 | - | 21.4% | |
| Pay: officers, directors, trustees, key employees | $134,895 | $91,894 | $33,799 | $9,202 | 18.6% | |
| Fees: other services | $93,527 | $72,012 | $12,054 | $9,461 | 12.9% | |
| Other salaries and wages | $84,877 | $62,850 | $17,949 | $4,078 | 11.7% | |
| Grants to US organizations and governments | $40,000 | $40,000 | - | - | 5.5% | |
| Grants outside the US | $38,452 | $38,452 | - | - | 5.3% | |
| Grants to US individuals | $29,379 | $29,379 | - | - | 4.0% | |
| Fees: accounting | $26,934 | - | $26,934 | - | 3.7% | |
| Travel | $23,168 | $16,244 | $6,924 | - | 3.2% | |
| Office expenses | $22,095 | $6,118 | $2,700 | $13,277 | 3.0% | |
| Payroll taxes | $16,696 | $11,756 | $3,931 | $1,009 | 2.3% | |
| Information technology | $16,182 | $10,341 | $3,238 | $2,603 | 2.2% | |
| Fees: management | $14,248 | - | $14,248 | - | 2.0% | |
| Other employee benefits | $8,875 | $6,249 | $2,090 | $536 | 1.2% | |
| All other expenses | $7,143 | $350 | $5,331 | $1,462 | 1.0% | |
| Insurance | $6,180 | $4,349 | $1,458 | $373 | 0.9% | |
| Occupancy | $4,800 | $3,378 | $1,132 | $290 | 0.7% | |
| Depreciation and depletion | $2,804 | - | $2,804 | - | 0.4% | |
| Advertising and promotion | $500 | - | $500 | - | 0.1% | |
| Total | $725,852 | 100% |
2021 · Form 990 · $479,388 spent · pay $235,987 · grants $32,421 · events $36,663
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Pay: officers, directors, trustees, key employees | $134,567 | $96,388 | $26,643 | $11,536 | 28.1% | |
| Other salaries and wages | $77,993 | $54,561 | $14,556 | $8,876 | 16.3% | |
| Fees: other services | $70,032 | $46,556 | $17,027 | $6,449 | 14.6% | |
| Conferences, conventions and meetings | $36,663 | $36,663 | - | - | 7.6% | |
| Information technology | $30,752 | $23,816 | $4,589 | $2,347 | 6.4% | |
| Fees: accounting | $25,874 | - | $25,874 | - | 5.4% | |
| Grants to US individuals | $20,242 | $20,242 | - | - | 4.2% | |
| Office expenses | $19,232 | $8,326 | $3,213 | $7,693 | 4.0% | |
| Payroll taxes | $16,103 | $11,431 | $3,122 | $1,550 | 3.4% | |
| Grants outside the US | $12,179 | $12,179 | - | - | 2.5% | |
| Fees: management | $11,591 | - | $11,591 | - | 2.4% | |
| Other employee benefits | $7,324 | $5,136 | $1,434 | $754 | 1.5% | |
| Insurance | $5,710 | $4,054 | $1,107 | $549 | 1.2% | |
| All other expenses | $5,391 | $625 | $4,286 | $480 | 1.1% | |
| Occupancy | $4,800 | $3,409 | $929 | $462 | 1.0% | |
| Depreciation and depletion | $468 | - | $468 | - | 0.1% | |
| Travel | $467 | $107 | $360 | - | 0.1% | |
| Total | $479,388 | 100% |
2020 · Form 990 · $675,000 spent · pay $243,301 · grants $109,390 · events $43,486
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: management | $173,478 | $143,623 | $24,161 | $5,694 | 25.7% | |
| Pay: officers, directors, trustees, key employees | $130,801 | $93,079 | $30,615 | $7,107 | 19.4% | |
| Other salaries and wages | $83,328 | $59,296 | $19,504 | $4,528 | 12.3% | |
| Grants outside the US | $80,000 | $80,000 | - | - | 11.9% | |
| Conferences, conventions and meetings | $43,486 | $43,486 | - | - | 6.4% | |
| Grants to US individuals | $27,390 | $27,390 | - | - | 4.1% | |
| Fees: accounting | $26,943 | - | $26,943 | - | 4.0% | |
| Information technology | $22,107 | $17,552 | $3,478 | $1,077 | 3.3% | |
| Office expenses | $16,915 | $7,213 | $2,342 | $7,360 | 2.5% | |
| Payroll taxes | $16,091 | $11,451 | $3,766 | $874 | 2.4% | |
| Other employee benefits | $13,081 | $9,308 | $3,062 | $711 | 1.9% | |
| Fees: other services | $11,590 | $11,590 | - | - | 1.7% | |
| Occupancy | $6,500 | $4,623 | $1,524 | $353 | 1.0% | |
| Travel | $6,487 | $6,051 | $436 | - | 1.0% | |
| Advertising and promotion | $5,657 | - | $5,634 | $23 | 0.8% | |
| All other expenses | $4,595 | $1,142 | $3,303 | $150 | 0.7% | |
| Insurance | $4,551 | $3,237 | $1,067 | $247 | 0.7% | |
| Grants to US organizations and governments | $2,000 | $2,000 | - | - | 0.3% | |
| Total | $675,000 | 100% |
2019 · Form 990 · $508,539 spent · pay $203,854 · grants $31,118 · events $44,693
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Pay: officers, directors, trustees, key employees | $127,480 | $86,366 | $32,084 | $9,030 | 25.1% | |
| Other salaries and wages | $51,596 | $29,892 | $19,092 | $2,612 | 10.1% | |
| Travel | $46,713 | $38,866 | $7,847 | - | 9.2% | |
| Fees: other services | $45,063 | $36,663 | $8,400 | - | 8.9% | |
| Conferences, conventions and meetings | $44,693 | $44,054 | $639 | - | 8.8% | |
| Grants to US individuals | $31,118 | $31,118 | - | - | 6.1% | |
| Other (as described) | BAD DEBT | $30,000 | - | $30,000 | - | 5.9% |
| Fees: management | $27,063 | $3,104 | $13,437 | $10,522 | 5.3% | |
| Fees: accounting | $26,202 | - | $26,202 | - | 5.2% | |
| Information technology | $16,778 | $12,714 | $4,064 | - | 3.3% | |
| Office expenses | $15,897 | $6,945 | $2,387 | $6,565 | 3.1% | |
| Payroll taxes | $13,668 | $9,154 | $3,596 | $918 | 2.7% | |
| Other employee benefits | $11,110 | - | $11,110 | - | 2.2% | |
| All other expenses | $9,059 | $4,172 | $4,887 | - | 1.8% | |
| Occupancy | $7,200 | $5,456 | $1,744 | - | 1.4% | |
| Insurance | $4,722 | $3,578 | $1,144 | - | 0.9% | |
| Advertising and promotion | $177 | - | $37 | $140 | 0.0% | |
| Total | $508,539 | 100% |
2018 · Form 990 · $471,117 spent · pay $177,851 · grants $0 · events $58,915
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: management | $131,744 | $49,064 | $82,680 | - | 28.0% | |
| Pay: officers, directors, trustees, key employees | $90,288 | $54,173 | $31,601 | $4,514 | 19.2% | |
| Other salaries and wages | $63,819 | $38,291 | $22,336 | $3,192 | 13.5% | |
| Conferences, conventions and meetings | $58,915 | $58,525 | $390 | - | 12.5% | |
| Fees: other services | $27,274 | $14,023 | $5,365 | $7,886 | 5.8% | |
| Office expenses | $17,769 | $4,735 | $4,939 | $8,095 | 3.8% | |
| Information technology | $14,674 | $8,804 | $5,136 | $734 | 3.1% | |
| Payroll taxes | $13,744 | $8,247 | $4,810 | $687 | 2.9% | |
| Travel | $13,218 | $10,605 | $2,613 | - | 2.8% | |
| Other employee benefits | $10,000 | $6,000 | $3,500 | $500 | 2.1% | |
| Other (as described) | OTHER EXPENSES | $9,299 | $6,603 | $2,327 | $369 | 2.0% |
| Fees: accounting | $8,200 | - | $8,200 | - | 1.7% | |
| Occupancy | $7,200 | $4,320 | $2,520 | $360 | 1.5% | |
| Insurance | $4,973 | $1,807 | $3,015 | $151 | 1.1% | |
| Total | $471,117 | 100% |
2017 · Form 990 · $449,950 spent · pay $89,041 · grants $0 · events $77,252
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: management | $183,378 | $49,446 | $130,400 | $3,532 | 40.8% | |
| Conferences, conventions and meetings | $77,252 | $74,841 | $2,411 | - | 17.2% | |
| Other salaries and wages | $73,059 | $49,681 | $21,917 | $1,461 | 16.2% | |
| Office expenses | $28,902 | $15,259 | $9,103 | $4,540 | 6.4% | |
| Other (as described) | BAD DEBT EXPENSE | $25,800 | - | $25,800 | - | 5.7% |
| Information technology | $14,812 | $10,072 | $4,444 | $296 | 3.3% | |
| Travel | $12,741 | $9,584 | $3,157 | - | 2.8% | |
| Other employee benefits | $10,520 | $7,154 | $3,156 | $210 | 2.3% | |
| Payroll taxes | $5,462 | $3,714 | $1,639 | $109 | 1.2% | |
| Occupancy | $5,250 | $3,570 | $1,575 | $105 | 1.2% | |
| Insurance | $4,916 | $1,999 | $2,857 | $60 | 1.1% | |
| Fees: accounting | $4,095 | - | $4,095 | - | 0.9% | |
| Other (as described) | RESEARCH EXPENSE REIMBU | $1,975 | $1,975 | - | - | 0.4% |
| Other (as described) | DUES AND SUBSCRIPTIONS | $1,788 | - | - | $1,788 | 0.4% |
| Total | $449,950 | 100% |
2016 · Form 990 · $476,271 spent · pay $164,520 · grants $90,000 · events $69,557
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $90,000 | $90,000 | - | - | 18.9% | |
| Pay: officers, directors, trustees, key employees | $78,072 | $53,088 | $23,422 | $1,562 | 16.4% | |
| Conferences, conventions and meetings | $69,557 | $60,837 | $8,720 | - | 14.6% | |
| Other salaries and wages | $66,859 | $45,464 | $20,058 | $1,337 | 14.0% | |
| Fees: management | $65,654 | - | $65,654 | - | 13.8% | |
| Office expenses | $31,979 | $15,461 | $5,083 | $11,435 | 6.7% | |
| Information technology | $12,508 | $8,436 | $3,768 | $304 | 2.6% | |
| Travel | $11,329 | $4,193 | $7,136 | - | 2.4% | |
| Payroll taxes | $10,548 | $7,173 | $3,164 | $211 | 2.2% | |
| Other (as described) | RESEARCH EXPENSE REIMBU | $9,068 | $9,068 | - | - | 1.9% |
| Other employee benefits | $9,041 | $5,992 | $2,873 | $176 | 1.9% | |
| Fees: accounting | $8,186 | - | $8,186 | - | 1.7% | |
| Insurance | $4,129 | $1,720 | $2,358 | $51 | 0.9% | |
| Occupancy | $3,600 | - | $3,600 | - | 0.8% | |
| Other (as described) | FELLOWSHIP EXPENSE | $3,101 | $3,101 | - | - | 0.7% |
| All other expenses | $1,038 | $273 | $411 | $354 | 0.2% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $923 | $243 | $365 | $315 | 0.2% |
| Fees: other services | $679 | - | $679 | - | 0.1% | |
| Total | $476,271 | 100% |
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2020 | $0 | $0 | 1 |
Largest awards · 0 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|
State business registration
- NATIONAL NIEMANN PICK DISEASE FOUNDATION VA, Nonstock corporation, Inactive (Surrendered), formed 1992-06-19
The same business name in the same state, from the state’s official registry data.
Comments