NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION

Cite this

Plain text NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION. furp.org, nonprofit organization profile, tax years 2013–2024. https://furp.org/org/national-spasmodic-torticollis-association-330879421. Retrieved 2026-10-30.

APA furp.org. (n.d.). NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION [Nonprofit organization profile; tax years 2013–2024]. Retrieved October 30, 2026, from https://furp.org/org/national-spasmodic-torticollis-association-330879421

MLA “NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION.” furp.org, tax years 2013–2024, https://furp.org/org/national-spasmodic-torticollis-association-330879421. Accessed 30 Oct. 2026.

Retrieved 2026-10-30; covers tax years 2013–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $55K · expenses $231K · assets $94K

Also known as
Association
EIN
33-0879421
Address
9920 TALBERT AVE, FOUNTAIN VLY, CA 92708-5153
Website
www.torticollis.org
NTEE code
G50
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
July 2000 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Justin Aquines Treasurer2013-2024 $0$74,617 1

Officers and directors, no compensation reported

5 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Kenneth Price President2013-2024 0 $0 reported 1
Sandra Levine Secretary2021-2024 0 $0 reported 1
Karen Frei MD Chariman2022-2024 0 $0 reported 1
Mark LeDoux (former) Chairman2013-2021 0 $0 reported 1
Diane Truong (former) Vice President Secretary2013-2020 0 $0 reported 1

People by year

2024 · 4 people listed · none paid · 2 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kenneth Price President0 $0$0$0 $01
Karen Frei MD Chariman0 $0$0$0 $01
Sandra Levine Secretary0 $0$0$0 $01
Justin Aquines Treasurer0 $0$0$0 $01
2023 · 4 people listed · none paid · 2 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kenneth Price Treasurer0 $0$0$0 $01
Justin Aquines Treasurer0 $0$0$0 $01
Sandra Levine Secretary0 $0$0$0 $01
Karen Frei MD Chariman0 $0$0$0 $01
2022 · 4 people listed · none paid · 2 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kenneth Price Treasurer0 $0$0$0 $01
Justin Aquines Treasurer0 $0$0$0 $01
Sandra Levine Secretary0 $0$0$0 $01
Karen Frei MD Chariman0 $0$0$0 $01
2021 · 4 people listed · none paid · 2 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kenneth Price Treasurer0 $0$0$0 $01
Justin Aquines Treasurer0 $0$0$0 $01
Sandra Levine Secretary0 $0$0$0 $01
Mark LeDoux Chairman0 $0$0$0 $01
2020 · 4 people listed · none paid · 2 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kenneth Price Treasurer0 $0$0$0 $01
Diane Truong Vice President Secretary0 $0$0$0 $01
Mark LeDoux Chairman0 $0$0$0 $01
Justin Aquines Executive Director0 $0$0$0 $01
2019 · 4 people listed · none paid · 2 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Mark LeDoux Chairman0 $0$0$0 $01
Diane Truong Vice President Secretary0 $0$0$0 $01
Kenneth Price Treasurer0 $0$0$0 $01
Justin Aquines Executive Director0 $0$0$0 $01
2018 · 4 people listed · none paid · 2 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Mark LeDoux Chairman0 $0$0$0 $01
Diane Truong Vice President Secretary0 $0$0$0 $01
Kenneth Price Treasurer0 $0$0$0 $01
Justin Aquines Executive Director0 $0$0$0 $01
2017 · 4 people listed · none paid · 2 employees · 5 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Mark LeDoux Chairman0 $0$0$0 $01
Diane Truong Vice President Secretary0 $0$0$0 $01
Kenneth Price Treasurer0 $0$0$0 $01
Justin Aquines Executive Director0 $0$0$0 $01
2016 · 4 people listed · none paid · 3 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Mark LeDoux Chairman0 $0$0$0 $01
Diane Truong Vice President Secretary0 $0$0$0 $01
Kenneth Price Treasurer0 $0$0$0 $01
Justin Aquines Executive Director40 $0$0$0 $01
2015 · 4 people listed · 1 paid, $37K · 3 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Justin Aquines Executive Director40 $37,373$0$0 $37,3731
Mark LeDoux Chairman0 $0$0$0 $01
Diane Truong Vice President Secretary0 $0$0$0 $01
Kenneth Price Treasurer0 $0$0$0 $01
2013 · 4 people listed · 1 paid, $37K · 3 employees · 2 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Mr Justin Aquines Executive Director40 $37,244$0$0 $37,2441
Dr Mark LeDoux Chairman0 $0$0$0 $01
Mrs Diane Truong Vice President Secretary0 $0$0$0 $01
Mr Kenneth Price Treasurer0 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2025-09-30 · view filing · original 990 ↗
$54,564$231,431 $94,045$94,045 $54,557$0 $02-
2023 · Form 990 period ending 2024-09-30 · view filing · original 990 ↗
$69,741$197,614 $270,912$270,912 $57,190$0 $02-
2022 · Form 990 period ending 2023-09-30 · view filing · original 990 ↗
$436,033$183,921 $398,785$398,785 $436,006$0 $02-
2021 · Form 990 period ending 2022-09-30 · view filing · original 990 ↗
$411,670$183,502 $146,673$146,673 $411,648$0 $02-
2020 · Form 990 period ending 2021-09-30 · view filing · original 990 ↗
$77,423$97,205 -$81,495-$81,495 $77,420$0 $02-
2019 · Form 990 period ending 2020-09-30 · view filing · original 990 ↗
$90,953$72,678 -$61,713-$61,713 $90,950$0 $02-
2018 · Form 990 period ending 2019-09-30 · view filing · original 990 ↗
$95,964$88,687 -$79,988-$79,988 $95,963$0 $02-
2017 · Form 990 period ending 2018-09-30 · view filing · original 990 ↗
$75,501$109,745 -$87,265-$87,265 $75,500$0 $025
2016 · Form 990 period ending 2017-09-30 · view filing · original 990 ↗
$134,032$130,041 -$53,021-$53,021 $134,031$0 $38,4043-
2015 · Form 990 period ending 2016-09-30 · view filing · original 990 ↗
$93,541$161,469 -$57,012-$57,012 $93,534$0 $37,3733-
2013 · Form 990 period ending 2014-09-30 · view filing · original 990 ↗
$132,085$184,603 $15,335$15,335 $132,071$0 $37,24332

Funders of this organization

4 grantors reported grants to this organization, $11,142 in all, tax years 2015 to 2023. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
ABBVIE FOUNDATION Private foundation Fuzzy filed as “National Spasmodic Torticollis Association” 2021 1$10,000 2021$10,000
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION” 2020-2023 4$942 2023$179
show
SALESFORCE COM FOUNDATION Private foundation Fuzzy filed as “National Spasmodic Torticollis Association” 2015 1$150 2015$150
show
JPMORGAN CHASE FOUNDATION Private foundation Fuzzy filed as “NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION” 2023 1$50 2023$50
show

Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
MEYROW FOUNDATIONCAG50 $108,502$111,427 OFFICER$0 Same NTEE code G50, revenue within 2x, same state
ADCY5 ORG INCCAG50 $83,627$76,321 President$0 Same NTEE code G50, revenue within 2x, same state
CENTRAL COAST QUALITY OF LIFE PROGRAMSCAG50 $89,639$95,706 EXECUTIVE DIREC$20,160 Same NTEE code G50, revenue within 2x, same state
NYSNOBIOMETRIXCAG50 $83,663$112,112 DIRECTOR$0 Same NTEE code G50, revenue within 2x, same state
LAGUNA BEACH ROTARY CLUB FOUNDATIONCAG50 $72,788$43,467 President$0 Same NTEE code G50, revenue within 2x, same state
GRAINS OF GOOD FOUNDATIONCAG50 $91,243$92,761 MANAGER$30,000 Same NTEE code G50, revenue within 2x, same state
NEUROVASCULAR FOUNDATIONCAG50 $90,571$46,957 PRESIDENT AND CEO$0 Same NTEE code G50, revenue within 2x, same state
UNITED SPINAL ASSOCIATION INCPAG50 $68,092$49,263 PRESIDENT$0 Same NTEE code G50, revenue within 2x
UNITED SPINAL ASSOCIATION ILLINOIS CHAPTERILG50 $88,770$113,070 Executive Director$67,374 Same NTEE code G50, revenue within 2x
GREATER KANSAS CITY SPINAL CORD INJURY ASSOCIATIONMOG50 $99,822$56,957 President$0 Same NTEE code G50, revenue within 2x, similar mission
UNITED SPINAL ASSOCIATION ATLANTA INCGAG50 $100,779$62,876 President$0 Same NTEE code G50, revenue within 2x
UNITED SPINAL ASSOCIATION INCNCG50 $108,439$101,241 CHAIRPERSON$0 Same NTEE code G50, revenue within 2x
UNITED SPINAL ASSOCIATION INCMIG50 $34,847$25,869 PRESIDENT$0 Same NTEE code G50, revenue within 2x
OHIO PARKINSON FOUNDATION NORTHWEST REGION INCOHG50 $45,849$77,478 PRESIDENT$0 Same NTEE code G50, revenue within 2x
PHILIPPINES PARKINSONS FOUNDATION U SA INCNJG50 $52,315$380 President$0 Same NTEE code G50, revenue within 2x
THE SUSIE FOUNDATION INCCTG50 $82,583$79,930 Founder & Executive Director$5,000 Same NTEE code G50, revenue within 2x
MS CENTER OF BOSTON A NONPROFIT CORPORATIONMAG50 $72,188$43,353 TREASURER/DIRECTOR$0 Same NTEE code G50, revenue within 2x
WISCONSIN ORTHOPAEDIC SOCIETYWIG50 $63,337$51,524 EXECUTIVE DIRECTOR$0 Same NTEE code G50, revenue within 2x
THE SOCIETY ON NEUROIMMUNE PHARMACOLOGY INCFLG50 $75,825$128,195 Meeting Chair (Thru 6/25)$0 Same NTEE code G50, revenue within 2x
MILLER MCNEIL WOODRUFF FOUNDATIONARG50 $89,017$83,422 PRESIDENT$0 Same NTEE code G50, revenue within 2x
INTERNATIONAL SOCIETY OF ORTHOPAEDI ORTHOPAEDID CENTERS LTD ISOC INCNYG50 $70,568$64,335 DIRECTOR$0 Same NTEE code G50, revenue within 2x
TALIA DUFF FOUNDATION INCMAG50 $102,554$59,989 TREASURER$0 Same NTEE code G50, revenue within 2x
AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETYMAG50 $56,607$85,338 President$0 Same NTEE code G50, revenue within 2x
NEUROLOGIC DISEASE FOUNDATIONVAG50 $42,704$44,674 President and Program Director$0 Same NTEE code G50, revenue within 2x
FOUNDATION FOR MEDICAL EDUCATION & RESEARCH INCNJG50 $69,086$68,935 PRESIDENT$0 Same NTEE code G50, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$760,06042 202016–2024 NEUROVASCULAR FOUNDATION; HOPE FOR CHILDREN RESEARCH FOUNDATION INC; FRIENDS OF PARKINSONS INC; TALIA DUFF FOUNDATION INC and 16 more
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$531,3004 22019–2022 CRMO FOUNDATION; ONE STEP CLOSER THERAPEUTIC RIDING
FORGOOD INC DAF sponsor$345,56729 122010–2023 HOPE FOR CHILDREN RESEARCH FOUNDATION INC; THE JOSHUA FRASE FOUNDATION FOR CONGENITAL MYOPATHY RESEARCH INC; TALIA DUFF FOUNDATION INC; AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY and 8 more
THE BATCHELOR FOUNDATION INC Private foundation$285,0006 12012–2020 STAND AMONG FRIENDS INC
CHAMI FAMILY FOUNDATION Private foundation$280,0004 12022–2025 CAMER RAND FUND INC
JEWISH FEDERATION OF GREATER ANN ARBOR DAF sponsor$270,0006 12011–2018 STAND AMONG FRIENDS INC
DONOR ADVISED CHARITABLE GIVING DAF sponsor$269,33620 92015–2024 MONTEREY BAY POWER OVER PARKINSONS INC; GRAINS OF GOOD FOUNDATION; PICKALS FOUNDATION INC; ONE STEP CLOSER THERAPEUTIC RIDING and 5 more
WACO FOUNDATION DAF sponsor$162,0096 12014–2020 UNITED CANCER SOCIETY
THE COMMUNITY FOUNDATION FOR NORTHEAST FLORIDA INC DAF sponsor$153,0007 22021–2024 THE JOSHUA FRASE FOUNDATION FOR CONGENITAL MYOPATHY RESEARCH INC; JAX HOPE INC
THE COMMUNITY FOUNDATION INC DAF sponsor$150,0005 12020–2024 UNITED SPINAL ASSOCIATION INC
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$148,57414 62021–2025 GRAINS OF GOOD FOUNDATION; THE SUSIE FOUNDATION INC; UP ENDING PARKINSONS; ONE STEP CLOSER THERAPEUTIC RIDING and 2 more
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor$82,4008 52019–2024 WALTER BOUGHTON FOUNDATION INC; CAMER RAND FUND INC; STRONGWHENWEAK; CAMP MILTON INC and 1 more
COMMUNITY FOUNDATION FOR MONTEREY COUNTY DAF sponsor$59,1481 12016–2016 CENTRAL COAST QUALITY OF LIFE PROGRAMS
PAYPAL CHARITABLE GIVING FUND DAF sponsor$58,0917 62018–2021 DAMIEN THE LEPER SOCIETY INC; AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY; MILLER MCNEIL WOODRUFF FOUNDATION; POWERS PROMISE and 2 more
BOSTON FOUNDATION INC DAF sponsor$50,0002 12015–2017 PICKALS FOUNDATION INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $231,431 spent · pay $139,672 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $129,538-$129,538- 56.0%
All other expenses $88,558$70,352$18,206- 38.3%
Payroll taxes $10,134-$10,134- 4.4%
Insurance $3,175-$3,175- 1.4%
Depreciation and depletion $26-$26- 0.0%
Total$231,431100%

View the filing

2023 · Form 990 · $197,614 spent · pay $126,312 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $117,128-$117,128- 59.3%
All other expenses $67,331$24,082$43,249- 34.1%
Payroll taxes $9,184-$9,184- 4.6%
Insurance $2,945-$2,945- 1.5%
Travel $1,000-$1,000- 0.5%
Depreciation and depletion $26-$26- 0.0%
Total$197,614100%

View the filing

2022 · Form 990 · $183,921 spent · pay $121,206 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $110,160-$110,160- 59.9%
All other expenses $56,598$30,448$26,150- 30.8%
Payroll taxes $11,046-$11,046- 6.0%
Travel $5,473-$5,473- 3.0%
Insurance $644$644-- 0.4%
Total$183,921100%

View the filing

2021 · Form 990 · $183,502 spent · pay $122,359 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $122,359-$122,359- 66.7%
All other expenses $61,135$22,588$38,547- 33.3%
Interest $8-$8- 0.0%
Total$183,502100%

View the filing

2020 · Form 990 · $97,205 spent · pay $73,027 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $73,027-$73,027- 75.1%
All other expenses $21,528$9,934$11,594- 22.1%
Fees: accounting $2,650-$2,650- 2.7%
Total$97,205100%

View the filing

2019 · Form 990 · $72,678 spent · pay $44,083 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $44,083-$44,083- 60.7%
All other expenses $26,645$17,793$8,852- 36.7%
Fees: accounting $1,950-$1,950- 2.7%
Total$72,678100%

View the filing

2018 · Form 990 · $88,687 spent · pay $52,629 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $52,629$2,962$49,667- 59.3%
All other expenses $28,677$11,127$17,550- 32.3%
Travel $2,611$2,611-- 2.9%
Fees: accounting $2,575-$2,575- 2.9%
Insurance $2,195-$2,195- 2.5%
Total$88,687100%

View the filing

2017 · Form 990 · $109,745 spent · pay $52,715 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
All other expenses $54,220$27,926$26,294- 49.4%
Other salaries and wages $52,715-$52,715- 48.0%
Insurance $2,703-$2,703- 2.5%
Depreciation and depletion $107-$107- 0.1%
Total$109,745100%

View the filing

2016 · Form 990 · $130,041 spent · pay $80,175 · grants $0 · events $1,690
LineAs describedTotalProgramManagementFundraisingShare
All other expenses $44,314$25,401$18,913- 34.1%
Pay: officers, directors, trustees, key employees $38,404-$38,404- 29.5%
Other salaries and wages $35,165-$35,165- 27.0%
Payroll taxes $6,606-$6,606- 5.1%
Insurance $2,937-$2,937- 2.3%
Conferences, conventions and meetings $1,690$1,690-- 1.3%
Travel $350$350-- 0.3%
Depreciation and depletion $210-$210- 0.2%
Advertising and promotion $200-$200- 0.2%
Other (as described)Bank Service Charges $165-$165- 0.1%
Total$130,041100%

View the filing

2015 · Form 990 · $161,469 spent · pay $98,801 · grants $0 · events $13,867
LineAs describedTotalProgramManagementFundraisingShare
All other expenses $44,557$36,500$8,057- 27.6%
Other salaries and wages $43,476-$43,476- 26.9%
Pay: officers, directors, trustees, key employees $37,373-$37,373- 23.1%
Payroll taxes $17,952-$17,952- 11.1%
Conferences, conventions and meetings $13,867$13,867-- 8.6%
Insurance $3,010-$3,010- 1.9%
Travel $732$732-- 0.5%
Other (as described)Bank Service Charges $256-$256- 0.2%
Depreciation and depletion $210-$210- 0.1%
Advertising and promotion $36-$36- 0.0%
Total$161,469100%

View the filing

2013 · Form 990 · $184,603 spent · pay $103,759 · grants $0 · events $22,469
LineAs describedTotalProgramManagementFundraisingShare
All other expenses $44,596$26,944$15,059$2,593 24.2%
Other salaries and wages $37,722-$37,722- 20.4%
Pay: officers, directors, trustees, key employees $37,243-$37,243- 20.2%
Payroll taxes $28,794-$28,794- 15.6%
Conferences, conventions and meetings $22,469$22,469-- 12.2%
Travel $8,418-$8,418- 4.6%
Insurance $2,529-$2,529- 1.4%
Fees: accounting $2,500-$2,500- 1.4%
Information technology $167-$167- 0.1%
Depreciation and depletion $95-$95- 0.1%
Other (as described)Bank Service Charges $70-$70- 0.0%
Total$184,603100%

View the filing

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