BARTH SYNDROME FOUNDATION INC

Cite this

Plain text BARTH SYNDROME FOUNDATION INC. furp.org, nonprofit organization profile, tax years 2010–2025. https://furp.org/org/barth-syndrome-foundation-inc-223755704. Retrieved 2026-11-01.

APA furp.org. (n.d.). BARTH SYNDROME FOUNDATION INC [Nonprofit organization profile; tax years 2010–2025]. Retrieved November 1, 2026, from https://furp.org/org/barth-syndrome-foundation-inc-223755704

MLA “BARTH SYNDROME FOUNDATION INC.” furp.org, tax years 2010–2025, https://furp.org/org/barth-syndrome-foundation-inc-223755704. Accessed 1 Nov. 2026.

Retrieved 2026-11-01; covers tax years 2010–2025. Data: furp.org, CC BY 4.0.

2025 · Form 990 · revenue $2.2M · expenses $2.1M · assets $6.0M

EIN: 22-3755704
Address: 2005 PALMER AVENUE 1033, LARCHMONT, NY 10538-2437
Website: WWW.BARTHSYNDROME.ORG
NTEE code: T30
Exempt type: 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date: January 2001 (when the IRS recognized its exemption)
IRS status: Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations: Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status: Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check: ProPublica Nonprofit Explorer

Mission

THE BARTH SYNDROME FOUNDATION IS AN ENGAGED, GLOBAL COMMUNITY WHOSE MISSION IS SAVING LIVES THROUGH EDUCATION, ADVANCES IN TREATMENTS, AND FINDING A CURE FOR BARTH SYNDROME.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

10 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

Name	Latest title	Years	Latest year pay	Total pay from here	Organizations
Emily Milligan	EXECUTIVE DIRECTOR	2018-2025	$259,135	$1,619,642	1
Lindsay Marjoram	DIRECTOR OF RESEARCH	2024-2025	$215,362	$397,558	1
Yong Lin Huang	RESEARCH ASSOCIATE, RESEARCH ENGAGEMENT AND ASSETS	2025	$114,274	$114,274	1
Laura Duvelius	DIRECTOR OF FUNDRAISING	2025	$107,448	$107,448	1
Matthew Toth (former)	DIR OF SCIENCE	2010-2019	$119,197	$1,496,905	1
Lindsay B Groff (former)	EXECUTIVE DIRECTOR	2011-2017	$120,029	$696,858	1
Valerie Bowen (former)	PRESIDENT, FORMER	2010-2016	$83,812	$544,241	1
Erik Lontok (former)	DIRECTOR OF RESEARCH	2020-2022	$136,123	$373,151	1
Linda Stundis (former)	EXECUTIVE DIREC	2010	$91,213	$91,213	1
Lynda Sedefian (former)	SECRETARY	2010	$56,133	$56,133	1

Officers and directors, no compensation reported

33 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

Name	Latest title	Years	Hrs/wk (latest)	Compensation	Organizations
Bruce Develle	BOARD MEMBER	2016-2025	2	$0 reported	1
Jonathan Stokes	BOARD MEMBER	2023-2025	2	$0 reported	1
Megan Branagh	BOARD MEMBER	2018-2025	2	$0 reported	1
Michelle Florez	BOARD MEMBER	2018-2025	2	$0 reported	1
Nina Russell	BOARD MEMBER	2020-2025	2	$0 reported	1
Peter Van Loo	BOARD MEMBER	2019-2025	2	$0 reported	1
Miriam Greenberg	BOARD MEMBER	2022-2025	2	$0 reported	1
Katherine Mccurdy	CHAIR	2010-2025	2	$0 reported	1
James Baffa	VICE CHAIR	2020-2025	2	$0 reported	1
Mark Greene	TREASURER	2022-2025	2	$0 reported	1
Brandi Dague	SECRETARY	2018-2025	2	$0 reported	1
Steve Graessle	BOARD MEMBER	2025	2	$0 reported	1
Stacey Woodward	BOARD MEMBER	2025	2	$0 reported	1
Andrew Buddemeyer Term 24 (former)	BOARD MEMBER	2024	2	$0 reported	1
Florence Mannes Term 24 (former)	BOARD MEMBER	2024	2	$0 reported	1
Andrew Buddemeyer (former)	BOARD MEMBER	2021-2023	2	$0 reported	1
Florence Mannes (former)	BOARD MEMBER	2015-2023	2	$0 reported	1
Maryanne Chrisant (former)	BOARD MEMBER	2021-2022	2	$0 reported	1
Kevin G Woodward (former)	TREASURER	2014-2022	2	$0 reported	1
Matthew Blumenthal (former)	BOARD MEMBER	2015-2020	2	$0 reported	1
David Axelrod Md (former)	BOARD MEMBER	2011-2020	2	$0 reported	1
Nicole Derusha-Mackey (former)	BOARD MEMBER	2016-2020	2	$0 reported	1
Susan A Mccormack (former)	CHAIR (FORMER)	2011-2020	2	$0 reported	1
John Wilkins (former)	SECRETARY (FORMER)	2011-2020	2	$0 reported	1
Catharine Lynne Ritter (former)	BOARD MEMBER TERM 9/2019	2015-2019	2	$0 reported	1
Susan Osnos (former)	BOARD MEMBER TERM 5/2018	2010-2018	2	$0 reported	1
Marcus Sernel (former)	CHAIRMAN TERM 5/2018	2010-2018	2	$0 reported	1
Randy Buddemeyer (former)	TREASURER	2010-2017	5	$0 reported	1
Stephen Kugelmann (former)	BOARD MEMBER	2010-2014	2	$0 reported	1
Susan Wilkins (former)	BOARD MEMBER	2010-2014	2	$0 reported	1
Cathy Ritter (former)	BOARD MEMBER	2013-2014	2	$0 reported	1
Michaela Damin (former)	BOARD MEMBER	2010-2012	2	$0 reported	1
Stephen B Mccurdy (former)	CHAIRMAN	2010-2012	15	$0 reported	1

People by year

2025 · 17 people listed · 4 paid, $696K · 6 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35	$235,989	$0	$23,146	$259,135	1
LINDSAY MARJORAM	DIRECTOR OF RESEARCH	35	$206,889	$0	$8,473	$215,362	1
YONG LIN HUANG	RESEARCH ASSOCIATE, RESEARCH ENGAGEMENT AND ASSETS	35	$109,767	$0	$4,507	$114,274	1
LAURA DUVELIUS	DIRECTOR OF FUNDRAISING	35	$103,592	$0	$3,856	$107,448	1
BRUCE DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
JONATHAN STOKES	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
NINA RUSSELL	BOARD MEMBER	2	$0	$0	$0	$0	1
PETER VAN LOO	BOARD MEMBER	2	$0	$0	$0	$0	1
MIRIAM GREENBERG	BOARD MEMBER	2	$0	$0	$0	$0	1
STEVE GRAESSLE	BOARD MEMBER	2	$0	$0	$0	$0	1
STACEY WOODWARD	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	CHAIR	2	$0	$0	$0	$0	1
JAMES BAFFA	VICE CHAIR	2	$0	$0	$0	$0	1
MARK GREENE	TREASURER	2	$0	$0	$0	$0	1
BRANDI DAGUE	SECRETARY	2	$0	$0	$0	$0	1

2024 · 15 people listed · 2 paid, $430K · 6 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35	$227,314	$0	$20,819	$248,133	1
LINDSAY MARJORAM	DIRECTOR OF RESEARCH	35	$174,980	$0	$7,216	$182,196	1
BRUCE DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
JONATHAN STOKES	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
NINA RUSSELL	BOARD MEMBER	2	$0	$0	$0	$0	1
PETER VAN LOO	BOARD MEMBER	2	$0	$0	$0	$0	1
MIRIAM GREENBERG	BOARD MEMBER	2	$0	$0	$0	$0	1
ANDREW BUDDEMEYER TERM 24	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES TERM 24	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	CHAIR	2	$0	$0	$0	$0	1
JAMES BAFFA	VICE CHAIR	2	$0	$0	$0	$0	1
MARK GREENE	TREASURER	2	$0	$0	$0	$0	1
BRANDI DAGUE	SECRETARY	2	$0	$0	$0	$0	1

2023 · 14 people listed · 1 paid, $230K · 7 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35	$210,452	$0	$19,442	$229,894	1
ANDREW BUDDEMEYER	BOARD MEMBER	2	$0	$0	$0	$0	1
BRANDI DAGUE	BOARD MEMBER	2	$0	$0	$0	$0	1
BRUCE DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
JONATHAN STOKES	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
NINA RUSSELL	BOARD MEMBER	2	$0	$0	$0	$0	1
PETER VAN LOO	BOARD MEMBER	2	$0	$0	$0	$0	1
MIRIAM GREENBERG	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	CHAIR	2	$0	$0	$0	$0	1
MARK GREENE	TREASURER	2	$0	$0	$0	$0	1
JAMES BAFFA	SECRETARY	2	$0	$0	$0	$0	1

2022 · 16 people listed · 2 paid, $343K · 6 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35	$198,896	$0	$8,346	$207,242	1
ERIK LONTOK	DIRECTOR OF RESEARCH	35	$130,646	$0	$5,477	$136,123	1
ANDREW BUDDEMEYER	BOARD MEMBER	2	$0	$0	$0	$0	1
BRANDI DAGUE	BOARD MEMBER	2	$0	$0	$0	$0	1
BRUCE DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
MARYANNE CHRISANT	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
NINA RUSSELL	BOARD MEMBER	2	$0	$0	$0	$0	1
PETER VAN LOO	BOARD MEMBER	2	$0	$0	$0	$0	1
MIRIAM GREENBERG	BOARD MEMBER	2	$0	$0	$0	$0	1
MARK GREENE	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	CHAIR	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	TREASURER	2	$0	$0	$0	$0	1
JAMES BAFFA	SECRETARY	2	$0	$0	$0	$0	1

2021 · 14 people listed · 2 paid, $301K · 4 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35	$169,692	$0	$9,777	$179,469	1
ERIK LONTOK	DIRECTOR OF RESEARCH	35	$116,501	$0	$5,527	$122,028	1
ANDREW BUDDEMEYER	BOARD MEMBER	2	$0	$0	$0	$0	1
BRANDI DAGUE	BOARD MEMBER	2	$0	$0	$0	$0	1
BRUCE DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
MARYANNE CHRISANT	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
NINA RUSSELL	BOARD MEMBER	2	$0	$0	$0	$0	1
PETER VAN LOO	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	CHAIR	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	TREASURER	2	$0	$0	$0	$0	1
JAMES BAFFA	SECRETARY	2	$0	$0	$0	$0	1

2020 · 17 people listed · 2 paid, $310K · 5 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35	$184,188	$0	$10,812	$195,000	1
ERIK LONTOK	DIRECTOR OF RESEARCH	35	$108,881	$0	$6,119	$115,000	1
MATTHEW BLUMENTHAL	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
BRUCE J DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
NICOLE DERUSHA-MACKEY	BOARD MEMBER	2	$0	$0	$0	$0	1
BRANDI DAGUE	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
PETER VAN LOO	BOARD MEMBER	2	$0	$0	$0	$0	1
NINA RUSSELL	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN A MCCORMACK	CHAIR (FORMER)	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	CHAIR	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	TREASURER	2	$0	$0	$0	$0	1
JOHN WILKINS	SECRETARY (FORMER)	2	$0	$0	$0	$0	1
JAMES BAFFA	ACTING SECRETARY	2	$0	$0	$0	$0	1

2019 · 15 people listed · 2 paid, $309K · 5 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35	$190,000	$0	$0	$190,000	1
MATTHEW TOTH	DIR OF SCIENCE	35	$110,808	$0	$8,389	$119,197	1
MATTHEW BLUMENTHAL	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
CATHARINE LYNNE RITTER	BOARD MEMBER TERM 9/2019	2	$0	$0	$0	$0	1
BRUCE J DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
NICOLE DERUSHA-MACKEY	BOARD MEMBER	2	$0	$0	$0	$0	1
BRANDI DAGUE	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
PETER VAN LOO	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN A MCCORMACK	CHAIR	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	TREASURER	2	$0	$0	$0	$0	1
JOHN WILKINS	SECRETARY	2	$0	$0	$0	$0	1

2018 · 16 people listed · 2 paid, $266K · 4 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$144,207	$0	$10,595	$154,802	1
EMILY MILLIGAN	EXECUTIVE DIRECTOR	40	$110,769	$0	$0	$110,769	1
MATTHEW BLUMENTHAL	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
MEGAN BRANAGH	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
CATHARINE LYNNE RITTER	BOARD MEMBER	2	$0	$0	$0	$0	1
BRUCE J DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
NICOLE DERUSHA-MACKEY	BOARD MEMBER	2	$0	$0	$0	$0	1
BRANDI DAGUE	BOARD MEMBER	2	$0	$0	$0	$0	1
MICHELLE FLOREZ	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER TERM 5/2018	2	$0	$0	$0	$0	1
SUSAN A MCCORMACK	CHAIR	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	TREASURER	2	$0	$0	$0	$0	1
JOHN WILKINS	SECRETARY	2	$0	$0	$0	$0	1
MARCUS SERNEL	CHAIRMAN TERM 5/2018	2	$0	$0	$0	$0	1

2017 · 14 people listed · 2 paid, $273K · 4 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$144,368	$0	$8,794	$153,162	1
LINDSAY B GROFF	EXECUTIVE DIRECTOR	40	$116,940	$0	$3,089	$120,029	1
MATTHEW BLUMENTHAL	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
JOHN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
CATHARINE LYNNE RITTER	BOARD MEMBER	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	BOARD MEMBER	2	$0	$0	$0	$0	1
BRUCE J DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
NICOLE DERUSHA-MACKEY	BOARD MEMBER	2	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	CHAIRMAN	10	$0	$0	$0	$0	1
SUSAN A MCCORMACK	SECRETARY	2	$0	$0	$0	$0	1

2016 · 15 people listed · 3 paid, $369K · 4 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$152,870	$0	$11,192	$164,062	1
LINDSAY B GROFF	EXECUTIVE DIRECTOR	40	$120,666	$0	$233	$120,899	1
VALERIE BOWEN	PRESIDENT, FORMER	40	$79,719	$0	$4,093	$83,812	1
MATTHEW BLUMENTHAL	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	CHAIRMAN	10	$0	$0	$0	$0	1
SUSAN A MCCORMACK	SECRETARY	2	$0	$0	$0	$0	1
JOHN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
CATHARINE LYNNE RITTER	BOARD MEMBER	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	BOARD MEMBER	2	$0	$0	$0	$0	1
BRUCE J DEVELLE	BOARD MEMBER	2	$0	$0	$0	$0	1
NICOLE DERUSHA-MACKEY	BOARD MEMBER	2	$0	$0	$0	$0	1

2015 · 13 people listed · 3 paid, $368K · 5 employees · 200 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$157,877	$0	$7,911	$165,788	1
LINDSAY B GROFF	EXECUTIVE DIRECTOR	40	$117,316	$0	$1,014	$118,330	1
VALERIE BOWEN	PRESIDENT, FORMER	40	$79,848	$0	$4,456	$84,304	1
MATTHEW BLUMENTHAL	BOARD MEMBER	2	$0	$0	$0	$0	1
FLORENCE MANNES	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	CHAIRMAN	10	$0	$0	$0	$0	1
SUSAN A MCCORMACK	SECRETARY	2	$0	$0	$0	$0	1
JOHN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
CATHARINE LYNNE RITTER	BOARD MEMBER	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	BOARD MEMBER	2	$0	$0	$0	$0	1

2014 · 14 people listed · 3 paid, $343K · 5 employees · 92 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$147,358	$0	$7,306	$154,664	1
LINDSAY B GROFF	EXECUTIVE DIRECTOR	40	$109,984	$0	$0	$109,984	1
VALERIE BOWEN	PRESIDENT, FORMER	40	$74,831	$0	$3,772	$78,603	1
STEPHEN KUGELMANN	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	BOARD MEMBER	10	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	CHAIRMAN	10	$0	$0	$0	$0	1
SUSAN A MCCORMACK	SECRETARY	2	$0	$0	$0	$0	1
JOHN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
CATHY RITTER	BOARD MEMBER	2	$0	$0	$0	$0	1
KEVIN G WOODWARD	BOARD MEMBER	2	$0	$0	$0	$0	1

2013 · 13 people listed · 3 paid, $341K · 4 employees · 20 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$143,781	$0	$7,209	$150,990	1
LINDSAY B GROFF	EXECUTIVE DIRECTOR	40	$110,308	$0	$0	$110,308	1
VALERIE BOWEN	PRESIDENT, FORMER	40	$72,526	$0	$7,266	$79,792	1
STEPHEN KUGELMANN	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	BOARD MEMBER	10	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	CHAIRMAN	10	$0	$0	$0	$0	1
SUSAN A MCCORMACK	SECRETARY	2	$0	$0	$0	$0	1
JOHN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1
CATHY RITTER	BOARD MEMBER	2	$0	$0	$0	$0	1

2012 · 14 people listed · 3 paid, $322K · 4 employees · 40 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$135,370	$0	$6,608	$141,978	1
LINDSAY B GROFF	EXECUTIVE DIRECTOR	40	$100,000	$0	$0	$100,000	1
VALERIE BOWEN	PRESIDENT, FORMER	40	$67,516	$0	$12,100	$79,616	1
MICHAELA DAMIN	BOARD MEMBER	2	$0	$0	$0	$0	1
STEPHEN KUGELMANN	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	BOARD MEMBER	10	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
STEPHEN B MCCURDY	CHAIRMAN	15	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	VICE-CHAIRMAN	5	$0	$0	$0	$0	1
SUSAN A MCCORMACK	SECRETARY	2	$0	$0	$0	$0	1
JOHN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1

2011 · 14 people listed · 3 paid, $240K · 4 employees · 50 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$133,874	$0	$17,943	$151,817	1
VALERIE BOWEN	PRESIDENT, FORMER	40	$60,880	$0	$9,610	$70,490	1
LINDSAY B GROFF	EXECUTIVE DIRECTOR	40	$17,308	$0	$0	$17,308	1
MICHAELA DAMIN	BOARD MEMBER	2	$0	$0	$0	$0	1
STEPHEN KUGELMANN	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	BOARD MEMBER	10	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
STEPHEN B MCCURDY	CHAIRMAN	15	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	SECRETARY	5	$0	$0	$0	$0	1
SUSAN A MCCORMACK	BOARD MEMBER	2	$0	$0	$0	$0	1
JOHN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
DAVID AXELROD MD	BOARD MEMBER	2	$0	$0	$0	$0	1

2010 · 12 people listed · 4 paid, $355K · 4 employees · 50 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MATTHEW TOTH	DIR OF SCIENCE	40	$120,103	$0	$20,342	$140,445	1
LINDA STUNDIS	EXECUTIVE DIREC	40	$84,696	$0	$6,517	$91,213	1
VALERIE BOWEN	PRESIDENT	40	$59,209	$0	$8,415	$67,624	1
LYNDA SEDEFIAN	SECRETARY	40	$45,522	$0	$10,611	$56,133	1
MICHAELA DAMIN	BOARD MEMBER	2	$0	$0	$0	$0	1
STEPHEN KUGELMANN	BOARD MEMBER	2	$0	$0	$0	$0	1
KATHERINE MCCURDY	BOARD MEMBER	10	$0	$0	$0	$0	1
SUSAN OSNOS	BOARD MEMBER	2	$0	$0	$0	$0	1
SUSAN WILKINS	BOARD MEMBER	2	$0	$0	$0	$0	1
STEPHEN B MCCURDY	CHAIRMAN	15	$0	$0	$0	$0	1
RANDY BUDDEMEYER	TREASURER	5	$0	$0	$0	$0	1
MARCUS SERNEL	SECRETARY	5	$0	$0	$0	$0	1

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2025 · 4 grants to organizations · $332K

Listed grants add up to $332,458; the return's “grants paid” expense line says $512,458. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2025 · CSV

2024 · 4 grants to organizations · $236K

Listed grants add up to $235,746; the return's “grants paid” expense line says $432,746. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2024 · CSV

2023 · 3 grants to organizations · $128K

Listed grants add up to $128,032; the return's “grants paid” expense line says $283,038. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2023 · CSV

2022 · 4 grants to organizations · $303K

Show every grant for 2022 · CSV

2021 · 3 grants to organizations · $184K

Listed grants add up to $184,189; the return's “grants paid” expense line says $204,594. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2021 · CSV

2020 · 4 grants to organizations · $205K · 1 returned · -$3K

Show every grant for 2020 · CSV

2019 · 5 grants to organizations · $337K

Listed grants add up to $336,917; the return's “grants paid” expense line says $416,917. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2019 · CSV

2018 · 3 grants to organizations · $154K

Listed grants add up to $154,250; the return's “grants paid” expense line says $253,199. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2018 · CSV

2017 · 4 grants to organizations · $201K

Listed grants add up to $201,000; the return's “grants paid” expense line says $187,287. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2017 · CSV

2016 · 4 grants to organizations · $250K

Listed grants add up to $250,000; the return's “grants paid” expense line says $347,254. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2016 · CSV

2015 · 10 grants to organizations · $551K

Show every grant for 2015 · CSV

2014 · 13 grants to organizations · $214K

Listed grants add up to $213,732; the return's “grants paid” expense line says $309,077. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2014 · CSV

2013 · 10 grants to organizations · $280K

Listed grants add up to $280,000; the return's “grants paid” expense line says $297,772. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2013 · CSV

2012 · 8 grants to organizations · $320K

Listed grants add up to $320,244; the return's “grants paid” expense line says $315,823. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2012 · CSV

2011 · 5 grants to organizations · $200K

Listed grants add up to $199,820; the return's “grants paid” expense line says $223,765. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2011 · CSV

2010 · 6 grants to organizations · $238K

Listed grants add up to $237,968; the return's “grants paid” expense line says $277,968. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2010 · CSV

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Revenue	Expenses	Assets	Net assets	Contributions	Program revenue	Officer pay	Employees	Volunteers
2025 · Form 990 period ending 2025-12-31 · view filing · original 990 ↗
$2,155,852	$2,061,095	$6,023,549	$5,545,388	$1,908,318	$0	$259,135	6	200
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$1,940,887	$2,093,891	$5,640,640	$5,220,286	$1,674,742	$0	$248,134	6	200
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$1,334,806	$1,421,717	$5,491,330	$5,285,354	$1,228,396	$0	$229,984	7	200
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$1,387,712	$1,367,327	$5,372,000	$5,013,330	$1,397,138	$0	$207,242	6	200
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$1,563,641	$1,010,732	$5,986,941	$5,701,689	$1,214,336	$0	$179,468	4	200
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$1,267,165	$1,001,933	$5,553,199	$5,280,639	$1,162,206	$0	$205,812	5	200
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$1,135,762	$1,301,376	$4,993,243	$4,706,418	$935,649	$0	$190,000	5	200
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$2,291,095	$1,155,310	$4,750,350	$4,591,271	$1,997,067	$156,766	$110,769	4	200
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$963,264	$930,832	$3,971,455	$3,712,671	$865,365	$0	$136,007	4	200
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$1,082,407	$1,231,511	$3,793,936	$3,577,557	$1,026,616	$0	$200,385	4	200
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$3,165,453	$1,232,310	$3,913,906	$3,673,079	$3,138,821	$0	$190,304	5	200
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$1,107,097	$1,195,629	$1,874,325	$1,758,008	$1,102,246	$0	$332,173	5	92
2013 · Form 990 period ending 2013-12-31 · view filing · original 990 ↗
$824,655	$796,952	$1,908,550	$1,846,257	$824,480	$0	$326,615	4	20
2012 · Form 990 period ending 2012-12-31 · view filing · original 990 ↗
$879,455	$956,309	$1,909,785	$1,819,347	$871,480	$0	$304,802	4	40
2011 · Form 990 period ending 2011-12-31 · view filing · original 990 ↗
$717,184	$752,666	$1,994,513	$1,895,211	$706,090	$0	$274,398	4	50
2010 · Form 990 period ending 2010-12-31 · view filing · original 990 ↗
$795,877	$1,066,992	$2,032,501	$1,932,459	$769,756	$0	$308,576	4	50

Funders of this organization

49 grantors reported grants to this organization, $3,772,898 in all, tax years 2009 to 2025; the 25 largest shown (all 49). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

Grantor	Type	Match	Years given	Grants	Total	Latest year	Latest year's amount	Grants
THE SL 2012 FUND	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION”	2013-2016	4	$1,226,666	2016	$150,000	show
SILICON VALLEY COMMUNITY FOUNDATION	DAF sponsor	Exact	2024	1	$800,000	2024	$800,000	show
FIDELITY INVESTMENTS CHARITABLE GIFT FUND	DAF sponsor	Exact	2016-2024	9	$612,942	2024	$78,022	show
JEWISH COMMUNAL FUND	DAF sponsor	Exact	2009-2024	16	$193,375	2024	$15,750	show
FRILL FOUNDATION	Private foundation	Fuzzy filed as “Barth Syndrome Foundation”, “BARTH SYNDROME FOUNDATION”	2016, 2020-2024	6	$180,000	2024	$75,000	show
LEBENSFELD FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION”	2010-2015	6	$150,000	2015	$25,000	show
FORGOOD INC	DAF sponsor	Exact	2010-2014	5	$121,581	2014	$26,429	show
AMERICAN ONLINE GIVING FOUNDATION INC	DAF sponsor	Exact	2019-2025	7	$84,736	2025	$33,280	show
KING SPRUCE COMPANY	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION”	2013-2024	12	$60,000	2024	$5,000	show
DAVID AND JANYCE HOYT FAMILY FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION INC”	2022	1	$50,000	2022	$50,000	show
NATIONAL PHILANTHROPIC TR	DAF sponsor	Exact	2024	1	$42,000	2024	$42,000	show
D F DILLON FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION”	2012-2025	14	$35,000	2025	$2,500	show
DONOR ADVISED CHARITABLE GIVING	DAF sponsor	Exact	2018, 2020, 2023-2024	4	$29,975	2024	$9,300	show
ISLANDERS CHILDRENS FOUNDATION	Public charity	Exact	2023-2024	2	$28,389	2024	$12,842	show
CHARITIES AID FOUNDATION AMERICA	DAF sponsor	Exact	2023	1	$20,442	2023	$20,442	show
VANGUARD CHARITABLE ENDOWMENT PROGRAM	DAF sponsor	Exact	2021, 2023	2	$20,120	2023	$13,500	show
SOL COHN FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION”	2020-2024	5	$18,500	2024	$4,000	show
THE KORPITA FAMILY FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION”	2023-2025	3	$18,035	2025	$10,300	show
TORTIMAKI FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION INC”	2012-2016	5	$18,000	2016	$4,000	show
AMG CHARITABLE GIFT FOUNDATION	DAF sponsor	Exact	2014-2016, 2019, 2021, 2023-2024	8	$8,000	2024	$1,000	show
DANICA FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION”	2016, 2018-2024	8	$7,001	2024	$1,000	show
AMAZONSMILE FOUNDATION	Private foundation	Fuzzy filed as “BARTH SYNDROME FOUNDATION INC”	2020-2023	4	$6,684	2023	$1,471	show
EARL AND BRENDA SHAPIRO FOUNDATION	Private foundation	Fuzzy filed as “Barth Syndrome Foundation Inc”	2023	1	$6,000	2023	$6,000	show
THE BLACKBAUD GIVING FUND	DAF sponsor	Exact	2022	1	$5,875	2022	$5,875	show
LINCOLN COMMUNITY FOUNDATION INC	DAF sponsor	Exact	2019	1	$5,100	2019	$5,100	show

Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Organizations like this one

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

Organization	State	NTEE	Latest revenue	Latest expenses	Top-paid title	Top pay	Why similar
WILDWOOD FOUNDATION INC	NY	T30	$1,226,108	$1,203,370	CEO	$239,009	Same NTEE code T30, revenue within 2x, same state
CAIPA FOUNDATION INC	NY	T30	$2,519,689	$1,106,134	DIRECTOR	$0	Same NTEE code T30, revenue within 2x, same state, similar name
LIFEBOX FOUNDATION INC	NY	T30	$3,671,430	$3,691,312	CEO	$229,594	Same NTEE code T30, revenue within 2x, same state
SKYLINE CHARITABLE FOUNDATION INC	NY	T30	$2,383,015	$2,411,268	EXECUTIVE DIRECTOR	$130,735	Same NTEE code T30, revenue within 2x, same state
INEVITABLE FOUNDATION	NY	T30	$2,106,804	$1,645,393	HEAD OF WRITING PROGRAMS	$77,714	Same NTEE code T30, revenue within 2x, same state
ISLANDERS CHILDRENS FOUNDATION	NY	T30	$1,436,296	$1,188,135	GENERAL COUNSEL	$600,370	Same NTEE code T30, revenue within 2x, same state
CHINATOWN HEALTH CLINIC FOUNDATION INC	NY	T30	$4,163,483	$2,212,098	CHIEF FINANCIAL OFFICER	$49,409	Same NTEE code T30, revenue within 2x, same state
ENDOMETRIOSIS FOUNDATION OF AMERICAINC	NY	T30	$1,930,447	$1,783,373	SENIOR PROGRAM MANAGER	$138,203	Same NTEE code T30, revenue within 2x, same state
DROPBOX FOUNDATION	NY	T30	$2,039,700	$1,261,422	TREASURER & DIRECTOR (THRU 08/2024)	$686,667	Same NTEE code T30, revenue within 2x, same state
LCPV FOUNDATION INC	NY	T30	$2,005,579	$1,449,739	TRUSTEE	$0	Same NTEE code T30, revenue within 2x, same state, similar name
PECONIC HOCKEY FOUNDATION INC	NY	T30	$1,385,688	$1,595,395	PRESIDENT	$0	Same NTEE code T30, revenue within 2x, same state
ROCHESTER AREA COMMUNITY FOUNDATION INITIATIVES INC	NY	T30	$2,756,360	$3,146,442	PRESIDENT AND CEO	$328,512	Same NTEE code T30, revenue within 2x, same state
LOOKING OUT FOUNDATION	NY	T30	$1,662,503	$1,694,253	Chairperson of the Board	$180,000	Same NTEE code T30, revenue within 2x, same state
THE EVERGREEN FOUNDATION	NY	T30	$2,146,731	$2,471,410	CEO/CORPORATE PRESIDENT	$707,015	Same NTEE code T30, revenue within 2x, same state
DANIEL PIERCE LIBRARY BUILDING FOUNDATION	NY	T30	$1,212,631	$35,000	PresidentTrustee	$0	Same NTEE code T30, revenue within 2x, same state
FOUNDATION FOR ETHNIC UNDERSTANDING	NY	T30	$1,378,933	$1,345,715	President	$442,847	Same NTEE code T30, revenue within 2x, same state
VISIT ORG PHILANTHROPIC FOUNDATION	NY	T30	$1,222,624	$1,278,593	CHAIRPERSON	$0	Same NTEE code T30, revenue within 2x, same state
MENTAL HEALTH COALITION INC	NY	T30	$2,209,686	$2,003,934	President	$236,566	Same NTEE code T30, revenue within 2x, same state
EDUCATION SUCCESS NETWORK INC	NY	T30	$2,763,229	$2,637,247	CEO/SECRETARY	$289,484	Same NTEE code T30, revenue within 2x, same state
ASPIRE INDIA INC	NY	T30	$1,457,391	$1,063,897	Treasurer	$150,000	Same NTEE code T30, revenue within 2x, same state
LUTHERAN SOCIAL SERVICES FOUNDATION OF UPSTATE NEW YORK INC	NY	T30	$2,287,917	$1,774,727	FORMER PRESIDENT/CEO	$313,003	Same NTEE code T30, revenue within 2x, same state
THE SAMARITAN MEDICAL CENTER FOUNDATION OF NORTHERN NEW YORK IN	NY	T30	$1,941,367	$966,451	PRESIDENT & CEO OF SMC	$1,195,670	Same NTEE code T30, revenue within 2x, same state
HEDGE FUNDS CARE INC	NY	T30	$1,658,839	$2,111,715	EXECUTIVE DIRECTOR & COO	$189,581	Same NTEE code T30, revenue within 2x, same state
REGINA SKYER FAMILY FOUNDATION INC	NY	T30	$2,041,932	$435,753	DIRECTOR	$0	Same NTEE code T30, revenue within 2x, same state
VAANI TEFILLAH FOUNDATION	NY	T30	$1,220,855	$392,392	SECRETARY	$60,000	Same NTEE code T30, revenue within 2x, same state

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

Grantor	Type	Total given	Grants	Organizations funded	Years	Which ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one	DAF sponsor	$19,043,413	231	52	2016–2024	DOC SOCIETY INC; ASPIRE INDIA INC; AMERICAN FUND FOR ATHENS COLLEGE IN GREECE; JOHNS ISLAND FOUNDATION INC and 48 more
LILLY ENDOWMENT INC	Private foundation	$5,716,976	21	2	2010–2025	FAYETTE COUNTY FOUNDATION INC; ATHENAEUM FOUNDATION INC
THE OJC FUND	DAF sponsor	$5,470,787	44	12	2015–2024	FRIENDS OF BAS AYIN; KEREN ACHEINU BNEI YISROEL INC; MIFAL TZEDAKA VCHESED CHASDEI AHARON; AMERICAN FRIENDS OF MOSDOS BET SHEMESH and 8 more
DONOR ADVISED CHARITABLE GIVING funds this one	DAF sponsor	$5,304,907	133	31	2014–2024	ADMIRALS COVE FOUNDATION INC; DOC SOCIETY INC; ENDOMETRIOSIS FOUNDATION OF AMERICAINC; HEDGE FUNDS CARE INC and 27 more
THE CHICAGO COMMUNITY TRUST	DAF sponsor	$5,006,500	2	2	2022–2024	CIRCLE FOR JUSTICE INNOVATIONS; SHENANDOAH COMMUNITY FOUNDATION INC
AMERICAN ONLINE GIVING FOUNDATION INC funds this one	DAF sponsor	$4,324,423	89	24	2019–2025	HAPPY HOPE FOUNDATION INC; VISIT ORG PHILANTHROPIC FOUNDATION; MENTAL HEALTH COALITION INC; ENDOMETRIOSIS FOUNDATION OF AMERICAINC and 20 more
GS DONOR ADVISED PHILANTHROPY FUND FOR WEALTH MANAGEMENT INC	DAF sponsor	$3,740,653	45	15	2017–2024	PI FOUNDATION INC; NATIONAL SUMMER SCHOOL INITIATIVE INC; FRIENDS OF DARCHEI HILLEL INC; CHASDEI YISROEL INC and 11 more
JEWISH COMMUNAL FUND funds this one	DAF sponsor	$3,209,638	126	24	2009–2024	PAAMONIM; CHASDEI YISROEL INC; AMERICAN FRIENDS OF LEMA AN ACHAI; AMERICAN FRIENDS OF KISSE RAHAMIM INC and 20 more
CARES NYS CHARITABLE TRUST	Private foundation	$2,845,000	1	1	2023–2023	CHEVRA-KADISHA YERUSHALAYIM INC
NATIONAL PHILANTHROPIC TR funds this one	DAF sponsor	$2,616,542	56	18	2014–2024	ENDOMETRIOSIS FOUNDATION OF AMERICAINC; HEDGE FUNDS CARE INC; LEV LALEV INC; AMERICAN FRIENDS OF LEMA AN ACHAI and 14 more
VANGUARD CHARITABLE ENDOWMENT PROGRAM funds this one	DAF sponsor	$2,514,633	58	25	2020–2024	AMERICAN FUND FOR ATHENS COLLEGE IN GREECE; JOHNS ISLAND FOUNDATION INC; FUND FOR THE GUGGENHEIM FELLOWSHIPS; PECONIC HOCKEY FOUNDATION INC and 21 more
THE EZRAH CHARITABLE TRUST	Private foundation	$2,250,000	3	1	2021–2023	FRIENDS OF PARIVAAR INC
ROCHESTER AREA COMMUNITY FOUNDATION	DAF sponsor	$1,752,111	29	3	2018–2024	ROCHESTER AREA COMMUNITY FOUNDATION INITIATIVES INC; MOUNT KISCO INTERFAITH FOOD PANTRY INC; EDUCATION SUCCESS NETWORK INC
BOSTON FOUNDATION INC	DAF sponsor	$1,708,911	36	4	2010–2024	LIFEBOX FOUNDATION INC; JOHNS ISLAND FOUNDATION INC; BROOKLINE COMMUNITY FOUNDATION INC; ASPIRE INDIA INC
AMATEUR RADIO DIGITAL COMMUNICATIONS	Private foundation	$1,564,250	3	1	2021–2021	ARRL FOUNDATION INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2025 · Form 990 · $2,061,095 spent · pay $1,001,460 · grants $512,458 · events $24,416

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$631,228	$466,510	$65,928	$98,790	30.6%
Grants to US organizations and governments		$332,458	$332,458	-	-	16.1%
Pay: officers, directors, trustees, key employees		$259,135	$220,265	$25,913	$12,957	12.6%
Fees: other services		$208,116	$131,991	$18,377	$57,748	10.1%
Grants outside the US		$180,000	$180,000	-	-	8.7%
Office expenses		$102,418	$33,831	$41,837	$26,750	5.0%
Payroll taxes		$69,226	$51,342	$7,151	$10,733	3.4%
Travel		$68,202	$58,107	$4,643	$5,452	3.3%
Fees: accounting		$64,616	-	$64,616	-	3.1%
Other (as described)	PROGRAM EXPENSES	$46,801	$46,801	-	-	2.3%
Other employee benefits		$41,871	$32,191	$4,290	$5,390	2.0%
Other (as described)	PRINTING AND PUBLICATIO	$22,564	$21,733	-	$831	1.1%
Other (as described)	DUES AND FEES	$10,411	$3,354	$6,905	$152	0.5%
Other (as described)	AUDIO VISUAL	$8,850	$7,000	-	$1,850	0.4%
Insurance		$8,673	-	$8,673	-	0.4%
Fees: legal		$5,493	$5,493	-	-	0.3%
All other expenses		$1,033	$87	$946	-	0.1%
Fundraising events Event	direct expenses; gross income $22,500	$24,416				reported apart
Total		$2,061,095				100%

View the filing

2024 · Form 990 · $2,093,891 spent · pay $840,854 · grants $432,746 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$510,281	$418,143	$20,959	$71,179	24.4%
Fees: other services		$249,372	$227,540	$16,632	$5,200	11.9%
Pay: officers, directors, trustees, key employees		$248,134	$161,287	$24,813	$62,034	11.9%
Travel		$243,205	$243,205	-	-	11.6%
Grants to US organizations and governments		$235,746	$235,746	-	-	11.3%
Grants outside the US		$185,000	$185,000	-	-	8.8%
Office expenses		$122,171	$60,221	$39,466	$22,484	5.8%
Other (as described)	AUDIO VISUAL	$69,441	$69,241	-	$200	3.3%
Fees: accounting		$62,820	-	$62,820	-	3.0%
Payroll taxes		$49,820	$40,384	$1,854	$7,582	2.4%
Other employee benefits		$32,619	$24,897	$1,818	$5,904	1.6%
Other (as described)	PRINTING AND PUBLICATIO	$25,047	$20,982	-	$4,065	1.2%
Other (as described)	MISCELLANEOUS	$14,812	$14,774	-	$38	0.7%
Fees: legal		$12,503	$12,503	-	-	0.6%
Grants to US individuals		$12,000	$12,000	-	-	0.6%
Other (as described)	DUES AND FEES	$11,736	$4,868	$6,868	-	0.6%
Insurance		$7,724	-	$7,724	-	0.4%
All other expenses		$1,460	$506	$954	-	0.1%
Total		$2,093,891				100%

View the filing

2023 · Form 990 · $1,421,717 spent · pay $726,677 · grants $283,038 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$410,056	$332,213	$16,807	$61,036	28.8%
Pay: officers, directors, trustees, key employees		$229,984	$137,990	$34,498	$57,496	16.2%
Fees: other services		$161,140	$88,881	$66,643	$5,616	11.3%
Grants outside the US		$155,006	$155,006	-	-	10.9%
Grants to US organizations and governments		$128,032	$128,032	-	-	9.0%
Office expenses		$90,802	$19,560	$50,142	$21,100	6.4%
Fees: accounting		$58,148	$33,255	$24,893	-	4.1%
Payroll taxes		$49,862	$39,675	$2,928	$7,259	3.5%
Travel		$44,325	$42,542	$84	$1,699	3.1%
Other employee benefits		$36,775	$28,264	$1,965	$6,546	2.6%
Other (as described)	PRINTING AND PUBLICATIO	$26,510	$18,952	$289	$7,269	1.9%
Other (as described)	DUES AND FEES	$12,918	$7,878	$3,840	$1,200	0.9%
Fees: legal		$7,965	$7,965	-	-	0.6%
Insurance		$4,979	-	$4,979	-	0.4%
Other (as described)	MISCELLANEOUS	$2,571	$999	$714	$858	0.2%
Other (as described)	TELEPHONE	$1,724	$695	$1,029	-	0.1%
All other expenses		$920	$600	-	$320	0.1%
Total		$1,421,717				100%

View the filing

2022 · Form 990 · $1,367,327 spent · pay $676,721 · grants $302,773 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$377,013	$284,666	$60,617	$31,730	27.6%
Grants to US organizations and governments		$302,773	$302,773	-	-	22.1%
Pay: officers, directors, trustees, key employees		$207,242	$124,345	$31,086	$51,811	15.2%
Fees: other services		$102,419	$83,669	-	$18,750	7.5%
Office expenses		$84,052	$15,090	$45,638	$23,324	6.1%
Travel		$69,319	$55,099	$14	$14,206	5.1%
Payroll taxes		$68,230	$53,316	$6,522	$8,392	5.0%
Fees: accounting		$55,627	-	$55,627	-	4.1%
Other (as described)	PRINTING AND PUBLICATIO	$25,990	$23,708	$506	$1,776	1.9%
Other employee benefits		$24,236	$18,460	$2,460	$3,316	1.8%
Fees: legal		$19,784	$19,784	-	-	1.4%
Other (as described)	DUES AND FEES	$9,274	$4,813	$4,386	$75	0.7%
Other (as described)	MISCELLANEOUS	$9,191	$1,020	$455	$7,716	0.7%
Other (as described)	AUDIO VISUAL	$4,944	$4,624	-	$320	0.4%
Insurance		$4,067	-	$4,067	-	0.3%
All other expenses		$3,166	$2,148	$1,018	-	0.2%
Total		$1,367,327				100%

View the filing

2021 · Form 990 · $1,010,732 spent · pay $545,292 · grants $204,594 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$308,917	$250,586	$56,861	$1,470	30.6%
Pay: officers, directors, trustees, key employees		$179,468	$107,681	$26,920	$44,867	17.8%
Grants to US organizations and governments		$174,594	$174,594	-	-	17.3%
Office expenses		$104,133	$40,171	$42,678	$21,284	10.3%
Fees: other services		$82,722	$81,494	$839	$389	8.2%
Fees: accounting		$52,531	-	$52,531	-	5.2%
Payroll taxes		$32,610	$28,365	$3,257	$988	3.2%
Grants outside the US		$30,000	$30,000	-	-	3.0%
Other employee benefits		$24,297	$19,622	$2,708	$1,967	2.4%
Other (as described)	DUES AND FEES	$10,580	$4,785	$5,795	-	1.0%
Travel		$3,466	$1,491	-	$1,975	0.3%
Insurance		$3,374	-	$3,374	-	0.3%
Other (as described)	MISCELLANEOUS	$2,932	$1,511	$770	$651	0.3%
Other (as described)	AUDIO VISUAL	$1,108	$1,108	-	-	0.1%
Total		$1,010,732				100%

View the filing

2020 · Form 990 · $1,001,933 spent · pay $541,806 · grants $201,587 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$280,943	$263,048	$15,945	$1,950	28.0%
Pay: officers, directors, trustees, key employees		$205,812	$123,487	$30,872	$51,453	20.5%
Grants to US organizations and governments		$201,587	$201,587	-	-	20.1%
Fees: other services		$113,128	$104,128	-	$9,000	11.3%
Office expenses		$73,073	$26,090	$34,341	$12,642	7.3%
Fees: accounting		$51,018	-	$51,018	-	5.1%
Payroll taxes		$30,848	$27,167	$2,831	$850	3.1%
Other employee benefits		$24,203	$19,552	$2,587	$2,064	2.4%
Other (as described)	DUES AND FEES	$11,026	$3,998	$7,028	-	1.1%
Travel		$5,639	$5,542	-	$97	0.6%
Insurance		$3,204	-	$3,204	-	0.3%
Other (as described)	MISCELLANEOUS	$1,092	$892	-	$200	0.1%
Other (as described)	AUDIO VISUAL	$360	-	-	$360	0.0%
Total		$1,001,933				100%

View the filing

2019 · Form 990 · $1,301,376 spent · pay $561,697 · grants $416,917 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$336,917	$336,917	-	-	25.9%
Other salaries and wages		$313,283	$296,874	$16,409	-	24.1%
Pay: officers, directors, trustees, key employees		$190,000	$114,000	$28,500	$47,500	14.6%
Fees: other services		$107,741	$90,470	$12,679	$4,592	8.3%
Grants outside the US		$80,000	$80,000	-	-	6.1%
Office expenses		$74,854	$25,002	$33,788	$16,064	5.8%
Travel		$52,901	$48,646	$2,853	$1,402	4.1%
Fees: accounting		$48,483	-	$48,483	-	3.7%
Payroll taxes		$33,703	$30,020	$2,050	$1,633	2.6%
Other employee benefits		$24,711	$22,010	$1,503	$1,198	1.9%
Other (as described)	DUES AND FEES	$18,144	$7,638	$8,712	$1,794	1.4%
Other (as described)	AUDIO VISUAL	$12,125	$12,000	-	$125	0.9%
Insurance		$3,801	-	$3,801	-	0.3%
Other (as described)	MEALS	$2,383	$2,287	$96	-	0.2%
Other (as described)	MISCELLANEOUS	$2,330	$1,350	$955	$25	0.2%
Total		$1,301,376				100%

View the filing

2018 · Form 990 · $1,155,310 spent · pay $479,527 · grants $253,199 · events $12,554

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$311,792	$293,988	$17,804	-	27.0%
Grants to US organizations and governments		$154,250	$154,250	-	-	13.4%
Pay: officers, directors, trustees, key employees		$110,769	$66,462	$5,538	$38,769	9.6%
Grants outside the US		$98,949	$98,949	-	-	8.6%
Other (as described)	MEALS	$85,822	$85,690	-	$132	7.4%
Travel		$80,110	$73,163	$6,673	$274	6.9%
Fees: other services		$78,368	$57,881	$20,487	-	6.8%
Office expenses		$64,520	$32,444	$22,937	$9,139	5.6%
Other (as described)	AUDIO VISUAL	$44,252	$44,252	-	-	3.8%
Fees: accounting		$38,488	-	$38,488	-	3.3%
Payroll taxes		$31,646	$26,894	$1,687	$3,065	2.7%
Other employee benefits		$25,320	$23,825	$1,495	-	2.2%
Other (as described)	DUES AND FEES	$12,719	$4,950	$6,023	$1,746	1.1%
Conferences, conventions and meetings		$12,554	$12,554	-	-	1.1%
Insurance		$3,562	-	$3,562	-	0.3%
Other (as described)	THERAPY DEVELOPMENT	$2,189	$2,189	-	-	0.2%
Total		$1,155,310				100%

View the filing

2017 · Form 990 · $930,832 spent · pay $485,241 · grants $187,287 · events $7,649

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$303,596	$286,419	$17,177	-	32.6%
Grants to US organizations and governments		$187,287	$187,287	-	-	20.1%
Pay: officers, directors, trustees, key employees		$136,007	$87,745	$6,864	$41,398	14.6%
Other (as described)	THERAPY DEVELOPMENT	$69,830	$69,830	-	-	7.5%
Fees: other services		$55,500	$13,500	$42,000	-	6.0%
Office expenses		$49,482	$22,501	$21,920	$5,061	5.3%
Fees: accounting		$38,086	-	$38,086	-	4.1%
Other employee benefits		$23,814	$22,587	$1,227	-	2.6%
Payroll taxes		$21,824	$20,413	$1,411	-	2.3%
Travel		$16,665	$10,312	$6,217	$136	1.8%
Other (as described)	DUES AND FEES	$14,018	$5,270	$6,848	$1,900	1.5%
Conferences, conventions and meetings		$7,649	$7,649	-	-	0.8%
Insurance		$4,034	-	$4,034	-	0.4%
Other (as described)	MEALS	$2,540	$1,550	$963	$27	0.3%
Other (as described)	AUDIO VISUAL	$500	$250	-	$250	0.1%
Total		$930,832				100%

View the filing

2016 · Form 990 · $1,231,511 spent · pay $476,851 · grants $347,254 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$347,254	$347,254	-	-	28.2%
Other salaries and wages		$219,551	$202,881	$16,670	-	17.8%
Pay: officers, directors, trustees, key employees		$200,385	$152,119	$6,033	$42,233	16.3%
Other (as described)	TRANSPORTATION	$82,098	$78,852	-	$3,246	6.7%
Other (as described)	THERAPY DEVELOPMENT	$67,167	$67,167	-	-	5.5%
Office expenses		$65,601	$21,431	$38,963	$5,207	5.3%
Other (as described)	MEALS	$62,502	$62,064	$20	$418	5.1%
Fees: other services		$40,102	$19,981	$121	$20,000	3.3%
Fees: accounting		$34,533	-	$34,533	-	2.8%
All other expenses		$31,403	$21,146	$7,246	$3,011	2.5%
Payroll taxes		$30,420	$25,366	$1,694	$3,360	2.5%
Other employee benefits		$26,495	$22,307	$1,570	$2,618	2.2%
Other (as described)	AUDIO VISUAL	$19,894	$19,894	-	-	1.6%
Interest		$4,106	-	$4,106	-	0.3%
Total		$1,231,511				100%

View the filing

2015 · Form 990 · $1,232,310 spent · pay $486,057 · grants $551,043 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$551,043	$551,043	-	-	44.7%
Other salaries and wages		$245,873	$200,595	$16,077	$29,201	20.0%
Pay: officers, directors, trustees, key employees		$190,304	$145,007	$5,662	$39,635	15.4%
Other (as described)	THERAPY DEVELOPMENT	$39,000	$39,000	-	-	3.2%
Office expenses		$36,607	$13,595	$15,796	$7,216	3.0%
Payroll taxes		$32,296	$24,825	$1,673	$5,798	2.6%
Other (as described)	TRANSPORTATION	$31,365	$24,846	$5,926	$593	2.5%
Fees: accounting		$26,218	-	$26,218	-	2.1%
Fees: other services		$25,025	$24,500	$525	-	2.0%
Other employee benefits		$17,584	$16,541	$669	$374	1.4%
Other (as described)	DUES & FEES	$16,026	$6,704	$6,815	$2,507	1.3%
All other expenses		$8,764	$7,023	$1,741	-	0.7%
Other (as described)	TELEPHONE	$6,993	$5,959	$673	$361	0.6%
Insurance		$4,183	-	$4,183	-	0.3%
Fees: legal		$1,029	-	$1,029	-	0.1%
Total		$1,232,310				100%

View the filing

2014 · Form 990 · $1,195,629 spent · pay $478,163 · grants $309,077 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$431,556	$337,770	$21,286	$72,500	36.1%
Grants to US organizations and governments		$213,732	$213,732	-	-	17.9%
Fees: other services		$133,868	$133,778	-	$90	11.2%
Grants outside the US		$95,345	$95,345	-	-	8.0%
Other (as described)	TRANSPORTATION	$88,687	$82,326	$3,111	$3,250	7.4%
Other (as described)	MEALS	$67,126	$66,853	$273	-	5.6%
Office expenses		$37,612	$20,741	$12,087	$4,784	3.1%
Payroll taxes		$32,193	$24,402	$1,701	$6,090	2.7%
Fees: accounting		$29,943	-	$29,943	-	2.5%
Other (as described)	AUDIO VISUAL	$17,443	$17,443	-	-	1.5%
All other expenses		$16,825	$15,666	$646	$513	1.4%
Other employee benefits		$14,414	$13,389	$1,025	-	1.2%
Other (as described)	DUES & FEES	$12,980	$4,260	$5,837	$2,883	1.1%
Insurance		$3,905	-	$3,905	-	0.3%
Total		$1,195,629				100%

View the filing

2013 · Form 990 · $796,952 spent · pay $436,820 · grants $297,772 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$288,284	$288,284	-	-	36.2%
Other salaries and wages		$205,246	$190,270	$14,976	-	25.8%
Pay: disqualified persons		$182,846	$139,542	$4,692	$38,612	22.9%
Fees: accounting		$28,894	-	$28,894	-	3.6%
Payroll taxes		$27,602	$23,056	$1,462	$3,084	3.5%
Office expenses		$22,552	$8,626	$11,737	$2,189	2.8%
Other employee benefits		$21,126	$19,463	$1,663	-	2.7%
Other (as described)	TRANSPORTATION	$16,385	$6,334	$9,753	$298	2.1%
Other (as described)	TRAINING AND EDUCATION	$10,913	$6,155	-	$4,758	1.4%
Other (as described)	DUES & FEES	$10,771	$4,984	$4,787	$1,000	1.4%
Grants outside the US		$9,488	$9,488	-	-	1.2%
Other (as described)	TELEPHONE	$8,252	$7,277	$675	$300	1.0%
All other expenses		$7,134	$7,111	$23	-	0.9%
Insurance		$3,827	-	$3,827	-	0.5%
Fees: other services		-$46,368	-$46,368	-	-	-5.8%
Total		$796,952				100%

View the filing

2012 · Form 990 · $956,309 spent · pay $412,284 · grants $315,823 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$315,823	$315,823	-	-	33.0%
Pay: officers, directors, trustees, key employees		$304,802	$234,417	$35,193	$35,192	31.9%
Other (as described)	MEALS	$57,659	$57,659	-	-	6.0%
Other salaries and wages		$56,688	$28,344	$28,344	-	5.9%
Other (as described)	TRANSPORTATION	$48,094	$44,061	$3,765	$268	5.0%
Fees: accounting		$35,591	-	$35,591	-	3.7%
Payroll taxes		$26,038	$18,400	$4,836	$2,802	2.7%
Office expenses		$25,670	$12,162	$13,249	$259	2.7%
Other employee benefits		$24,756	$21,732	$3,024	-	2.6%
All other expenses		$24,642	$17,540	$6,102	$1,000	2.6%
Other (as described)	PRINTING AND PUBLICATIO	$12,760	$12,677	$83	-	1.3%
Other (as described)	AUDIO VISUAL	$10,689	$10,689	-	-	1.1%
Fees: other services		$9,375	$5,900	$3,475	-	1.0%
Insurance		$3,722	-	$3,722	-	0.4%
Total		$956,309				100%

View the filing

2011 · Form 990 · $752,666 spent · pay $332,846 · grants $223,765 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$274,398	$231,068	$36,503	$6,827	36.5%
Grants to US organizations and governments		$223,765	$223,765	-	-	29.7%
Fees: other services		$100,912	$88,901	$12,011	-	13.4%
Other employee benefits		$38,259	$32,906	$5,353	-	5.1%
Fees: accounting		$28,330	-	$28,330	-	3.8%
Payroll taxes		$20,189	$16,637	$2,957	$595	2.7%
Other (as described)	TRANSPORTATION	$19,181	$16,271	$2,802	$108	2.5%
Office expenses		$16,954	$6,511	$8,646	$1,797	2.3%
Other (as described)	DUES & FEES	$11,410	$3,860	$6,050	$1,500	1.5%
Other (as described)	TELEPHONE	$8,727	$7,876	$851	-	1.2%
Other (as described)	PRINTING AND PUBLICATIO	$5,218	$5,218	-	-	0.7%
Insurance		$3,463	-	$3,463	-	0.5%
All other expenses		$1,860	$1,860	-	-	0.2%
Total		$752,666				100%

View the filing

2010 · Form 990 · $1,066,992 spent · pay $378,615 · grants $277,968 · events $0

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$308,576	$223,569	$60,190	$24,817	28.9%
Grants to US organizations and governments		$277,968	$277,968	-	-	26.1%
Fees: other services		$131,465	$95,089	$36,376	-	12.3%
Other (as described)	MEALS	$80,561	$80,561	-	-	7.6%
Other (as described)	TRANSPORTATION	$69,535	$69,337	$144	$54	6.5%
Office expenses		$48,953	$35,342	$10,374	$3,237	4.6%
Other employee benefits		$45,885	$35,942	$8,363	$1,580	4.3%
Other (as described)	AUDIO VISUAL	$35,544	$35,544	-	-	3.3%
Payroll taxes		$24,154	$16,973	$5,056	$2,125	2.3%
All other expenses		$18,836	$14,768	$3,648	$420	1.8%
Other (as described)	DUES & FEES	$14,450	$9,276	$4,019	$1,155	1.4%
Other (as described)	TELEPHONE	$11,065	$8,010	$3,055	-	1.0%
Total		$1,066,992				100%

View the filing

Federal grants and contracts

Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.

Fiscal year	Grants and other assistance	Contracts	Awards
2026	$56,250	$0	2
2025	$0	$0	1
2024	$40,000	$0	2
2020	$30,000	$0	1
2019	$0	$0	1
2018	$25,000	$0	1
2017	$0	$0	1

Largest awards · 4 shown

Year	Agency	Kind	Program	Description	Obligated
2026	National Institutes of Health	Grant or other assistance	CHILD HEALTH AND HUMAN DEVELOPMENT EXTRAMURAL RESEARCH 93.865	2026 SCIENTIFIC AND MEDICAL CONFERENCE ON BARTH SYNDROME: NAVIGATING THE TRANSITIONFROM PROOF-OF-CONCEPT TO CLINICAL PRODUCT - PROJECT SUMMARY BARTH SYNDROME (B	$56,250
2024	National Institutes of Health	Grant or other assistance	NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES 93.350	2024 SCIENTIFIC AND MEDICAL CONFERENCE ON BARTH SYNDROME: BENCHTOP TO TREATMENTS - PROJECT SUMMARY BARTH SYNDROME (BTHS) IS AN ULTRA-RARE (<500 INDIVIDUALS IDEN	$40,000
2020	National Institutes of Health	Grant or other assistance	CARDIOVASCULAR DISEASES RESEARCH 93.837	2020 SCIENTIFIC AND MEDICAL CONFERENCE ABOUT BARTH SYNDROME	$30,000
2018	National Institutes of Health	Grant or other assistance	CARDIOVASCULAR DISEASES RESEARCH 93.837	2018 SCIENTIFIC AND MEDICAL CONFERENCE ABOUT BARTH SYNDROME	$25,000

Trademarks

7 US trademarks, 6 live.

The Barth Syndrome Foundation Inc. 7 marks, NY FUZZY medium confidence: same name (governing-board words and legal endings aside) and state

Mark	Serial	Filed	Status	Source
BARTH SYNDROME FOUNDATION	98811943	2024-10-21	Registered	TRTDXFAP, file of 2026-04-08
BARTH SYNDROME CONFERENCE	98811938	2024-10-21	Registered	TRTYRAP, file of 2026-04-03
(design)	98811933	2024-10-21	Registered	TRTYRAP, file of 2026-04-03
NOT TOO RARE TO CARE	98233699	2023-10-20	Abandoned	TRTDXFAP, file of 2026-07-18
BARTH SYNDROME FOUNDATION	86202797	2014-02-24	Registered and renewed	TRTYRAP, file of 2026-04-03
BARTH SYNDROME REGISTRY AND REPOSITORY	86202792	2014-02-24	Registered and renewed	TRTYRAP, file of 2026-04-03
BARTH SYNDROME FOUNDATION WWW.BARTHSYNDROMEFOUNDATION.ORG	78204806	2003-01-17	Registration cancelled	TRTYRAP, file of 2026-04-03

The newest marks of the trademark owners above, matched to this record by name (and state).

BARTH SYNDROME FOUNDATION INC

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